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 contents
~lJDS welcome

2000
orso family..... 2

programs .................... 3

resourcelibrary...............
annual report
3

fundraising .................. 4

conferences&seminars......... 5

milerfamlly.................. 6

)ohnlc. NADS
publications.................. 7
','
flrstprcsidcm,
~-,.;' wirh his wife
behaviorretreat...............8
" :¡'.
Marjori~andson
tellofamily................... 9
.
l...'; :/
Kevin.
--,', adult down syndrome center..... 10
"":J;..

~,
~ parent

public
support

awareness

mentoring ................... 11
program ......... 10

program ....... 11

financials....................12
officers & directors.....,...... 12

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programs resource
Hmpital Devlopment Family Bchavio~ Retrt Coiifcn:nces & Semimw
\Ve hold ~ major conferen,c in the f.1I of every
library
Mcdicaiprofc~ioiiaisplayacrîticalroicin Some children wifh Down syndrome have also
helping parents of newly diagno~ infants beeii diagnosed wim Ammion Deficit oihcr year as welJ as seminars IhroughoUI ihc The NADS resource library h:i, well OVer 300
with Down syndrome de:l iviili ¡he inevitable Disorder, Atfention DdicirlHypernclivity ycarmvcringawidc:irayofwpicsrdalcdlO bOQks,audioiapcandvideo~rdatedtoDiiwn
chaHcngcsrhatocurwhcliababyisbomwith Disorder, Autism or oihcr conditions. At our Down syndrome. These rorum5 provide syndrome. It is loc.,tedat fheAdulf Down
Down syndrome. The educatiiiiial progr:is Family Behavior Rcircats,wcorfervaluable valuablciiiformaiionmdcominuingcduc:iion Syndrome Center, and (he materials ate
we provide to licathcareprotessionals in iiiformatioii.5upponandcncourngeincnilo to parcnuand profcssionals. avaiblile for luan II NAD.~ members. patienis
hospitals diroughout die Chic:goarc provide p:ients, arid a safe, funwcdrcndforihdr of ihe Adult Down Syndrome Center and their
:i import:it link in the chain of support for children. Adult Down Syndrome Cenicr faniilcsor carc¡ivers.
thCle new familics. We are in our ninth ycarofeoll2bor:nion
PublkSpeiiers with Ludiemn Genera Hospital ptoviding Wenrc eontÎmlal1)' adding 10 and u¡xatingour

l':intSupport To ineresepublicnwarenes,undemandillg eomprehemivemedica,psyehosociaL,ad\'c:cy book'aiid rcferenccmaieriaisiviilicurreni

InourP,m:nrSupporiProgmmweiminparell and accepi:llee of pet sons with Down and oime:eh serviees for teens and aduhs wiih public:iiom ofintcrc.,1 10 aU age groups. Our
vohinteerswhovisiinewparelltsotchildren syndrome, our trained public spe:ers give Down syndrome. This i.l the onl)' Center of iis bookscovcrawidcmngeofiopk.,.Thcy
wiiliDownsyndtome.offerin¡;themmppori ptcsemalionsinhospital."scliools,universiiiCl, kind in ihe cOiimry. indudcchildren'sbooks thar feature siories of
ami undemanding. \'epro,'ideo\ln~w and ciimmunirynrganizmion~. individualswiihDownsyidtome,publications
p~fenu witb much needed information and \X'orkF.pcrienee onedl1c:uion,employnient, family, housing,
hdp them acLc,,,,'iial tesiiuteesinthcit Conducted at the Adult Down Syndrome indusion,medicalissuCl,nutrllion,reerc3tion,
communi!)', Cenrer, this program offers high school tdigion, sibJings, 3nd tr3nsition to adult life.
studenr.:idaduliiwiihDownsyndromc lnaddiiion we have boiiksat a vaderyof
Parnt-io-Parent Network theoppritruiiiry 10 devclop offce skills aiid reading b'ds for persons wiih Down
In ihii piogram we serve familesof'¿ool-agc gain valuable work cxperience inpre¡xration ~yndrome.
childten uyliclpirigrliein nerworkwi¡lioiher forthcircntiyinioùiejobrn:irket.
familicswho arc di:ling wiih siniilarsehoul
andsocialissiiCS. Mentoring
Our menrorsoßì:tfrieiidship and support

to adults with Down s)"ndrome iii the

ciimmuniry.

1984 1984
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publications
WehavedçvdopL-.lprintedniaieriaLi:ind NADSArr!iu- a 30.minuli' c.~ercise vidoo_
videotapeswhichsupporiihcworknfour t~pe fe~iiring teens and adult wiih Down 5)n-
org.iniz:nion.Thi: are avai1:ible nOI onl)' w dromc pankipatiiig iii a ~nmpl~te aerobic
our members hut also 10 other parciirfadvoca- workom. This iapc i~ u$Cd :1\ a hnme o;~rci5e
cysroups. profl$iol1ab. and members of the guide and in groul'cxcrciic progr;im,.
commuoicyatl:rgc.
PottcrScrÏcs-e.ichoftlicse.iix po~rcrsfca.
NADS Neivr - an iiiform:uive bi-monthly turcs a young persoii Wiih Down syidrnme pcr-
newslcucr provides our members wiih currCni fnrmini;anactÎI'Ît)'ordispJayiligatalemwiih
informadon on Down .\yndromc and NADS the iheme "Don't Be Slltpriscd.~ We disiiblic
:iciivitics. iliepo5teriio.lchoo1s:idcornmunitynrgani7_i_
tiomasamc:imofprumlltingpu.iiivel'ublic
A Baby Fint -:i beautiful bookler which We awarclicssofDowlisyndromc.
providcioallouriicwparcnts.Avail:blcin
both Eni;!ish andSp:iliish,ii is,ilsnmcdby
supportgrouplthroughomthcUniicdSi:ite5.
c.-inada, and orhercounirit:.

NA web site- www.ii:ids.org "

"A BAY FIRST...
The Inrcrnctirfilli: wiih an:imostcndh:s.
sourccofinformadon,rcfcrcnccmaicrial,and
people with whom you em correspond. Our
wchsitcisanoihcrwaj'wcprovidc\'ciuahle
inform,aionon Down 5)udroliietu,lbruad
audiencc.
 behavior "1 was able to share my worries and
retreat disappointments with people who
understood what we have been

(li:iddiiiol1 (ocdebr:uinglhc:succe5i:of going through, "

our children nod adult with Down 5)'1-
droim" NADS i., cxircmdy coiiccrm:d
alioullhoscwhoh.ivcmorcsignifiCôllt
cli:illcngc."Somcchildrcnh:ivcadditional
diig1105C",Sucli:LI Anendon Ddìcirl
I-rpcr:ictiviij' D¡.,order (ADHD), POD
(Auii"ii)01 olhcrhdi:iviororncurologic:
di,OldcIS.

inordcrrnl'lfi'idc')UPpOrlioihcscf:iii¡.
lie, and hd¡i i.l,'dop coping irl"m:gics, we
hddollt iìm Bdi;iviorl':cm:ai in March
1991ì.hi,lddirin"",l'wviding,..uahlc
IIform:i¡joii,md insiglii.thc Einiilic,wcrc
abkio.,haicwiilic;,di oihcrand work
iogcdiCluiiihdrl'riihlcii",

111 Apri! 2UUOI,'1l Eimjjie, parl;çil'alCd iii

our third IIclt",iúi He!r",H alU!ag,lin it was
"t'r:' ¡U~'C,~l-,,1. h, addiiiolllU work,hops
for d" pan"m, ihdi diildrni wcr~ wdl-
L',ir~d !orb¡'a¡.rclLp"rCxpc¡icIlCcd,mm_ ¡.
ll;ricdrc"l'ia'worhr"
 adult down
syndrome center
NADS was instrumental in the development of
the Adult Down Syndrome Center of Lumern
General Hospital in Park Ridge, Ilinois. The
Center opened in January 1992 and initially
served patients 2 mornings a momh. However,
because of the high demand (over a thousand
i patients have been served), patients are now
seen 5 days a week. Some people use the
I Center for basic health CLC, others for
annual physicals while some come for specific
problems such as depression, changes in
I behavior or when they have experienced a
1 offce where Ann jonaius, our Resource
significant loss. Regardless of their needs,
members of the Center's multi-disciplinary
team treat each patient with dignity and
respect.
In January 1999 the Center initiated the
Family Outreach Program. Some older men
and women with Down syndrome are unable
to go to the Center for their medical and/or
psychosocial cae. Therefore a member of our
Outreach Team visits them at home. The older
population that we serve was, to a large extent,
hidden within their F.ilics; many had not
received basic services such as heathca or
education. We care deeply abollt our older
citizens most of whom were not as forrunate as
our friend, iucÎ, whose story appears bdow.
NADS is involved in many ways at the Center.
In addirion to our Resource Center, we have an
Coordinator, is based. We are also responsible
for the Parent Advocate position, part of the
Outreach Program and a ponion of
Psychosocial services.
In December 2000, the Center moved to a new
Jocation at 1999 Dempster Street, Park Ridge,
which is right on the campus of Lutheran
General Hospital.
parent
To bew:r serve our
Hispanic families,
NADS publishes its
support Parent Support
brochure in Spanish
Providing SUPPOH to parents of newly diag. materials in Spanish m
nosed infants with Down sydrome is truly these families. Eleven
one of our most import services. Afer the ini- percent of the families
tial referra, our Family Support Coordinator, learned of their child's
Kim Xidas, arranges for one of our support Down syndrome
volunteers ro contact the f.mily. Volumeers diagnosis through
visit the new parents in the hospital or in the prenatal testing and
family's home. In addition to the one-an-one they received suppOrt from volunteers who also
support, volunteers organize informal gather- learned of their child's Down syndrome diag-
ings so that new parents ca meet each other
nosis through prenatal testing.
and share their experiences. We provide a
new-parem packet, which includes up-to.
date books on Down sydrome as well as
infrmation about community service such
as parent suppOrt groups, early intervention
programs, medica resources and respite care.
During the year 2000 NADS provided suppOrt
to 160 new failes primarily ifi the Chicago
metropolitan area. The youngest maternal age
was 17 and the oldest materna! a~e was 45"
(ij"th.. I(\!) (,i:i;i¡,., ;(i"," ..\'T..I-¡'I~,¡l1ii. .ili~!
oiir hilinf,lI,i1 V,)ltll,~\T~ fir,\'"i~kd .'u¡i¡ioil ;\nd

public awareness program
In 1984 we held our first Public Speaker
Training Course and since thai rime we have
trained three additional groups. The goal of
ihis program is to bring about a better under-
standing and acceptance of children and adults
with Down syndrome. Some of our speakers
address medical profesionals, whi¡(~ others
focus on educators, students and community
organizations.
.
mentoring ".11 iuise
The NADS Memoring Program develops
friendships for adults with Down syndrome
who live at home, but don't have many contacts
and trusted
in the community. Others live in residential
programs and enjoy gcrring our and having fun.
counselor or
During 2000 Linda Picchi, Program
Coordinator, or one of our speakers gave
presentations to 30 groups of medical
professionals including Pediatricians,
Obstetricians, Residents, Genetic Counselors,
Nurses and Social Workers. In addition we
spoke with many other groups, including
elementary, high schooL. and college students,
These presentations were given in the city of
Chicago as well as Cook, DuPage, Kane,
Lake, McHenry and \X1ll counties.
offcers directors
Bil McCarthy Susan Abrams Liz Minogue
President
Gail Anderson Stq)hanicNcri
Diane Gomboi: Brian Chicoine Sandy Pa1.crunas
First Vicc.Presidcnt Therese Devine Michael Reninger

Kathe Doremiis Lydia Riley

Theresa Malkowski
Second Vice~Presidem D~ma LiChapclle Jackie Rotondi
Kathryn L.avin David Shimanek
Margaret Bender
Anne Maddock Teresa Villasenor
Treasurer
Christine l\'laxwdl l:iwana Williams
Melody Geraci
Recording Sccrct:iry

Th..20(H\
Huiid;i\
App~;lJ emL

2000 :wno
letter from the president friendship
By: Lydia Ono

As I read these stories of families whom NADS has touched,

You have your own
I see even more clearly why I have chosen to be a part of this
organization, My family and i too looked to NAOS for help ten Friendship garden.
years ago when our son Patrick was born, and I am honored
Tending a friendship garden
to be allowed to contribute back in some small way to other
families like mine, Needs friendship,
Love, and care in order to grow,
NADS is about people helping peopie, As a small organization
Every time a
NADS has been able to make large contributions to individuals
and families thanks to those who make up NADS, i would like Person smiles, a flowet blossoms.
to acknowledge and thank a few of them;
That's why they say
Sheila Hebein for her spirited and inspirationai leadership, A smile goes a long way.
our hard-working staff. The more you tend
our dedicated Board members,
our many volunteers, Your garden with
our members, Love, friendship, cae, and
and the families and individuals with Down syndrome
who enrich our lives on a daily basis.
Smiles, yoùll have the greatest
Gift of al, you'll have
I invite your suggestions, feedback and involvemenl, and ask for your continued
Friends, Not just friends, you'll
financial and emotional support to help carry out the mission of NADS to
"ensure that all persons with Oown syndrome have the opportunity 10 achieve Also have a garden
their potential in all aspects of community life: Of friends that will never
Sincerely,
Stop growing,

7:i!c~rth~G~
President 2000