. .

J NATIONAL

()r.ta-nfJalir¡n AND PljRPOSE .~--ONGRESS

K. ~\"CDOWN SYNDROME

The National Down Syndrome Congress (NDSC) is a not-for-profi organization

founded in 1973. The NDSC is governed by a twenty-two member Board of
Directors composed of parents and family members of individuals with Down
syndrome, self-advocates and other individuals involved with people with Down
syndrome.

The purpose of the NDSC is to promote the interests of people with Down syndrome
and their familes through advocacy, public awareness, and information
dissemination on all aspects of Down syndrome_ The NDSC is financially supported
primarily through membership dues and individual contributions.

ORIGIN
.\BOlll IS
The National Down Syndrome Congress was formed in 1973 by group of people
HISTORY
who had been meeting as a committee of the Association of Retarded Citizens, now
known as the Arc. Out of this meeting came the decision to become a self-suffcient SERVICES

organization dealing specifically with Down syndrome which is now known as the OUR MISSION
National Down Syndrome Congress. The original committee members were: Dr.
OFFICERS AND BOARD
Karol Storm, Willam Bronston, M.D., Kay McGee, Richard Koch M.D., George
FOUNDATION
Johnson, and Betty A. Green, M.D. The NDSC was incorporated in the state of
Illnois and operated in Illnois until 1993 when the National Center was moved to 2008 ANNUAL REPORT (PDF)

Atlanta, GA. 2008 REVENUE & EXPENSES (PDF)

2007 ANNUAL REPORT (PDF)

THE PRESIDENTS
JOB OPPORTUNITES
NDSC board members are elected by the membership to a three (3) year term.
VOLUNTEER OPPORTUNITIES
Offcers are elected to serve one-year terms.
DONATIONS

Years Name

1973-1976 Pete Starr, Ph.D.; Owings Mills, MD

1976-1977 Sig Pueschel, MD; Greenwich, RI
1977-1978 Col. Robert Glasgow; Washington, DC
1978-1979 Lucille Msall; Oak Park, IL
1979-1982 Diane Crutcher; Normal, IL
1982-1985 Tom O'Neil; Ft Wayne, IN
1985-1988 Frank J. Murphy; Atlanta, GA
1988-1990 Kathleen Marafino, JD; St. Louis, MO
1990-1993 Michael Clark, PhD, Bakersfield, CA
1993-1996 Maureen Babula; Philipsburg, NJ
1996-1999 Betty Hersey; Dallas, Texas
2000-2001 Jo Ann Simons; Swampscott, MA
2001-2002 Kathleen Marafino; Cicero, NY
2002-2005 Judy Mart; Littleton, CO
2005-2008 Rich Robison; Sudbury, MA
2008- Brooks Robison