Southeast regional center

By: Brittany, Jennifer, Jo, Lilly, and Kristin

Southeast Regional Center

Children and Youth with Special Health Care Needs

Who the agency serves

The Southeast Regional Center supports families with children and youth with special health care needs and the providers who serve them. Children with special health care needs are children birth to 21 years of age with a long term, chronic, physical, developmental, behavioral, or emotional illness or condition.

Who the agency serves

The Family Resource Centers serves the following counties of Wisconsin: Milwaukee, Waukesha, Racine, Kenosha, Ozaukee, Walworth, Washington, and Jefferson

Those who may utilize the Resource Center includes, but is not limited to, parents, pediatricians, physicians, and regular & special education teachers.

Funding

Funding is provided by the Wisconsin Department of Health Services through the Maternal and Child Health Title V Services Block Grant
Childrens Hospital of Wisconsin is also a contributor to the Southeast Regional Center Childrens Hospital provides money to match contributions from the state

Funding for the Family Resource Center

Childrens Hospital funded construction of the Daniel M. Soref Family Resource Center where the Southeast Regional Center is located

History and Resources Provided Childrens Hospital Daniel M. Soref Family Resource Center
The family resource center is a gateway for the parents to the hospital itself. The hospital has gone through quite a transformation to try its best to serve the children and their Families

Resources Provided

Health information: What is the nature of the illness? what treatments are available? Programs and clinics: Is there a program that may help my child? What type of specialist might I need Find a Doctor: How do I go about finding a Dr. that best fits my needs Giving and Volunteering: How do I give back to those who have helped my child? How can I be of assistance to the children in the hospital? Research: What type of research is available that may help me understand what is wrong with my child? Are there cures being investigated? What is the cause of the my childs illness? Advocacy and community: parent-to-parent support, information and referrals

Places families can stay to relax, eat, have coffee Accommodation Programs for families assistance with lodging/arrangements

Resources continued
More Advocacy and community:

Patient representative: someone can investigate/advocate for you upon request

Southeast Regional Center for children and youth with special health care needs: staffed by parents of the children with special health needs, who have who have personal experience and professional expertise lend a ear or address concerns for other parents from someone who has been there Safety and quality: assurance that your child will be taken care of/ inspection and assurance that your child will be in a safe environment

Access to personal health records access only with proper I.D

Family Resources
Lending Library: the center offers a large variety of books for the family, pamphlets, videotapes and DVDs available to anyone patient, family and people in the community Topics covered- emotional support, coping with being in the hospital, chronic illness, special education, youth transition, rare diagnosis, etc. Many of these are available in Spanish (with limits due to funding) Contact Information: Who do I call when I need something, where do I look? Careers: If I want to work in the children's hospital/ related services where do I apply?

History of Children's hospital

Partnered with Childrens service Society of Wisconsin which was founded in 1889 by Reverend J.P. Dysart begun as a place that provided homes to abandoned children shifted over time toward delinquency and adoption, in home services, educational and heath programs, foster care, counseling for women with children, support groups, prevention programs, and continues to grow today Became a member of childrens hospital and health systems in 2004 Transport program introduced 1988 Training in intubation, advanced airway procedures and atrial puncture; as well as inclusion of nurses and therapists have lead its way to being known as the hospital it is today

Childrens hospital

Founded under the title childrens hospital of Wisconsin in 1894 Known as one of the leaders in pediatric care in the United States Only freestanding Level 1 Trauma Center in the region that cares exclusively for children and adolescents Is flagship member of childrens hospital and Health systems

In 2004 was designated a Magnet hospital by the American Nurses Credential Center, recognizing nurses excellence

Collaborating Partners

Wisconsin First Step Parent to Parent of Wisconsin ABC for Health Wisconsin WIC Family Voices of Wisconsin

Wisconsin First Step Hotline

They are an information and referral hotline dedicated to helping families and professionals find a variety of resources including support groups, financial assistance, medical resources, transportation, advocacy resources, assistive devices, respite and home health agencies.
1-800-642-STEP (7837) infoandreferralcenter.org Staff available 24 hours a day, 7 days a week. Access to a database of over 3,000 agencies and services. funded in part by the Wisconsin Division of Public Health, Children with Special Health Care Needs Program, MCH Title V Services Block Grant, Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services and the Wisconsin Birth to 3 Program, U.S. Department of Education.

 ..but with the support of another parent we begin to see through the cracks and find joy in places we never could have imagined. Our journey continues, but this time we feel that we will survive because we know another parent who has...

Gives parents of children with special needs a place to make connections with other parents who have been there. Provides training for parents raising children with special needs.

 Ensuring health care for children and families with special needs. Health benefits counselors help determine best coverage, applications, and insurance negotiations. Issue advocacy to translate case-level insights into strategies for change.

Without the help of ABC for Health and the law students and interns, I could never have maintained the emotional strength to fight the insurance companies. -S. from Madison

The health standards promoted by the WIC Program are endorsed by the Wisconsin Medical Society.
For children with special needs, WIC can Identify nutrition related concerns early. Provide a variety of formulas and medical nutrition products. Make health and social service referrals. Educate and support caregivers.

Screen for medical nutritional therapy needs.

Co-ordinate services with other providers.

Providing: Information. Training. Leadership opportunities.

- So that you can be a more effective partner in your childs care and the systems that support them!

Cultural responsiveness
Limited materials available in Spanish and Hmong. Limited funding affects their ability to provide much foreign language material. Collaborative partner with Alianza Latina Aplicando Soluciones (A.L.A.S.). In this department, they have some room to grow.

Disability transcends A LOT

Types of Training Available

geared towards parents to help them become better advocates for their children with special healthcare needs and/or disabilities provided with information about different types of agencies and what they have to offer learn more about Medicaid

Training
Certificates provided for those who are continuing their education Conferences: Provides families/providers with information and tools that they need to know when working or caring for children with special needs or disabilities conferences touch base on a variety of things such as family coping, mental health, advocacy, and self-care

References

Retrieved 4/20/2012 http://childrensmiraclenetworkhospitals.org/hospital/Childr ensHospitalofWisconsin

Retrieved 4/22/2012 http://www.chw.org/display/PPF/DocID/44953/router.asp

Retrieved 4/22/2012 http://www.chw.org/display/PPF/DocID/35154/router.asp

Any questions?