Parenting Stress Related to Childhood Chronic Illness Northeastern University Margaret McGowan
CFP Proposal 2014 Journal of Pediatric Nursing
NURSES ROLE IN STRESS REDUCTION 2 CFP Special Issue: Children, Young People, and Families Living With Long-Term Conditions
When a child is diagnosed with a chronic illness, a new layer of stress is added to the familys lives, and nurses are in a unique position to provide coping strategies to ease this stress. It is estimated that 7-18% of children in the United States have been diagnosed with a chronic illness (Cousino & Hazen, 2013). A diagnosis of a chronic illness impacts the entire family, often interrupting family routines and lifestyles to better accommodate the sick child (Knafl et al., 2013). In addition to the need for increased knowledge, parents experience added emotional stress. Parents are expected to understand their childs condition, medications, and treatment plan, while handling the host of emotions that accompany parenting a child with a chronic illness, such as fear, anxiety, and denial. Parents of chronically ill children have increased general parenteral stress and illness-related stress (Cousino & Hazen, 2013). Increased parenteral stress can have many negative effects on the childs condition, family as a whole and the individual. For example, siblings of the chronically ill child do not feel comfortable confiding in their overly stressed parents (Vermaes, van Susante, & van Bakel, 2012). Individuals cope with stress in a variety of ways, both negatively and positively. Parents, who exhibit more positive coping skills, have been shown to have less depression, thus have an increased ability to better care for their child (Churchill, Villareale, Monaghan, Sharp & Kieckehefer, 2008). Many variables exist when caring for a sick child, most of which parents and caregivers are unable to change. But the level of parenting stress becomes modifiable when positive coping strategies are provided (Cousino & Hazen, 2013). Nurses unique position allows them to promote these positive coping strategies. When a family has a strong relationship with their healthcare providers it allows for NURSES ROLE IN STRESS REDUCTION 3 better communication, provides support and growth of trust (Nabros et al., 2013). Nurses are also the main educators within hospitals and clinics. Nurses are better able to assess and teach parents if they are familiar with the five time periods in which parental stress is increased (Meleski, 2002). This paper will continue to address why nurses are in the best position to provide coping strategies. It will also explore nursing interventions nurses can implement to ensure parents of chronically ill children have the coping strategies they need to ease their stress and better care for their children. Reflective Note- This paper is aimed at the editors of the Journal of Pediatric Nursing, in response to their Call for Papers for a special issue of their journal, titled Children, Young People and Families Living with Long Term Conditions. A main focus of the Journal for Pediatric Nursing is family centered care. This paper would focus on the stress relief of parents in order for them to better care for their chronically ill child. A chronic condition is a life long illness that has no cure. I chose to use APA citation because it is the gold standard in nursing.
NURSES ROLE IN STRESS REDUCTION 4 References Churchill, S.S., Villareale, N.L., Monaghan, T.A., Sharp, V.L., & Kieckhefer, G.M. (2008). Parents of Children with Special Health Care Needs Who have Better Coping Skills have Fewer Depressive Symptoms. Journal of Maternal and Child Health. doi:10.1007/s10995-008-0435-0 Cousino, M.K, & Hazen, R. A. (2013). Parenting Stress Among Caregivers of Children With Chronic Illness: A Systematic Review. Journal of Pediatric Psychology 38(8), 809-828. doi: 10.1093/jpepsy/jst049 Knafl, K.A., Deatrick, J.A., Knafl, G.J., Gallo, A.M., Grey, M., & Dixon, J. (2013). Patterns of family management of childhood chronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing, 28(6), 523-535. Retrieved from http://www.sciencedirect.com.ezproxy.neu.edu/science/article/pii/S08825963130 01103 Meleski, D. (2002). Families with Chronically Ill Children. The American Journal of Nursing, 12(5), 47-54. Retrieved from http://www.jstor.org/stable/3522727 Nabros, L.A., Kichler, J.C., Brassell, A., Thakkar, S., Bartz, J., Pangallo, JLundy, H. (2013). Factors related to caregiver state anxiety and coping with a child's chronic illness. The Journal of Collaborative Family Healthcare, 31(2) Vermaes, I.P.R., van Susante, A.M.J., & van Bakel, H.J.A. (2012). Psychological Functioning of Siblings in Families of Children with Chronic Health Conditions: A Meta-Analysis. Journal of Pediatric Psychology, 37(2), 166-184. doi:10.1093/jpepsy/jsr081