Developmental Coordination Disorder: A Case Study about Natalie
Mariana Hall, Elizabeth Hares, Sam Mitchell, Sylvia Niemyjski, Tiffany Poon, & Emily Severance Touro University Nevada
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Occupational Performance Natalie is a six year old girl with developmental coordination disorder (DCD) who lives at home with her immediate family and maternal grandmother. She has a twelve year old brother and a four year old sister. Natalie participates in a regular education classroom and receives support from a special education teacher who consults with her classroom teacher. She also receives occupational therapy and physical therapy services twice a week for thirty minutes per visit at school. Natalies functional performance as a student is impacted by her poor coordination, bilateral coordination, and fine motor skills. She walks independently but tires easily. Natalie was also recently diagnosed with a learning disability. She has good persistence and a high frustration tolerance when participating in activities that she enjoys (freeze tag, concentration memory, and cooking). Natalie has very supportive parents who want to help her to become more successful in the academic setting. Activities of Daily Living Natalie requires minimum assistance when getting ready in the morning. The Pediatric Evaluation of Disability Inventory (PEDI) was administered and scores indicate an age delay in accomplishing dressing using fasteners only; all other scores on the PEDI were within age level. Natalie needs assistance before and after using the restroom to button and unbutton her pants. She also struggles to independently turn on and off the sink to wash her hands due to her poor bilateral coordination. Natalie has problems self-feeding while at school. She struggles to open ziploc bags and containers that hold her lunch items. Additionally, Natalie needs assistance when her shoes become untied throughout the day. Instrumental Activities of Daily Living Natalie is responsible for cleaning up for herself during lunchtime. Natalie is Developmental Coordination Disorder 3
independent in this area when she brings lunch from home. She is able to clean up after herself only utilizing her dominant hand and avoids performing bilateral task when possible. However, when buying lunch at school, Natalie has difficulty carrying and manipulating the lunch tray and requires moderate assistances. In terms of mobility, Natalie tires easily when transitioning between classrooms (as assessed by the SFA). She often stops to rest, leans on the wall, and often lets all other students go ahead of her. Natalie also trips and bumps into desks and tables occasionally due to her decreased coordination. With regard to emergency responses, Natalie has completed two fire drills per year in first grade and kindergarten. She has been assigned a classroom buddy to hold hands with to ensure that she gets out of the building quickly yet safely. Play At recess, Natalie does not participate fully on the playground. She prefers to sit and watch others chase after each other and play games. She enjoys watching others play kickball and baseball, but rarely joins her peers to play. During physical education classes, her teacher has a hard time getting Natalie to participate. The teacher does grade certain activities, which prompts Natalie to want to engage in the activities, even though it takes her longer to complete a gross motor tasks than her peers. After school, Natalie is normally tired and does not like to play games that require a high energy level with her siblings. Leisure As previously mentioned, Natalie likes to help her parents cook dinner simple meals when shes allowed to help, and she enjoys baking activities. She also loves card games; her favorite is concentration memory. Although she does not always enjoy gross motor activities, she likes participating in musical chairs and freeze tag with her friends. Natalie likes to watch television with her grandmother and siblings on the weekends. Her parents limit her television Developmental Coordination Disorder 4
viewing during the weekdays to one hour per day. Social Participation Natalie is friendly and outgoing. She has many friends in the classroom, but tends not to play with them at recess. Natalie sometimes distracts her peers throughout the day by talking and starting conversations, because of her inability to complete academic activities that are challenging for her. She has occasional sleepovers with her closest friend from school. Natalie does not have problems interacting with her parents, grandmother, or siblings at home. She maintains good eye contact when socializing with peers and interacting with adults within the community. Education Natalie is currently in the first grade, and was placed in a regular education classroom with occasional support from the special education teacher. Natalie has difficulty with fine motor tasks and tasks that require bilateral coordination, therefore, many academic activities throughout the school day are challenging to her. Natalie cannot use scissors independently, and gets easily frustrated during classroom art activities. Natalies handwriting skills are also poor. She struggles when engaging in far point visual tasks, such as copying her homework assignments into her planner from the whiteboard). Natalies parents are happy with her progress in her reading abilities. Postural stability also becomes an issue when sitting for long periods of time. Natalie is often seen demonstrating poor posture, or leaning on her desk for support. Rest/Sleep Natalie is independent in her nightly routine to get ready for bed (except for needing assistance with zippers and fasteners on her pants). Natalie sleeps well throughout the night, and goes to bed at a similar time throughout the week. She falls out of her bed occasionally, and Developmental Coordination Disorder 5
sometimes trips when getting into and out of bed. Her parents have recently installed a bed guard to address this problem. Movement, Postural Reactions, and Reflexes Movement Natalie can walk unassisted, but becomes fatigued quickly. When transitioning between classes she stops and rests frequently. During community outings, she does not utilize any assistive technology devices, but chooses to sit whenever possible. Her muscles are fully developed, but she demonstrates weak postural stability when sitting, standing, and walking. When participating in games that require advanced gross motor abilities, Natalie can execute tasks but performs them much slower than her peers. She also occasionally trips and bumps into her surroundings. Activities that require bilateral coordination are extremely difficult for Natalie. Similarly, she has trouble performing fine motor tasks. Natalie cannot open and close zippers, buttons, or fasteners without assistance. Handwriting is also a major concern. Postural Reactions Natalie has low coordination and postural stability which results in immature postural reactions. Natalie demonstrates delayed protective and righting reactions. Deficits are also present in her equilibrium and anticipatory reactions. Such deficits contribute to her difficulties in performing her daily activities. Natalies deficits in all areas of postural reactions contribute to her difficulties during the day, especially during times of transitioning between classes. Reflexes The reflexes section does not apply to Natalie. Self-Regulation Natalie demonstrates low levels of self regulation when engaging in activities that she Developmental Coordination Disorder 6
does not like and/or views as difficult. Such activities include (but are not limited to): handwriting, using scissors and glue, and engaging in ball sports. When asked to participate in activities that she considers hard, Natalie demonstrates a higher level of tolerance (and higher levels of self regulation skills) if verbal praise is provided. Her tolerance for a difficult activity is also increased when the activity is appropriately graded to her ability. However, when participating in activities she views as enjoyable, Natalie demonstrates a much higher level of persistence and controls her frustration. As previously mentioned, Natalie really enjoys helping her parents cook and bake, playing concentration memory, and engaging in freeze tag with her peers. The Person Environment, Occupational Performance Model (PEOP) The Person, Environment Occupational Performance Model (PEOP) uses a top-down approach that centers on the childs and the parents concerns. The childs values and areas of interest should guide the choice of activities that will be used in the intervention process (Willard, year). According to the information gathered on Natalie, the activities that she enjoys most are the same activities that she has the greatest difficulties with. This can be an advantage for intervention because she is inherently motivated to work on those tasks (Brown, 2014). Natalie enjoys doing crafts, cooking, and playing card games but at the same time she struggles with activities that require fine motor skills and bilateral coordination. She is also very social and likes to watch peers play kickball during recess but she does not participate. Her evaluation suggests that Natalies lack of participation in recess is due to fatigue and difficulties with postural control. Natalies persistence and high frustration tolerance of activities she enjoys will contribute to her willingness to participate in them as part of the intervention plan (Brown, 2014). Developmental Coordination Disorder 7
The PEOPs approach is also especially suitable for individuals with disabilities because it pays particular attention to the interaction between person, occupation and environment. Dysfunction is most likely to occur when there is a poor fit between the child and the environment. Because school classrooms are mainly designed for the typical child, mainstream classrooms are more likely to be a barrier for occupational performance in the case of a child with disabilities. However, as the PEOP states, the environment can be more readily modified than the childs performance; thus adaptive equipment and environmental modifications can quickly eliminate barriers of performance while making the environment more supportive and conducive to independent functioning for children with disabilities (Brown, 2014). For example it has been noted that children with DCD become very fatigued and are clumsy on the playground. Therefore, an adaptation for Natalie especially during physical activities is to give her a 2 minute break for every 10 minutes she actively participates in the activity. Her difficulty with transitions from one school setting to another could be minimized by pairing all the children in the class with a buddy in order to motivate Natalie to keep up with her classmates. Natalies writing difficulties could be addressed by providing a pencil with a better grip, more comfortable sitting, a chair with arm rests for added support or perhaps she could type on a computer for part of the day in order to rest her hands and help with legibility and writing speed (Brown, 2014). Most Appropriate Theories and/or Practice Models Dynamic Systems Theory The Dynamic Systems Frame of Reference takes a similar approach as the PEOP Model in that it emphasizes the context and the interaction of many subsystems that form part of the childs life. Additionally, the Dynamic Systems Model states that children learn best when Developmental Coordination Disorder 8
allowed to explore and try different strategies until they can identify the most effective movement pattern. Since the core symptom of Developmental Coordination Disorder is weakness and poor endurance, lack of postural control and stability could be impacting Natalies handwriting skills negatively. Natalie might be using compensatory techniques to make up for poor posture that might interfere with the quality and speed of her writing due to maladaptive posture. In other words, intervention should address trunk strength and stability by engaging Natalie in gross motor activities on the play-ground. As the Dynamic Frame of Reference states, Natalie should be allowed to experiment with different movement strategies to determine what works best (OBrien & Williams, 2010). Intervention on the playground should be done without peers at first until Natalie feels confident enough to play around other children. Activities such as going down the slide and playing on the swings can promote trunk control, strength, posture balance and endurance that might improve Natalies quality of writing. Additionally, the therapist should also use writing activities and allow Natalie to experiment with a variety of motor pattern so Natalie can identify what motor pattern feels most comfortable, fast and effective (OBrien & Williams, 2010). In order to do this, Natalie can explore writing movements by writing on different positions and surfaces. She can try writing standing up, sitting on chairs of different heights and firmness, write on a vertical board, a tilted or horizontal surface. A white board and markers can be used to reduce friction and surface resistance and writing on paper with crayons and pencils can also be tried for Natalie to develop good hand proprioceptive awareness for better hand control when writing. Natalie could even try to write on sand paper for maximum resistance to increase hand strength and endurance for writing. The Dynamic Systems Theory also stresses that a child learns best when self-correcting Developmental Coordination Disorder 9
because this way they learn to rely on internal cues to evaluate their own performance. Filming Natalie while she writes and asking her reflective questions that encourage her to identify both, effective aspects of her writing techniques as well as thing that could be improved can be very effective in helping the child self-correct and find her own solutions (OBrien & Williams,2010). Motor Learning Theory Motor Learning theory is another frame of reference that would be very useful in this case because addresses ways to promote the acquisition or modification of motor skills. Even though the model states that massed practice is best when first learning a skill this might not be the most appropriate method for Natalie because it might contribute to fatigue since the practice period is greater than the rest time. Distributed practice should be used instead, not only because writing is not a new skill for Natalie, but also because this technique alternates long resting times with short practice periods. Mixing tasks such as alternating gross motor activities that involve playground activities to improve postural control with fine motor activities that involve handwriting will allow Natalie to have better endurance since she wont be using the same muscles for too long (OBrien & Williams, 2010). Assessments Appropriate for Client Various types of assessments are important to use on children in order to find out what areas need work. Once it is clear what areas a child needs help in, it will be easier to create an efficient intervention and begin treatment. In the case of 6 year old Natalie, she was given the School Functioning Assessment (SFA) in order to outline what problems she had when it came to school participation. The scores suggested that a main area of difficulty for Natalie was transitions. Because of her Developmental Coordination Disorder 10
physical condition, Natalie has a difficult time getting from one area of the school to another for she needs to use the wall for additional support. This was an appropriate assessment to use for Natalie because it studies a childs ability to perform functional activities that support participation in an educational setting. It was clear that Natalie was having difficulties with participation due to her physical condition. It was difficult for her to partake in recess activities so she would stand by and observe. The second assessment that was done on Natalie was the Pediatric Evaluation of Disability Inventory. The purpose of this assessment is to see where a child scores in the areas of: self-care, mobility and social function. This was also an appropriate assessment to give Natalie since it picked up an age delay in self-care, more specifically, dressing while using fasteners. Although not administered, the Evaluation Tool of Childrens Handwriting would be beneficial in the case of Natalie. It would be important to assess Natalie on handwriting since it was noted she was having difficulties with it and it is a skill that is crucial in school. The assessment is intended to be administered to those who have handwriting deficits. Once these deficits are identified, the occupational therapist can create an intervention plan to address these deficits. Function Problem Statements Functional problem statements states the areas of occupation that are limited due to certain underlying factors. It is a list of problems that can be treated by an occupational therapist and provides a central understanding of the childs problem areas. Natalies functional performance are limited due to several factors such as her learning disability and DCD. Natalies functional problem statements are as follows: Developmental Coordination Disorder 11
(1) Client is unable to write legible letters due to poor hand muscle strength and coordination. (2) Client is unable to kick a ball and climb a jungle gym due to lack of endurance, balance, and muscle strength. (3) Client is unable to participate with peers in transitioning between classes due to poor muscle strength, balance, and endurance. (4) Client is unable to fasten her coat due to deficit in fine controlled movements of her hands. (5) Client has difficulty completing art projects involving following sequential steps of cutting, pasting, coloring, drawing, and writing due to fine motor manipulation deficits and bilateral incoordination. By determining these problem areas, the occupational therapist will be able to focus on the underlying factors and develop long and short term goals to improve Natalies overall functional performance as a student. Family/Caregiver/Child Goals When determining goals for children, it is important to take into consideration the goals and ambitions of parents and caregivers. While many parents will want to improve their child's abilities in all aspects of their children's lives, a therapist must work in conjunction with parents and caregivers to create more practical goals to address the current needs of the child. Natalie is currently having difficulties with fine motor activities specifically during school tasks such as handwriting. Due to the parents concerns with Natalies handwriting skills and lack of strength, fine motor activities to enhance handwriting skills may address these concerns. Having Natalie work on fine motor activities that will strengthen her intrinsic hand muscles and fine motor manipulation paired with functional handwriting activities that are meaningful to the child may improve her overall hand strength and endurance thus improving handwriting skills. Developmental Coordination Disorder 12
Increasing hand strength and fine motor manipulation may also address Natalies deficits in self- care and dressing specifically with buttons, zippers, and shoe laces. In school, Natalie does not feel comfortable playing with other children during recess time due to her deficits in bilateral coordination, gross motor, and strength. These areas are affecting Natalies ability to play with other kids, and because of this, Natalie does not feel confident playing sports and being active on the playground. Working on play activities that do not require a lot of energy, but that work on bilateral coordination, gross motor, and overall endurance at home with her siblings may address these problems. Such activities may include throwing and catching a larger bouncy ball back and forth with her siblings or parents. Adding time intervals such as Natalie will throw and kick the ball for 10 minutes a day for 1/wk and increase this time each week by 10 minutes will increase Natalies endurance and will allow her to engage in play longer with other children her age during recess. With progressing endurance and strength this will aid with Natalies transitioning between classes with time. At the moment, having a buddy system where the teacher assign a different student each week to hold hands and walk with Natalie in between classes will help with class transitioning and allow Natalie to not feel left out or fall behind the class when moving environments. Occupational Therapy Goals, Objectives and Activities When writing goals the occupational therapist must ensure that the goals maintain and promote function and prevent dysfunction at all times. Occupational therapy goals are highly individualized and are based on the childs evident occupational performance problems as well as the concerns and priorities of the family and child. Natalies goals have been determined by information from her case study, family and her functional problem statements. Occupational Therapy Goal: Natalie will demonstrate improved muscle strength, endurance Developmental Coordination Disorder 13
and balance to participate in social play on playground equipment, participation in gross motor activities and transitions between classrooms within the same pace as her peers. Objective: Natalie will engage in 2 classroom transitions per day at the same pace with her peers in 75% of trials with minimal assistance/redirection within two weeks. Activities: - Participate in the Ants Go Marching with peers: Natalie and her classmates will march in a line around the classroom, through the hallways, on the playground to the song The Ants Go Marching. It is important to have Natalie line up in the middle of the procession to emphasize the need to keep up with the group in front and to not let the group behind her fall back. It is also important to have classmates behind her to encourage her to keep up to promote confidence in her speed. - Participate in Simon Says while standing: actions such as clapping, balancing on one foot, hopping on one foot, jumping jacks, and others are important to use here. Objective: Natalie will actively participate with her peers on the jungle gym during recess for 5 minutes with minimal assistance within three weeks. Activities: - Hide and seek on the jungle gym: have friend or therapist hide objects around the jungle gym and have Natalie find the hidden objects, only have Natalie bring the object down one by one to promote more mobility on the jungle gym - Follow the leader with a peer on the jungle gym: include Natalie in a group of peers to play follow the leader on and around the jungle; encourage the peers to climb up the stairs, go down the slide, and weave around the jungle gym below. Occupational Therapy Goal: To improve functional hand control and strength for greater Developmental Coordination Disorder 14
success with fine motor skills with increase independence in writing activities and self help skills. Objective: Natalie will be able to complete a legible three sentence short story on a three lined paper with minimal assistance using a tripod grasp 75% of trials within six weeks. Activities: - Writing spelling words on a vertical white board: Natalie will practice writing her spelling words on the classroom white board while standing, she may use fun colored or scented markers. - Writing letters and shapes in shaving cream: Natalie will practice printing her letters and shapes using a marker (with the lid on it) in shaving cream while seated at a table. Objective: Natalie will don jacket and tie shoes within 5 minutes with minimal assistance 75% of trials in one month. Activities: - Dress-up dolls: Natalie will practice dressing a medium-sized doll. She will don and doff the dolls jackets, shirts and pants. The doll clothes will include buttoning, fastening, and zipping. - Practice lacing and tying shoes: Natalie will practice lacing and tying using the Can- Tie-My-Shoe Board. Occupational Therapy Goal: Natalie will demonstrate improved bilateral coordination and ability to sequence steps to improve participation in gross motor activities, fine motor skills and academic skills. Objective: Natalie will be able to cut out complex shapes such as a square and diamond 75% of trials with minimal assistance within one month. Developmental Coordination Disorder 15
Activities: - Cutting activity worksheets: Natalie will cut across dotted lined activity worksheets to practice her snipping. - Putting coins into a piggy bank: Natalie will practice grasping pennies with one hand, transferring the penny to the other hand and placing it into the piggy bank Objective: Natalie will participate in kickball with peers with minimal assistance for a duration of at least 10 minutes during recess within three weeks. Activities: - Hot potato with a peer (using feet or hands): Natalie will catch and toss and kick a ball back and forth with a friend as fast as she cans; can encourage the speed of the game by playing music and stopping it abruptly. - Take turns kicking ball to a target with a peer: Natalie will kick balls to certain target areas; therapist can grade this activity up and down by making the target further or away or closer; also use different size balls to work on precision even further The occupational therapist will be able to use these goals to develop an intervention plan specific to Natalies school performance. Treatment Plan Environmental Setting Natalie will attend treatment sessions during the school day with a school based occupational therapist that has his/her own office. Therapy sessions will take place in Natalies classroom and the OT office. In addition to the occupational therapists desk, the OT office has a table and seating for handwriting/fine motor activities, and has enough space to play same floor games with one or two children. Sessions will also utilize the school playground and hallways Developmental Coordination Disorder 16
within the school building. The school playground has a big climbing structure/jungle gym, monkey bars, slides, and an outdoor basketball court. SOAP S:Subjective Client was energetic and eager to participate in the tx session. The client was able to communicate efficiently and effectively. O: Objective The client participated in a 60-minute OT session in an outpatient clinic which focused on improving fine motor skills, endurance , bilateral coordination and balance. Client demonstrated very good attention skills throughout the tx session. Client demonstrated difficulty when working on endurance and bilateral coordination in gross motor activities. Client was able to independently walk 7 feet before having to hold on to a wall for support. When working on fine motor activities, Natalie was able to use an efficient scissor grasp when cutting out shapes on dotted lines and stayed on the dot 50% of the time. The client displayed a mature handwriting grasp when holding a No. 2 pencil. Natalie was able to complete a legible two sentence short story on a three lined paper with minimal assistance using a tripod grasp . However, the client was extremely fatigued after the sentences. Verbal encouragement was needed for the client to finish her writing task. A: Assessment The clients poor coordination and apparent low tone impacts bother her gross and fine motor tasks. This was demonstrated during her walking activity and in the handwriting activity. Despite her low tone issues, the client knows which graps to use when interacting with different writing tools. Potential to improve is apparent in the clients determination and Developmental Coordination Disorder 17
cooperation during the tx session. The client will benefit from continued skilled OT intervention in order to increase fine motor skills, endurance , bilateral coordination and balance. P: Plan Continue to treat client 60 minutes 2x/wk for 6 months in order to improve fine motor skills, endurance , bilateral coordination and balance. Plan to improve endurance and bilateral coordination by utilizing the game of kickball and hot potato. Plan to further address fine motor skills, specifically handwriting skills by writing on a whiteboard and using different writing utensils. Taking Whole Client into Consideration When the OT practitioner is looking at the child, it is important to look at the child as a whole, and not just the child's problem area. The OT must look at how her affects her occupational performance and what social and financial support the child has at home and in the school setting. Collaboration with the parents, caregivers and social therapist or aide is recommended to integrate aspects of treatment into Natalies environments. Having the parents practice play activities that work on fine motor, bilateral coordination and gross motor will allow natalie to reach intervention goals and perform at her optimal level in and out of the home and classroom setting. Having the parents and caregivers incorporated into Natalies therapy will allow the therapist to receive feedback that the OT can utilize to either modify or adapt goals and means of therapy. Getting feedback from Natalies teachers and aides will allow the therapist to modify treatment to meet the needs of Natalie in the classroom and school settings. Interviewing the parents and caregivers often will allow the therapist to get a better picture of Natalies context and environments and areas in which she is having difficulty with, such as self-care at home and play at school. Developmental Coordination Disorder 18
Specific Recommendations and Post Discharge Environment When working with a client who has DCD as well a learning disability, there are important considerations to take into account. Both at school and at home the Natalie ought to receive plentiful encouragement to play games that will her get her physically involved; such as kickball and freeze tag. Because Natalie has a difficult time with self care, her parents can look into buying her clothes that better fit her abilities. This can include pants with elastic bands instead of buttons and velcro shoes instead of shoe laces. Natalie should also be encouraged to contribute to daily activities in the house that will help in the areas of fine motor control and bilateral coordination, this could be as simple as standing while making cookies for dessert with her parents. Justification of Treatment Natalies Developmental Coordination disorder is interrupting many areas of occupation for natalie, especially the most important area of occupation for a child her age, play. When a child is having difficulty with play within the school setting, this can affect the child's normal development and their ability to create meaningful relationships with other students her age. This may also affect Natalies confidence in school based activities and affect her overall feelings of self-efficacy. Addressing Natalies problem areas in fine motor and hand strength will allow her to complete more classroom activities such as crafts, art, and improve her handwriting skills. Improving these skills are very important for Natalies overall academic performance, if handwriting proves too difficult for the child, she may avoid handwriting and have feelings of poor school achievement and low self-esteem.
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