Diary Entry

Crisis Symtoms

Anna 10

Chest and leg pain

Fever

Anna 17

Anna 22

Anna 31

4 Y/O Male

Accute Chest Syndrome

Benefits of Treament

Risk of Treatment

Antibiotics keeps infection

Antibiotics gets rid of the good
away
bacteria, upset Gut Flora
Physical therapy eases leg pain
Spends time in the whirlpool

Live Longer
Fewer pain episodes

Nausea, fatigue, dizzy

hair loss, and chance of her
children having "crazy" birth
defects

Avascular Necrosis, Hip replacement- helps the pain Major surgery concerns every
blood clottage, dying
of
ten
bones, chronic pain
walking
years

Stress

Hydroxyurea- decreases risk of

baby having birth defects

Trouble breathing,
Brings fever down, breathing
coughing fits, high
becomes stabilized
fever

7 Y/O Female

Fatigue
delayed growth
severe pain

15 Y/O Male

Weakened muscles,
acute chest pains

Prevent Strokes, more

energy, grow better

Increase strength

Cause a severe decrease in

number
of red blood cells in bone
marrow

Gets rid of good bacteria

Professionals Involved

Life style Concerns

Physical Therapist
Sonographer

Missing out on events

and
school due to too much
pain

General Physician

Have protcted sex

Having Depression

Ortheoedist, Physcical
Therapist

Unable to walk long

distances and to stay
focused due to pain

Hematologist, Genetic
Counselor

Strained relationships,
stress, children are at
risk of having sickle cell

Hematologist,
Pulmonotologist

Missing games,
worrying people

allergic reactions and may

compromise heart
Hematologist, Phlebotomist
function
Hair loss

Oncologist,
Hematologist, and
Radiologist

Missing school

Missing school,
depression