Professional Documents
Culture Documents
Mendenhall - Overcoming Depression in A Strange Land - A Hmong Womanâ S Journey in The World of Western Medicine
Mendenhall - Overcoming Depression in A Strange Land - A Hmong Womanâ S Journey in The World of Western Medicine
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Introduction to Case
The Clinical Setting
Phalen Village Clinic is a primary care clinic and family medicine residency site
operated by the University of Minnesota Medical School, Department of Family
Medicine and Community Health (DFMCH). Healthcare providers include medical
faculty, medical residents, behavioral medicine faculty, doctoral mental health
interns, obstetrical nurses, and an ethnically diverse group of medical and nursing
assistants. The metropolitan area that the clinic serves is economically and culturally
diverse, and includes a large population of Hmong refugees.
The teaching and modeling of collaborative practice that is inherent within the
philosophy of the DFMCH and all of its residency sites takes place across multiple
systems levels. Mental health is seen as integral to medical care and precepting, and
behavioral medicine faculty and preceptors are a regular presence. Medical
and mental health providers share patient charts and regularly engage in formal and
informal consultations, joint teaching efforts, and collaborative research and quality
improvement initiatives. Hmong-speaking staff and clinical members are heavily
relied upon by non-Hmong-speaking providers to interpret and provide insight and
understanding into patients medical and mental health presentations vis--vis
cultural concerns with which Western providers are frequently unfamiliar. Care for
patients with complex medical and psychosocial issues often encompasses behaviorists consulting directly with physicians during and over the course of medical
visits. Other times primary care physicians participate actively in patients psychotherapy visits in collaboration with behavioral medicine faculty or interns. External
and outside resources, when appropriate, are also engaged over the course of
patients care (e.g., referrals to, and collaborative efforts with, physical therapists,
clan leaders, or local shamans).
The Patient
Mai (pseudonym) was a slender, quietly dignified Hmong woman of 40 years. Born
in Laos as the second of eight children, she grew up during the Vietnam era at the
time of the CIAs secret war (which ended in a holocaust of almost 50% of
the Laotian Hmong population, and diaspora of another 25% who fled the country
to Thailand.5 At the age of four, Mai and her family were forced from their small
agricultural village in the northern mountains. They later took to the junglesfor the
next 10 yearsas a consequence of daily bombings and strafings by the North
Vietnamese, US, and (later) Pathet Lao armies. Over the course of this exodus and
hiding, two of Mais brothers were killed. Her father became seriously ill and also
died. On the edge of starvation, her family finally crossed the Mekong River into
Thailand, where they lived in a refugee camp until Mai married and immigrated
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to the USA in 1989. She then worked in a low-paying manufacturing job until her
husband developed terminal cancer and died in 1999. Mai was unable to return to
work after this because of a variety of medical and mental health issues in concomitance with a lack of resources with which to ensure adequate and appropriate
childcare. At the time that she first presented to the clinic for care, Mai was experiencing a variety of depressive symptoms secondary to these psychosocial stressors.
She spoke very little English, and could not read or write in either language
(English or Hmong). She was living in Section Eight housing with six children
ranging in age from 7 to 17 years. Her principal source of income was through the
governments Temporary Assistance for Needy Families (TANF).
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stigma, lack of clan recognition or support, and the language barrier between her
and the larger, English-speaking community, Mai had few people in her life with
whom she could interact or from whom she could seek help.
Mais conflict with her 17-year-old sonwhich occurred several years after her
initial presentation at the clinic and contributed to her return for further care (in
phase 2 of treatment, described later)could similarly not be understood in
straightforward Westernized family science or psychosocial terms. In traditional
Hmong culture, Mais oldest son became the head of the family at the time of his
fathers death (when he was 12 years old). As a widow without social status, Mai
was socially dependent upon her son, both in this life and in the next. In this life,
Mais son was bestowed the power to make major decisions regarding the welfare
of the family, and for overseeing and disciplining his younger siblings. In the afterlife, Hmong culture maintains that parents cannot proceed to the next level of spiritual
existence without a son performing conventional and requisite funeral rites. For any
variety of reasons, Mais son could very well refuse to honor his mother upon her
eventual death, thereby damning her to spend eternity as a wandering ghost. Mais
powers as a parentin manners ordinary and established within Western culture
were almost wholly absent by nature of her sons culturally prescribed power.
While Western norms maintained that Mais sons increasing want for independence and distance from his mother were developmentally appropriate, Hmong
cultural norms maintained that he subsume his individual wants and needs to the
larger familys good. Mais son was considerably frustrated with struggling to deal
with his very adult Hmong role while at the same time living in a larger social
context where 17-year-olds are kids with comparatively limited responsibilities.
Added to these problems were Mais ongoing stressors related to existing daily in
a strange land wherein she could not speak the language, where she was forced to
deal with the confusing and daunting US social welfare system, and where she
struggled to raise a large family alone in the context(s) of poverty.
Diagnoses
At the time of Mais initial presentation at the clinic (phase 1), her working diagnosis
according to the DSM-IV6 was as follows: axis Imajor depressive disorder, single
episode, without psychotic features (primary) (296.23); axis IIno diagnosis
(V71.09); axis IIIasthma, gastroesophageal reflux disease, myofascial pain disorder, chronic pain (multiple sites), and migraine headaches; axis IVoccupational
and financial problems (V62.2) and acculturation problems (V62.24). Her global
assessment of functioning (axis V) was initially assessed at a range of 4550.
At the time of Mais return to the clinic (phase 2), her axis I diagnosis was changed
to major depressive disorder, recurrent, severe without psychotic features
(primary/296.33) and posttraumatic stress disorder, chronic (secondary/309.81).
Recognition of parentchild relational problems (V61.20) was added to Mais psychosocial struggles, delineated on axis IV.
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It is important to note that for providers Mais diagnostic codes were of limited
use in understanding the overall picture of her case and designing a treatment plan
because issues presented were embedded in a cultural context that the DSM-IVs
axis IV categories cannot wholly portray. For the patient, these diagnoses were
meaningless anyway, insofar as there is no Hmong word for depression. The
closest comparable terms to characterize Mais presentations in the Hmong
language are nyuaj siab (emotional upset caused by severe worry) and lor siab
(deep, aching loneliness). Over the course of Mais treatment, the authors of this
chapter came to use a group of descriptors (pain, loss, loneliness, and worry), rather
than any single term, to capture these complexities in a diagnostic sense. This
evolution in diagnostic labeling grew from dialogue with, and suggestions from,
Mai and other Hmong community members.
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Treatment Phases
Mais treatment encompassed three phases: in the first phase (lasting 3 years), she
received conventional, collaborative services from her primary care physician, a
clinic psychiatrist, and mental health care practitioners who provided both individual
and group therapies. The second phase of treatment (lasting 6 months) consisted of
access to the physician, individual therapy with a single therapist, and the services
of a local cultural broker/interpreter who helped to increase involved providers
cultural understandings and connected the patient with indicated resources. The
third phase of Mais treatment (ongoing) encompasses a novel approach which
purposefully accesses the internal resources of the patient and the power of the
larger community outside the clinic setting.
Phase 1
Mais initial treatment plan encompassed both medication and psychotherapeutic
components. Her primary care provider began treatment with sertraline (Zoloft) for
depression, zolpidem (Ambien) for sleep, ibuprofen (Motrin) and isometheptene/
dichloralphenazone/acetaminophen (Midrin) for muscle tension pain, omeprazole
(Prilosec) for epigastric pain, and fluticasone (Flovent) and salmeterol (Serevent)
for asthma. Early results connected to mental health facets of Mais treatment
failed, however, because she discontinued us of sertraline in response to unwanted
side effects and lack of rapid improvement. This is a common challenge that providers face when treating non-Western patients, including the Hmong; patients
generally have difficulty tolerating slow clinical responses and initial side effects
of antidepressants because they assume that medications will work immediately
and relieve discomfort (rather than taking time to work or adding to discomfort by
ways of side effects). These cultural beliefs are reflective of traditional patient
healer relationships, where the onus in Hmong culture is on the healer to cure the
disease and payment is not given until this is accomplished to the satisfaction of the
patient and the patients family.
Mai saw a mental health provider in the clinic for several months in individual
psychotherapy, and then transferred into the clinics Hmong womens support
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group. Individual therapy encompassed a variety of clinical foci, including supportive maintenance to Mai as she grieved the loss of her husband, advocacy for
community resources related to food and housing, and empowering the patient to
recognize depression as a problem she could fight across both individual and group
contexts. The support group that Mai participated in employed a combination of
cognitive-behavioral therapy strategies specific to depression, life skills education
to help with cultural adjustments, and self-care techniques. Mai terminated treatment after 3 years, because of a partial remission of her depressive symptoms and
belief that she had gained tools sufficient to manage her depression and function
effectively in everyday life.
Phase 2
Over the next 2 years, Mai functioned relatively well. While she continued to experience some depressive symptoms, her ability to manage these symptoms as normal
ups and downs was effective. However, Mais depression later returned in full
force, secondary to escalating conflict with her 17-year-old son and increasing
financial strains on the family. Mais previous mental health provider had left the
clinic when she returned for care, and was thereby referred to another clinic provider,
Mary Kelleher (M.T.K.). During this time, M.T.K. had been working closely with
the clinic outreach coordinator (who is also Hmong) when conducting therapy
with Hmong patients. This woman is highly respected within the Hmong community, maintains a broad knowledge and familiarity of local community resources,
and is known to have struggled successfully with nyuaj siab and lor siab herself
using a variety of Western and traditional Hmong strategies and techniques.
Patients trust her and seek her out for advice on dealing with depression, accessing
resources, and making sense of Western medical treatment. The outreach coordinator
was present with M.T.K. and Mai at every treatment session, and served in the
capacities of multiple roles (interpreter, cultural broker, unofficial cotherapist, and
patient support system). Mai later described the outreach coordinators participation
in treatment as key to her feelings of safety, being understood, and being valued:
[She] is the reason I came to the clinicI knew [she] had gone through this before, and I
looked to [her] and told myself, I can do this, too. And [she] and the doctor would listen to
me, and really understand what I had to say. I needed kindness to get well.
Over the course of this treatment phase, Mais physician oversaw care for her medical issues.
Early on in phase 2, Mais physician introduced amitryptiline (Elavil) for
depression and zolpidem (again) for insomnia. Similarly to in phase 1, however,
Mai quickly discontinued these medications secondary to unwanted side effects
and a paucity in rapid and noticeable improvements. Ensuing collaboration between
Mais physician and M.T.K. served to coordinate providers respective efforts in a
manner more consistent with the aforementioned belief systems about medications
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that are espoused within traditional Hmong culture. Ongoing pharmaceutical care
was tailored to attend specifically to Mais physical pain and related complaints.
While this was not expressly directed toward mental health symptoms and functioning per se, Mai (and her providers) viewed this medical care as part of her
overall treatment plan. Easing physical suffering was important, insofar as Mais
somatic symptoms oftentimes exacerbated her depressive symptoms.
During their first session in phase 2, M.T.K. employed the Patient Healthcare
Questionnaire (PHQ-9) as a depression screen.3132 Mais score indicated that she
had relapsed into a severity of clinical symptoms consistent with her previous major
depressive disorder. As therapy proceeded, Mai further revealed the harboring of
pervasive fears and flashbacks since her husbands death, accompanied by flushing,
tingling in her extremities, dizziness, shortness of breath, nightmares, and intrusive
memories of her earlier and aforementioned experiences in Laos. It was these new
data that effected Mais providers to add posttraumatic stress disorder to Mais
aforementioned DSM-IV axis I diagnosis.
Mai, M.T.K., and the outreach coordinator then entered into a rich and messy
process of cocreating Mais therapy. At first, therapy dealt with safety issues
regarding Mais suicidality. She assured providers that she would not abandon her
children through suicide, and she maintained that talking about her feelings and
being listened to empathically were helpful in reducing her ideations of self-harm.
As therapy unfolded and Mai continued to talk and to cry, M.T.K. listened, asked
questions, and struggled to understand the patients world with the assistance of
Mai and the outreach coordinator. When M.T.K. did not understand the cultural
nuances of what Mai was saying or explaining, the outreach coordinator helped to
clarify particular points while at the same time conveying her empathy to Mai.
With each session, Mai appeared calmer and less overwhelmed. Much time was
spent listening to Mais story and using narrative techniques to externalize pain,
loss, worry, and loneliness (depressions constituents) as Mais opponents,
reframe Mais actions to underscore her competency, and encourage Mais sense of
personal empowerment. Soon she was able to speak about her problems with her
son as time-limited, which was seen by all involved as an early sign of returning
hope. As therapy progressed, Mai began to take active steps outside of therapy to
feel better, e.g., taking trips to a large Hmong flea market to bargain and talk with
the vendors; making herself leave her apartment to take drives when she felt down;
distracting herself with activities to cut off bad thoughts that cycled through her
mind; signing up for an English class to begin learning the dominant language of
her locale, as well as socializing with people, laughing, and sharing ideas. With
these behaviors highlighted as effective self-care strategies, solution-focused
emphases were integrated into Mais narrative treatment to applaud her efforts and
frame what she was doing as further standing up to her depression. Mai had also
retained many of the cognitive-behavioral strategies she had learned earlier (e.g.,
challenging self-defeating beliefs, recognizing black-and-white thinking) and as
her depression began to decrease, she was able to access these techniques again.
Mai and M.T.K. terminated individual therapy after 6 months because Mais
depression had reached a point where it was once again manageable. She understood
that her depression was a recurrent condition and that her long-term plan was to
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manage its lows along with the highs that life brought her. Mai worked hard to recognize and treasure each happy moment amongst the many difficult ones. She
worked hard to continue doing what she had learned over the course of her journey
thereby practicing a variety of self-care activities and sequences every day. In
addition to being good for her, Mai recognized her self-care as an essential and
ongoing part of her functioning in order to be the best that she could be for her
children. When things would overwhelm her, she would check in with the clinics
outreach coordinator to get encouragement and gauge if she needed to return,
knowing that she would be welcomed back into therapy if it was ever indicated.
Phase 3
Over the course of earlier therapies (e.g., individual, group) and informal contacts
(e.g., supportive sequences with the clinics cultural broker and interpreter), Mai
was emotionally supported by a variety of people (providers, other patients,
community members). She was particularly impacted by the experience of having
others share with her their own stories of struggling with pain, loss, worry, loneliness, and depression and she maintained that their lived experience and wisdom in
fighting the illness was a principal foundation of her learning how to incorporate
effective self-care strategies and healthy cognitive patterns.
As she stabilized and grew in recovery (toward the end of phase 2), Mai harbored an increasing want to reach beyond herself and help other women in the
Hmong community who suffered as she had with depression. She wanted to give
others her story as a gift of hope, and to share her wisdom in similar manners to
members of her community who were hurting as she once was. But she did not
know how to do this beyond occasional conversations among family or friends, and
could not imagine how she could ever contribute to the empowerment of others and
beneficent change in her community on a large scaleparticularly in light of her
low social standing, lack of education, and functional illiteracy.
In 2005, Mai was approached by Tai Mendenhall (T.J.M.) to become a community
leader/collaborator in a local project on depression that the authors were conducting. Guided by the Citizen Health Care model,3 the purpose of the initiative was to
identify novel ways to treat the high proportion of clinically depressed individuals
within the Hmong community by engaging with community members as equal
partners in the process. Well aware of the pervasive nature of depression across the
local Hmong community and within the patient population under their care, and
based on previous work by William Doherty (W.J.D.) and TJM,3, 3337 this initiative
looked to partner with patients who had learned to live with, fight, and effectively
manage depression.
The Citizen Health Care model outlines a way to engage patients, families, and
communities as coproducers of health and healthcare.3 It goes beyond the activated
patient to the activated community, with professionals acquiring community
organizing skills for working with individuals and families who see themselves as
citizens of healthcarebuilders of health in a clinic and communityrather than
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just as consumers of medical services. Citizen Health Care thereby aims to engage
a resource that is largely untapped in our contemporary, strained healthcare system:
the knowledge, wisdom, and energy of individuals, families, and communities who
face challenging health issues in their everyday lives. This is different from traditional ways of thinking about an activated patient who becomes a responsible agent
for his or her own health. The idea of citizen refers to people becoming activated
along with their neighbors and others facing similar health challenges in order to
make a difference for a community. Ordinary citizens become assets in heath care,
coproducers of health for themselves and their communities. They are no longer
simply consumers of services who look out for their own health and that of their
immediate loved ones.
Community-based participatory research (CBPR) represents an action research
approach that guides Citizen Health Care initiatives. CBPR emphasizes close collaboration among researchers and community participants who are directly affected by
an issue to generate knowledge and solve local problems. Hierarchical differences are
flattened through this partnership and all participants work together to create knowledge and effect change.36, 3839 Research is not conducted on people, but with
them, as community participants take active roles in the entire research process. From
conceptualizing problems and formulating solutions to solve them, to designing interventions and implementing interventions, to identifying relevant benchmarks of
success and analyzing outcome data, to feeding results back into intervention designs
and modifying them in accord to evaluative findings, community members work
collaboratively with clinical researchers en route to a common goal(s).4042
Mai and several other former patients and community members were purposively identified and recruited to the Citizen Health Care projects action-andplanning group because providers recognized them as having inspiringand
relatablestories, as well as a strong potential to contribute and lead. As these
community members engaged with medical and mental health providers at the
clinic, Mai found a unique and powerful venue to reach out to other women who
were struggling as she had. Today she sees this work as one of her lifes purposes,
and finds this mission to be empowering across both personal and community-wide
arenas. When interviewed regarding these efforts, Mai explained:
(A)ll I can do is use my experience and tell people I know it is hard, but with what Ive
gone through I have survived. I still struggle, but you make a move and change your life.
If you go to the [womens depression support] group and go to the doctor and go to therapy
and let the [providers] talk all their talk, but youre not changing yourself you dont learn
it. You dont use it. Then its not doing any good. But you have to use ityou have to want
to change yourselfThats how you overcome and youre learning and you survive. So
thats why I want to help this way.
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Discussion
At this time, most conventional treatments for patients with complex biopsychosocial
problems like that which is presented here are carried out through top-down,
provider-driven services.3, 34, 38 While many of these approaches employ multidisciplinary teams and deliver effective care, they can also miss opportunities to
engage patients as active members of the treatment team.40, 4849 Mais journey in
fighting depressionwhich encompassed her active involvement across individual,
group, and community levelsembraced her lived experience and wisdom in
synchrony with providers textbook erudition and clinical skills.
The communities in which we work stage a myriad of individuals with complex
presentations who have learned intuitively, and from professionals, important
insights into the causation, treatment, and management of their medical and mental
health problems. However, the journey that Mai traversedfrom isolated individualism to an engaged participant in CBPR oriented to allaying the problems of
depression in the wider Hmong communityis what makes her story unique.
The three phases of work which describe this patients journey reflect a progressive lessening of reliance on the limited three worlds of healthcare (provider,
administrative, and fiscal resources).50 In phase 1, which was the most conventional
phase of treatment, Mai was a damaged individual who passively received professional services from her physician, clinic psychiatrist, and mental health providers.
Her use of healthcare resources was relatively high at that timealthough not as
high as if would have been had she been in an uncollaborative environment in
which disparate providers offered uncoordinated treatments with duplicated administrative efforts and longer overall care duration. In phase 2, the patient presented
as severely depressed and stuck as she was in the first phase, but she had underlying
strengths and skills upon which she was drawing prior to and throughout her treatment. During this time, medical collaboration was on tap (i.e., to be accessed as
needed and in attendance to physical presentations), and individual mental health
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therapy was provided in a manner whereby the patient was pushed and empowered
to recognize and access her internal resources. The clinics cultural broker was
present in each session, building bridges between the patient and her providers, and
through modeling recovery by nature of her (the cultural brokers) own story of
recovery and hope. Treatment was relatively brief, used fewer professionals, and
drew considerably less on administrative and fiscal resources. Phase 3 saw Mai
further empowering herself and giving meaning to her experience by reaching out
to the larger communityto give back freely what she had learned as part of an
ongoing narrative of her recovery. She also began to duplicate the role that the
cultural broker had played for her. This was done within the larger community and
did not use any provider, administrative, or fiscal resources. Indeed, Mai metamorphosed into a valuable and cost-free healthcare resource herself.
There existed an inverse relationship in this case between the patients engagement in collaboration with providers and across-the-board healthcare costs:
resources are used initially in appropriate ways dependent upon the patients
stuckness, but as the system is able to engage and tap the patients own wisdom,
the use of healthcare resources goes down both for the initial patient and for future
patients. Mai now exists as a resource to others in her community, and those who
enter into treatment in the future will already have an established engagement with
community resources such as Maiwho can direct them into the healthcare system
earlier, help broker an understanding of Western healthcare, and provide hope and
a model of recovery.
By finding ways to access the heretofore untapped resources of community
members (patients), partnering with them as collaborators with equal but different
knowledge and skills, and working together as concerned citizens of the community
faced with a devastating personal and social problem, part of the burden of conventional treatment shifts away from traditional clinic structures and overburdened
healthcare systems. At present, we are only beginning to tap the wisdom and power
of patients knowledge and lived experience as we work to enlarge our collective
vision of depression and its treatment in the Hmong community. As our efforts
continue to unfold and we continue to co-own and cocreate the healing process, we
may find ourselves plugged into a never-diminishing resource in healthcare.
Acknowledgements The authors wish to thank May Lee Vang at the Phalen Village Clinic,
University of Minnesota Physicians, for her always generous, insightful, and invaluable help in
understanding the Hmong culture. Equal and very grateful thanks go to all of the Hmong participants in our CBPR initiative in the local St. Paul community.
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