IBD in the UK

improving patient outcomes and

experience
DDF, London
25th June 2015

How Clinical Information Can Improve

Future IBD Care and Outcomes
Dr Fraser Cummings
Clinical Lead UK IBD Registry
Consultant Gastroenterologist University
Hospital Southampton NHS FT
IBD Registry. All rights reserved

ibdregistry.org.uk

Questions
Do you have a means of data capture which
allows you to easily obtain your colonoscopy
caecal intubation rate?

Yes/No

Do you have a means of data capture which

allows you to easily obtain your mean comfort
score for colonoscopy?

Yes/No

Are your endoscopy GRS outcomes part of your

annual appraisal documentation?

Yes/No

IBD Registry. All rights reserved

ibdregistry.org.uk

 IBD Registry. All rights reserved

ibdregistry.org.uk

Questions
Do you have a system for identifying patients
who have been on steroids for >3 months?

Yes/No

Do you have a robust system for

Immunomodulator monitoring?

Yes/No

Do you have a system for initiating and

monitoring patients on biologics?

Yes/No

IBD Registry. All rights reserved

ibdregistry.org.uk

 IBD Registry. All rights reserved

ibdregistry.org.uk

 IBD Registry. All rights reserved

ibdregistry.org.uk

 IBD Registry. All rights reserved

ibdregistry.org.uk

Point of care data entry systems

CIMS Patient Management System
IBD Registry Web Tool
Ascribe/Emis gastroenterology system

IBD Registry. All rights reserved

ibdregistry.org.uk

IBD PMS Functions

Patient Summary
MDT
Flareline
Nursing support
Drugs
Biologics
IMM monitoring
Steroids
5-ASA

IBD Registry. All rights reserved

Cancer Surveillance
system
Bones
Letters
GP
Patient Summary,
information etc.
Virtual clinics

ibdregistry.org.uk

 IBD Registry. All rights reserved

ibdregistry.org.uk

IBD Anaemia Project

Determine level of service and treatment IBD patients
receive with respect to iron deficiency
Outputs
Prevalence of iron deficiency

Total iron deficit

Treatment in an IBD outpatient population
5 centres, 10 consecutive UC and 10 CD patients each

IBD Registry. All rights reserved

ibdregistry.org.uk

Conclusions
How do you use data?
Can you use it more effectively to improve:
Patient outcomes?
Quality of patient care?
Service development?
Research?

What are the barriers to this?

www.ibdregistry.org.uk
IBD Registry. All rights reserved

ibdregistry.org.uk

IBD in the UK
improving patient outcomes and
experience