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Understanding An Information 1 Running Head: Understanding An Information Need Holistically
Understanding An Information 1 Running Head: Understanding An Information Need Holistically
Andrea McCullough
Abstract
fits into their life is the most important factor in the diagnosis process. Although the reference
interview was abbreviated and elements of the reference dialog were missing, personal
knowledge of the client helped the interviewer make informed decisions which aided in
producing an information package that fit the client’s needs and wants.
Understanding an Information 3
On September 9, 2009, the client in this report on client diagnosis and recommendation
of information sources gave birth to twin girls at twenty-six weeks, six days gestation. This is ten
weeks before what is considered a full-term pregnancy. The babies weighed a few ounces more
than two pounds and were in the Neonatal Intensive Care Unit (NICU) at Presbyterian St. Luke’s
Hospital in Denver, Colorado. When approached about the client diagnosis assignment, the client
quickly agreed to participate and immediately communicated her information needs: what
potential disabilities will her daughters have, and are there ways to prevent the severity of these
potential disabilities.
The reference interview lasted approximately four minutes over the telephone. Having
two children in the NICU (in addition to a four year-old at home), the phone was the only way
the client could communicate in real-time with most people. She was somewhat active using
email and Facebook, but only for non-immediate or unnecessary communication. While a phone
interview was convenient for the client, there wasn’t an opportunity to observe her non-verbal
cues. It is not possible to project what information could have been gathered had the interaction
took place face-to-face. Considering that a ten year relationship exists with the client, trust and
rapport have been established so it could be assumed that there was no more or different
information desired by the client in respects to her research questions. As Grover & Carabell
(1995) suggest, a comfortable client relationship will help the client relax and will foster open
The client’s initial question, “What do the reports say to expect when babies are born at
26 weeks, 6 days?” was replied to with a neutral question intended to narrow the scope of
expectation. The interviewer could not determine if she was interested in short or long-term
issues. She was asked if there was specific information she was interested in, to which she
replied, “I’m wondering about learning disabilities in particular, but other disabilities too. And is
there anything we can do now to prevent disabilities.” Her questions were repeated back to her,
she confirmed them as correctly encompassing her inquiry and the reference interview
concluded.
Many elements of a traditional reference interview did not occur. These elements were
decided upon by the interviewer based on personal knowledge of the client and knowledge of the
situation that has caused her information need. An explanation of how her information need
arose was not requested, as suggested by Dewdney & Michell (1997). The impromptu nature of
the interview left other questions unasked and unanswered. Quint (2002) asserted that the
searcher’s background knowledge of the subject area should be assessed as well as her comfort
with the subject’s terminology and her access to other sources of information. This assessment
was not performed. How the client would use the information was also not assessed formally. It
was assumed in light of the client’s situation she was interested in information about possibilities
that may lie ahead in the future for her family. She was trying to make sense of the situation that
Logistics about the delivery of the information sources was also not discussed. The client
was not questioned about her wishes for the format of the information, or when she hoped to
receive the information. The time frame for delivery of the requested resources was determined
by the interviewer. The client proved to be difficult to contact after the initial interview, so it was
Understanding an Information 5
decided that the research be completed and the resources delivered as soon as possible. Since the
babies would not be moved from the NICU until December the resources weren’t vital to their
current situation. One and a half weeks passed between the reference interview and the delivery
of the resources.
As Grover and Carabell (1995) discuss, knowledge, skill and intuition together will help
the client diagnosis process. The interviewer’s past experience working with families of children
with special needs provided knowledge of where to begin this search. MedlinePlus, a consumer
health website produced by the United States National Library of Medicine was searched using
the term “premature birth”. An existing “health topic” web page was located called “Premature
Babies”. The web page included overviews, the latest published related research, information
about coping and specific conditions. Because of the breadth of the information provided on one
web page this became the first resource suggested to the client. The information at MedlinePlus
also provided another search term, “low birth weight”, to explore. This led to the more specific
term of “very low birth weight” that yielded more detailed resources discussing specific
developmental issues.
Taking into account the client’s Bachelor of Science degree in biology, clinical research
articles were included. Abstracts of two recent research articles published in 2009 were
collected. The articles were both comprehensive in nature-- one was a meta-analysis and the
other examined diseases in a specified population of very low birth weight babies. Including the
abstracts rather than the entire article would serve to introduce the clinical research but wouldn’t
necessitate that the client read the lengthy articles. The National Information Center for Children
and Youth with Disabilities (NICHCY) provides instruction on their website for how to conduct
Understanding an Information 6
a literature review. This web page was included in order to help the client understand how to
navigate resources for future use, which as Davis (2006) says, is part of a reference librarian’s
charge.
A federal law called the Individuals with Disabilities Education Act (IDEA) provides
early intervention services for infants and children with special needs. The state agency that
oversees the law, Early Intervention Colorado, was quickly located. The agency’s web page for
family members included information on the definition of early intervention, who qualifies, and
how to access their services. It was discovered that each NICU has a liaison for the program so
public awareness documents provided by the agency were ordered for the client. This important
find was highlighted for the client in the follow-up discussion. A liaison could bridge the gap to
The Family Health Library at the Children’s Hospital in Denver, Colorado provides a
service for the community where an information packet can be requested concerning child illness
or wellness. An online electronic form was completed using the client’s questions verbatim. A
week and a half later the information was received in the mail. There were book chapters
photocopied from three different books and a list of the books owned by the Family Health
Library available to borrow. An online format for delivering the information had already been
created, so inclusion of the chapters was questionable. However, the way the information was
presented in the books was different, more sensitive than the cut-and-dry manner of the fact
sheets and web pages already provided. It was decided to scan the chapters in order to provide
them electronically.
Another type of resource gathered were web logs, or blogs, written by parents of children
who were or have been in the NICU. The blogs were scrutinized for their quality and were
Understanding an Information 7
determined to be adequate for providing emotional support. A link to a family support program
called “Parent to Parent” that provides peer support for families of children with special needs
was also selected. Although not specifically requested, these support resources were included in
anticipation of potential issues the client may have to deal with and may not have time to seek
out when issues arise. This illustrates that the client’s needs were being considered holistically,
as Grover & Carabell (1995) suggest. Having two babies in the NICU is not just about the
babies-- the family must be supported through the situation to remain strong and functional.
In all, eighteen resources were delivered to the client. An immediate concern was one of
reference overload-- offering too many relevant resources to a user. “In a digital world where
access to resources is available at light speed, the temptation may be to push as many of these
resources as are available to the user” (Reichardt, 2006, p. 111). The result is an overwhelmed
user. Careful consideration was taken to organize the resources and prevent unnecessary stress
The client was known to be tech-savvy. Her home is in the mountains, and they were
living a temporary kind of lifestyle in the Denver area, staying with family and friends.
Therefore, it was decided that compiling the resources online in the form of a blog would meet
her needs by being available for her wherever she had access to a computer. The client is also an
amateur author, so the blog could potentially become something for her to contribute to and
manage. Four blog pages were created based on subject: overviews, possible affects/conditions,
services and support, and research. This is similar to Reichardt’s (2006) approach of creating a
subject resource guide trying to find a balance between too many and too little resources. Each
resource was reviewed and a one-to-two sentence summary of each was posted next to its link.
Understanding an Information 8
This was performed with the intention of giving the client a decision-making tool for visiting the
resource. She would be able to discern if she wanted to read the resource immediately or at a
later time.
Discussion
Although most resources were of different origin, purpose and viewpoint, several
resources contained overlapping information. The intent was that their inclusion would provide a
richness of information, not a tediousness. When asked if the overlapping of information was
problematic for her, the client called upon her scientific background saying that she understood
that if something was replicated, this indicated reliability; the duplication was reassuring to her.
The research article abstracts were welcomed. Their purely scientific language seemed to
comfort the client and give her a platform for the other resources. It was explained that if she
desired the full text versions, they could be easily obtained, but were not included because of
their length and detail. The NICHCY web page on performing literary searches was brought to
The MedlinePlus “premature babies” topic page, although the most comprehensive
resource included, caused some frustration. The client noted that she did not prefer the links that
take her to more links. Reichardt (2006) describes how users look for the quickest route to the
answers they are seeking. The client was educated on how to use the topic page in the future.
In regards to the information package delivered, the client described the blog as
“perfect”. However, after flipping through the notebook of the hard-copy resources provided by
Early Intervention Colorado (brochures) and the Children’s Hospital Family Health Library
(book chapters), she said it was also nice to have something to “hold on to”. Had the client been
Understanding an Information 9
asked about format during the reference interview, the end result could have been more tailored
Overall, the client was “extremely satisfied” with the research and the information
package. She felt it was something she could refer to and use as a tool to organize her medical
concerns with the twins. Her situation is not static and her information needs will develop as the
babies develop. The blog succeeds as a format by complimenting the client’s “dynamic,
personal, singular, and uncertain” information search process (Grover & Carabell, 1995, p. 3).
The largest concern for information professional was the amount of information
provided. Reichardt (2006) describes this dilemma as “…the seemingly inherent missionary
zealotry that, if the user is not made aware of all these resources, then we have not done our job”
(p. 107). By providing support resources-- the personal blogs and information about the Parent to
Parent program-- it was assumed that the client would be in need of them. However, the research
shows that roughly 45% of very low birth weight babies will have some kind of disability.
Posting these resources was presumptuous, but does go beyond the simple answer. “Maybe we
can look at it as our job (along with that of their professors) to broaden their expectations from
simple answers they receive to complicated ideas we help them discover and that they discover
on their own” (Fry, 2009, p. 33). While Fry (2009) was talking specifically about an academic
reference setting, she is essentially talking about helping the user anticipate the next step in their
research.
Lack of time for the reference interview was the reason for the assumptions made about
format, and the time frame for delivery of the information. Elements missing in the interview
were addressed with personal knowledge of the client and her situation as well as her
background and preferences. This method was not correct in every instance-- the client may have
Understanding an Information 10
preferred more of a combination of print and electronic materials. Asking more explicit questions
of the client will ensure the end product is appropriate and useful.
Conclusion
Knowing the client personally and the reason for her information need was the most
important factor for the success of the diagnosis and delivery of information sources. Based on
the client’s background, preferences and situation, her information need was diagnosed and
information was delivered in a specialized and useful format. Resources varied in purpose and
scope to provide a well-rounded, holistic presentation of the issues surrounding very low birth
weight babies and the potential disabilities they may develop. An information package was
delivered that appealed to her and her need to access the information at anytime from anywhere.
The product can be updated and can serve as a repository for the medical issues of her twin girls.
There is value in understanding a client’s information need in respect to how it fits in their life.
As Reed (2009) discussed, the best practices for information service is knowledge of what works
best in your community, going beyond the simple answer and finding what the client wants to
References
Davis, K. (2006, May 15). Nextgen. Mind the retail reference gap. Library Journal, 131(9), 66.
Dervin, D., & Dewdney, P. (1986). Neutral questioning: A new approach to the reference
Dewdney, P., & Michell, G. (1997). Asking "why" questions in the reference interview: A
Fry, A. (2009). Lessons of Good Customer Service. Library Journal, 134(14), 33-34.
Grover, R., & Carabell, J. (1995) Toward better information service: Diagnosing information
Quint, B. (2002). The return of the reference interview. Information Today, 19(2), 8, 10, 14.
Reed, V. (2009). Good reference service? Great reference service? What’s the difference? The
Reichardt, R. (2006). Digital reference overload: Thoughts on how to deal. Internet Reference