Professional Documents
Culture Documents
CPABC Roundtable Summer 2012
CPABC Roundtable Summer 2012
summer 2012
neWs
general
World CP day
World CP Challenge
the
CE R E B R AL P ALS Y A S S O C I A T I O N O F B RI TI S H C O L U MB I A
Presidents
Words
I have been enjoying the beautiful sunny weather and some of the many cultural/summer festivals and events that are offered throughout the greater Vancouver area. I hope that everyone is having a relaxing and enjoyable summer. I am very pleased with the July 11, 2012 announcement by the Translinks Board of Directors to reverse their original decision to eliminate the taxi saver program. Taxi savers are vouchers that people with disabilities and seniors can use to get a 50% discount on taxi fares. People rely on taxi savers as an integral part for them to stay engaged in the community. Many of us, including myself, retain a certain amount of taxi savers at all times for those moments when we need an immediate transportation option for emergencies. The
elimination of the taxi saver program would have removed a critical safety option for people in times of urgency - ultimately, people would have been hurt without taxi savers. I was part of the community-based campaign for the continuation of the taxi saver program. The focal point of the campaign and its slogan, `Taxi Savers are Life Savers`, illustrated perfectly the importance of taxi savers in peoples lives. The People with Disabilities and the Seniors Advisory Committees for the city of Vancouver were instrumental in convincing the Translink board of directors that the elimination of the taxi saver program was a bad decision - additionally, Vancouver city council passed a motion unanimously to not support the elimination of the program. I commend the efforts and time spent by members of both advisory committees that led to the retention of the program. July 12, 2012 - a day after the Translinks announcement, a third pub-
lic forum had already been planned. It quickly turned into a celebration of the victory to save the taxi saver program. It was at the celebration that someone there stated that those involved were wheelchair warriors. In response, I stated, I like the sound of that. The gentleman then responded with, Go ahead and use it; thus, Wheelchair Warrior is now incorporated into my signature line. At the time of the taxi saver dispute, I was the vice-chair of the disability advisory committee for Translink. On July 09, 2012, I was forced by Translink personnel to resign from their advisory committee due to my public opposition and concerns regarding the elimination of the program. I did resign proudly as I knew I was doing the right thing and I was appropriately representing the best interests of people with disabilities and seniors. My forced resignation was unfortunate. Accessibility on public transportation still remains a high priContinued on page 2
CPABC news
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summer 2012
ority for me. I now know I can be more effective to advance better accessibility through community-based collaboration. The phrase, It is okay to say NO`, spoken to me many years ago from a personal mentor, gave me the strength and courage to speak out contrary to Translink. This is the message I want to leave with all of you. It is okay to say NO and we must say NO when it comes to bad decisions that will hurt ourselves, other people with disabilities and seniors. Once we say NO then we can begin to have a conversation of how to best deliver programs and services to truly serve the best interests of people with disabilities and seniors throughout BC and Canada. Your President, Craig Langston Wheelchair Warrior
It is estimated that 100 children are born, in BC, each year with cerebral palsy (CP). At the moment there is no one place, where all children with CP go for treatment; therefore, there is no one place that is compiling data on this condition. The Cerebral Palsy Registry of BC hopes to change this, but they need your help. 2
On May 9th your CP Association met with Diane Wickenheiser, the BC Project Coordinator for the Canadian Cerebral Palsy Registry. If you have a child with CP, who was born in 2009 and 2010, Diane would like to interview you. She will be collecting data around such things as the Moms health, delivery, infections prenatal risks, the services your child is receiving, how often, and if you are happy with these services. Confidentiality is respected. A number is assigned to each child so no personal information goes into the date base. The registry hopes to eventually link into other data bases around the world to look at such things as: if certain types of CP are more prevalent in one part of the world than an another, if links can be found in children who have CP and if certain types of CP can be traced back to a common denominator. Governments like statistics. It is believed, by your Association, that if we can gather numbers on CP we can lobby the government for services and funding because we will be able to show statistically - the areas in which those services and funds are needed. This may be a huge benefit to individuals with CP. If you have a child who was born in 2009 or 2010, and would like to know more about this study, please contact Daine Wickenheiser, BC Project Coordinator for the Canadian Cerebral Palsy Registry, at 604-453-8300 ext. 8482.
Our internet resources, printed resources and individual advocacy and support program have also been well used and are very much appreciated by respondents. We received a great deal of support for developing a support-style and information-sharing group that could reach all areas of the province using new on-line technologies (79%). Systemic Advocacy: We really appreciate the support we received for our intention to go forward with more systemic advocacy (87%). We are aware that Revenue Canada is watching non-profits for their levels of advocacy but we believe that we can walk this line successfully. We received many written comments about how we might move forward and we would like to thank the people who pointed out that we need to include employment opportunities as something we need to advocate for. Social isolation and a lack of recreational opportunities (68%) were also mentioned many times in the written comments. There were also many comments about programs and services for
children and better access to medical services (62%) for everyone is an important issue. Conclusions: Please watch our newsletter, Facebook page, Website and Twitter feed for our new programs and services as we move into the future and thank you again to everyone who took time out of their busy lives to participate in our survey! Survey results will be posted at www.bccerebralpalsy.com
CPABC news
summer 2012
CP Challenge
Collateral Form
World CP Challenge is an exciting 4 week team activity that will get you active and improve your health and wellbeing. Its also a fun way to raise much needed funds to support the Cerebral Palsy Association of British Columbias vital work. Perfect for co-workers, school classes and family friends, its something everyone can enjoy!
CPABC news
summer 2012
funding from the BC Gaming Commission. This means were becoming ever more creative in our quest for funding projects, and we must also make each dollar work harder. So we are very excited when groups like the Burnaby Host Lions express an interest in our bursary program. This small but generous club went out of its way to make us feel welcome. Even PADS dog Breeze enjoyed herself, as she had an opportunity to schmooze with an old friend, Aaron the Guide Dog, a beautiful black lab. Just a couple of days later, on June 7, Tammy and CPABC President Craig Langston were guests of honour at the Annual Donation Barbecue hosted by the Burnaby Lougheed Lions Club, where they accepted a cheque for $500.00 and enjoyed a delicious barbecue dinner. The CPABC is only as effective as it is because of the generosity of groups like the Burnaby Lougheed Lions, and the Burnaby Host Lions, who understand the value of our vision to see people who live with cp reach their full potential. With this kind of support behind us, the CPABC cannot help but succeed in its mission. CPABC would like to thank both the Burnaby Host Lions Club and the Burnaby Lougheed Lions Club for their continued support. For more information about our bursary or campership subsidy program or if you would like to make a donation to help us keep these programs available for those affected by cp, please contact our office at 604-408-9484 or info@ bccerebralpalsy.com .
C.a.m.p.
We are excited to report that the CPABCS Campership Program has just completed its fifth year financially assisting kids attend a special needs BC camp of their choice. This years nine campers ranged in age from 6 18 years and participated in camps in Mission, Winfield, Squamish and Coquitlam. Our camp subsidies went towards such costs as partial camp fees, transportation costs and care attendant fees. Without the help of an attendant, many of these children could not attend camp; so even though the camping session itself may be free to the participant, the care attendant fee 6
CPABC General
summer 2012
Adaptive Slippers
Do you have swollen feet? Are you unable to slip feet easily into slippers? Silverts Adaptive Footwear has the answer with their extra wide opening, skid resistant, easy touch closure slippers. Contact Silverts today at www.silverts.com or 1-800-387-7088. They are in Canada.
By Halldor K. Bjarnason, Lawyer - Access Law Group. www.Trustlawyers.ca cant qualify for provincial disability assistance when they have an RRSP. Never-the-less, it may well be worth taking the tax hit in order to qualify - particularly if there are high medical costs involved. However, it is always wise to get legal and accounting advice before making the decision to liquidate an RRSP in order to get provincial disability assistance. Please note that this column is provided for general information only. As specific facts affect how the law is applied to your circumstances, it is always wise to get the advice of competent legal counsel.
It truly is a fabulous place where kids with special needs can be themselves, accepted with no boundaries, and given every opportunity to feel typical, included and loved..... Summer is a time for busting loose, having fun and feeling free. If you would like to help towards next years campership program please contact us at 604408-9484 or 1-800-663-0004 to make a donation. It will make a difference 7
CPABC news
summer 2012
Membership fee: $20 Donaon: I would like to make a donaon to support the services and programs of the Cerebral Palsy Associaon of BC. Income tax receipts are only issued for donaons of $10 or more, unless requested.
$100
My choice:
$75
$50
$25
Method of Payment: I have enclosed a cheque payable to the CPABC or: Visa # Expiry Date Name on Card Todays Date Signature Please mail to: Cerebral Palsy Associaon of BC 801-409 Granville Street Vancouver, BC V6C 1T2
(Charitable Registraon Business Number 10690 4204 RR0001)
Announcing
STAFF
FERI DEHDAR Director of Programs & Administraon TAMMY VAN DER KAMP Family & Individual Support Worker WENDY HAWRYZKI Administrave Assistant
Cerebral Palsy Associaon of Brish Columbia 801-409 Granville St. Vancouver, BC V6C 1T2 Phone: 604.408.9484 Toll-Free (Enquiry CP): 1.800.663.0004 Fax: 604.408.9489 Email: info@bccerebralpalsy.com Oce Hrs: 9 AM to 5PM, Monday to Thursday
CONTRIBUTING WRITERS
WENDY HAWRYZKI & TAMMY VAN DER KAMP