Volume 1, Issue 1 January 24th 2005

Newsletter

LDN Research Trust

PO BOX 1083, Buxton, NORWICH, NR10 5WY UK
Telephone 01603 279508.

Availability of LDN in the UK

LDN can be prescribed in the
In This Issue UK say’s John Reid MP
Secretary of State for
• LDN Survey, Health, if the prescribing
further results now doctor thinks it is of thera-
available. peutic benefit. Most GP’s
• More private GP’s
are not willing to prescribe
are open minded
LDN until clinical trials have
regarding LDN. been carried out. It appears
that LDN is more widely
• First annual LDN prescribe in Scotland than
conference in New other places in the UK.
York. The few GP’s that are
• Crossword happy to prescribe LDN
(this number is increasing
• LDN Poem monthly) most will only is-
• Funds raised so far sue a private prescription. I
found out last week, a pri-
• Idea’s how you can vate prescription filled from
help us. a chemist via Martindale’s,
was £155. It is amazing
when in the USA Skips
pharmacy charge just
$16.75 for the same 30
caps of 4.5 mg.
Dr Scott in the USA is un-
able to conduct telephone
consultations, the number
of people trying to access
LDN has increased enor-
mously. Those that were
doing well on LDN, find
themselves wondering
where to turn to next.
Dr Lawrence is unable to
take on any more new pa-
tients due to his already LDN trials are urgently
over stretched workload. needed, first we need to
raise the funding. Every
Good news, after ap- little helps!
proaching 327 private GP’s
throughout the UK, several
are open minded about Together we can do so much.
LDN. Contact Linda on
01603 279508 for details.

The First Annual LDN Conference in New York

Conference Description
Conference Theme:
"Working Towards Wide-
spread Acceptance of LDN"
The First Annual LDN Con-
ference is to be held in New
York City at the New York
Academy of Sciences
(NYAS). The NYAS is lo-
cated at 2 East 63rd
Street between Madison
and 5th Avenues in Man-
hattan. The meeting will
take place from 9am to
4pm on Saturday, June
11, 2005.
We are very much hoping
that you will plan on attend-
ing. The capacity of the
main conference room is
limited to 80 attendees, so
please act today by using
the registration form below.
The theme of the confer-
ence will be "Working To-
wards Widespread Accep-
tance of LDN". Bernard
Bihari, MD, the discoverer
of the clinical effects of low
dose naltrexone, will be the
keynote speaker. Dr. Bihari
will cover a number of top-
ics of interest, including
recent developments within
his practice, and will an-
swer questions from the
attendees.
Continue on page 2
 LDN Research Trust
Join together through
brainstorming and
networking in order
to forward efforts
being made toward
legitimizing the use
of LDN.
Thank you all for
your support.
200 people have taken part in
the LDN Survey to date.
Page 2
LND Conference continued………..
A panel of physicians who
have been prescribing
LDN for their patients, as
well as a panel of actively
involved LDN-Yahoo
Group members, will also
be on the agenda. In ad-
dition, we hope to have a
panel of those actively
involved with mounting
clinical trials for LDN.
Planned opportunities for
interaction include large
group discussions, Q&A
following each talk, and
break-out groups.
Although the conference
is a purely not-for-profit
effort, a modest registra-
tion fee ($50) will be re-
quested in order to defray
Funds raised so far.
With all your help we have
managed to raise £2,000
towards trials. All the run-
ning costs of the charity so
far been funded by the trus-
tees, apart from £150 that
was used for web hosting,
PO box and collection
boxes.
We would like to thank all
of you that have taken part
in the LDN survey; your
help is greatly appreciated.
It is looking as if LDN helps
people with MS at whatever
stage you are at. MS is indi-
vidual to each of us and it
would seem the benefits
LDN offers varies as well.
the facility's charges. The
NYAS indicates that the
main floor conference
room and restroom are
wheelchair accessible.
Here are a few of the
many goals of the all-day
meeting:Update partici-
pants on news regarding
LDN and the status of any
clinical trials for LDN.
• Bring attention to the
urgent need to put
LDN to work against
HIV/AIDS in the de-
veloping world.
• Draw the attention of
the media and en-
We have been very busy
sourcing funding bodies
where we may be lucky
enough to gain support. Many
of the places we have con-
tacted, only meet annually or
6 monthly, we will have to
wait and see if we have been
successful. Funding bodies
LDN Survey
Most people find they have
had no further progression
and some like myself have
had amazing symptom re-
lief.
To check out the 2nd 100
results go to
www.ldnresearchtrust.org/ht
ml/results
courage them to
cover LDN in news-
papers, TV, radio etc.
• Bring together the
community of doctors
and patients prescrib-
ing and using LDN—
to share experiences
and to strengthen the
sense of community
and empowerment.
Join together through
brainstorming and net-
working in order to for-
ward efforts being made
toward legitimizing the
use of LDN.
To complete an atten-
dance form go to:
www.lowdosenaltrexone.org/
events.htm
have strict criteria as to who
they do and no not support,
unfortunately we don’t qual-
ify for that many. We will
keep trying.
Thank you to all of you that
are making regular monthly
donations.
If you haven’t yet taken part
please could you do so.
We would like as much data
as possible, even if you have
stopped taking LDN, we
will still like you to partici-
pate.
 Volume 1, Issue 1

Fantastic offer for Batman and Robin fans.

We have several, 300 Ward is now involved each donation
page paper back with dog rescues and £7.50 / $15 goes
books written by Burt adoptions with his new towards LDN clinical
Ward of Hollywood wife and daughter. trials.
fame having played
Robin, the Boy Won- These new books are
der, opposite Adam available for a £15 /
West as Batman, (was $30 donation each If you would like the
only printed in paper plus delivery. They can chance to own one Caption describing picture
back). be shipped from the of these books and or graphic.
USA or the UK . help the charity,
This is a book of sto- please email us.
ries of his exploits on It is a great way for us
and off the set. Burt to raise funds; for

Collection Boxes “To catch the reader's attention, place an interesting

sentence or quote from the story here.”

We have ordered village either in a post

collection boxes that office, shop, coffee
should arrive any day shop, club etc? every
now. little helps.

Could we ask if anyone If you would like a box

would be interested in please email us.
displaying a box in
their home town/ city/

Old mobile phones and used postage stamps

Do you have any old
mobile phones that no
longer need?
We can turn old phones
into cash.
We can also turn used postage
stamps into cash as well.
Please could you save your
used stamps and post them to
us?

Page 3
 LDN Research Trust
egdirbworT tseroF
1 2 3 4 5 6 7 8 9 10 11 12 8. Glowing or smol-
ACROSS dering fragment.
1. Sparkling wine. 13 14 15
9. Make drunk, (slang).
9. Fun gathering. 10. Three-toed sloth.
16 17 18 19 20
13. Art style depicting actual life. 11. TRustees, abbr.
14. Chinese measurement. 21 22 23 24 12. All December 31st’s.
15. 2nd note on diatonic scale. 19. Singer with deep
16. Real Estate, abbr. 25 26 27 voice.
17. English prep school. 20. First resolution or
18. Bachelor of Business Admin., 28 29 30 31
pledge.
abbr. 21. New Year’s
32 33 34 35 36 37 38
21. Resolution To Healthfully Eat, promise.
abbr. 39 40 41 42 22. Poke fun at gently
22. One who thinks. 23. All right.
25. Use sense of sight. 43 44 45 46 47 48 24. 19th letter of
27. New Year’s party nearest person. English alphabet.
28. United States, abbr. 49 50 51 52 53
26. EUrope, abbr.
29. Gas used in nitroglycerine. 54 55 56 57 58 59 30. Office of Education,
31. Southeast on a compass . abbr.
33. Requirement to be an elder. 60 61 62 32. New Year’s day.
36. Food plate helping. 34. Body part; extremity.
39. Fit; can do. 63 64 65
35. Royal society of
41. Honey making insect. British Sculptors,
66 67 68 69 70 71
42. Cards dealt to a player. abbr.
43. Confections; nuts in caramel. 72 73 36. Writing instrument.
46. Inventor of dynamite. 37. Definite article.
49. CAlifornia, abbr. )C( 101 38. Not off.
51. 4th note on diatonic scale.. © ftrowbridge 1/05
40. Sweetheart.
52. Veterans Administration, abbr. 44. A feline sound.
54. A tropical fruit. 45. Recorded.
58. Not in. If people were to apply the value-achievement mean- 47. Preposition.
60. Nature’s alarm clocks. ing of New Year's Day explicitly and 48. Tropical fruit.
61. Again; afresh. 50. Raised trains.
63. Medical Doctor of Osteopathy, 53. Symbol for gold.
abbr. consistently 365 days each year, they would be hap- 55. Post Office, abbr.
64. A chopping tool. pier. 56. Nova Scotia, abbr.
65. Nurse’s Aide, abbr. 57. Showed self
66. Ohio University, abbr. So every day, fill your champagne glass of life to the esteem.
68. Exist. 59. Drink to.
69. Type of school paper. brim with values—and drink deep to your life and the
61. Cuckoo birds.
72. Relative by marriage. joy that it can and should be. 62. Eliminated.
73. Result of New Year resolution. 64. Beer.
67. United Nations,
abbr.
68. Bachelor of Arts,
DOWN abbr.
1. Things popped 70. Negative reply.
at New Year’s. 71. Drill Instructor,
. 2. ARkansas, abbr. abbr.
3. Encounter.
4. All the cards in
one’s hand playable.
5. Lotion ingredient.
6. Alcoholic drink.
7. New Style, abbr.

Page 4
 Volume 1, Issue 1

LDN
I know what it was that day,
as a MS sufferer I can only say.
My world was filled with doom,
gloom, gloom, gloom, as I walk out of the neurologists room,
where he sat and told me,
about my physiology, and in time how it may be,
the slow slide of deterioration,
the endless search for hope and salvation. How did it make
With LDN there’s a chance, you feel when you
a double blinded trial, they may change their stance, were told you had
and LDN be licensed for MS, MS?
so if you could help,
please do you best.

Thank you.

A poem written by Antony Cargill 22/1/2005.

Take the strain out of
shopping and get
yourself a bargain,
Shop online using one of our links and we get a commission. shop online.

Shopping link for the USA

http://fundingforall.com/ldnresearchtrustbenefits

Shopping links in the UK

http://www.whatevery1wants.co.uk/ldnshop.html#top

Or

http://buy.at/LDNResearchTrust

Page 5
 Newsletter
LND Research Trust
PO BOX 1083, Buxton, NORWICH , NR10 5WY UK
Telephone: 01603279508
Email: contact@ldnesearchtrust.org
Web Site: www.ldnresearchtrust.org
To make a donation you can either make a PayPal
payment from the web site/send a cheque to the
above address, made payable to the LDN Research
Trust/make a payment directly to any Barclay’s Bank
or online using the following details.
Account Name: LDN Research Trust
Sort Code: 20 03 26
Account Number: 60515213
PUZZLE SOLVED
Do you have anything you would like to
share in the next news letter?
Would you like to tell your MS story?
What drugs/aids/vitamins etc work for you?
We would like to hear from you.
Are you full of ideas and would like to help
us fund raise? If so we should love to hear
from you.
A big thank you to Forest for compiling
the Crossword Puzzle and to Antony for
his poem.
To vote for the LDN Research Trust please
go to this site, you can vote daily.
Thank you.
http://www.charityportal.org.uk/cgi-bin/
engine/vote.cgi?ID=1103545139">Vote
Wishing you all well,
Linda, Alex & Stephanie
It’s a cats life!
Newsletter created by Linda Elsegood