This document provides contact information for the officers and board of directors of the Anne Arundel County Ostomy Association. It also lists upcoming meeting dates and topics, as well as advisors available for ostomy-related questions. The organization is a non-profit that provides support for those with ostomies.
This document provides contact information for the officers and board of directors of the Anne Arundel County Ostomy Association. It also lists upcoming meeting dates and topics, as well as advisors available for ostomy-related questions. The organization is a non-profit that provides support for those with ostomies.
This document provides contact information for the officers and board of directors of the Anne Arundel County Ostomy Association. It also lists upcoming meeting dates and topics, as well as advisors available for ostomy-related questions. The organization is a non-profit that provides support for those with ostomies.
BOARD OF DIRECTORS Dennis Fila Joan Gardner Ginny Gross Stan Baker Allyn Mellits
OSTOMY ADVISERS: Irene Repka, RN, BS, CWOCN Michelle Perkins, RN, BS. Were on the Web! www.annearundelostomy.com Volume 40 Number 5 February 2014
!"#$%&'( *++,&'(-. /+012314 5 ,6 789: ; <1$2" =&-#2--&$' *31#6 5> 789: ; ?$@@++' A&%"-$'> B2-,&' C631%3#4 B"1&@ D> 789: ; E$1'3 F1$G'+> C6=> /3%&@4 3'H ?$'-2%+1 A#&+'#+- IH2#3,$1 Note: Meetings are held at 7:30pm, the first Thursday of each month at the Belcher Pavilion at Anne Arundel Medical Center in Annapolis. From the 2 nd floor of the parking garage take the entrance into the Belcher Pavilion and once inside take the elevator to the 7th floor and check with the 7 th floor desk for the room number. If AA County Schools are closed due to inclement weather, there will be no meeting.
!"# %&&# %'(&)#* +,(&-./ 01'.*1&)/ 23-,4. %33,561-6,&/ 7&58 (AAC0A) is a non-piofit, volunteei-baseu oiganization ueuicateu to pioviuing ieassuiance anu emotional suppoit foi people who have hau oi will have some kinu of ostomy suigeiy, such as a colostomy, ileostomy, uiostomy (uiinaiy uiveision) oi a continent pioceuuie. The goal of the AAC0A is to pioviue moial suppoit, infoimation, anu euucation to people with ostomies anu theii families anu fiienus. Nembeis ieceive The Rambling Rosebuu newslettei monthly. 9:;< 1'# =>? please make check out to AAC0A anu mail to Stan Bakei, 9S8 Fall Riuge Way, uambiills NB 21uS4-14S4 0#4@#'3"6A %AA*651-6,& !"#$%# !'()* Full Name _______________________________________________________________________________________________________________________________ "#$% &'($% )*+* Auuiess: _____________________________________________________________________________________________________________________ ,%(--% .//(-$$ .0#(%1-2%342'% 5 _____________________________________________________________________________________________________________________ 6'%7 ,%#%- 8'0 69/- Phone: ( ) Bate of Biith: uenuei: Email Auuiess _____________________________________________________________________________________________________________ Reason foi suigeiy: ____ Ciohn's ____0lceiative Colitis _____ Cancei _____ 0thei__________________________ Emeigency contact if we aie unable to ieach you: ______________________________________________________________________ +,$* *-.# /0 %1'2#'- ,$3# -/1 ,$45 Colostomy 0iostomy SpouseFamily Nembei Ileostomy Paient of chilu with 0thei (please specify) 6 7/1"4 "(8# */ ,#". 7(*, *,# 0/""/7()2 9/::(**##;%< /' $9*(3(*(#%= Finance Bospitality Nembeiship Newslettei Piogiam Refieshments Sunshine visiting >/7 4(4 -/1 ,#$' $?/1* 1%5 Inteinet Seaich ETW0CN Nuise 0thei Bospital Physician
A WORD OF THANKS for their constant support of our Chapter to: The American Cancer Society, especially the office in Gambrills, for essential help with our newsletter; and Anne Arundel Medical Center for providing rooms for our regular meetings and special events. We appreciate their support and assistance. +%-1$ :(91 %;'$ 2-<$=-%%-( 1#7 >- (-0('2%-/ '2 9%;-( 9$%917 2-<$=-%%-($? 0(9@'/-/ 0(90-( A(-/'% '$ B'@-2 #$ %9 $9C(A- 9: 1#%-('#= REMEMBER!!! The entrance to the Belcher Pavilion is FROM THE SECOND FLOOR OF THE PARKING GARAGE. Once inside the building you will be on its second floor take the elevators inside up to the 7 th floor. When leaving, take the elevator the second floor and go through the doors onto the 2nd floor of the parking garage.
OSTOMY ADVISORS FOR STOMA HELP To consult with one of the ETs below, a physicians referral is necessary and a fee will be charged. Call for an appointment. BALTIMORE WASHINGTON HOSPITAL Carol Canada RN, BSN, CWOCN 410-787-4578 ANNE ARUNDEL MEDICAL CENTER Michelle Perkins, RN, BS, CWON Email: mperkins@aahs.org Laura Alberico-Klug, RN, BSN, CWON Email: lalbericok@aahs.org 443-481-5508 / 442-481-5187 Fax: 443-481-5198 Private Consultants Joan M. Sullivan, MAS, RN, CNA, CWOCN 410-932-7312 Foi those seiving on the boaiu, the next boaiu meeting is Naich 17th at 7:Supm BC>DEBC>F
9BE *?AA 0S6S B '?AA TS6S %04 *?AA 0S6S B )?AA TS6S !"##$$% '()*+"% ,'-. /-. !01- Happy Winter!
During the cold season, air from indoor heat pulls moisture out of the air and leaves skin dry, heels cracked, lips peeling and hands brittle. What to consider? Start first by staying well hydrated with adequate amounts of non-caffeinated beverages.
Second, cool mist humidifiers at the bedside along with nasal saline spray or gel help keep airways open and prevent cracked nasal passages. Body emollients after showering such as Sween cream help soften the skin. As an alternative, a no- rinse wash cream that is pH balanced will also be effective.
For feet and hands, consider foot washes with Tea Tree Oil and Shea Butter to reduce dryness. Gloves or slippers with gel- infusing oils moisturize and help deeply penetrate the skin.
Specialized lotions such as Mango Foot Lotion, Deep Healing Foot Cream, and Carmex lip balm heal fissures, deep cracks or peeling. Austin Pharmacy displays all of these products plus a variety of others on our shelves. Make it a priority to feel comfortable this winter, stop by and see us!
Best of Heath, Colleen
February 2014 The Rambling Rosebud
4 PRESIDENTS MESSAGE Well Im hoping that we wont have a storm move in and dump snow again when we have our February meeting. Our policy for weather concerns is that when Anne Arundel County Schools close, we do not hold a meeting. I kept checking their website as the snow was falling to see if they were canceling evening activities but it didnt happen. Of course, it was January 2 nd , the first day back at school and apparently there werent any activities to cancel. We are not really sure how to improve on our cancelation policy but the best advice is to assume when the road conditions are rapidly deteriorating, that we wont be meeting. One thing I can tell you is that since the January 2015 meeting falls on New Years Day we will not be holding that one! Paul Skin Care Snohomish County Ostomy Our skin is a vital organ and a major unit of the integumentary system. It has several different layers and many important functions. It acts as a barrier between us and our environment it is never static and undergoes frequent changes and adapts, often very quickly, to our needs. The skin is alive. Made up of two layers the epidermis and dermis the skin functions in several ways: (1) covering the body (2) protection of deeper tissues both from injury and germs, (3) regulator of body temperature and (4) a preceptor of touch, pressure and temperature sensation. Proper care of the peristomal skin of the ostomate is very important to both health and comfort. As many of you are aware, skin irritations can develop from time to time. To keep peristomal skin in good condtion is a daily goal and requires constant vigilance. Care must be taken in the removal of adhesives and appliance seals to prevent trauma (injury) to the skin. To aid in removal, walk the adhesive off with one hand as you press against the body with the other. Cleanse the skin with a mild soap, rinse with clear water and dry thoroughly. Some persons may find even mild soap is too drying and may need to use water only. If a solvent is used, make sure the skin is rinsed thoroughly. Caution must be used in trimming peristomal hair. Shaving is not recommended because of the possibility of accidental abrasion to the skin or stoma. Use blunt-tipped scissors or an electric razor. Measure your stoma periodically to be sure your appliance is not leaving too much skin unprotected. If your stoma is oval shaped or slightly irregular in shape, use a good skin barrier, paste or similar product to fill in the unprotected area between the stoma and the appliance. Remember that stomas may change in size and appliance size may need to be adjusted accordingly. If your skin begins to itch or burn beneath your appliance, change it as soon as is feasible. Skin irritations and breakdowns can result if these warnings are ignored. Dont try to stretch an extra day in between appliance changes. There are many good skin care products on the market and you may wish to try some of them. If you have allergies, try the product on another area other than the peristomal skin to determine if you are sensitive to any of the ingredients. A good skin care routine makes a difference in your physical and emotional well-being so remember a few basic rules in caring for the stoma and peristomal skin: 1. Remove appliance and tape carefully. 2. Cleanse skin thoroughly. 3. Select and use skin barriers as instructed. 4. Allow skin to dry BEFORE placing product. 5. Change appliance regularly. Do not postpone if leakage, itching or burning are noted.
THE MI D-ATLANTI CS LARGEST OSTOMY DEALER We have a dedicated group of Ostomy Specialists that are committed to keeping you in your active lifestyle. Northern Pharmacy and Medical Equip- ment has an attentive staff that cares about your quality of life. Make us your first step in getting back to life as it was meant to be. After all
Weve been here for over 75 years, there must be a reason! Northern Pharmacy and Medical Equipment 6701 Harford Rd, Baltimore, MD 21234 Harford Rd & Northern Parkway www.NorthernPharmacy.com SPEAK DIRECTLY TO OUR OSTOMY SPECIALIST : KEITH CAPPS Phone: (410) 254 2055 x249 Fax: (443) 740 9297 kcapps@northernpharmacy.com Our Ostomy Department provides a full range of comprehensive services and quality products from trusted brands you can rely on. WE OFFER: Delivery anywhere in the US Free Delivery Available Next day delivery is available. Large inventory of ostomy & wound care supplies in stock (we stock an inventory of over 5,000 boxes of supplies) Customized hospital and clinic service plans avail- able In-house Medicare and insurance company billing specialists Personalize pharmacy/medical supply specialist available Easy ordering by fax, phone, online, or in-person. Toll-free 24 hour hotline Acceptance of all major credit cards February 2014 The Rambling Rosebud
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WHAT TO SAY TO SOMEONE WHO IS REALLY SICK Via Evansville Ostomy Association No set of guidelines for being a good friend can replace your own style says former cancer patient Georgia Photopulos, but if youd like a few simple tips on how to talk to someone whos very sick, here they are: Dont be afraid to ask me what I have, how Im doing or what my treatment will be. At worst, Ill say I dont want to discuss it. At best Ill welcome the chance to talk about my situation. Worried about what to say? What did we talk about before I became ill politics, art, religion, the PTA? Im still interested. Dont try to cheer me up by telling me things be worse it doesnt help. In fact, dont try to cheer me up at all. What I need most when Im depressed is a compassionate comforter and listener. Dont assume you know how I feel. If youre prepared to find out, ask me for I need every sensitive, empathetic listener I can get. If I look terrible, dont tell me I look great. Your lie will land between us and undercut anything else you can say. You dont have to comment on my looks at all. Remember I chose my doctor and unless I say otherwise, Im probably satisfied with him or her. Dont bring me articles about other doctors, other hospitals or other treatments unless I ask you to. Do bring me flowers, books, games whatever you know I like. Most of all, bring yourself. Illness interrupts so much, dont let it interrupt our friendship. If any thing about my illness troubles you, if it makes you upset or sad or nervous, tell me. Your silence may hurt me something I know you dont want. lf you don'L have a sense of humor, you probably don'L have any sense aL all.
SALT Lyn Rowell Growing up the only salt found in my mothers kitchen was ordinary table salt. Today the grocery shelves stock table salt, iodized table salt, kosher salt, sea salts and gourmet finishing salts and probably some others I don't even know about! That doesnt even include bouillon cubes which are primarily salt, or soy sauce or other condiments. Salt is a necessary element of our diet but too much salt can lead to some health concerns it can increase blood pressure which in turn increases the risk of heart disease or strokes. If you find yourself having swollen ankles or hands, it could be fluid retention - an indicator that you need to cut back on your salt intake. The Dietary Guidelines for Americans recommends that we have no more than 2,300 milligrams of salt a day. That translates to about 1 teaspoon a day. Salt is absorbed in the large intestine which means that ileostomates rarely have to worry about too much salt in their diet since they lose the majority through their output. In fact they may even have to replace salts after bouts of diarrhea. In general, doctors recommend that we watch for hidden salt in our diet not the kind that you are adding to your food during cooking or at the table, but ones primarily used in processed food. Salt is a preservative, hence its use in processed food. Salt helps our nerves and muscles to function correctly so we dont want to avoid salt altogether but since many individuals consume prepared or processed food, they end up consuming more salt than they intend. Sadly for most of us many of our favorite foods are probably on the hidden salt list, which includes breads and pizza, meat (especially cured meats), cheese, and of course, savory snacks. According to Wikipedia, 77% of the salt consumed by Americans comes from processed food, 11% from adding salt as we cook or at the table and 12% is found naturally in some of the foods we eat. February 2014 The Rambling Rosebud
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ALL POUCH WEARERS Via: The Courier, Coos Bay Oregon & Greater Cincinnati Ostomy Assn, Evansville IN, Reroute Avoid letting your appliance get too full, either of waste or gas. Although one of our members says he likes his pouch to balloon up because it makes him lighter on his feet, its not a good practice. Normally, you should empty your pouch when it becomes 1/3 to 1/2 full, and before trapped gas makes it feel firm. As the pouch becomes fuller, it places a greater strain on the snap fastener holding the pouch onto the flange, for two piece wearers and increases the tendency for the adhesive part of the appliance to pull away from the skin around a stoma for even a one-piece pouching system. If it is not convenient to empty a filling pouch, get somewhere you can discreetly pop the seal, releasing the gas pressure. This trick can buy you a little more time before emptying is absolutely necessary. [Eds note: this only applies to 2 piece systems.] Also for ileostomates, if you know that you are going to be traveling or in a situation where easy access to a rest room is not available, adjust what you eat to avoid high residue food. Instead of eating two bran muffins and a bowl of Raisin Bran for breakfast, consider pancakes, which have much less residue. Be aware to how fast your body responds to eating; time your meal so that you wont have to deal with a pouch approaching its capacity at an inopportune time. Similarly, urostomates may want to consider temporarily adjusting their rate of fluid intake for a short time. The caution here is that urostomates should consume plenty of fluids during the day. This technique is not advisable for periods of more than a couple of hours. Ostomates shouldnt skip meals before going out socially. In general, the less an ostomate eats, the more gas, he or she will produce, with its attendant problems. Actually, a quick arm across the stoma will usually silence it, if it is operating at the wrong time.
POINTERS FOR THE NEW OSTOMATE Via: Big Sky Informer & Hemet-San Jacinto, CA There is no answer for Why me? but it is normal to ask the question and you do need to work through the answer to this. Each persons ostomy is different, even as our fingerprints are different. Support and information received from someone who has an ostomy can be helpful. Ask your doctor or ET nurse to arrange an ostomy visitor. It is your ostomy; learn to manage it and dont let your ostomy manage you. In the beginning, it is normal for your ostomy care to be the center of your existence; however, with time and practice your ostomy and its care will become just a normal part of your life. Basic management skills can be learned; any problems that develop must be met and managed as they occur. With time and experience you will become comfortable with your ostomy care. You are alive! You will get better and stronger. Give yourself time to get over ostomy surgery and to adjust to this body change and adapt to your ostomy.