REALIZE IT 2013

Healthex 2013
Bangalore
Shoubhik Bose
Software Architect and volunteer,
ArogyaUDHC
MissionArogya.org
Health 2.0 - What
Health 2.0 - Why
Staying informed.
Medical education.
Collaboration and practice.
Managing a particular disease.
Sharing data for research.
Email v/s Collaboration
User-driven healthcare- How
1. Collect health
information.
2. Team of health experts
discuss 'privately'.
3. Produce a solution.
User-driven healthcare - What
Anatomy of a social network
Tabula Rasa
User-driven healthcare :
Our implementation
Mathabhanga district in West Bengal
Findings from a healthcare questionnaire
Absolute survey respondents V/S Commonly known problems
Dissecting the system
User-driven healthcare - features
Hassle-free login using Google/Yahoo account.
Multi-interface input.
Anonymised patient names.
Similar case reports prediction engine.
Graphical representation.
The proposed flow
Patient sends a
voice/text message.
Message is sent to the
server and made
available on the web
page.
Medics get notified by
email/phone.

ArogyaUDHC
Input
TIER 1
PATIENT
CARE-GIVER
Some of the Patient inputs we have recieved over email/web so far.
The input - How do we anonymise?
Scientific names used instead of real patient names.
Mashed up with pincode for geolocation
Blurring of names in reports manually using image editors
before uploading.
ABELMOSCHUS480***ESCULENTUS
The input - Anonymisation
1. Image editors native to the web-based application to
allow image manipulation after upload.
2. "Identifier detection" algorithms to automatically remove
patient identifiers.
3. Image tagging. ( Something similar to Facebook? )
Patient consent form ( English )
Patient Consent form
I give my consent for this information about MYSELF/MY WARD/MY RELATIVE [indicate correct description] relating to my/his/her health to
appear in the User Driven Health Care UDHC clinical problem solving forum and web based electronic health record.
I understand the following:
1. UDHC forum is an initiative to promote transparency and ethical practices in health care while qualitatively studying its processes to assess the
role of various (hitherto unidentified) factors that influence healthcare outcomes.
1. UDHC network aims to qualitatively study and in a controlled online-forum, support the phenomenon of sharing an individual's disease related
information with other multiple stake holders in healthcare such as similar patients, related health and other professionals to determine if this
shared learning activity is beneficial in the individual's healthcare outcome.
1. My information will be published without my real name attached and UDHC clinical problem solving forum will make every attempt to ensure
my anonymity addressing me solely by my anonymized user-name.
1. I understand, however, that complete anonymity cannot be guaranteed. It is possible that somebody somewhere - perhaps, for example,
somebody who looked after me if I was in hospital or a relative - may identify me.
1. UDHC clinical problem solving forum will not allow the Information to be used out of context. The text of the information may be edited for
style, grammar, consistency, and length.
1. The Information may be published in the UDHC clinical problem solving forum and associated journals on paper as well as in the internet,
which would be distributed worldwide.
1. Information displayed in the UDHC clinical problem solving forum is not supposed to replace advice from the primary care physician of the
patient.
Signed Accept (Patient) Witness
Patient consent form ( Hindi )

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Add health issue
Agreement
Addition of reports
Inputs
PHR query
Inputs - reports
Input - Narrative
Partnership with
British Medical Journal
Hidden layer
TIER 2
MODERATOR
S
MEDICAL
STUDENTS
CARE-GIVERS
The hidden layer - discussion
Output
TIER 3
CARE-GIVERS CARE-SEEKERS MODERATORS
Output
References
Solution - multiple languages
Evidence-based learning
Dashboard
Moderators
Recommendation engine
Patient posts health issue.
System "predicts" similarity with a previously solved
health case.
Health experts take assistance of previously solved case
to provide solution.
The new solution gets added to the "repository" of
previously solved cases.
Data from BMJ
"Google Prediction" for
health narratives ?
Given a new health narrative , predict a previously
solved case from the archive, based on similar valued
examples in its training data.
Given a new health narrative ,
choose a health record that describes it best, given a set
of similar health records items in its training data.
Crowdsourcing the UDHC platform
Mr. Kar
Who can contribute ?
Medical students.
Engineers.
Designers.
Doctors.
Moderators.
Translators.
Content editors.
Care-seekers
... and the list goes one.
Anyone can help make build this
encyclopedia of health issues.
Student electives
References
Swan Health 2.0 model , Emerging Patient-Driven Health Care Models: An
Examination of Health Social Networks, Consumer Personalized Medicine and
Quantified Self-Tracking, Int. J. Environ. Res. Public Health 2009, 6, 492-525
BMJ ( 2012 ), BMJ Case Reports - Article archive by date, Retrieved fromhttp:
//casereports.bmj.com/content/by/year
Biosense Technologies (2012) , Myshkin Ingawale, Retrieved from http:
//unreasonableinstitute.org/profile/mingawale/
UDHC ( 2012 ) Retrieved from http://care.udhc.co.in/STATICS/what.jsp
Evidence based learning , 5 steps to evidence-based learning , http://www.
ebbp.org/steps.html
Anatomy of a social network, Dave Gray, https://plus.google.
com/117373186752666867801/posts/CQRVeKEsUvF
Thank you
Questions and comments
www.udhc.co.in
www.missionarogya.org

sbose78@gmail.com , sbose@udhc.co.in
@sbose78
shoubhik.bose
ArogyaUDHC : www.udhc.co.in