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Community Engagement To Improve Health Economic Analysis Report 2 - NICE UK - 2008
Community Engagement To Improve Health Economic Analysis Report 2 - NICE UK - 2008
Community Engagement To Improve Health Economic Analysis Report 2 - NICE UK - 2008
ENGAGEMENT
September 2007
1
Foreword
This paper brings together two vignettes or scenarios that bear on the cost
effectiveness of community engagement approaches. Very rarely, data that
compares different approaches (e.g. peer educators, community champions) of
community engagement, including resource usage, have ever been gathered.
The first of these, a study by Tudiver et al (1992), compared three approaches
of providing information on safer sex to gay and bisexual men in a city in the
USA. The question of whether the approach would be cost effective if they had
the same success rates in the UK but with current UK prevalence of HIV and
current UK costs has been addressed by adapting a model of cost
effectiveness by Pinkerton (1998).
This vignette has been made possible by the close cooperation of staff of the
Environment Agency, in particular Michael Guthrie, Megan Rimmer and Cath
Brooks, and by Lindsey Colbourne, a member of the Community Engagement
PDG, who suggested the topic and provided some of the information about it.
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A potential third study by Kumpusalo et al (1996), of 6 villages in Finland which
conducted community engagement to promote healthy eating, using a different
set of villages as a control, was remarkable in that not only did it report cost
data and resource usage, but also reported “hard” outcomes: changes in blood
pressure, and cholesterol and vitamin C concentration in the blood. As data by
age were not reported and were not available for this study, it was not possible
to undertake sufficiently meaningful modelling of this potential vignette.
(Because of this, the study was not followed up in detail in this set of
vignettes.) However, the existence of such a study shows that estimation of the
cost effectiveness of some community engagement approaches would be
possible for carefully designed and executed studies. The requirements for
meaningful economic analysis in such a study are thus (a) a suitable control
group or comparator has been employed (b) the collection of “hard” outcomes
has been undertaken. By “hard outcomes” is meant accurately measured
intermediate health-related outcomes that can be mapped to quality-adjusted
life years (QALYs) or a similar generic index of health gain, by relating the
measured outcomes to the probability of death and to future expected quality
of life, and (c) either costs or resource usage (or both) are carefully collected.
Within NICE, Lorraine Taylor, Antony Morgan and Mike Kelly have helped with
the preparation of this paper.
Alastair Fischer
Reference
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Cost effectiveness of two interventions in community
engagement
Introduction
Intervention: A single group session (of three hours’ duration) of 8-12 men
conducted by 2 unpaid trained volunteer peer educators regarding safe sex.
They ran 45 different groups. To estimate training costs of volunteer peer
educators, we assume that there are 30 different volunteer peer educators
(that is, the volunteers do on average 3 sessions each – the paper says that
each volunteer led several different sessions). For brevity, call this alternative
A
Comparator: Four sessions (of two hours’ duration) for groups of 8-12 men
conducted by experienced paid leaders. They ran 21 groups. Call this
alternative B
Second comparator: 211 men on the waiting list for the intervention and main
comparator. Call this alternative C
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C: Reduction from 21% to 17% (N = 211)
It can be seen that the outcome of unpaid trained volunteer peer educator
intervention was of greater magnitude than that of either comparator:
experienced paid leaders or “do nothing”. On the assumption that there was no
clustering into groups, A was statistically significantly more effective than C (at
the p = 0.05 level), and more effective than B, but not statistically significantly
so at the 5% level. When the clustering effect is taken into account, 1 we
cannot say whether the difference between any intervention is statistically
significant, as the number of degrees of freedom 2 is reduced from 200 to a
number between 200 and 44 for alternative A, and from 87 to somewhere
between 87 and 20 for alternative B.
Comparative costs for a similar study using peer educators by Pinkerton and
Kelly in southern USA in 1989 for 449 in the treatment group: $6,700 staff cost,
1
That is, because there may be an interaction effect within the group, in the extreme case there may only
be one observation per group rather than the 8 to 12 individual observations assumed in the paper
2
Degrees of freedom are the number of effectively independent observations.
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$5,300 in “incentives” for volunteers and $4,100 for materials, a total of
$17,150. In 2007 prices, these costs would be about 1.66 times as high, or in
total $28,600, and in terms of comparable wage rates, almost exactly twice as
high, or in total $34,300. At the current exchange rate of £1 = $US2 (and in
terms of comparable wage rates), the original costs in $ equal the current cost
in £, viz staff costs of £6,700, £12,000 for total “wage” costs and total costs of
£17,150. Thus the figures assumed in the Tudiver study of £4,800 for staff
costs and £10,800 for total “wage” costs are of a similar order of magnitude.
Cost effectiveness.
A is more effective and less costly than B and so dominates B. That is, unpaid
trained volunteer peer educators are a cost effective option against
experienced paid leaders in promoting safer sex among gay and bisexual men.
A versus C: In this case, are unpaid volunteer peer educators better value-for-
money than not providing any service? Since the training of volunteers is not
free, we must estimate a cost per QALY. Pinkerton (1998) analysed Kelly’s
(1991) study of a similar group, in which a cost per QALY of $65,000 was
estimated. The costs assumed for the Tudiver study are slightly lower than
those of the Pinkerton study. However, the main differences in applying the
result to the UK are that (i) the prevalence of HIV positive men among gay and
bisexual men in the UK is 3.2 per 100 but was 9 per 100 in Pinkerton’s US
study and (ii) the follow-up period for Tudiver was 3 months compared with 2
months for Pinkerton. These differences, together with allowing for inflation
and the exchange rate, yield a cost per QALY estimate of £200,000 per QALY
for unpaid trained volunteer peer educators against no intervention when
Tudiver’s study is translated to the UK and uses 2007 prices. The reason for
this very high figure is that the intervention effectiveness for the Pinkerton
study was assumed to be only 2 months and for the Tudiver study was
assumed to be only 3 months, the respective times of follow-up. If, for
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example, the effectiveness were to have lasted for 12 months, the estimated
cost effectiveness would be of the order of £50,000 per QALY when translated
to the UK and if it had lasted 2 years, would yield about £25,000 per QALY. In
the extreme, a change in baseline safer sex from 75% to 85% which was
permanent (rather than last a mere 2 or 3 months) would reduce the first round
of infections among such a community by 40% (that is, the proportions
practising unsafe sex reduce from 25% to 15%, a 40% reduction, thus leading
to a reduction in initial HIV transmission by that amount). In Pinkerton’s study
in a steady state, the 40 assumed infected with HIV (9% of 449) would pass
the disease on to 24 rather than 40, approximately, and assuming a
community where no-one enters or exits from outside. The number of
discounted QALYs gained would be 180, at a cost per QALY of about $130.
Translated to the UK in 2007 and using similar inferred costs for Tudiver, this
would yield £320 per QALY.
Conclusions.
• It would be better not to intervene at all rather than use experienced paid
leaders to do so.
Considerations
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safer practice is likely to be cost effective. However, this study cannot be
generalised to say anything about the cost effectiveness of this community
engagement approach in other circumstances.
However, there are a number of other caveats to consider in the Tudiver study.
First, there is considerable uncertainty in the estimates of cost effectiveness.
Second, the conclusion that experienced paid leaders are not more effective
than doing nothing in delivering safer sex messages is not borne out more
generally (see references in Ellis et al (2003) section 4.1.2.2). In this respect,
the conclusion obtained above could truly be considered an isolated one.
Third, it is almost impossible in any situation where information is being
broadcast to a particular group to confine the information to that group. In a
relatively small population of gay and bisexual men, giving out information to
one group within that population will inevitably result in its spread to the rest of
the population, and that spread is likely to be rapid. In time, it can be assumed
that there will be a convergence in behaviour between those who initially
received the information from untrained peers and those who did not. In one
scenario, we could assume that the effect of the safer sex message wears off
over time, in which case the benefits of the initial safer sex sessions, however
they were conducted, might not be very beneficial. In another scenario, we
could assume instead that the effect of the safer sex message on behaviour
lasts through time. In this case, convergence in safer sex practice between
groups occurs by the diffusion of the safer sex message to everyone else in
the population. In this scenario, the increase in safer sex practices is
transferred and maintained throughout the whole population, in which case the
sessions would be extremely beneficial. The fact that convergence between
groups over time occurs is, in itself, not sufficient to conclude anything about
the cost effectiveness of the mode of delivery of the original message.
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almost all community engagement approaches, because the delivery of
change normally involves an informational message or messages. This
explanation gives succour to those who have said that community engagement
approaches are not amenable to the normal methods of analysis of
effectiveness and cost effectiveness.
References
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II Community Engagement in a flood mitigation scheme
Introduction
The village of Shaldon in Devon, England, lies on the southern side of the
Teign estuary. Much of the village lies in a basin in which the level of the land
is below the level of some tides in the estuary. Parts of the village are therefore
at risk of flooding from high tides and local runoff, although the most severe
flooding will result from high tides.
The existing tidal defences take the form of relatively low flood walls which are
not continuous due to access openings between village and the estuary. High
tides alone, or in combination with wind-generated wave action, pose a risk to
almost 400 properties, and would cause damage estimated to be up to £17m
for a single episode. In a careful study of property damage expected for
various levels of floodwaters and an estimate of the probability of flooding, the
present value of cumulated flood damage has been estimated to be £45m over
the next 100 years, the project’s time horizon (Atkins pba, 2006). The cost of
an enhancement of the flood defences is not known accurately in advance of
any tendering for this work, but it is believed to be of the order of £6m. For the
sake of this exposition only, the two scenarios of £5m and £10m for
implementing the enhanced flood defences have been assumed. The actual
cost may lie within this range or outside it, so the following analysis is
illustrative only.
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The Engagement Process
Engagement after this date will relate to detailed design and the impacts of
construction.
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Engagement Outcomes
Engagement has caused the design of the proposals for flood defence to
evolve. We assume that these changes do not affect the benefits of the
scheme in terms of the reduction of flood damage, but that they may not be
costless to implement. The cost is not separately listed here, but is subsumed
within the range of £5m to £10m assumed as the cost of the whole project
The likely tangible outcomes of the engagement process, over and above the
traditional approach (with limited community engagement), are
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All of these elements have some costs associated with them, but in each case,
the associated benefits have been assumed to be well above the
implementation costs. Since the assumed cost range is £5m to £10m and the
original benefits have been estimated to be £45m, there is no requirement to
quantify the additional benefits for the purpose of making a positive decision
about the project. However, the question of whether the particular community
engagement approach used is cost saving as well as being cost effective
would need this to be quantified.
Analysis
In the simplest case, we assume that the project whose benefits have a
present value of £45m and costs between £5m and £10m (a net benefit of
between £35m and £40m) does not go ahead without engagement but goes
ahead with engagement. The net benefit from the scheme of £35m to £40m is
released for a direct cost of engagement of £0.5 million. However, there is also
an “indirect” net cost of engagement of £1.0 to £1.3 million per year due to
postponement of construction, in that a flood might arrive in the year in which
the postponement occurs. For the sake of simplicity, assume that the indirect
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cost of postponement is for between 12 and 18 months, and equals £1.5m.
Under these assumptions, the community engagement process is still highly
cost effective: a benefit of £35-40 million for £2 million in cost (of which £1.5m
is not an accounting cost).
A different, much more limited but cheaper form of engagement than the one
undertaken in Shaldon, of asking the residents to vote on an all-or-nothing
scheme might have given a majority in favour of the project, though it might not
have been a solution that maximised benefits. To compare the outcome from
the current engagement exercise with that of a direct vote is a different
analysis from the one undertaken. Since we do not know what the result of
such a vote would have been, it is not possible to determine whether the
eventual scheme with its somewhat higher costs would have been cost
effective compared with the vote.
More generally, there would be a probability, p1, that the scheme would be
accepted by the community without engagement of any kind, and a probability
p2 that it would be accepted after engagement. If the net benefits of the project
were £x million, then the value of the engagement would be given as
£x(p1 - p2) million. To be worthwhile, the value of the engagement must exceed
its cost, assumed to be £2m. When x = £35m, this implies that (p1 - p2) must
exceed 0.057, and when x = £40m, (p1 - p2) must exceed 0.05. That is, the
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engagement would need to alter the probability of acceptance by between 5.7
and 7 percentage points or more to be cost effective, without considering any
of the additional benefits of the scheme. Another way of looking at this would
be to say that with the figures given, for 17 to 20 projects of this kind, if
engagement were to change the decision from NO (without engagement) to
YES (with engagement) in only one of the projects, it would be (just)
worthwhile to conduct engagement in all projects.
Furthermore, we do not know whether any opposition that there might have
been to the original scheme would be continued indefinitely in the continued
absence of a formal engagement programme. A community that opposed a
project at the outset might well, in the light of information about other flooding
in the following time periods, change its mind from opposing to favouring the
project. In other words, the comparator for the engagement exercise might not
be “no engagement” or “conduct a vote of citizens”, but might be “what would
the community prefer after a year has elapsed”. With respect to Shaldon, the
effluxion of time, in which widespread and prolonged flooding has engulfed a
number of communities in the UK, might well have changed the attitudes of a
number of members of the community without any engagement at all. Far from
being highly cost effective, that would suggest that unless the amendments
themselves were worth the cost of engagement, the engagement exercise
would not have been worth putting resources into. This puts a different
complexion on the engagement exercise, and if this scenario were to pertain,
then we would have to look carefully at the net benefits of the changes to the
scheme from the engagement, and compare them with the cost of
engagement, before we could come to a substantive view of the engagement
programme. This could be undertaken, but it is beyond the scope of this paper
to attempt this. (It also assumes that a community has the flexibility to accept
or reject a proposal from the authorities at any time, but in reality, plans are
only reviewed periodically.)
Discussion
The simplest version of a cost effectiveness analysis is quite clear. Spend £0.5
million on community engagement and be prepared to forego another £1.5
15
million in benefits due to postponement of the construction and gain £35-40
million in reduced flood damage as well as benefits to the health and well-
being of the community. Highly cost effective. But as soon as the model is
complicated by making different assumptions about the comparator (a different
form of engagement, or the possibility of community attitudes changing over
time), the possibility exists of a reversal of the cost effectiveness. In the latter
cases, it would be necessary to quantify the benefits of amending the original
scheme due to the engagement in order to determine how worthwhile the
engagement might be. In the worst-case scenario for Shaldon, the benefits of
such amendment to the plans, including the extensions of the scheme, the
incidental benefits in related areas and the likely improved community
cohesion as a result of consultation, would have to be worth about £2 million
before engagement were to be cost effective.
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For completeness we note that the perspective of many of NICE’s analyses is
that of the NHS. If viewed from that perspective, the cost of the engagement to
the NHS is zero and the health benefits are positive (in terms of lowering the
probability of water-borne disease, drownings and anxiety). As this dominates
not undertaking the project, it is infinitely cost effective.
Reference
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