Draft - Formal Thursday Agenda

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THURSDAY AGENDA

2016 Learning Engagement Conference


7:30 am 8:30 pm

7:30 am 8:00 am

Registration & Breakfast (Provided)

Town Square

Help yourself to some coffee, bagels and fruit, meet and greet
other attendees, and get ready for an exciting day!

8:00 am 9:00 am

Kick Off

9:10 am 10:20 am

Welcome to the 2016 LEC (8:00 am 8:30 am)


Engagement Introduction (8:30 am 9:00 am)

Breakout Sessions Participants are welcome to


attend any session of interest
GPC Institutional Review Board (IRB) Meeting

Troost Room

Targeted Attendees: Patient Engagement Officers


(PEOs)

Breast Cancer Review

Kansas City Room

Targeted Attendees: IRB members

Patient Engagement Bootcamp

10:20 am 10:40 am

Town Square

Paseo Room

Critical review of the breast cancer cohort selection,


protocol, and data linkage
Targeted Attendees: Breast cancer cohort members and
data staff

Break
Drinks (water and soda) and cookies

Town Square

10:40 am 12:00 pm

Breakout Sessions Participants are welcome to


attend any session of interest
Institutional Review Board and Site PIs Meeting

Targeted Attendees: IRB members and Site PIs

Patent Engagement Bootcamp

12:00 pm 1:00 pm

Troost Room

Targeted Attendees: Patient Engagement Officers

Breast Cancer Presentations

Kansas City Room

Paseo Room

Targeted Attendees: Breast cancer cohort members

Lunch (Provided)

Town Square

Please also use this time for cross-team sharing

1:00 pm 2:30 pm

Breakout Sessions Participants are welcome to


attend any session of interest
Cohort Discussion & ResDAC GROUSE
Characterization Work

Targeted Attendees: Breast cancer cohort members &


data staff

PCORnet Front Door / GPC ROA Process

Troost Room

Targeted Attendees: Site PIs

ALS Neuroscience Update

Kansas City Room

Targeted Attendees: ALS cohort members

Paseo Room

2:30 pm 3:00 pm

Break

Town Square

Drinks (water and soda) and cookies

3:00 pm 4:20 pm

Current State of CDRNs & GPC

4:30 pm 5:15 pm

5:15 pm 6:30 pm

Data Sharing & Sustainability


Feedback & Ideas

Patient Panel

Town Square

Town Square

Q&A with patients from Childrens Mercy Hospital

Break

Hotels

Return to hotels and get ready for dinner.

6:30 pm 8:30 pm

Dinner

Dinner will begin with drinks and socializing, followed by a


buffet-style dinner starting at 7:00 pm.

Brio Tuscan Grill

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