Download as pdf or txt
Download as pdf or txt
You are on page 1of 9

Journal of Human Hypertension (2003) 17, 397405

& 2003 Nature Publishing Group All rights reserved 0950-9240/03 $25.00
www.nature.com/jhh

ORIGINAL ARTICLE
Using a problem detection study (PDS) to
identify and compare health care provider
and consumer views of antihypertensive
therapy
AH Wade1,2, DN Weir1, AP Cameron2 and SE Tett2
1
Australias Health Pty Ltd, Lyneham, ACT, Australia; 2School of Pharmacy, The University of Queensland,
Brisbane, QLD, Australia

The objectives of this study were to ascertain consumer continuing therapy. Half the consumers had not re-
knowledge and behaviour about hypertension and ceived sufficient written information. Providers overall
treatment and to compare these with health care disagreed that most consumers have an adequate
providers perceptions (of most consumers). The de- understanding of the condition. They agreed that most
sign for the study was a problem detection study (PDS): consumers adhere to therapy and can manage medi-
focus groups and then survey. Focus groups and survey cines; and about their own professions role in informa-
participants were convenience samples of consumers, tion provision and condition management. Consumers
doctors, nurses and pharmacists. The main outcome confirmed positive provider behaviour, suggesting
measures were agreement on a 5-point Likert scale with opportunities for greater communication between pro-
statements about consumers knowledge and behaviour viders about actions taken with their consumers. In
about high blood pressure and medication. The survey conclusion, the PDS methodology was useful in identi-
identified areas of consensus and disagreement be- fying consumer opinions. Differences between consu-
tween consumers and health providers. While general mer and provider responses were marked, with
knowledge and concordance with antihypertensive consumers generally rating their knowledge and beha-
therapy among consumers was good, consequences viour above providers ratings of most consumers.
such as eye and kidney disease, interactions with herbal There are clear gaps to be targeted to improve the
medicines, and how to deal with missing a dose were outcomes of hypertension therapy.
less well known. Side effects were a problem for over Journal of Human Hypertension (2003) 17, 397405.
one-quarter of participants, and cost was a problem in doi:10.1038/sj.jhh.1001565

Keywords: consumers; disease management; problem detection study

Introduction can then be designed to bridge any gaps and match


knowledge and information needs with provision.1012
As one of the four arms of Australias National Reports, however, have described a gap between
Medicines Policy, many existing and planned consumer and provider perceptions of the issues
strategies aim at improving how Australians actu- and problems faced by consumers.13 Most research
ally use medicines.1,2 Quality use of medicines tends to ask what providers want to know and what
(QUM) is high on the clinical and policy agenda in providers think is important.14 Consequently, there
Australia and elsewhere.14 In order to understand tends to be greater emphasis on what health
what consumers know and believe about their providers think is important in the care of their
disease and treatment, it is essential to obtain their patients.
views and perceptions.59 The views and percep- Although it has been found that education alone
tions of health care providers about these same will not significantly increase compliance, some
issues can also be sought and, ideally, interventions knowledge regarding the condition and reasons for
treatment is necessary for behaviour change.1518 It is
clear, however, that this knowledge should be
Correspondence: Professor SE Tett, School of Pharmacy, The carefully matched to that already possessed by the
University of Queensland, Brisbane, QLD 4072, Australia. individual and should be designed to test or extend
E-mail: s.tett@pharmacy.uq.edu.au
Received 19 November 2003; revised 4 February 2003; accepted
that knowledge, not merely to repeat known
20 February 2003 facts.
PDS to investigate consumer views
AH Wade et al

398
Expert panels or focus groups conducted with (1966May 2001), International Pharmaceutical
consumers have been used to ascertain specific Abstracts (IPA) (1970May 2001) and the Web of
information and education needs of the general Science to provide contextual support to the PDS
community with respect to their medicine use.14 survey items.
Focus groups of consumers have been used to Three levels of participation from informed con-
identify barriers to drug use in patients with senting health providers and consumers were
congestive heart failure, describing, for example, required throughout the duration of the project:
the importance of closer consumerhealth provider a project advisory group; participants for focus
relationships, social support and increasing the groups who would identify and confirm issues for
consumers knowledge.19 While these methods are subsequent investigation; and a wider sample to
valuable, assessment of consumer issues using complete a written survey of issues relating to the
larger samples has not been carried out.13 treatment of hypertension. Consumer participants
At least one novel method exists that attempts for the focus groups and the advisory panel were
to redress this discrepancy. The problem detection recruited through a hypertension association, and
study (PDS) is accepted as a tool for qualitative health professionals through interest groups, perso-
health service research, and has been used in nal contacts and professional associations. All
developing effective QUM educational campaigns participants were volunteers, with the advisory
elsewhere since 1991.1012 Its use outside Europe, panel being selected for their representation of
however, has not been reported and its use for different groups. For completion of the resulting
people with hypertension has not been previously survey, health providers throughout Brisbane
reported. (general practitioners, community and specialist
This project applied the PDS method to the major nurses, and pharmacists) and consumers currently
health problem of hypertension. Hypertension, diagnosed with hypertension and taking at least
frequently an asymptomatic disease, can lead to one antihypertensive medication were invited to
many secondary causes of morbidity and mortal- participate in the project. Survey responses
ity.20,21 Cardiovascular disease accounts for 40% of were anonymous and confidential. The project
deaths in Australia,22 creates large costs for health advisory group met in the planning stages
care systems, and places a significant burden on of the study, and was reconvened after initial data
individuals and the community because of resulting analysis was completed, in order to assist in
disabilities.21,23 During the period 19992000, al- interpretation.
most 3 million Australians over the age of 25 years Four focus group meetings of 810 participants
had hypertension, or were taking medication for it.24 each, separately involving pharmacists, consumers,
Of all those with hypertension (defined as diastolic doctors and nurses, were held. These focus groups
blood pressure 490 mm Hg), one Australian study were semistructured, with open questions seeded
reported that 47% of men and 23% of women were to start the discussion. Each lasted for approxi-
not taking any medications for their high blood mately 2 h. The discussion was recorded manually,
pressure.20 It is important that hypertension is the issues collated and the major themes drawn out.
effectively treated. It is also important to discover The focus group data indicated five principal areas
the reasons, from consumers, why medication is not of interest: understanding the condition; under-
used optimally for this condition. Little is known standing the medication therapy; information-
about the consumers perspectives regarding the seeking behaviours and needs; understanding
management of hypertension, and whether these lifestyle contributors; and adherence and review
views align with the perspectives of the health behaviours. These broad themes, together with the
professionals providing treatment for the condi- results of the critical review of the published
tion.2527 This project had two principal aims: to literature, suggested possible survey statements.
test the PDS methodology and to use the method to The project advisory group confirmed the final list
derive insights into potential gaps between consu- of 29 survey items on which the Likert-type 5-point
mer and provider views about hypertension and its scale (agree/disagree) was based. The survey items
treatment. The detection function of the PDS can were deliberately listed on the survey in a random
inform interventions aimed at improving the man- order (ie no clusters around the five principal areas
agement of hypertension. of interest) and the survey order was the same for all
groups of participants, consumer or health care
provider.
Methods Appropriately worded versions of the survey
items were produced for health providers (referring
The PDS in hypertension was conducted in Brisbane to most consumers) and for the consumer partici-
during 2001. Ethics approval for the study was pants (referring to the participant). All surveys were
obtained from the Medical Research Ethics Commit- accompanied by a prepaid addressed envelope.
tee at the University of Queensland (Approval Each survey requested anonymous demographic
Number: B/460/PHARM/00). An extensive literature data about the participants and their experience
review was initially conducted using MEDLINE with hypertension. A total of 30 community phar-

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

399
macists were recruited to provide the surveys to any Table 1 Gender, age and medication usage by consumers of
consenting patient taking at least one antihyper- hypertension medicines
tensive medication. Each pharmacy was requested
Male Female Total
to hand out a maximum of 50 surveys to consumers (n=154) (n=108) (n=264)a
over a 30-day period. Most did not give out 50 in this
period. Age (years) 59.3 (1.3) 60.8 (1.36) 59.5 (1.3)
In addition to the consumer surveys, 210 health Time taking antihypertensive 11.2 (0.75) 11.7 (1.09) 11.3 (1.02)
provider surveys were distributed to pharmacies (60 medication (years)
pharmacies in total received this survey, extra were Number of antihypertensive 1.62 (1.3) 1.59 (1.01) 1.6 (0.96)
medications taken
distributed as some pharmacies employ more than
one pharmacist: given an average of 1.5 pharmacists Data are presented as group mean and standard error of the mean
per target pharmacy, an estimate of the available ( 7 SEM).
sample size is 90); 118 health provider surveys to a
Two respondents did not indicate gender. In this sample, 175 (106
nurses in hospital and community settings; and 18 male, 68 female) reported taking their medicine for less than 4 years;
89 (47 male, 41 female) reported taking their medicine for more than 4
health provider surveys to general practitioners years.
identified by the GP on the advisory group.
Returned questionnaires were examined for com-
pleteness and data were coded and entered in an
electronic database that enabled export to the SPSS males and females, the time they reported taking
statistical analysis package. hypertensive medication, nor the mean number of
medications reported as taken for hypertension. In
total, 50% of males (n 77) and 52% of females
Statistical analyses (n 56) reported taking only one antihypertensive
medicine, 34% of males (n 53) and 32% of females
There were two main categories of respondents to
(n 34) reported two concurrent antihypertensives,
the surveyFconsumers and health providers (phar-
and 13% of males (n 20) and 12% of females
macists, nurses and doctors). The survey generated
(n 13) reported taking three or more medicines (up
numeric and text dataFthe numeric at either the
to seven in one male) concurrently for their
ordinal or interval level. Ordinal data were analysed
hypertension. In the sample, 175 (106 male and 68
using non-parametric statistical tests. Differences
female) consumers reported taking hypertensive
between the groups were determined using the
medicine for more than 4 years, and the remaining
KruskalWallis test. Interval data were analysed
(47 male and 41 female) consumers for less than 4
using ANOVA. Where differences existed, post hoc
years.
range and pairwise multiple comparisons were used
Of all consumers 49% (n 129), reported that they
to determine which means differed (Scheffes tests).
had received printed information on high blood
Measures of central tendency for the numeric data
pressure. A low 1.0% (n 3) of the consumer
were calculated as the mean, standard error of the
respondents (all males) reported that they currently
mean, and median score, while measures of disper-
belonged to a high blood pressure support group.
sion were calculated as frequency counts or percen-
Some respondents (2.7%, n 7) reported they were
tages. To enable comparability with other published
taking herbal medicines for their high blood pres-
PDS, the data were also analysed by the percentage
sure. These were more likely to be female (4.6% of
of positive, neutral or negative scores for each
total female sample) than male (1.3% of total male
respondent group in the sample.
sample). In all, 13% of consumers (n 34) reported
Statistical analyses were performed using SPSS
that they were currently measuring their blood
version 10.0, including data checking for out of
pressure at home (14% males and 12% females).
range values and for assumptions of normality
There were 133 valid health provider surveys
where inferential statistics were required. Normality
completed out of an anticipated 230 (18 GPs, 118
was tested using the KolmogorovSmirnov statistic
nurses and approximately 90 pharmacists). Health
with a Lilliefors significance correction. By con-
provider data by practice setting and number of
vention, statistical significance (P) values for all
hypertensive patients seen per week are presented
analyses was determined as 0.05.
in Table 2.
Pharmacists had spent less time than doctors in
Results practice overall. Analysis of the nurses ranked
scores by practice setting (as over a quarter practised
There were 287 consumer surveys returned. Those in hospitals) indicated that significant differences
incorrectly completed, for example missing data, existed only in whether they considered that most
were excluded. This left 264 valid consumer surveys consumers receive sufficient written information
for analysis. Gender responses by age, reported about their antihypertensive medicines. More com-
number of medicines and their duration are illu- munity- than hospital-based nurses thought this
strated in Table 1. There were no statistically (w2 6.54, df 1, P 0.011). Whether most consu-
significant differences between the mean ages for mers understand that hypertension is the same as

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

400
Table 2 Practice setting, time spent (years) in practice and Only 5% of consumers (n 14) agreed that they
number of hypertensive patients seen per week (also expressed as are sometimes influenced by friends or family to
the percentage for all respondents) for health providers
stop taking their blood pressure medicines, and in
Pharmacist Nurse Doctor this group, females were significantly more likely to
(n=51) (n=64)a (n=18) be influenced than males (w2 8.39, df 1,
P 0.004). This is contrasted with 48% of providers
Practice setting (n 64) who agreed that most consumers are some-
Hospital 4 17 F times influenced to stop in this way.
Community 46 44 18 Most consumers agreed that they regularly review
Other 1 2 F
their blood pressure medicines with their doctor,
No. of hypertensive patients per week (% total responses for each and significantly more females than males (w2 4.33,
professional category) df 1, P 0.037) agreed with this. Only 35% of
o10 1 (2) 27 (44) 1 (6) providers (n 47) agreed that this occurs for most
1050 27 (54) 34 (55) 15 (84)
>50 22 (44) 1 (1) 2 (10)
consumers, but there were differences between the
provider categories in this regard, with 67% of
a
One did not state a practice setting. doctors (n 12) agreeing, and 25% of the pharma-
cists (n 13) and 34% of the nurses (n 22)
disagreeing that consumers regularly reviewed their
antihypertensives with their doctor.
high blood pressure, more hospital than commu- Nearly 80% of consumers (n 221) agree that
nity-based nurses thought this (w2 4.26, df 1, their doctor takes a planned approach to their blood
P 0.039). There were no other differences based pressure medicines; however, this number declines
on site of practice. in relation to whether medicine changes and brand
To enable comparability with other PDS, the data substitution are adequately explained. While 50% of
are reported by the total percentage of consumers providers (n 67) agree that therapy is planned,
and combined health providers marking agree (4) there are differences between provider categories,
and strongly agree (5) on the 5-point Likert scale with pharmacists and nurses not agreeing as
(Table 3). The KruskalWallis statistic on ranked strongly as doctors, that doctors take a planned
median scores for consumers and categories of approach to antihypertensive medicines. In relation
health professionals revealed many significant dif- to brand substitution, pharmacists agreed, while
ferences between groups. This reflects the wide nurses and doctors disagreed, that this was ade-
disparity in percentage agreement between consu- quately explained to consumers.
mers and the provider group seen on many The consumer group was further examined to
of the survey items, for example knowledge of target determine if there were differences in survey scores
blood pressure or kidney and eye disease conse- for those in treatment for hypertension for different
quences. time periods: 175 (106 male and 68 female)
Table 3 includes all the general data obtained from consumers reported taking hypertensive medicine
the groups; however, there were also some notable for longer than 4 years, and 89 (47 male and 41
differences within subgroups. For example, for female) consumers for less than 4 years. The longer
consumers, significantly more females than males treatment time group reported a significantly stron-
agreed that they understood that hypertension is the ger agreement (w2 3.56, df 1, P 0.001) than the
same as high blood pressure (w2 8.24, df 1, group treated for less than 4 years in their under-
P 0.004), and more males than females disagreed standing that hypertension is synonymous with the
with the statement that they understood high blood term high blood pressure, in understanding what
pressure can cause kidney disease (w2 4.05, df 1, their target blood pressure is, and in understanding
P 0.044). Most consumers report they understand that high blood pressure can cause kidney disease.
that over-the-counter (OTC) medicines can interact The subgroup receiving treatment for less than 4
with their blood pressure medicines, but gender years was significantly less certain than the longer
differences reached statistical significance treatment group (w2 4.12, df 1, P 0.001) that
(w2 5.04, df 1, P 0.025) with more females than changes in their blood pressure medicines are
males agreeing with this statement. Only 49% of adequately explained to them, and that their health
consumers reported agreement with the possible care providers have helped them achieve lifestyle
interaction with herbal preparations, with more changes.
females agreeing than males (w2 8.64, df 1, Confidence in knowing what to do if a dose is
P 0.003). Most consumers agreed that they have missed is significantly less in the under 4 years
enough assistance to remember to take their medi- subgroup than their more experienced counterparts
cines. Slightly fewer felt confident in managing their (w2 8.47, df 1, P 0.001), while both groups dis-
medicinesFgender differences reaching statistical agree that friends or family experiences influence
significance (w2 5.58, df 1, P 0.018)Fwith more their continued use of hypertensive medicines, and
females than males reporting agreement with this the over 4 years subgroup is significantly more
statement. certain of this.

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

401
Table 3 Percentages of total providers and consumers scoring disagree (D), neutral (N) or agree (A), sorted by highest consumer
agreement within survey item categories

Cat. Item Consumer survey item/provider survey item Providers Consumers

D N A D N A

A 14 I understand that high blood pressure can cause a stroke. 28 16 56 3 3 94


Most consumers understand that hypertension can cause a stroke.
A 16 I understand that hypertension is the same as high blood pressure. 24 20 56 5 13 82
Most consumers understand that hypertension is the same as
high blood pressure.
A 2 I understand what my target blood pressure is. 56 14 29 14 10 76
Most consumers understand what their target blood pressure is.
A 6 I understand that high blood pressure can cause kidney disease. 84 14 2 17 24 59
Most consumers understand that hypertension can cause kidney
disease.
A 23 I understand that high blood pressure can cause eye disease. 86 13 1 16 32 51
Most consumers understand that hypertension can cause eye disease.
B 3 I understand that blood pressure medicine can interact with over-the-counter 62 14 24 5 10 85
preparations.
Most consumers understand that antihypertensive medicine can interact with
over-the-counter preparations
B 18 I feel my doctor takes a planned approach to my blood pressure medicines. 20 28 52 9 13 79
Doctors take a planned approach to most consumers antihypertensive medicines.
B 15 I feel that brand substitution of my medicines is adequately explained to me. 37 22 41 17 19 65
Brand substitution of medicines is adequately explained to most consumers.
B 27 I feel that changes in my blood pressure medicines are adequately explained to me. 47 20 33 12 25 63
Changes in antihypertensive medicines are adequately explained to most consumers.
B 29 I understand that blood pressure medicine can interact with herbal preparations. 82 14 4 13 38 49
Most consumers understand that antihypertensive medicine can interact with
herbal preparations.
B 1 Side effects of my blood pressure medicines are a problem for me. 4 3 93 57 18 26
Side effects of antihypertensive medicines can cause problems.
C 24 My doctor has explained my high blood pressure to me in plain language that I 27 42 31 11 8 81
could understand.
Doctors explain hypertension to most consumers in plain language that they can
understand.
C 25 Information for my family about high blood pressure would be useful in managing 6 7 87 12 36 53
my condition.
Information for the consumers family regarding hypertension would be useful in
managing their condition.
C 9 I have received sufficient written information about my blood pressure medicines. 56 20 23 35 13 52
Most consumers receive sufficient written information about their antihypertensive
medicines.
C 17 Information from the media about high blood pressure has been useful to me. 33 28 39 23 40 37
Information from the media about hypertension is useful for most consumers.
C 4 Seeking information myself was easier than waiting for the health provider to 45 35 20 47 27 26
supply it.
Most consumers find that seeking information themselves is easier than waiting
for the health provider to supply it.
C 13 Information from blood pressure support groups is useful to me. 13 35 52 20 62 19
Information from hypertension support groups is useful for most consumers.
D 19 I understand how my weight affects my blood pressure. 31 20 49 6 8 86
Most consumers understand how their weight affects their blood pressure.
D 26 I understand how my diet affects my blood pressure. 43 23 34 7 12 81
Most consumers understand how their diet affects their hypertension.
D 10 I believe that changing my lifestyle has an effect on my blood pressure. 28 14 58 12 12 76
Most consumers believe that changing their lifestyle can have an effect on
their hypertension.
D 12 It is helpful to me when health providers continually reinforce the need to 21 29 50 15 33 52
change my lifestyle.
Most consumers find it helpful for health providers to continually reinforce the
need to change their lifestyle.
D 28 My health providers have helped me achieve lifestyle changes. 29 33 38 21 34 45
Health providers help most consumers achieve lifestyle changes.
E 7 Even when I dont feel any symptoms, I continue to take my blood 11 15 74 3 2 96
pressure medicines.
Even when consumers dont feel any symptoms, most continue to take their
antihypertensive medicines.
E 22 I feel I have enough assistance to remember to take my medicines. 19 24 57 3 6 91
Most consumers have enough assistance to remember to take their medicines.
E 21 I feel confident in managing my own medicines. 17 24 59 8 7 85

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

402 Table 3 (continued)

Cat. Item Consumer survey item/provider survey item Providers Consumers

D N A D N A

Most consumers feel confident in managing their own medicines.


E 11 I regularly review my blood pressure medicines with my doctor. 39 25 35 7 9 84
Most consumers regularly review their antihypertensive medicines
with their doctor.
E 5 I feel confident in knowing what to do if I miss a dose of my blood 75 15 10 16 8 76
pressure medicine.
Most consumers feel confident in knowing what to do if they miss a dose of
their antihypertensive medicine.
E 20 The cost of my blood pressure medicines is a problem in continuing them. 39 23 38 50 18 32
The cost of antihypertensive medicines can cause a problem for most consumers
in continuing them.
E 8 I am sometimes influenced by my friends or family to stop taking medicines due to 21 30 49 89 6 5
their experiences.
Most consumers are sometimes influenced by friends or family to stop taking
medicines due to their experiences.

Categories: AFknowledge/understanding of the condition of hypertension, BFunderstanding of the medicine therapy, CFinformation-seeking
behaviour/needs, DFunderstanding of lifestyle contributors, EFadherence and review behaviours.

Discussion alone will produce behaviour change,29 leading to


over-reliance on one or two education strategies
A significant message of this study is that in almost only (eg a brief lecture), efforts too short to achieve
all the items (Table 3), consumers ranked the issue long-term behaviour change, and failure to under-
differently to health professionals. This finding is take a behavioural diagnosis to select appropriate
consistent with earlier applications of the PDS and educational strategies for particular indivi-
highlights that if interventions to assist consumers duals.18,30,31 To achieve long-lasting behavioural
were developed solely from a health professional modifications, educational activities lasting for
perspective, important issues to consumers could be prolonged periods and of a diverse nature are
missed.912,27,28 The PDS methodology was success- required.17,18 Although it has been found that
fully conducted in the Australian environment and education alone will not significantly increase
would be a transportable method for other groups compliance, some knowledge regarding the condi-
and for other countries to consider when seeking tion and reasons for treatment is necessary for
valuable insights into consumer perceptions and behaviour change.15,16 However, this knowledge
behaviour. should be carefully matched to that already pos-
Care should be taken, however, with extrapolation sessed by the individual and should be designed to
of these specific data. This was a convenience test or extend that knowledge, not merely to repeat
sample of voluntary participants, with an average known facts.
length of time taking medicine for hypertension of It is interesting that consumers tended to agree
11 years: a sample well experienced in the condition more that their therapy is planned and explained
and its treatment. Given that surveys were distrib- than health providers do. Consumers supported the
uted through pharmacies to people receiving anti- relevant health providers perceptions more than the
hypertensive medicine, the sampling technique will other health providers do. For example, consumers
also be biased to those who adhere to their medicine agreed with pharmacists that brand substitution is
treatment. It would be interesting to sample a group explained (nurses and doctors did not agree) and
more recently diagnosed, as this study showed that agreed with doctors that a planned approach to
those with less experience tended to be less certain medicines is undertaken and changes are adequately
of some aspects of hypertension and its treatment. explained (nurses and pharmacists did not agree).
However, any educational intervention would need These results suggest some interesting insights.
to be designed so as not to talk down to those who Among each of the provider groups, there is less
had knowledge about the condition and its con- confidence that others have performed these tasks.
sequences, as health professionals thought that This may demonstrate that there is relatively little
consumers had substantially less knowledge than information exchange between the provider groups
they actually reported. about planned approaches, including explanation
Patient education can sometimes have little im- to the consumer of changes to therapy. It may
pact on individuals owing to commonly held beliefs also indicate that the health providers do not take
of, and activities carried out by, health care account of the services provided to consumers by
providers. Assumptions include that education the other providers. Perhaps better interdisciplinary

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

403
communication and collaboration about the actions written information and a similar number thought
and plans implemented for individual consumers that information for their family would be useful.
might help to bridge this difference in perceptions. These results suggest that there are substantial
Using the general practitioner as a principal opportunities for providing further information to
health provider and utilizing the skills of other consumers and their families about hypertension
health providers (eg pharmacists and nurses), a and medicines. Extensive social support and educa-
comprehensive approach to treating and educating tion (usually given to the spouse) has been demon-
the consumer can be achieved.3234 Pharmacists can strated to improve the compliance behaviours and
monitor patients, work together with general practi- blood pressure control of hypertensive patients.4345
tioners to review all aspects of pharmacotherapy, The media was not perceived by many as a useful
and help the consumer individually by tailoring source of information, while only one-quarter of
regimens and educating on all components of consumers agreed that it was easier to get informa-
therapy including lifestyle changes.3538 Nurses can tion themselves rather than waiting for providers to
contribute to the health team by providing support supply it. This suggests that, despite the multiple
to the general practitioner, monitoring of blood information sources now available to consumers,
pressure and other aspects of therapy, providing there is clearly still a primary role for health
education to consumers individually, and forming providers to supply information. Unfortunately,
valuable links with social support networks in support groups were not recognized by consumers
families, workplaces and the greater community.39,40 as useful information resources. This could indicate
These results suggest opportunities for targeted the low penetration of awareness of these groups
information about interactions between blood pres- (only 1% of the consumers belonged to one),
sure medicines, OTC and especially herbal prepara- although the health providers agreed (50%) that
tions. In addition, a clear explanation of changes these would be useful. This suggests that providers
to therapy, including OTC and complementary are supportive of such information, but may have
medicines, is needed, including information ex- little knowledge of the extent of consumer involve-
change between providers. Consumers commencing ment in support groups. It could be helpful to
therapy for hypertension may benefit from ap- consumers if health providers could distribute
propriately targeted information about the risk/ information about these support groups.
benefits and potential interactions of antihypertensive For understanding lifestyle contributors, most
medication. consumers agreed that they understand how weight
While over half of the consumers reported that and diet affects their blood pressure, but while half
side effects are not a problem to them, 26% say they of the providers agree that consumers understand
are. Providers are almost universally in agreement the relation between weight and blood pressure,
with the statement that side effects can cause only one-third agree on consumer understanding of
problems; however, their question may have been the relation between diet and blood pressure. Half of
too generic as it is hard to disagree that side effects the consumers agreed that it is helpful for providers
can cause problems per se. The lower consumer to reinforce the need for lifestyle change, but less
score may indicate experienced consumers who than half agree that providers have helped them
have perhaps sorted out any adverse effects through achieve these changes. This indicates an opportu-
changes and adaptations. This analysis gains some nity for providers to help with these factors in a
support by examining the subsample of consumers strategic manner, with individualized behaviour
with 4 years or less time on hypertension medica- change approaches.
tion. For this group, side effects are more of a The literature shows that information, education
problem than for their more experienced peers. It and reinforcement can all contribute to effective
could also be that adverse effects are not being change, but these need to be delivered in targeted
recognized as such. It would be an ineffective use of and coordinated ways, based on the individual.46,47
resources, however, to base a whole campaign Care needs to be taken in utilizing social support
around the perception by health providers of side through fear tactics, for example, by emphasizing
effects as a major issue. There are more important catastrophic consequences of inadequate dietary
issues that consumers are concerned about. The compliance. There is often miniscule benefit and
highest median score in the survey by providers was occasional backfires for the patient, resulting in
that side effects can cause problems; however, the excess fault-finding and nagging.15,4850
ranking as a problem rated second lowest for Importantly for adherence and review behaviours,
consumers. The consumer results are consistent consumers overwhelmingly agreed that they have
with the literature on the relations between side enough assistance to remember to take, and feel
effects and adherence. For example, two separate confident in managing, their medicines. However,
studies found that only 7% of consumers indicated this significantly declines for the less experienced
that side effects were enough of a problem to group (see Results). Interestingly, provider agree-
discontinue therapy.41,42 ment with these items is lower in all cases.
With respect to information seeking, only half of Almost all consumers agree that they continue
the consumers felt they had received sufficient to take their medicines when asymptomatic, and

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

404
three-quarters of the providers agree that most literature. The results from administration of the
consumers do so. This is reassuring as this has been survey revealed significant differences in percep-
identified as one of the main reasons for stopping tions between experienced hypertensive consumers
therapy. However, this is a very different finding to and health care providers (doctors, pharmacists and
that reported in the literature. For example, one nurses). Interventions need to be developed that are
study found that almost 40% of all patients who had based on identified consumer opinions and issues,
dropped out of therapy did so because they felt together with the different perceptions of health care
good without using antihypertensive medications.41 providers.
Several studies reviewed by Garfield and Caro51
demonstrated that the asymptomatic nature of
hypertension is still one of the most significant
causes of noncompliance. A possible explanation Acknowledgement
for the consumer results is the sample bias towards
long-term medicine users recruited though pharma- We thank the consumers and health professionals
cies. However, the provider result suggests either a who participated in the Advisory Panel and con-
very different adherence pattern in the community, tributed to the Focus Groups. The financial assis-
or a low understanding of how the asymptomatic tance of a grant (AUD$ 30,000) from Queensland
nature of hypertension influences adherence. Health (Public Health Services) for this Quality Use
Consumers and providers disagree that consumers of Medicines project is also appreciated.
are confident in knowing what to do if they miss a
hypertension medicine dose, with three-quarters of
consumers saying they are confident and only 10%
of providers agreeing. Almost 20% of this ex- References
perienced sample of consumers say they do not
know what to do if they miss a doseFa potential 1 Australian Pharmaceutical Advisory Council. National
Medicines Policy. Commonwealth of Australia, Depart-
problem in the trend to single daily dose regimens,
ment of Health and Aged Care: Canberra, 2000.
and a demonstrated need for better medicines 2 Roughead EE, Monteith GR, Harvey KJ, Tett SE.
information. Evaluating Australias National Medicines Policy using
Over 30% of consumers agree that medicine cost geographical mapping. Int Med J 2002; 32: 6671.
is a problem in continuing therapy; a similar 3 Ratanawijitrasin S, Soumerai SB, Weerasuriya K. Do
number of providers agree. This is a concern as this national medicinal drug policies and essential drug
could be another reason for stopping therapy. programs improve drug use? A review of experiences
Previous research has found that 12% of people in developing countries. Soc Sci Med 2001; 53:
discontinued antihypertensive medications because 831844.
of cost, and another group found this figure to be 4 Edmonds DJ et al. Development of an Australian drug
utilisation database: a report from the Drug Utilization
2%.41,42 Again, this needs further investigation in a Subcommittee of the Pharmaceutical Benefits
group of patients commencing antihypertensive Advisory Committee. Pharmacoeconomics 1993; 3:
therapy. 427432.
Consumers do not agree that they are sometimes 5 Cockburn J, Pit S. Prescribing behaviour in clinical
influenced by the experiences of friends or family to practice: patients expectations and doctors percep-
discontinue their medicines. They are very clear tions of patients expectations a questionnaire study.
about this, and this is significantly different from the BMJ 1997; 315: 520523.
view of the health providers, who agree that 6 Davis JJ. Riskier than we think? The relationship
consumers are influenced by friends/family experi- between risk statement completeness and perceptions
ences and stop taking their medicines. This was the of direct to consumer advertised prescription drugs.
J Health Commun 2000; 5: 349369.
item with which consumers agreed least and may
7 Schommer JC, Doucette WR, Worley MM. Processing
again reflect aspects of sample bias toward experi- prescription drug information under different condi-
enced, adherent medicine users. It may be that for tions of presentation. Patient Educ Couns 2001; 43:
these consumers their family and friends are 4959.
supportive of therapy, and this social support would 8 Carter-Edwards L, Bynoe MJ, Svetkey LP. Knowledge of
be consistent with the overall reported adherence of diet and blood pressure among African Americans: use
the group. of focus groups for questionnaire development. Ethnic
Dis 1998; 8: 184197.
9 Montgomery AA, Fahey T. How do patients treatment
preferences compare with those of clinicians?. Qual
Conclusions Health Care 2001; 10(Suppl 1): i39i43.
10 Hammarstrom B, Wessling A, Nilsson JL. Pharmaceu-
In this PDS, a questionnaire was successfully tical care for patients with skin diseases: a campaign
developed to compare consumer attitudes and year at Swedish pharmacies. J Clin Pharm Ther 1995;
knowledge about hypertension to those of health 20: 327334.
providers. The survey was developed from focus 11 Lisper B, Nilsson JLG. The asthma year in Swedish
group information as well as from data in the pharmacies. Ann Pharmacother 1996; 30: 455459.

Journal of Human Hypertension


PDS to investigate consumer views
AH Wade et al

405
12 Rosenqvist U, Hoglund A, Nilsson JLG. Diabetes mass 31 Sclar DA et al. Effect of health education in promoting
education for patients, their educators and the general prescription refill compliance among patients with
public by the pharmacies of Sweden. Drug Info J 1995; hypertension. Clin Ther 1991; 13: 489495.
29: 609616. 32 Harris L, Carruthers-Czyzewski P. The pharmacists
13 Consumer Focus Collaboration. Feedback, Participa- role in controlling hypertension. Can Pharma J 1981;
tion and Consumer Diversity: A Literature Review. 114: 4648.
Canberra: Commonwealth Department of Health and 33 Garrity TF, Garrity AR. The nature and efficacy of
Aged Care, 2000. intervention studies in the National High Blood
14 Draper MaHS. The Role of Patient Satisfaction Surveys Pressure Education Research Program. J Hypertens
in a National Approach to Hospital Quality Manage- Suppl 1985; 3: S91S95.
ment. Australian Government Publishing Service 34 Gardner SF, Schneider EF. 24-Hour ambulatory blood
Canberra, 1995, p. 102. pressure monitoring in primary care. J Am Board Fam
15 Kirscht JP, Roesenstock IM. Patient adherence to Pract 2001; 14: 166171.
antihypertensive medical regimens. J Commun Health 35 McKenney JM, Brown ED, Necsary R, Reavis L. Effect
1977; 3: 115124. of pharmacist drug monitoring and patient education
16 Sackett DL, et al. Randomised clinical trial of strategies on hypertensive patients. Contemp Pharm Pract 1978;
for improving medication compliance in primary 1: 5056.
hypertension. Lancet 1975; 31 May: 12051207. 36 Erickson SR, Slaughter MS, Halapy H. Pharmacists
17 Devine E, Reifschneider E. A meta-analysis of the ability to influence outcomes of hypertension therapy.
effects of psycho-educational care in adults with Pharmacotherapy 1997; 17: 140147.
hypertension. Nurs Res 1995; 44: 237243. 37 Mehos BM, Saseen JJ, MacLaughlin EJ. Effect of
18 Glanz K, Kirscht JP, Rosenstock IM. Linking research pharmacist intervention and initiation of home blood
and practice in patient education for hypertension. pressure monitoring in patients with uncontrolled
Med Care 1981; 19: 141152. hypertension. Pharmacotherapy 2000; 20: 13841389.
19 Simpson SH, Farris KB, Johnson JA, Tsuyuki RT. Using 38 Berger BA et al. Effectiveness of an educational
focus groups to identify barriers to drug use in patients program to teach pharmacists to counsel hypertensive
with congestive heart failure. Pharmacotherapy 2000; patients and influence treatment adherence. J Pharma
20: 823829. Market Manage 1990; 5: 2741.
20 Bennett SA, Magnus P. Trends in cardiovascular risk 39 Soghikian K. The role of nurse practioners in hyper-
factors in Australia: Results from the National Heart tension care. Clin Sci Mol Med 1978; 55: 345s348s.
Foundations risk factor prevalence study. Med J Aust 40 Eaton LE, Buck EA, Cantanzaro JE. The nurses role in
1994; 161: 519527. facilitating compliance in clients with hypertension.
21 National Health Priority Areas Report. Cardiovascular Medsurg Nurs 1996; 5: 339345.
health. A report on heart, stroke and vascular disease. 41 Cummings KM, Kirscht JP, Binder LR, Godley AJ.
Summary 1998. Commonwealth Department of Health Determinants of drug treatment maintenance among
and Aged Care and Australian Institute of Health and hypertensive persons in inner city Detroit. Public
Welfare: Canberra, 1999, Report No.: AIHW Cat. No. Health Rep 1982; 97: 99106.
PHE 12. 42 Levine DM et al. The physicians role in improving
22 Australian Bureau of Statistics. Cause of Death in patient outcome in high blood pressure control. Md
Australia 1999. Canberra: Australian Bureau of Statis- State Med J 1983; 32: 291293.
tics; 2000. Report No.: Catalogue Number: 3303.0. 43 Morisky DE et al. Five-year blood pressure control and
23 Australian Institute of Health and Welfare. Cardio- mortality following health education. Am J Public
vascular Health. AIHW: Canberra; 2001. Health 1983; 73: 153162.
24 Britt H, Miller GC, Charles J. General practitioner 44 Kirscht JP, Kirscht JL, Rosenstock IM. A test of
activity in Australia 19992000. General Practitioner interventions to increase adherence to hypertensive
Statistics and Classification Unit, Australian Institute medical regimens. Health Educ Q 1981; 8: 261272.
for Health and Welfare: Canberra; 2001. 45 Earp JL, Ory MG, Strogatz DS. The effects of family
25 Stanton AL. Determinants of adherence to medical involvement and practitioner home visits on the
regimens by hypertensive patients. J Behav Med 1987; control of hypertension. Am J Public Health 1982; 72:
10: 377394. 11471153.
26 Hays RD et al. The impact of patient adherence on 46 Fishman T. The 90-second intervention: a patient
health outcomes for patients with chronic disease in compliance mediated technique to improve and
the Medical Outcomes Study. J Behav Med 1994; 17: control hypertension. Public Health Rep 1995; 110:
347360. 173178.
27 Steel N. Thresholds for taking antihypertensive drugs 47 Rimer BK, Glanz K, Lerman C. Contributions of public
in different professional and lay groups: questionnaire health to patient compliance. J Commun Health 1991;
survey. BMJ 2000; 7247: 14461447. 16: 225240.
28 Horne R, Weinman J. Patients beliefs about prescribed 48 Rudd P. Clinicians and patients with hypertension:
medicines and their role in adherence to treatment in unsettled issues about compliance. Am Heart J 1995;
chronic physical illness. J Psychosom Res 1999; 47: 130: 572579.
555567. 49 Doherty WJ, Schrott HG, Metcalf L, Iasiello-Vailas L.
29 Morisky DE, Bowler MH, Finlay JS. An educational Effect of spouse support and health beliefs on medica-
and behavioural approach toward increasing patient tion adherence. J Fam Pract 1983; 17: 837841.
activation in hypertension management. J Commun 50 Robbins J. What can physicians do to improve patient
Health 1982; 7: 171182. compliance. Med Interface 1994; 7: 6365.
30 Kawachi I, Wilson N. The evolution of anti-hyperten- 51 Garfield FB, Caro JJ. Compliance and hypertension.
sive therapy. Soc Sci Med 1990; 31: 12391243. Curr Hypertens Rep 1999; 1: 502506.

Journal of Human Hypertension

You might also like