RARE DISEASE DAY

SAMPLE FUNDRAISING LETTER

Dear (NAME),

February 28th marks Rare Disease Day 2017 and I am choosing to raise awareness and funds for the
Pulmonary Fibrosis Foundation. Rare Disease Day is a unique opportunity to bring attention to diseases
that are not well known to the general public and decision makers. People living with rare diseases, like
pulmonary fibrosis, have tremendous unmet needs including, misdiagnosis and limited treatment options.
(take a few sentences to share your story and connection to pulmonary fibrosis. How have you or your
family been affected by pulmonary fibrosis? Why is this cause important to you? This is your opportunity
to educate your donors on the disease and the Foundation.)

Pulmonary Fibrosis (PF) is a rare disease, meaning it affects less than 200,000 people in the USA, in
which lung tissue becomes thickened, stiff and scarred. As the lung tissue becomes scarred and grows
thicker, the lungs lose their ability to transfer oxygen into the bloodstream making everyday activities,
like breathing and walking extremely difficult.

It is a progressive disease that worsens over time. (Consider adding addition information on your
experience with the disease or you can use the standard language enclosed) Every individual diagnosed
with pulmonary fibrosis has a unique experience with the disease and there is no standard or expected
clinical course. Some people with PF remain stable for extended periods of time, others experience a
stepwise deterioration over time, fluctuating between periods of stability and worsening symptoms and a
number may experience a rapid progression of symptoms. PF treatment strategies are highly
individualized, based on a persons medical history.

With no known cure, the disease is often fatal within three to five years of diagnosis and 40,000
people lose their battle to pulmonary fibrosis each year.

The Pulmonary Fibrosis Foundation (PFF) mobilizes people and resources to provide access to high
quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier
lives. Two FDA- approved drugs are now on the market (Esbriet, Ofev) for idiopathic pulmonary
fibrosis (IPF), and an additional 30 drugs are in clinical trials worldwide. In honor of Rare Disease
Day, I encourage you to make a contribution to my fundraising efforts so we can accelerate the mission of
the PFF forward.

Progress in the fight against PF is being made, but your support is essentials to continue our efforts.

I imagine a world without pulmonary fibrosis. Thank you for helping me lead the way!

(Signature)