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1985 Long-Term Adjustment To Physical Disability - The Role of Social Support, Perceived Control, and Self-Blame
1985 Long-Term Adjustment To Physical Disability - The Role of Social Support, Perceived Control, and Self-Blame
One of the mainstays of social psychological just-world theory (Lerner, 1971), and sev-
research in the last two decades has been the eral attribution-based approaches (Harvey &
investigation of individuals' reactions and Weary, 1981; Kelley, 1971; Shaver, 1970;
adjustment to stressful or unpleasant events. Taylor, Lichtman, & Wood, 1984; Walster,
This topic has been pursued both in the 1966). More recently, social comparison pro-
laboratory and in the field (see Silver & cesses (Taylor, Wood, & Lichtman, 1983;
Wortman, 1980, for a comprehensive review), Wills, 1983) and social support (Cobb, 1976;
and the results of these efforts have yielded Cohen & Syme, 1985; Fleming, Baum, Gis-
important theoretical insights as well as an riel, & Gatchel, 1982; Gore, 1981) as media-
improved understanding of practical problems tors of stress-related outcomes have captured
faced by individuals confronted with major the interest of social psychologists.
catastrophic events. Because the major interest among re-
The types of events investigated have ranged searchers in this area has been on the process
from laboratory stressors, such as electric of coping with undesirable life events, data
shock and failure on a variety of problem- collection efforts have been focused on that
solving tasks, to major life events, such as period of time immediately following the
rape, job loss, and physical disease (e.g., event. As a result, we have learned a great
cancer, spinal cord injury, heart disease). The deal about individuals' attitudes, feelings, and
theoretical perspective brought to bear on the coping mechanisms they use during the
these topics include learned-helplessness the- period of time when the level of experienced
ory (Abramson, Seligman, & Teasdale, 1978; stress is likely to be high. A good example of
Seligman, 1975; Wortman & Brehm, 1975), this approach is Bulman and Wortman's
(1977) study, in which 29 spinal-cord-injured
This research was made possible by a grant from the victims were interviewed within 12 months
American Association of Retired Persons Andrus Foun- of the occurrence of the injury. Bulman and
dation.
Requests for reprints should be sent to Richard Schulz,
Wortman found that victims who "blamed
I6I7-E Cathedral of Learning, University of Pittsburgh, themselves and who did not feel that they
Pittsburgh, Pennsylvania 15260. could have avoided the accident were more
LONG-TERM ADJUSTMENT TO PHYSICAL DISABILITY 1163
likely to be good copers than poor copers," derly spinal-cord-injured persons? We hy-
whereas the reverse was true for those who pothesized that reported well-being and life
"placed little blame on themselves and felt satisfaction are highest and depression is low-
that they could have avoided the accident" est among persons who report high levels of
(p. 357). Taylor's (1983) recent work on the perceived control, make positive social com-
cognitive adaptation of cancer patients simi- parisons, and have high levels of social sup-
larly focused on individuals' efforts to cope port.
with cancer shortly after they receive the 2. How are self-blame and the perceived
diagnosis. These studies do not tell us, though, avoidability of the spinal cord injury related
whether short-term coping mechanisms are to adjustment in this population? According
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
effective in the long runsay, years after the to Bulman and Wortman (1977), individuals
This document is copyrighted by the American Psychological Association or one of its allied publishers.
event has occurred. who blame themselves cope better than those
From both theoretical and practical points who do not; on the other hand, Taylor et al.
of view, it is important to know whether (1984) found little support for this relation
correlates of successful coping at one time in their sample of breast cancer patients. The
are the same as correlates of coping years authors of both studies suggested that this
after the tragedy has occurred (Monat & relation may be mediated by time, occurring
Lazarus, 1977). For example, issues of blame relatively late in the adjustment process. Be-
may be important in the short run when the cause our sample was interviewed at least 5
event is salient but irrelevant 10 or 20 years years after the injury, we predicted a positive
later. One could best answer these questions relation between self-blame and adjustment.
by following longitudinally a population of 3. How do levels of life satisfaction, well-
victims for several years after the crisis event being, and depression among spinal-cord-
has occurred. However, such a study would injured persons compare with levels reported
be very expensive and time consuming. One by noninjured populations of similar age?
alternative to the longitudinal approach would One of the recurring challenges of doing
be to investigate cross-sectionally the corre- research on individuals who undergo non-
lates of coping in populations exposed to the normative life crises (Schulz & Rau, 1985)
same crisis event but who vary in the temporal concerns the definition and measurement of
distance from that event. adjustment. For example, neither Bulman
Our study is based on data collected from and Wortman (1977) nor Taylor et al. (1984)
100 middle-aged and elderly spinal-cord-in- were able to identify appropriate control
jured persons who were interviewed an aver- groups against which the functioning of
age of 20 years after the injury occurred. In spinal-cord-injured victims or of cancer vic-
order to compare the responses of our subjects tims can be compared. As a result, evaluations
with the data reported by Bulman and Wort- of adjustment are often based on the assess-
man (1977), and by Taylor et al. (1984), ment of health care professionals who work
some of the questions used in their studies with these individuals. One of the advantages
were administered in this one. In addition, of using standardized instruments to assess
we asked a large number of questions relevant adjustment is that we are able to compare
to the theoretical domains of perceived con- the responses of the spinal-cord-injured to
trol, social comparison theory, and social existing data for noninjured populations of
support. We assessed adjustment in our pop- similar age. On the basis of the literature
ulation by administering three standardized concerning elderly individuals' ability to adapt
instruments measuring levels of psychological to adverse life circumstances (Schulz, 1982),
well-being, life satisfaction, and depression. we predict little difference in reported well-
The following specific questions and hy- being between disabled and nondisabled pop-
potheses were addressed in this study: ulations.
1. How important are perceived control, Method
the nature of inter- and intraindividual com-
parisons, and social support as determinants Respondents
of psychological well-being, life satisfaction, The sample consisted of 100 spinal-cord-injured persons
and depression among middle-aged and el- living in noninstitutional community settings. Criteria
1164 RICHARD SCHULZ AND SUSAN DECKER
for inclusion in the study were the presence of paraplegia Research Instrument
or quadriplegia, an age of 40 or over, the absence of a
progressively deteriorating disease state, and agreement Six major categories of data were collected for this
to participate. We located respondents through agencies study: demographic, health status, social network/support,
and institutions working with spinal-cord-injured persons, social comparisons, control/attributions, and subjective
namely, the Portland Veterans Administration Medical well-being. The last category constituted the primary
Center, the Oregon Paralyzed Veterans Association, and outcome measure of the study and included three stan-
the Oregon Trail Chapter of the National Spinal Cord dardized instruments used to assess psychological well-
Injury Association. Locating respondents proved to be being, depression, and life satisfaction. To avoid dupli-
time consuming and difficult, requiring approximately 9 cation, detailed descriptions of the instruments and ques-
months. A total of 106 individuals were approached as tions used in this study are presented in the Results
possible participants in the study. Four persons declined section.
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
When asked to rate their health status on (frequently) whether a particular support per-
a 5-point Likert-type scale, the greatest per- son "assists with things such as cleaning,
centage (34%) of subjects described their cur- shopping, transportation, repairs or loaning
rent health status as moderate (3); 7% per- money." We obtained a total social support
ceived their health as poor ( I ) , 18% as fair score by adding the ratings on the 11 items
(2), 30% as good (4), and 11% as excellent for each of the individuals identified. This
(5). Fifty-seven percent of the subjects indi- score could range from 0 (no support) to 275
cated they had no chronic health problems (very frequent support) from five persons on
other than their spinal cord injury. Among all 11 items. Cronbach's alphas were calcu-
the chronic health problems identified by the lated for the total social support scale (a =
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
remaining 43% were the following: hyperten- .90), and for the subscales measuring instru-
This document is copyrighted by the American Psychological Association or one of its allied publishers.
sion, kidney infection and disease, hypoten- mental support (a = .81), affective support
sion, diabetes, arthritis, emphysema, and a (a = .96), and cognitive support (a = .95).
variety of cardiovascular problems. Many of Because the intercorrelations among the sub-
the chronic health problems identified are scales were all very high (r& > .80), the total
typically associated with spinal cord injury, score was used in the multiple regression
particularly renal disease and related hyper- analysis to be reported. The total social sup-
tension (Gunby, 1981). Thirty-five percent of port scores for this sample ranged from 0 to
the respondents had been hospitalized in the 247, with a mean of 92.
last year for periods of time ranging from Finally, respondents were asked how satis-
less than a week to slightly over a month. fied they were with their relationships with
We constructed an index that was based support persons, and a large majority (90%)
on the 9 items indicating the degree of assis- reported feeling extremely satisfied. Subjects
tance required in the activities of daily living. were also asked how satisfied they were with
A reliability analysis of subjects' responses to the amount and quality of the social contact
these items showed them to have a high level they had with others in general. For both
of internal consistency (Cronbach's alpha = questions, approximately 70% indicated high
.94). As expected, the relation between level satisfaction, 20% moderate satisfaction, and
of spinal cord injury and ADL was significant 10% low satisfaction. The correlation between
(r=.51). the total social support score and the questions
assessing the amount (r = .22) and quality
Social Network/Support (r ~ .25) of social contact with others were
only moderate. This is not surprising, given
The mean number of support persons the fact that the total social support score is
identified was 2.3, the mode 1. Spouses and based on a few specifically named individuals,
children were the most important sources of whereas the social contact questions are based
support. Of the 231 support persons identified on a broader range of relationships.
by the sample, only 11 were disabled. Contact
with support persons was very frequent; 84%
Social Comparisons
reported that contact occurred "several times
a week or daily." Subjects were also asked with whom they
To quantify perceived social support, we compared themselves "to decide how good
asked each subject to name up to five persons their life situation was." Respondents had
who were important sources of help, support, difficulty responding to this question, stating
and guidance. After identifying these persons, that they did not compare themselves with
subjects were asked to indicate on 11 Likert- other people. The interviewer then explained
type scales how much each person helped that "we all compare outselves with others
them. The 11 scales were designed to measure even though we're not always aware of it"
instrumental, affective, and cognitive support and repeated the question. On the basis of
(Schaefer, Coyne, & Lazarus, 1981). For ex- Taylor's (1983) recent analysis, we expected
ample, one of the items measuring instru- that respondents would report downward
mental support required subjects to indicate comparisons, but this was not the case. Only
on a 5-point scale from 1 (not at all) to 5 25% of the respondents said that they com-
1166 RICHARD SCHULZ AND SUSAN DECKER
pared themselves with other disabled persons. causing the disability. The majority (57%) of
Sixteen percent said they compared them- persons in this study did not blame themselves
selves with nondisabled persons, and 59% at all for causing their disability; 4% blamed
said they didn't compare themselves with themselves only slightly, 9% moderately, 9%
any particular group of persons, "just people somewhat, and 21% very much. Those who
in general." Moreover, choice of comparison did blame themselves gave examples such as
person was not significantly related to any of carelessness resulting in a vehicular accident
the well-being measures. or failure to take a polio vaccine.
To assess the favorable/unfavorable nature Only 19% felt they could have completely
of the inter- and intrapersonal comparisons avoided the disability; the majority (56%) felt
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
made by this group, we constructed an index there was nothing they could have done to
This document is copyrighted by the American Psychological Association or one of its allied publishers.
consisting of five Likert-type items. Respon- avoid the disability. As would be expected,
dents rated how good their current life situ- those who blamed themselves tended to be
ation was in comparison with those of "most those who felt they could have avoided the
people," "others the same age," and "others disability (r = .72).
with a similar disability," and in comparison Respondents were also asked, "Considering
with "their life before the disability" and the best and worst things that could happen
with what it "would be like without their to you in your lifetime, where does your
disability." The internal consistency of these disability fit?" On a scale ranging from 1
items was high (a .80). The possible range (worst that could happen) to 5 (best that could
of scores for this index was between 5 and happen), the mean response was 2.2. This
25, with higher scores indicating more favor- question was followed by a similar one, asking
able comparisons. The mean and median if there had been "any purpose or positive
scores for this sample were 14.9 and 14.7, meaning that your disability has had in your
respectively. For the three items requiring life?" Sixty-four-percent of the subjects re-
comparisons with other persons, the mean sponded yes. The most frequently mentioned
response was on the favorable side of the types of meaning were those related to per-
midpoint. For responses based on intraper- sonal growth such as "increased awareness of
sonal comparisons, the mean response was self," "becoming a better person," "value
on the unfavorable side of the midpoint. change," and "seeing other people as more
important." Less frequently mentioned re-
Control/A ttributions sponses included statements concerning "pa-
tience and tolerance," "being more careful,"
We constructed an index consisting of five "using my head versus brawn," "increased
Likert-type items to measure perceived con- importance of God," and "acquiring new
trol over various life circumstances. Using a skills and hobbies."
scale ranging from 1 (not at all) to 5 (com-
pletely), subjects indicated the degree of con- Subjective Well-Being
trol they had to "achieve or obtain what is
important to you," "make your interactions Index of Psychological Weil-Being (IPWB).
with others end up the way you expect them This is one of three measures of adjustment
to," "cope successfully when stressed," "solve used in this study. Developed by Berkman
problems," and "view the good things that (1971), this 8-item self-report scale was de-
happen to you as a result of your own signed to measure mental health in adult
actions." Reliability analysis of the responses populations. The scale comprises both nega-
to this scale resulted in a Cronbach's alpha tive and positive feeling-state items and yields
of .81. The possible range of scores was a score describing the relative strength of an
between 0 and 25. The mean score for this individual's positive and negative feelings.
group was 19.7, indicating generally high The items in this scale were taken from a
levels of perceived control. larger instrument used by Bradburn and Ca-
Subjects were also asked whether they felt plovits (1965) to measure psychological well-
they could have avoided incurring the dis- being in their studies of happiness. The cri-
ability and what factor(s) they blamed for terion validity of the scale is supported by
LONG-TERM ADJUSTMENT TO PHYSICAL DISABILITY 1167
r = -.73; for IPWB with CES-D, r = .62; amount and quality of social contact, and
and for LSIA-A with CES-D, r = -.69. The perception of the disability. As illustrated in
major correlates of each of these measures of Table 5, the combination of all variables
well-being are presented in Table 4. These entered accounted for 49% of the variance in
correlations are consistent with our predic- scores on the IPWB, 58% of the variance in
tions and with much of social psychological scores on the LSIA-A, and 50% of the variance
theory concerning the importance of perceived in scores on the CES-D.
control and social support. Variables related The major predictors of scores on the
to these constructs consistently appear near IPWB were self-reported health status, per-
the top of the list for each of the well-being ceived control, social support, and satisfaction
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
Multiple linear regression analyses were results emerged when we used the LSIA-A as
carried out for each of the three measures of an outcome measure. In addition to the
subjective well-being. Because there exists a variables identified for the IPWB, perception
large literature indicating that health status of the disability emerged as a significant
and income are the major predictors of well- predictor of the score on the LSIA-A. The
being in middle-aged and older populations major predictors of depression (CES-D) were
(Schulz, 1982), these variables were entered health status, perceived control, social sup-
first in the regression analysis in order to port, and satisfaction with social contacts.
control for their contribution to reported The final analysis was aimed at examining
well-being. On the basis of both the correla- the relation of the three measures of well-
tions reported earlier and our theoretical being to current age, age at which the dis-
interests, the following variables were entered ability occurred, self-blame for the disability,
in the third step of the regression analysis: and the perceived avoidability of the disability.
control, social support, satisfaction with the The correlations for this analysis are presented
Table 5
Multiple Linear Regression of Three Outcome Variables on Predictor Variables
Note. IPWB = Index of Psychological Well-Being; LSIA-A = Life Satisfaction Index-A; CES-D = Center for Epidemiologic
Studies-Depression Scale.
* "Considering the best and worst things that could happen to you in your lifetime, where does your disability fit?"
(Responses ranged from 1 = worst that amid happen to 5 = best that could happen.)
*p<.05. *'/><.01.
1170 RICHARD SCHULZ AND SUSAN DECKER
in Table 6. The data indicate that there is a live of adjustment after health and income
tendency for persons to report higher levels are controlled. Although findings are highly
of well-being if they are currently younger in consistent with current social-psychological
age, incurred their disability at a younger perspectives on the importance of perceived
age, blame themselves for their disability, and control (Schulz & Hanusa, 1980) and social
feel that they could have avoided the disability. support (Cohen & Syme, 1985) as mediators
The findings regarding self-blame and the of subjective well-being, it is unfortunately
perceived avoidability of the disability are not possible to derive causal conclusions from
interesting in light of Bulman and Wortman's these cross-sectional data.
(1977) results, which indicate that victims A second feature of these data is that self-
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
who coped best blamed themselves but felt blame and the perceived avoidability of the
This document is copyrighted by the American Psychological Association or one of its allied publishers.
the injury was unavoidable. In this study, the disability play a relatively minor role as de-
better copers blamed themselves and felt the terminants of well-being. Whereas the corre-
disability was avoidable. Indeed, self-blame lations between self-blame and coping were
and perceived avoidability were highly cor- relatively high (r = .65) in the Bulman and
related (r = .72). Wortman (1977) study, they were of much
smaller magnitude in this study (e.g., r = .23
Discussion for self-blame and life satisfaction). Moreover,
self-blame and perceived avoidability were
Despite the presence of a major disability, correlated moderately at best in the Bulman
the subjects in this study reported a mean and Wortman study, but were highly positively
degree of well-being that was only slightly correlated in this study. There are several
lower than that of other nondisabled adult possible reasons for these differences.
populations. This is remarkable, given the The first and most salient distinction be-
magnitude of the disabilities involved, but tween the two studies is the age differences
not inconsistent with other data suggesting between the two samples of respondents.
that most elderly individuals have an extraor- Subjects in the Bulman and Wortman (1977)
dinary ability to adapt to extremely adverse study were relatively young and had incurred
circumstances (Schulz, 1982). Moreover, the their injury within 12 months before the
data collected in this study suggest mecha- interview. Subjects in this study were middle-
nisms through which this may be achieved. aged and older and had lived with their
Persons who had high levels of social support, disability for many years. It would not be
were satisfied with their social contacts, and surprising to find, as our data suggest, that
felt that they had high levels of control re- the circumstances surrounding the occurrence
ported high levels of well-being. It is important of the disability become less important 10
to appreciate that these variables are predic- and 20 years later; what does matter is the
immediate situation, the friends one has, and
Table 6 the resources one can command. The passage
Pearson Correlation Coefficients for Four of time may substantially blur the relations
Variables and Three Measures of Weil-Being among blame, avoidability, and well-being.
The two studies also differed in three other
IPWB LSIA-A CES-D
important ways. The causes of the spinal
Variable r r r
cord injury were accidents for all subjects in
P< P< P<
the Bulman and Wortman (1977) study,
Curent age .18 .04 -.21 .02 .18 .03 whereas some of our subjects were the victims
Age at of diseases such as polio. The outcome mea-
injury .18 .04 -.25 .006 .14 .09
sures differed as well. Bulman and Wortman
Blaming self -.13 .10 .23 .01 -.25 .006
Avoidability used a coping scale that was based on subjects'
of disabil- attitude toward their injury and their moti-
ity -.17 .05 .23 .01 -.22 .02 vation to participate in physical therapy. Such
Note. IPWB = Index of Psychological Weil-Being;
an instrument was obviously inappropriate
LSIA-A = Life Satisfaction Index-A; CES-D = Center for for our population, and we therefore used
Epidemiologic StudiesDepression Scale. standardized instruments designed to assess
LONG-TERM ADJUSTMENT TO PHYSICAL DISABILITY 1171
well-being and depression. The advantage of adaptation processes with data describing the
the latter approach is that data for our subjects successfully long-term adapted individual.
could be compared with existing population Finding this link should be a high priority in
norms. Finally, there are substantial differ- future research in this area.
ences in the sample sizes used in the two
studies. Bulman and Wortman interviewed References
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