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Erica Endris
ENG 111_44
Prof. Intawiwat
11 April 2017
Most people are unaware that less than 4% of funds donated to cancer organizations will
go towards pediatric cancer research thats why its so important to bring awareness to those who
are unaware of the world of pediatric cancer. The Amazing Grace Foundation is a nonprofit
organization that was set up to help fund treatments needed for children diagnosed with cancer
and their familys expenses. Proceeds that are donated to the foundation will also go towards all
pediatric cancer research in hopes of finding new treatments that are less harmful and more
effective, as well as helping a childs wish come true, through the Make-A-Wish Foundation.
100% of all proceeds go to the designated organizations and persons, all donations are tax
The Amazing Grace Foundation was started at Grace Haynes request, and in her honor, to
help those who are facing the same situation as herself and her family. Grace was a twelve-year-
old girl who was diagnosed with a rare bone cancer, osteosarcoma, on March 26th, 2014. Graces
mother Yvonne Nagle is the president of The Amazing Grace Foundation and the board members
consist of Sean Nagle, Graces stepfather, Lee Haynes, Graces father, and George Calbo who is
the treasurer of the foundation and a non-voting board member. Board meetings are held
quarterly and all final decisions are based off a majority vote. The president nor board members
receive a salary and are based on a volunteer basis only. The board meeting is done through
skype where the three of them discuss new ways of raising money for the foundation. One of
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which is to hold an auction, the idea was presented to auction off a pair of cleats given to Grace
from Thomas Davis, a Carolina Panther player, as well as some other Carolina Panther
memorabilia that was given to Grace while she was undergoing her treatments.
To date, $30,000 has been raised through donations and fundraisers; such as KIC5K,
which is held annually in October at Grand Oak Elementary in Huntersville NC. Partner 204
North located on N Tryon St. in Charlotte NC, named a cocktail after the foundation named The
Amazing Grace, for each cocktail that is purchased 204 North donates a dollar to The Amazing
Grace Foundation. For those who may be interested in donating to the foundation or getting
TheAmazingGraceFoundation.org
Grace and Larry Monaco started the first support group in 1968 for parents with children
who were battling cancer as they were, later they would officially form a foundation named the
Candlelighters, now known as the American Childhood Cancer Organization. The parenting
meetings would later involve a team of professionals as well as doctors and nursing staff treating
their children at the Childrens National Medical Center. Meetings would be held in parent
waiting rooms or other available spaces they could find to discuss ways of improving the child's
situation. From the original group of parents, it was Bev and Bob McGaughy who suggested
clinical trails and appropriations for childhood cancer research. These group of parents, as well
as those involved in the meetings, helped to change childhood cancer through the success of
starting the Diet Cancer and Nutrition Program as well as building a team of professional
volunteers, giving free advice to families. The Candelighters continued to grow and by 1980 the
Lucys Love Bus provides resources for organizations to families, that are dedicated to
the cause of childhood cancer and other life-threatening illnesses, along with organizations that
support their families. Some of which are; Team Impact a nonprofit organization, outside of
funding children who have received treatments or extended stays in hospitals, partner with local
sports teams to teach team-building skills with the help through encouragement and support.
Courageous Parents Network is a support group where parents can come together to learn coping
mechanism that will help them through their child's personal journey. Maxlove Project is
nonprofit, providing families with a whole-body wellness program. Andrews Helpful Hands
support families through the Bone Marrow Transplant process. Little Kidz Foundation is geared
to infants providing them massages. Over the years medical professionals have come to the
awareness and understanding that families can not meet the financial burden and stress that
awaits them when their child has been diagnosed with cancer and other life-threatening illnesses.
Foundations and support groups have become a part of the regiment to help families during these
trying time.
Make-A-Wish started in 1980 with a 7-year-old boy named Chris Greicius who was
battling leukemia. It was his wish of wanting to become a policeman that inspired others to get
involved to make his wish come true and from there, one child's wish has led this foundation to
grow into the worlds largest wish-granting organization. Make-A-Wish gives a child something
to look forward to, giving them that extra boost of energy and strength they need to fight their
battle. Though the possibilities are endless for a child's wish, under certain circumstances some
wishes do have restrictions that are based on various factors that relate to the wish request and
St. Jude was founded in 1955 by Danny Thomas, the most well-known children's
research hospital in the world, providing care for children with pediatric cancer and other life-
threatening diseases. St. Jude provides ongoing studies for new treatments to patients who are
eligible to receive them. Families who do not have insurance will be provided free care, and for
those that do, are not asked to pay more than what their insurance covers. For families that travel
or may need to stay for an extended time due to their child's illness, St. Jude will provide the
patient and one parent a room or apartment provided by St. Jude Houses, like the Ronald
Mcdonald House, Target House, or the Memphis Grizzlies House. Events are held throughout the
year that helps fund the research at St. Jude. Though the cause of childhood cancer is unknown,
by donating, opens the door for new studies that could potentially lead to finding a cure.
The Amazing Grace Foundation and organizations alike have come to be, due to the
personal impact it has had on individual families. The founder's sole purpose of The Amazing
Grace Foundation is to bring hope and a brighter future for those who will embark on this
journey. Every person can make a difference by involving themselves in any one of the
organizations that are out there to help fight against childhood diseases.
www.acco.org
American childhood Cancer Organization ACCO
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www.lucyslovebus.org
Resources for families of children with cancer-
Lucys Love Bus
Lucys Love Bus > what-we-do > resources
https://www.worldwish.org
Make-A-Wish International: Home page
https://www.thetruth365.org>mission
The Plan-The Truth 365