TRANSPLANT NEWS
A k r o n - C a n t o n Tr a n s p l a n t R e c i p i e n t s
July Meeting
Our meeting will be July 20th at
North Canton Medical Foundation
Education Building A
6046 Whipple Ave. N.W.
North Canton
6:30p.m. - 8:30 p.m.
Meeting will commence at 6:30
with a meal followed by any
announcements and/or
pertinent information.
Speaker:
TOM SWOPE (?) from
Wayne County Hospice
will discuss options
for us if we get terribly
sick or if we need
accommodations
at that time.
Meeting will close with a
round table discussion.
We hope you will attend if at
all possible.
1
HARTVILLE
FLEA MARKET RESULT
June 19th & 21st
We very much appreciate
Bruce Blanke of
Hartville Market Place
for allowing
Susan & Ray Golden
to setup the sale for
which we received a
total of $402.00
This was our only fundraiser
for the year and we thank
everyone who donated items
to help make this a success.
Rosie Price worked
diligently to price each
item. We also thank
Dick Becherer,
Don Gordon, Heather,
Amber and Haylie for
helping sell the items.
You may want to start
saving items for next year.
 t r a n s p l a n t n e w s

Please welcome our

newest member
Amanda Goodwin

Amanda’s story: It was about a week of shock,

Basically, PSC (primary
then acceptance, and of course
sclerosing cholangitis)
we were thrown into the
since age 5, lived with very
system of it all so it became
well controlled liver disease,
reality much quicker then we
last year my doctor wanted
could have otherwise dealt.
to list me but my insurance
company said my meld was
I’m bored out of my mind. My
too low. In repeating her
doctor wants me to be on
annual imaging studies, my
break from nursing school
doctor found a tumor on my
(Kent State) and since I’m a
liver this year in May, and I
nanny, my job is on hold
guess that’s the fast track
until I can dedicate full days
ticket to liver listing. I had
to moms who don’t have to
chemo done to the tumor and
wonder when I’ll get the
am awaiting a liver now.
organ phone call and need to
Whatever is left of my liver
leave their homes ASAP.
is all scar tissue, nothing really
functioning.
I’ve been trying to keep
busy with company, but
My reaction - and family’s -
it’s hard since all my friends
was in shock. We knew this
and close family work, and
would be a treatment option
I can’t stay busy by just
someday, but someday came
watching TV or running an
on our “today,” and we were
errand. I lived a very
not ready for it. We had just
vivacious life, and having to
gotten off a plane from our
tone it down and wait has
timeshare in Disney World,
really been the biggest
and life was not supposed
frustration of all!
to pick up like this.
 t r a n
Prior to the insanity that has
been the last weeks, I spent
my days nannying two precious
angels, babysitting for a few
families and trying to wrap up
my nursing degree, goal:
pediatric oncology or tranplant
coordinator.
I am honored to be a published
writer in nursing anthology
and a contributor to many
scrapbooking publications. I
live to be a nursing student,
to touch lives and help people
and families heal.
I love hanging with my
amazing friends, sister and
family. I love my baby puppy
Haylie Brooke and our silly
doggie Ri-Ri. In my spare
time, I enjoy reading and
getting crafty. I thrive on
organization, my Mac
repertoire, learning, and
absolute fabulosity.
I need to cry. I need human
contact. I need random cards
in the mail ”just to say hi.”
I need reassurance.
s p l a n t n e w s
I am just as weak as the rest
of you, don’t let the courage
fool you. Don’t get me wrong,
it’s there, but it’s been a fight.
My favorite place in the world
is Paris, and my favorite color
is pink. I’m a night owl and
wish my lifestyle promoted
such habits.
Again, I love being a nurse and
am so excited to recover and
have more energy to devote to
touching lives. I believe each
of my patients is precious and
love being able to touch their
hearts.
I like lazy jammie days. I
believe in God and am thankful
for his hand on my life. I
believe that life is too short to
be anything but happy, and I’m
thankful that this chronic liver
+ the effects of a car accident
have taught me important
values that most people learn
far too late. I hope that the
world will find hope.
My idea of a good day is one in
which I can make someone
smile.
 t r a n s p l a n t n e w s

Note from Mary:

Amanda is listed at Cleveland
Member News:
Clinic, is a LifeBanc Volunteer
July 13th is the day scheduled
and we are fortunate that she
decided to join us and make for Robert to donate his
kidney to Dorthy Notz. We
our Akron-Canton Chapter
information easily available wish them the very best.
on a website, Facebook and
Connie Armour is happy to
Twitter. She also likes to take
photos and knows how to do report that her leg has healed
and she is doing well.
all the things I do not. I
referred her to Rick Scolaro Congratulations Connie!
On June 29th she celebrated
because he may have
her birthday. Since she and
some photos she can use.
She is attending bible study John also got married on her
birthday, they were able to
classes on Tuesday nights,
but is going to be at NCMF celebrate their 22nd wedding
anniversary. Another June
at 6pm on July 20th to meet
celebration on the 30th is
some of our members before
she has to leave for her class. the 15th year of her kidney
transplant from her sister
She has made reservations
for four to attend our Karen.
Her husband John has his real
Celebration of Life Picnic on
estate license and is happily
August 8th and will bring
brownies. employed by DeHoff Realtors.

(She will let us know when she Rosie Price had us all worried
when we heard she had a
gets the important call from
stroke and was in Aultman
Cleveland Clinic.)
Hospital.
Rosie has no problem with
Her website address is:
http://amandasjourney. her speech and still has that
unique sense of humor. She is
tumlbr.com
happy to be back home with
Rick and her “family” to
recuperate.
 t r a n s p l a n t n e w s

Bob Forbes is still in Hanover Dick Samolia is out of the

House. Since his sight is hospital following surgery
minimal, I suggest you send from an abdominal hernia
cards for Bob & Sylvia to their and removal of his gall
home to let them know we bladder. His recovery is
care: 4526 AURORA ST NW slow, but sure, he is tired,
CANTON OH 44708 but he is able to care for
himself. He will see his
I was very sorry to receive surgeon on Monday. He
an email from Randy Fogle says “ Hello to Everyone.”
on July 12th informing us that (note: also, Love & prayers
he is in the hospital with from all your TRIO friends.
pancreatitia and also may be
rejecting his pancreas. His Over 15 years ago Cindy Hart
old pancreas transplant and Ed Price sought donations
surgeon is there, so Randy for our TRIO picnic from
is under his care. He is in different businesses. They
Room 447 at Pitt Memorial did such a good job and
Hospital inGreenville, NC left such an impression on
which is about a 3 hour Vicki of Sugardale that she
drive from his home. He was has donated a box of hot
life flighted in a helicopter dogs every year. Ed has left our
and he said it was a bumpy group and Cindy has moved to
ride. He is being a “good boy” moved to Florida, but is still
and listening to his doctors a supportive member of our
and nurses. He hopes to go group. Vicki sends her best
home soon, so if you send wishes and we also thank
any cards please mail them to you Cindy for making this
his home. contribution possible. We
5001 NORTHAMPTON DR SE do hope you will stop in to
SOUTHPORT NC 28461 see us if you are ever in
He will have more surgery our area.
when he recuperates from
this. “Hello to Everyone”
(Note: Love & prayers to
Randy from all your TRIO
friends.)
 The following is the Our goals should be fun and
First in a series of reports on hopeful and as we make
the book progress it will spillover into
CREATING YOUR BEST LIFE the rest of our lives. This is
The Ultimate List Guide something our group does
written by: well. We pull together to
accomplish a goal and then
Caroline Adams Miller, MAPP
the rest of the group joins in
& Dr. Michael B. Frisch.
celebrating the accomplish-
(Caroline was one of the excellent
ment.
speakers at the Leadership
Summit and Jim Gleason donated
Creating a life starts with
her book to all attendees for
creating a Portrait of Life.
which we are very grateful)
Our TRIO brochure does a
submitted by Jacqui Scolaro
good job of describing our
group:
Creating Our Best Group “Akron-Canton TRIO is a
support group for those who
“Successful people almost
have received a transplant,
always have life lists. These
their families and support
lists enable them to be more
people, those waiting for a
joyful, proactive and
transplant, health care
accomplished.” Reading this
professionals, living donors,
book it occurred to me that
and donor families. We, as
the same principles would
recipients have a common
be true for a group, for our
purpose, to deal with post
group.
transplant conditions of our
bodies, and take medications
A life list for ourselves or for
to keep us alive. At our
the group should not be a
meetings we can come
longer version of a New Year
together and share idea, tips
resolution with tasks we
and experiences. Hopefully
already have difficulty
in this process some of our
completing. “A life list
members will become
should be clear-cut goals
advocates to help others.
that give us a sense of
purpose and direction”.
 By attending a meeting you *Watch Randy Pauch’s
will no longer feel alone and “Last Lecture” online at
can share with other recipients. www.cmu.edu/uls/journeys/
We also need our support randy-pausch/index.html
people at home who help us *Read or listen to interviews
every day. They may attend or biographies of goal setters
meetings and have a chance you know.
to speak.”
Challenge to other
The rest of the exercises
from the Royal Road to
TRIO CHAPTERS
By: Mary Fread
Happiness include:
I was disappointed by the fact
that a few chapters were not
*Listing 5 goals
present at the Leadership
Our group goals may include:
Summit and also at the
President’s call on July 5th.
1. Having meetings every month
which are supportive and
WHAT IS WRONG?
educational.
Akron-Canton TRIO was
2. Sending out a monthly
able to send two members to
newsletter.
the Leadership Summit due
3. Celebrating Transplant
to the generous contribution
anniversaries with a card
of $300.00 from National.
(Robin Pelton does an
You were all offered the same
excellent job)
opportunity.
4. Having a picnic and a holiday
We have vowed to have a
celebration.
representative participate
5. Participating in fundraisers
in all President calls. If the
and booths and advocacy.
President or another officer
is not available, we will have
*Watch the Bucket List or
a member fill in for them.
Last Holiday
At the present time, we only
*Start a One Hundred Things
have 33 members, but we want
to Do Before I Die list and
to remain active and grow.
visit :
What about the rest you?
www.your100things.com
for ideas.
Did you read the July issue
of Lifelines? We are happy J. T.
is out of the hospital and do
greatly appreciate his well
written contributions.
As my beloved Tom Behra,
who was past president of
Akron-Trio said in his final
days: “My biggest regret was
that I tried to do everything
for our chapter. I am so sorry
and want them all to be more
involved and help as many as
possible.”
We may all be separate
chapters, but we are all
TRIO. This was pointed
out to me at the Leadership
Summit and I am thankful.
It was not easy to take over
the responsibilities as I tried
sorting through the records
kept by Tom.
With the help of Sylvia Leach,
Jim Gleason, J.T. and the
encouragement of our new
President Dick Becherer,
Vice-President Bruce Hord
and our wonderful members
I am able to be here today.
The Leadership Summit was
an awesome event and I
truly feel sorry for anyone
who did not attend.
Jim Gleason has written a good
report in Lifelines. All the
speakers were excellent and
the wonderful photos by Susan
Pincus taught me a lesson:
“Not to hang my head, but to
hold my head up high because
I am a member of TRIO!”
CELEBRATION OF LIFE
ANNUAL PICNIC
Sunday, August 8, 2010
12:00noon - 4:00pm
John Torok Community &
Senior Center
4224 Massillon Road
Green,Ohio 44232
I am happy to say that
Sugardale has donated a
box of hot dogs &
Schwebel Backing Company
8 packages of a dozen buns
Our chapter will provide coffee,
Sprite, Coca Cola Zero and ice,
all tableware and condiments
Friends & relatives are welcome
We will need a head count in
order to provide for everyone
& what you want to bring will
be discussed at our meeting
So far we have a total of 5
Amanda 4 bringing Brownies
Mary 1 bringing deviled eggs
Mary Fread, Editor 330-453-8214
email:transplant@neo.rr.com