Concern 1: The Fong family feels overwhelmed and uneducated with what down syndrome includes and

what can be done to help their daughter. This is the Fong families’ first child and first grandchild and the
family doesn’t have any background experiences with disabilities.

Current Resource/Information: Mr. Fong has knowledge on child development from his background of
being a pediatrician.

Outcome: The Fong family will have the knowledge they desire regarding learning more about down
syndrome.

Suggested Action: Mr. and Mrs. Fong will read through the National Down Syndrome Society webpage.
More specifically the Down Syndrome section and the New & Expectant Parents sections.

· Resource Type and Name – This is a National Resource/ The National Down Syndrome Society.

· Contact Information –

Phone:800-221-4602

Email: info@ndss.org

Website: http://www.ndss.org

Headquarters: 8 E 41st Street 8th Floor New York, NY 10017

· Program information – This is a national resource that is funded by the government. This society
seeks to educate communities and families about Down Syndrome and to provide support and
advocacy.

· Policy Information – An NDSS Information & Referral Specialist is available to respond to emails and
phone calls between the hours of 9am and 5pm ET, Monday - Friday. The helpline is supported by a
translation service that can be accessed in over 150 languages.These services are toll-free.

· Applications/Forms – There is no application or form to fill out.

· Pamphlets/Handouts – (see enclosed website homepage entitled ndss.)

Rationale: This website gives the Fong family more information about down syndrome.

Concern 2: Mr. Fong was given a promotion so the Fong family will be moving to Milwaukee, Wisconsin,
which is two hours away from their current residence. Mrs. Fong will be the one responsible for looking
for a new home.
Current Resource/Information: Mr. and Mrs. Fong have been in contact with their Real Estate Agent Sha
Hollman about homes in the area.

Outcome: Mrs. Fong will be able to find the new home for her family.

Suggested Action: Mrs. Fong will immediately call Sha Hollman for help with finding her new home.

· Resource Type and Name –Real Estate Agent, Shorewest, Sha Hollman

· Contact Information –

Website: http://shahollman.shorewest.com/

Address: Shorewest Realtors

17450 W North Ave

Brookfield, WI 53045

Phone: (414) 422-8293

· Program information – This program helps people to find homes that are in their budget.

· Policy Information – What are their policies, hours of operation, fees etc.

· Applications/Forms – There are no forms or applications include. She just needs to be contacted.

· Pamphlets/Handouts – See mortgage service

http://shahollman.shorewest.com/vp/AgentServlet?ScreenID=AgentPageShell&SITE=SHOREW&pres_ag
ent=82619&PageInsert=mortgage_services ******

Rationale: This information is for her real estate agent, this will help make house buying go smoother for
Mrs. Fong.

Informal:

Concern 1: Mrs. Fong is feeling alone and needs social and emotional support. Mrs. Fong is looking for a
support group that she can participate online because she feels uncomfortable talking in groups about
their difficulties.
Current Resource/Information: Mrs. Fong has visited the site for Family Voices but doesn’t know much
about the support group.

Outcome: Mrs. Fong will be able to find a support group online so that she can feel comfortable
receiving support without discussing her concerns in person. They also want to find a support group for
social reasons and activity opportunities to get to know other families by having fun rather than
discussing the challenges they face.

http://www.friendshipcircle.org/blog/2013/03/20/42-top-down-syndrome-resources-you-should-know-
about/

Suggested Action: Mrs. Fong will contact the Parent to Parent support group online to be able to find a
parent that can communicate with Mrs Fong through email or chat.

Support Groups:

National: Parent to Parent, parents support group:

Program Information: Parent to Parent of Wisconsin provides parent support to parents of children with
special needs through a one-to-one connection with another parent who has similar experience and
who knows firsthand about the feelings and realities that come with having a child with special needs.

Name: Robin Mathea

Address: 1020 Kabel Ave, Rhinelander, Wisconsin 54501

Phone: 715-361-2934 Cell: 715=550-8338

Email: Get-Connected@p2pwi.org

(http://www.p2pusa.org/p2pusa/SitePages/p2p-support.aspx)

***Brochure Included****

State: Family Voices

Program Information: Family Voices aims to achieve family-centered care for all children and youth with
special health care needs and/or disabilities. Through this national network, Family Voices provides
families tools to make informed decisions, advocates for improved public and private policies, building
partnerships among professionals and families, and serves as a trusted resource on health care.

Lynn

Lynn@fvofwi.org • Call 608-220-9598

Family Voices of Wisconsin P.O. Box 5070 Madison, WI 53705 www.familyvoicesofwisconsin.com

608.220.9598 ****Brochure included in email****
Local:https: Gigi’s Playhouse,

Program Information: achievement center for individuals with Down syndrome, their families, and the
community. GiGi’s Playhouse offers more than 30 therapeutic and educational programs that advance
literacy, math skills, motor skills and more; all of which are free of charge.”

8685 N. Port Washington Road

Fox Point, WI 53217

Phone: 414.797.0522

Email: milwaukee@gigisplayhouse.org

Website: www.gigisplayhouse.org/milwaukee/

Rationale: The support groups are for Mulan as well as the Fong Family. The local support group called
GiGi’s playhouse is for the families to get involved with other families in activities. Parent to Parent is
more focused on allowing the parents to get one on one support from other parents that have “been
there”. Family of voices is family centered and the support lasts until Mulan would be in her adulthood.
The support groups provide friends and families that Mr. and Mrs. Fong can meet with and receive
advice and emotional support. Mulan will also form friendships with other children in the groups. The
support groups will give the family and Mulan a social aspect to facing their difficulties.

Concern 2 : Mrs. Fong’s mother lives with them and is currently taking a course in respite care to get
certified.

Current Resource/Information: Grandma Fong has raised a child before, and so she has a knowledge on
how to care for children.

Outcome: Grandma Fong would be able to get certified in respite care and funding would be provided
for the care, in order to give Mrs. Fong a break.

Suggested Action:Grandma Fong will apply for Respite Care and go through the course needed to
become certified.

Respite Care:
· Resource Type and Name – Respite Care Association of Wisconsin (State)

· Contact Information –

Website: http://respitecarewi.org/content/our-programs

Address: 6320 Monona Drive Ste. 407

P.O. Box 702 Portage, WI 53901

Phone: (608) 222-2033

Fax: 608.222.2034

Email:info@respitecarewi.org

· Program information – Respite provides temporary relief for caregivers and families who are caring
for people with disabilities.

· Policy Information – Provider coverage (Physician, Nurse Practitioner/Physician Assistant) occurs

eight (8) hours a day, seven days a week. Physicians are in the building five days a week. The general
business hours for provider staff is 8:30a – 5p.

· Applications/Forms – Printed out in binder

http://respitecarewi.org/user/register *******

· Pamphlets/Handouts – handout in binder, lifespan caring network

Rationale: This information gives Grandma Fong the direct information needed to become a respite care
provider.