Inclusion North Bulletin

Issue Number 160

30th April 2018
In this bulletin you will hear about some of the work
Inclusion North is doing and information about what is
happening across the country.
Inclusion North News

The Family Carers Project

Over the past year Inclusion North employed two family
advisors, Shain and Linda, to help us better engage with family
carers in Yorkshire and Humber and the North East, and to
identify the key issues affecting families which we as an
organisation need to respond to. Shain and Linda spoke to
family carers all over Yorkshire and Humberside and the North
East and looked at the responses to their survey.

Family carers told us that they were worried about transition,

funding, transport, work, isolation, health, and other
issues. Linda and Shain have produced a set of briefings that
give information and help with these areas and include links to
lots of other support.

Over the coming year we will be sharing these, alongside

further information for families on our new website which is
currently in development. We will also be doing further work
with families over the coming year based on the work that
Linda and Shain have done.

Linda and Shain's time with Inclusion North has now come to
an end but they would like to thank all the carers who helped
them by talking to them and by telling them where things were
going well so we could tell other carers. We hope you will find
their briefings useful and engage with us in our work with
families going ahead which we will be featuring in the next
bulletin.
 Inclusion North Young Leaders

This summer we will be delivering a new project in Calderdale.

Young Leaders is a residential ‘introduction to leadership’
course for young people aged 15-17 years old with a learning
disability, autism, or both.

It is based on the Tomorrow’s Leaders course, and we are

testing it out as a pilot in Calderdale.

We are doing this in partnership with Lead the Way and some
of our Tomorrow’s Leaders graduates.

They feel passionate about passing on the skills they have

learnt to young people.

The course will aim to support young people to develop their

skills and confidence.

They will also learn about their rights and about leading and
working with others.

The course will also help to improve their connections within

their community and Calderdale, hopefully opening
opportunities and new friendships and networks for them.

The course is due to start in July, and we’ll be featuring how

the course has gone and its impact on the young people
involved in later bulletins.

For more information

Call Lucy Virgo on 07944 185 771 or email:

lucyvirgo@inclusionnorth.org

Or

the Office on 0113 2444792 / 0113 8980025

 Talking Travel

This June and July the Yorkshire and Humber Talking Travel
group are planning some workshops about travel in Pontefract,
East Riding and Leeds.

Based on the workshops ran in Newcastle and Hartlepool

during our Talking Travel Takeover week in February this year
we will be:

• Looking at travel apps and how to use them

• Thinking about how to plan a journey
• Supporting people to understand how to complain to or
compliment travel providers, and how to influence the
travel services they use

The aims of the Talking Travel group are

• To get good information about what is happening to help
people with a learning disability travel around
• Bring people together from across Yorkshire and
Humber to share good ideas and the work we are doing
• To have a stronger voice in saying how to make travel
better for people with a learning disability
• To work on projects that we think will help people with a
learning disability travel around more easily, we will think
about all issues such as money, people’s attitudes, the
environment and where people live.

For more information call Lucy Virgo on 07944 185 771 or

email lucyvirgo@inclusionnorth.org

If you want more information about the Talking Travel Group in

the North East call Kirsty Morgan on 07539 063467 or email
kirsty@inclusionnorth.org
 NICE Guidelines Support About Growing Older

NICE have just published some new advice about how to

support people with a learning disability as they grow older.

The advice is about helping you get support from services like
health, housing, and social care

• making sure your views come first

• involving everyone who supports you
• helping you look after your health as you get older
• helping you prepare for the future
• making sure staff have the right skills to support you.

You can find the easy read version of the guidance here https
://www.nice.org.uk/guidance/ng96/informationforpublic

Shared Space Campaign

Shared space or shared surfaces is a new idea in street

design in which street signs, road crossings and pavements
are removed in favour of a space which is shared by
pedestrians, cyclists, and vehicles.

The idea behind this is that cyclists and car drivers will ride
and drive more carefully and slowly, because they will feel
there is a higher risk to pedestrians on the shared surface.

But no kerbs, no safe crossing points and a reliance on eye

contact is having an impact on older and disabled people,
particularly those with visual impairments, who no longer feel
safe on their high streets.

A few organisations including Transport for All and the Royal

National Institute of Blind People (RNIB) are campaigning
against the shared space schemes and calling for more
inclusive design – thinking about the needs of everyone.

For more information see

http://www.transportforall.org.uk/about/news/say-no-to-shared-
spaces
 Survey Improving Cancer Care For People With A
Learning Disability

Northern Cancer Care Alliance are looking at how to improve

cancer care for people with a learning disability.

There is a survey that asks about how to involve people in

cancer services.

You can find the survey here to download

http://bit.ly/2r66WjD

Or complete online here

https://www.surveymonkey.co.uk/r/GNC8BGP

Yorkshire Ambulance Service Trust Network

Yorkshire Ambulance Service (YAS) NHS Trust has a Critical

Friends Network (CFN) which is a network made up of
patients, carers and members of the public who work together
with the organisation to help develop and improve services.

The CFN members attend meetings four times a year and

provide feedback via email and telephone on key projects.

So far projects that the CFN have helped to shape include the
use of Patient Transport Service (PTS) calling cards, how the
new website looks and can be used, they have fed back on
how we use patient information and are currently working with
us on how they move patients safely particularly if they have
complex needs.

They are looking for more people to join the network with
learning disabilities, autism, or both.

You can find an application form here

https://survey.yas.nhs.uk/s/CriticalFriends_Application16/

If anyone would like to know more about the CFN please

email cfn@yas.nhs.uk
 Medication Pathway Information

As part of the STOMP (Stopping over medication of people

with a learning disability, autism or both) programme led by
NHS England the Challenging Behaviour Foundation have a
new resource for families of people with a learning disability,
autism or both.

The medication pathway is about people who are prescribed

or may be prescribed psychotropic medication.

The resource talks about

Psychotropic medication which is a term used for several types

of drugs. These drugs are usually given to help people with
mental health.

It includes

• What you need to find out before your relative starts

taking medication
• What the alternatives are to medication
• How medication should be monitored
• What to do if you have concerns about your relative’s
medication

You can get the information pack here

http://bit.ly/2FnfTtd

or

Email info@thecbf.org.uk

or

Telephone 01634 838739

 Easy Read Reports about Employment Support
Allowance (ESA) and Personal Independence
Payments (PIP) Assessments

The Department for Work and Pensions have published an

Easy Read Report about Employment Support Allowance
(ESA) and Personal Independence Payments (PIP)
Assessments, and the Governments response to the House of
Commons Committee.

A group of Members of Parliament (MPs) have been looking

into how ESA and PIP are assessed and have written a report.

MPs have been elected by local people to

• Speak up for their local area

• Make laws
• Make sure the Government is doing a good job

The Easy Read Report includes

• PIP explained
• ESA explained
• What the MPs said
• Things to improve before the assessment
• Things to change at the assessment
• The report and decisions
• Where people don’t agree with the decision
• How the assessment companies work
• Where you can find more information

You can find the report here

http://bit.ly/2jeYv0X
 Stewart Chappell World Games Disco

Stewart the Co-Chair of Inclusion North will be competing in

the Cerebral Palsy World Games.

Stewart is a silver medal holder in club throw and seated

discus.

Stewart is having an event, “Stewart’s World Games Disco”

The disco is on

26th May

From 6pm

At

Blue Flames Sporting Club

Whitley Park
Whitley Road
Benton
Newcastle Upon Tyne
NE12 9SF

Tickets are £5 per person with free carers entry, this includes a
raffle ticket.

Tickets are available from Skills for People

Telephone: 0191 2818737

Email: info@skillsforpeople.org.uk
 GDPR – General Data Protection Regulation

On the 25th May 2018 there are new rules that we must follow
about how we look after your personal information.

Personal information is your Name, Address, Email Address,

and anything that means people can find out who you are and
things about you.

If you would like to be on our mailing list, then please fill in the
attached form and send it back to us by email or by post.

It is important that you fill in the form, if you don't do this we

will have to stop sending you emails or letters after 25th May
2018.

If you have already filled the form in and have sent it back to
us, then you don’t have to do this again.

Please send your completed form by email to

melissa@inclusionnorth.org

or post to

Melissa Peacock
Office Manager
Inclusion North,
Suite 4, Unity Business Centre
26 Roundhay Road
Leeds, LS7 1AB

If you have any questions do let us know.

If you do not let us know we will have to remove you from our
list by the 25th May 2018.
Inclusion North Member Areas 2018 - 19

If you live in one of these areas, you can come to our member
events.

Yorkshire and the Humber

Barnsley
Bradford
Calderdale
Doncaster
Leeds
North Yorkshire
Sheffield
Wakefield
North East

Darlington
Durham
Gateshead
Hartlepool
Newcastle
North Tyneside
Northumberland
Redcar and Cleveland
South Tyneside
Stockton
Sunderland