Professional Documents
Culture Documents
Social Media in Healthcare
Social Media in Healthcare
Social Media in Healthcare
are also interested in using social media to facilitate commu- money for their illness or for their personal healthcare costs.9
nication between themselves and their providers. In a survey Other social networking online communities are built
of patients of an outpatient family practice clinic, 56% wanted around data-sharing platforms, where patients share
their providers to use social media for appointment setting and quantitative information about their medical conditions to
reminders, diagnostic test results reporting, health informa- learn from the aggregated data reports to improve their own
tion sharing, prescription notifications, and answering general outcomes.10 Here, patients share their conditions, symptoms,
questions.3 For those patients who do not use social media, and treatment outcomes; track their own health; and connect
many would start if they knew that they could connect with with patients who share the same health conditions while
their providers there.3 contributing to the community data cache.11.12 Members have
Physicians are also exploring ways to use social media, both reported benefits from participation including better informed
personally and professionally, although personal use is more treatment decisions, symptom management, higher quality
common.4–6 Some physicians use social media professionally of life, and perceived control over their condition; a minority
to find and share health information, communicate/network use their data in their visits with their healthcare providers,
with colleagues and trainees, disseminate their research, mar- although it is unclear in what ways and to what utility.10 This
ket their practice, or engage in health advocacy. In addition, self-reported patient data have also led to new clinical research
a growing minority use social media to directly interact with insights. For example, researchers using observational data
patients or in other ways that augment clinical care. housed on such a platform found that lithium therapy had no
In this article, we review ways that social media are being impact on amyotrophic lateral sclerosis disease progression,
used for clinical care and the potential implications that this later confirmed by subsequent randomized trials.13
has on ethics, professionalism, and society. As with all innova- Physicians can also use social networking to crowdsource
tions and technological leaps forward, it is time to be mindful answers to clinical questions. For example, on Sermo, an online
and reflective of our professional commitments while discov- physician-only social networking community, credentials are
ering better ways to engage and care for our patients. verified during registration of new members and “physicians
From the Washington DC Veterans Affairs Medical Center (K.C.C.); George Washington University School of Medicine and Health Sciences(K.C.C.,
T.K.); and Children’s National Medical Center, Washington, DC (T.K.).
The online-only Data Supplement is available with this article at http://circ.ahajournals.org/lookup/suppl/doi:10.1161/CIRCULATIONAHA.
112.128017/-/DC1.
Correspondence to Katherine C. Chretien, MD, 50 Irving St, NW, Medical Service (111), Washington, DC 20422. E-mail Katherine.Chretien@va.gov
(Circulation. 2013;127:1413-1421.)
© 2013 American Heart Association, Inc.
Circulation is available at http://circ.ahajournals.org DOI: 10.1161/CIRCULATIONAHA.112.128017
1413
1414 Circulation April 2, 2013
the cornerstone of our therapeutic alliance. Inherent in these written by health professionals, 11% contained product
professional codes is a higher standard of behavior expected endorsement of specific healthcare products; none provided
of physicians. Professionalism is now a standard part of US conflict of interest disclosures.43 Some physician tweets also
medical school curricula;34 student professionalism is evalu- contain suspect product promotions.44 Of note, Federal Trade
ated by observation and, in a majority of medical schools, by Commission regulations released in 2009 require material
formal testing in structured clinical examination settings.35 connections (sometimes payments or free products) between
Social media use by physicians for clinical and nonclinical advertisers and endorsers to be disclosed. A blogger who
purposes poses some dilemmas with regard to professionalism receives cash or in-kind payment to review a product is con-
as physicians are traditionally taught. Online, the boundaries sidered an endorser. In addition, both advertisers and endors-
of our professional interactions are less clear (previously con- ers may be liable for false or unsubstantiated claims made in
fined to the outpatient office or the hospital). Professionals, an endorsement.45
not limited to physicians, have had their professional charac-
ter judged on the basis of the way they represent themselves Report Physicians Deficient in Character or
online;36 to some extent, physicians will be viewed in their Competence, or Engaging in Fraud of Deception,
professional role whenever they are in public, including when to Appropriate Entities (AMA Principle II)
using social media.37 With the blurring of personal and profes- The ethical duty of reporting the impaired, negligent, or
sional content online, there remains less certainty about what otherwise unprofessional physician applies to the social
constitutes appropriate professional behaviors online, and media space when physicians see content posted by other
these opinions differ between medical students and faculty physicians that may be harmful to patients or the public. This
and even among medical education faculty.5,6,38 For instance, may include advertising false claims, misrepresentation of
a photograph posted on a personal social networking site of credentials, or posting grossly unprofessional content online.
a physician appearing inebriated during off hours may be In their guidance on professionalism in the use of social
deemed inappropriate by some and not of concern to others. media, the AMA advises physicians, “When physicians see
There may be generational differences, with older genera- content posted by colleagues that appears unprofessional, they
tions espousing more conservative views about what a medi- should bring it to the attention of the individual or report it
cal professional should and should not post.5 Published social to the authorities.”40 We agree that it is part of a physician’s
media guidelines by national medical organizations and medi- ethical duty to report harmful content (however one defines
cal school social media policies often lack specific behavioral this), either by discussing with the individual directly or by
guidance or definitions of professionalism as applied to the informing the individual’s employer or state licensing board.
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online space.39,40 Physicians active in social media have offered Among violations of online professionalism reported to state
their own guiding principles for online professionalism, such medical boards, half were reported to the board by another
as “be honest, forthright, helpful and compassionate” and physician.42
“recognize that you represent your profession, and help others
recognize that they do, too.”41 Some patients may view a phy- Safeguard Patient Confidences and Privacy Within
sician’s online activity as a proxy for the common sense and the Constraints of the Law (AMA Principle IV)
trustworthiness required for patient care.36 Most physicians A major challenge of using social media is ensuring that digi-
will want to clearly identify themselves to lend credibility tal communication is secure. Stemming from HIPAA enacted
and accountability to their online communications; those who by Congress in 1996, the Department of Health and Human
choose to use social media anonymously should be mindful Services (HHS) issued the Privacy Rule, which provided the
that anonymity can breed disinhibition, and true online ano- first-ever federal privacy standards to protect patient health
nymity may be difficult, if not impossible, to achieve. information provided to doctors and other healthcare provid-
Clearer are the opportunities that exist for physicians to ers, hospitals, and health plans, so-called covered entities.46
promote medical professionalism using social media. Sharing The Privacy Rule, in effect since 2003, levies heavy fines
credible health information and resources, using social media and potential criminal charges on unauthorized disclosure of
for health advocacy, and developing innovations that improve individually identifiable health information, also known as
delivery of care using social media are all ways to harness protected health information, by covered entities. Protected
its power for communication.36 See the section titled Make health information applies to health information in oral, paper,
Relevant Information Available to Patients, Colleagues, and or electronic forms.46 There have been many well-publicized
the Public (AMA Principle V) for further discussion. breaches of HIPAA involving social media;47,48 in many of
these cases, disclosure was inadvertent.
Be Honest in All Professional Interactions The HIPAA Privacy Rule includes a safeguards standard
(AMA Principle II) that requires covered entities to reasonably safeguard pro-
Online misrepresentation of credentials was one of the most tected health information from unauthorized disclosure, both
common online professionalism violations reported to state intentional and inadvertent, using physical, administrative, and
medical boards, with many resulting in serious disciplinary technical safeguards.49 These standards are somewhat flexible
actions.42 In addition, conflicts of interest, including receiv- and accommodate entities of different sizes and resources. For
ing financial compensation for the promotion of any product instance, e-mail communication between patient and provider
or paid advertisement on a blog or other Web site, should be using unencrypted e-mail could be permissible, provided there
disclosed. When researchers analyzed the content of blogs were some protections followed, such as limiting the amount
1416 Circulation April 2, 2013
and specificity of information transmitted this way. Individual However, what are the ethical implications if the patient was
states may have their own separate privacy laws; for instance, properly deidentified? The answer to this question may be
states vary on who may grant permission to release medical debated. When medical educators were asked to rate a list of
charts.50 specific online behaviors on appropriateness, the majority felt
that it was rarely or never acceptable to write a deidentified
patient narrative using a disrespectful tone (86-88%).5,6
Communicating Directly With Patients Fewer, but still a majority, felt that writing this deidentified
When using social media for clinical care, great care must patient narrative using a respectful tone was never or rarely
be made to ensure that protected health information is safe- acceptable (61%).5,6 It is our view that writing a deidentified
guarded. Patient privacy breaches can cause much greater patient narrative using a respectful tone on a blog or other
harm when occurring online than when face-to-face given social media site, similar to narratives published in books
the potential wide reach of social media and the permanency and medical journals, is not itself wrong. Next, the intent is
of digital information.36 Patients who desire to communicate examined. If the intent of writing and sharing the narrative is
with their healthcare provider via social media should be to stimulate understanding or empathy without intent to harm
made aware of the privacy protections put in place by their the patient, the second criterion is fulfilled. Finally, if there
physician or physician’s practice and should provide consent is a reflection about the physician’s professional and ethical
to participate given these provisions (Table 1). Closed, secure duties and due care is taken to limit any foreseen harm (patient
systems with data encryption can maximize safeguards. Atten- deidentification, use of a respectful tone, and unlinking the
tion should always be paid to the security (vulnerabilities to narrative to a specific institution), then the action would
external security threats), access, and permissions involved in seem to be ethically justifiable. However, publicly posting a
any social media tool used for clinical care. On unsecure open status update about a specific patient to release frustrations
sites, such as popular third-party sites Facebook and Twitter, or to entertain others with a humorous anecdote places a
postings, whether open to the public or private message, may physician’s self-interest above the patient’s and may not be
ultimately belong to the third party,51 and security breaches ethically justifiable despite a lack of identifying details, even
have been known to occur.52 if there was no intent to harm the patient.
Writing about individual patients and protecting their iden-
Writing About Patients on Social Media tity may be more difficult than physicians think. A study of
Outside of communicating directly with patients, writing 271 medical blogs written by health professionals found that
about specific patients on social media sites without their con- individual patients were described in 42% of blogs. Of these,
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sent, such as writing a narrative about a patient on a blog or 17% included sufficient information for patients to identify
mentioning an interaction with a patient as a status update on their providers or themselves, and 3 included recognizable
Facebook or Twitter, requires additional ethical consideration. photographic patient images.43 Potential patient privacy viola-
Stevenson and Peck53 propose the model of double-effect rea- tions have also been reported in medical student online post-
soning when deliberating ethical cases in social media. This ings55 and by self-identified physicians on Twitter.44 In most of
model is based on the moral norms of doing good and avoiding these cases, there was no malicious intent to violate patient’s
evil and takes into account an agent’s intent and the foreseen privacy. When possible, obtain a patient’s permission before
and unforeseen effects of one action.54 On the basis of Cavana- writing about his or her online. Because both real and supposed
ugh’s original criteria,54 Stevenson and Peck53 offer modified (ie, a patient thinks that he or she is being written about or a
criteria for evaluating social media actions (Figure 2). reader thinks a narrative identifies a specific patient) privacy
Applying these criteria to the example of writing a violation could be damaging to both physicians and patients,
respectful patient narrative on a blog, we start with the it is important to explicitly state that narrative accounts have
following question: is it ever ethical to write publicly about been fictionalized or that consent from the patient or patient’s
specific patients without their expressed consent? Clearly, if family had been obtained. Deidentification can be accom-
it is written in such a way that the patient could be identified plished by omitting or changing key patient details, avoiding
by the patient or someone else, it violates the ethical principle description of rare medical problems, and not including a spe-
of patient privacy (as well as being a HIPAA transgression). cific time frame or location when and where the encounter
occurred (Table 2).
1. The act considered separately from its unintended harmful effect is in Looking Up Information About Patients on the
itself not wrong.
Internet
2. The agent intends only the good and does not intend harm as an end or
Use of the social media double-effect reasoning model53 can
as a mean.
help in determining whether it is ethical to look up informa-
3. The agent reflects upon his/her relevant dues, considering accepted
norms, and takes due care to eliminate or alleviate any foreseen harm
tion about patients on the Internet for diagnostic or treatment
through his/her act. (Consider: security of communicaon, paent purposes. The act in of itself is not wrong, because the search
consent, ability to idenfy paent, potenal audience, professional accesses public information. The intent is to help the patient.
reputaon and responsibilies, tone.)
However, if aware, some patients could experience this as a
boundary violation and compromise of trust.37 Limiting fore-
Figure 2. Ethical criteria to evaluate social media actions by
healthcare providers. Adapted with permission from Stevenson seen harms could mean asking the patient or other relevant
and Peck.53 party for consent to access information. If, however, the intent
Chretien and Kind SoMe Ethics 1417
Table 2. Recommendations for Physicians Who Have Blogs blogging and recording videos, physicians are instructing
or Practice Websites patients on everything from dosing liquid medication for infants
Context Recommendations for Ethical and Professional Conduct and children57 to explaining rotator cuff injuries.58 Medical
students across multiple continents have used social media to
Writing about Avoid writing about specific patients when possible or help their institutions adopt patient safety tools.59 Physicians
patients obtain patient permission and state explicitly
and physicians-in-training who use their presence on social
Protect identity of patients through deidentification or media to broadcast their professional commitments and values
fictionalize encounters and state explicitly
can become high-impact contributing members of the medical
Use respectful tone profession who can promote trust in the profession. They also
Health-related Share credible health information and resources combat the unscientific but amplified voices in the media who
content Counter inaccuracies in the media may spread misleading and sometimes dangerously inaccurate
Place results of recent studies in context statements regarding health.56
Use patient education videos
Endorsements and Disclose any in-kind or financial compensation received Physician Rating Sites
advertisements Beware of making false or misleading medical claims In making relevant information available to patients, physi-
Identification Avoid anonymity cian rating sites allow a greater amount of information to fac-
Accurately state credentials
tor into an individual’s decision of which physician to choose
for his or her care. Although the helpfulness of these ratings
State whether you are or are not representing your
employer or institution
has not been proven, these sites could theoretically contrib-
ute to health literacy, engagement in patients’ own care, and
ability to perform quality assessment.60 Many, however, ques-
tion whether reviews provide constructive feedback; although
was, even in part, voyeuristic, then the action would not be
most online physician reviews are positive,61,62 there are those
ethically justifiable.
reviews that appear disproportionately poor or even consti-
In general, healthcare providers do not believe that it is
tute possible acts of sabotage from competing providers.62 As
an invasion of privacy to conduct an Internet or social media
quality of healthcare becomes more transparent to the pub-
site search for people that they know or work with, and they
lic, there needs to be ongoing discussion on conduct of these
believe that publicly accessible social media profiles are pub-
sites to provide the most benefit to patients and their provid-
lic information.18 However, significant variation exists in how
ers through constructive information exchange, while limiting
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provide specialized care in resource-poor areas, however, may Table 3. Recommendations for Physicians Who Use Social
be an exception, when no other options exist. Networking
Recommendations for Ethical and Professional
Online “Friendships” With Patients on Social Context Conduct
Networking Sites Writing about patients Avoid writing about specific patients
Preservation of professional boundaries online is important
Privacy settings Opt for highest privacy settings
to the integrity of the patient-physician relationship, because
online “friendships” may create a dual relationship, that is, Keep in mind that all content may be discoverable
having any relationship with a patient, whether it be social, Social networking Avoid extending “friend requests” to patients
financial, and so on, in addition to the therapeutic one, that connections with Respond to friend requests from patients to access
patients physician’s personal social networking page
may compromise medical care provided to the patient and/or
introduce interactions extraneous to the relationship.66 Such by redirecting them to more secure means of
communication or to a physician’s professional social
friendships may also lead to problematic self-disclosures (by networking page
patients and/or by physicians) that could threaten the thera-
Identification Avoid anonymity
peutic relationship. Research suggests that physician self-
disclosures in the clinical setting may not help patients and, Accurately state credentials
in some cases, may be a disruptive influence.67 Meanwhile, in Specifically state whether you are or not representing
the online setting, particularly on sites that contain personal your employer or institution
content, there is much more disclosure, intentional and/or Giving medical advice Avoid giving specific medical advice to nonpatients
inadvertent, at risk.
Given these risks, Guseh et al66 advise physicians to never
extend a request to become a social networking friend with a sponsors. Although this is disclosed to members as a matter
patient. In cases where the invitation is extended by the patient, of transparency, the practice has brought into question
physicians are advised to avoid accepting the invitation and whether patients are being exploited for the purposes of more
to have a face-to-face discussion of why it would be unethi- targeted drug marketing, alongside contributions to scientific
cal if actively declining the invitation might be damaging to research.69 One site, for example, provides corporate sponsors
the therapeutic relationship. The view that physicians should with analysis of member conversations about their brand.11
not be online friends with patients is supported by the AMA Because these companies are not covered entities, they are not
and others.40,68 These guidelines are appropriate if the social subject to HIPAA.
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networking site in question is used primarily for personal pur- Similar concerns for patient exploitation arise in patient-
poses, such as Facebook or an online dating site. However, learning communities on social media sites with regard to
in other cases, such as professional social networking sites marketing influences. Greene et al7 found that a significant
where limited personal content is shared, physicians may be proportion (27%) of posts on Facebook diabetes management
able to connect with patients and still maintain the profes- support groups appeared to be promotional in nature, typically
sional nature of the relationship. Initiating a social network- in the form of testimonials. In addition, although clinically
ing connection with a patient on any type of site, however, inaccurate recommendations were infrequent, they were usu-
can cause the patient to feel coerced or pressured to accept ally associated with promotion of a specific product.7
the request because of the inherent power differential within
the relationship. This is especially true in the case of pediatric Support Access to Medical Care for All People
patients, those with special needs, and vulnerable populations. (AMA Principle IX)
When medical educators in internal medicine and pediatrics Social media use among all age demographics is growing;
were asked to rate the appropriateness of certain online phy- however, use is skewed toward the wealthier and more edu-
sician behaviors, 82% to 84% felt that it was never or rarely cated. For example, a 2012 survey found that 97% of US col-
acceptable to become social networking friends with a current lege graduates use the Internet compared with 45% without
patient.5,6 However, the distinction between personal and pro- a high school diploma.70 Health literacy, computer literacy,
fessional social networking sites was not made in these stud- computer access, and language barriers can all play a role in
ies. In another study involving a sample that included medical limiting the reach of social media in clinical care. Addressing
students, resident physicians, and practicing physicians, the these barriers is pivotal to social media advances in healthcare
majority of respondents felt that it was equally unethical to delivery and communication to benefit all.71
interact with patients using online social networks for either Yet, social media may mediate an increase in healthcare
social or patient-care reasons.22 This may have been because access to those in rural or underserved areas with expansion
respondents assumed that interactions would be occurring on of telemedicine programs. There is evidence that telemedicine
public sites and not secure patient-provider portals (Table 3). provides at least comparable care in emergency department
settings, as well as benefit in surgical and neonatal intensive
Commercial Interests and Patient Exploitation care unit settings, among others.25
Of note, patient members of for-profit social networking
communities involving data-sharing platforms may have Other Legal Issues
their deidentified data shared with various research and An in-depth discussion of legal implications of social media
academic institutions, as well as corporate pharmaceutical use in clinical care is beyond the scope of this article. However,
Chretien and Kind SoMe Ethics 1419
beyond HIPAA and privacy law, there are several other legal Patients desire ease of communication with their doctors; as a
issues that deserve mention. profession, we must be cognizant of not trading communica-
tion quantity for quality.74
Discoverability Similar to e-mail, social media use by clinicians for clini-
Content posted on social networks, regardless of whether cal care brings the concepts of time and reimbursement to
privacy settings are used, is discoverable and can be used to the forefront. Marketing one’s practice on social media may
judge an individual’s character in lawsuits.51,72 The Facebook bring a return on investment, but time spent on social media
data use policy informs users that “we may access, preserve for the purposes of providing patient care must be accounted
and share your information in response to a legal request” both for–will this occur during the work day and/or after tradi-
within and outside of US jurisdiction.51 The policy also states tional clinic hours? If caring for patients online, how will this
that information may be shared for any number of reasons, time spent be reimbursed, and what will the incentives be for
including to aid investigations, prevent fraud or illegal activ- using this technology? Because time and space boundaries
ity, or to protect Facebook, the user, or anyone else.51 Despite are lifted with social media technologies, how will clinicians
this, we believe that opting for the highest privacy settings for incorporate its use into the flow of the typical work day while
personal social networking site pages helps to create boundar- maintaining sustainable and desirable work-life balance?
ies between personal and professional content and limits any Here, thoughtfully constructed individual boundaries for
undesired contact with patients. social media use for clinical care must be put into place and
communicated with patients so that expectations are shared.
Giving Medical Advice
While using social media (or e-mail), it is possible that a non-
Future Possibilities
patient asks a physician for medical advice. Terry warns that
The potential of social media to improve healthcare, health
any personalized response may imply the creation of a physi-
communication, and health information sharing cannot be
cian-patient relationship regardless of whether a disclaimer is
underestimated. With patient networks sharing their data and
given. He states:
experiences and physician networks facilitating discussion
…the only legally sound approach is for the physician to
about therapies and studies, might social media lead to bet-
respond to an electronic inquiry with a standard form response,
ter medicine? Regional variations in medical treatment have
that in no way refers to the specific sender or the sender’s dis-
closed information, which (1) informs the questioner that the been demonstrated,75,76 with both patients and physicians
physician does not answer such online questions, (2) supplies not always aware of the current best practices. Could social
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the questioner with the physician’s offline office information media drive evidence-based standards in medical care through
in case the questioner would like to make an appointment, and greater transparency, expert discussion, quality improvement,
(3) provides contact information for the emergency services and information sharing? Increased standardization of treat-
and suggest the questioner contacts same if he or she cannot ment, while acknowledging the need for individualization of
wait for an appointment during regular business hours.72 treatment plans on the basis of patient preference and other
In circumstances where a patient-physician relationship factors, might also lead to better cost containment, because
already exists, informed consent, as mentioned above, physician behavior has been shown to be a factor in varia-
with careful discussion of potential risks of this form tions in regional healthcare spending.76 Moreover, could social
of communication, response times, and the handling of media decrease the gap between clinical research and actual
emergencies, should take place before any clinical interactions practice, facilitating translational research and applicability
by physicians with patients online. These interactions would to patients? The much lamented gap depends on a number
also need to be documented and included as part of the of factors, including the quality, magnitude, and relevance
patient’s medical chart. of research, as well as the incentives to adopting practice
changes.77 However, certainly contributing is the time it takes
Social Implications for research to disseminate, expert opinions to be voiced, and
With a greater amount of time spent interacting online, there is important discussions to take place. Social media may stream-
concern that the corresponding decrease in face-to-face inter- line this process and lead to faster translation of evidence to
actions between physicians and patients may result in less current practice.
ability to relate to others and a decline in empathy. Relation-
ships online lack critical nonverbal cues, and communication Conclusions
can be easily misinterpreted. Nonverbal cues, as opposed to Social media has transformed communication and is on its
verbal utterances, are thought to carry the majority of mean- way to transforming healthcare. As its uses in clinical care
ing when communicating messages regarding feelings and grow, so must physician awareness of the implications this
attitudes.73 An effort to maintain authentic communication has on our ethics, professionalism, relationships, and profes-
will be important as social media is used more and more in sion. Abiding by our ethical and professional commitments to
clinical medicine. This means using social media as a tool to maintain the foundations of public trust in the medical profes-
augment in-person care and not as a replacement. Also, the sion will be absolutely necessary to successfully incorporate
use of 2-way video can provide more authentic communica- social media in clinical care. Those who share this vision will
tion than instant messages, e-mail, texting, or 1-way video. be poised to lead this social revolution in healthcare.
1420 Circulation April 2, 2013
Disclosures 27. Manhattan Research. Seven percent of US physicians use video chat to
communicate with pateints. http://manhattanresearch.com/News-and-
None. Events/Press-Releases/physician-patient-online-video-conferencing
Published May 16, 2011. Accessed June 23, 2012.
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