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Accepted Manuscript

Participatory action research (PAR) with children and youth: An


integrative review of methodology and PAR outcomes for
participants, organizations, and communities

Daria P. Shamrova, Cristy E. Cummings

PII: S0190-7409(17)30208-6
DOI: doi: 10.1016/j.childyouth.2017.08.022
Reference: CYSR 3462
To appear in: Children and Youth Services Review
Received date: 28 February 2017
Revised date: 19 August 2017
Accepted date: 19 August 2017

Please cite this article as: Daria P. Shamrova, Cristy E. Cummings , Participatory action
research (PAR) with children and youth: An integrative review of methodology and PAR
outcomes for participants, organizations, and communities, Children and Youth Services
Review (2017), doi: 10.1016/j.childyouth.2017.08.022

This is a PDF file of an unedited manuscript that has been accepted for publication. As
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ACCEPTED MANUSCRIPT
Running head: PAR WITH CHILDREN AND YOUTH

Participatory Action Research (PAR) with Children and Youth:

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An Integrative Review of Methodology and PAR Outcomes

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for Participants, Organizations, and Communities

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Daria P. Shamrova, Cristy E. Cummings

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Michigan State University
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Keywords: participatory action research, integrative review, children, youth
Highlights:
 Participatory action research with children and youth varies widely in approaches to
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methodological choices and depth of children’s involvement.


 Children are often involved in later stages of PAR projects and are disengaged from the
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process of the analysis of the data.


 PAR affects children and youth as well as social service organizations and communities,
and outcome of PAR are interrelated.
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This research did not receive any specific grant from funding agencies in the public, commercial,
or not-for-profit sectors.
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PAR WITH CHILDREN AND YOUTH

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Abstract
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Due to an increasing emphasis on children’s rights, children’s participation in studies
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about social issues has become a trend. The research community has been liberally utilizing the

concept of participatory action research (PAR). Thus, oversimplification of children’s


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involvement and misinterpretation of their voices has become a concern for many scholars. This
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review is an attempt to support the critical conversation about PAR, especially in regard to (1) its

methodological features, as well as (2) outcomes of genuine children’s participation in PAR for
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children and youth themselves, social service organizations, and communities. Forty-five
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articles were selected and coded for analysis in accordance with integrative review

methodology. PAR with children and youth showed evidence of positive outcomes for children,

organizations, and communities. However, PAR with children and youth still faces the

challenges of involving very young participants, providing meaningful participation

opportunities and addressing power differences between children and adults in diverse cultural

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contexts. Discussion of methodological challenges and review of critical outcomes of the PAR

approach is provided.

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1. Introduction

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Since the United Nations Convention on the Rights of the Child was ratified by all of the

countries in the world, except the United States, participation rights of children has been an

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ongoing challenge for the adult world. This challenge is especially relevant to their right to have
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a voice and to meaningfully participate in all matters that affect them (Liedel, 2012).

Participation of children in research is a big part of this challenge, which is simultaneously


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rooted in strict requirements for children’s protection from the side of institutional review boards
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(IRB) and in determining what genuine participation and voice might mean in regard to research

with children and youth.


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Child participation is defined as the process of sharing decision-making and participation


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with young people, especially those under 18 years of age, on the issues which affect them and

their communities. “It is the means by which a democracy is built and it is a standard against
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which democracies should be measured” (Hart, 1992). Children’s participation in decision-

making around social issues is not sufficiently covered in the literature, especially in comparison

with their participation in legal proceedings or medical decision-making (Alderson, 2010).

A parallel exists between the lack of children’s participation in research and the level of

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their participation in society (Arbeiter & Toros, 2017; Cheney, 2006). Participatory action

research (PAR) is a response of the academic community to ensuring the implementation of

children’s right to participate and to make a positive change towards fighting adult centrism and

challenging adults’ status quo. However, participation in research varies in its depth and

meaningfulness. Some examples of the application of PAR reinforce existing stereotypes about

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children and prevent their voices from being heard.

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2. Literature Review

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2.1 Child Participation in Research

Due to the increasing emphasis on children’s rights, children’s participation in social

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studies has become a trend (Greene & Hogen, 2005). The children’s rights paradigm has
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provided a great push for researchers to recognize children as active participants in meaning

construction (Fattore, Mason & Watson, 2010; Cheney, 2011; McTavish, Streelasky & Coles,
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2012). In the case of the academic world (Petr, 2003), it has been accepted that in many cases
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researchers fail to involve children in research and evaluation, thus influencing decision-making

processes on various levels (Cheney, 2011).


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Children’s participation in research is not a new approach. Many academic fields, such as
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child development, sociology of childhood, and public health, have involved children as objects

of research activities for years. However, their involvement has been predominantly limited to
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children as a source of data. Additionally, the vast majority of researchers are adults. Therefore,

their pre-existing ideological voice influences their view of children, their relationship with

them, and their research perspectives (Kennedy, 2006). By not involving children in the analysis

of their data, researchers have the power to disregard children’s knowledge and construct

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meanings derived from the data through an adult perspective, rather than that of a child’s

(Robinson & Kellet, 2004). This leads to situations in which children’s voices might not be heard

through the research and their perspectives might be underrepresented or not appropriately

interpreted.

Regarding general children’s participation, Hart (1992) developed the ladder of

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children’s participation which is comprised of eight levels. The three lower levels involve

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situations when the children are manipulated, decorated, or tokenized. According to Hart (1992),

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these three levels represent false participation, when participation of children is used to put the

label of ‘child-created’ idea on adult-constructed view, to promote a cause that children have no

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understanding of, or to create illusive involvement with no real participation. Hart (1997)
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understood five upper levels as “genuine participation” where children could be “assigned to

participate but informed” (Level 4), “consulted and informed” (Level 5), participation can be
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“adult-initiated, decision shared with the children” (Level 6), “child-initiated and directed”
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(Level 7) and “child initiated, shared decisions with adults” (Level 8). In this study, we will

operationalize this genuine participation in research context as being involved beyond just being
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a source of data which reflects Levels 4 through 8 of the Hart’s ladder. It means that children and
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youth in the studies that were selected for this review were involved in one or more other

research processes which let them participate in some part of decision-making. However, it is
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important to acknowledge that genuineness of the participation is hard to evaluate beyond these

criteria based on researchers’ self-report description of the participation process.

Including this genuine participation in research into research design that is evidenced

through Levels 4 through 8 of Hart’s ladder can help to alleviate some of the challenges of

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appropriately understanding the voice of the young person. While any involvement of children in

research provides us with information about what they think but does not necessarily lead to the

fair representation of their perspectives or voices in this process. Generally, research studies are

designed by adults, with the intention to gather the data related to topics and research questions

that adults identify as important. Therefore, equal distribution of power is one of the greatest

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challenges of research methodology with this group (Jones, 2004; Pascal & Bertram, 2014).

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Having a long-term perspective in mind, it is naïve to expect children to acclimate to responsible

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citizenship and good decision-making skills if adults do not provide them with opportunities to

develop participatory skills in early years. One such avenue for this skill development is through

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participation in research about issues that matter to them, especially in the form of PAR
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(Schaffer, 2012).

2.2 What is PAR with children and youth?


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Participatory research with children and youth has drawn a significant amount of
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attention, in part due to the intensive push in the implementation of the UNCRC (Jones, 2004). It

is a transformational perspective which is a part of a continuum of participatory research


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approaches in which power is redistributed between researchers and participants. In addition,


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children and youth as participants are given an opportunity to be a part of social change agenda

(Nolas, 2011; Pascal & Bertram, 2014). PAR is not a research method by itself, rather it is a
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post-constructivist epistemological orientation that highlights the importance of subjective

experiences in knowledge construction (Minkler & Wallerstein, 2010). Thus, a variety of

different methodologies can be utilized under a PAR approach, both widely used methods (e.g.

surveys and focus groups) as well as more creative approaches (e.g. Photovoice and drama

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techniques) (Clark, 2010; Langhout & Thomas, 2010).

Scholars still need to achieve an agreement around conceptual differences in participatory

approaches, some of which are community-based participatory research, participatory action

research, participatory research, collaborative research, community-centered research, and others

(Minkler & Wallerstein, 2010, Israel, Eng & Schulz, 2012). For the purpose of the paper and

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based on Minkler and Wallerstein’s argument (2010), we will focus on the mutually agreed upon

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components of those approaches: participation, engagement, empowerment, mutual learning,

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capacity building and fulfillment of both research and action agendas. Therefore, it has been

determined that for inclusion in this study as PAR, certain actions and their outcomes need to be

described in the article.


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This lack of precise definition extends to the understanding of what constitutes children’s

participation in research. The research community has been liberally utilizing the concept of
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PAR (Jacquez, Vaughn & Wagner, 2013). As a result, oversimplification of children’s


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involvement and misinterpretation of their voices become a concern for many scholars (Clark,

Flewitt, Hammersley & Robb, 2014). This may explain why some studies claim the use of a
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PAR approach even if the participation was not meaningfully integrated. Jacquez, Vaughn, and
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Wagner (2013) identified that among articles that claim the use of community-based

participatory research (CBPR) with children and youth as a research approach only 15%
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attempted to collaborate with them. Therefore, what a “genuine” PAR approach with children

might mean may still need to be defined (Mason & Hood, 2011).

2.3 Theoretical Underpinnings of PAR with Children and Youth

Critical Youth Theory (CYT) proposes that young individuals have their own agency that

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is taken away from them by societal institutions (ex. schools). The adults who are the main actors

in this limitation of agency, base their judgement about youth on the premise of their

developmental immaturity, a concept opposed by CYT (Quijada Cerecer, Cahill & Bradley,

2013). Children and youth participation has been discussed extensively as a way to challenge this

status quo, as it has been codified by the UNCRC as one of the children’s rights domains

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(Checkoway, 2011; Richards-Schuster & Pritzker, 2015). PAR is a mechanism through which

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agency is distributed to the participants, supporting the implementation of children’s rights in

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this context(Checkoway, 2011; Quijada Cerecer, Cahill & Bradley, 2013). Children and youth

may be involved in research design, data collection, interpretation of findings, as well as

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dissemination of these findings (Jones, 2004). However, encouraging the use of this approach is
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still a challenge among the research community, as PAR approaches are more often used with

adults than with children (Liegghio, Nelson & Evans, 2010). Another main challenge that
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participatory research with children faces right now is how to make it meaningful, fair, and
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ethical (Adu-Gyamfi, 2013; Pascal & Bertram, 2014).

In applying the Ecological Model of Child and Youth Participation (Gal, 2017) to a
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research environment this study will focus on three contextual layers of participation which have
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direct impact on outcomes - children’s level outcomes (micro system), organizations’ level

outcomes (meso system) and community level outcomes (macrosystem). Gal’s Ecological Model
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assumes reciprocal interaction between the contextual layers of participation. Checkoway (2011),

in his discussion of assessment of youth participation, also focuses on three levels of

participation impact similarly outlining the layers of youth’s personal and social development,

organizational development, and societal effects. The review of evidence of PAR effects on these

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three layers will encompass this premise and highlight the connections within this review.

In addition to the context, Gal’s Ecological Model of Participation (2017) also attends to

children’s individual characteristics and participatory processes through which children and

youth are engaged in. Therefore, the current study will attend to the following elements of the

Ecological Model of Participation (Gal, 2017) in the evaluation of the papers selected for the

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review: (1) Children’s individual characteristics (ex. age, country of origin, vulnerable

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background) (2) Participatory process (ex. methodology used; child-friendly data collection

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tools, roles assigned to children) (3) Context (ex. individual changes, organizational and

community changes within a cultural contexts).

2.4 Current Study


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Despite almost universal acceptance of potential positive outcomes of children and youth

participation in PAR research, there is no integrative review of evidence that would empirically
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support this claim. Also, a little is known about methodological features of “genuine” PAR
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studies with children and youth. This review is an attempt to support critical conversation about

PAR, especially in regard to (1) its methodological features and (2) outcomes of genuine
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children’s participation in PAR for children and youth themselves, social service organizations,
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and communities.

3. Method
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3.1. Review Methodology

An integrative review is a type of literature review designed to provide an opportunity to

synthesize knowledge produced by multiple methodologies and sampling strategies which

differentiate it from meta-analysis, systematic reviews and qualitative reviews (Whittemore &

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Knafl, 2005). In addition, it was chosen as an approach to this review due to openness of PAR to

multiple research methodologies. Integrative review includes 5 steps: problem identification,

data search, data evaluation, data analysis and presentation. First, literature review highlighted

the issue of meaningful children’s participation in research processes. Second, comprehensive

data search strategy described below allowed to cover extensive number of articles. Third, at the

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data evaluation stage the selection of the papers was based on the premises of meaningful

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participation described in the literature review. Fourth and fifth, data analysis and presentation of

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the results are described in the results and discussion sections. As a result of this integrative

review, the taxonomy of PAR outcomes will be developed for three systems – for individuals,

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organizations, and communities (Torraco, 2005). Also, by Whittemore & Knalf’s and Torraco’s
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approaches, the discussion of interconnectedness between these systems of outcomes will be

provided. However, this paper does not aim to provide the fullest coverage of all existing PAR
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papers but rather focus on those papers that fit the evaluation criteria and purpose of the review -
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to synthesize the PAR outcomes for children, organizations and communities. Therefore, the

major criteria for selecting a paper was a reflective discussion on those outcomes as a result of
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PAR. Throughout this atricle, the terms “paper” and “article” are used interchangably.
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3.2.Search and Sampling Strategy

To identify PAR papers that collaborate with youth and children, seven online academic
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search engines were used: ProQuest, EBSCO, Jstor, Project Muse, PubMed, Scopus and Web of

Science. Search keywords were “ participatory action research,” “participatory research,”

“community-based participatory research,” “children,” “youth,” “teenagers,” “adolescents.”

Articles were searched for using the keywords mentioned above in the 7 major academic search

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engines. A total of 29, 152 non-exclusive abstracts were found, these were reviewed and

duplicates, articles that only contained one of the search terms, and abstracts that did not align

with the search criteria were eliminated (Figure 1). After those were removed from the search,

authors applied the preliminary exclusion criteria to further narrow the search. These preliminary

exclusion criteria are:

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(1) Articles that focus entirely on theory building were excluded.

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(2) Only empirical English-language peer-reviewed articles were included.

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(3) Articles discussing studies in which only adults participated were removed.

(4) Articles in which majority of the participants, even if defined as youth or young

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adults were over 18 years of age were excluded.
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(5) The focus of this review is on the impact of PAR on social issues. Thus, the

papers that were outside of this area (e.g. marketing or specialized medical
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treatment).
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(6) Articles published prior to January 2000 were excluded. Articles published after

January 2016 are not included due to the timing of the search.
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Figure 1 is here
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By applying these preliminary exclusion criteria, the possible articles for inclusion in this

review was reduced to a pool of 242. The aim of this study is to analyze outcomes of children’s
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participatory action research; therefore, the key criterion for evaluation inclusion were identified

with this in mind. PAR implies that a study done in this tradition should incorporate some social

change action component. Researchers working in this tradition are expected to attend to

planning, observing and reflecting on social change as a result of the study (Kemmis &

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McTaggard, 2005). Articles that do not describe the actions taken and reflection on the outcomes

of those actions were not included. The two evaluation inclusion criteria utilized were:

(1) Papers selected to be included in the review incorporate discussion of the

outcomes of children and youth’s participation in research (not the outcome of the

research or the answer to the research questions) for children themselves,

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organizations, and/or communities. Authors looked at the evidence of children’s

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or adults’ report on what changes PAR made on these three levels. If children

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were involved in PAR research testing new teaching methods and the paper did

not include the discussion on how it affected students, schools or communities,

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those articles were excluded as well. In addition, the attention was paid to the
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depth of children’s involvement.

(2) Articles that limit children’s participation to only being a source of data were
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excluded due to the lack of participation component and therefore, less likelihood
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to have and describe social change and impact occurring as a result of the study.

The most prominent example of those papers would be CBPR research where
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children were asked to fill out a survey without participation in other phases of
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research. Another example are papers that had some elements of PAR

methodology (e.g. consultation with stakeholders) utilized, but only included


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adults in those conversations.

As a result of the selection process, 45 papers were chosen for the review. This comprises

about 19% of the PAR papers that were identified after the second step of the selection.

Therefore, it is important to state that this review does not talk about the full coverage of PAR

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literature with children and youth, but rather a select group of papers that discuss the evidence of

PAR outcomes beyond the research results of the studies discussed in the articles.

3.3. Data Extraction

After the papers were identified, key relevant meaning units were identified. These

meaning unitz were authors’ names, journal name, year of publication, authors’ countries of

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affiliation, authors’ fields affiliations, children’s countries, topical focuses of the papers,

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information about the children’s backgrounds, age, their role in research, methodology used to

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collect data as well as identified outcomes for children, organizations and communities were

extracted.

3.4. Data Analysis


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Qualitative data on PAR outcomes for children, organizations, and communities were

compiled in a database and reduced by extracting relevant meaning units. Each relevant meaning
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unit was categorized into one of the three levels of potential outcomes that extend beyond the
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scope of each article’s research questions: (1) outcomes for children, (2) outcomes for

organizations, and (3) outcomes for communities. Some of the elements found in these units
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were personal reflections, evidence of participants’ feedback, or systemic effort to collect data on
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the action part of a study. Each each outcome, or relevant meaning unit, was extracted verbatim

and recorded in a table for coding. Meaning units were coded thematically and compared with
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each other to find patterns of similarities and differences. Related themes were identified,

grouped, and compared with each other (Whittemore & Knalf, 2005), resulting in the

development of a taxonomy of possible PAR outcomes (Table 1). To ensure the reliability of the

data extraction, the second researcher independently coded 30% of the selected manuscripts. The

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coders met and discussed discrepancies in in approaches and codes. Interrater reliability was

established at the level of 94% agreement.

3.5. Description of the Papers

PAR with children and youth is a relatively new, but ever growing field of research.

Within the 45 selected papers by year of publication, the majority (n=35) were published from

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2009-2016 (Full list of papers is available in Appendix A).

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The majority of the selected PAR papers with children and youth was published in public

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health journals (31%; n= 14), 18% of the papers appeared in psychology journals (n = 8), and

13% were in geography and natural science journals (n=6). Other papers were published in

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education journals 11% (n=5), social work journals – 9% (n=4) and sociology journals – 7%
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(n=3). Other journal fields (e.g. disaster management, art) constitute about 11 % (n=5) of

publication venues for the sampled papers.


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Authors of the selected papers belonged to a number of fields. Twenty-nine percent (n =


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13) of authors belong to public health and medicine, 16% (n=7) of authors were affiliated with

Education departments with the same number in psychology departments. Another 36% of the
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authors came from diverse backgrounds: practitioners, independent researchers, an


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anthropologist, a environmental scientist, and representatives from architecture/urban planning

departments constituted the small portions of the authors of the sampled papers. Each of these
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groups represented 4% (n=2) of all authors’ affiliations. Seven of the fields were only

represented by an individual researcher in each field. These fields are disaster management,

marketing, sociology, family studies, arts, international development, and social work. About

half of the studies (49%; n=22) were conducted by the interdisciplinary teams. Researchers from

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developed countries (ex. USA, UK, European Union, Australia) produced 82% of the selected

manuscripts. None of the authors were identified as children or youth.

Seventeen topic areas were identified among the sampled papers. Four of the most

prominent ones are community resources for youth development (16%; n= 7), health (16%; n=7),

violence and safety (11%; n=5), and education (11%: n=5).

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4. Results

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4.1. Participant Characteristics

Children from developing countries were involved in PAR projects in 27% of the

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reviewed articles. Sixty-four percent (n= 29) of the articles involved children of vulnerable
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backgrounds (ex. minority children, homeless, working children, LGBTQ). Forty percent (n =

18) of the articles did not describe their participants as having any kind of vulnerability.
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Figure 2. Here
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Most of the children and youth involved were from 10-18 years of age (Figure 2).
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Interestingly, only 8% (n=4) of articles describe research that involved children younger than 7
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years old and 20% (n=9) of papers had children younger than 10 years old included in PAR.

4.2. Methodologies
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Due to the fact that the PAR approach does not prescribe the utilization of any particular

methodology, the distribution of methodologies across papers was particularly interesting. Most

of the papers were qualitative (n=35) with mixed method methodology being the second most

widely used (n=7). Only 3 of 45 articles discussed the use of exclusively quantitative approaches.

Eight out of 9 papers with children younger than 10 years old utilized qualitative methodologies.
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Fourteen types of research methodology were identified based on the analysis of the

selected papers. Analysis of traditional vs. child-friendly methodological approaches shows that

the papers that solely employ child-friendly methodologies constitute 35% of the papers and

31% employed solely traditional methodologies. The rest of the papers utilized mixed

methodologies drawing from both child-friendly and traditional research tools. However, most

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frequently used methodologies were traditional qualitative tools such as interviews and focus

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groups (see Figure 3). A combination of child-friendly and traditional data collection approaches

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were a prevalent choice for researchers working with young children (less than 10 years old)
with the studies in 5 of 9 articles opting to utilize a combined approach.
Figure 3

4.3. Level of Children’s Engagement


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Papers also vary in the ways in which children and youth were engaged in the research
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process. Most papers described involving children as a source of data, as well as being the

collectors of the data itself. Additionally, in almost half of the selected papers, children and
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youth were involved in the dissemination of findings and, in almost 23% of the articles, children
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participated in recommendation and action plan development (see Figure 4). About half of the

papers involved children in more than two participation areas. Also, researchers were less likely
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to involve children and youth at early stages of research project and in data analysis.
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Figure 4

4.4. What are the Outcomes of PAR for Children and Youth, Organizations and
Communities?

Table 1.
Taxonomy of PAR Outcomes for Children, Organizations, and Community Developed
Through Analysis of Excerpts from Action Parts of the Selected Articles
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Themes: PAR Outcomes for Children and Youth


● Knowledge gain and formation of social justice awareness (n=8)
● Social-emotional and cognitive development (n=12)
● Relationship with adults (n=5)
● Connectedness with community (n=6)
● Child as an agent of social change (n=11)
Themes: PAR Outcomes for Organizations
● Changing organizational culture to more participatory and child-inclusive(n=14)
● Sensitizing of existing programs to the needs of children and youth (n=12)

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● Utilizing results for advocacy projects and public campaign (n=4)
● Applying for funding based on the PAR results (n=3)

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Themes: PAR Outcomes for Communities
● Creation of platform for intergenerational dialogue (n=4)

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● Formation of new outlets for children and youth voices (n=10)
● Advocacy for policy change (n=9)
● Raising community awareness (n=11)

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● Promotion of infrastructural change within community (n=13)

Figure 5. Distribution of PAR outcomes in the selected papers (separate file)


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Based on the thematic analysis of the PAR outcome descriptions derived from the
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selected papers, 14 outcomes were identified. They were grouped in three levels - for

children and youth, organizations and communities - based on the Ecological Model of
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Children’s Participation (Gal, 2017). Each outcome was mentioned at least 3 times with the
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majority of the included themes mentioned 8 times and more. At the individual level, the

authors of the selected PAR papers report the observed changes in children’s and youth’s
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social-emotional and cognitive development as well as the development of their skills as


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agents of change the most often. At the organizational level, the most frequent outcome

reported were changes in organizational culture to be more participatory and child-inclusive

and in sensitization of programs to better fit the needs of children and youth. At the

community level, infrastructural projects, advocacy project and raised community awareness

were the most reported outcomes. Interestingly, two relational outcomes - building

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relationship with adults and creating platforms for intergenerational dialogue - were not

mentioned as often as other outcomes.

4.4.1. Outcomes for Children and Youth


First, many researchers noted that children and youth involvement in PAR encouraged

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an increased social justice awareness and knowledge about the topic of research in the youths. As

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a result of their participation, children learned about disaster management (Haynes & Tanner,

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2015), health-related prevention strategies (Ross, 2011), and the process of decision-making

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(Dennis, Gaulocher, Carpiano & Brown, 2008). Based on authors’ report they also gained

research skills (Ross, 2011; Maglajilic, 2004; Hampshire et al., 2012), civic engagement skills
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(Ardoin, Castrechini & Hofstedt, 2014) and teamwork (Ross, 2011). A number of researchers

found that through the research participation experiences children and youth become more
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sensitized to issues of social justice (Morsillo & Prilleltensky, 2007; Bautista, Bertrand, Morrell,
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Scorza & Matthews, 2013; Betrozzi, 2010).


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Second, some researchers observed children and youth learning the process of taking

responsibility and taking leadership roles (Merves, Meszaros, Bond, Thatcher, Park, Kimbrell &
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Smith-Gregory, 2015; Stewards et al., 2008; Morsillo & Prilleltensky, 2007). This may be

connected to a noted tendency of increased children’s self-confidence and perceived ability to


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make a change (Stewards et al., 2008; Ardoin et.al., 2014; Hampshire et al., 2012; Morsillo &

Prilleltensky, 2007; Bautista et al., 2013). This increase in self-confidence and change-making

ability might be related to the observation that children and youth are given a chance to

understand their own identity and reframe their own experiences in a positive way in papers that

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include their participation (Houghton, 2015; Zeng & Silverstein, 2011; Flicker, 2008; Bautista et

al., 2013).

Third, enhanced relationships with adults appeared as a theme in researchers’ reflections

as well. A predominant feature of this theme is that children and youth participation helped to

challenge existing power imbalances between children and adults. The fostering of this power

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dynamic leads to the creation of environments where children were sincerely being heard by

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adults, were given a chance to work with them in one team, and learned tools for

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intergenerational communication and navigation within adult spaces (e.g. school kitchen)

(Malone, 2013; Chen et al., 2010; Conrad, 2015; Mathews, Mathews & Mwaja, 2010; Reich,

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Key & Lin, 2015). However, Wartenweiler & Mansukhani’s (2015) paper found that
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relationships between children and their parents around the issue of corporal punishment did not

change after children’s participation in research. Additionally, some adults disempowered young
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participants because the process of PAR appeared to contradict cultural norms of a community.
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In one study, children who participated in a PAR project had less time to help their parents with

household chores, which made some adults comment on the negative impact of PAR on
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children’s family responsibility (Hampshire et al., 2012).


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Fourth, community-based PAR with youth and children creates a ground for developing

and strengthening a sense of connectedness and belonging to the community. In marginalized


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communities, this happens through experiences of equal participation in problem identification

and development of ways to address and implement social change (Merves et al., 2015; Conrad,

2015; Ardoin et al., 2014; Flicker, 2008). Involvement in PAR gives children and youth a chance

to learn what it means to participate in community life and how to engage positively in creating a

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change (Morsillo & Prilleltensky, 2007; Ardoin et al, 2014; Flicker, 2008).

Fifth, the outcomes mentioned above work together in order to give children and youth

an opportunity to become agents of change within their own communities (Stewards et al, 2008;

Ross, 2011; Conrad, 2015 Mathews et al., 2010, Bautista et al., 2013). A number of researchers

noted that, after their PAR projects, some youth helped to create programs that address their

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needs, were empowered to seek and attain meaningful employment and/or college admissions,

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presented their findings in front of decision-makers, and helped their peers to make positive

CR
changes in their lives through peer-to-peer health prevention or empowering others to move

forward through life obstacles (ex. changing illegal child exploitive job into better one)

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(Stewards et al., 2008; Chen et al., 2010; Conrad, 2015; Garcia et al., 2014; Mathews et al.,
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2010, Bertozzi, 2010). The same authors noted the interconnectedness of education, social-

emotional, cognitive, and relational outcomes and a potential summative relationship with
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shifting status quo of children as passive objects of social change to children as active agents in
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this process.

4.4.2. Outcomes for organizations


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First, a number of researchers reported changes in organizational culture, especially, in


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terms of the power dynamic between care providers and children and youth as service

beneficiaries. It changed the perception of children and youth as passive service consumers to
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active participants of service delivery process (van Staa et al., 2009; Nelems & Currie, 2012;

Blazek & Hranova, 2012). These changes were facilitated through creating an opportunity for

children and youth to participate in the dissemination of findings through platforms (ex. city

council meeting) that were considered exclusively adults’ spaces before (ex. Ren & Langhout,

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2010; van Staa et al., 2009). Based on researchers’ observations in some cases it helped to shift

adults’ views on problems experienced by children and youth (ex. LGBTQ identity in Wernick et

al., 2014; child protection of immigrant children in Nelems & Currie, 2012). In several papers,

authors noted that children and youth engaged in additional trainings for organizational staff or

helped to develop job descriptions for the future hiring process based on the study findings

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(Chen et al., 2010; Snider et al, 2010; Ross, 2011; Kellet, 2010). Overall, researchers highlighted

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the infusion of participatory values into organizational culture as being a part of bigger social

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change agenda (Afifi, Makhoul, Hajj & Nakash, 2011; Clark, 2011).

Second, sensitization of program designs and implementations to the needs of children

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and youth was found to be a predominant theme in PAR organizational outcomes. Researchers
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reported that inclusion of children and youth at early stages of program development (e.g.. needs

assessment in van Staa et al., 2009; or pilot testing) or into program evaluation (e.g. setting
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program outcomes in Snider et al., 2010) influenced how well children’s and youth’s needs are
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incorporated into the program, as well as how adjusted programs are more developmentally

appropriate for the clients (Minh, Patel, Bruce-Barret & O’Campo, 2015; Siu & Kwok, 2004;
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Ross, 2011; Snider et al, 2010; Nelems & Currie, 2012; Brown et al., 2010; Ardoin et al., 2014;
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Dodington, Mollen, Woodlock, Hausman, Richmond & Fein, 2012; Soleimanpour et al., 2008).

Third, organizations developed awareness and advocacy campaigns that were informed
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by the perspectives of the children and youth on services provided to them (Wartenweiler &

Mansukhani, 2015; Snider et al, 2010; Nelems & Currie, 2012; Flicker, 2008). In one such study,

PAR with children in the Philippines empowered children to produce an educational video about

the impact of corporal punishment on their lives which then became a part of a training toolkit

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that was used by local NGO network (Wartenweiler & Mansukhani, 2015).

Fourth, several organizations’ participation with children and youth in PAR promoted

their ability to apply for grants based on the outcome of PAR studies (Flicker, 2008; Snider et al.,

2010, Chen et al., 2010). One hospital-based study, that included the involvement of children and

youth, facilitated the development of a proposal to fund an educational program aimed at

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teaching nonjudgmental communication to hospital staff (Snider et al., 2010).

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As a result, PAR with children and youth facilitated organizational level changes

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including cultural and programmatic shifts, as well as provided resources for effective social

issue campaigns and fundraising. Organizations were depicted in many articles as a tool for

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leveraging change within communities, discussed in detail in the next section.
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4.4.3. Outcomes for Community

First, multiple researchers noted that PAR methodology provides a space for
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intergenerational dialogue on a community level. This dialogue between adults and children is
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based on respectful relationships (Chukwudozie, Feinstein, Jensen, O’Kane, Pina, Skovdal &

Smith, 2015), shared meetings (Wartenweiler & Mansukhani, 2015; Conrad, 2015), youth-led
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workshops and discussions on community issues with adults (Garcia & Brown, 2009; Conrad,
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2015; Garcia et al., 2014), and better communication between generations (ex. teachers and

students in Reich, Key & Lin, 2015).


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Second, some evidence shows that PAR facilitated formation or strengthening of outlets

for children and youth’s voices (ex. youth council in Bautista et al., 2013). Malone (2013)

reported creating a youth advisory board for neighborhood construction project. In another

project, Youth Community Committee was created as a part of PAR project in order to create

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mental health services for refugee children in Lebanon (Afifi et al., 2008).

Third, PAR researchers tended to involve children and youth in community awareness

and educational campaigns. The youth were encouraged to create an online platform and share

the results of the study through social media (Wartenweiler & Mansukhani, 2015). Traditional

media outlets (i.e. TV and newspaper) were also utilized as informational channels through

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which the findings were disseminated by youth (Maglajlic, 2004; Garcia et al., 2014; Mathews et

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al., 2010). Additionally, youth were offered the opportunity to disseminate findings to other

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youth through a peer-to-peer education program that resulted from PAR projects (Maglajlic,

2004, Bertozzi, 2010)

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Fourth, children and youth, with the help of adults, were able to participate in advocacy
AN
efforts and promote policy changes (Houghton, 2015; Garcia et al., 2014; Reich, Key & Lin,

2015). School-level policies were the most reported changes including menu adjustment in the
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school cafeteria (Reich, Key & Lin, 2015), revisions to sexual education policies (Soleimanpour
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et al., 2008), as well as the elimination of discrimination and racism (Bautista et al., 2013).

Wernick et al. (2014) documented that as a result of a PAR project, the LGBTQ youth group in
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one school was able to change district-level non-discrimination policy, adding gender identity
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and gender expression statements and creating provisions for anti-LGBTQ verbal and physical

harassment policy. Another group of young PAR participants advocated for more strict Tobacco
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Access legislation by organizing a Legislative Day, presenting their findings at Senate. Later a

group of senators filed Act to Control Access to Tobacco (Ross, 2011).

Fifth, another prominent outcome was the improvement of community infrastructure.

These improvements tend to vary across projects including filling old mining pits (Haynes &

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Tanner, 2015), building new gender-neutral restrooms (Wernick et al., 2014), transport

accommodation for children with disabilities (Kellet, 2010), creating new facilities for water

filtration (Garcia & Brown, 2009), reviving playgrounds (Hutzel, 2007), participation in school

reconstruction after disaster (Zeng & Silverstein, 2011), building important community places

(Morsillo & Prilleltensky, 2007), or whole neighborhood utilizing children’s view on community

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needs (Clark, 2011).

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Overall, PAR outcomes in the communities were widely discussed. These effects of

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PAR supported the premise of children’s participation as a mechanism of community change by

creating platforms for intergenerational dialogue and outlets for children’s voices, facilitating

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infrastructural and policy changes, and raising community awareness of children’s related issues.
AN
5. Discussion

Based on Bronfebrenner’s ecological system theory and Gal’s Ecological Model of


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Participation as its derivative, it can be argued that all outcomes of PAR for youth, organizations,
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and communities are interconnected. Children who are sensitized to social justice issues, have a

healthy relationship with adults, and feel a sense of belonging to their community are probably
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more likely to exhibit prosocial behavior and become the agents of change. Overall, Ozer and
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Douglas (2013) found that participation in research makes children and youth more willing to

create positive changes in their school. In addition, Kim (2013) found that healthy relationships
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with parents and teachers are predictors of children’s prosocial behavior. Research also shows

the positive long-term outcomes of the development of those skills for children and youth. In one

example of this, a longitudinal 20 years long study shows that early development of children’s

prosocial skills impacts future education, employment, and non-engagement in criminal activity

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(Damon, Greenberg & Max, 2015).

At the organizational level, changes in organizational culture to more child-inclusivity are

evidenced through a number of outcomes. Some ways in which this organizational change

manifests include sensitizing their programs to the needs of children, presenting children’s

voices through advocacy campaign, and funding appeals to help organizations to improve their

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services and serve children and youth better. This kind of participatory environment within an

IP
organization supports children’s agency, as well as creates a platform for the participation of

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children and youth.

Organizations can translate children’s participatory potential to communities and

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leverage opportunities for creating intergenerational dialogue around children and youth’s issues,
AN
form outlets for their voices, and create platforms for their participations in policy changes.

Communities also benefit from PAR with children and youth in terms of raising awareness
M

through educational and informational campaigns around the issue, as well as receiving
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infrastructural upgrades. This process of change would be impossible without PAR impacts on

children, building organizational capacities, and negotiation of adult power in relation to children
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within communities.
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Despite the number of positive outcomes that children and youth’s involvement in PAR

generates, it is important to highlight three major PAR challenges on children’s, organizational


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and community levels that are derived from the complexity of participatory processes and

contexts intersecting with a child’s individual characteristics (Gal, 2017).

5.1 Challenge #1: Younger Children and PAR

Special attention should be devoted to the participation of children younger than 10 years

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old, as because this group are highly underrepresented in the selected papers. Only 8% of papers

included children 7 years and older and 20% younger than 10 years old. There are two main

factors that help to contribute to the explanation of this phenomenon. One factor is young

children’s capacity to participate using their cognitive, social-emotional, and linguistic

developmental levels (Jacquez et al., 2013). This emphasis on the (in)capability of young

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children to participate is a legacy of developmental psychology that emphasizes the lack of

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young children’s critical reasoning (e. g. Piaget). Another relevant factor is the prevalence of

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traditional qualitative tools and surveys among the most frequently used ones.

Development and validation of methodologies for younger children should become a

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priority to the PAR field, as it would help to address the discrimination against young children’s
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right to participate or at least be consulted, as proposed by UN Convention on the Right of Child

(Clark, 2011). This leads to tension between the rights-based approach that states that all children
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have an equal right to participate (participatory context) (UNCRC, 1989) and the practicalities of
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research (participatory processes). To address this tension, the concept of developing capacity

for participation has been introduced. It highlights that children’s right to participation should be
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treated as a value that drives our decisions in regards to the children’s involvement in PAR
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studies despite of their age. At the same time, recognizing that some capacity to participate (ex.

reflections on social injustice) might not be developed yet which in turn puts additional
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responsibilities on adult researchers to develop children and youth’s ability to participate (ex.

scaffolding) (Gal, 2017).

Only a few studies in this review invited exclusively young children to participate (ex.

younger than 7 years old). Clark (2011) proposed the Mosaic approach for involving very young

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children to PAR which entails “methods which are active and accessible and not reliant on the

written or spoken word” (Clark, 2011). Similarly, Malone (2013) conducted research with 5-6

years old eliciting data on their opinion about the neighborhood by utilizing drawing and

followed up discussion. Young children are still quite dependent on the important adults in their

lives, therefore, Clark (2011) proposes to include these individuals in the research process as

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well (2011).

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5.2 Challenge #2: Meaningful Participation: Methodological Insights

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Participation patterns were an issue that became apparent within these articles. Children

and youth tend to be involved at the latest stages of research and are under-included at early and

US
data analysis stages. This trend could create a situation in which children can be used as
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decoration or their voices can be manipulated (Hart, 1992). While the selected papers did not

show any of these signs, the majority of the 155 papers removed from the review were excluded
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due to the inclusion of children as a data source only during data collection phase. The situation
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in which a researcher identifies a problem, propose research questions, designs a study, and

analyzes the data might possess a higher risk of exercising power over children’s opinions or
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misinterpreting their voices (James, 2007). Though many projects are limited in the amount of
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time and resources they can spend on field work, expanding the areas of children and youth

participation, beyond their use as a data source, must be prioritized as a part of research design.
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However, the selected PAR papers with children and youth with a “genuine” level of

participation tend to involve an average of 20-25 children and youth per paper which can be

explained by logistical, methodological, and ethical reasons. The process of involving and

training children and youth about research takes time, money, and staff resources. The attention

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that each participant needs to be genuinely engaged may vary but is generally pretty high

(Bradbury-Jones & Taylor, 2015). Quantitative approaches may promote involvement of higher

number of children and youth but may not always be the best choice for facilitation of genuine

participation (Bradbury-Jones & Taylor, 2015).

Based on the studies selected in this review, the following set of enabling methodological

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choices has been identified that support meaningful participation:

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○ Training: Researchers noted that meaningful participation of children requires

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trust building time and activities such as training. If methodology requires the use

of expensive equipment (ex. photo and video cameras), it is important to train

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children on how to use it carefully but still leave them a space to capture their
AN
voice through the recording devices on their own (Blazek & Hranova, 2012).

Training for the children and youth participants, especially from the marginalized
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groups, is a key due to their lack of confidence in the ability to perform


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participatory tasks on their own (Bertozzi, 2010; Blazek & Hranova, 2012; Chen

et al., 2010; Foster-Fishman et al., 2010). Some children and youth participated in
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the selected studies reported not confidents and uncomfortable performing


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research tasks as well (Chukwudozie et al., 2015; Soleimanpour et al., 2008). The

PAR training done before the main project begins serves as an empowerment tool
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that might determine the outcome of the participation. Moreover, the training

itself serves as a rapport building between young participants and the researchers.

Inclusion on PAR team of a younger researcher (ex. university student, youth

from the community) was noted to have positive effect on trust building and

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training outcomes (Afifi et al., 2011; Blazek & Hranova, 2012).

○ Child-friendly data collection tools: Another feature that differentiates

meaningful participation is the use of age-appropriate data collection tools that

facilitates interest and ability to stay focused for children of different ages

(Chukwudozie et al., 2015; Foster-Fishman et al., 2010; Wickenden & Kembhavi-

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Tam, 2014). Children find that body mapping, social service mapping, visioning

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trees, and Family Album Techniques are easy and fun ways to respond to the

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adults’ request for the information (Chukwudozie et al., 2015). However, the risks

associate with the reduced rigor of those data collection tools are noted as well

(Chukwudozie et al., 2015).


US
AN
○ Involvement in data analysis: One more way to ensure the meaningfulness of

children’s participation in research is their involvement in data analysis


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(Chukwudozie et al., 2015; Chen et al., 2010; Foster-Fishman et al., 2010). This
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can be conducted in the form of a reflection workshop that provides a space for

children to voice their opinion about the findings and collaborate on the
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recommendations (Chukwudozie et al., 2015), a group theming exercise (Chen et


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al., 2010), or a set of data analysis games (ex. ReACT) (Foster-Fishman et al.,

2010).
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○ Meaningful venues for dissemination. It is important for the children and youth

participants to present the results of their work for those who can truly make a

change in the issue of their concern, otherwise, children might feel that they work

has been devalued (Soleimanpour et al., 2008).

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5.3 Challenge #3: Cultural Context and PAR with Children and Youth

Only 27 % of the papers conducted were with children from developing countries.

Overall, research done with these children is disproportionate to the severity of issues and the

number of children that live in developing vs. developed countries. Numerous articles have been

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written on child well-being in the developed countries, while only 1% of the research targeted

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the issues of child well-being in the developing world (Pollard & Lee, 2003). This is especially

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disproportionate, as the children in the developing world comprise 95% of the total world’s

population of children (Liddell, 1998). The sample of papers selected represent a wide variety of

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children’s location. However, the level of children’s participation varies across developing
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countries as they represent a wide range of cultures (Liebel, 2012).

It is important to take into account that of the 12 papers (27%) that involved children
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from developing countries, eight were done by or in partnership with researchers from the
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developed world. In part, this can be explained by the larger research infrastructure that exists in

the West allowing the development of a higher quality of PAR studies, as well as the presence of
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international aid agencies committed to children participation in developing countries. Another


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reason might be rooted in the cultural view on children’s role in society and their role in decision

making. Despite these barriers to researchers in developing countries conducting studies


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independently of collaboration with those in developed countries, it is an obligation of the

supporting researchers to honor and facilitate the agency and vision of the researchers and

participants situated in the area being studied (Liedel, 2012).

The social distance between adults and children varies across cultures and therefore it is

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important to reflect on the relationship we build while conducting PAR studies with children and

youth. The frequency analysis of identified themes showed that the outcomes that reflect the

quality of relationship between children and adults (ex. building relationship with adults, creating

platform for intergenerational dialogue) were not reported as often as other outcomes. We argue

that the lack of focus on these PAR outcomes might be a reason for lack of sustainability of the

T
actions taken as a result of PAR with children and youth. For example, Garcia et al. (2014)

IP
noted that despite the immediate success of a community renovation project in the U.S., the

CR
sustainability of the outcomes was lacking. The playground created with the children was not

available to them after sometime and local powers contradicted the policy changes promoted by

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youth which disempowered the research team and the youth who participated in the project
AN
(Garcia et al., 2014). The playground was locked by the adults who deemed it to be a dangerous

for the youth.. Building the relationship between the adults and youth in this community would
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help prevent the playground closure and ensure that trust between groups is achieved.
ED

In the context of developing countries, Hampshire et al. (2012) reported that some of the

children participated in the PAR had less time for school work and household chores. Taking
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into account that in some countries children a large contributor to home economics, their
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participation in the research might seem secondary and not approved by the adults. Installing

opportunity for intergenerational dialogue into the project would allow for negotiation of the
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time for children to participate and inform adults about the importance of children’s

participation.

In patriarchal communities, children and youth might not be encourage to be vocal about

their opinions, especially, while in the the presence of the adults (Afifi et al., 2011; Chukwudozie

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et al., 2015 ). Therefore the PAR team in Lebanon created a youth committee within which

children and youth shared their opinions more freely (Afifi et al., 2011). In Sub-Saharan Africa,

Chukwudozie and collegues (2015) reported that for the negotiating the power differences

between adults and children, they held the meetings with the village chiefs. In order to ensure

that children’s voices are heard, the research team discussed the project in details with the

T
caregivers and created a team of peer researchers who were accompanied by the trained adult

IP
researcher to support children and youth in the research tasks and ensure their safety. In addition,

CR
children who are socialized to agree with adults tend to respond in socially desirable ways. The

patterns of socially conforming answers were noted in the PAR study with disabled children in

US
India and Sri Lanka (Wickenden & Kembhavi-Tam, 2014). The research team changed their
AN
style of communication with the children to more informal and relaxed which prompted more

authentic answers (Wickenden & Kembhavi-Tam, 2014)..


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Three main barriers for conducting meaningful PAR were mentioned in the studies: (1) a
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lack of funding for PAR research, (2) the time it consumes for all involved, (3) and the political

climate preventing meaningful distribution of the results of PAR with children and youth.
PT

Researchers agreed that these factors might negatively influence the rigorous PAR procedures
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and the meaningfulness of the children’s involvement (Chukwudozie et al., 2015; Flicker, 2008;

Nelems & Currie, 2012). In addition, if a PAR study is being carried out in an educational
AC

setting, some researchers noted that they had to adjust their research plans according to school

calendars, which may mean cutting out some participatory activities (Soleimanpour et al., 2008).

Application of the Ecological Model of Participation (Gal, 2017) allowed us to analyze

the challenges presented above by looking at the intersection between individual characteristics

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of a child, participatory processes and contexts. Attending to the issues of cultural sensitivity of

children’s participation (context) is impossible without adjusting methodology and protocols

(participatory process). Additionally, the creation of PAR methodology is difficult without

addressing the developmental abilities of the child to participate, especially in cases when the

development of children’s participatory skills by the research team is inevitable part of PAR

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methodology. Addressing the challenges that PAR with children and youth face must include

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taking into account reciprocal interactions between individual, process, and context

CR
characteristics of PAR studies.

6. Limitations

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As a term, PAR is inconsistently used and often operationalized in different ways,
AN
depending on the article. Jaquez et al. (2013) also noted that CBPR, action research, or

participatory action research and other approaches from this continuum do not have a clear
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definition and, moreover, have their definition vary from field to field. Therefore, several terms
ED

were used to retrieved papers for this review. However, due to this terminological confusion,

there are might be studies that did not end up in the final list, due to the ways authors name it or
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chose to use keywords.


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Another limitation comes from the fact that descriptions of PAR outcomes are often

anecdotal and based on authors’ reflections. Reporting vs. not reporting of PAR outcomes might
AC

be related to the length of community involvement, lack of resources in assessing the impacts of

PAR approach itself, lack of time, and limited lengths of publications. Some papers included

deep reflections on all three areas of reviewed outcomes but were not consistent in the

description of their sample. As a result, they were excluded from the review due to inability to

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determine whether participants under 18 years old took part.

Finally, the results of PAR studies can be disseminated in multiple forms that are not

academic peer-review literature including organizational evaluation report, community

presentations, and artistic forms of expression. Therefore, it is important to note that this review

is limited to only academic peer-review sources in English. It can be speculated that this might

T
skew the findings into more positive side as some lessons learned might be more likely to exist

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in the “grey” literature. In addition, IRB requirements might influence which studies are

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published in the peer-review journals as well.

7.Further direction of the research

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Future research might be beneficial especially in the area of PAR outcomes in different
AN
cultural contexts as well as in regard to the relationship of these outcomes depending on

children’s age, the methodology used, and area of participation. Only two articles reported some
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negative consequences of children’s participation in research. Despite the overall positive


ED

influence of children’s participation, possible negative outcomes need additional attention and

investigation in order to establish PAR with children and youth as an ethical epistemological
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paradigm.
CE

Additionally, there is a need for some standardization in the way PAR studies are

presented and published. While reviewing PAR studies with children and youth we have noticed
AC

multiple times the discrepancies in reporting formats of PAR research. There are several

recommendations can be made for PAR authors including importance of reporting:

- Children’s age;

- Depth of children’s and youth involvement including the exact roles they play

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- Distribution of power between adults and children in research process including

the discussion of the nature of their relationship (ex. who initiated the project; at

what stage children are introduced to the idea; description of cultural context in

which child-adult relationship occurs);

- If the methodology is identified as PAR then reporting on the set of actions

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implemented and the outcomes of those actions observed including problematic

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outcomes is vital.

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It would help in further systematic research and integrative analysis of these studies. Further

studies might propose the standard format of PAR studies reporting in academic journals that

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would adjust for specificity of the PAR with children and youth.
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8. Conclusion

PAR with children and youth has shifted from being an exotic approach to research to
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occupying a space within research epistemologies. This integrative review provides evidence of
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positive consequences of the reviewed PAR studies for children, organizations, and

communities. However, the academic community needs to continue its critical dialogues around
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issues surrounding children’s participation such as access to participation by young children,


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expanding the areas of participation in research, methodological tools for children and youth

participation, as well as the cultural sensitivity of PAR as the approach of engaging children and
AC

youth in decision-making around social issues. The results of this integrative review could be

used by practitioners who would like to engage their organizations into PAR with children and

youth to justify its potential benefit for children, organizations, and communities, to

management, funders, and other stakeholders.

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This research did not receive any specific grant from funding agencies in the public,

commercial, or not-for-profit sectors.

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IP
References

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Adu-Gyamfi, J. (2013). Can children and young people be empowered in participatory

initiatives? Perspectives from young people’s participation in policy formulation and

US
implementation in Ghana. Children and Youth Services Review, 35(10), 1766–1772.
AN
doi:10.1016/j.childyouth.2013.08.003

Afifi, R. A., Makhoul, J., Hajj, T. E., & Nakkash, R. T. (2011). Developing a logic model for
M

youth mental health: Participatory research with a refugee community in Beirut. Health
ED

Policy and Planning, 26(6), 508–517. doi:10.1093/heapol/czr001

Arbeiter, E., & Toros, K. (2017). Participatory discourse: Engagement in the context of child
PT

protection assessment practices from the perspectives of child protection workers, parents
CE

and children. Children and Youth Services Review, 74, 17–27.

doi:10.1016/j.childyouth.2017.01.020
AC

Ardoin, N. M., Castrechini, S., & Hofstedt, M. K. (2014). Youth–community–university

partnerships and sense of place: Two case studies of youth participatory action research.

Children’s Geographies, 12(4), 479–496. doi:10.1080/14733285.2013.827872

Begley, A. (2000). The educational self-perception of children with Down Syndrome. In A.

Greig & J. Taylor (Eds.), Researching children's perspectives. (pp. 98-112). Philadelphia:
36
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Open University Press.

Bertozzi, R. (2010). A participatory approach to research with migrant working adolescents.

Migration Letters, 7(1), 57–67.

Betancourt, T. S., Frounfelker, R., Mishra, T., Hussein, A., & Falzarano, R. (2015).

Addressing health disparities in the mental health of refugee children and adolescents

T
through community-based participatory research: A study in two communities. American

IP
Journal of Public Health, 105(3), 475–482. doi:10.2105/AJPH.2014.302504

CR
Blazek, M., & Hraňová, P. (2012). Emerging relationships and diverse motivations and benefits

in participatory video with young people. Children’s Geographies, 10(2), 151–168.

doi:10.1080/14733285.2012.667917
US
AN
Bradbury-Jones, C., & Taylor, J. (2015). Engaging with children as co-researchers: challenges,

counter-challenges and solutions. International Journal of Social Research Methodology,


M

18(2), 161–173. doi:10.1080/13645579.2013.864589


ED

Brown, J. (2013). When all the children are left behind: An exploration of fosterage of Owambo

orphans in Namibia, Africa. In D. J. Johnson, D. L. Agbényiga, & R. K. Hitchcock


PT

(Eds.), Vulnerable children: Global challenges in education, health, well-being and


CE

children's rights (pp. 185–202). Springer New York. Retrieved from

http://link.springer.com/chapter/10.1007/978-1-4614-6780-9_13
AC

Chen, P., Weiss, F. L., & Nicholson, H. J. (2010). Girls study Girls Inc.: Engaging girls in

evaluation through participatory action research. American Journal of Community

Psychology, 46(1-2), 228–37. doi:10.1007/s10464-010-9328-7

Cheney, K. E. (2011). Children as ethnographers: Reflections on the importance of participatory

37
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

research in assessing orphans’ needs. Childhood, 18(2), 166–179.

doi:10.1177/0907568210390054

Chou, F., Kwee, J., Lees, R., Firth, K., Florence, J., Harms, J., … Wilson, S. (2015). Nothing

about us without us! Youth-led solutions to improve high school completion rates.

Educational Action Research, 23(3), 436–459. doi:10.1080/09650792.2015.1013047

T
Chukwudozie, O., Feinstein, C., Jensen, C., OʼKane, C., Pina, S., Skovdal, M., & Smith, R.

IP
(2015). Applying community-based participatory research to better understand and

CR
improve kinship care practices: Insights from the Democratic Republic of Congo,

Nigeria, and Sierra Leone. Family & Community Health, 38(1), 108–119. doi:

10.1097/FCH.0000000000000052
US
AN
Clark, A. (2010). Young children as protagonists and the role of participatory, visual

methods in engaging multiple perspectives. American Journal of Community Psychology,


M

46(1-2), 115–23. doi:10.1007/s10464-010-9332-y


ED

Clark, A. (2011). Breaking methodological boundaries? Exploring visual, participatory methods

with adults and young children. European Early Childhood Education Research Journal,
PT

19(3), 321–330. doi:10.1080/1350293X.2011.597964


CE

Clark, A., Flewitt, R., Hammersley, M., Robb, M., & Open University (Eds.). (2014).

Understanding research with children and young people. London ; Thousand Oaks,
AC

California: SAGE.

Conrad, D. (2015). Education and social innovation: The Youth Uncensored Project--A case

study of youth participatory research and cultural democracy in action. Canadian Journal

of Education, 38(1), 1–25.

38
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Crivello, G., Camfield, L., & Woodhead, M. (2009). How can children tell us about their well-

being? Exploring the potential of participatory research approaches within Young Lives.

Social Indicators Research, 90(1), 51–72. doi:10.1007/s11205-008-9312-x

Dennis Jr., S. F., Gaulocher, S., Carpiano, R. M., & Brown, D. (2009). Participatory photo

mapping (PPM): Exploring an integrated method for health and place research with

T
young people. Health & Place, 15(2), 466–473. doi:10.1016/j.healthplace.2008.08.004

IP
Dodington, J., Mollen, C., Woodlock, J., Hausman, A., Richmond, T. S., & Fein, J. A. (2012).

CR
Youth and adult perspectives on violence prevention strategies: A community-based

participatory study. Journal of Community Psychology, 40(8), 1022–1031.

doi:10.1002/jcop.21513
US
AN
Fattore, T., Mason, J., & Watson, E. (2009). When children are asked about their well-being:

Towards a framework for guiding policy. Child Indicators Research, 2(1), 57–77.
M

doi:10.1007/s12187-008-9025-3
ED

Flicker, S. (2008). Who benefits from community-based participatory research? A case study of

the Positive Youth Project. Health Education & Behavior, 35(1), 70–86.
PT

doi:10.1177/1090198105285927
CE

Foster-Fishman, P., Nowell, B., Deacon, Z., Nievar, M. A., & McCann, P. (2005). Using

methods that matter: The impact of reflection, dialogue, and voice. American Journal of
AC

Community Psychology, 36(3-4), 275–91. doi:10.1007/s10464-005-8626-y

Garcia, A. P., Minkler, M., Cardenas, Z., Grills, C., & Porter, C. (2014). Engaging

homeless youth in community-based participatory research: A case study from Skid Row,

Los Angeles. Health Promotion Practice, 15(1), 18–27. doi:10.1177/1524839912472904

39
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

García, C. E. R., & Brown, S. (2009). Assessing water use and quality through youth

participatory research in a rural Andean watershed. Journal of Environmental

Management, 90(10), 3040–3047. https://doi.org/10.1016/j.jenvman.2009.04.014

Greene, S., & Hogan, D. (2005). Researching children's experience: Methods and approaches.

Thousand Oaks, London; SAGE.

T
Greig, A., & Taylor, J. (1999). Doing research with children. Thousand Oaks, London; SAGE

IP
Publications.

CR
Hampshire, K., Porter, G., Owusu, S., Mariwah, S., Abane, A., Robson, E., … Bourdillon, M.

(2012). Taking the long view: Temporal considerations in the ethics of children’s

US
research activity and knowledge production. Children’s Geographies, 10(2), 219–232.
AN
doi:10.1080/14733285.2012.667921

Hart, R. A. (1992). Children’s participation: From tokenism to citizenship. Florence, Italy:


M

UNICEF International Child Development Centre.


ED

Haynes, K., & Tanner, T. M. (2015). Empowering young people and strengthening resilience:

youth-centred participatory video as a tool for climate change adaptation and disaster risk
PT

reduction. Children’s Geographies, 13(3), 357–371. doi:10.1080/14733285.2013.848599


CE

Houghton, C. (2015). Young people’s perspectives on participatory ethics: Agency, power and

impact in domestic abuse research and policy-making. Child Abuse Review, 24(4), 235–
AC

248. doi:10.1002/car.2407

Hutzel, K. (2007). Reconstructing a community, reclaiming a playground: A participatory action

research study. Studies in Art Education, 48(3), 299–315.

http://www.jstor.org/stable/25475831

40
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Israel, B. A. (Ed.). (2013). Methods for community-based participatory research for health (2nd

ed). San Francisco, CA: Jossey-Bass.

Jacquez, F., Vaughn, L. M., & Wagner, E. (2012). Youth as partners, participants or passive

recipients: A review of children and adolescents in community-based participatory

research (CBPR). American Journal of Community Psychology, 51(1-2), 176–189.

T
doi:10.1007/s10464-012-9533-7

IP
James, A. (2007). Giving voice to children’s voices: Practices and problems, pitfalls and

CR
potentials. American Anthropologist, 109(2), 261–272.

Jones, A. (2004). Involving children and young people as researchers. In S. Fraser, V. Lewis, S.

US
Ding, M. Kellett & C. Robinson (Eds.), Doing research with children and young people
AN
(pp.113-131). London: Sage.

Jones, D., Greenberg, M., Crowley, M. (2015). Early social-emotional functioning and
M

public health: The relationship between kindergarten social competence and future
ED

wellness. American Journal of Public Health, 105(11), 2283-2290.

doi:10.2105/AJPH.2015.302630
PT

Kellett, M. (2010). Small shoes, big steps! Empowering children as active researchers.
CE

American Journal of Community Psychology, 46(1-2), 195–203. doi:10.1007/s10464-

010-9324-y
AC

Kellett, M., Robinson, C., & Burr, R. (2004). Images of childhood. In S. Fraser, V. Lewis, S.

Ding, M. Kellett & C. Robinson (Eds.), Doing research with children and young people

(27-43). London: Sage.

Kemmis, S., & McTaggard, R. (2003). Participatory action research. In N. K. Denzin & Y. S.

41
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Lincoln (Eds.), Strategies of qualitative inquiry (2nd ed, pp. 271–329). Thousand Oaks,

CA: Sage.

Kennedy, D. (2006). The well of being: Childhood, subjectivity, and education. Albany: State

University of New York Press.

Kim, H. (2013). Prosocial behavior among children with and without disabilities: Centering on

T
teacher’s perception on the teacher-child relationship. Retrieved from

IP
http://digitalcommons.uri.edu/hdf_facpubs/15/

CR
Komulainen, S. (2007). The ambiguity of the child’s “voice” in social research. Childhood,

14(1), 11–28. doi:10.1177/0907568207068561

US
Kulbok, P. A., Meszaros, P. S., Bond, D. C., Thatcher, E., Park, E., Kimbrell, M., & Smith-
AN
Gregory, T. (2015). Youths as partners in a community participatory project for

substance use prevention: Family & Community Health, 38(1), 3–11.


M

doi:10.1097/FCH.0000000000000061
ED

Langhout, R. D., & Thomas, E. (2010). Imagining participatory action research in collaboration

with children: An introduction. American Journal of Community Psychology, 46(1-2),


PT

60–66. doi:10.1007/s10464-010-9321-1
CE

Langston, A., Abbott, L., Lewis, V. & Kellett, M. (2004). Early childhood. In S. Fraser, V.

Lewis, S. Ding, M. Kellett & C. Robinson (Eds.), Doing research with children and
AC

young people (pp. 27-43). London: Sage.

Liddell, C. (1998). Conceptualizing “childhood” in developing countries. Psychology &

Developing Societies, 10(1), 35–53. doi:10.1177/097133369801000103

Liebel, M. (2012). Children’s rights from below: cross-cultural perspectives. New York:

42
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Palgrave Macmillan.

Lewis, A., & Lindsay, G. (2000). Researching children's perspectives. Philadelphia;

Buckingham [England]; Open University Press.

Liegghio, M., Nelson, G., & Evans, S. D. (2010). Partnering with children diagnosed with mental

health issues: Contributions of a sociology of childhood perspective to participatory

T
action research. American Journal of Community Psychology, 46(1-2), 84–99.

IP
doi:10.1007/s10464-010-9323-z

CR
Maglajlic, R. A. (2010). “Big organizations” supporting “small involvement”: Lessons from

Bosnia and Herzegovina on enabling community-based participation of children through

US
PAR. American Journal of Community Psychology, 46(1-2), 204–14.
AN
doi:10.1007/s10464-010-9322-0

Malone, K. (2013). “The future lies in our hands”: Children as researchers and environmental
M

change agents in designing a child-friendly neighbourhood. Local Environment, 18(3),


ED

372–395. doi:10.1080/13549839.2012.719020

Mason, J. & Bolzan, N. (2010). Questioning understanding of children’s participation: applying


PT

a cross-cultural lens. In B. Percy-Smith & N. Thomas (Eds.), A handbook of children and


CE

young people’s participation: Perspectives from theory and practice (125-133). New

York: Routledge.
AC

Mason, J., & Hood, S. (2011). Exploring issues of children as actors in social research. Children

and Youth Services Review, 33(4), 490–495. doi:10.1016/j.childyouth.2010.05.011

Mathews, J. R., Mathews, T. L., & Mwaja, E. (2010). “Girls Take Charge”: A community-based

participatory research program for adolescent girls. Progress in Community Health

43
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Partnerships, 4(1), 17–24.

McIntyre, A. (2000). Constructing meaning about violence, school, and community:

Participatory action research with urban youth. Urban Review, 32(2), 123. doi:

10.1023/A:1005181731698

McTavish, M., Streelasky, J., & Coles, L. (2012). Listening to children’s voices: Children as

T
participants in research. International Journal of Early Childhood, 44(3), 249–267.

IP
doi:10.1007/s13158-012-0068-8

CR
Merves, M., Rodgers, C. R. R., Silver, E. J., Sclafane, J. H., & Bauman, L. J. (2015). Engaging

and sustaining adolescents in community-based participatory research: Structuring a

US
youth-friendly community-based participatory research environment. Family &
AN
Community Health, 38(1), 22–32. doi:10.1097/FCH.0000000000000057

Minh, A., Patel, S., Bruce-Barrett, C., & OʼCampo, P. (2015). Letting youths choose for
M

themselves: Concept mapping as a participatory approach for program and service


ED

planning. Family & Community Health, 38(1), 33–43.

doi:10.1097/FCH.0000000000000060
PT

Minkler, M., & Wallerstein, N. (2008). Community-based participatory research for health from
CE

process to outcomes. San Francisco, CA: Jossey-Bass. Retrieved from

http://public.eblib.com/choice/publicfullrecord.aspx?p=588918
AC

Morsillo, J., & Prilleltensky, I. (2007). Social action with youth: Interventions, evaluation, and

psychopolitical validity. Journal of Community Psychology, 35(6), 725–740.

doi:10.1002/jcop.20175

Nelems, M., & Currie, V. (2012). Listening to Iraqi refugee children in Jordan, but then what?

44
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Exploring the impact of participatory research with children. Development in Practice,

22(4), 600–612. doi:10.1080/09614524.2012.672959

Pascal, C., & Bertram, T. (2009). Listening to young citizens: The struggle to make real a

participatory paradigm in research with young children. European Early Childhood

Education Research Journal, 17(2), 249–262. doi:10.1080/13502930902951486

T
Petr, C. G. (2003). Social work with children and their families: Pragmatic foundations. New

IP
York: Oxford University Press, Incorporated. Retrieved from

CR
http://ezproxy.msu.edu:2047/login?url=http://search.ebscohost.com/login.aspx?direct=tru

e&scope=site&db=e000xna&AN=146900

US
Pollard, E. L., & Lee, P. D. (2003). Child well-being: A systematic review of the literature.
AN
Social Indicators Research, 61(1), 59–78. doi:10.1023/A:1021284215801

Reich, S. M., Kay, J. S., & Lin, G. C. (2015). Nourishing a partnership to improve middle school
M

lunch options: A community-based participatory research project. Family & Community


ED

Health, 38(1), 77–86. doi:10.1097/FCH.0000000000000055

Ren, J. Y., & Langhout, R. D. (2010). A recess evaluation with the players: Taking steps toward
PT

participatory action research. American Journal of Community Psychology, 46(1-2), 124–


CE

38. doi:10.1007/s10464-010-9320-2

Robinson, C., & Kellett, M. (2004). Power. In S. Fraser, V. Lewis, S. Ding, M. Kellett & C.
AC

Robinson (Eds.), Doing research with children and young people (81-97). London: Sage.

Ross, L. (2011). Sustaining youth participation in a long-term tobacco control initiative:

Consideration of a social justice perspective. Youth & Society, 43(2), 681–704.

doi:10.1177/0044118X10366672

45
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Schaffer, H. R. (2006). Key concepts in developmental psychology. London ; Thousand Oaks,

CA: Sage Publications.

Shalowitz, M. U., Isacco, A., Barquin, N., Clark-Kauffman, E., Delger, P., Nelson, D., …

Wagenaar, K. A. (2009). Community-based participatory research: a review of the

literature with strategies for community engagement. Journal of Developmental &

T
Behavioral Pediatrics, 30(4), 350–361.doi: 10.1097/DBP.0b013e3181b0ef14

IP
Siu, K. W. M., & Kwok, J. Y. C. (2004). Collective and democratic creativity: Participatory

CR
research and design. Korean Journal of Thinking & Problem Solving, 14(1), 11–27.

Snider, C. E., Kirst, M., Abubakar, S., Ahmad, F., & Nathens, A. B. (2010). Community-based

US
participatory research: Development of an emergency department–based youth violence
AN
intervention using concept mapping. Academic Emergency Medicine, 17(8), 877–885.

doi:10.1111/j.1553-2712.2010.00810.x
M

Soleimanpour, S., Brindis, C., Geierstanger, S., Kandawalla, S., & Kurlaender, T. (2008).
ED

Incorporating youth-led community participatory research into school health center

programs and policies. Public Health Reports (1974-), 123(6), 709–716.


PT

http://www.jstor.org/stable/25682123
CE

Stewart, S., Riecken, T., Scott, T., Tanaka, M., & Riecken, J. (2008). Expanding health literacy

indigenous youth creating videos. Journal of Health Psychology, 13(2), 180–189.


AC

doi:10.1177/1359105307086709

Torraco, R. J. (2005). Writing integrative literature reviews: Guidelines and examples. Human

Resource Development Review, 4(3), 356–367. doi:10.1177/1534484305278283

United Nations. (1989). United Nations Convention on the Rights of the Child (UNCRC),

46
ACCEPTED MANUSCRIPT
PAR WITH CHILDREN AND YOUTH

Geneva: United Nations.

van Staa A., Jedeloo S., Latour J., & Trappenburg M. (2010). Exciting but exhausting:

Experiences with participatory research with chronically ill adolescents. Health

Expectations, 13(1), 95–107 13p. doi:10.1111/j.1369-7625.2009.00574.x

Wartenweiler, D., & Mansukhani, R. (2015). Participatory action research with Filipino street

T
youth: Their voice and action against corporal punishment. Child Abuse Review, 25(6),

IP
410-423. doi:10.1002/car.2421

CR
Wernick, L. J., Woodford, M. R., & Kulick, A. (2014). LGBTQ youth using participatory action

research and theater to effect change: Moving adult decision-makers to create youth-

US
centered change. Journal of Community Practice, 22(1-2), 47–66.
AN
doi:10.1080/10705422.2014.901996

Whittemore, R., & Knafl, K. (2005). The integrative review: Updated methodology. Journal of
M

Advanced Nursing, 52(5), 546–553. doi: 10.1111/j.1365-2648.2005.03621.x


ED

Wickenden, M., & Kembhavi-Tam, G. (2014). Ask us too! Doing participatory research with

disabled children in the Global South. Childhood, 21(3), 400–417.


PT

doi:10.1177/0907568214525426
CE

Zeng, E. J., & Silverstein, L. B. (2011). China earthquake relief: Participatory action work with

children. School Psychology International, 32(5), 498–511.


AC

doi:10.1177/0143034311402921

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Figure 1. Overview of sampling procedures.

Figure 2. Age of children and youth participated in PAR projects by study

Figure 3. Distribution of research methodologies across the selected studies. *Child-friendly methodologies

Figure 4. Distribution of areas of participation across the selected papers.

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Figure 5. Distribution of PAR outcomes in the selected papers

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Appendix A. Basic Characteristics of the Reviews Studies

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Country of Country of
Reference Year Researchers Participants Broad Content Area
Afifi, Makhoul, Hajj, Nakash 2011 Lebanon Lebanon Youth mental health
Alfonso, Bogues, Russo, and

US
Brown 2008 US US Resources for Youth Development
Ardoin, Castrechini, Hofstedt 2014 US US Resources for Youth Development
Bautista, Bertrand, Morrell, Educational inequalities for racial
AN
Scorza & Matthews 2013 US US minorities
Bertozzi 2010 Italy Italy Child Labor
Betancourt, Frounfelker, Mishra,
Hussein & Falzarano 2015 US US Mental Health among refugee children
M

Low Income Neighborhood and its


Blazek & Hraňová 2012 UK,Slovakia Slovakia resources for children
Diabetes Prevention among Indigenous
ED

Brown et al. 2010 US US Youth


Education, health, personal development,
Chen et al. 2010 US US diversity
PT

Chou et al. 2015 Canada Canada Educational achievement by at-risk youth


Nigeria, Kenya, Democratic
Congo, Sierra Republic of
Chukwudozie, Feinstein, Jensen, Leone, Denmark, Congo, Nigeria,
CE

O’Kane, Pina, Skovdal & Smith 2015 UK, France and Sierra Leone Kinship care
Clark 2011 UK UK Learning spaces
Conrad 2015 Canada Canada Drug addition, youth at risk
AC

Dennis, Gaulocher, Carpiano &


Brown 2008 Canada & US US Neighborhood safety and health
Dodington, Mollen, Woodlock,
Hausman, Richmond & Fein 2012 US US Youth Violence
Flicker 2008 Canada Canada HIV among youth population
Foster-Fishman, Law, Lichty & Children's life goals and resources for
Aoun 2010 US US achieving them
Columbia &
Garcia & Brown 2009 Canada Columbia Environment
Youth Issues within neighborhood,
Garcia et al. 2014 US US education and criminal justice

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Hampshire, Porter, Owusu,


Mariwah, Abane, Robson, UK, Malawi,
Munthali, Mashiri, Maponya & Ghana, South Ghana, Malawi
Bourdillon 2012 Africa and South Africa Mobility constraints in the community
Haynes & Tanner 2015 Australia, UK The Philippines Disaster Management
Houghton 2015 UK UK Domestic Violence
Neighborhood safety, crime, and
Hutzel 2007 US US resources
Kellett 2010 UK UK Transportation
Kulbok, Meszaros, Bond,
Thatcher, Park, Kimbrell &

T
Smith-Gregory 2015 US US Rural youth substance use

IP
Bosnia & Bosnia &
Maglajlic 2004 Herzegovina Herzegovina HIV & STI prevention, Substance Use
Malone 2013 Australia Australia Environmental planning

CR
Mathews, Mathews & Mwaja 2010 US US Health Disparities
McIntyre 2000 US US Poverty, community violence
Merves, Rodgers, Silver, Sclafane

US
& Bauman 2015 US US Health Disparities
Minh, Patel, Bruce-Barrett &
O’Campo 2015 Canada Canada Resources for Youth Development
AN
Morsillo & Prilleltensky 2007 US, Australia US, Australia Resources for Youth Development
Nelems and Currie 2012 US Iraq and Jordan Refugee
Reich, Key & Lin 2015 US US Food
M

Ren & Langhout 2010 US US Recess/School Environment


Ross 2011 US US Tobacco Control
Comprehensive social service for
ED

Siu & Kwok 2004 Hong-Kong Hong-Kong children


Snider et al. 2010 Canada Canada Youth Violence Prevention
Soleimanpour, Brindis,
Geierstanger, Kandawalla &
PT

Kurlaender 2008 US US School health policies


Stewards et al. 2008 Canada Canada Indigenous health and health literacy
van Staa et al. 2009 Netherlands Netherlands Hospital friendliness to adolescence
CE

Wartenweiler & Mansukhani 2015 Phillipinnes Phillipinnes Corporal Punishment


Wernick et al. 2014 US US LJBTQ youth
AC

Wickenden & Kembhavi-Tam 2014 UK India & Sri Lanka Inclusion of children with disabilities
Zeng & Silverstein 2011 US China Disaster Management

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