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REVIEW

CURRENT
OPINION Decision aids in anesthesia: do they help?
Warren A. Southerland a, Leah J. Beight b, Fred E. Shapiro a,
and Richard D. Urman c

Purpose of review
Patient decision aids are educational tools used to assist patients and clinicians in healthcare decisions.
As healthcare moves toward patient-centered care, these tools can provide support to anesthesiologists by
facilitating shared decision-making.
Recent findings
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Recent research has shown that patient decision aids are beneficial in the clinical setting for patients and
physicians. Studies have shown that patients feel better informed, have better knowledge, and have less
anxiety, depression, and decisional conflict after using patient decision aids. In addition, a structured
approach for the development of patient decision aids in the field of anesthesia has been established.
Summary
Patient decision aids can support patient-centered care delivery and shared decision-making, especially in
the field of anesthesia. Current research involves implementing the use of patient decision aids in the
discussion for monitored anesthesia care. Further development of quality metrics is needed to improve the
decision aids and maximize decision quality.
Keywords
decision aid, monitored anesthesia care, patient-centered, perioperative, shared decision-making

INTRODUCTION challenging. Two regional anesthesia decision


The Institute of Medicine has written two reports, To aids have been developed by the American Society
Err is Human: Building a Safer Health System and of Anesthesiologists (ASA) Committee on Profes-
Crossing the Quality Chasm: A New Health System sional Liability and the shared decision-making
for the 21st Century, which focus on improving team at the University of Washington under a
patient safety [1,2]. Crossing the Quality Chasm grant from the Agency for Healthcare Research
has mandated that healthcare be safe, effective, and Quality. A standardized format for the develop-
patient-centered, timely, efficient, and equitable ment of patient decision aids has been created,
&&

[2]. The Institute of Medicine has promoted specifically for anesthesia [14 ]. Current research
patient-centered healthcare to allow patients to includes evaluation of a newly developed Monitored
express their wants and thoughts for a more person- Anesthesia Care (MAC) patient decision aid for
alized healthcare. In addition, proper patient edu- its decision quality and improvement of patient
&

cation with evidence-based data is paramount for education [15 ].


patients to make ideal healthcare decisions. To meet
this standard, patient decision aids have been cre-
ated for various fields of medicine and surgery,
including cardiology, urology, gynecology, endocri- a
Department of Anesthesia, Critical Care and Pain Medicine, Beth Israel
nology, and oncology [3–10] As various anesthetic Deaconess Medical Center, bDepartment of Health Sciences, North-
options are available for patients, such as sedation, eastern University and cDepartment of Anesthesiology, Perioperative and
Pain Medicine, Brigham and Women’s Hospital, Boston, Massachusetts,
regional anesthesia, and general anesthesia, patient
USA
engagement is important in the decision-making
Correspondence to Richard D. Urman, MD, MBA, Department of Anes-
process. The International Patient Decision Aid thesiology, Perioperative and Pain Medicine, Brigham and Women’s
Standards Collaboration states these aids ‘are Hospital, 75 Francis Street CWN L1, Boston, MA 02115, USA.
designed to support patients’ and ‘help them to Tel: +1 617 732 8486; fax: +1 617 277 2192;
arrive at informed choices’ in the healthcare setting e-mail: rurman@bwh.harvard.edu
[11]. In the perioperative setting, however, achiev- Curr Opin Anesthesiol 2020, 33:185–191
ing this level of shared decision-making can be DOI:10.1097/ACO.0000000000000832

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Ethics, economics and outcome

Table 1. Suggested format for patient decision aid


KEY POINTS
Describe procedure/therapy
 Patient decision aids can support patient-centered care Benefits – space for patient to write down benefits that matter to
delivery and shared decision-making, especially in the them
field of anesthesia and the perioperative setting.
Risks – space for patient to write down concerns for risks
 Studies have shown that patients feel better informed, Adverse effects
have better knowledge, and have less anxiety, Choices – questions/concerns about options
depression, and decisional conflict after using patient
Space for questions about what other information needed, where
decision aids.
to get it, from whom?
 Two regional anesthesia decision aids have been Quiz for understanding
implemented with positive outcomes. Provide references
 A decision aid for Monitored Anesthesia Care has &&
Adapted from Reference [14 ].
been created and is in the b-testing process for
quality analysis.
 Further evaluation into quality and patient satisfaction anesthesia options in their decision-making process
of newly developed patient decision aids is needed to by using the aforementioned aids, whereas not
improve decision outcomes and increase increasing anxiety and uncertainty. These positive
decision quality. outcomes for the regional anesthesia decision aids
mandates further action to create aids for other
aspects of anesthesia to increase patient-centered-
ness and shared decision-making in perioperative
PATIENT DECISION AIDS care.
Patient decision aids are forms of media (i.e., web-
sites, videos, prints) that educate patients, encour-
age their participation during decision-making, and SHARED DECISION-MAKING
help evaluate their preferences and values in their Shared decision-making is a process that allows
healthcare choices [16]. These aids describe choices patient to have open communication with physi-
that need to be made, alternative options, risks and cians about their healthcare plans, using clinical
benefits, and potential outcomes [11,17]. Impor- evidence and patients’ preferences to make a choice
tantly, they are not biased between the healthcare [16]. Physician input and judgment is maintained
choices they provide and are used as a tool for throughout the decision-making process [19,20].
physicians, not a replacement for consultation. Shared decision-making is appropriate when there
Patient decision aids improve the decision quality is no medically ‘best’ choice, and decisions should
and quality of care when the patients’ wants and depend on individual preferences (‘preference sen-
opinions are appreciated and heard throughout the sitive’) [2,19,20].
decision-making process [2,18]. Ideal scenarios to Over one-third of the preoperative patients have
use these aids are ones that have multiple practical deficits in preoperative decision-making, and many
healthcare options with various benefits and risks perioperative clinicians do not discuss the patients’
(or ‘preference-sensitive’) or for clinical situations in preferences, goals, and values [24,25]. Reasons for
which the available choices are equipoise these deficits include varying education levels, lan-
[2,16,19,20]. An example of the format of a standard guage barriers, and inadequacies in the informed
&&
decision aid is provided in Table 1 [14 ]. consent process [24]. Anxiety and discomfort from
A Cochrane Database systematic review has being in a hospital and the upcoming procedure
shown decreased indecision, improved patient par- adds to the lack of understanding [24]. Cooper et al.
ticipation, and more patient satisfaction with the [25] discusses that nonwhite races, older age, and
overall decision-making process when using patient patients with lower educational levels are factors
decision aids [21]. Increased understanding of that lower decisional quality in the perioperative
healthcare options, clearer expectations, and less setting. Time constraints during the perioperative
anxiety in decision-making are other improvements period limit physicians’ ability to discuss important
seen with patient decision aids [3,4,22]. As men- decisional concepts with patients [25]. Owing to the
tioned previously, two regional anesthesia decision fast-paced nature of the perioperative setting,
aids have been produced and used during preanes- patients and their families may not make the best
thesia clinic evaluation. According to Posner et al. possible choice for themselves because of their lack
[23], patients using decision aids have increased of understanding. An informed consent by itself is
discussion, participation, and knowledge of regional not shared decision-making or equivalent to high

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Decision aids in anesthesia: do they help? Southerland et al.

Table 2. The Ottawa Decision Support Framework Table 3. The Foundation for Informed Medical Decision
Determine the patients’ and clinicians’ needs for decision-making Making’s eight-step implementation process
Assist patients in making choices Engage providers and staff
Analyze the outcomes Target individuals or populations
Identify conditions
Adapted from Reference [28]. Distribute decision aids
Encourage viewing
decision quality [26,27]. Patient decision aids can Provide support
better inform patients of their healthcare options, Measure impact
leading to better understanding during informed Provide feedback
consent. This allows open conversation about
patients’ circumstances, desires, and goals for ther- Adapted from Reference [30].

apy and has shown to increase decision quality,


increase the number of positive surgical outcomes, patient involvement in their development, and
and decrease inappropriate procedures [25]. evaluation of their effectiveness. In addition, using
Attempts to make structured approaches for Delphi consensus techniques, the International
shared decision-making have led to the creation Patient Decision Aid Standards (IPDAS) Collabora-
of the Ottawa Decision Support Framework (ODSF) tion established the standard quality criterion
[28]. It follows three steps, as seen in Table 2 [28]. checklist (Table 5) [11]. Using these basic principles,
&&
Along with the Ottawa Decision Support Frame- Urman et al. [14 ] have developed a comprehensive
work, the Agency for Healthcare Research and Qual- format for creation of patient decision aids (Table 6).
ity and the Informed Medical Decisions Foundation This format guides the development of patient deci-
have funded multiple institutions, including Uni- sion aids and proper evaluation for future analysis. It
versity of Washington, Dartmouth-Hitchcock Med- follows the 12 quality domains established by the
ical Center, New York University, and Massachusetts IPDAS and the principles of patient decision aids, as
General Hospital, to research shared decision-mak- defined by ODSF and Informed Medical Decisions
ing [29]. Through the funding, the University of Foundation [28,31]. It is divided into three stages:
Washington established eight steps to implement synthesis, analysis, and implementation, each being
shared decision-making in the healthcare setting, crucial to the comprehensive development and eval-
shown in Table 3 [30]. These steps contribute to the uation of newly made patient decision aids. The
formation of shared decision-making programs and framework tackles the common limitations of cur-
further development and implementation of rent patient decision aids, including increasing
patient decision aids. patient input during development, thoroughly eval-
uating data included in the aids, and integrating a
cyclic review of the supplement’s tools before and
DEVELOPMENT OF PATIENT DECISION after their use [15 ].
&

AIDS
Institutions have created models for the develop-
ment of patient decision aids, as shown in Table 4 ADVANCEMENTS AND CURRENT
[28,31]. Along with the previously mentioned RESEARCH
ODSF, these frameworks all establish the need for Today, patient decision aids have been used in
patient decision aids, promoting physician and various specialties of medicine and surgery, ranging

Table 4. Existing models for development of patient decision aids

The Ottawa Decision Support The Informed Medical Decisions The International Patient Decision
Framework (ODSF) Foundation (IMDF) Aids Standards (IPDAS)

Determine the patients and clinicians’ Involve physicians from relevant fields Defining and assessing the need for
needs for decision-making for the decision aid decision support
Assist patients in making choices Involve patients at various stages of Formation of teams for development
Analyze the outcomes development and review
Evaluation of the decision aids by both Composition and review
patients and physicians before its Testing of the aids
implementation Critical external peer review

Adapted from References [28,31].

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Ethics, economics and outcome

Table 5. International Patient Decision Aid Standards working on a new decision aid for Monitored Anes-
(IPDAS) Collaboration checklist for users (selected items) thesia Care (MAC). The goal of the MAC Decision
Aid is to improve patients’ understanding of differ-
Systematic development process
ent anesthetic options, specifically the difference
Providing information about options
between sedation and general anesthesia, and
Presenting probabilities
patient engagement in the decision-making process.
Clarifying and expressing values An article published in the Wall Street Journal
Using patient stories demonstrated how the general public does not
Guiding or coaching in deliberation and communication understand the difference between general anesthe-
Disclosing conflicts of interest sia and sedation (i.e., MAC) [37]. The author
Delivering patient decision aids on the internet described a ‘disturbing’ experience of awakening
Balancing the presentation of options during a surgery performed under sedation. She
Using plain language claimed it was ‘anesthetic awareness,’ which is
Basing information on up-to-date scientific evidence untrue given that the patient was not under general
Establishing effectiveness
anesthesia, which is defined as ‘a drug-induced
reversible depression of the [central nervous system]
Adapted from Reference [11]. resulting in the loss of response to and perception of
all external stimuli’ [37,38]. Sedation may lead to a
level of consciousness ranging from removal of
from psychiatry to orthopedics [3–10,32–35]. nervousness to a deep sleep in which the patient
Numerous studies have shown increased patient only responds purposefully after repetitive painful
knowledge [3,4,7,10] and improved shared deci- stimuli [38]. Awakening during sedation is consis-
sion-making [4,9,35] with the use of decision aids. tent with what is to be expected from this anesthetic
Anxiety and depression about making medical deci- method. This article shows how important patient
sions and decisional conflict were shown by these education about anesthesia is for healthcare and
studies [3,4,9]. Patients who use patient decision emphasizes the necessity of preanesthesia patient
aids choose evidence-based treatments and have decision aids.
better outcomes according to Watts et al. [32]. To follow the steps laid out by the ‘Concepts for
Recent studies have shown that patient decision the Development of Anesthesia-Related Patient
&&
aids have positive outcomes by decreasing indeci- Decision Aids’ [14 ], our research team is creating
sion, while increasing patient participation and the decision aid, vetting the decision aid, and b
understanding of choices [22,36] (beta) testing the decision aid at Beth Israel Deacon-
As previously mentioned, two anesthesia ess Medical Center (BIDMC), Boston, Massachu-
&
patient decision aids, Epidural and Spinal Anesthe- setts, USA [15 ]. To evaluate the decision aid, a
sia and Peripheral Nerve Blocks, were created by the randomized-controlled trial is being conducted to
ASA Committee on Professional Liability and have determine if the tool allows patients to better dif-
shown favorable outcomes according to a study by ferentiate sedation and general anesthesia. Patient
Posner et al. [23] in 2015 [12,13]. Currently, the ASA engagement and experience undergoing MAC are
Committee on Patient Safety and Education is evaluated, as well.
&&
Urman et al. [14 ] pointed out that ‘current
Table 6. The checklist for developing perioperative patient dissemination of guidelines and educational mate-
decision aids rials have been more inclined to assist physicians
and healthcare professionals rather than patients.’ A
Synthesis
study by Trevena et al. [22] have found that ‘more
Creation of multidisciplinary team
interactive formats such as computerized versions
Literature review of major databases
appear to have a greater effect size compared to
Creation of focus groups paper booklets or audio-booklets’. In light of this,
Drafts of the patient decision aid Shapiro and colleagues at BIDMC are using a cus-
Analysis tomized smartphone application platform (LAMP-
a testing ‘‘Learn, Assess, Manage, Prevent’’, Division of Digi-
b testing tal Psychiatry at Beth Israel Deaconess Medical Cen-
Implementation ter, Boston, MA) that allows easy access to up-to-
Dissemination of the educational materials date medical knowledge and the MAC decision aid
Continuous analysis and evaluation for patients. For the study, after the patients have
taken a pre-Decision Aid survey (Table 7) on the
Adapted from Reference [14
&&
]. LAMP app, they will receive an electronic copy of

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Decision aids in anesthesia: do they help? Southerland et al.

Table 7. Pre-anesthesia clinic survey: monitored anesthesia care

Section 1: To be completed before the visit


Please answer a few questions about your background and feelings

1. What is your age?


& 20–29 years
& 30–39 years
& 40–49 years
& 50–64 years
& 65þ years
2. Are you male or female?
& Male
& Female

3. What is the highest grade or level of school that you have completed?
& 8th grade or less & Some college or 2-year degree
& Some high school, but did not graduate & 4-year college graduate
& High school graduate or GED & More than 4-year college degree
& Other__________________
4. What types of anesthesia have you had in the past? (check ALL that apply)
& Epidural or spinal anesthesia
& Labor analgesia/labor epidural
& Peripheral nerve block (for example, arm or leg block, shoulder block)
& Sedation/monitored anesthesia care
& General anesthesia
& Other:___________________
& I’m not sure
5. Choose the one (1) answer that best describes you:
& I prefer to make the decision about which treatment I will receive.
& I prefer to make the final decision about my treatment after seriously considering my doctor’s opinion.
& I prefer that my doctor and I share responsibility for deciding which treatment is best for me.
& I prefer that my doctor makes the final decision about which treatment will be used, but seriously considers my opinion.
& I prefer to leave all decisions regarding treatment to my doctor

GED, general education diploma.

&&
the MAC Decision Aid. After reviewing the MAC material likely made an impact [39 ]. As the study
Decision Aid, the patients will take a post-Decision progresses, a larger sample size would help to ana-
Aid survey on the LAMP app to determine the lyze pre and post survey results regarding their level
impact of the educational material. of understanding of MAC, their preference about
A recent abstract for the study has shown the informed decision-making for anesthesia, and their
&&
preliminary data for the study [39 ]. To date, 21 overall impression about anesthesia. We believe that
patients have completed the study, of which 71% of 100 patients is an acceptable target sample size as
the participants are college graduates with a median this would be in keeping with other pilot studies of
&&
age of participants being 45 years (Table 8) [39 ]. patient decision aids [20].
The patient population in the study are women In the preliminary implementation of this
undergoing MAC for breast surgery. There was sta- study, there have been observed benefits and chal-
tistically significant reduction in time in answering lenges to using an electronic version of the decision
&&
the post survey questions [39 ]. Although patients aid. Benefits include the convenience of having the
required more time to answer the post survey anes- decision aid on the phone, flexibility where and
thesia questions (P ¼ 0.00936), a greater number of when the decision aid is completed, and the ability
anesthesia-related questions were answered cor- of gathering survey results electronically. Patients
rectly in post survey compared to presurvey were encouraged to complete the pre and post sur-
(P ¼ 0.021823), indicating that the educational vey during clinic visits. However, on a few occasions

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Ethics, economics and outcome

Table 8. Descriptive data of preliminary participants who observed was patients forgetting their phone access
completed pre- and post-survey identification password, thus removing themselves
from the study.
Predictor Number

Age (years)
CONCLUSION
18–29 5
Patient decision aids can support patient-centered
30–39 1
care delivery and shared decision-making, especially
40–49 5
in the field of anesthesia. Studies have shown that
50–59 4
patients feel better informed, have better knowledge
60–69 2 about anesthetic choices, and have less anxiety and
70–79 3 decisional conflict after using patient decision aids.
80þ 1 Two regional anesthesia decision aids have been
Gender previously implemented with positive outcomes. A
Female 21 decision aid for MAC has been created and is in the
Male 0 b-testing process for quality analysis. Further evalua-
Education tion into quality and patient satisfaction of newly
8th grade or less 0 developed patient decision aids is needed to
Some high school, but did not graduate 0
optimize decision outcomes and increase decision
quality.
High school graduate or GED 5
Some college or 2-year degree 1
Acknowledgements
4-year college graduate 11
None.
Graduate degree 4
There are no disclosures. No funding was received for this
GED. general education diploma.
work.

Financial support and sponsorship


when patients had limited time and needed to leave None.
before completing presurvey, researchers were able
to guide patients through the downloading process Conflicts of interest
and follow-up at a later time. This allows for a more There are no conflicts of interest.
systematic comparison of outcomes by download-
ing completed datasets rather than manual data
entry. REFERENCES AND RECOMMENDED
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