Pediatric Community Mental Health

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Pediatric Community Mental Health


Lisa M. Cullins, MD, Mary Gabriel, MD, Martine Solages, MD,
David Call, MD, Shalice McKnight, DO, Milangel Concepcion, MD,
and Jang Cho, MD

The emotional health and wellbeing of children and adolescents health care models is the cornerstone of effective strategies to
and their families is of utmost importance. Pediatricians are at the provide access and quality mental health care to children and
front line in identifying mental illness in children and adolescents families in communities across the country.
and either linking them to resources in the community or providing
treatment options themselves. Collaboration and integrative Curr Probl Pediatr Adolesc Health Care 2016;46:354-388

Introduction: Defining the Need, in particular being less likely than their Caucasian peers to
Evolution and Core Attributes of receive treatment.3 Research has shown that without treat-
Effective Pediatric Community Mental ment, these childhood disorders may persist and lead to
Health school failure, poor employment opportunities and poverty
in adulthood, and even more tragic outcomes—suicide.
pproximately one in five children in the United The data is even more staggering for children and
A States suffers from a diagnosable mental dis-
order at an annual cost of $247 billion.1
adolescents who are publically insured, and/or ethnic
minority youth. Presently, Medicaid is the largest
Overall, 70–72% of children and adolescents who are payer of mental health care in the United States and
in need of treatment do not receive mental health services. disproportionately serves individuals with the most
Thus, the actual cost of mental health care for children severe mental disorders. Most of the expenditure is
and adolescents is potentially much greater. Of those who accounted for by multiple or extended out-of-home
seek treatment, only one in five children use mental placements not community outpatient settings.1 Facili-
health specialty services. The vast majority of these ties that provide specialty outpatient mental health
children receive treatment from their primary care services and accept Medicaid comprise the backbone
physicians. A child waits an average of 8–10 years of the community-based treatment infrastructure for
between onset of symptoms and receiving treatment, Medicaid enrollees.4 However, more than a third of the
primarily due to a lack of access to services. For the counties in the US do not have any outpatient mental
families that seek services, 40–50% terminate treatment health facilities that accept Medicaid. Furthermore,
prematurely secondary to lack of access, lack of trans- communities with a larger percentage of residents
portation, financial constraints, child mental health pro- who are Black, Hispanic, or living in a rural area are
fessional shortages and stigma related to mental health more likely to lack these facilities.5 With the Affordable
disorders.2 In sum, most children and adolescents with Care Act, more individuals will be able to receive access
mental illness do not receive treatment for their symp- and quality mental health care as mental health and
toms. The treatment gap is even more profound for substance abuse disorders have been designated essential
anxiety disorders and substance abuse. The gap widens health benefits. It is estimated that by 2019, this type of
even further for racial and ethnic minorities with Hispanic Medicaid program expansion nationwide would double
and African American adolescents with mood disorders the number of persons with mental disorders who are
covered by Medicaid from 12.8% to 24.5%.4
From the Children’s National Medical Center, Washington, DC 20010. The potential expansion to improve access to and
Curr Probl Pediatr Adolesc Health Care 2016;46:354-388 quality of mental health care in participating states
1538-5442/$ - see front matter
& 2016 Elsevier Inc. All rights reserved. requires an adequate supply of mental health profes-
http://dx.doi.org/10.1016/j.cppeds.2016.09.001 sionals who accept Medicaid. Although the majority of

354 Curr Probl Pediatr Adolesc Health Care, November 2016


psychiatrists practice in solo or group office settings and to provide each child and their family individu-
(51%), only 3% and 8% of patient caseloads in these alized and culturally competent services within the
settings are covered by Medicaid, respectively.4 For community. The need for such coordination arose from
child and adolescent psychiatrists in particular the the increasing influences of policy and advocacy that
numbers are even more daunting. It is estimated that resulted in the de-institutionalization of mental health
to meet the mental health needs of children and care in the 1960s. The Community Mental Health
adolescents in the US, 30,000 child and adolescent Centers (CMHC) Act of 19638 introduced stronger
psychiatrists are required and approximately only 9000 federal involvement in mental health care, responsibil-
are present.6 Mental health providers who participate ities that until then were seen as mostly residing with
in Medicaid tend to be concentrated in hospital and states and, to a lesser extent, local communities. After
specialty community-based mental health clinic 6 years, however, the Joint Commission on Children’s
settings.4 Mental Health9 found that despite this infusion of
The beauty and essence of pediatric community federal funding, little national attention or resource was
mental health is to serve children and families who dedicated to children and their families and that too
are impacted the most by poverty, meager educational many children were receiving grossly inadequate and
and employment opportunities, poor resources and inappropriate mental health services. In response, the
violence in their communities in locations that are CMHC Act was extended in 1972, directing commun-
either close to or embedded in their neighborhoods. ity mental health centers to expand their responsibil-
The impassioned spirit and charge of pediatric com- ities to include services for children. After 10 years,
munity mental health is ever present, and its signifi- however, a study published by the Children’s Defense
cance and sense of urgency is palpable, but the Fund documented that children with serious mental
infrastructure in which to implement and deliver and emotional disorders were receiving care that was
services is fragile and unstable and gravely inadequate fragmented, uncoordinated, and largely ineffective,
to meet the basic mental health needs of children and often in institutions far from their homes.10 Such
adolescents and their families. findings prompted the National Institutes of Mental
Health to establish the CASSP in 1984, heralding the
Evolution of a System: Community-Based inception of what is now known as community systems
of care. Two more milestones set the stage for CASSP:
Pediatric Mental Health
the President’s Commission on Mental Health in
An important concept in the evolution of care 1978,11 which helped children and adolescents with
delivery in children’s mental health emerged as child- severe emotional disturbances become designated as a
ren’s mental health was better understood, but did not priority service population; and the Alcohol, Drug
resemble the modern system until the 1990s. This Abuse, and Mental Health Block Grant program12 in
concept, community systems of care, reflected the the 1980s instituting joint federal and state funding
emerging appreciation of the complexity of the devel- with a formula stipulating that 25% of funding be
opment of children and demonstrated an attempt to dedicated to children and adolescents.
address this complexity more thoroughly and thought- Changes in service design and delivery were required
fully. It was not until the last 2–3 decades; however, once the framework was developed. Multiple demon-
that this approach was formalized and resembled the stration projects were initiated to restructure care
current framework of care delivery. This model now delivery and actualize the principles on which the
represents the standard of care for public mental health framework was founded. Five pilot programs were
services. launched in Ventura County, California,13 Alaska,
Coordination of services is essential for all children, Vermont,14 the Fort Bragg Demonstration Project,
but even more important for those children with severe and the Robert Wood Johnson/Mental Health Services
emotional disturbances and involvement of multiple Program for Youth (eight sites). The aims of these
agencies. The community systems of care model, programs were to implement CASSP ideals, reduce
based on principals of the Child and Adolescent out-of-home placements, reduce service fragmentation,
Service System Program (CASSP),7 was developed and promote earlier mental health intervention to
to coordinate and integrate care from these different reduce functional morbidity. Modern health economics
systems for children with complex mental health needs now reinforces the goal of preserving children in their

Curr Probl PediatrAdolesc Health Care, November 2016 355


communities, namely by focusing decreasing the needs and strengths with community-based supports—
utilization of highly restrictive and expensive services. paraprofessional mental health staff, without licensure,
With this background in mind, a comprehensive and community and family volunteers work as mentors
understanding of community systems of care is possi- with youth and their families, pursuant to individu-
ble. Children develop and function within multiple alized service plans and clinical oversight; child
systems, consisting of their families, schools, com- psychiatric and other mental health professional
munities, and primary health care. Children with emo- involvement is supported to ensure needed clinical
tional and behavioral problems engage in additional assessment and treatment interventions; and local
systems to access care and services, including mental public and human service agencies collaborate in
health, special education, developmental disabilities, integrating mental health services in their operational
child welfare, and juvenile justice. Moreover, mental planning and funding considerations.15
health concerns interact with multiple co-existing The core components of the model are two-fold—its
social, cultural, and legal issues, making work with reliance on wraparound approach for supporting youth
these populations complex and challenging. Studies in and families to succeed in community care and its use
best practices, quality of care, and outcomes spurred on of integrative interagency practices among relevant
the evolution of a framework that outlined core values child-serving systems.16 These elements are particu-
and guiding principles for a system that would meet the larly salient, given that public mental health programs
complex needs of these children and their families. The give priority to those who, in addition to not having
culmination of that framework was the CASSP. Its access to care due to socioeconomic challenges, are
guiding principles consist of the following: (1) indi- involved in other public systems serving children,
vidualized care that is tailored to the individual needs including child welfare, juvenile justice, special edu-
and preferences of the child and family, (2) family cation, developmental disabilities, and substance
inclusion at every level of the clinical process and abuse. While integration of care between entities is
system development, (3) collaboration between differ- familiar to most medical professionals, the notion of
ent child-serving agencies and integration of services the wraparound process, the quintessence of consumer-
across agencies, (4) provision of culturally competent directed care in children’s mental health, may not be.
services, (5) to serve youths in their communities, or The wraparound process is an integrated assessment
the least restrictive setting that meets their clinical and planning process that results in a unique set of
needs through providing a continuum of formal treat- community services and natural supports that are
ment and community-based supports, such as respite, individualized for a child and family to achieve a
crisis shelter care, mentoring, (6) early identification positive set of outcomes.17 It focuses on child and
and intervention, and (7) transitions to adult services. family strengths; it is community-based, culturally
Using these principles, the goal of systems of care is relevant, flexible, and coordinated across agencies;
to increase the number of children who are “in home, at and provides unconditional care, which entails a
school, and out of trouble.” To actualize these princi- commitment to doing what is needed over the long
ples and achieve this goal, a successful system of care run rather than ejecting a child from service if the
is characterized by the following: clinical services are needs are not being met.18 The fundamental goal of
accessible and available in community settings, such as wraparound services involves empowering families to
schools, youth centers, and homes; services are organ- build on strengths and capacities to overcome chal-
ized as collaborative ventures with other child-serving lenges to the adaptive well-being of their children so
agencies, such as child welfare, probation, special that they can achieve greater self-sufficiency. Child
education, developmental disability, and health; con- and family teams are used in a wraparound process as
sumer empowerment and responsibility (family and the nidus of service-planning and decision-making.
youth “voice and choice”) is reinforced with The teams are composed of the child, his or her family,
“strengths-based” approaches in treatment planning and any other friends or family members chosen by the
and service delivery—care is congruent with family family as well as all of the mental health or other
values and goals, merging wraparound supports and agency providers that are involved with the child. The
services with traditional mental health interventions; clinical approach is one that is strengths based,
clinical outreach and case management are central assessing the child and his/her family in terms of
elements of service delivery, seeking to match family adaptive capacities rather than pathology. Evaluating

356 Curr Probl Pediatr Adolesc Health Care, November 2016


the child in the context of the systems he or she exists failure to meet their culturally informed needs leads to
in (family, school, community cultural institutions, and increasing mental health disparities in already-
primary health care) allows for the discovery of vulnerable populations. These disparities include
environmental and systems factors contributing to their access to community-based services, accurate diagnos-
current functioning. Such evaluation generates an tic assessment, access to evidence-based interventions,
ecological picture of the environment in which the increasing rates of various psychopathologies, and
child is developing and functioning and emphasizes the significantly higher rates of out-of-home placements
idea that the parent’s knowledge of their child, family, and juvenile justice.22 Such findings impress the need
and culture is valued equally in importance to the for culturally competent services that address the
clinician’s knowledge of child development and psy- mental health needs of diverse populations, including
chopathology. This facilitates more extensive collabo- ethnopsychopharmacology.
ration between families and clinical members of the In what may seem to be complete anathema to
team, allowing families to assume the natural functions traditional paternalistic approaches to care, in pediatric
of case management and self-advocacy.19 When community systems of care the family selects treatment
strengths and culture exploration are at the crux of objectives and drives the planning process. This is a
assessment, treatment services and supports are chosen challenge for provider-centric orientations to practice,
to best suit the family’s objectives and maximize which are based on provider’s professional expertise.
collaboration toward desired goals. Allowing families who are struggling in caring for their
Services are then provided to enhance the child or children to have a leadership role in treatment proc-
family’s adaptive strengths, build self-esteem, and esses appears incongruous with desired outcomes.
provide opportunities for successful experiences.20 However, it is precisely because clinical understanding
These services comprise a spectrum of supports, of each case is established in the context of the child’s
education, and treatment, including intensive home- and family’s lived experience, defined by the family
based services (e.g., counseling, skill building, and case and demonstrated in the family’s culture and life
management), mentoring service, respite services, and history, that the model is successful, as revealed by
flexible funds, all with the goal to most effectively meet multiple quality and outcome studies.
the child’s and family’s needs in multiple domains of
life and functioning. These services are actively coor- Core Attributes of Effective Comprehensive
dinated with interventions by other providers, including
Mental Health for Children
primary care providers, other social agencies, and
community supports. Such interventions go beyond A comprehensive, effective mental health care sys-
direct treatment services, and include advocacy, facil- tem of services for all children and adolescents should
itating communication among providers, and providing be strength based and child and family centered. It
consultation to the various clinical players and stake- should have prevention as a primary component in
holders on the team. Unfortunately, there is variability addition to services that address different levels of
from state to state regarding the availability and quality acuity from least restrictive to most restrictive. It
of wraparound as a service delivery model. should also utilize an approach that meets the family
One critical issue to consider in evaluation and where they are and attempts to sustain the child in their
treatment of child and their families is cultural sensi- natural setting (at home and in the community) when
tivity and competence. Over 1/3 of all children in the clinically appropriate. Collaboration and care coordi-
United States are from non-European racial and ethnic nation should be its cornerstone as families have
backgrounds and is projected to exceed 50% by 2030. multiple needs and services should be individualized
This segment of the population faces many disadvan- to meet those needs. Thus, as a child moves through
tages, including socioeconomic and educational dis- different levels of care and/or requires a variety of
parities, social discrimination, language barriers, and services effective communication and collaboration
lesser opportunities. Their different beliefs, values, through the system of care is essential. Lastly, pro-
normative expectations for development and adaptive viders should be highly skilled, culturally competent
behaviors, parenting practices, relationship and family clinicians, well versed in evidence-based treatment
patterns, symptomatic expressions of distress, and modalities, and have a greater understanding of the
explanations of mental illness21 become a barrier when unique experiences and stressors that families in

Curr Probl PediatrAdolesc Health Care, November 2016 357


underserved communities in particular may confront 2. Treatment services
each day that may ultimately affect their children’s (a) In order to identify a child, who may need brief
emotional and social well-being. or long-term mental health treatment a com-
The service continuum should include prevention, prehensive assessment must be completed.
early identification and comprehensive treatment serv- There are several portals through which a child
ices ranging from high fidelity wraparound services to may pass for this to be accomplished. For
individual and family therapy and medication manage- urgent or emergent situations, a child may be
ment. When clinically appropriate families should have assessed through the emergency room by a
access to psychiatric inpatient units, partial hospital- mental health clinician or a mobile crisis team.
ization and residential treatment. In a recent joint report from Substance Abuse
Despite the devastating numbers that still persist in and Mental Health Services Administration
regard to the unmet mental health needs of children (SAMHSA) and Center for Medicaid & CHIP
and adolescents and their families, substantial, mean- services (CMCS), mobile crisis and stabiliza-
ingful work has been done over the past 20 years to tion services have been instrumental in defus-
develop, implement and examine service delivery ing and de-escalating difficult mental health
models and sustainable funding streams that can situations and preventing unnecessary out-of-
provide comprehensive, effective mental health care home placements, hospitalizations in particu-
with positive treatment outcomes. The challenge is lar.24 For non-urgent situations, assessments
scaling and infiltrating these effective service are usually conducted in an outpatient clinic
delivery models and funding infrastructure to all setting. School-based mental health programs
states and counties not just the handful that currently have demonstrated a long history of efficacy in
exist. The following service delivery models do exist producing positive educational, emotional, and
but are not widespread throughout the US and are social outcomes for children and families.
rarely implemented together as a full continuum of Thus, ongoing mental health consultation and
care. intervention services should be provided in the
elementary, middle- and high-school educa-
1. Prevention tional levels. In addition, child psychiatrists
(a) An important element of prevention is early should also provide consultation services to
identification, which can begin during the pediatric subspecialists to assess and provide
prenatal period. Prenatally there should be treatment recommendations for children in
routine screenings for maternal depression primary care settings.
during medical visits, parenting classes should (b) Once a comprehensive assessment has been
be offered during this time. At birth, these completed a treatment plan can be developed.
families should have access to home visiting Level of care must be determined. For high
programs which promote positive parent– acuity levels, inpatient hospitalization, partial
child relationships and healthy child develop- hospitalization, and residential (for chronic
ment. There should be ongoing screening for debilitating illness and repeat hospitaliza-
maternal depression during pediatric well- tions) should be considered. If outpatient
child visits and follow-up post-partum visits treatment is determined to be appropriate
with OB/GYN. At pre-school age, there then there is an array of services that should
should be mental health consultation and be available which include high-fidelity
intervention services provided for pre-school wraparound services that include flex funds,
and child care programs. Basic mental health intensive in-home services, individual, fam-
screenings should be implemented during ily, and group therapy and psychopharmaco-
pediatric well-child visits; and if there is a therapy.24 Treatment modalities should be
positive screen, the child and family should be evidenced based, which should include cog-
referred for a comprehensive assessment by a nitive behavioral therapy, trauma-focused
mental health clinician; and if clinically indi- cognitive behavioral therapy, behavioral ther-
cated, referred to programs such as Head Start apy, parenting skills training, and dialectical
and Incredible Years.23 behavioral therapy for adolescents. Clinicians

358 Curr Probl Pediatr Adolesc Health Care, November 2016


should be able to address issues regarding Telepsychiatry has demonstrated that it can improve
attachment, separation and loss, grief and both access and quality of care. A recent study revealed
bereavement, social skills, adaptive coping that telepsychiatry increased access to mental health care
skills, and skill building. For co-occurring and both practitioners and youth/parents report satisfac-
disorders, adolescents should be referred for tion with the services.26 When telepsychiatry was
appropriate substance abuse treatment that compared to direct face-to-face services, 96% of the
includes both individual and family work. diagnoses and treatment recommendations were compa-
Throughout all levels of care, peer and family rable between service delivery models with comparable
support services should be automatically linked patient satisfaction.27 Studies have even shown that
with services. Providers of peer and family children and adolescents in particular report enjoying
support services are family members or youth the “virtual” experience more stating that is was “excit-
with “lived experience” who have personally ing”—more visual, video game like, and less threat-
faced the challenges of coping with serious ening. Even in children aged 4–12 years, 94% like
mental health conditions either as a consumer videoconferencing with 29% actually preferring a “tele-
or as a caregiver.24 In addition, in order to vision” doctor.28 In addition to improving access to care
prevent out-of-home placements, respite serv- and children and families actually enjoying this type of
ices should be available for at-risk families. service delivery model, telepsychiatry has also shown to
(c) Ongoing training, consultation/supervision for be cost-effective. With the advances in technology, given
providers must be provided and embedded the minimal start up equipment costs coupled with
into the service delivery model to meet basic numerous “deliverables” (i.e., enhanced clinical capacity
standard of care for evidence-based practices. of rural practitioners, improved clinical expertise and
(d) Cultural sensitivity and competence is also a collaboration, increased access to specialty care,
measure that must be met for all treatment decreased travel costs), telepsychiatry has demonstrated
providers caring for youth and families. on average a 70% reduction of costs.26,29 The Arizona
(e) Outcome measures for all services provided Telemedicine Program which serves 10 rural prisons
must also be a component of the service delivery reported a savings of more than $1 million dollars.26
model. Instruments such as the Child and
Adolescent Functioning Assessment Scale
Evidence-Based Treatment Modalities
(CAFAS), Child and Adolescent Needs and
Strengths (CANS), and Child Behavioral Check- Evidenced-based treatments offer problem-focused,
list (CBCL), for example, should be considered time-limited, and symptom reduction psychotherapy.
for outcome measures at certain intervals during There are now numerous efficacious evidenced-based
the course of treatment and thereafter.24 treatment modalities being implemented once the
treatment plan has been determined for a child or
In recent studies, the abovementioned mental health adolescent. They range from individual work with the
services have demonstrated a positive impact for children child to family systems work or a combination of both.
and families receiving Medicaid in the following areas: In addition to evidenced-based treatment modalities,
reduced costs of care, improved school attendance and psychodynamic psychotherapy is widely utilized and
performance, increase in behavioral and emotional integrated into the care plan of children and adoles-
strengths, improved clinical and functional outcomes, more cents when indicated. Although overall evidenced-
stable living situations, improved attendance at work for based treatment modalities have proven to be highly
caregivers, reduced suicide attempts, and decreased contact effective in treating a range of psychopathology they
with law enforcement.24 also have been confronted with some challenges.
The use of technology is another form of innovation Challenges mainly embody implementation and sus-
and service delivery model that must be considered in tainability in community mental health clinics. In order
meeting the mental health needs of children and to practice and deliver evidenced-based treatment to
adolescents and nicely compliments both traditional “in children and adolescents, clinicians must be well
the office” services and integrated models in the pediatric trained and highly skilled. One time initial trainings
medical home and schools (i.e., Teleconferencing for have proven to be insufficient and ongoing clinical
consultation, in-service teaching and direct care).25 case consultation is necessary.30 At times, recruitment

Curr Probl PediatrAdolesc Health Care, November 2016 359


of licensed clinical professionals has been difficult for treatment and service elements modified to the speci-
community clinics and turnover has been high. The alized needs of youth with co-occurring mental health
greatest challenge has been to deliver these treatment and substance abuse disorders. It is currently utilized
modalities to a diverse population of youth in a by a number of evidenced-based practices (i.e., multi-
culturally thoughtful, competent, and sensitive manner systemic therapy, multidimensional family therapy,
as most of these treatment modalities were designed in and functional family therapy). ICT uses a multi-
well-resourced academic settings with a low ethnic/ stage progression treatment approach (engagement,
racial mix of patients and families.31 Agency-wide persuasion, active treatment, and relapse prevention)
adoption of the EBT and fidelity to the model requires and utilizes motivational interviewing as a method to
agency leadership and financial resources at a mini- facilitate readiness for change.36
mum.32,33 This section will review several promising,
effective treatments that have been widely used in
Functional Family Therapy
children and adolescents of varying ethnic and racial
backgrounds and psychopathology. The following Functional family therapy (FFT) is a brief family-
evidence-based treatment modalities were selected centered approach, often used for children and adolescents
and described below because of their positive results aged 11–18 years at risk for and/or presenting with
with at times our most complex and challenging delinquency, violence, substance use, conduct disorder,
patients: children and adolescents who have suffered oppositional defiant disorder, or disruptive behavior
from some form of abuse, endured or witnessed disorders. In FFT, the family’s focus is shifted away from
significant trauma, in foster care, in the juvenile justice the youth’s problem behavior and onto the patterns of
system, and/or with co-occurring substance abuse. behavior between family members, with the aim of
establishing more positive familial interaction patterns.
FFT clinicians guide families through five stages (engage-
Cognitive Behavioral Therapy
ment, motivation, relational assessment, behavior change,
Cognitive behavioral therapy (CBT) has been the and generalization) and incorporate other evidence-based
foundation for evidenced-based medicine. Due in part behavior change techniques, such as cognitive behavioral
to the productive interplay between research and therapy. FFT is commonly utilized by child-serving
clinical practice, it is thought that cognitive behavioral systems such as juvenile justice and child welfare, to
therapy is the psychotherapeutic treatment of choice prevent serious youth delinquency and out-of-home
for youth with mood and anxiety disorders.34 Aaron placement.36,37
Beck developed cognitive behavior therapy as a treat-
ment intervention for depressed adults. Cognitive
Multi-systemic Therapy
therapy concentrates on identifying and correcting
cognitive distortions and progresses from focusing on Multi-systemic therapy (MST) is one of the best
symptoms and behaviors to a focus on situation, available treatment approaches for juvenile offenders
specific thoughts and finally to a focus of the central with mental health treatment needs. MST is an intensive,
core beliefs of the individual. Work begins linking multi-modal, family-based approach which has demon-
emotions, behavior, and thoughts. The goal of treat- strated decreased rates of rearrests by 70% and out-of-
ment is to restructure the individual’s thoughts, chal- home placements by 64%, improvements in familial
lenge them, and practice positive counter thoughts to functioning, and lower rates of mental health disorders in
negative statements.35 Over the past 2 decades, empir- serious juvenile offenders.36
ically supported CBTs covering the range of childhood
onset depressive and anxiety disorders including post-
Wraparound Approach
traumatic stress disorder (PTSD) have emerged includ-
ing trauma-focused CBT. The wraparound approach is a form of intensive care
coordination for children and adolescents with signifi-
cant mental health conditions. Wraparound services link
Integrated Co-Occurring Treatment Model
the youth’s strengths and needs to services and supports
The Integrated Co-Occurring Treatment (ICT) model within his or her community. It is a team-based,
for youth is an integrated treatment program that uses collaborative process for developing and implementing

360 Curr Probl Pediatr Adolesc Health Care, November 2016


individualized care plans for children and adolescents youth in distress. Police first de-escalate the crisis and
with complex needs and their families.24 This service then refer the youth for services. CIC training includes
delivery model focuses on all life domains and includes information on trauma and adolescence, how to
clinical interventions and natural supports to keep the approach traumatized youths, developmental milestones,
child at home, in the community, in school and out of common mental illnesses among adolescents, response
trouble. Outcome evaluations revealed a 60% reduction tactics during calls, and the nature of psychiatric
in the use of residential treatment and an 80% decrease emergencies.36
in psychiatric inpatient hospitalization.36
Parent–Child Interactive Therapy (PCIT)
Multidimensional Treatment Foster Care PCIT is a highly specialized short term intervention
Multidimensional Treatment Foster Care (MTFC) is for disruptive behaviors in young children that incor-
a comprehensive, family-based behavioral intervention porates principles of play therapy into structured
for adolescents with severe and chronic emotional and behavioral parent training. PCIT draws from social
behavioral disorders in out-of-home care.38 Adoles- learning and attachment theories to emphasize positive
cents are placed with trained, local, and supervised attention, consistency, problem solving, and effective
families for approximately 6–9 months. Throughout communication. PCIT has been shown to decrease
the MTFC placement, family therapy is also con- behavior problems in young children, decrease parental
ducted. It has been demonstrated that youth receiving stress, and increase parental confidence. It is also
MTFC spent 60% fewer days incarcerated than those showing positive signs in reducing internalizing symp-
not receiving services, and also had significantly fewer toms in young children as well.39
arrests. For girls in particular, MTFC appears to have
even more benefits such as fewer criminal referrals, Parent Management Training (PMT)
less days in locked setting, lower self-reported delin- Parent management training derives from behavioral
quency, and decreased deviant peer affiliation. MTFC therapy which integrates the concepts of positive
also proved efficacious and impacted positively non- reinforcement, negative reinforcement, punishment,
targeted outcomes such as, lower pregnancy rates, and/or extinction. PMT provides psychoeducation
school attendance, and completion of homework and and support to parents in implementing positive praise
an overall decrease in depressive symptoms.38 and reinforcement, behavioral checklists, attending and
ignoring behaviors, effective communication and
parent stress management. PMT has demonstrated
Crisis Intervention Teams
enhancements in parent functioning and a decrease in
Mobile crisis services have been highly effective in disruptive behaviors in the child.40
de-escalating acute, intense emotionally charged situa-
tions and mitigating out-of-home placements—in-
patient hospitalizations in particular.24 The crisis inter- Collaborative Care Models
vention team is usually comprised of two mental health
Integrative Behavioral Health
professionals who attempt to engage the child and
family and resolve the crisis and/or determine need for Children’s mental health problems are among the
further assessment and stabilization in the emergency leading causes of disability for children and adoles-
room. Specialized law enforcement programs have been cents, and if left untreated, these significantly disrupt
designed as well in several states that provide crisis healthy development, resulting in chronic disability
services. Crisis intervention teams (CITs) were devel- into adulthood. Indeed, half of all lifetime mental
oped by communities to facilitate and encourage diver- illness begins by 14 years of age and three-quarters
sion from the juvenile justice system and referral of by 24 years of age.41 More concerning is the average
adolescents with mental disorders to appropriate serv- delay (8–10 years) between onset of symptoms and
ices. As an example, The Children in Crisis (CIC) biopsychosocial intervention for children, which are
program in Denver, CO, was implemented by the police critical developmental years in the life of a child.42
department in 2010, for the goal to recognize mental Factors driving such severe delays include the shortage
illness, and offer resources to provide follow-up care for of mental health workers, the stigma associated with

Curr Probl PediatrAdolesc Health Care, November 2016 361


receiving mental health services, chronic underfunding coordination are essential for several reasons: the
of the public mental health system, reduced reimburse- mental health system is complicated and difficult for
ment to mental health providers, and disparate insur- families to navigate, mental health systems are often
ance benefits.43 Because approximately 75% of all administered and reimbursed through different mech-
children with psychiatric disabilities are seen in anism than medical services, communication between
primary care settings, and half of all pediatric office specialty mental health providers and pediatricians
visits involve behavioral, psychosocial, or educational requires structural assistance to improve, and for
concerns,9,44,45 pediatricians act as de facto mental children with complex psychiatric needs, care coordi-
health clinicians. The pediatric health home then nation ensures that all involved parties coordinate their
represents an opportunity to increase identification of individual efforts for the benefit of the child. Most
mental and behavioral health issues and provides importantly, however, is the fact that children and
greater access to mental health services. adolescents develop and function in different domains
The American Academy of Pediatrics characterizes and systems, requiring a coordinated comprehensive
care from a pediatric medical home as accessible, approach to any care they receive.
continuous, comprehensive, collaborative, compas- The mental health care components within the
sionate, culturally competent, and family centered.46 pediatric health home include prevention and screen-
To care for the whole child, in the context of family, ing, early intervention, routine assessment and treat-
school, and community, the medical home needs to ment, specialty consultation, specialized treatment,
have effective and dynamic relationships among com- coordination of services, and monitoring. To meet
munity agencies and services that may assist the child these responsibilities, a tiered framework of service is
and family for a variety of needs. This philosophy recommended, based on the severity, chronicity, and
aligns with the collaborative approach within child- complexity of mental health problems for individual
ren’s mental health services and promotes models of patients.13 As each of these criteria intensifies, the
shared care between medical and psychiatric care responsibility of the primary care provider for treat-
providers. Responding to this movement toward coor- ment and planning decreases while that of the child
dinated care through the medical home, the American psychiatry specialty system increases. The levels range
Academy of Child and Adolescent Psychiatry has from preventive service and screening, with more
outlined recommendations and best principles for responsibility on the PCP, to early intervention and
integrating child and adolescent psychiatry into the routine care provision, to specialty consultation, treat-
pediatric health home.47 The principles include family- ment, and coordination, and ultimately to intensive
focused care, professional collaboration, care plan mental health services for complex clinical problems.
development, and care coordination. At every level, however, both pediatric and psychiatric
In family-focused care, patients and families are providers are involved and provide input, from sup-
essential partners with health care providers, identify- portive to primary treatment roles to facilitating/direct-
ing strengths and needs, developing comprehensive ing more intensive services, all existing in a fluid
treatment plans, implementing and evaluating mental construct based on the needs of the child. What
health services, and ensuring that services are cultur- develops is a cohesive team approach to holistic care
ally appropriate. Professional collaboration entails of a child and his/her family.
child and adolescent psychiatrists serving as consul- Integrated care models require collaboration on many
tants to pediatricians through both direct and indirect fronts, not just between individual physicians. Collab-
service activities. Direct service collaboration involves oration across staff levels and disciplines, involvement
joint direct treatment of affected children, with child of families, and a willingness to rethink processes are
and adolescent psychiatrists providing consultation or necessary elements of integrating psychosocial con-
evaluation, biopsychosocial formulation, diagnostic cerns with the more medical model of primary care.48
impressions, and treatment/referral recommendations. Mental health services seem to exist in a system apart
Indirect service collaboration includes bidirectional from the general health care system, even when they
access to medical records, provision of education and occur in the same organization. This situation is
skill building in primary care providers to assess and represented and reinforced by separate “carved out”
treat mental health problems, and support for such insurance and payment systems, separate medical
undertaking. Care plan development and care records systems and practices, and separate state

362 Curr Probl Pediatr Adolesc Health Care, November 2016


regulatory systems. Reimbursement for the substantial developmental and behavioral health disorders are now
indirect time and effort required to bridge the divide the top five chronic pediatric conditions causing func-
between these two sectors is poor or nonexistent.49 tional impairment.55
Current fee-for-service financing models do not reim- Reflective of the growing understanding of the
burse non-face to face consultations or care coordina- impact of mental health on children, the push for
tion that promote family-focused collaborative care, mental health screening arises from multiple domains
and the health home is not expected or incentivized to within society, including medicine, government, and
develop coordinated linkages with community part- industry. The American Academy of Pediatrics Task
ners. Sustainable funding strategies need to be devel- Force on Mental Health56,57 provides guidelines for
oped for integrating psychiatry into the pediatric health pediatric primary care; the United States Preventive
home.50 Services Task Force58 outlines recommendations for
Pediatricians are in a unique position to serve a vital depression screening in youth; Early Periodic Screen-
role in prevention, early detection, initial management, ing, Diagnosis, and Testing (EPSDT) of Medicaid
and coordination of care for childhood mental illness. patients requires mental health assessment of all
They regularly educate caregivers about normal behav- covered children59; the Patient Protection and Afford-
ior and development and counsel parents regarding able Care Act of 2010 mandates that commercial health
child-rearing and behavioral management. Relationships plans offer depression screening60; and the Surgeon
and rapport built over years of well-child visits and General’s interdepartmental collaboration underscored
continuity of care allow pediatricians to inquire about the need for pediatric mental health screening.61
sensitive issues, destigmatize them, and offer guidance The rationale for pediatricians performing mental
and treatment. Collaborative care models maximize health screening aligns with the nature of primary
providers knowledge and abilities, facilitate alliances pediatric practice. First, children generally seek health
with families, and work to overcome constraints within care and make decisions through a proxy, usually a
and beyond health care systems, all with the goal of parent. Second, children undergo rapid developmental
providing access to high-quality mental health care to changes and screening recommendations change with
children and adolescents and their families.51 each well-child visit.62 Third, for many families,
especially those with young children, pediatric care
providers serve as gatekeepers to mental health and
Mental Health Screening
developmental services.63 Fourth, in evaluating and
One of the hallmarks of pediatric practice is preven- promoting optimal health and well-being, the domains
tion, as evidenced by routine screenings of multiple of development and behavior must be considered
health indices throughout the growth and development together within the context of the family, a perspective
of children, including growth charts, vision, hearing, in which pediatricians are uniquely positioned.
lead levels, and urinalyses, among others. Prevention of As relationships and rapport are established between
mortality and morbidity secondary to many conditions families and pediatric providers, pediatricians become
depends on effective screening and referral procedures privy to sensitive information that can profoundly
in pediatric primary care.52 The extent of screening impact the growth and development of their identified
procedures for treatable yet relatively uncommon con- patients. The Adverse Childhood Experience Study64
ditions such as metabolic disorders, indicate the value of revealed that adverse early experiences were related to
such screenings. Therefore, screening for more preva- increased rates of health problems in adulthood,
lent illnesses, the impact value multiplies. Estimates including substance abuse, mental health problems,
reported by the Surgeon General indicate that one in five and poor health-related quality of life, and the effect
children has a diagnosable mental illness53; 9–13% of was bidirectional. Later, data from the 2003 National
US children and adolescents aged 9–17 years meet the Survey of Children’s Health demonstrated a strong
definition of “serious emotional disturbance” and more linear relationship between increasing number of
than half of these experience “extreme functional psychosocial risk factors and many poor health out-
impairment.”54 Even greater numbers have behavioral comes, including social–emotional health. Such was
or emotional problems causing impairment or distress the impact that the American Academy of Pediatrics
that do not meet criteria of the Diagnostic and Statistical issued a policy statement advocating for viewing the
Manual of Mental Disorders, Fifth Edition. Moreover, causes and consequences of toxic stress from the same

Curr Probl PediatrAdolesc Health Care, November 2016 363


perspective as other biologically based health success (unpublished data). As pediatricians are often
impairments.65 the first point of entry into mental health systems,
Yet to date, mental health screening within pedia- screening in primary care for mental health issues is
trics, while improving, remains far from universal and paramount, allowing for timely identification, early
further follow-up after positive screens are woefully intervention, and possibly secondary prevention of
limited. The reasons are numerous and complex. multilevel impairment in children and adolescents.
Repeated periodic surveys of pediatricians reveal
several barriers to mental health screening, ranging
School Mental Health
from provider issues to patient issues to systems issues.
Identified barriers included lack of training in treatment Mental health in children, adolescents, and youth is
of children with mental health problems, lack of at a point of crisis. It is estimated that one in five
confidence, presumed patient refusal, lack of time, children within the United States of America has a
lack of office support, inadequate reimbursement, and diagnosable mental illness; however, less than one
inadequate referral resources.66 Moreover, pediatric third are actually receiving services or treatment.70 In
practices that do attempt to implement mental health the wake of unsettling suicide rates, bullying, homi-
screening encounter difficulties with the process itself, cides, youth violence, and trafficking, the Nation’s key
including engagement of youth and their families in stakeholders are taking critical steps to combat barriers
screening and how clinicians evaluate initial screening that have stagnated progress. Access to care remains a
results and use them to make clinical decisions.67 huge challenge largely due to limited workforce, poor
Wissow and colleagues performed an extensive sys- geographical distribution of providers, the lack of
tematic review revealing the impact of these two cultural and linguistically sensitive services, lower
issues, finding that factors contributing to these ele- socioeconomic status, and financial burden. As a
ments of implementation directly affected success of result, children with mental health concerns remain
the screening projects. VanCleave et al.68 found that unidentified or are wrongly funneled into juvenile
successful primary care screening programs incorpo- systems with more punitive consequences than reha-
rated a multifaceted approach to implementation, bilitative care. Youth of lower socioeconomic status,
involving alterations in office workflow, physician living in poverty, face an increased risk yet are chief
staff education, collaborative learning, tailoring to among those experiencing difficulty accessing consis-
best fit the specific practice, and ongoing outcome tent and reliable care. As a result, children’s mental
assessment. health issues become adult mental health issues with
The AAP in its 2015 clinical report Promoting greater financial impact and reduction of productivity.
Optimal Development: Screening for Behavioral and It is therefore paramount that health care professionals
Emotional Problems, integrated the current under- meet children and their families where they are in order
standing of children’s mental health with its place to increase connectivity and to improve mental health
within pediatric practice and provided guidance to service delivery among our youth. School based
pediatric clinicians for implementation.69 Six different mental health services afford the opportunity to do
steps are outlined to give pediatricians a clear roadmap just that with the delivery of care in an atmosphere of
to implementing behavioral and emotional screening in familiarity and trust.
practice: (1) readying the practice, (2) identifying
resources, (3) establishing office routines for screening,
The Need For Schools
(4) tracking referrals, (5) seeking payment, and (6)
fostering collaboration. In addition, multiple areas With nearly 50 million school age children enrolled
within the US have formed collaboratives, seeking to in the public school system alone, schools are a logical
educate, train, and assist pediatricians in implementing entry point for the delivery of mental health serv-
mental health screening in their practices. Two such ices.71,72 By law, children are required to attend school
programs are the DC Collaborative for Mental Health (public, private, or homeschool) for a period of time
in Pediatric Primary Care and the Ohio AAP Building making it a key place for mental health promotion,
Mental Wellness Learning Collaborative. Screening early identification, intervention, and treatment. In
and educational tools, support, and guidance for their policy statement on School Based Mental Health
ongoing assessment are provided and meeting with Services, the American Academy of Pediatrics stood in

364 Curr Probl Pediatr Adolesc Health Care, November 2016


full support stating, “school-based programs offer the Promotion
promise of improving access to diagnosis of and
Mental health promotion focuses on well-being and
treatment for mental health problems of children and
healthy development. It bears an offensive approach
adolescents. Pediatric health care professionals, educa-
that empowers and supports individuals who are not
tors, and mental health specialists should work in
identified as “at risk.” It is thus provided to everyone
collaboration to develop and implement effective
via universal application. In the context of school
school-based mental health services.”73 It is clear that
mental health, promotion targets the “whole child” and
schools cannot do this work alone, and need to draw
offers a range of care that addresses the social-emo-
upon support from community partners to be most
tional, cognitive, and cultural facets of the child. The
effective.
emphasis is on creating a positive milieu that envelops
youth and surrounds them with value-driven experi-
The Role of Collaborative Relationships and ences that build their sense of self within their schools,
Engagement in Schools homes, and communities.77
Collaborative partnerships are essential to providing
a full continuum of care, a central goal of mental health
Prevention
services. These relationships enable school districts to
expand mental health services within schools, thereby Mental health prevention is a system of care designed
increasing access, reducing cost, and maximizing to improve the identification of and support for “at
resources. But access alone does not guarantee uti- risk” individuals with learning and/or behavioral con-
lization. Students must be properly engaged and cerns. Interventions are stratified across 3 tiers and vary
educated regarding the need for such services and the according to the level of perceived severity, and
role the school plays in its delivery.74 Lindsey et al need.78
found that assessment, accessibility, promotion, psy-
choeducation, homework, and assessing barriers to  Primary Prevention: Universal supports made
care proved effective in engaging youth and their available to all children within the general student
families. These practices were associated with partic- body. Services are delivered by social workers,
ular outcomes of interest – attendance, cognition, and psychologists, and mental health specialists as
adherence.75 From that work, evidenced-based profes- part of school-wide and classroom initiatives.
sional development workshops were created as a Primary prevention is intended to assist students
means to equip providers with the needed techniques in the development of a positive sense of self and
to engage students and their families.76 Engagement well-being so as to mitigate negative psychosocial
should therefore be a top priority when coordinating factors that commonly precipitate serious mental
the delivery of services within schools. illness. Examples include anti-bullying cam-
paigns, school rules/expectations, and skills train-
School Based Mental Health Service Delivery ing.78 The Positive Behavioral Intervention and
Supports (PBIS) program is an example of a
Models
National preventive initiative. This evidence-
The notion of delivering mental health services in based approach aims to enhance academic and
schools raises the hard questions - what are schools behavioral outcomes for all students by focusing
realistically equipped to do and how can they do it on social behavior.79
optimally? Traditionally, mental health needs have  Secondary Prevention: Supports made available
been met by school psychologists, counselors, and to “at risk” students, identified as those who
social workers; however, given the increased number would likely benefit from early intervention
of unmet needs within schools, ways to supplement services. Secondary prevention represents a more
this work are greatly needed. Collaborative care targeted approach to the delivery of services for
models afford schools the ability to expand needed those requiring an elevated level of care. Services
mental health services and to provide an array of are often provided in group settings and focus on
services in the way of promotion, prevention, inter- coping strategies for youth and skills training for
vention, and in some cases treatment. those persons working them. Examples include

Curr Probl PediatrAdolesc Health Care, November 2016 365


conflict resolution programs, peer mentoring, and result, an individual education plan (IEP) must be
check in/out services.78 created for every child qualifying for special education.
 Tertiary Prevention: Supports made available to The supportive services are largely overseen by an
students with chronic needs who failed to respond IEP team consisting of the child, the child’s
to lower levels of intervention, requiring a more parents, a general education teacher, a special educa-
intensive and individualized approach. Examples tion teacher, a school psychologist, and an advocate
include individualized counseling, individualized (if applicable).
behavior plans, and wrap-around services.80 For students with disabilities not qualifying for
special education services but still necessitating the
need for addition support, Section 504 of the Rehabil-
Treatment itation Act of 1973 protects them against discrimina-
Mental health treatments come in a large variety of tion of service.85 By putting a “504” in place, these
services. Modalities range from in- school counseling children are eligible to receive appropriate classroom
services provided by school-employed staff, in-school modifications. For example, a child with Attention
psychiatric consultations/management provided by Deficit Hyperactivity Disorder may benefit from
community psychiatrists, to fully integrated on-site accommodations such as movement breaks, preferen-
health clinics with services provided by community tial seating, and other classroom supports provided by
medical and mental health providers. School Based the 504 plan.
Health Clinics (SBHC) represent the intersection of
health and education. As of 2014, there were 2,315
SBHCs serving students and communities in 49 of 50 The Lack of Standardized Service Delivery
states and the District of Columbia.81 Services are Models in Schools – A Missing Link
provided on site, during school hours, during desig-
nated breaks and delivered by licensed professionals. In general there is no universal mechanism for
There are several notable benefits to SBHCs including coordinating the delivery of services across the educa-
increased access to care, reduced stigma, and the tional, mental health, and primary health care systems.
increased sense of ownership in their health care.82 The lack of a cohesive model functioning as the
One study assessing the use of mental health services standard of care, leaves many opportunities for frag-
across delivery sites found adolescents 21 times more mentation of services.86 Though it is not ideal for the
likely to come to mental health visits at school based federal government to enforce a standard, it should at
health clinics than community health center net- minimum provide specific core features that all school
works.83 SBHCs provide comprehensive healthcare; based mental health programs should have. These
however, in the absence of a best-practice model guidelines should reach well beyond broad recommen-
challenges remain. dations and give details around the quantitative and not
just the qualitative make-up of the collaborative team.
Protection for Students with Disabilities: Current models of care define the roles of school and
community employed personnel but less often specify
Special Education and Section 504
a quantitative mandate for their services. For example,
Under The Individuals with Disabilities Education state school counseling mandates and legislation dras-
Act (IDEA), children with disabilities (regardless of tically vary state to state with a fair share of states
type) are entitled to a free and appropriate education lacking counseling mandates for elementary and sec-
(FAPE).84 As stated this includes, “Any child between ondary schools. The average mandated school counse-
ages 3-21 years who has been evaluated under lor-to-student ratio is 1:500.87 Not uncommonly, states
Individuals with Disabilities Education Act standards have a provision such that elementary and secondary
who is mentally retarded, speech-or-hearing impaired, schools with fewer than 500 students only need one
deaf, a victim of traumatic brain injury, visually half-time school employed counselor.88 This is of great
impaired, orthopedically impaired, autistic, learning- concern given the substantial unmet mental health
disabled, possesses another health impairment qualifies needs of the nation’s youth. Consequently this places
for special education if the pre-existing impairment an undue burden on school staff thus causing an
affects the learning potential of the child.”84 As a internal barrier to care.

366 Curr Probl Pediatr Adolesc Health Care, November 2016


Challenges that meets these challenges and achieves sustained
Despite the growing support for mental health service delivery in dynamic health care environments.
services in schools, school districts continue to encoun-
ter challenges such as limited workforce, fragmenta-
tion of services, increased school enrollment, Summary
undocumented minors, program sustainability, and Strong evidence exists for the need of mental health
funding.85 States’ ability to shoulder finances varies services in schools. Fragmentation of services has led
throughout the country. School based health centers to multiple and often duplicative initiatives. School
rely on a braided model of financial support including based mental health is a viable and promising option
patient revenue, public and private-sector grants, and for the delivery of high-quality healthcare to children
partner contributions.89 Regarding fiscal sustainability, and adolescents who may otherwise go unidentified.
though few SBHCs have closed over the years they are Largely, school based mental health services answer
operating in less than 2.5% of all K-12 public the question regarding access. In the absence of
schools.71,81,90 Additionally, of those SBHCs operat- sustainable guiding principles, programs are at risk of
ing, approximately 25 % do not offer mental health premature failure. Collaborative models are critical to
services on-site.90 Aside from financial factors, sus- the strategizing, planning and implementation efforts
tainability is also hindered by ill-equipped program needed to improve effective delivery of mental health
leaders, initiative overload, and lack of evidence based services for children and adolescents nationwide.
practices to guide effective implementation.78 In mov-
ing forward, a leading practice model should seek to
address all pertinent barriers while providing clear Culturally Informed Care
roles and expectations of key stakeholders involved.
Culturally competent health care is essential not only in
the United States but also across the globe. In the past 2
Next Steps: A Case for the Involvement of decades, there has been tremendous growth in ethnic
Consulting Firms in School-Based Mental minority populations coupled with the clear need for
service delivery systems of care for a diverse population
Health Collaborative Models
of children, adolescents and their families. Although
Although the inception of school based mental health there have been major efforts to promote culturally
programs is far beyond its infancy, it has yet to reach competent services, the Surgeon General’s report on
full maturity. A new horizon is dawning for healthcare, Mental Health: Culture, Race and Ethnicity91 demon-
rich with opportunities to transform the industry and to strates that equality in access, quality and outcomes for
further develop its mechanisms for service delivery. the minority youth and adults has not yet been achieved.
The time is nigh for re-strategizing and focusing on the For example, African American youth were more likely
strengths and the skillsets needed for a successful team. to be diagnosed significantly more with conduct disorder
Traditionally, key stakeholders have included the likes and psychosis, than with mood and anxiety disorders.
of educators, mental health professionals, policy mak- African American youth were also and more frequently
ers, program directors, and other medical care special- involuntary hospitalized than their Caucasian peers on
ists; however, given the brokenness of the current adolescent in-patient units despite same level of aggres-
delivery system, perhaps more oversight is needed to sive and self-injurious behaviors during treatment.92
navigate an increasingly complex healthcare land- Although African American and Latino youths are
scape. There exists an advisory role for consulting identified and referred from primary care at similar rate
firms in school-based collaborative care models. Typ- as youths in general populations, they are less likely to
ically, these entities have been called upon to assist receive specialized mental health services or psycho-
health systems with developing operating models that tropic medications.93 This is concerning given that Latino
address the realities of financial challenges, service and Asian American girls have the highest rates of
delivery inefficiencies, and limited evidence-based depression.94
practices. In an ideal circumstance, such a consultancy In addition to health care disparities in quality of
would prove effective in helping school-based pro- mental health care for racial and ethnic minority groups
grams develop and execute a leading practice model in the United States, there are many other barriers that

Curr Probl PediatrAdolesc Health Care, November 2016 367


minority youth and families confront when attempting during an assessment, one’s racial, ethnic, or cultural
to access mental health care. These barriers include reference group that influences one’s identity should be
fragmentation of services, lack of availability, cost, and noted by the provider. The cultural identity is not only
stigma. These barriers actually exist for all children and limited to one’s origin, but it includes one’s language
adolescents but may have a more profound impact on fluency, socioeconomic background, and degree of
ethnic minority youth. When important elements such social integration especially for immigrants in partic-
as mistrust and fear of treatment, different cultural ular. Acquiring better understanding of a child or
perspectives and belief systems on mental health and adolescent’s cultural identity is essential for the pro-
illness and linguistic variances are considered, these vider to comprehend the patient’s illness from the
barriers have a staggering effect on health seeking patient’s perspective. This is extremely important in
behaviors in ethnic minority youth and their families.95 pediatric ethnic minority patient populations as most
Decreasing mental health care disparities and barriers navigate both their parent’s cultural ecosystem and
to treatment and quality care requires the collaborative their own generational one. Culturally diverse children
involvement of federal, state, and local agencies. It is develop their own cultural identity by retaining some
also extremely important to include stakeholders in the of their original cultural identity and also adopting the
community to identify and remove barriers to enhance mainstream culture. In the process, they learn flexi-
quality and access to mental health care for all children bility to perform in multiple cultural contexts and
and adolescents and for ethnic minority children in openness to different cultural perspectives. However,
particular. It is important to note, however, that once inability to develop these characteristics could lead to
the child and family present to a provider’s office for identity diffusion, or negative identity formulation.98 It
evaluation and treatment, all the collaborative work of all is also important to assess the cultural identity of the
agencies and stakeholders will be futile if a family is parents as their language and communications are
confronted with a provider who is not culturally sensitive critical in obtaining accurate clinical information and
and competent. If the child and family feel unheard, establishing a therapeutic alliance. Use of interpreters
misunderstood, disrespected or even discriminated with proper training in both the skill of translation and
against, the child will most likely be lost to follow-up content is paramount to accurately elicit and under-
treatment and care. Given that untreated mental illness stand clinical signs and symptoms, history of present
can lead to school dropout, substance use, juvenile illness and complete patient history in order to
detention, and even more tragic outcomes—suicide, comprehensively assess the child or adolescent and
providing culturally sensitive and competent care can establish a therapeutic alliance. Using siblings or the
actually change life trajectories.96 child as interpreter or language broker has been found
In an effort to promote higher cultural competency in to be ineffective and counterproductive in the context
mental health care providers, the Diagnostic and Stat- of the therapeutic process.
istical Manual of Mental Disorders (5th ed.; DSM-5; In providing culturally informed mental health care,
American Psychiatric Association, 2013) has outlined a paying close attention to cultural conceptualization of
cultural formulation, which provides a framework for distress is also significant in order to provide the
assessing information about cultural features of patient’s appropriate standard of care. Cultural and family context
mental illness in the context of social and cultural of symptomology needs to be considered as typical and
differences. DSM-V defines culture as “systems of atypical clinical presentations are discerned and identi-
knowledge, concepts, rules and practices that are learned fied for treatment purposes. Ethnic minority families
and transmitted across generations. It includes language, may understand the complexity of their child’s symp-
religion, and spirituality, family structures, life-cycle toms in the context of their own culture, idioms, and
stages, ceremonial rituals, and customs as well as moral perceived cause. It is crucial for providers to examine
and legal system” (American Psychiatric Association). cross-cultural dynamics such as inter-generational con-
In promoting competency, an ability to navigate within flicts regarding acculturation, or marginalization from
the context of cultural beliefs and behaviors, providers one’s own or mainstream culture when formulating their
are able to engage with the patients in an efficient patient’s clinical presentation. In working with ethnic
manner and improve treatment outcomes. minority youth, clinicians should also assess the coping
The first category that the cultural formulation style of the family, and their help seeking behaviors. For
emphasizes is the cultural identity of the individual; example, it is not uncommon for Asian Americans to

368 Curr Probl Pediatr Adolesc Health Care, November 2016


delay and seek mental health treatment until symptoms community settings since this is where they feel the
are quite severe due to shame not only for the child, most comfortable; they are able to assess the services
adolescent or young adult, but also for the family. It is in familiar and natural settings (i.e., schools, religious
also likely that they might have sought out other non- institutions, and medical homes) which are non-
traditional medicinal healers prior to reaching the threatening.102 In order to provide better mental health
physician’s office such as alternative medicine, cultural, care to ethnic minority youth and families, there should
or even spiritual leaders. be a strategic plan to address health care disparities
Treatment of minority children should also incorpo- which would necessitate national and state wide
rate psychosocial stressors as well as cultural features collaboration. It would also be important set standards
of vulnerability and resilience. Behavioral problems of for culturally competent and informed behavioral
the child could be the product of his/her family health services, and systematic changes promoting
dynamics, as well as social situation. It is important cultural competency and sensitivity for institutions,
to identify not only the key stressors, but also the key providers and staff.
supports within the family’s social environment and to
draw strengths from the social structures such as
Youth in Foster Care
friends, neighborhood, and community resources. In
that process, consultation and intervention by tradi- The number of children in foster care in the United
tional healers from diverse cultures can be a powerful States is over 500,000 and continues to rise. This is a
component of culturally competent care.98 Consulting special population of children who have been mal-
with or referring to ethnic minority practitioners in the treated and subsequently removed from their families
process of treatment of the patients could also be an of origin and displaced in a new home, new neighbor-
effective strategy and a way to draw strength from the hood, new school, with new people with the burden of
cultural community.99 loss, separation, and trauma on their shoulders. This
One of the most integral parts of cultural competency special population of youth is disproportionately Afri-
is recognition of cultural features of the relationship can American and Latino. In addition to the initial
between the child’s family and the clinician. It is noted insult of removal and displacement, they may have or
that delay or refusal to seek needed care usually arises continue to live in poverty with poor resources,
from mistrust, perceived discrimination, and negative suboptimal educational opportunities, and ongoing
experiences in interaction with the health care sys- exposure to urban community violence. Providing
tem.100 A trustful relationship with the provider can and accessing quality mental health care for foster
only be achieved with a value-neutral approach, and children may appear to be the least of the challenges
being open to various cultural influences on the child that these youth confront each day, however, it is a
and the family.101 An effective communication with service that is greatly needed by this marginalized
the patient could result in lower rates of early dropouts group of children that continues to be inadequate and
and missed appointments for psychiatric treatment, flawed.
which are a persistent problem. Providing comprehen- Studies have shown that children in foster care are
sive psychoeducation for both medication management more likely to be diagnosed with a mental illness, more
and therapy is crucial in engaging ethnic minority likely to be hospitalized for a mental illness, and have
families. In navigating a foreign system of mental greater mental health expenditures than other children in
health care, culturally diverse families need more in the child welfare system.103 It has also been shown that
depth and careful attention from the provider. Collab- foster care children are more likely to have chronic
oration with a traditional cultural family decision physical disabilities, birth defects, developmental delays
maker who might be outside of the nuclear family, and poor school achievement as compared to children of
and empowering the family by education about med- the same socioeconomic background.104 Once a child
ication is important in reducing the mistrust and receives services, it has been shown that they are more
perceived discrimination of the family, and promoting likely to experience discontinuity of care which impacts
rapport with the provider. their overall quality of health care.105
According to the Four Racial and Ethnic Panels, As a child is moved from foster home to foster home
culturally informed mental health care for minority and their health care is fragmented. With multiple different
culturally diverse populations should start from the providers, the medical and mental health history is at

Curr Probl PediatrAdolesc Health Care, November 2016 369


times not communicated or lost with the transition. and adolescents in the child welfare system
Thru the years, recommendations have been made to (Saunders, 2003).
improve the access and quality of services for this
population such as creating a database where informa-
Youth in Juvenile Justice System
tion is housed and shared by health care providers and
foster care agencies, or utilizing “medical passports” Similar to children and adolescents in foster care,
which documents important medical history that the youth in the juvenile justice system often have experi-
foster parent brings to each appointment.104,105 enced traumatic events, multiagency involvement with
National efforts have been made to improve the complex clinical presentations. Addressing the mental
quality of care for foster children such as creating health needs of children and adolescents in the juvenile
incentive programs for governmental agencies over- justice system requires a collaborative approach.
seeing the care of these children, collaboration of Poverty and maltreatment appear to play a critical
academic medical centers and child welfare agencies role in offending trajectories of children and adoles-
and monitoring psychotropic medication utilization in cents.107 Among girls, trauma, sexual abuse, family
these children. However, violence continues in our conflict, and mental health concerns are related to
communities and schools. Sound futures of success, juvenile or adult arrests. Among boys, community and
health and well-being for this special population of peer-related conflicts may be more influential. Family
youth, are still tenuous and questionable. Thus, despite characteristics, such as low parental education, parental
the aforementioned gains, so much more works need to mental illness, maternal substance use, discipline
be done to promote healthy outcomes for these practices, and parental stress have been associated with
children. Once a child comes into treatment it is adolescent substance abuse, conduct disorder, and
important that the designated clinician has the clinical criminality.107
skills to effectively assess and treat the child and their Since 1997, juvenile incarceration rates have
family. Practitioners that come into contact with foster declined by 42%. The United States, however, still
children have a vast array of clinical experience and has the highest rate of juvenile incarceration among
expertise ranging from bachelor’s degrees to medical industrialized nations.108 Girls appear to make up a
degrees. It is essential that these clinicians are equipped growing percentage of the juvenile justice population.
with the appropriate clinical skills to treat this pop- From 1985 to 2009, delinquent crimes among girls
ulation of youth. increased by 86%. For boys, however, rates of
Although children and adolescents in foster care have delinquency increased only slightly by 17% over that
been shown to be a population of youth that are most in same time period. Unlike boys entering the legal
need of comprehensive mental health services, access system, girls are most often nonviolent offenders
and quality of services continues to be flawed. Fur- who present with numerous psychosocial challenges
thermore, once the child receives services the appro- including elevated rates of child abuse (up to 84% of
priateness and efficacy are at best marginal with justice-involved girls reporting some kind of trauma
treatment outcomes being overlooked and challenging exposure), violence exposure, mental health problems,
to measure. Often children whom have been abused or family conflict, pregnancy, and school failure.109
neglected have complex clinical presentations and Moreover, substantial racial disparities in juvenile
even practitioners with sound clinical acumen can find justice involvement continue to persist. The rate of
these children difficult to treat (Saunders, 2003). violent crime arrests in 2005 for African American
Practitioners are often searching for guidelines on juveniles was more than five times the rate for White
best-practice methods to care for this “hard-to-treat” youth.110
population. Justice-involved youth are at a great disadvantage—
Evidenced-based treatment modalities are widely they have suffered and endured the perils of numerous
viewed as best practice models for psychotherapeutic psychosocial, familial, and environmental stressors
treatment for children and adults. Promising studies while battling their own mental illness. Approximately,
have shown that CBT is an effective psychotherapeutic 50–70% of the 2 million youth who encounter the
treatment for maltreated and sexually abused juvenile justice system meet criteria for a mental
children and adolescents.35,106 Trauma-focused CBT disorder.36 It is estimated that approximately 15–30%
in particular has been successful in treating children of justice-involved youth have diagnoses of depression

370 Curr Probl Pediatr Adolesc Health Care, November 2016


or dysthymia, 13–30% have diagnoses of attention- are positive peer relationships, family involvement,
deficit/hyperactivity disorder, 3–7% have diagnoses of low parental stress, and good housing quality are all
bipolar disorder and 11–32% have diagnoses of post- prosocial behaviors that have been related to refraining
traumatic stress disorder.36 And despite the high from delinquency.110
prevalence of mental disorders in pretrial detention
centers, only 25–30% actually receive treatment while
LGBT Youth
in detention.36 The most startling fact is that these signs
and symptoms emerged prior to and possibly led to Lesbian Gay Bisexual Transgender (LGBT) individ-
their detainment but most children and adolescents uals represent a group of individuals whose sexual
tend to end up in the juvenile justice system first and orientation may differ from heterosexual attraction, and/
never become involved or appropriately engaged in or may include individuals whose gender identity differs
mental health services.111 from the gender they were assigned to at birth. Sexual
The most effective treatment models that have orientation can be further broken down into multiple
demonstrated delinquency-reducing benefits for chil- components of how one self-identifies their sexual
dren and adolescents with mental disorders include orientation, their sexual behavior, and to whom they
functional family therapy, multidimensional treatment are sexually attracted. All three of these components
foster care, and multi-systemic therapy. Interestingly, may not align as one would expect. For example, some
all of these therapeutic models are similar in that they youth may identify in the clinic as being straight (or
involve families and youth, are community-based, and heterosexual), yet may be experiencing attraction to
deal with problem behaviors and stressors as a individuals of the same sex. This factor makes research
systemic family unit. Essentially these treatment mod- and understanding of the prevalence of sexual minority
els represent an integrated system of care. These youth difficult as many adolescents are still developing
evidenced-based treatment modalities have remarkably and how they choose to identify may evolve over time.
reduced recidivism rates of justice involved youth with Previous studies in the literature showed prevalence
mental disorders.36 rates in school samples of approximately 3% of students
The juvenile justice system was originally designed in grades 9–12 identifying as gay, lesbian, or bisex-
to be rehabilitative. But in the end, where do these ual.114,115 Terminology that is used in the LGBT
children and adolescents stand? It appears that once a communities to describe sexual orientation and gender
youth becomes involved in the juvenile justice system, identity has grown to help encompass the infinite array
there is a higher likelihood that he/she will remain of identities in these communities, and these factors can
tethered to the criminal justice system into adulthood make it difficult to accurately estimate the prevalence of
with the potential negative sequelae of adult incarcer- LGBT youth. Although it may seem an impossible task
ation, substance use and economic hardship.108 for a provider to keep up with different definitions and
For youth who do come to the attention of the terms, providers should not make assumptions and
juvenile court, it is imperative that the system is should always ask the patient how they would like to
prepared to meet the needs of chronically traumatized be identified to help increase comfort of youth in the
youth with significant mental health problems, cogni- provider’s office. Although one could also find defini-
tive impairments, and academic difficulties. Policies tions of terms from various sources, there is variance in
that support a trauma-informed juvenile justice system how terms are defined and how a given individual may
should emphasize trauma screening and assessment, interpret and use the terminology. Therefore, clinicians
evidence-based trauma treatment, cross-system should also use caution in not making too many
engagement, literacy skills and academic enrichment, assumptions on how their patient uses a term or take a
and promote resilience and engagement among youth given definition as the only acceptable use. Some of the
and families.112 Strengthening academic skills, partic- more common terms that have been used outside of
ularly in language skills, may improve health outcomes “lesbian,” “gay,” “bisexual,” and “transgender”; include
and also reduce delinquency and recidivism rates.113 concepts of “asexuality” for individuals that do not feel
With intervention, there is great potential of positive they have an interest in sex or sexual attraction,
trajectories of children and adolescent in the juvenile “pansexuality” for individuals that are attracted to
justice system. Positive or “promotive” factors to individuals of all gender identities, “agender” for those
consider when working with children and adolescents that do not identify with a particular gender identity,

Curr Probl PediatrAdolesc Health Care, November 2016 371


“gender fluid” for individuals that may have gender some of these youth face. Suicidality is a concern for
expressions or identities that vary with time, “gender all adolescents regardless of their sexual orientation or
queer” or “non-binary” to identify individuals that do gender identity, given that suicide is the second leading
not identify in the binary gender system of being either cause of death for both the 10–14-year-old and
male or female. 15–24-year-old age groups according to the CDC.120
Over recent years, there has been much media When looking at sexual minority youth (lesbian, gay,
attention and increased activism toward improving or bisexual), multiple studies have shown that these
rights for LGBT individuals. One does not have to youth are more likely to attempt suicide when com-
look far to find LGBT youth in television, movies and pared to their heterosexual peers. A recent meta-
books; providing more role models for LGBT youth. analysis of 19 studies that looked at rates of depression
There has also been increased positive acceptance in and/or suicidality in sexual minority and heterosexual
the United States toward LGBT individuals and youth, showed that on average 28% of sexual minority
providing LGBT rights, such as same-sex marriage youth reported a history of suicidality versus 12% of
and preventing discrimination.116,117 This has also heterosexual youth. When looking at the severity of the
coincided with recent trends that in LGBT individuals suicidality, the disparities increased as the intensity
coming out and disclosing their identities at younger worsened going from ideation, to having a suicide plan
ages in adolescence.118 As a result, there is a need for or intent, to actually attempting, and having an attempt
mental health providers in the community to be that required medical attention.121 When looking at
sensitive and attuned to the unique challenges and intent, another study showed that 58% of Lesbian Gay
mental health disparities in the LGBT communities. Bisexual (LGB) youth that attempted endorsed “really
Recent studies have emerged looking at some of the wanting to die” versus only 33% of heterosexual youth
mental health disparities that LGBT individuals face, endorsing the same statement.122 Similar to sexual
making this a unique population that deserves special minority youth, transgender youth also show signifi-
consideration when providing mental health care in the cant rates of suicidality, which is not surprising given
community. the similar negative factors of facing harassment from
It is very important to dispel the idea that one’s peers, negative parent reactions, and violence. Gross-
sexual orientation or gender identity in of itself is man and D’Augelli showed in a sample of transgender
pathological. The psychiatric community made efforts youth that were interviewed, 45% had seriously
to depathologize homosexuality after it was removed thought of suicide and 26% had history of a suicide
from the DSM in 1973. Similarly in 2013, in the attempt.123 In another study using a community sample
publication of DSM-5, “Gender Identity Disorder” was of self-identified transgender patients matched to
removed and the condition of Gender Dysphoria is cisgender controls, there was significant elevations in
listed to put the emphasis that one’s gender identity is rates of suicidal ideation (31.1% versus 11.1%), rates
not disorder or pathological, but the distress that some of suicide attempts (17.2% versus 6.1%) and history of
individuals experience can be addressed and treated.97 self-injury (16.7% versus 4.4%).124 In a community
It is important to note that although there are numerous sample of 246 LGBT identified youth, Mustanski et al.,
studies that have been emerging showing disparate showed that approximately 1/3 of the sample met
rates of conditions such as depression, anxiety, suici- criteria for a mental disorder, 15% for major depression
dality, and substance use; it is not due to one’s sexual and 9% for PTSD.125
orientation or gender identity, but the undue stress that Numerous studies have examined disparities between
these minority groups face compared to the general substance use in sexual minority youth (lesbian, gay,
population. Meyer applied one of the prevailing bisexual identified youth). Marshal, et al. performed a
theories related to this idea using the Minority Stress meta-analysis of 18 studies looking at rates of substance
model for LGBT individuals, hypothesizing that the use in sexual minority youth and found overall odds of
stigma, prejudice, and discrimination that LGBT substance use to be 190% greater than compared to
individuals may face creates a stressful social environ- heterosexual youth. Other significant trends included
ment that leads to mental illness.119 much higher odds of substance use in bisexual identified
In terms of mental health disparities that impact youth and stronger risks when looking at specific drugs
LGBT Youth, more research has emerged recently such as injection drugs and cocaine compared to heavy
looking at the differences and unique challenges that alcohol use or marijuana use.126 Less is known about

372 Curr Probl Pediatr Adolesc Health Care, November 2016


differences in substance use in transgender youth, that families use to show both acceptance and rejection.
however in a survey study of high schoolers in New They then showed that LGB young adults that identify
Zealand, transgender identified youth were 2.9 times as higher levels of rejecting behaviors in their families had
likely to report that they drank alcohol on a weekly much higher rates of concerning symptoms and behav-
basis.127 iors, such as having 8.4 more likely to having attempted
Another critical factor for LGBT youth is the impact suicide, 5.9 as likely to report high levels of depression,
and role that schools can have on both helping provide 3.4 more likely to report illegal drug use, and 3.4
positive support, but also being a source of additional more likely to report having unprotected sexual inter-
stress due to harassment or bullying in the school course.134 However, of critical importance is that pro-
environment. Studies have shown that sexual minority viders protect confidentiality of their patients and do not
youth typically have more excused and unexcused prematurely disclose a child’s sexual orientation or
absences from school. When asked, sexual minority gender identity. In those cases, where parents are aware
youth also report higher levels of depression and of their child’s sexual orientation or gender identity and
anxiety.128 Other studies have also shown that a sense with the youth’s permission, clinicians could provide an
of a lack of safety contributes to some of the school important role in promoting accepting and supportive
absenteeism rates in sexual minority youth, as only one parenting behaviors as well as provide psychoeducation
in seven lesbian or bisexual identified females or one in to promote well-being, such as the fact that one’s gender
five gay or bisexual males report feeling a high degree identity or sexual orientation is not pathological or
of safety in school.129 Although less research has something that can or should be changed. It is clear that
looked at transgender youth’s experiences, the GLSEN given the current trends of more LGBT individuals
National School Climate Survey in 2010–2011 showed disclosing their sexual orientation and gender identity at
that out of 705 self-identified transgender students, younger ages, those that provide care to all youth need to
75% had endorsed regular verbal harassment, 32% be well informed and comfortable working with
endorsed regular physical harassment, and 17% LGBT youth.
endorsed regularly being physically assaulted.130
On the other hand, schools have also been a shown to Unaccompanied Minors Arriving From Central
be a critical environment for intervention. Goodenow
America
showed that LGB adolescents that were in schools that
had Gay–Straight Alliances (GSA) which is a support By the year 2050, it is projected that Hispanics will
group for LGBT youth in the school setting were less be 32% of the total population of the United States of
likely to report being victimized and less likely to America135 (USA). Central American Youth are the
report suicide attempts compared to schools without fastest growing ethnic minority group in the USA. The
GSAs.131 Further, LGB youth that were in schools majority of the children and youth from Central
with HIV instruction that they saw as being sensitive to America are coming from the countries of Honduras,
LGB health concerns were less likely to use alcohol or El Salvador, and Guatemala. These countries have
drugs prior to sexual activity, less likely to have had faced political and civil struggles, civil war, genocides,
sex in the last 3 months, and had fewer sexual coupe d’etat since the early 1980s leading to displace-
partners.132 Transgender youth that were in schools ments and forced migrations. Today, this area, origi-
that had GSAs, LGBT inclusive curriculums and nally known as the Northern Triangle for commercial
perceived educators to be supportive were less likely purposes, has become known worldwide as the most
to report being bullied.133 Given the relationship violent region in the world. Being alive and young is
between the increased stress LGBT youth face in the the greatest risk factor for being a victim of violence as
school environment and the implications this stress has half the people killed are adolescents. Homicide rates,
on effecting mental health disparities, mental health which serve as an indicator for violence levels, rose
providers should look to schools as potential places of above 50 deaths per 100,00 habitants in 2014.136
advocacy and intervention for their patients. The United Nations High Commissioner of Human
Another area for provides to consider in supporting Rights claims that acts of violence and abuse character-
LGBT youth is working with family systems. Ryan et al. ize the daily life of many children in these countries
showed through their Family Acceptance Project through and has identified the movement of unaccompanied
interviews with LGB adolescents a number of behaviors and separated children (UASC) displaced by violence

Curr Probl PediatrAdolesc Health Care, November 2016 373


as a growing concern.137 These multiple levels of lack safe attachment figures, lack of protection in the
violence created a dramatic increase in the number of journey, and lack of parental guidance in the accultur-
both family units and unaccompanied children arriving ation process which can increase their vulnerabilities
in the USA as a phenomenon commonly known as “the (Table).
surge.” From a humanitarian perspective the situation
for these unaccompanied minors and others is unique
Pre-departure Conditions
as this forced displacement is fueled by violence and
Local conditions and environment at the place of origin
civil unrest and not secondary to the acute impact of a
influences a child’s health during all phases of the
natural disaster or conflict.138 Given the particular
migration process. These pre-departure health character-
political conditions, these unaccompanied minors
istics are important drivers in the overall mental health
migrating to the United States become what are known
and well-being of unaccompanied children.147
as hidden populations.139 Hidden populations are those
groups within societies for whom there is lack of The following case study illustrates the journey of unaccompanied
empirical data due to limitation in sampling frames and children across the stages of migration: pre-departure

privacy concerns and in this particular case because Johanna is a 14-year-old female from El Salvador, who departed her
membership involves illegal status.140 In general, home country on July 4, with the hopes for a better education, reunite
knowledge about the health status of immigrants is with her mother and support her family financially. Her mother asked
her to leave, as she feared for her safety. Her father was recently shot
limited due to lack of data141 and limited systematic to death by a local gang. They were living in conditions of extreme
research focusing on the long-term psychological well- poverty and dreadful violence. Mother reported her to be a healthy
being of immigrant children.142 Although no specific child.
profile is provided for deported unaccompanied minors
from the USA, the demographic profile of deported According to a recent report,148 children are migrat-
minors from Mexico reveals an increase in two ing from Central America to the USA fleeing from
especially vulnerable groups over the study period: violence—violence from organized crime, commun-
children younger than 12 and adolescent girls.143 ities controlled by youth gangs, and domestic violence.
There is also economic despair, lack of opportunities
and hopes of reunification with family members,
Migration and Health especially their parents, who had fled their country
Migration is a global phenomenon influencing the leaving them behind. The Committee of the Rights of
health of individuals and populations.144 There are the Child is concerned, in particular, at the level of
several aspects of health to be taken into consideration violence present in the home, which remains very high
in the migration process of these unaccompanied minors and continues to rise, in spite of numerous initiatives
that can influence their mental health outcomes. Children taken by the State to prevent domestic violence.149
are dependent on adults for protection, care, and It is extremely important to comprehend the perva-
decision-making. By migrating unaccompanied, they sive victimatization that these children and adolescents

TABLE. Some aspects of the various migration stages that can affect migrant health145
Pre-departure146 Transit Destination
Biological and genetic factors Travel conditions and mode Migration-related and health
(lack of basic health policies
necessities)
Infectious and chronic disease epidemiological profile Duration of journey Legal status and access to services
Social factors (education, housing, and poverty); behavioral effects on Traumatic events, abuse Inclusion or discrimination
health including nutrition and diet; access to and use of care; and violence
management of existing illness, violence and risk-taking behaviors
Environmental Factors(geographic, weather, political) Alone or mass movement Language and cultural values
Migrant status: refugee, irregular migrant Separation from family
Culture/experiential factors: differential in health service utilization Duration of stay
and expectations
Appropriateness of health services
Abuse, sexual violence,
exploitation, working, and living
conditions

374 Curr Probl Pediatr Adolesc Health Care, November 2016


experience at multiple levels in their life experience Mexico reported witnessing violence.154 Detention
and unaccompanied journey into the US. These youth poses great risks to the health, well-being, and the
have most likely been subjected to torture or sexual development of unaccompanied children. Challenges
violence, poor and inadequate somatic and mental to their mental health and well-being include cultural
health care including substance abuse, and must and language barriers, poverty, low education levels,
navigate both linquistic and cultural contexts on their substandard housing, lack of knowledge regarding
own.150 immunizations, lack of access to health care, lack of
access to quality early education programs, family
The travel and destination
separation, discrimination, and constant fears of depor-
Johanna arrived the last week of September. She was traveling tation.155 Although mental health screening is a
unaccompanied with smugglers and was captured by a gang named mandated procedure at ORR shelters, questions around
“Los Z.” She was held captive for a total of 8 weeks in an abandoned
school in Mexico until her mother paid $3100 for her release. During
the quality and nature of the process have been
this captivity, she was only fed one meal a day, was sexually raised.156
assaulted, and witnessed gruesome violence. She was detained in the
Southern Border and little is known about this experience. After Issues to Consider
3 weeks she was reunited with her mother and her mother’s new
Mental Health and Psychopathology. Fazel et al.157
family. Adaptation was difficult for Johanna. She struggled with the
language in particular. performed a systematic search and review of individual,
family, community, and societal risk and protective
factors for mental health in children and adolescents
During their journey, unaccompanied minors usually who were forcibly displaced to high-income countries.
come by themselves or with a Coyote (smugglers) or as Among the individual factors, exposure to pre-migration
part of a group. Their travel can be perilous, which may and post-migration violence, exposure to traumatic
lack basic health necessities and high exposure to multi- event, and being a female were significantly associated
ple traumatic events as illustrated by the above case. with an increased likelihood of psychological
Because of misinformation about US immigration disturbance in refugee youth. Among the family risk
policies most likely being communicated by smug- factors, having either tortured or missing parents, and
glers, many unaccompanied alien children (UAC) awareness of parent detention are strongly associated
actively seek out US authorities, believing that the with poor mental health outcome and is an independent
US grants temporary immigration status which has predictor of post-traumatic stress disorder (PTSD),
contributed to the spike in numbers and this behavior at respectively. Having a single parent in the household,
the borders.151 Once the accompanied youth cross the poor financial support, and parental psychiatric
border they are apprehended. Several agencies in problems were other familiar risk factors identified.157
the Department of Homeland Security (DHS) and the Studies in accompanied minors performed in
Department of Health and Human Services’ (HHS) Australia and United Kingdom have shown high levels
share responsibilities for the processing, treatment, and of psychopathology among asylum-seeking parents
placement of UAC.152 Once apprehended and charged and children. Preschool-aged children have been iden-
with violating the United States immigration laws, tified as exhibiting sleep and feeding disturbances and
unaccompanied alien children (UAC)—“those younger significant developmental delays. Children between the
than 18 without lawful immigration status who have no age of 6 and 17 years met clinical criteria for PTSD,
parent or legal guardian in the country available to had somatic symptoms, anxiety, and rarely exhibited
provide care and custody”—enter a disjointed system self-injurious behavior.158 These difficulties seem to
which they must navigate alone and without legal arise as a consequence of the detention experience in
representation.153 children. If they are apprehended in family units the
UAC are usually placed in detention centers near caring adults become vulnerable and parenting abilities
international borders that function as field prisons, undermined. In the long term, there seems to be an
often with inadequate health care. Medicine Sans increased level of psychological distress, losses, and
Frontiers in Mexico in 2012 provided 5800 medical disruptions in their social support networks and educa-
consultations and 10% were for physical violence, tional experiences. Gaps in the access to specialist
10,000 psychological consultations in which 42% were comprehensive mental and physical health assessments
related to violence. Overall, 80% of migrant patients in as well as treatment provisions for children and

Curr Probl PediatrAdolesc Health Care, November 2016 375


families in these detention centers have been identi- they found that URMs were markedly overrepresented
fied.159 In the United States, Human Health Services in inpatient psychiatric care with increased self-harm
(HHS) is responsible for coordinating and implement- or suicidal behavior.162
ing the care and placement of UAC in appropriate
custody.152 Access to Health Care. Children and adolescents in
Huemer et al.147 completed the first review exclu- the United States, in general, have poor quality and
sively examining the mental health of unaccompanied access to mental health services. Barriers to quality
refugee minors. They found that compared to the health care include organizational, structural, and
accompanied minors or non-refugees in general, unac- clinical factors.163 To no surprise, migrants in
companied minors showed a higher number of stressful particular, face many challenges when attempting to
life events which were subsequently strong predictors access health care.
of internalizing behaviors and traumatic stress reac- Despite millions of children affected by forced
tions, resulting in elevated posttraumatic stress disor- migration, there is limited research in potential school
der symptoms. These youth demonstrated statistically and community interventions to support the mental
significant higher levels of exposure to physical and health and well-being of this population of youth.164
sexual violence with girls subjected to sexual abuse at Notwithstanding the limited data, resources and the
greater rates than boys. Studies also highlighted higher stigma around mental health, studies in unaccompa-
levels of depression and psychosis in unaccompanied nied refugee population can serve as a primer.
minors as compared to accompanied minors. These Pediatricians play a vital role in detecting, assessing
unaccompanied refugee minors also experienced a and proposing treatment for this vulnerable group of
chronic course of traumatic stress with no improve- children and adolescents.165 Below are recommenda-
ment in anxiety and depression symptoms in follow-up tions to consider regarding Mental Health Assessment
studies. A follow-up study of unaccompanied minors and Mental Health Service Provision for UAC from
arriving at Norway before the age of 15 years were Central America:
reassessed 2 years into settlement for change in number
of stressful life events, symptoms of PTSD and (1) The System of Care values should be applied
symptoms of depression, anxiety, and internalizing when providing care for UAC arriving from
problems. Although no average change in the level of Central America: comprehensive community-
measures from 6 months into their arrival to the 2 years based services that are culturally and linguisti-
postarrival were observed, a significant increase in cally competent,166 youth guided and family
suicidal ideation was discovered. The authors con- driven with evidence practice or practice-based
cluded that these trends indicate a chronic course of evidence. Translators trained in mental health
stress reaction.160 and/or language and cultural brokers should
A study focusing on a heterogeneous group of adult always be used with this population, given the
refugee mental health patients with pre-flight experi- care provider is not professional fluent in
ences of war and human rights violations receiving Spanish. Although the component of family
specialist treatment in Norway, found a high frequency driven might be initially be challenging due to
of childhood adverse and potentially traumatic experi- the very fact that these children and adolescents
ences among its participants. There was a significant are arriving in this country alone and without
association with increased mental health symptoms intact family units, all efforts should be made in
and reduced quality of life in those adults with child- order for this to be accomplished. Strong family
hood experiences of extra- and intra-familiar vio- networks and community factors are potential
lence.161 Thus, having a system in place for sources of support for UAC arriving from
unaccompanied minors that provides early interven- Central America. A strong alliance and trust
tion, can potentially foster resilience. It should also be must be built with the parents or caregivers first
taken it into consideration when planning interventions as without it, this can easily become a barrier for
for family units as the trauma can be inter-generational. the youth to be involved in services.167
From and epidemiological perspective, a study in (2) There is a need to systematically improve the
Sweden compared inpatient psychiatric care of unac- understanding of these youth and their family
companied refugee minors (URM) and non URM and experience. Emphasis should be placed in

376 Curr Probl Pediatr Adolesc Health Care, November 2016


developing a safe space of trust and security in UAC, acculturative stress has a positive associ-
which children and adolescents can begin to ation with suicidal ideation among Latino youth
develop and fortify their sense of self. and the risk of attempted suicide doubles.
(3) A strengths-based approach integrating the Negative language brokering feelings can be
youth’s resilience168 should be considered when related to depressive symptoms and indirectly
providing mental health services to UAC arriv- related to increase alcohol and marijuana use.
ing from Central American. Resilience is fos- (7) Thorough, comprehensive medical and mental
tered and protective factors flourish when good health assessments are the gold standard in
parental mental health (particularly in mothers), screening for somatic symptoms and elements
high parental support, family cohesion, positive of distress that can be associated with depression,
school experiences, and same ethnic-origin fos- anxiety, posttraumatic stress disorder, substance
ter care (when applicable) exists.157 abuse, and disruptive behavior disorders.
(4) Because details of their past medical history may (8) Once comprehensive medical and mental health
be scarce, when working with patients who are assessments are completed and if indicated a
recent immigrants a good social history is the treatment plan is devised the most important
cornerstone of the assessment. It should include, aspect of the care is that it is culturally competent
the level of education, level of education of the and informed at all levels and stages of treatment.
parents, number of generations in the United The treatment and service delivery model must
States, number of years in the United States, meet the child and family where they are. Natural
fluency in English, extent of support and com- supports are essential and must be mobilized in
munity resources, change in social status due to the community (i.e., appropriate school place-
immigration, stress due to immigration and ment, linguistic support and education, pediatric
acculturation, extent of personal relationships medical home, social services regarding housing,
with people from diverse cultural backgrounds, employment, vocational skills, etc.).
and if reunified with parent after the unaccompa-
nied journey the immigration status of parents. Unaccompanied minors from Central America have
(5) The changing social networks and support different cultural backgrounds and although there are
structures pertaining to the process of separation similar exposures to violence, they might exhibit
and reunification with their family of origin in different patterns of psychological distress. Thus, this
the States should be explored with humility and heterogeneity needs careful attention in terms of
avoiding judgments or misinterpretation of the clinical needs assessment and interventions. Allowing
complexity of these separations.142 Adaptation the child or adolescent to tell their story is the first step
to their reunified family construct is very diffi- to building trust and a therapeutic rapport. In a medical
cult for most unaccompanied youth. A perceived system in which evaluations are marked by time
sense of isolation, difficulty following parental constraints, it is extremely important that providers
rules, suicidal ideation and high-risk behaviors do not fall prey to these pressures and carve out the
has been observed. The acculturation gap is an appropriate time for this therapeutic process to ensue.
important factor to consider in the context of Without their unfiltered story, the provider is left with
these reunifications. both limited knowledge and ability to engage this child
(6) Acculturative stress should be taken into con- or adolescent and may miss important information that
sideration when assessing the mental health of can discern signs and symptoms to formulate an
UAC from Central America. Acculturation is the accurate diagnosis and treatment plan.
process whereby elements of another cultural The Immigrant Health Toolkit is a highly valued
group are learned, adopted and integrated into resource developed by the American Academy of
an individual’s original culture. Acculturative Pediatrics. Section 5 of this Toolkit is on Mental,
stress refers to the level of psychosocial strain Emotional and Behavioral Care169 which underscores
experienced by immigrants in response to the the importance of advocacy.170 Advocacy for unac-
immigration related challenges that they companied minors should include priorities such as
encounter as they adapt to the life in a new reunification of children and adolescents with family or
country. Although the studies are not specific for other care providers, immediate and appropriate

Curr Probl PediatrAdolesc Health Care, November 2016 377


educational placement and community-building activ- “win–win” and may ultimately both decrease stigma
ities and resources. A critical function for the primary and enhance understanding of mental illness and lead
team in collaboration with community and social more young passionate minds into the field of child
services is that of educating mainstream providers psychiatry.
about immigrants0 traditional cultural practices and Once the interest in the field of child and adolescent
idioms of distress. It is also important to educate and psychiatry is piqued and students have entered medical
assist immigrants from diverse cultures in understand- school or have even begun an adult psychiatry
ing different cultural norms and practices in their new residency program, eligibility for loan repayment
environment (i.e., Corporal punishment).171 programs can be extremely helpful in securing a future
Beyond health care provision, working with unac- in practicing as a subspecialist and also possibly in
companied minors is an opportunity to make this underserved areas. The need for well-trained highly
vulnerable population visible and to advocate for the skilled child psychiatrists practicing in underserved
rights of children and for them to realize their areas is tremendous. As a requirement of the Accred-
significance and power as political agents172 in society. itation Council of Graduate Medical Education
With these efforts, we can attempt to ensure the (ACGME), while in training, both didactic and clinical
development of healthy minds and bodies and positive experiences in child and adolescent fellowship pro-
life trajectories. grams should enhance the residents0 knowledge base in
systems of care, cross-cultural psychiatry and com-
munity mental health so that they are well equipped
The Role of Training and Education and desire to work in the field.

Even with new innovations and integrated models of


care, there still must be highly skilled child mental Community-Based Mental Health
health professionals trained and available to provide Services—A Global Perspective
these much needed services. Efforts to address the
significant workforce shortage of child and adolescent Community-based mental health programs engage
psychiatrists across the globe must strengthen. Capti- multiple partners and stakeholders, build upon existing
vating young minds even prior to medical school, to infrastructure, and ultimately aim to provide services
learn about and understand mental illness is a wonder- that are acceptable and relevant to the community as
ful way to ignite a person’s interest in pursuing the well as cost-effective and sustainable. Until relatively
field of child and adolescent psychiatry. The NYU recently, in high-income and low- and middle-income
Child and Adolescent Mental Health Studies (CAMS) countries alike, mental health services have been
Program exemplifies this type of effort and has thus far concentrated in tertiary care centers and institutions
had a very positive influence on these college students’ rather than integrated into community settings. Over-
lives. The CAMS Program currently has over 40 centralization of mental health services limited the
courses, an annual enrollment of approximately 3000 degree of family and community involvement and
students and is designed to provide an integrated area reinforced stigmatization of psychiatric illness. Poor
of study for undergraduate college students that targets oversight and inadequate conditions in institutions
an increase in knowledge of mental health issues in often led to the abrogation of human rights of
children, adolescents, and emerging adults; encourages individuals afflicted with mental health disorders.
mental health service utilization on college campuses; Many communities have had difficulties accessing
and exposes young minds to the possibilities of work- mental health treatment due to high cost, a dearth of
ing with children and adolescents in the mental trained providers, and inadequate and unevenly dis-
health field. tributed resources. In the last few decades, there has
Student evaluations of the courses have overall been been a worldwide movement to transition toward
affirmative, and reported that their participation in the community-based mental health models to address
program had a positive impact on their life (84.2%) and these concerns.174
impacted their career choice (60.2%).173 This type of The growing recognition of the impact of psychiatric
collaboration between a College/University and an illness on economic and public health indices has
Academic Department of Psychiatry seems to be a fueled this movement. Mental health and neurological

378 Curr Probl Pediatr Adolesc Health Care, November 2016


disorders, particularly depression and alcohol use United States and the United Kingdom, can be
disorder, are leading causes of disability and lost generalized across multiple, diverse cultural milieus.
productivity.175 Moreover, psychiatric disorders fre- Although many screening and diagnostic tools have
quently co-occur with other chronic diseases; integrat- been translated and validated for cross-cultural use,
ing mental health interventions into community-based these instruments may not capture culturally specific
primary care centers may improve overall health out- idioms and concepts of distress.179 Especially given a
comes.176 War, displacement, poverty, and natural history of health interventions that have exploited
disasters cause psychological distress and increase subpopulations with less political power, including
susceptibility to a number of psychiatric conditions.177 persons with psychiatric illness, intellectual disabil-
Indeed, catastrophic events around the globe have ities, and developmental disorders, mental health
underscored the dire need for mental health systems interventions must be designed and undertaken with
to care for communities in distress. a focus on human rights and cultural competence.
These events have also exposed vulnerabilities in In addition to the complexity of psychiatric diagnosis
existing systems, including the scarcity of pediatric in persons presenting for assessment and treatment,
mental health services in most areas. Mental health another barrier to providing community-based mental
systems and diagnostic schema have not typically health interventions is stigma. Stigma can limit the
addressed the singular needs of children. Existing number of individuals who actually present for treat-
estimates of prevalence and measures of disability ment and has been linked to a number of negative
are adult-centric and so the full scope of the pediatric outcomes. Self-stigma—one’s own feelings of self-
problem is unknown. However, available data suggest loathing and worthlessness—can work in concert with
that a high proportion of children (12–29%) around the more external sources of stigma. Evidence of stigma-
world experience mental health problems.178 Funda- tization of psychiatric disorders may take the form of
mental child rights—access to basic needs, security, overtly hostile attitudes and treatment (e.g., assault,
education, play, consistent and emotionally available bullying, involuntary institutionalization) and discrim-
caregivers—underpin a healthy developmental trajec- ination (e.g., limited access to housing, education,
tory. Children whose circumstances jeopardize their employment, or health care). Stigma may be encoded
ability to access these rights are at higher risk for into language and idiomatic expressions, commonly
developing psychological distress and psychiatric ill- the use of pejorative terms to describe individuals with
ness. Pediatric mental health disorders may be detected mental illness and the use of psychiatric diagnostic
first in child-serving institutions such as schools, social terms as epithets. In a variety of cultural contexts, in
services agencies, and juvenile justice systems, yet high and low/middle-income countries, psychiatric
mental health interventions are not always readily symptoms are attributed to flaws in character, morality,
available in those settings. or religious devotion. Persons with mental health
This article will identify critical barriers frequently conditions may be avoided or denied full inclusion in
encountered in community-based mental health treat- the community. Stigma can lead to a lack of acknowl-
ment in diverse global settings; discuss initiatives that edgment or even concealment by family members;
address these challenges; and review lessons learned in negative attitudes and treatment may also be general-
the implementation of mental health programming in ized to family members who may themselves face
the context of disasters, with a particular emphasis on discrimination and social and economic obstacles as a
the needs of children. result. Institutionalized stigma entails underapprecia-
tion of the scale or importance of mental health needs,
Global Challenges in Community-Based inadequate resource allocation, lack of investment in
infrastructure, and separation of mental health treat-
Mental Health
ment from general medical health systems and private
Identification and diagnosis of mental health disor- insurance policies. Stigma has been linked to decreased
ders is challenging in a global context. The vast help seeking, treatment discontinuation, poor self-
majority of relevant research has been conducted in esteem, and disruption in interpersonal (including
high-income countries. There is debate about how well family relationships).180 Stigma and fear may contrib-
the biomedical psychiatric diagnostic scheme, which is ute to health care practices that isolate patients with
predominant in high-income countries such as the psychiatric illness from the community; notably, 25%

Curr Probl PediatrAdolesc Health Care, November 2016 379


of persons admitted to psychiatric facilities worldwide potential are greater, exacerbating the shortage of
remain institutionalized for more than 1 year.175 providers in low and middle-income countries.
Despite increasing global mental health awareness, Task shifting—the training of non-specialists to
there continues to be significant resource and infra- provide mental health care—has been employed to
structure limitations. It is estimated that 75% of address the shortage of mental health workers. Non-
individuals in low income countries who have mental specialist health professionals, family members, and
health disorders are without treatment.181 Only 60% of peers assume responsibility for aspects of mental
countries have a dedicated mental health policy. The health treatment in order to increase the capacity of
average amount spent per person, per year on mental the system to meet the mental health needs of the
health services is roughly US $2 overall, with an community. Task shifting may also provide a mecha-
average closer to US $0.25 in low-income countries. nism for incorporating mental health interventions in
Mental health spending accounts for less than 2% of community settings such as homes, schools, social
overall health budgets. Two-thirds of mental health services agencies, and prisons. Task shifting has been
funding is directed toward psychiatric hospitals and utilized for initiatives as varied as identifying persons
most psychiatric institutions are concentrated in urban who are at risk for psychiatric illness, delivering
areas, leaving rural areas under-resourced.175,182 Even cognitive behavioral therapy, and providing psychoso-
when there are available systems of care, services may cial support. Positive outcomes for task shifting pro-
still be inaccessible due to cost. Out of pocket expendi- grams have included improved functioning in persons
tures are the most common form of payment for mental with psychiatric disability, improvement in measures
health services in low income countries. In countries of maternal depression, and reduction of caregiver
where social insurance is available, benefits may accrue burden. Psychosocial interventions administered by
based on employment and earnings histories. Individu- non-specialists in primary care may be helpful and
als with chronic mental health disorders are more likely cost-effective in adult populations. However, the data
to have experienced unemployment and low earnings on effectiveness of task shifting programs is mixed
and may be eligible for fewer benefits. Private health and pediatric data is very limited. Primary care
insurance programs that are available in high-income providers are also frequently overburdened, making
countries may exclude and significantly limit coverage the provision of mental health services challenging.
of mental health services. Privately insured patients Moreover, an adequate supply of specialists is still
often still have considerable out-of-pocket expenses for needed to provide training, ongoing supervision, and
services not funded by insurance.183 management of complex cases.184,186,187
The worldwide shortage of mental health professio-
nals is another barrier to increasing access to services.
Global Pediatric Mental Health Initiatives
The persons who can most effectively deliver services
and step into mental health delivery roles may vary by Although there are significant challenges in funding,
cultural context and community, but the mental health staffing, and implementing community mental health
workforce consists primarily of psychiatrists, psychol- interventions, there are ongoing coordinated efforts
ogists, nurses, ad social workers. Globally, nurses are between governments, non-governmental agencies,
the professionals who comprise the largest proportion and academic institutions to overcome these obstacles.
of the mental health workforce. Psychiatrists are much In addition, there is a burgeoning literature about
more available in high-income countries compared possible cost-effective interventions.
with low income countries; high-income countries The World Health Organization Mental Health Gap
have 172 times more psychiatrists.184 Half of the Action Programme (mhGAP) was founded in 2002;
world’s population lives in an area with one psychia- its objective is to provide resources to guide evidence-
trist per 200,000 people (WHO mhGAP). There is an based treatment and scaling up of services, partic-
estimated shortfall of 11,000 psychiatrists, 128,000 ularly in under-resourced settings. It focuses on
nurses, and 100,000 other psychosocial professionals common neurological and psychiatric disorders
in low and middle-income countries.185 Highly trained including depression, schizophrenia and psychosis,
professionals in middle and low income countries epilepsy, dementia, alcohol and other substance use
frequently migrate to high-income countries where disorders, and pediatric mental health disorders. The
employment opportunities and income-earning strongest pediatric mental health recommendations

380 Curr Probl Pediatr Adolesc Health Care, November 2016


from the program thus far are in support of inter- performance. Though the evidence base is limited and
ventions that promote mother and infant interaction, more controlled studies of programs are needed, there
treat maternal depression, and provide home visiting are initiatives that have demonstrated benefit on child
and psychoeducation for mothers with depression. mental health outcomes. In Kingston, Jamaica, for
mhGAP advises against use of psychopharmacologic example, 129 children who were living in poverty and
treatment of children by non-specialists for depres- exhibited evidence of failure to thrive were included in
sion and disruptive behavior disorders (WHO a home visiting program. They received nutritional
mhGAP). supplementation as well as home visits by community
Though historically infectious diseases were a pri- support workers who were trained to facilitate play and
mary target of global health efforts, the 2010 Global stimulation by parent. At 17-year follow-up, there were
Burden of Disease Study underscored the fact that the lower rates of depression, anxiety, attention problems,
leading causes of mortality and morbidity worldwide and school suspensions in the intervention group.
are non-communicable illnesses. A significant propor- Zippy’s friends, a school-based program, is another
tion of disability adjusted life years (DALYs) are intervention for children that has shown promising
attributable to psychiatric, neurologic, and substance results. The curriculum centers on coping and inter-
use disorders. These disorders also impact adherence personal skills and explores themes such as friendship,
and treatment outcomes for other chronic communi- empathy, and conflict resolution. It has been imple-
cable and non-communicable diseases. As a response mented in multiple high, middle, and low income
to this data, the National Institutes of Mental Health countries. Children who participate in the program in
(US), the McLaughlin-Rotman Center for Global kindergarten may have an easier transition into primary
Health (CA), and the London School of Hygiene and school and teachers who are trained in the method feel
Tropical Medicine convened the Grand Challenges in more confident in their abilities to listen to their
Mental Health initiative in 2011. It is an effort that students (Patel, 2008).
seeks to identify global mental health research prior-
ities and to provide guidance for scaling up of mental
Lessons Learned From Disaster Response
health initiatives. More than 400 stakeholders repre-
senting 60 countries have participated. The effort calls Catastrophic events such as war and natural disasters
for system-wide approaches to care, evidence-based typically prompt an emergency response that includes
interventions, use of a life-course and developmental some element of psychological support for affected
approach, and an understanding of environmental persons. As many as one-third of individuals who
influences. The group has identified 40 grand chal- experience a traumatic event will develop PTSD; other
lenges, many of which relate to the care of pediatric psychiatric disorders such as Major Depressive Disorder
patients. For example, the group has advocated for the and Substance Use Disorders are highly correlated with
integration of mental health interventions into primary trauma as well. Individuals who do not meet criteria for
care settings and schools, more training of professio- a psychiatric diagnosis still experience psychological
nals who can provide evidence-based interventions to distress and may need support. While traumatic events
children, promotion of parent support programs, and increase the risk of new-onset psychiatric disorders, the
creation of national child mental health policies. In disaster response should not presume a lack of pre-
addition, the group has called for development of existing conditions; in fact, persons with prior diagnoses
interventions that explore the impact of childhood poverty of psychiatric illness often experience worsening symp-
on mental health outcomes,188 www.nimh.nih.gov/about/ toms in the context of disaster and require targeted
organization/gmh/grandchallenges/index.shtml). interventions. In the acute phase following disasters, the
Pediatric primary care interventions that may be goals of mental health responders are to conduct a
helpful and relevant to mental health include preven- mental health needs assessment, reduce distress and
tion of malnutrition, lead poisoning, and infectious provide comfort, normalize emotional reactions, provide
causes of developmental disabilities as well as family community-based interventions, make referrals to the
planning. A combination of nutritional, parenting, and appropriate level of services, and offer evidence-based
educational interventions improve psychosocial out- treatment and follow-up for those in need. More
comes. Life skills training may reduce substance research is needed regarding which mental health
abuse, adolescent pregnancy, and improve academic interventions are most helpful following a traumatic

Curr Probl PediatrAdolesc Health Care, November 2016 381


event. While there is little evidence to support the There is growing recognition of the problem and there
effectiveness of psychological debriefing, there is gen- are ongoing efforts to set research priorities and
eral consensus that psychological first aid should be develop evidence-based and culturally sensitive solu-
provided. Goals of psychological first aid include tions. Some global mental health initiatives have
attending to bodily safety and basic needs, cultivating grown out of response to catastrophic events; disasters
an environment of compassion, providing opportuni- do provide an opportunity to reassess the mental health
ties for individuals to articulate concerns, providing system as a whole and make long-term sustainable
relevant information and resources, facilitating connec- changes. More research is needed on meeting the
tion to family and social networks, assisting with particular mental health needs of children around
coping, and referring those in need for ongoing the world.
treatment.189
In low-income countries with scarce existing mental
health resources, it can be particularly challenging to The Future of Pediatric Mental Health
implement a mental health response following a
disaster. The initial disaster response may come from Given that approximately two-thirds of children and
international organizations and other groups from adolescents with mental illness in the United States
outside the impacted community. There is therefore a never receive the mental health services they need the
risk that interventions will not be sustainable after the time is now to change course and undo this devastating
acute response ends and international aid is withdrawn health disparity. The research literature clearly conveys
as well as a risk that the interventions will not be that our current state of community mental health
culturally relevant and acceptable to the community. services for children, adolescents, and their families are
On the other hand, disasters may provide an oppor- woefully insufficient and fiscally fraile. However,
tunity to examine and strengthen mental health systems amidst this bleak outlook there are sparkles of hope
so that services meet the needs of the community and and we may possibly be on the brink of changing
remain available in the long term. Non-governmental course.
organizations should not circumvent local govern- Because of the Affordable Care Act, mental health
ments and should seek input from local stakeholders. and substance abuse disorders are finally deemed
Governmental agencies and NGOs should build con- essential health benefits. Because of Mental Health
sensus and coordinate efforts to avoid duplication of Parity laws, evaluation and management codes for
services. The mental health workforce should be psychiatric care have been implemented, billing codes
developed with training programs. Mental health are based on the complexity of the patient visit just like
services should be embedded into existing community every other medical subspecialty and course and length
structures, including general hospitals and primary care of treatment restrictions have been lifted. Numerous,
clinics, and systems for ongoing care and follow-up efficacious evidenced-based treatment modalities have
should be established.190 Special attention should be been designed, implemented, and proven to have
paid to the needs of children in the wake of cata- positive outcome measures for a wide range of
strophic events. UNICEF, for example, has helped psychopathologies and familial, social, and environ-
create Child Friendly Spaces to allow opportunities for mental complexities. Even funding streams and infra-
recreation and social support and has also called for structure have been examined and demonstrated
more investment in early childhood education, nutri- sustainability at County and State levels. Innovations
tion, trauma-focused supports in school, school con- in service delivery models including technology and
struction, and protection of children against collaborative care have emerged and found footing to
exploitation.191 reach children and families in their natural settings to
enhance engagement in services, decrease stigma, and
deliver optimal care. We may still have a workforce
Conclusions
shortage but what is encouraging is that with the tools
High-income and low- and middle-income countries and our knowledge base we could be poised to design
face challenges in implementing community-based and launch a community mental health system of care
mental health programs. Resource limitations exist that provides appropriate access and quality of mental
everywhere but are profound in low income countries. health care for children and families.

382 Curr Probl Pediatr Adolesc Health Care, November 2016


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