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96 The Psychologist Johnston Modelsofdisability
96 The Psychologist Johnston Modelsofdisability
96 The Psychologist Johnston Modelsofdisability
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Models of Disability
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Marie Johnston
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Models of
disobiliry
EALTH psychology, like other challenged by research
areas of psychology, is distin_ ment and prediction on the measure.
of disabilig.
guished by its methods of
measurement, its explanatory models
and the potential it offers foi interven_
tions. In this article, I shall arzue that
Chqllengingthe
the dominant model in the fi"eld. the WHOmodel
Wq44 Health Organisarion model Disability measurement
(WHO, 1980) is inadequate to explain
Measures of disability typically idenri$
the phenomena observed, that psycho_ a series of
"ftrllv items relevant to normal ai_
logical models have not been tivitie+ and have a rating system that
developed and tested and that.r"* ur,i
the. frequency oi tt e severiry
testablemodels can be developed by in_ ot Idi:t"1
the deficit. Scores are a weishted
Morie fohnston tegrating psychological and medical sum of the ratings
models.
and the ratinqs"mav
either be by the individual o, ly od_
gavethe 1995 servers - often health professionalj. The
Award Disobility
WHO model would lead one to expect
Presidents' pattems of disability reliably related to
Physical disability is a major health me rmpairment
and to the underlyine
Lectureat the problem.Disabititiesmay arisefrom se_ disease or
netic disorders, from birtt ini.rries, ai a model typically
disorder. The measuremeni
assumes that all items
Society's
Annual result of accidents,following a stroke or
due to diseases which hippen more
are e-quivalent rather than being system_
atically related to each other aid'to the
Conference,Universitygradually. The main app.oach-
-arises to under_ underlyrng impairment and disease or
standing disability from the dlsorder.
of Warwickin April medical model - disabilities occur be_ Williams, Johnston, Willis and Ben_
cause of physical impairments which neft (1976) have proposed that the
1995. have resulted from the underlying dis_ oDserveddata
eas€or disorder. The best kno*n iodel
are not compatible with
either the disease-relatedpaiterns or the
of disabilify, the one which is used bv proposal that items are equivalent. In_
health professionalsworking with ped_ stead we
proposed and found evidence
ple with disabilities, is the WUO mtaet that the data fitted a shared cumulative
(see Figure 1) (WHO, 1980). It defines
model.
disabilify in_termsof deficits in the per_ A cumulative model of disabilitv
formance of activities as the resuli of implies sequential dependenceof itemJ:
physical. impairment following disease one cannot
achieve more difficult items
or disorder.Disability is contrastedwith without achieving easier items. It is not
'physical
impairment' which describes necessary to
decide whether failing to
deficits in the structure or function of get out of bed is worse than failini to
some part of the body, and with ,social
walk one mile: those who cannot"get
handicap' where the-deficitsare in so_ out of
bed inevitably have a worse leiel
cial functioning. of disability becausi they are unable to
Implicit in this simple model is the perform
the other item. In measurement
assumption that disability is the direct terms, it then becomes possible to
result of impairment. However, this as_ achieve
at least ordinal scaling without
sumption is challenged in the clinical engagtng
in value judgements or rela_
practice of rehabilitation, as therapists tive
weightings of dlsabilities: those
seek to minimise disability in the faie of who score x, falJ all items failed by the
enduring impairment. Ii can also be person
scoring (x-1), plqs one additional
Mentol
representqlions
ond disobility
Social cognition models: The Theory
of Planned Behaviour and disabilitv
What is required to fit these data is a
model which postulates that mental
representations, including perceived
control, predict behaviours including
t
I
performance of activities such as those
used to assessdisabilitv. The most obvi-
I ous choicesare social iognition models,
including Azien's (1988) Theory of
Planned Behaviour which has been ap-
plied successfully to health behaviour,
e.g. in explaining why people engage in
exercise, or give up smoking. This the.
ory would predict that behaviours,
including behaviours described as dis-
ability, are determined by a
----) combination of behaaiouralintention and
TheoryofPlanned Beheviour
. perceioe d behaaiour
al contr ol.
Applying this theory to disability,
+ WEOmodel one would predict that the person with
impaired joints due to arthritis would
not walk because of a combination of
I proposednew relationships lack of intention to walk and the belief
that they cannot walk. While at first
Figure 4: Integrateil moilel of disability: WHO model anil glance one might assume that all dis-
Theory of Platned Behaoiour abled people would have the intention
ffi&
application to disability, I propose two
additional variables:
r Internal Representations of the
Behaviour;
e Extemal Eliciting Cues.
Internal Representations of the Be-
to perform normal everydaY tasks, in viours and some similarities in the pat- haviour (IRB) refers to availability of
facf this is not the case.Having failed to tem of disabilities observed in people the components of the behaviour at
perform the task, PeoPle maY give uP with diverse impairments would result. some level within the individual, in-
ihe stmggle and even when there is re- Thus the shared Pattern observed in cluding how and when it is enacted; it
covery from impairment, the activity Table 1 might occur because PeoPle is not enough to intend to do what you
may not be performed
'longer becausethe indi- maintain the intention to perform beha- believe vou c,rn do if vou do not in fact
vidiral no has the intention. viours which are highly valued and one know hbw to do it, ai illustrated by the
According to the model, the intention would have to deduce that feeding one- example of the patient with unilateral
would bJdetermined by of a combina- self, getting out of bed and toileting neglect.
tion of changes in attitudes to the oneself were high, shared values. Such a Many theories include a concept of
'when I walk it is paintul shared value might also be influential this kind, rangrng from theories of skill,
behavbur(e.g.
and I dislike parn'), subiectiaenorm for via the subjective norm: if most people habit, action plan, implementation in-
'my sPouse does not believe that independent feeding and tention and behavioural conceptions of
the behwiour (e.g.
wish me to walk much and I am haPPY toileting are important, then they are cognitive rehearsal. IRB incorporates
to conor with his wishes') andperceiaed likely to communicate that expectation ideas about the knowledge of how to
'I to each individual, and this would ex- perform the behaviour and would in-
control oaer the behaaiour(e.g. am not
confident that I can walk'). Repeated plain the shared Pattem of disabilities clude the internal rePresentation
failure to perform the behaviour might observed. resulting from skill acquisition or habit
reduce perceived behavioural control Friends' and helPers' exPectations retraining methods which can be im-
and thereby intention. mieht play an important role via the portant in regaining control over tasks
-norm
This can be illustrated bY the re- sud'iective in changing the inten- such as walking following impairment.
sponseof one woman who was visited tion from setting to setting. In the study It also includes some elements of the
diring the stroke study. During the fol- of inter-rater agreement reported ear- conceptof'action plan'as proposedby
low-up visit, the woman demonstrated lier, one would Postulate that Schwarzer (1992) to bridge the gap be-
that she could now perform a particular rehabilitation therapists had higher ex- tween intention and action, in that it is
hand activity which she had not been Dectations than nurses. While the model a mental representation of a task to be
able to perform until that morning. Her ilso allows the possibility that patients enacted.Gollwitzer (1993)has proposed
expectaiion that the researcher would were less highly motivated to comply that'implementation intention' may
asl he. to perform the action (subiective with nurses,this does not fit clinical ob- mediate behaviour in the Theory of
norm) made her think of trying the task servation so well. The model would Planned Behaviour. He proposes that
(htention). Thus having overcome the predict that patients would be less suc- this works by ensuring that the beha-
in the crifical
underlying impairment was not enough iessful in overcoming disability where viour is remembered
to ensure-thal she overcarne the dis- there were no expectationsof them, in situation as the situation triggers the
'implementation intention' which has
abiliry and addition of the cognitions of either a neglectingor an over-Protective
the Theory of Planned Behaviour offer a environment. invblved anticipation of the scene of
more complete exPlanation. Current critiques of the Theory of action. As operationalued,'implemen-
Planned Behaviour point to its failure to tation intention' is an IRB' The IRB
The Theory of Planned Behaviour and predict behaviour adequately.One can conceDtis also consistent with informa-
the WHO model: an integrated model seehow the model might fail in predict- tion'from behavioural intervention
The Theory of Planned Behaviour can ine disability too, as it is possiblefor a progranunes/ where behavioural con-
be readily- integrated with the WHO palrient both to have the intention and iru.Iittg, cognitive rehearsal and other
model by proposing that physical im- to perceive that they have control over imaginlry techniques, as well as actual
pairment influences representations the behaviour,but itill to be unable to behivioural rehearsal including graded
irytrichln tum determine behavioural in- perform the activity. For example, a pa- exposure, are methods that serve to
^tient
tentions and behaviour assessed as with unilateral neglect following a stringthen the internal representationof
disabiliry Gigure 4). stroke can confidently attemPt a task, the behaviour and have been shown to
It is simple to imagine how an ac- increasethe likelihood of the behaviour'
quired o. itth"tit"d inipairment might The final component, External Elicit-
liad to attitudes towards performing ing Cues GEC) are environmental cues
normal activities of daily living and oit iege.s to action. EEC are akin to the
perceptions of conLrol over these acti- antecEients as specified in behavioural
vities- that would result in a low analyses and are necessary to explain
intention to perform the behaviour. So whv disabilitv may occur in some situ-
-others.
someone with spina bifida might find ations but not in For example,
that walking typically results in failure oatients learn that different behaviours
and, given a distite of failure, would ire expected in the physiotherapy and
devel6p a negative attitude toward nursing environments.
walking. For difficult activities, one ThJ model can be used to make
would expect them to be Performed some additional senseof the experience
only if they were of high value. Then of the girl having the behavioural pro-
one might expect patterns of disability granune to regain her ability to drink.
to refle& cultural values for the beha- The girl learns a more favourable