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The United Nations Convention of The Rig PDF
The United Nations Convention of The Rig PDF
I. INFORMED CONSENT
Article 25 of the CRPD requires States Parties to ensure that health
care is provided to persons with disabilities on the basis of free and
informed consent, on an equal basis with others.1
∗
Tina Minkowitz is one of the chairpersons of the World Network of Users and Survivors
of Psychiatry, and was a member of the U.N. Working Group that produced the first draft
text of the Convention on the Rights of Persons with Disabilities/ She served on the steering
committee of the International Disability Caucus and led its work on certain articles of the
Convention.
1. Article 25(d) reads:
[States Parties shall:] Require health professionals to provide care of the same
quality to persons with disabilities as to hers, including on the basis of free and
informed consent by, inter alia, raising awareness of the human rights, dignity,
autonomy and needs of persons with disabilities through training and the
promulgation of ethical standards for public and private health care. . .
Convention on the Rights of Persons with Disabilities, G.A. Res. 61/106, at 25(d), U.N.
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Soc. Council [ECOSOC], Comm. on Economic, Social and Cultural Rights, General
Comment No. 14, ¶ 28, U.N. Doc. E/C.12/2000/4 (Nov. 8, 2000).
8. See id. ¶ 34.
9. See Principles for the Protection of Persons with Mental Illness and the Improvement
of Mental Health Care, G.A. Res. 119 at Principle 11, U.N. Doc. A/RES/46/119 (Dec. 17,
1991).
10. The World Network of Users and Survivors of Psychiatry uses the term “users and
survivors of psychiatry” to refer to people who self-define as having experienced madness
and/or mental health problems, or having used or survived mental health services. World
Network of Users and Survivors of Psychiatry (WNUSP), Statutes, art. 3, available at
http://www.wnusp.net/wnusp%20evas/Dokumenter/statutes.html (last visited May 3, 2007).
Psychosocial disability is the preferred term when referring to this type of disability, rather
than “mental illness” which can be pejorative. See International Disability Law Caucus,
News Page for Monday, August 31, 2006, available at
http://www.un.org/esa/socdev/enable/rights/ahc8docs/ahc8idcreactcomp1.doc (last visited
May 3, 2007).
11. CRPD, supra note 1, art. 1.
12. Id.
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any individual.15
Application of this support model to the needs of persons with
psychosocial disabilities will require innovation and should draw on
existing programs that may not have been understood as support in the
exercise of legal capacity. Peer support, recovery-based services,
community support networks, and personal assistance may all help
people with psychosocial disabilities in ways related to decision-making
or the exercise of legal capacity. A program developed in Skåne,
Sweden by users and survivors of psychiatry and funded by the Swedish
government provides “personal ombudsperson” (PO) service to people
who have “mental health problems of the most difficult sort (living
entirely in a symbolic world of their own, living barricaded in their
apartments, or living homeless in the streets).”16 The PO is accountable
entirely to the client, under full confidentiality and keeping no
permanent records, and must work patiently to establish a relation and
wait until the client “knows and dares to tell” what he or she needs.17 It
is a successful program that accommodates people with psychosocial
disabilities who would not seek or accept such services under other
conditions. In addition, advance crisis planning and designation of
supporters/advocates can be adapted from the incapacity context where
it was developed (as advance directives and health care proxies) to a full
capacity context where it can function more effectively to ensure self-
determination.18
Children do not have legal capacity on an equal basis with adults;
however, the “evolving capacities” of children with disabilities are
recognized19 and they have equal rights with other children to freely
express their views, which are to be given due weight in accordance
with the child’s age and maturity, on matters concerning themselves.20
Children with disabilities are further entitled to disability and age-
appropriate assistance in realizing this right, applying the support model
to children’s decision-making.
15. Universal Declaration of Human Rights, G.A. Res. 217A, at 22, U.N. GAOR, 3d
Sess., 1st plen. mtg., U.N. Doc A/810 (Dec. 12, 1948).
16. PO-Skåne – Personal Ombudspersons in Skåne, available at
http://www.peoplewho.org/documents/jesperson.decisionmaking.doc (last visited Mar. 23,
2007).
17. Id.
18. See id.
19. CRPD, supra note 1, art. 3(h).
20. Convention on the Rights of the Child, G.A. Res. 44/25, art. 12(1), U.N. GAOR,
44th Sess., Supp. No. 49, U.N. Doc. A/RES/44/736 (1989) [hereinafter CRC]; CPRD, supra
note 1, art. 7(3).
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34. Charter of Fundamental Rights of the European Union art. 3, 2000 O.J. (C 364) 1,
9. Article 3 reads in full:
Right to the integrity of the person
1) Everyone has the right to respect for his or her physical and mental integrity.
2) In the fields of medicine and biology, the following must be respected in
particular:
- the free and informed consent of the person concerned, according to the
procedures laid down by law,
- the prohibition of eugenic practices, in particular those aiming at the selection
of persons,
- the prohibition on making the human body and its parts as such a source of
financial gain,
- the prohibition of the reproductive cloning of human beings.
Id.
35. African Union, African Charter on Human and Peoples’ Rights art. 4, June 27,
1981, O.A.U. Doc. CAB/LEG/67/3 Rev. 5, 21 I.L.M. 59.
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36. See, e.g., T.P. v. Hungary, Decision of the Human Rights Committee under the
International Covenant on Civil and Political Rights concerning Comm’n No. 496/1992,
U.N. Doc. CCPR/C/47/D/496/1992 (Apr. 1, 1993); K.L.B.-W. v. Australia, Decision of the
Human Rights Committee under the International Covenant on Civil and Political Rights
concerning Comm’n No. 499/1992, U.N. Doc. CCPR/C/47/D/499/1992/Rev.1 (June 7,
1993); Mohamed Refaat Abdoh Darwish v. Austria, Decision of the Human Rights
Committee under the International Covenant on Civil and Political Rights concerning
Comm’n No. 679/1996, U.N. Doc. CCPR/C/60/D/679/1996 (July 28, 1997).
37. See, e.g., Bozena Fijalkowska v. Poland, Decision of the Human Rights Committee
under the International Covenant on Civil and Political Rights concerning Comm’n No.
1061/2002, U.N. Doc. CCPR/C/84/D/1061/2002 (July 11-19, 2005).
38. See Antonio Viana Acosta v. Uruguay, Decision of the Human Rights Committee
under International Covenant on Civil and Political Rights concerning Comm’n No.
110/1981, U.N. Doc. CCPR/C/OP/2 (Mar. 29, 1984).
39. See, e.g., U.N. Human Rights Comm., Report of the Human Rights Committee Vol.
I, at 54, ¶ 82(13), U.N. Doc. A/58/40 (1993) (discussing the use of cage beds in Slovakia).
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40. European Committee for the Prevention of Torture and Inhumane or Degrading
Treatment or Punishment, The CPT Standards, at 55, ¶ 39, CPT/Inf/E (2002), available at
http://www.cpt.coe.int/en/documents/eng-standards-scr.pdf (last visited Mar. 27, 2007).
41. Herczegfalvy v. Austria, App. No. 10533/83, 15 Eur. H.R. Rep. 437, ¶ 82 (1992).
42. J. HERMAN BURGERS & HANS DANELIUS, THE UNITED NATIONS CONVENTION
AGAINST TORTURE: A HANDBOOK ON THE CONVENTION AGAINST TORTURE AND OTHER
CRUEL, INHUMAN, OR DEGRADING TREATMENT OR PUNISHMENT 42 (1988).
43. Ad Hoc on a Comprehensive and Integral International Convention on the
Protection and Promotion of the Rights and Dignity of Persons with Disabilities, Working
Group to the Ad Hoc Comm., Report of the Working Group to the Ad Hoc Committee, art.
12, ¶ 2, U.N. Doc. A/AC.265/2004/WG.1 (Jan. 16, 2004).
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process.44
The first U.N. Special Rapporteur on Torture listed among
methods of physical torture, “[a]dministration of drugs, in detention or
psychiatric institutions, . . . [including] neuroleptics, that cause
trembling, shivering and contractions, but mainly make the subject
apathetic and dull his intelligence. . . .”45 The Special Rapporteur
analyzed the nature of torture in terms that capture the experience of
being drugged or electroshocked against one’s will:
What distinguishes man from other living beings is his individual
personality. It is this individual personality that constitutes man’s
inherent dignity, the respect of which is, in the words of the preamble
of the Universal Declaration of Human Rights, “the foundation of
freedom, justice and peace in the world.” It is exactly this individual
personality that is often destroyed by torture; in many instances,
torture is even directed at wiping out the individual personality.
Torture is the violation par excellence of the physical and mental
integrity – in their indissoluable interdependence – of the individual
human being. Often a distinction is made between physical and
mental torture. This distinction, however, seems to have more
relevance for the means by which torture is [practiced] than for its
character. Almost invariably the effect of torture, by whatever means
it may have been [practiced], is physical and psychological. Even
when the most brutal physical means are used, the long-term effects
may be mainly psychological, even when the most refined
psychological means are resorted to, there is nearly always the
accompanying effect of severe physical pain. A common effect is the
disintegration of the personality.46
More recently, a group of five U.N. Special Rapporteurs
investigating the situation of detainees at Guantánamo Bay considered
violent force-feeding of detainees on hunger strike to be torture,
following a similar precedent in the European Court of Human Rights,47
and also concluded that force-feeding and drugging violated the right to
The concept of torture shall not include physical or mental pain or suffering that is
inherent in or solely the consequence of lawful measures, provided that they do not
include the performance of the acts or use of the methods referred to in this article.
Id. art. 2 (emphasis added).
50. See Andrew Byrnes, Torture and other Offenses Involving the Violation of the
Physical or Mental Integrity of the Human Person, in SUBSTANTIVE AND PROCEDURAL
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ASPECTS OF INTERNATIONAL CRIMINAL LAW 214 (Gabrielle Kirk McDonald et al. eds.,
2000).
51. Convention Against Torture, and Other Cruel, Inhuman or Degrading Treatment or
Punishment, G.A. Res. 39/46, at 1, U.N. Doc. A/RES/39/46 (Dec. 10, 1984) [hereinafter
CAT].
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2. Intentionally Inflicted
The intent required under CAT is general intent, rather than
specific intent, that the victim experience severe mental or physical pain
or suffering. If certain acts by their very nature cause severe mental or
physical pain or suffering, a perpetrator cannot claim benign intent. The
signature effects of neuroleptic drugs, electroshock, and similar
methods are well documented both in psychiatric literature and in first-
person accounts.55 The controversy over therapeutic use of toxic
psychotropics is also well known, with many individuals having strong
feelings and beliefs against such use. Administration of such substances
or procedures against a person’s will, requiring the overcoming of
resistance by intimidation or physical force, can only be seen as a
hostile act, within the meaning of intentional infliction of severe mental
or physical pain or suffering.
55. See id.; PETER BREGGIN, PSYCHIATRIC DRUGS: HAZARDS TO THE BRAIN (1983);
ROGER BREGGIN, ELECTROSHOCK: ITS BRAIN DISABLING EFFECTS (1979); ELLIOT
VALENSTEIN, GREAT AND DESPERATE CURES: THE RISE AND DECLINE OF PSYCHOSURGERY
AND OTHER RADICAL TREATMENTS FOR MENTAL ILLNESS (1986); ELLIOT VALENSTEIN,
BLAMING THE BRAIN: THE TRUTH ABOUT DRUGS AND MENTAL HEALTH (1998). For first
person accounts, see, e.g., MindFreedom, Personal Stories,
www.mindfreedom.org/personal-stories/personal-stories/ (last visited Mar. 26, 2007);
Center for Advocacy in Mental Health (CAMH), First Person Stories on Forced
Interventions and Being Deprived of Legal Capacity,
http://www.camhindia.org/first_person_stories.html (last visited Mar. 26, 2007); ECT.org,
Personal Stories of Electroconvulsive Therapy, http://www.ect.org/category/personal-
accounts/ (last visited Mar. 26, 2007).
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56. A writer in the U.K., who wishes to remain anonymous but allowed me access to
her arguments regarding electroshock (ECT) punishment (on file with author) [herein after
Anonymous Author’s Arguments]. She writes:
There is another aspect to the business of ECT as punishment besides the patient’s
view that it punishes (as interpreted by psychiatrists), and this is the attitudes of the
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62. See Canadian Movement Disorders Group, Drug Induced Movement Disorders:
Neuroleptic Malignant Syndrome, available at
http://www.cmdg.org/Movement_/drug/Neuroleptic_Malignant_Syndrome/neuroleptic_mali
gnant_syndrome.htm (last visited May 10, 2007).
63. While having committed violent acts is only one of the predicates giving rise to
IOC eligibility, it is emphasized in legislative campaigns characterized by disinformation
and hate speech, such as a newspaper headline in the fall of 1999 reading large capital
letters, “GET THE VIOLENT CRAZIES OFF THE STREETS” and in naming New York’s
outpatient commitment law for a woman killed by a man who was unsuccessfully seeking
psychiatric treatment. See, e.g., Get the Violent Crazies off the Streets, N.Y. DAILY NEWS,
Nov. 19, 1999, at 1; Kendra’s Law, N.Y. [MENTAL HYG.] LAW § 9.60 (McKinney 2007).
64. U.N. Econ. & Soc. Council [ECOSOC], Comm’n on Human Rights, Civil and
Political Rights, Including Questions of: Torture and Detention, at 11, U.N. Doc.
E/CN.4/2002/76 (Dec. 27, 2001) (prepared by Sir Nigel Rodley).
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C. Obligations
To comply with obligations under CRPD Article 15, as well as
ICCPR Article 7, CAT, and the Inter-American Convention to Prevent
and Punish Torture, States Parties to those conventions should ensure
that their laws on torture and cruel, inhuman or degrading treatment or
punishment are applied and enforced in a non-discriminatory manner,
including criminal prosecution of cases arising in the psychiatric
context, which encompasses nonconsensual interventions.
Nonconsensual interventions and other inhuman and degrading
practices in the psychiatric context (such as restraint and seclusion, and
deprivation of liberty based on psychiatric criteria) should be
criminalized in their own right, to ensure clarity and generality with
respect to the prohibition of these acts. Asylum should be granted to
individuals fleeing psychiatric persecution, whether based on disability
or another social or political identity that the individual cannot or should
not be required to disavow.66 Nonconsensual psychiatric interventions
should be banned, and effective measures taken to prevent them, in all
contexts, including prisons, nursing homes, schools and foster care, as
well as in psychiatric institutions. The obligations of CRPD Article 16,
on preventing exploitation, violence and abuse, including education of
CONCLUSION
For users and survivors of psychiatry, nonconsensual interventions
have been a source of trauma that persists because its disclosure often
leads to greater discrimination, including the risk of additional periods
of incarceration and forced interventions. With the advent of CRPD, a
new era is in the making, in which large numbers of people will no
longer have to fear nonconsensual psychiatric interventions and will