#MDchat

Healthcare Hashtag Twitter Transcript

From: Tue Jan 25 18:00:00 PST 2011
To: Tue Jan 25 19:10:00 PST 2011

Learn more about #MDchat at The Healthcare Hashtag Project

MD_Chat Welcome to tonight’s special #MDchat on Younger-onset Alzheimer’s. Please read this note
http://bit.ly/f3t8Ne and the next few tweets.
Tue Jan 25 18:00:01 PST 2011

MD_Chat Staff from Alzheimer’s Association will tweet with @GwenFightALZ & LibbyFightALZ who were
diagnosed with Younger-onset Alzheimer’s. #MDchat
Tue Jan 25 18:00:29 PST 2011

DrJoeVerghese Looking forward to tonight's #mdchat on Alzheimer's

Tue Jan 25 18:00:58 PST 2011

MD_Chat Gwen & Libby were diagnosed w/Younger-onset Alzheimer’s - that is, diagnosed before 65 & are
in the early stage of the disease. #MDchat.
Tue Jan 25 18:02:15 PST 2011

EllenRichter Oh boy, I cant wait to join tonight's #MDchat! Welcome to everyone joining in!
Tue Jan 25 18:02:25 PST 2011

quality1 Starting now! RT @DrJoeVerghese: Looking forward to tonights #mdchat on Alzheimers

#MDChat
Tue Jan 25 18:02:40 PST 2011

MD_Chat MDchat has worked with Alzheimer's Association & Paul Moniz of @EinsteinMed to help Gwen
& Libby tell us their stories via Twitter. #MDchat
Tue Jan 25 18:03:05 PST 2011

MD_Chat During the chat, @EinsteinMed will, according to the pace of the chat, tweet pertinent links to
Alzheimer’s resources. #MDchat
Tue Jan 25 18:03:52 PST 2011

EllenRichter High five @EinsteinMed Thanks ahead of time for this great hour! #MDchat
Tue Jan 25 18:04:28 PST 2011

MD_Chat Note to regular participants: We are deliberately holding intros - see for details on tonight's
format http://bit.ly/f3t8Ne #MDchat
Tue Jan 25 18:05:08 PST 2011
SameConspiracy #MDchat during the State of the Union??? I SEE WHO DID NOT GET ASKED TO PROM.
Tue Jan 25 18:05:31 PST 2011

MD_Chat We’ll start with Gwen and Libby’s stories in a moment, but first@EinsteinMed will tell us a bit
about them. #MDchat
Tue Jan 25 18:05:42 PST 2011

EinsteinMed Hi everyone. Thanks for joining. Gwen Richards, 56, lives with her husband in Kansas City; they
have two daughters. #mdchat
Tue Jan 25 18:05:53 PST 2011

GailZahtz Oh, I just saw the time, I have to leave #leadershipchat and go to #MDChat Thanks everyone for
great conversation!
Tue Jan 25 18:06:38 PST 2011

EinsteinMed Gwen was hired as a clerk and worked her way up to analyst after 25 yrs at a shipping company
#mdchat
Tue Jan 25 18:06:39 PST 2011

DaphneLeigh Multitasking...watching SOTU and lurking on #mdchat.

Tue Jan 25 18:06:39 PST 2011

EinsteinMed Libby Embry, 62, has 2 kids, 3 grandkids, & lives with her husband in Abilene, Texas. #mdchat
Tue Jan 25 18:07:09 PST 2011

EinsteinMed An English teacher, Libby was head of her department and was named her region’s 2007
Teacher of the Year #mdchat
Tue Jan 25 18:07:31 PST 2011

RNconsult Rushed home so that I might participate tonight . Thanks for organizing Phil . Great Topic. invited
my colleagues . #MDchat
Tue Jan 25 18:07:57 PST 2011

MD_Chat OK, we’ll start of with @LibbyFightALZ’s story. Libby, could you tell us about your experience
w/Alzheimer’s symptoms and diagnosis? #MDchat
Tue Jan 25 18:08:14 PST 2011

LibbyFightALZ For me, the problems first started with the computer. #MDchat
Tue Jan 25 18:08:33 PST 2011

CommAnalytics @DaphneLeigh you are lurking too...#mdchat

Tue Jan 25 18:08:46 PST 2011

DaphneLeigh @CommAnalytics Hi, there! #mdchat

Tue Jan 25 18:09:07 PST 2011

kksparks Same! RT @DaphneLeigh: Multitasking...watching SOTU and lurking on #mdchat.

Tue Jan 25 18:09:18 PST 2011
smhcs Now! RT @MD_chat:Welcome to tonight’s special #MDchat on Younger-onset Alzheimer’s. Please
read note http://bit.ly/f3t8Ne & the next tweets.
Tue Jan 25 18:10:07 PST 2011

GailZahtz I'm at #MDChat where a patient is sharing a powerful story, so I'm going to listen more and
comment less.
Tue Jan 25 18:10:15 PST 2011

DaphneLeigh Ditto. RT @GailZahtz: I'm at #MDChat where a patient is sharing a powerful story, so I'm going to
listen more and comment less.
Tue Jan 25 18:10:45 PST 2011

MD_Chat @ctsinclair We're conducting an MDchat now - please refrain from using this hashtag for next
hour. Thanks! :) #MDchat
Tue Jan 25 18:13:28 PST 2011

carissao Both #SOTU and #MDchat right now. I'm in the mood for a little better understanding.
Tue Jan 25 18:13:46 PST 2011

ctsinclair @MD_chat You are hosting a chat during the #SOTU ? Okay. no problem, thought we might get
all together on this one #MDchat
Tue Jan 25 18:15:03 PST 2011

MD_Chat Q2 FOR @LibbyFightALZ How long did it take you to get a diagnosis? #MDchat
Tue Jan 25 18:16:37 PST 2011

habdessamad I am attending tonight's #MDchat on early onset Alzheimer's disease. #health #medicine. Join us
o listen to the stories of two patients.
Tue Jan 25 18:17:06 PST 2011

MD_Chat OK, now we're going to turn to Gwen Richards @GwenFightALZ, who was diagnosed at 54, with
more of her story. #MDchat
Tue Jan 25 18:19:40 PST 2011

njfrantz test #MDchat

Tue Jan 25 18:20:03 PST 2011

njfrantz This is Niles at Alzheimer's Assoc. I am tweeting for Libby. #MDchat

Tue Jan 25 18:20:36 PST 2011

njfrantz sorry for the delay #MDchat

Tue Jan 25 18:20:51 PST 2011

njfrantz The diagnostic process took approx 6 weeks. #MDchat

Tue Jan 25 18:21:17 PST 2011

njfrantz We could no longer ignore the red flags waving before our faces. #MDchat
Tue Jan 25 18:21:27 PST 2011
njfrantz My husband took me to see our family physician who listened to my symptoms, then promptly sent
me to a neurologist. #MDchat
Tue Jan 25 18:21:39 PST 2011

njfrantz I then saw a neuropsychologist. We did another battery of tests that confirmed the Alzheimer’s.
This process took approx 6 weeks. #MDchat
Tue Jan 25 18:21:55 PST 2011

MD_Chat If you can't see tweets in TweetChat, try TweetDeck or another client. #MDchat
Tue Jan 25 18:22:14 PST 2011

njfrantz The signs were showing up at work. I got a diagnosios 1 year after I retired. #MDchat
Tue Jan 25 18:22:43 PST 2011

njfrantz I was 59 years old when i was diagnosed. #MDchat

Tue Jan 25 18:23:06 PST 2011

njfrantz Thanks very much for having me here tonight. #MDchat

Tue Jan 25 18:23:42 PST 2011

njfrantz The problems at work were not being able to do the computer work. Forgetting meetings and
classes. #MDchat
Tue Jan 25 18:24:16 PST 2011

njfrantz I felt like i could not continue teaching. My colleagues had to do all my work for me. Covering for
me. #MDchat
Tue Jan 25 18:24:56 PST 2011

njfrantz I felt guilty, and it forced me to retire even though i did not want to. #MDchat
Tue Jan 25 18:25:37 PST 2011

MD_Chat Note: @njfrantz is tweeting for @LibbyFightALZ #MDchat

Tue Jan 25 18:25:57 PST 2011

njfrantz Libby - I could not expect them to my work and their own work. #MDchat
Tue Jan 25 18:25:58 PST 2011

GailZahtz My heart goes out to the individuals and families of @GwenFightALZ @LibbyFightALZ and all
people suffering from early Alzheimers #MDChat
Tue Jan 25 18:26:15 PST 2011

njfrantz Libby - I was the person in charge of everything and all of a sudden they were doing my work.
#MDchat
Tue Jan 25 18:26:27 PST 2011

njfrantz Libby - I thouthgt if I could get out from under the stress of teaching I could get my life together. I
was wrong. #MDchat
Tue Jan 25 18:27:43 PST 2011
njfrantz The symtpoms continued in other ways. Getting lost, could not remember what the red light
meant. #MDchat
Tue Jan 25 18:28:20 PST 2011

njfrantz All of a sudden i could not find my way home. #MDchat

Tue Jan 25 18:28:51 PST 2011

njfrantz Couldn't find the hair salon, the grocery store, places I went every day. #MDchat
Tue Jan 25 18:29:15 PST 2011

njfrantz Libby - Then it became obvious to my husband and kids. #MDchat

Tue Jan 25 18:29:46 PST 2011

njfrantz Libby - Even though I was covering for myself as best as I could. #MDchat
Tue Jan 25 18:30:15 PST 2011

EinsteinMed Gwen watched several family members succumb to Alzheimer’s : couldn’t retain info at work and
felt overwhelmed and irritable #mdchat
Tue Jan 25 18:31:40 PST 2011

njfrantz Libby - After seeing 3 doctors, I was immediately put on Aricept and Namenda. #MDchat
Tue Jan 25 18:31:59 PST 2011

EinsteinMed At first Gwen was told changes were stress-related & given antidepressants; she knew it was
more so sought additional assistance #mdchat
Tue Jan 25 18:32:23 PST 2011

njfrantz Libby - Within a week, I felt as if someone were slowly pulling cotton out of my head, and I was
beginning to think clearly again. #MDchat
Tue Jan 25 18:32:23 PST 2011

EinsteinMed After neurology exams, Gwen was devastated by younger-onset Alzheimer’s diagnosis but
relieved to know the reason for her symptoms #mdchat
Tue Jan 25 18:32:43 PST 2011

njfrantz Libby - It has given me back my dignity. #MDchat

Tue Jan 25 18:32:55 PST 2011

njfrantz Libby - I can think clearly again, and I can speak clearly again. #MDchat
Tue Jan 25 18:33:18 PST 2011

njfrantz Libby - Early diagnosis is the key to a more dignified and productive life. #MDchat
Tue Jan 25 18:33:55 PST 2011

njfrantz Libby - Knowing exactly what is wrong with you is better than not knowing anything at all. #MDchat
Tue Jan 25 18:34:17 PST 2011
njfrantz Libby - Facing the disease - and facing down the disease - has given me incredible strength.
#MDchat
Tue Jan 25 18:34:35 PST 2011

MD_Chat Gwen - @GwenFightALZ, it took longer for you to get the diagnosis. How difficult was that for
you? #MDchat
Tue Jan 25 18:34:47 PST 2011

njfrantz Libby - I contacted the local Alzheimer’s Association chapter within a month after I was diagnosed.
#MDchat
Tue Jan 25 18:35:11 PST 2011

njfrantz Libby - It’s good to be in a group that understands what it’s like to lose your train of thought or
forget what you were saying. #MDchat
Tue Jan 25 18:36:13 PST 2011

njfrantz Libby - To the doctors, regardless of my age, take my concerns seriously. Do not discount my
concerns because I am not old. #MDchat
Tue Jan 25 18:38:01 PST 2011

njfrantz Libby - Alzheimer’s can affect people in their 40s and 50s. I've met people in their 40s with
Alzheimer's. #MDchat
Tue Jan 25 18:38:40 PST 2011

njfrantz Libby - Talk to me directly in a language that I can understand. That my family can understand.
#MDchat
Tue Jan 25 18:39:12 PST 2011

njfrantz Libby - Most importantly, tell me the truth, because the diagnosis is one of the most important
things that I ever hear. #MDchat
Tue Jan 25 18:39:40 PST 2011

baerbelsmile the youngest one I ever met ,was 41 #MDchat

Tue Jan 25 18:39:42 PST 2011

MD_Chat OK, everyone, we will now open it up to questions from the audience. #MDchat
Tue Jan 25 18:41:17 PST 2011

nickdawson @MD_Chat @GwenFightALZ thankful for your insight - like many, attention spread two important
events tonight (this being one) #mdchat
Tue Jan 25 18:41:24 PST 2011

EinsteinMed Thanks for sharing your experiences @LibbyFightALZ and @GwenFightALZ #mdchat
Tue Jan 25 18:41:55 PST 2011

habdessamad Gwen at what age were you diagnosed? #MDchat

Tue Jan 25 18:42:01 PST 2011
njfrantz Libby - Find the Alzheimer’s Assoc chapter. Tell the patient and family it is in their best interest to
contact the Association. #MDchat
Tue Jan 25 18:42:06 PST 2011

RichmondDoc @GwenFightALZ, @LibbyFightAlz -- thanks so much for your courage and honesty tonight, and
for telling your stories. #mdchat
Tue Jan 25 18:42:18 PST 2011

KathyKastner #MDchat Thank u both for sharing. How'd your families react?
Tue Jan 25 18:42:25 PST 2011

EinsteinMed Thanks for everyone's patience. Gwen's comments not appearing in Tweetchat - but seem to be
okay everywhere else. #mdchat
Tue Jan 25 18:42:41 PST 2011

vj_CR @LibbyFightALZ @GwenFightALZ thanks for sharing with us! #mdchat

Tue Jan 25 18:42:46 PST 2011

njfrantz Libby - Tears. Devastation. #MDchat

Tue Jan 25 18:43:07 PST 2011

habdessamad @libbyfightalz did you feel you had to "come out" to family and friends about the diagnosis. Was it
an additional burden? #MDchat
Tue Jan 25 18:43:19 PST 2011

nickdawson @KathyKastner: #MDchat Thank u both for sharing. Howd your families react? [and how should
families support?] #mdchat
Tue Jan 25 18:43:20 PST 2011

njfrantz Libby - It was hard to tell my 9 year old grandson. i canm't talk about it without nearly crying.
#MDchat
Tue Jan 25 18:43:31 PST 2011

baerbelsmile thanks ,for sharing your story #MDchat

Tue Jan 25 18:43:38 PST 2011

njfrantz Libby - It is the hardest thing I've ever done. #MDchat

Tue Jan 25 18:43:48 PST 2011

PamelaKline @LibbyFightALZ @GwenFightALZ Thank you both for sharing your experiences with us. Your
both strong ladies:) #MDchat
Tue Jan 25 18:43:55 PST 2011

s_eller @GwenFightALZ, @LibbyFightAlz -- thanks so much for sharing your stories, @njfrantz,
@EinsteinMed thanks for your assistance. #mdchat
Tue Jan 25 18:44:12 PST 2011

njfrantz Libby - We shared every memory we ever had. We sang very song we ever knew. #MDchat
Tue Jan 25 18:44:18 PST 2011
RichmondDoc Regarding early diagnosis for illnesses like AD--if you could have known about your risk in your
20s, would you have found out? #mdchat
Tue Jan 25 18:44:44 PST 2011

carissao Gwen and Libby, what is the most supportive action family caregivers can prioritize in the home?
#mdchat
Tue Jan 25 18:44:46 PST 2011

EinsteinMed Learn about “Principles for Dignified Diagnosis” & importance of talking to patient - not just
caregiver. #mdchat http://bit.ly/fkfiwY
Tue Jan 25 18:45:22 PST 2011

njfrantz Libby - He said he would never forget. he told me all the faitry tales I've ever told him. #MDchat
Tue Jan 25 18:45:39 PST 2011

s_eller Did you feel that your healthcare providers explained things to you & your families so that you
understood your treatment options? #mdchat
Tue Jan 25 18:45:40 PST 2011

njfrantz Libby - he said he cauld always touch my hand and touch my heart and know that I would always
know him. #MDchat
Tue Jan 25 18:46:06 PST 2011

njfrantz Libby - I got more from the Alzheimer's Assoc than from doctors. my family doctors did not know
what to do. #MDchat
Tue Jan 25 18:46:40 PST 2011

EinsteinMed For physicians: Here are some guidelines to consider before communicating the diagnosis to a
patient: http://bit.ly/hvPTsV #mdchat
Tue Jan 25 18:46:50 PST 2011

EinsteinMed Sharing a diagnosis of Alzheimer’s disease w/patient? Here are techniques from JAMA that can
help the process: http://bit.ly/e7Tqwj #mdchat
Tue Jan 25 18:47:07 PST 2011

s_eller Libby - your stories with your grandson are profoundly moving -thank you for sharing. #mdchat
Tue Jan 25 18:47:13 PST 2011

njfrantz Libby - The neurologist sent me to a neuropsychologist, because he was stuopmed about what to
do becasue i was so young. #MDchat
Tue Jan 25 18:47:14 PST 2011

thehealthmaven @einsteinmed Learn “Principles 4 Dignified Diagnosis” & importance of talking to patient - not just
caregiver. #mdchat http://bit.ly/fkfiwY
Tue Jan 25 18:47:40 PST 2011

nickdawson @EinsteinMed is there a similar site for families seeking to understand the DX? #mdchat
Tue Jan 25 18:47:54 PST 2011
njfrantz Libby - Neuropscyh confirmed the diagnosis. he put me on the drugs, which were a big help. and
referred me to the Alzheimer's Assoc. #MDchat
Tue Jan 25 18:47:56 PST 2011

EllenRichter @LibbyFightAlz I'll bet your grandchild has a special way of understanding & still sharing valuable
experiences with you regardless #MDchat
Tue Jan 25 18:48:20 PST 2011

njfrantz Libby - The Alzheimer's Assoc gave me information about planning, legal and financial issues.
#MDchat
Tue Jan 25 18:48:24 PST 2011

njfrantz Libby - My support group let sme know that i am not the only person in the world facing this.
#MDchat
Tue Jan 25 18:48:43 PST 2011

EinsteinMed @njfrantz Additional resources inc. guidelines for disease management for doctors, patients and
caregivers. http://bit.ly/hmfIVx #mdchat
Tue Jan 25 18:48:44 PST 2011

njfrantz See the Alzheimer’s Association Principles for a Dignified Diagnosis here: http://bit.ly/gWip4u
#MDchat
Tue Jan 25 18:49:17 PST 2011

habdessamad A physician who trained me developed early onset Alzheimer's. It sad my awareness developed
after that and not in med school #mdchat
Tue Jan 25 18:49:20 PST 2011

EinsteinMed @alzassociation info is also available in Spanish at http://bit.ly/5koYt #mdchat

Tue Jan 25 18:49:41 PST 2011

njfrantz Libby - The Association pretty much saved my life. Now I am an advocate and on the advisory
group. #MDchat
Tue Jan 25 18:49:54 PST 2011

njfrantz Libby - sometimes it takes a personal connectionfor your awarenss to be raised. Too much
stigma. Big time. #MDchat
Tue Jan 25 18:50:35 PST 2011

EllenRichter Such wonderful insight into the frustrations & plights of two brave and determined women
diagnosed with early Alzeimer's #MDchat
Tue Jan 25 18:50:59 PST 2011

njfrantz Libby - I'm happy to answer your questions. Please ask. #MDchat
Tue Jan 25 18:51:32 PST 2011

thomasleemd @hjluks and I are planning a symposia on SM for Orthopedic Surgeons. Wonder what the 3 most
important points should be? #hcsm #mdchat
Tue Jan 25 18:51:40 PST 2011
RichmondDoc @DrJoeVerghese Agreed--on prev #MDchat sessions discussed if such tests were helpful/patient-
centered; wondering if pts would chose if them
Tue Jan 25 18:51:53 PST 2011

healthpolicygrp Medical malpractice reforms moving forward. #sotu #SOTUhealth #MDChat

Tue Jan 25 18:52:56 PST 2011

njfrantz Libby - I am working on a workbook with the Alzheimer's Assoc which will lay out a day to day for
people with Alzheimer's. #MDchat
Tue Jan 25 18:53:06 PST 2011

njfrantz Libby - from the day they get their diagnosis, on. Hopefully it will help poeple. #MDchat
Tue Jan 25 18:53:29 PST 2011

RNconsult Anyone know about Intravenous Immune Globulin(IVIg) in the treatment of Alzheimer. Is this
treatment more effective than oral Med ? #MDchat
Tue Jan 25 18:53:30 PST 2011

EinsteinMed Every pt story different. Docs initially told Gwen changes were stress-related/given
antidepressants; she knew it was more. #mdchat
Tue Jan 25 18:53:31 PST 2011

thehealthmaven @njfrantz your appreciation for the association is heartwarming ~ I'm sure u are a wonderful
advocate #mdchat
Tue Jan 25 18:53:36 PST 2011

s_eller You mentioned support group for patients, do your families attend a support group as well?
#mdchat
Tue Jan 25 18:53:42 PST 2011

KathyKastner Wonderful RT @njfrantz: Libby - working on workbook w Alzheimer's Assoc which will lay out a
day to day for people with Alzheimer's. #MDchat
Tue Jan 25 18:53:45 PST 2011

RichmondDoc @DrJoeVerghese Since tests are limited, but since Libby & Gwen went through so much for their
final Dx, would the tests have helped? #mdchat
Tue Jan 25 18:53:55 PST 2011

njfrantz Libby - Hopefully it will be available in about a year. #MDchat

Tue Jan 25 18:54:11 PST 2011

njfrantz Libby - My husband attends a support group. Also my grandchildren have come to them also.
#MDchat
Tue Jan 25 18:54:42 PST 2011

quality1 Excellent! RT @njfrantz Libby working on workbook w the Alzheimer's Assoc which will lay out a
day to day for ppl w Alzheimer's. #MDchat
Tue Jan 25 18:54:51 PST 2011
EinsteinMed Gwen took months to receive a diagnosis. It was a painful, frustrating process. She's here 2nte to
enlighten HCPs. #mdchat
Tue Jan 25 18:54:53 PST 2011

njfrantz Libby - My grandson has gone to speeches with me. He says he is going to find a cure when he
gets older. #MDchat
Tue Jan 25 18:55:25 PST 2011

carissao @GwenFightALZ Absolutely agreed, though we need practical strategies that enable stressed
caregivers to sustain that sensitivity. #MDChat
Tue Jan 25 18:55:49 PST 2011

MD_Chat We're having technical difficulties with Gwen's story, but you can read more about her here
http://t.co/TXDGE7C #MDchat
Tue Jan 25 18:56:12 PST 2011

njfrantz Libby - Doctors -- Treat me with dignity. My doctor started calling my husband at work and talking
to him instead. #MDchat
Tue Jan 25 18:56:39 PST 2011

quality1 @einsteinmed Gwen, why did it take so long. Were healthcare providers not listening to you? Did
depression dx prevail? #MDChat
Tue Jan 25 18:56:54 PST 2011

njfrantz Libby - I'm still me. I wanted to be treated with digntiy and respect while i can still aprticipate. I
want to have a say. #MDchat
Tue Jan 25 18:57:15 PST 2011

RNconsult Libby_ Glad to hear Alzheimer Assoc. was a helpful Resource. No doubt a good place to begin
#MDchat
Tue Jan 25 18:57:30 PST 2011

MD_Chat OK, our hour with Gwen and LIbby is coming up. We'll wrap up in a moment. #MDchat
Tue Jan 25 18:57:38 PST 2011

s_eller @GwenFightALZ @LibbyFightALZ - it is good to hear that your families are both giving you &
getting support for themselves. #mdchat
Tue Jan 25 18:57:50 PST 2011

habdessamad Very touching RT @njfrantz: Libby - My grandson has gone to speeches with me. He says he is
going to find a cure when he gets older. #MDchat
Tue Jan 25 18:58:26 PST 2011

EinsteinMed @quality1 Docs told Gwen her condition was stress related -initially -despite her family's history of
Alz. #mdchat
Tue Jan 25 18:58:38 PST 2011

njfrantz Libby - I think others feel the same way. We are still us. We still need to be treated as we've
always been treated. #MDchat
Tue Jan 25 18:58:46 PST 2011
s_eller @LibbyFightALZ - I hope that as an educator that I get to meet your grandson one day - I think
that he can teach us things. #mdchat
Tue Jan 25 18:59:02 PST 2011

MD_Chat OK, everyone: Please thank Libby & Gwen for their time and their courage in telling us their
stories. #MDchat
Tue Jan 25 18:59:24 PST 2011

njfrantz Libby - It is not a disease to be afraid of. People need to get on board - let's find a cure. #MDchat
Tue Jan 25 18:59:38 PST 2011

RichmondDoc Libby and Gwen--thanks again for your stories. All of us who heard you tonight will see things
differently heading forward. #mdchat
Tue Jan 25 19:00:18 PST 2011

njfrantz Libby - Thank you all so very much. Thank you for letting me share my story. #MDchat
Tue Jan 25 19:00:31 PST 2011

s_eller @LibbyFightALZ & @GwenFightALZ - my humble gratitude for sharing your profound stories &
courage. Thank you ladies #mdchat
Tue Jan 25 19:00:44 PST 2011

MD_Chat If you want to add any comments beyond tonight's #MDchat, you can continue the conversation
here http://t.co/TXDGE7C
Tue Jan 25 19:00:47 PST 2011

quality1 Thank you @LibbyFightALZ and @SwenFightALZfor this enlightening evening and sharing your
insights with us. Honored to share. #MDChat
Tue Jan 25 19:01:19 PST 2011

EllenRichter At least we can share these tweets about life with Alzeimer's & pass around the link to helpful
sites like http://bit.ly/hmfIVx #MDchat
Tue Jan 25 19:01:22 PST 2011

baerbelsmile Libby and Gwen ,thanks so much for sharing your stories with us #MDchat
Tue Jan 25 19:01:30 PST 2011

PamelaKline @njfrantz thank you Libby and Gwen. I appreciate your willingness to share your experiences.
#MDchat
Tue Jan 25 19:01:32 PST 2011

andyatFAD Thank you, Libby and Gwen! #MDchat

Tue Jan 25 19:02:04 PST 2011

napernurse @RNconsult IVIG in AD in initial trials, tho on market so can be used off label:
http://www.medscape.com/viewarticle/720320 #mdchat
Tue Jan 25 19:02:18 PST 2011
mcamp41 @LibbyFightALZ @GwenFightALZ Thanks for sharing. Very touching. Great job w tweets!
#medchat #mdchat
Tue Jan 25 19:02:31 PST 2011

EinsteinMed Thanks to Libby and Gwen and to all of you for being interested, passionate and respectful.
#mdchat
Tue Jan 25 19:02:34 PST 2011

vj_CR Thanks Libby & Gwen for your courage telling your stories! Thxs @EinsteinMed @njfrantz
@MD_chat & @PhilBaumann for making it happen #MDchat
Tue Jan 25 19:02:34 PST 2011

MD_Chat Thank you Gwen and Libby for telling us your stories. Also, thank you participants for
supporting these wonderful women. #MDchat
Tue Jan 25 19:02:51 PST 2011

EllenRichter @EinsteinMed @MD_Chat @njfrantz you guys held it all together thru a tough & challenging
Twitter night! Great going for us to have U #MDchat
Tue Jan 25 19:03:12 PST 2011

KathyKastner Libby and Gwen - so important for #MDchat and all healthcare professionals understand.
Thank you for your willingness to share and tweet.
Tue Jan 25 19:03:45 PST 2011

s_eller Thank you also to @pjfrantz, @EinsteinMed, & @PhilBaumann for arranging & facilitating this
amazing opportunity to learn from pts. #mdchat
Tue Jan 25 19:04:00 PST 2011

MD_Chat Everyone: THANK you - I know Twitter was a bit rough tonight, but your presence here has
been greatly appreciated!! #MDchat
Tue Jan 25 19:04:20 PST 2011

njfrantz Libby -Thank you for letting me tell my story. #MDchat

Tue Jan 25 19:04:49 PST 2011

thehealthmaven @EinsteinMed Paul, highly commend this very special #mdchat tonight, Thank you
Tue Jan 25 19:05:08 PST 2011

EllenRichter @GwenFightALZ @LibbyFightALZ Two amazing women. Thanks for enlightening us all
#MDchat
Tue Jan 25 19:05:25 PST 2011

KathyKastner Gr8 use of sm !RT @s_eller: TY 2 @pjfrantz, @EinsteinMed, & @PhilBaumann 4 arrangng &
facilitating amazing opp 2 learn frm pts.#mdchat
Tue Jan 25 19:05:27 PST 2011

foxepractice It's been a privilege to observe tonight's chat. Thank you! #MDchat
Tue Jan 25 19:05:28 PST 2011
MD_Chat Transcript of tonight's #MDchat will be up shortly. Also, look to http://t.co/65jpZa9 for more on the
chat!
Tue Jan 25 19:05:59 PST 2011

EinsteinMed @KathyKastner Thanks Kathy for your patience, concern and interest. Great to have you here as
always. Paul #mdchat
Tue Jan 25 19:06:14 PST 2011

DrJerath @MD_Chat Thanks for organizing and the opportunity to learn more. #MDchat
Tue Jan 25 19:06:35 PST 2011