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QHRXXX10.1177/1049732317743237Qualitative Health ResearchChambers et al.

Research Article
Qualitative Health Research

Decolonizing Scoping Review


1­–14
© The Author(s) 2017
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DOI: 10.1177/1049732317743237
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and by Indigenous Peoples and the African journals.sagepub.com/home/qhr

Diaspora: Dialoguing With the Tensions

Lori A. Chambers1, Randy Jackson1, Catherine Worthington2,


Ciann L. Wilson3, Wangari Tharao4, Nicole R. Greenspan5, Renee Masching6,
Valérie Pierre-Pierre7, Tola Mbulaheni7, Marni Amirault6,
and Patrick Brownlee6

Abstract
This article summarizes our deepened understanding of decolonizing research with, for, and by Indigenous peoples
and peoples of African descent that emerged from conducting a scoping review of the methodological literature and
reflecting on our review process. Although our review identified decolonizing methodologies as a promising approach,
we questioned if our scoping review process engaged in decolonizing knowing. To unpack the epistemological tensions
between decolonizing knowing and Western ways of doing scoping reviews, we engaged in individual and collective
reflective processes—dialoguing with the tensions—moving from individual immersion in the literature to transformative
dialogues among the team. In reflecting upon our tensions with the scoping review process, themes that emerged
included (a) ontological/epistemological disjunctures, (b) tensions with concepts and language, and (c) relationships
with the literature and beyond. This reflexive process provides valuable insight into ways in which review methods
might be made a decolonizing research experience.

Keywords
HIV/AIDS; epistemology; methodology; Aboriginal people; African Americans; Canada; participatory action research
(PAR); critical methods; decolonizing methodologies; qualitative interpretive methods; knowledge synthesis; scoping
reviews

It is a peculiar sensation, this double-consciousness, this community ways of knowing and interpreting the world
sense of always looking at one’s self through the eyes of can better assure that research findings are applicable to
others, of measuring one’s soul by the tape of a world that local understandings of health and are useful in devising
looks on in amused contempt and pity. intervening responses (Hovey, Delormier, McComber,
Lévesque, & Martin, 2017).
—W. E. B. Du Bois (1903) in The Souls of Black Folk
1
McMaster University, Hamilton, Ontario, Canada
Introduction 2
University of Victoria, Victoria, British Columbia, Canada
3
Wilfrid Laurier University, Waterloo, Ontario, Canada
Qualitative researchers have been making a concerted 4
Women’s Health in Women’s Hands, Toronto, Ontario, Canada
effort to diversify health research approaches by drawing 5
St. Michael’s Hospital, Ontario, Canada
6
upon epistemologies not commonly utilized within tradi- Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia,
tional health research. Notably, health researchers from Canada
7
African and Caribbean Council on HIV/AIDS in Ontario, Toronto,
non-Western cultures are applying their own epistemo- Ontario, Canada
logical standpoints to better assure that their research
approaches are culturally responsive and respectful to Corresponding Author:
Lori A. Chambers, Kenneth Taylor Hall, School of Social Work,
communities with whom the research is conducted and McMaster University, 1280 Main St. West, Hamilton, Ontario,
for whom the research is intended (Dillard, 2012; Loppie, Canada L8S 4M4.
2007). Methodological approaches that are grounded in Email: chambl3@mcmaster.ca
2 Qualitative Health Research 00(0)

Although the coming of alternative epistemologies has practices to restore the cultural and knowing practices of
diversified qualitative health research, questions remain Indigenous and African descendant communities affected
about whether this diversification addresses the long- by colonization. This article presents a brief introduction to
standing centering of Western worldviews within knowl- decolonizing health research, discusses some of the debates
edge production (Denzin & Lincoln, 2008). Indigenous1 and tensions related to scoping review methodologies, pres-
scholars and scholars of African descent2 particularly ents the main themes arising from our review of the litera-
have demanded the decolonization of research method- ture, and finally presents a team reflection on our scoping
ologies, which includes critical reflexivity of Western review process as shaped by our deepened understanding of
domination and imperialism within health research, and decolonizing, Indigenous, and Afrocentric knowledges, and
research that is conducted in a manner that honors our evolving engagement with the literature.
Indigenous and Afrocentric3 ways of knowing (Chilisa,
2012; Smith, 2012). Through our engagement with the
Decolonizing Health Research
decolonizing literature as described in this article, we
have brought this critical reflexivity to our work in As noted above, health research has contributed to nega-
Canadian health (HIV) research. tive social constructions of Indigenous peoples and peo-
We are a diverse team of predominantly Indigenous ples of African descent. For example, the use of
(Aboriginal4) and African descendant (African diaspora5) terminology that labels populations as vulnerable, HIV-
scholars working with allied (White settler) HIV research- endemic or at risk, without interrogating the social and
ers. Our research collaboration began through conversa- systemic inequities that contribute to disproportionate
tions about our roles in the Canadian HIV response and rates of HIV infection, reaffirms racialized stereotypes of
with the ways research is conducted with and for Indigenous these populations. This terminology is indicative of colo-
peoples and the African diaspora. We wanted to explore nial discourse, a mechanism where language is used to
some of the commonalities of our work, including the represent colonized populations through the eyes of the
approaches we use to conduct research, and our place imperialist power (Spivak, 1995). Indigenous and African
within the academy. As Indigenous and African diasporic diasporic scholars have noted the influence of colonial
scholars, we often confront a shared experience of social discourse in the design and delivery of health services
science research that “distorts [our] realities and . . . (Lazarus, 2006; Peltier et al., 2013; Waldron, 2010).
serve[s] to sustain power relations that continue to place Colonial practices of knowledge generation universalize
[us] at a disadvantage” (Dunbar, 2008, p. 86). We came Western thought by reading social and health concerns
together initially to explore commonalities and to review through dominant (i.e., Euro-Western) perspectives in
and summarize the decolonizing literatures through the use ways that may ignore cultural knowledge and practices
of a scoping review methodology. As our process evolved, that foster health and well-being for Indigenous peoples
we then worked together to collectively reflect upon how and peoples of African descent.
we used decolonizing knowing to unpack our experiences One of the first works of decolonizing scholarship to
of scoping review method to map and summarize this body reach a wide audience was Tuhiwai Smith’s (1999, 2012)
of knowledge. Drawing upon our tribal genealogies and Decolonizing Methodologies: Research and Indigenous
relational worldviews to forge common ground, our Peoples. This book connected dominant Euro-Western
involvement in conducting research on behalf of the com- research practices to histories of imperialism and colonial-
munities we represent embodies a “talked back to” and ism and offered ways affected communities could reclaim
“talked up to” orientation: our multiple positions/lenses are their ways of knowing and being. This book had a pro-
made explicit as we work to challenge the Western model found influence on Indigenous research scholarship within
of research that is embedded and supportive of “a global Canada, which has emerged as a leader in promoting
system of imperialism and power” (Smith, 2012, p. ix). decolonizing knowing practices with and for Indigenous
Our team has substantial experience in Canadian HIV peoples (Kovach, 2010; S. Wilson, 2008). In African
community-based research (CBR), as well as in service descendant scholarship, thinkers such as Franz Fanon
provision and policy work. Many of us have built strong, (1967) and Ngũgĩ wa Thiong’o (1986) have philosophized
trusting relationships as part of that experience over many on the impact that colonialism has had on the lived reali-
years. Our approach used a CBR framework to guide our ties of peoples of African descent in continental African
application of a scoping review methodology to map and and settler states. The growth of decolonizing knowing
summarize evidence (Arksey & O’Malley, 2005) focused has inspired recent anti-colonial and postcolonial scholar-
on decolonizing, Indigenous, and Afrocentric literatures. ship on Afrocentric methodologies and worldviews, and
We approached our work framed by Smith’s (2012) descrip- has contributed to greater discussions of colonialism and
tion of decolonizing knowing as a process of uncovering neocolonialism and their continued impact on peoples of
and challenging colonialism within imperialist discursive African descent (Chilisa, 2012; Dei, 2015; Dillard, 2012).
Chambers et al. 3

Global health research has begun integrating evidence-based health practice (Sackett, Rosenberg,
Indigenous worldviews and decolonizing knowledge Gray, Haynes, & Richardson, 1996). Within the HIV
generation in areas such as health promotion, mental field, the syntheses of quantitative evidence, with meta-
health/well-being, health service provision, diabetes, pal- analyses as the gold standard, have been considered
liative care, and Indigenous health (Thomas et al., 2009; complementary to biomedical health responses to HIV
Wand & Eades, 2008). These are approaches that empha- and the trial research and quantitative statistical analyses
size the importance of reclaiming ancestral ways of that initially dominated the field (Parker, 2001). Although
knowing within health practice, the relevance of local EBP has evolved outside of medical disciplines, with
knowledges, cultural interpretations of well-being, holis- knowledge synthesis methodologies—including scoping
tic and relational models of health, and recognition of the review methodologies—being utilized within other
sociohistorical impact of colonialism on the current health and social science disciplines, many have argued
health and well-being of Indigenous peoples and peoples that its positivistic underpinnings still shape these meth-
of African descent (Dlamini et al., 2012; Mundel & odologies even when used outside of the medical sci-
Chapman, 2010; Racine & Petrucka, 2011). ences (Eakin & Mykhalovskiy, 2003; MacLure, 2005).
As Kagawa-Singer, Dressler, George, and The NIH Knowledge synthesis methodologies, though popular,
Expert Panel (2016) cautioned, we aim not to universal- have also received considerable critique as they position
ize Indigenous or African descendant cultures, nor essen- themselves as an objective approach to summarizing
tialize the experiences among Indigenous peoples and research. Some caution that knowledge synthesis method-
peoples of African descent. Instead, we wish to empha- ologies have become part of a wider evidence-based
size that decolonizing scholarship shares common aims “movement” that favors quantitative research methods
from which we can draw: to interrogate colonialism over other knowing practices and positivism over other
within the knowing practices we employ in health worldviews (Pope, 2003). Traditional synthesis approaches
research and to find ways to reclaim Indigenous and have promoted claims of procedural objectivity—where
Afrocentric ways of knowing within the research we con- methodological rigor is obtained from the proper execution
duct. Like Smith (1999, 2012), we believe that there of review processes, which in turn reduces the risk of bias
exists the possibility for fruitful cross-pollination between and enhances replicability of study results (Eakin &
the Indigenous and African descendant scholarship. This Mykhalovskiy, 2003). A common concern is that proce-
cross-pollination has already emerged in the literature dural objectivity suppresses quality rather than enhances it,
with Fanon’s theories of decolonization influencing many as the interpretive processes of research—critique, tacit
Indigenous literary works (Lundgren, 2008), and anti- knowledge, intertextual connections and interconnections
colonial and postcolonial thinkers drawing upon transna- with other knowledge, dialogic interactions with other
tional Indigenous scholarship in their theorization of reviewers and the literature—can be discouraged through
decolonizing thought (Dei, 2012a). In this cross-pollina- strict adherence to synthesis protocols (MacLure, 2005).
tion, we can collectively interrogate the theories, method- Furthermore, some researchers question if knowledge syn-
ologies, and methods commonly applied to health theses are suitable methodologies for synthesizing and
research and work collaboratively to create space for interpreting the social and cultural aspects of health for
diverse knowing paradigms within the research we con- Indigenous and African descendant populations. In the
duct with, for, and by Indigenous peoples and peoples of field of HIV, Ciann Wilson (one of our team members)
African descent. argues that knowledge syntheses of HIV-related health evi-
dence are poorly suited to understanding the psychosocial,
Knowledge Synthesis Methodologies—Current systemic, and structural aspects of HIV epidemics, includ-
ing colonization and its impacts (C. L. Wilson, 2015).
Debates Critiques of knowledge synthesis methodologies have
Knowledge synthesis methodologies have become a cor- opened innovations in the field. In HIV-related research,
nerstone of evidence-based practice (EBP) in health qualitative research exploring the social and cultural
research. The development of knowledge synthesis aspects of HIV have proliferated (Parker, 2001). Syntheses
methodologies came in response to evidence-based med- of qualitative evidence (Barroso & Powell-Cope, 2000;
icine, an approach to health care policy and practices that Dillon & Basu, 2014; Sandelowski, Lambe, & Barroso,
aimed to optimize health care decision-making, through 2004) have contributed to a paradigm shift in HIV knowl-
the “conscientious, explicit and judicious use of current edge syntheses, allowing for more critical, interpretive,
best evidence” (Sackett, 1997, p. 3). Knowledge synthe- theoretically grounded approaches to aggregating and
sis methodologies, with their emphasis on quantitative synthesizing health evidence congruent with qualitative
indicators and effectiveness and efficacy of interven- scholarship. Many authors of knowledge synthesis
tions, have been deemed an ideal complement to research have optioned for alternative understandings of
4 Qualitative Health Research 00(0)

these methodologies that promote reflexive, subjective synthesis methods within a CBR framework on topics
engagement with the literature. They propose the develop- related to HIV (Chambers et al., 2014; Souleymanov
ment of synthesis methodologies that are predicated on et al., 2016; M. G. Wilson et al., 2013; Worthington,
the topic under study and congruent with the type of O’Brien, Zack, Mckee, & Oliver, 2012) and because it is
knowledge being reviewed. Lather (1999) suggested that a literature synthesis approach that is considered ideal for
knowledge syntheses can be critical methodologies if they topical areas where evidence is emerging or complex, or
engage in the “unpacking of a problematic that situates the the depth of evidence is relatively unknown. We under-
work historically and methodologically” (p. 3). This stood scoping review methodologies to be a process that
unpacking requires critical reflexivity where the reviewers rapidly maps “key concepts underpinning a research area
acknowledge the social relations within which knowledge and the main sources and types of evidence available”
is constituted (Pope, 2003). Furthermore, to move from its (Arksey & O’Malley, 2005, p. 21; see also Mays, Roberts,
positivistic roots, the endpoint of knowledge synthesis & Popay, 2001). We considered a scoping review meth-
should become knowledge discovery—through interpre- odology suitable for our project due to the growing emer-
tation and critical reflection—rather than just knowledge gence of decolonizing, Indigenous, and Afrocentric
replication (Thorne, 2017). As such, critical, reflexive methodologies within health research. As well, we origi-
engagement with the literature can exist as another way of nally thought the flexibility of scoping review methodol-
knowing the evidence. ogies would allow us to incorporate a decolonizing
knowing stance in our synthesis approach and to be more
inclusive, critical, and reflexive of the literature.
Method
We developed our search strategy based on a prelimi-
The three issues discussed in the previous section—the nary identification of literature on decolonizing,
dominance of colonial practices within HIV research, a Indigenous, and Afrocentric methodologies, and then
growing impetus to promote the cultural wisdom of extracted keywords to use as searchable terms. We limited
Indigenous peoples and peoples of African descent our search to articles where methodological search terms
through research, and paradigmic shifts in knowledge were identified (see Table 1). The breadth of our search
synthesis methodologies—have informed our approach strategy reflected our desire to learn from other Indigenous
to conducting a knowledge synthesis as a community- and African descendant scholars who work in areas out-
based and critical practice. Our aim was to consider side of HIV. We believed the ways research is carried out
decolonizing, Indigenous, and Afrocentric knowing in these other areas of concern might be relevant to the
approaches to reconceptualize HIV research by, with, HIV research we do in Canada. We also consulted with
and for Indigenous peoples and the African diaspora in Indigenous and African descendant researchers at the XIX
Canada. We began our research collaboration by con- International AIDS Conference [AIDS 2012] to get addi-
ducting a literature synthesis using a scoping review tional literature recommendations.
methodology. To locate literature, we searched 10 research databases
using the inclusive list of keywords drawn from docu-
ments obtained from our preliminary identification of rel-
Original Methods: Scoping Review
evant literature (see Table 2). We chose to restrict to
Our original objectives were to review and summarize literature from 1999 onward, as this was the point when
the literature on decolonizing, Indigenous knowing,6 decolonizing and Indigenous methodologies, and partici-
and “Southern theoretical7” methodologies. Questions patory and critical research methodological writing began
we wished to explore through this review included the to flourish on a global scale. Using this search strategy,
following: once duplicates were removed, we yielded 22,184
abstracts for review. Due to the large number, we engaged
Research Question 1: How do we find a place that is in a two-stage review process. Our first stage was to
meaningful for ourselves within research practice that review all titles and abstracts to exclude literature deemed
is also respected by others? irrelevant to our topic and to identify literature to include
Research Question 2: Can we find research frame- for our second stage review. Each of our 10 research team
works that can work with these two populations and is members was assigned equally portioned and overlap-
guided by their similar yet divergent histories and ping literature abstracts to review. We included references
worldviews? where the topic of study related to decolonizing research
methodologies or research from an Indigenous,
We had originally decided to use a scoping review Afrocentric, or Southern paradigm. This preliminary
methodology (Arksey & O’Malley, 2005) based on team review resulted in the inclusion of 3,175 references for
members’ previous experiences using this and other the second review stage.
Chambers et al. 5

Table 1.  Search Strategy—Keywords and Search Terms. Table 2.  Electronic Databases Selected for Literature
Search.
Conceptual
Understandings of Database N
Decolonizing/Indigenous/
Southern Worldview America: History & Life 892
Anthropology Plus 2,070
Decoloniz* Knowledge ASSIA 2,217
Indigenous Knowledge utilization CBCA 3,893
Southern theory Knowledge generation FRANCIS 800
Native Knowledge development IBSS 3,749
Imperialism Epistemolog* MEDLINE 7,866
Colonialism Feminism Social Work Abstracts 382
American Indian Critical theory Sociological Abstracts 3,938
African Diaspora Social action Web of Science 5,708
Postcolonialism Education
Total references 31,515
Knowledge transmission
Duplicates (9,331)
Knowledge and
Total included in T&A 22,184
information sharing
Knowledge transfer
Research transfer
Sociology of knowledge single review was used (i.e., each article was reviewed
AND
Cultural/ethnographic Methods by one team member) to screen the full text of the 350
Cultural identity Methodology documents. We took an iterative approach to our screen-
Cultural groups Participatory ing process. We had regular team meetings to discuss
Cultural values Participatory
our review process—potential themes, knowledge
Cultural transmission Community-based
Cultural maintenance research (CBR) gaps, questions, and challenges—to ensure that the
Local culture Action research team was using similar decision rules for including/
Local knowledge Participatory research excluding literature.
Traditional knowledge Photovoice From the 350 references sampled, based on our
Ethnoscience Oral method selection criteria, we identified 82 relevant articles.
Ethnography Oral history For data abstraction, we thematically categorized lit-
Ethnology Oral tradition
erature based on the topic of study, the language of
Ethnographic Storytelling
Qualitative publication, countries of interest, communities of
Cross-cultural research interest, knowledge gathering methods employed, and
health research topics discussed. A collaborative the-
matic analysis process was used to identify prelimi-
To get a sense of the included literature before pro- nary commonalities and contrasts in the literature (see
ceeding with any further analysis, for the second stage Supplementary Appendix for this reference list). It was
we randomly selected 350 of the included references through this synthesis process, however, that our rela-
(approximately 10% of the total number of references tionship with the literature and with the review process
resulting from the preliminary review). Through this shifted, and where the process of reviewing itself
second stage of the process, we modified our inclusion became a focus of analysis and reflection on scoping
criteria to ensure salience to our topic area. Toward this review methodologies and (re)knowing decolonizing
end, we clearly defined decolonizing research/method- methodological practices.
ologies (i.e., methodological processes that addressed
Western imperialism/colonialism within research, or Reflecting on the Scoping Review Process
that integrated culturally responsive knowing practices
within research methods). To refine our inclusion crite- After approximately 1 year of work on the scoping
ria, we concentrated on literature documenting research/ review, our methods evolved. We began to free ourselves
knowing practices that were by/with/for Indigenous/ of strict methodological adherence to pursue a process
African diaspora communities and not “on” them (i.e., that began to increasingly reflect a decolonizing knowing
we did not include research done by researchers repre- process. We used our experience of the scoping review
senting the dominant culture and with a colonial, process and the literature we encountered to engage in
Western science perspective). As the abstracts had critical, reflective dialogues; as noted previously, these
already been screened as potentially relevant in answer- dialogues were initially to review our progress, but over
ing our research questions, for this second stage a time they evolved into collective dialogues about our
6 Qualitative Health Research 00(0)

relationship to the literature and our roles as researchers. Literature Summary: Commonalities in
We chose to engage in a formal dialogue among ourselves Decolonizing Methodologies With and for
to grapple with our (dis)connections to our original meth-
Indigenous Peoples and the African Diaspora
odology and the tensions within these. These discussions
were conceptual, and at the same time, very personal— As described earlier, the literature identified decolonizing
about our spaces and places within/between the readings knowing as a practice that critically reflects on colonial-
and inquiry approaches. Several of us reflected on the ism, its cultural impacts, and its influence on research
trust and openness within the group, and of the discom- practices and the knowledge derived from the research.
fort of sharing some of the ideas outside of the group. We The literature identified historic and current practices of
found that this dialogic and reflective process of inter- colonization—the erasure and pathologization of
preting the data allowed us to (re)discover our ways of Indigenous and Afrocentric knowledges, critical events
knowing as a collective and allowed each of us to (re) of colonialism in a people’s history (i.e., trans-Atlantic
connect to the many ways in which we know. slave trade and postcolonial independence in African
We conducted two face-to-face meetings and took descendant histories; residential schools and land treaties
notes at each meeting, the second of which was video- in Indigenous peoples’ histories), colonial practices that
recorded (see African and Caribbean Council on HIV/ reconstructed self-identities and social identities—and its
AIDS in Ontario [ACCHO] & Canadian Aboriginal AIDS interconnections to the health and well-being of
Network [CAAN], 2014a, 2014b, 2014c, for edited ver- Indigenous peoples and the African diaspora (Chapman,
sions of our video), and transcribed to text. For our video- 2007; Diawara, 2000; Hill, Pace, & Robbins, 2010;
recorded meeting, we incorporated a sharing circle format Kempf, 2002; Rothe et al., 2006; Schiwy, 2007). Some
as it is congruent with Indigenous methods and it offered forms of decolonized knowing discussed in the literature
a collaborative, collective process to build knowledge included the integration and incorporation of cultural
(Lavallee, 2009). We employed qualitative interpretive knowing/knowledge, and the reclamation of voice within
methods to thematically code and interpret our tran- knowing practices (Mama, 2000; Orr, Paul, & Paul,
scribed reflections (Braun & Clarke, 2006; Mason, 2002). 2002). Decolonizing knowing is also demonstrative of a
This analysis focused on our experiences using a scoping relational ontology within communities; with the living
review method and the tensions we experienced using and nonliving; the mind, body, and spirit; and the past,
this method in the context of decolonizing knowing. Our present, and future (Restoule, Archibald, Lester-Smith,
interpretive methods used an asynchronous team Parent, & Smillie, 2010). This connectedness was reflec-
approach: We engaged in the sequential coding of the tive of a holistic approach to health (Brown, 1999;
data, and then second-order interpretation. Members of Finnstrom & Soderhamn, 2006).
the author team coded and circulated the coding for feed- The literature also identified the ethical responsibility
back/alterations. for research to be conducted with, for, and by Indigenous
peoples and the African diaspora (Bull, 2010). This ethi-
cal stance promotes community leadership and participa-
Results tion; fosters active collaboration with community
Given our evolving process, this article reports on two members; selects culturally appropriate research methods
sets of findings: broad themes from the decolonizing that are congruent with Indigenous and Afrocentric ways
literature and findings that emerged from our reflec- of knowing (e.g., sharing circles, narrative and storytell-
tions on the scoping review process. In the first part of ing, oral testimonies, and creative/artistic approaches);
this section, we briefly summarize the common themes conducts research of community benefit, relevance, and
that emerged from the literature on decolonizing meth- local utility; develops research mechanisms that foster
odologies with and for Indigenous peoples and the community ownership/control; and allows reflexivity to
African diaspora. In the second part, we use this know- emerge while engaging in participatory research pro-
ing of decolonizing practices in research to reflect cesses with Indigenous and African diaspora communi-
upon the tensions that emerged from using scoping ties (Abram & Cruce, 2007; Harvey & Afful, 2011;
review methodologies for this body of literature. Sharma, Gittelsohn, Rosol, & Beck, 2010).
Although this article is not devoted to presenting a full Yet, the literature also described tensions of engaging
account of the decolonizing literature, we felt it impor- in decolonizing knowing practices within Western aca-
tant to note commonalities as they spoke about the ten- demic spaces, including the tensions of ownership/control
sions we experienced in using scoping review when engaging in academic/community collaborations;
methodologies and implored us to reshape our method- and the tensions of Indigenous/Afrocentric knowing
ological process such that it became a decolonizing within Eurocentric spaces (Cargo et al., 2008; Wyeth,
knowing practice. Derrett, Hokowhitu, Hall, & Langley, 2010). Two-eyed
Chambers et al. 7

seeing/double consciousness (Du Bois, 1903; Hatcher, and the worldviews and theories of knowledge that
Bartlett, Marshall, & Marshall, 2009)—seeing that uses emerged from the literature we were reviewing. We
the strength of both Indigenous/Afrocentric and Western noticed a lack of fit between the linear, reductionist,
ways of knowing—was noted as potentially congruent Eurocentric scoping review methodologies such as creat-
with decolonized knowing as it could utilize Western ing hierarchies (or tiers) of evidence that we reproduced
approaches to research alongside Indigenous and through our inclusion processes. This approach seemed
Afrocentric worldviews (Auer & Andersson, 2001; incongruent with the more holistic, integrated, and criti-
Stroink & Nelson, 2009). Other tensions still arise, includ- cal approaches offered in the literature we were
ing the incompatibility of some Western ontologies with exploring.
Indigenous/Afrocentric worldviews, academic “gatekeep- In our collective dialogues, we discussed the impor-
ers” who privilege Euro-Western epistemologies and tance of reviewing the decolonizing literature to articu-
methodologies as the universal standard, conflicting con- late concepts, methodologies, and theories that we have
ceptual understandings of health and well-being, and the not had the space to articulate to our HIV research col-
challenges of reconciling cultural authenticity and rela- leagues. We also desired to produce outcomes in a man-
tional axiology with academic definitions of ethical, rigor- ner that we hoped our colleagues would be able to
ous, and valid research (Mila-Schaaf & Hudson, 2009; respect. And though we were pleased with the findings
Nsamenang, 2006; Snively & Corsiglia, 2001; Thomas that had emerged through our engagement with the
et al., 2009). decolonizing literature, we questioned the appropriate-
ness of scoping review methodologies for the literature
Thematic Findings: Our Reflection on Our that we were reviewing as illustrated by the quote above.
Scoping Review Process and Decolonizing Particularly, we wondered if we were using scoping
review methods—as an approach to knowledge synthe-
Knowing sis well-recognized in mainstream health research—to
Although engaging in a scoping review process allowed not only validate our methodological approach but also
us to distill and synthesize common themes, as we syn- perhaps to validate ourselves. Yet, in exploring research
thesized the literature, we questioned if our own pro- framed within Indigenous and Afrocentric worldviews,
cesses were colonizing. We questioned if we were we were inherently questioning the definition of research
homogenizing the literature and possibly erasing impor- validity and how validity within these frameworks is
tant nuances and outliers through the process. materially different from that in dominant research.
Furthermore, we realized we were ignoring important We also questioned our epistemological and ontologi-
precepts of Indigenous and Afrocentric knowledges, such cal approach and its congruence with the literature we
as valuing diverse perspectives, worldviews, and episte- were reviewing:
mologies; the localized nature of knowledge; and it being
situated within the lived realities of Indigenous peoples When we’re doing a scoping review . . . we need to start
and the African diaspora. Drawing from our thematic from a place that understands that information from the
analysis of our reflections and integrating quotes from worldviews and perspectives of the people who originally
members of our research team at our videotaped circle, created it. (Emphasis added)
we highlight several tensions we experienced using
Western grounded scoping review methodologies for As noted in this quote, this knowing is a reflexive pro-
synthesizing decolonizing methodological literature. cess that is grounded in the worldviews of the people
whose knowledge we are trying to impart. Knowing as a
Tensions with the scoping review process: Ontological and reflexive process is an important concept in Indigenous
epistemological disjunctures and Afrocentric worldviews, as it is situated within socio-
historical, cultural, and political contexts. Knowing as a
. . . That’s one of the biggest tensions I’ve experienced, this
self-reflective and embodied process brings forth our
need to validate ourselves to our colleagues, who adhere to
Western ways of knowing. And I find that a little tense, for
ancestral or cultural wisdom (Dillard, 2012; S. Wilson,
lack of a better word. Because I think validity might mean 2008). This knowing process cultivates deep listening
something different for us and for this way of knowing. and engagement in ways that required us to take time to
(Emphasis added) integrate the lessons offered within the decolonizing lit-
erature for Indigenous peoples and the African diaspora
One of the tensions we experienced derived from the (Kovach, 2010). Reflexive knowing from a decolonizing
processes embedded in completing a scoping review. We worldview is also relational, as it derives and develops
considered these tensions as epistemological and onto- through our relationships with others (Dei, 2012b). Our
logical disjunctures between methodology and method, cyclical and dialogic approach to knowing embodied
8 Qualitative Health Research 00(0)

Indigenous and Afrocentric worldviews; moreover, com- “diabetic health” also spoke about colonization (i.e., loss
munal conversations deepened our individual and collec- of hunter–gatherer lifestyles and access to traditional
tive understanding (S. Wilson, 2008). Thus, the ways in foods) and cultural and communal aspects of food (i.e.,
which we grappled with our ontological and epistemo- relationship with land and animals; food sharing as a
logical disjunctures—in collective dialogue—embodied communal practice) and its relationship to dietary health
decolonized knowing-in-action: (Bird, Wiles, Okalik, Kilabuk, & Egeland, 2009; Giles,
Haas, Šajna, & Findlay, 2008; Mendenhall et al., 2010).
Tensions with the scoping review process: Concepts and The literature we categorized as “mental health” also
language spoke about its physical, emotional, spiritual, cultural,
To jump back to methods, this is powerful self-work. It’s
and social interconnectivity (Brown, 1999; Mark &
also about new self in relation, and co-creating meaning. Lyons, 2010; Mila-Schaaf & Hudson, 2009). In our bio-
What does that mean when we try to distill messages down? medical classifications, we disconnected “physical” and
. . . And we can do that, but the words don’t cut it. So I “mental” health from its emotional, social, cultural, spir-
struggle with that . . . What do we do with the words? Words itual, systematic, and structural aspects; thus, these clas-
aren’t enough. (Emphasis added) sifications were incongruent with Indigenous/Afrocentric
understandings of holistic health. In our scoping review
A second tension we experienced was related to process, we were forcing concepts from one language/
concepts and how they are bound by (English) lan- way of thinking into (primarily) Euro-Western terminol-
guage and Euro-Western worldviews. We found it dif- ogy/worldviews and as one team member remarked,
ficult to name key concepts such as Indigenous and “into the language of the colonizer.” This difficulty with
African diaspora where in the lived world these con- concepts and words and in our reductionist approach of
cepts are complex, blurred, and sometimes blended. using language and applying concepts to simplify our
For instance, these terms impose definitions of what is review processes allowed us to reflect on what got lost in
African diaspora and what is Indigenous as if they applying scoping review methodologies, and what mean-
were separate, definable, and distinct. Using these con- ing was imposed through language. As summarized in
cepts disregards the interconnectivity among these the quote above, “Words aren’t enough.”
groups like the Seminoles in the United States; the Finally, we had difficulty with the inclusion/exclusion
diverse ethnocultural makeup of Caribbean, Central, process. In scoping reviews, inclusion and exclusion cri-
and South American populations; and even individuals teria are used to ensure that the literature included are
who identify as both Black Canadian and Indigenous deemed to be relevant for the study. Yet, this was experi-
peoples within Canada itself. This essentialized nam- enced by the team as a reductive approach that was incon-
ing also ignored the fluid identifications exemplified gruent with the literature we were encountering. Thus, we
within our team, where some of us identify as felt like we were “shoehorning” articles in (or out). One
Indigenous and as African diaspora depending on the of us remarked on the irony of the terms inclusion and
cultural and geopolitical context. Our terminology exclusion used for literature documenting research
defined and essentialized populations that are not eas- approaches/worldviews that eschewed such simplistic
ily differentiated, and populations with mixed ances- classification:
tral histories that in some cases were indicative of
colonization. In this struggle to name our populations I actually read one article that was a definite “exclude.” And
of interest, we grappled with the tensions of such nam- you know, when you reach the conclusion, and you realize,
ing as these names carried with them historical, tempo- you know, this actually needed to be said, and to be
understood in the context in which we are working. But if I
ral, and social inscriptions that are not amply captured
didn’t read it, I’d just have left it. And said, you know what,
in the concepts themselves. this is not worth including, because it doesn’t cover the
We also struggled with translating various Indigenous/ different topics we are working on. But the conclusions were
African diasporic understandings of health into categori- very relevant to what we are actually doing, and I thought,
cal terms for our data abstraction. The literature we “What are we going to do?” (Emphasis added)
encountered typically applied holistic approaches to
health highlighting the interconnectedness of mind, And so, part of what we did through this reflexive
body, soul, and spirit; the past, present, and future; and work was to trouble the ways in which we conducted our
the individual and the social (Dei, 2012a). However, our inclusion process and how we applied the concepts used
use of biomedical terms failed to capture these historical, for inclusion and exclusion. We tried to soften the edges
social, spiritual, communal aspects of health for of the scoping methodology, and many of us ended up
Indigenous peoples and peoples of the African diaspora. reading not only the “includes,” but also the “excludes”
For instance, the literature we originally classified as as noted in the quote above:
Chambers et al. 9

Tensions with the scoping review process: Reader’s relation- (2003) described how Indigenous writers layer Indigenous
ship with the literature and beyond stories against those that are commonly known outside
It’s the way this paper teaches me something, or the way that
these contexts. Our stories—when we do this—become
I interpret what they’re talking about in this section or in this recognizable to both audiences. Yet, it also implicates the
paragraph . . . I don’t know if a scoping review is supposed audience to be responsible for interpretation and integrat-
to do that. But that mimics the way that I actually learn from ing new knowledge. As King declares, “Just don’t say in
the literature outside of this project as well. Sometimes it’s the years to come that you would have lived your life
the direct content; it’s written in the conclusion section. But differently if only you had heard this story. You’ve heard
sometimes it’s like, I don’t know, the relationship that I it now” (p. 151).
build with the author and the journal and the content.
(Emphasis added)
Discussion and Conclusion
A third tension that we had with the scoping review Our engagement with the literature on decolonizing
process derived from the reader’s relationship with the knowing with and for Indigenous peoples and the African
literature. Knowing is not a linear process but is often a diaspora impelled us to decolonize our approach and to
circular/spiralling process that bridges past with present develop a collective methodological process that was
and uses historical knowledge in contemporary contexts. congruent with the literature we were encountering. This
From a Western perspective, we define this as the herme- process became less a knowledge synthesis project using
neutic circle or moving back and forth between the text a scoping review methodology and more an ontological
itself and its broader context to glean a comprehensive and epistemological (re)knowing through our immersion
understanding of the phenomenon under study (Gadamer, and our connection with decolonizing knowing perspec-
2004). From a decolonizing standpoint, this interpretive tives. Consistent with the value we placed on Indigenous
process also requires a holistic engagement with the lit- and Afrocentric knowing, this way of interacting with the
erature: the relationship created between the reader and literature became an embodied, group practice which will
the literature, the relationship the literature has with other be connected to the health research work we have yet to
researchers and communities, and the contexts in which do from a place of decolonized knowing.
the literature and the reader are situated and the literature Our epistemological and ontological disjunctures were
is interpreted. As illustrated in the quote above, we illustrative of the tensions of two-eyed seeing/double
reflected on how we personally engaged with the litera- consciousness in which we are engaged. We struggled
ture: not only the writing, but also consciously with the with following Western requirements for rigor as some of
writers, their ideas, and the contexts within which these these requirements seemed incongruent with our emerg-
are placed. ing understandings of Indigenous and Afrocentric know-
This holistic reading also required us to consider audi- ing and decolonizing approaches in research. We
ence and responsibility—whose responsibility is it to questioned, for example, whether our critical, reflexive,
understand and to change? These tensions are illustrated dialogical engagement with the literature in the context of
in the following quote: decolonizing knowing would be perceived by our non-
Indigenous peers as rigorous. Our desire to revise our
If we want to influence and share—perhaps some of the
people, . . . who haven’t been exposed to, who aren’t from
methodological processes represents our attempt to strad-
our cultures, who aren’t working with our communities, . . . dle two worlds rather than resolve the tensions. Instead,
how do we present something in a way that’s familiar enough we attempted to devise ways to fruitfully live with the
for them to pick it up? And do we have to? (Emphasis added) tensions that respected our own positioning as Indigenous,
African diasporic, and allied scholars. This straddling of
As we considered the potential audiences for sharing worldviews and its tensions is consistent with the decolo-
our findings, we grappled with our role in transferring nizing literature that we encountered and highlights the
this knowledge and guiding audiences’ understandings— need for broader or alternative forms of rigor that might
and our responsibility for that. We also troubled how be used when reading and performing decolonizing
colonial relations assume that Indigenous people and knowing in health research. Quite simply, it begs the
people from the African diaspora are responsible for question that the use of decolonizing knowing is best
transferring and translating Indigenous and Afrocentric evaluated from within the epistemological tradition from
knowledges into Western ways of understanding. We which it emerged.
asked ourselves whether allied colleagues also have a We also consider our project as an ontological and
responsibility to learn from Indigenous and African dia- epistemological journey toward knowing from a different
sporic scholars and of frameworks that are grounded in place—one that acknowledges the colonial context of
Indigenous and Afrocentric worldviews. Thomas King knowing and strives to develop new ways of moving
10 Qualitative Health Research 00(0)

toward full engagement with multiple ways of knowing. Declaration of Conflicting Interests
Looking beyond the words and bringing forth context The author(s) declared no potential conflicts of interest with
was illustrative of the space in which two worlds work respect to the research, authorship, and/or publication of this
together, blend, and merge. Our collective and open dia- article.
logues created the necessary space for the inductivity and
reflexivity which was key to us successfully bringing for- Funding
ward Indigenous and Afrocentric knowing into our The author(s) disclosed receipt of the following financial sup-
research process. Inductivity allowed us to shift our port for the research, authorship, and/or publication of this arti-
methodological approach such that it was congruent with cle: This work was supported by the CIHR Social Research
the literature that we were reviewing; reflexivity through Centre in HIV Prevention (SRC) through a seed grant; and the
collective dialogue encouraged us to think within our Canadian Institutes of Health Research (CIHR) through a proj-
experiences of our scoping review process and consider ect planning grant [Funding Reference Number 124853]. The
the broader context of knowledge generation and our funders had no role in the study design, the data collection and
roles in its production. Although inductivity certainly has analysis, the decision to publish, or in the preparation of the
a place in methodological rigor, without reflexivity we manuscript. Additionally, a number of investigators are the
recipients of student support from the Vanier Canada Graduate
might never have asked whether Western defined scoping
Scholarships, Canadian Institutes of Health Research and the
review practices were a meaningful fit with Indigenous Ontario HIV Treatment Network.
and Afrocentric knowing.
Our engagement with the literature also reminds us of Notes
our ethical responsibilities to the communities to which
we are aligned and allied. From a decolonizing knowing 1. Although there is no universal definition for Indigenous
people as it is understood as a self-defining term that can
standpoint, we have an ethical if not a moral responsibility
be conceptualized differently across societies, it has been
to trouble methodology and method (Castellano, 2000). commonly understood as people who have “a historical
This moral responsibility includes questioning the “whos continuity with pre-invasion and pre-colonial societies
and whys” of inquiry: for whom are we conducting this that developed on their territories, consider themselves
research and why is this research of relevance to the com- distinct from other sectors of the societies now prevailing
munity for and with which we work? It takes up the call on those territories, or parts of them”(Asia Pacific Forum
issued by McLeod (2007) to “engage [research] through of National Human Rights Institutions & The Office of the
the lens of those who originally experienced it” (p. 17). United Nations High Commissioner for Human Rights,
Perhaps because of our dialoguing with these tensions, 2013). More recently, the term has been used to collec-
we have found this methodological process a personally tivize and politicize colonial struggles shared among First
and collectively transforming experience. Our tensions Peoples globally (Smith, 2012). Although this article
applies the collectivist usage of the term, it also acknowl-
with methodology and method led us on an ontological and
edges the problematic nature of its usage. For instance,
epistemological journey with and through the decolonizing member of our team who have indigenous ties to conti-
literature with and for Indigenous peoples and the African nental Africa define themselves as African diaspora in the
diaspora. Consequently, this journey integrated the princi- Canadian context, though this does not negate their indig-
ples of decolonizing knowing into our methodological pro- enous ties to territories in continental Africa. The com-
cess: It was social as well as individual, dialogical and plexities of population categories, many of which are both
reflexive, holistic and circular, and emotional and spiritual constituted within and resistant of colonial categorizations,
as well as intellectual. This dialoguing with the tensions exist as salient tensions in decolonizing thought.
has allowed us as health researchers to mindfully integrate 2. Peoples of African descent is a diverse group consisting of
decolonizing knowing within our research work with and people indigenous to continental Africa and people who
for Indigenous people and the African diaspora. identify African ancestry (e.g., African American, Black
Canadian, Afro-Cuban) who are living outside of continental
Africa including but not exclusive to North America, Central
Acknowledgments America, South America, the Caribbean, and Europe.
We would like to acknowledge the following who have been 3. Afrocentric refers to ways of knowing or worldviews of
involved on our project: Angela Eady, Rémy Huberdeau, Doe peoples of African descent that is founded on their histo-
O’Brien-Teengs, Erin Konsmo, Carmen Plante, Christine ries, cultural practices, and local knowledges. Although we
Smilie-Adjarkwa, Michael Antwi and those who came to the acknowledged that the term evolved from African diasporic
consultations at AIDS 2012 in Washington, DC. Earlier drafts scholarship in the Americas, it has increasingly been used
of our work were also presented at the ASSHH 2013 conference to recognize the cultural precepts that guide the local know-
in Paris, France, the OHTN 2013 conference in Toronto, ing practices of peoples of African descent. Using termi-
Canada, the Indigenous pre-conference in Sydney and at AIDS nology that emphasizes the commonalities among African
2014 in Melbourne, Australia. indigenous and diasporic worldviews has become part of a
Chambers et al. 11

broader decolonizing project with, for, and by peoples of Asia Pacific Forum of National Human Rights Institutions &
African descent centered on cultural affirmation, reclama- The Office of the United Nations High Commissioner for
tion, and consciousness (Asante, 2016; Mkabela, 2005). Human Rights. (2013). The United Nations declaration on
4. Aboriginal people is the term commonly used to designate the rights of indigenous peoples. Sydney: United Nations.
the Indigenous peoples within the geographic nation-state Auer, A. M., & Andersson, R. (2001). Canadian Aboriginal
of Canada and comprises the First Nations, Inuit, and Métis. communities and medical service patterns for the man-
5. African diaspora refers to peoples of African descent who agement of injured patients. Public Health, 115, 44–50.
are living outside of the African continent. It is also com- doi:10.1038/sj.ph.1900712
monly understood as a collective term that both harkens back Barroso, J., & Powell-Cope, G. M. (2000). Metasynthesis
to ancestral roots in continental African as well as the his- of qualitative research on living with HIV infec-
torical and recent displacement of persons of African descent tion. Qualitative Health Research, 10, 340–353.
due to imperialism, colonization, neocolonialism, and glo- doi:10.1177/104973200129118480
balized capitalist projects (Gilroy, 1993; Zeleza, 2005). We Bird, S., Wiles, J. L., Okalik, L., Kilabuk, J., & Egeland, G. M.
use “African diaspora” when specifically referring to peoples (2009). Methodological consideration of story telling in quali-
living outside of continental Africa, including but not exclu- tative research involving indigenous peoples. Global Health
sive to peoples of African descent living in Canada. Promotion, 16, 16–26. doi:10.1177/1757975909348111
6. Indigenous knowing is engaged in by and for Indigenous Braun, V., & Clarke, V. (2006). Using thematic analysis in psy-
people and uses techniques drawn from traditional chology. Qualitative Research in Psychology, 3, 77–101.
Indigenous practices as part of a wider framework of self- doi:10.1191/1478088706qp063oa
determination, decolonization, and social justice (Evans, Brown, R. (1999). Indigenous mental health: The Rainbow
Hole, Berg, Hutchinson, & Sookraj, 2009). Serpent awakening. The International Journal of
7. Southern theory defines the body of knowledge produced Psychiatric Nursing Research, 4, 475–481.
by thinkers from former imperialist colonies to examine Bull, J. R. (2010). Research with Aboriginal peoples: Authentic
their social condition in the current geopolitical context of relationships as a precursor to ethical research. Journal
the “postcolonial” era (Connell, 2007). of Empirical Research on Human Research Ethics, 5(4),
13–22. doi:10.1525/jer.2010.5.4.13
Supplemental Material Cargo, M., Delormier, T., Lévesque, L., Horn-Miller, K.,
McComber, A., & Macaulay, A. C. (2008). Can the demo-
Supplementary material for this artticle is avaiable online.
cratic ideal of participatory research be achieved? An inside
look at an academic–indigenous community partnership.
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Author Biographies Nicole R. Greenspan, MHSc, PhD is a health services
Lori A. Chambers, MSW, PhD candidate is second generation, researcher at the Li Ka Shing Knowledge Institute at St
Black Canadian of Jamaican descent. She is a social worker, HIV Michael’s Hospital in Toronto. She has worked and conducted
advocate and community health research, completing her PhD in research about the response to HIV for over 10 years. She has
the School of Social Work at McMaster University, Hamilton, collaborated and worked in solidarity with people from com-
Ontario. Her research uses decolonizing knowing, transnational munities most affected by HIV as an ally, working with and for
feminist thought and anti-colonial theories to reimage commu- them about issues related to community-based care and organi-
nity-based health research as culturally responsive knowledge zation of HIV and harm reduction services.
generation, and to develop performance-based narrative method-
ologies grounded in African and Caribbean standpoints. Renee Masching is First Nation from Southern Ontario.
Professionally Renée’s energies are dedicated to Aboriginal health.
Randy Jackson, PhD, is Anishinaabe from Kettle and Stony Point Her work in the Aboriginal HIV and AIDS community began in
First Nation and is an assistant professor in the Department of 1995, and she is honoured to contribute with dedication and deter-
Health, Aging, and Society with a cross-appointment in the School mination. She earned her degrees in Social Work at McMaster
of Social Work at McMaster University, Hamilton, Ontario. His University, with a CIHR research award for her Masters. Renée’s
research draws on the Indigenous and decolonizing methodologies, research interests focus on community-based research frameworks,
community-based participatory research, and two-eye seeing to Indigenous knowledge and community health with an emphasis on
explore the strengths of Indigenous peoples with lived experience HIV and AIDS. Presently, Renée is the Director of Research and
responding to the challenges of HIV and AIDS. Policy with CAAN, and she lives with her husband, sons and pets
by the ocean in Mi’kmaq Territory.
Catherine Worthington, PhD is professor and director in the
School of Public Health and Social Policy, University of Valérie Pierre-Pierre is the director at the African and
Victoria, Victoria, British Columbia. Her community-engaged Caribbean Council on HIV/AIDS in Ontario (ACCHO) in
research focuses on quality and access issues for community Toronto, Ontario.
health and social services, particularly for poorly-served com-
munities. She has conducted research in partnership with people Tola Mbulaheni, MA, formerly the Research Coordinator at
living with HIV, street-involved youth, Indigenous communi- the African and Caribbean Council on HIV/AIDS in Ontario
ties and organizations, and African immigrant communities on (ACCHO), is currently the Project Coordinator, Promoting
studies related to the development and assessment of HIV pre- Decent Work for Racialized Women at the Access Alliance
vention and care services. Multicultural Health and Community Services in Toronto,
Ontario.
Ciann L. Wilson, PhD is an assistant professor in the
Department of Psychology, Program of Community Psychology Marni Amirault, MA is of Acadian and English/Irish descent.
at Wilfrid Laurier University. Her lived experience as a Black She has her Master of Arts in cultural anthropology from the
woman has shaped her research interests in CBR with African University of Alberta where her research focused on Indigenous
diasporic and Indigenous communities; anti-colonial and criti- media making in Canada. Marni currently holds the position of
cal race theories. Community-Based Research Manager (KT) with the AHA
Centre - a project of the Canadian Aboriginal AIDS Network
Wangari Tharao is the director of Research and Programs at (CAAN). She works collaboratively with academic and com-
Women’s Health in Women’s Hands, a community health cen- munity researchers and organizations to build and maintain
tre that provides primary healthcare services for African, relationships and offers support in all stages of Aboriginal HIV
Caribbean, Black, Latin American and South Asian women in and AIDS Community-Based Research. She is interested in
Toronto and surrounding areas. She is also a community-based interdisciplinary team building and Two-Eyed Seeing.
researcher, researching HIV and related issues relevant to
immigrant, refugee and non-status women living in Canada Patrick Brownlee is an executive research Assistant with the
who have migrated from countries with generalized HIV epi- Canadian Aboriginal AIDS Network’s Research and Policy
demics, mainly Africa and the Caribbean. Her research bridges unit.

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