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    SJIA Conf Schedule V3

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    nikoulis
    The document outlines the schedule for a 3-day virtual conference on systemic juvenile idiopathic arthritis (SJIA) organized by the SJIA Foundation. The conference will focus on patient education, drug development challenges in treating SJIA, and lung disease associated with SJIA. Speakers will include physicians and researchers from children's hospitals who will give talks on SJIA, its treatment, and management of macrophage activation syndrome. Panel discussions will address treating refractory SJIA, bridging SJIA and Still's disease, challenges in drug trials, and perspectives from the FDA and EMA.

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    SJIA Conf Schedule V3

    Uploaded by

    nikoulis
    796 views2 pages
    The document outlines the schedule for a 3-day virtual conference on systemic juvenile idiopathic arthritis (SJIA) organized by the SJIA Foundation. The conference will focus on patient education, drug development challenges in treating SJIA, and lung disease associated with SJIA. Speakers will include physicians and researchers from children's hospitals who will give talks on SJIA, its treatment, and management of macrophage activation syndrome. Panel discussions will address treating refractory SJIA, bridging SJIA and Still's disease, challenges in drug trials, and perspectives from the FDA and EMA.

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    SJIA Conf Schedule V3

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    The document outlines the schedule for a 3-day virtual conference on systemic juvenile idiopathic arthritis (SJIA) organized by the SJIA Foundation. The conference will focus on patient education, drug development challenges in treating SJIA, and lung disease associated with SJIA. Speakers will include physicians and researchers from children's hospitals who will give talks on SJIA, its treatment, and management of macrophage activation syndrome. Panel discussions will address treating refractory SJIA, bridging SJIA and Still's disease, challenges in drug trials, and perspectives from the FDA and EMA.

    Copyright:

    © All Rights Reserved
    Download as PDF, TXT or read online from Scribd
    Flag for inappropriate content
    Download as pdf or txt
    796 views2 pages

    SJIA Conf Schedule V3

    Uploaded by

    nikoulis
    The document outlines the schedule for a 3-day virtual conference on systemic juvenile idiopathic arthritis (SJIA) organized by the SJIA Foundation. The conference will focus on patient education, drug development challenges in treating SJIA, and lung disease associated with SJIA. Speakers will include physicians and researchers from children's hospitals who will give talks on SJIA, its treatment, and management of macrophage activation syndrome. Panel discussions will address treating refractory SJIA, bridging SJIA and Still's disease, challenges in drug trials, and perspectives from the FDA and EMA.

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    of 2

    SJIA Family Conference (Virtual Edition) 2020

    DECEMBER 2ND TO 4TH, 2020 | 8am to 12pm EST DAILY


    ORGANIZED BY THE SYSTEMIC JIA FOUNDATION

    CONFERENCE SCHEDULE
    Wed. Dec 2nd: A Focus on Patient Education (8am –12pm EST)
    • 8:00am - 8:10am Welcome
    Rashmi Sinha
    • 8:10am – 8:20am A lifetime with, but not defined by SJIA
    Nicole Dalton
    • 8:20am - 8:40am Patient Panel: The Many Faces of Refractory SJIA
    TBD
    • 8:40am - 9:05am Talk: What is SJIA & Strategies for Treatment
    Alexei Grom (Cincinnati Children’s Hospital)
    • 9:05am - 9:30am Talk: What is Still’s Disease & Strategies for Treatment
    Petros Efthimiou (New York Rheumatology Care)
    • 9:30am - 9:40am BREAK
    • 9:40am - 10:05am Talk: MAS | Old and New Treatments
    Scott Canna (UPMC Children's Hospital)
    • 10:05am – 10:35am Panel Discussion: Treating Refractory SJIA & MAS
    Lauren Henderson (Boston Children’s Hospital), Grant Schulert (Cincinnati Children’s
    Hospita) & TBD
    • 10:35am - 11:10am Talk & Panel Discussion: COVID-19 in SJIA & Other Rheumatic Patients
    Marco Gattorno (G. Gaslini Children Hospital)
    All Speakers
    • 11:10am - 11:40am Open Question-Answer Session with Patients
    All Speakers
    • 11:40am - 11:50am Closing Remarks

    Thurs. Dec 3rd: Unmet Needs & Drug Development in SJIA, Still’s & MAS (8am - 12pm EST)
    • 8:00am - 8:10am Welcome
    Rashmi Sinha
    • 8:10am - 8:50am Panel: Global Perspectives on Treating SJIA
    Christiaan Scott (University of Cape Town), Sathish Kumar (Christian Medical College), Jelena
    Vojinovic (University of Nis) & Cecilia Poli (Universidad del Desarrollo) | moderated by A.V.
    Ramanan (University Hospitals Bristol)
    • 8:50am - 9:20am Panel: Bridging the Gap Between SJIA & Still's - Is It Time to View Them Together?
    Bella Mehta (Hospital for Special Surgery), Aleksander Lenert (University of Iowa), Bas
    Vastert (UMC Utrecht), Helen Leavis (UMC Utrecht) & Nicole Dalton | moderated by Michael
    Ombrello (NIAMS, NIH)
    • 9:20am – 9:30am BREAK

    SJIA Family Conference (Virtual Edition) 2020 1


    • 9:30am – 11.40am Multi-Session Topic: Challenges in Drug Development for SJIA, Still’s & MAS
    moderated by Alexei Grom (Cincinnati Children’s Hospital)
    • 9:30am – 9:50am i) Short Presentations: Investigator Initiated Trials
    Randy Cron (UAB), Bas Vastert (UMC Utrecht)
    • 9:50am - 10:30am ii) Short Presentations: Challenges & Need for Innovative Trial Designs
    Fabrizio De Benedetti (Ospedale Pediatrico Bambino Gesù), A.V. Ramanan
    (University Hospitals Bristol) & Yuki Kimura (Hackensack Meridian Health)
    • 10:30am - 11:00am iii) Invited Comments from Patients & Pharma
    Pharma: Frank Waldron-Lynch (Novartis), Eduardo Schiffrin (AB2Bio), Sobi
    Representative
    Patients: Regina Minerva, Chelsea O’Donnell
    • 11:00am - 11:40am iv) Panel Discussion with Representatives from FDA & EMA
    Nikolay Nikolov (FDA) & Richard Vesely (EMA)
    • 11:40am - 11:50am Closing Remarks

    Fri. Dec 4th: Focus on SJIA-LD (8am – 12pm EST)



    Multi-Session Topic: Towards better Understand and Treatment Strategies for Lung Disease in SJIA
    • 8:00am - 8:10am Welcome
    Rashmi Sinha
    • 8:10am - 8:40am Some Interesting SJIA-LD Cases from Around the World
    Alexei Grom (Cincinnati Children’s Hospital, Fabrizio De Benedetti)
    Patients: Sheila Simon, TBD
    • 8:40am - 9:30am Research Updates about SJIA-LD
    Adriana Almeida de Jesus (NIAID), Grant Schulert (Cincinnati Children’s Hospital) & Vivian
    Saper (Stanford University)
    • 9:30am – 9:40am Break
    • 9:40am - 10:10am Panel Discussion – What do we know about SJIA-LD?
    All speakers | moderated by Peter Nigrovic (Harvard Medical School)
    • 10:10am - 11:00am Discussion: Patient & Clinician Questions about Treatment Strategies
    • 11:00am - 11:30am Breakout Groups
    • 11:30am - 11:40am Closing Remarks

    SJIA Family Conference (Virtual Edition) 2020 2

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