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The Hospital Data Project: Comparing Hospital Activity Within Europe
The Hospital Data Project: Comparing Hospital Activity Within Europe
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Background: The ability to measure and compare hospital activity between EU member states is important for policy,
planning, financing and assessment of population health. Earlier initiatives in this area have been largely directed
Keywords: EU Health monitoring programme, health systems, hospital activity data, ICD coding
. rom its commencement in 1997, the European Union's according to the agreed methodology and, with a view to
(EU) Health Monitoring Programme (HMP)1 has its future telematic implementation, within the European
recognized the necessity to improve the availability, Union's Public Health Information Network (EUPHIN).
quality and comparability of hospital data between All MS, Iceland and the World Health Organisation
member states (MS). Good information on hospital (WHO) are participants in the project, and the work of
activity, infrastructure and costs is increasingly essential co-ordination and research has been shared between
to support health service monitoring, assessment, policy Ireland and England. The project is due for completion
and planning both by MS and at EU level. As a measure during the first half of 2003.
of its importance, hospital activity data was selected to be At the time of writing, the project has reached the stage
one of the first data sets to be loaded onto the Com- of assessment and validation of pilot data. Data have been
mission's pilot system for the telematic exchange of received from 17 countries (NB constituent countries of
health information. This test data helped to demonstrate the UK are counted separately in this total). The contents
the feasibility of hospital activity data dissemination at of the data sets will be described later. Software has been
the level of raw aggregated data sets but perhaps more developed to hold the data and metadata and to facilitate
significantly, it served to highlight the very low levels of its display and validation. The software and full pilot data
comparability between the national data sets. Before the set have been sent to all project participants on CD-ROM
data could be considered useful, differences in health with detailed instructions for validation checks, feedback
systems, coverage, comprehensiveness, definitions and and resubmission of corrected data/metadata where
classification systems needed to be addressed in a detailed necessary. The final deliverables for the HDP will
and systematic fashion. The Hospital Data Project (HDP) comprise a report describing the considerations leading to
came into being as a result of a specific call for tender in the specification of a common data set, the CD-ROM
order to take forward the work of creating common EU with pilot hospital data and metadata available on the
hospital data sets. new software application, and recommendations for the
The HDP has two key objectives. The first is the prepara- further development and delivery of hospital data within
tion of a detailed and practical methodology for the the context of the new EU Public Health Programme
collection of comparable hospital activity data across (2003-2007).2
Europe. The second is the production of a pilot data set
BACKGROUND
* Correspondence: Mr. Hugh F. Magee, Senior Statistician, Department of
Health and Children, Hawkins House, Hawkins Street, Dublin 2, Ireland, The Maastricht Treaty (1992)3 gave the EU a new and
tel. +353 1 6354300, fax +353 1 6354378 extended remit in the area of public health leading, inter
EUROPEAN JOURNAL OF PUBLIC HEALTH VOL. 13 2003 NO. 3 SUPPLEMENT
alia, to the First Framework for Community Action in the setting likely to be the same from country to country. Even
Field of Public Health. One of the principal priorities was when comparable functions can be identified, issues of
the collection of reliable and comparable health statistics public/private mix, coverage, what constitutes a patient
to support community and MS policies and programmes. episode, definitions of variables and classification of
The Community Action Programme on Health diseases and procedures raise further areas of potential
Monitoring (HMP) 1 was established in 1997 to advance non-comparability.
these aims and was founded on three pillars for action: In recent years there have been a number of initiatives
• Identification and assembly of a set of health indicators. across Europe aimed at developing and collecting com-
• Deployment of an effective electronic system for the parable indicators for hospital and health service pro-
collection and dissemination of health information. vision and utilization. Such efforts, for example, by the
• Provision for analysis and reporting on EU public health Organisation for Economic Co-operation and Development
issues. (OECD), the World Health Organisation (WHO), the
member states. In this respect, the European Community age, and gender. Type of admission was also included with
Health Indicator (ECHI) project is central. This project two categories distinguishing between planned and un-
has now entered a second phase (ECHI-2) where the planned hospitalization. It was not considered feasible
implementation of indicators will be receiving closer within the scope of the project to collect data at sub-
attention, and the results of the HDP should contribute national level either for area of residence or for area where
significantly toward realizing this aim in the area of treatment occurs. Analysis variables include numbers of
hospital activity. Many other HMP projects also tie in inpatient discharges, numbers of bed days, mean length
with the HDP if the ultimate aim of a co-ordinated of stay, median length of stay and numbers of day case
system of health information is to be achieved. These discharges. Median length of stay was included in order
include projects concerned with the indicators required to provide a measure of central tendency less affected by
for specific categories of diseases, for subsections of the a small number of very long lengths of stay although it is
population, and for the results of factors that determine accepted that it cannot be recalculated if further data
health. aggregation takes place.
only for external cause codes where the main condition Each country was asked to return four data files referring
was coded to injury and poisoning (i.e. Chapter XIX in to the year 1999 wherever possible. These were respect-
ICD-10).6 ively diagnosis data, external cause data, procedures data
The summary above is of necessity too brief to do justice and population data. The first two files utilized the
to the range of detailed considerations taken into account recommendations of the Expert group (see above). The
by the Expert group and to the issues involved in procedures file, again as indicated above, was based on a
matching ICD-9 codes with ICD-10. It should be em- provisional sentinel list of 18 procedures for test purposes
phasised that, however carefully constructed the shortlist with countries providing their own correspondence with
is, differences between countries will still be highly in- ICD-9-CM codes. All three files shared the same format
fluenced by variations in diagnostic, coding and recording and same analysis variables. The last file requested re-
practices. The process of arriving at fully comparable ferred to population data classified by age group and sex
hospital inpatient data is in its early stages, and the HDP and allowed for the calculation of population-based rates
feels that the new shortlist represents a very significant for each of the three data files.
Validate data and metadata participating country and has relied extensively on the
As stated at the outset of this article, the HDP is, at the expertise and commitment of national participants. Full
time of writing, in the middle of the validation stage. A account has been taken of past and current work in the
CD-ROM has been sent to each participant containing area of hospital data and of the new work on the
the common data set loaded onto the EUHDP software. functional specification of health systems developed by
This is accompanied by detailed instructions for using the the OECD in the context of health accounting. The
software, validating results and providing feedback on project addresses issues of data coverage and contents in
findings including suggestions for improving the software. a systematic fashion and has arrived at a detailed
The next step will be to correct and amend data, metadata specification of a common data set. A special expert group
and software as necessary. was commissioned to develop a new ICD shortlist for
hospital diagnosis data. In addition, new software has
Final Report, Data Set and Software been designed to house the common data set and to
ENS-Care.
EUCOMP: Towards Comparable Health Care Data in the European Union.
1
Euro-Med-Data: Clinical Information in Europe.
1
Validity and Comparability of Nordic Hospital Discharge Statistics.
1
System of Health Accounts, OECD.
1
ECHI: The European Community Health Indicators (ECHI) Project (1 & 2).
OECD Health Data 2001.
• WHO Health for All.
HIEMS: Health Information Exchange and Monitoring System.
EU Diabetes Indicator Project.
HOPE (Standing Committee of the Hospitals of the European Union): The European Health Care Data Project.
Canadian Institute of Health Information: Roadmap initiative. Health Indicators Project.
Healthy People 2010 (USA).
Federation Nationale des Observatoires Regionaux de la Sante: ISARE project: Health Indicators in the European Regions.
Professor Bjorn Smedby, WHO Collaborating Centre for the Classification of Diseases in the Nordic Countries, Sweden
Dr John S.A. Ashley, Retired, Formerly of Office for National Statistics, United Kingdom
Dr Marion Girardier-Mendelsohn, PERNNS (Pole d'Expertise et de reference national des nomenclature de sante), France
Mr Andre L'Hours, Classification, Assessment, Surveys and Terminology, Evidence for Health Policy, World Health Organisation, Switzerland
Dr Martti Virtanen, Classification Expert, Federation of Finnish Municipalities, Finland