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Clin Child Fam Psychol Rev (2009) 12:196–216

DOI 10.1007/s10567-009-0056-1

Violence Exposure Among Children with Disabilities


Patricia M. Sullivan

Published online: 11 June 2009


 Springer Science+Business Media, LLC 2009

Abstract The focus of this paper is children with dis- domestic violence, community violence, and war and ter-
abilities exposed to a broad range of violence types rorism. The articles reviewed were identified through
including child maltreatment, domestic violence, commu- computerized searches (e.g., PsycInfo, CINAHLS, and
nity violence, and war and terrorism. Because disability Medline), annotated bibliographies, and journals that typ-
research must be interpreted on the basis of the definitional ically publish articles on violence and abuse. There were
paradigm employed, definitions of disability status and 896 possible citations when queried for children as victims
current prevalence estimates as a function of a given par- of violence. These citations were cross-queried with gen-
adigm are initially considered. These disability paradigms eral and individual disability type and reviewed for con-
include those used in federal, education, juvenile justice, tent. A total of 50 articles were identified that addressed
and health care arenas. Current prevalence estimates of children with disabilities exposed to some form of vio-
childhood disability in the U.S. are presented within the lence. Out of all articles reviewed, 30 were research studies
frameworks of these varying definitions of disability status with original data and 20 were literature reviews.
in childhood. Summaries of research from 2000 to 2008 on
the four types of violence victimization addressed among
children with disabilities are presented and directions for Disability Definitions and Prevalence
future research suggested.
A lack of data on the violence exposure and victimization
Keywords Children  Disabilities  Violence  of children and youth with disabilities is universal across
Child maltreatment many of the criminal justice and child maltreatment dat-
abases mandated, compiled, and maintained by the federal
government (Marge 2003; Sullivan 2003b, 2006). While
Introduction there are a variety of statutory authorities for the collection
of public datasets on the disability and victimization status
‘‘Children’s talent to endure stems from their igno- of children, this has created various repositories of dis-
rance of alternatives’’ ability data compiled with varying disability definition
Maya Angelou (1969) algorithms. Importantly, data are not shared across these
repositories. The absence of a mandate and resources for a
A computerized search was conducted to identify arti-
comprehensive demographic study of childhood disability
cles published between 2000 and 2008 addressing children
across numerous health, education, social service, and
with disabilities exposed to child abuse and neglect,
criminal justice agencies both perpetuates and compounds
the problem (Sullivan 2006). Any consideration of violence
exposure among children with disabilities must be prefaced
P. M. Sullivan (&)
with an understanding of the definitional variability and
Center for the Study of Children’s Issues, Creighton University
School of Medicine, Omaha, NE, USA paucity of prevalence data that permeate the field of dis-
e-mail: tsullivan@creighton.edu abilities in general.

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Clin Child Fam Psychol Rev (2009) 12:196–216 197

Definitional Issues This is attributed to major new epidemics of obesity,


asthma, autistic spectrum disorders, Attention Deficit
The majority of data gathering of violence victimization Hyperactivity Disorder (ADD/HD), Type II diabetes, and
among people with disabilities is on individuals 15 years of depression. Children and adolescents have different dis-
age and older (Sullivan 2003a). This exclusion of children ability trajectories in chronicity and duration and have
and youth with disabilities from infancy to 14 years is the fewer lasting disabilities than adults. Children may have
principal cause of the paucity of information regarding the more than one disability. For example, children with
epidemiology of their violence exposure. This lack of data intellectual disabilities may also have visual, hearing, and
is the result of disparate definitions of disabilities among physical disabilities and are categorized as having multi-
children and the failure to include children with disabilities ple disabilities for most research purposes. Simply trans-
in existing violence-related surveillance systems. posing surveillance methodologies to determine incidence
There is currently no universal definition of what rates implemented with adults to disabled children is not
constitutes a disability. There are various strategies for an effective strategy in conducting epidemiological
operationally defining disability status that range from research.
medical models of physical deficits to inclusion models of Data on children with disabilities have been plagued
challenges and cultural differences (Sullivan 2003b, with inconsistent operational definitions, poorly defined
2006). The operational definitions adopted by researchers, heterogeneous populations with disabilities, and question-
medical providers, educators, the federal government, and able validation procedures for determining disabilities
people with disabilities determine the available data on (Sullivan 2003b, 2006). Less visible groups of children
children with disabilities (Sullivan 2003b). Although with disabilities including those in residential institutions
many agencies collect data on disability status among for the mentally retarded, schools for the deaf, the home-
children, existing ‘‘data’’ are best described as estimates less, and children of illegal aliens have either not been
because results vary as a function of the agency that is counted or escaped detection. Definition standards of dis-
collecting the disability data. These estimates also vary abilities among children and youth need to be established
according to how disability status is defined, the severity that implement a common framework for understanding
of the disability, the age range employed in defining disability statistics (Marge 2003). The World Health
disability status, and, importantly, the need for disability- Organization (WHO) International Classification of Func-
related services as a function of meeting the defined tioning, Disability and Health (ICF) is proposed as a tool to
disability criteria (Sullivan 2003b). describe human functioning and health and encompasses a
It is important to recognize that the term ‘‘develop- promising framework for this purpose in that it provides
mental disability’’ is not a generic term for all disabilities uniform language for describing functioning, health, and
that can occur and be identified among children. Not all disability status that includes environmental contextual
children with a disability have a developmental disability. factors, and the social impact of the disability (World
Developmental disabilities are severe, life-long disabilities Health Organization 2002).
attributable to mental and/or physical impairments, man-
ifested before 22 years of age. Developmental disabilities
result in substantial limitations in three or more areas of Prevalence Estimates
major life activities, namely, capacity for independent
living; economic self-sufficiency; learning, mobility; Prevalence estimates of children with disabilities in the
receptive and expressive language; self-care; and/or self- U.S. are dependent upon who is counting them and why
direction (U.S. Department of Health and Human Services (Sullivan 2003b). Disability eligibility determinations are
2008). Children with disabilities that may limit mobility necessary and are required for receiving services and
or learning, such as a specific learning disability or an benefits in such areas as health and education, and quali-
orthopedic impairment, are not always classified as hav- fying for supplemental income from the federal govern-
ing a developmental disability. These ‘‘other’’ disabilities, ment. Prevalence rates and definitions vary with the
which can be limiting in the formative and school-age counter and the differing criteria used in determining dis-
years, may respond to rehabilitation with special educa- ability status. Previous studies have compared estimates of
tion and physical rehabilitation and not persist into the prevalence of children with special health care needs
adulthood. when different definitions and screening methods were
The epidemiology of childhood disabilities greatly used. Not surprisingly, the studies have found a large
differs from that of adults. Children and adolescents face variance in the numbers of children with disabilities.
numerous potentially disabling health conditions that Health, education, juvenile justice, and federal paradigms
occur at a higher rate than found in adults (Perrin 2002). are briefly considered here.

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198 Clin Child Fam Psychol Rev (2009) 12:196–216

Children with Special Health Care Needs problem, the Child Abuse and Prevention & Treatment Act
(CAPTA) was amended in 2003 to require that children
The National Survey of Children with Special Health Care under the age of 3 who are victims of child abuse and/or
Needs (NS-CSHCN) gathers national data on the total neglect be referred to IDEA services. In 2004, the IDEA
number of children with special health care needs in the Improvement Act was enacted and mandates services for
U.S. This survey is sponsored by the Department of Health maltreated infants and toddlers (Macomber 2006).
and Human Services, (DHHS), the Health Resources and
Services Administration (HRSA), and the Maternal and Children with Mental Health Needs
Child Health Bureau (MCHB) and conducted by the Cen-
ters for Disease Control and Prevention’s National Center Children and youth with mental health problems often
for Health Statistics. The 2005/2006 study estimated that intersect with the juvenile justice system. The report on the
out of 73,680,291 children in the U.S., some 10,221,438 Surgeon General’s Conference on Children’s Mental
(13.87%) had special health care needs. The National Health held in 2000 indicated that one in ten children and
Mental Health Information Center estimated 2,900,593 adolescents has a mental illness, and only one in five
children have special mental health care needs that include receives some type of mental health services. Although the
emotional, behavioral, or developmental disorders that number of children and youth who are placed in residential
require treatment (U.S. Department of Health and Human treatment facilities (RTCs) is significant and accounts for a
Services 2008). Children with Special Health Care Needs large portion of health care dollars, their exact numbers are
(CSHCN) are identified as a function of the need for public estimates. More than 50,000 children with emotional and
assistance to pay for health care services, and accordingly, behavioral problems have been placed in psychiatric set-
their numbers are limited by socioeconomic parameters tings and residential group homes (U.S. Public Health
that do not encompass children with disabilities from all Service 2000). Children who are not identified or do not
socioeconomic strata. receive services for their mental health problems through
intervention and treatment are likely to be incarcerated
Children with Special Education Needs (Burns et al. 2003).
Significant numbers of youth in the juvenile justice
The U.S. Department of Education, Office of Special system have education-related disabilities and are eligible
Education and Rehabilitation Services (OSERS) collects for special education and related services under the Federal
and maintains data on the number of children and youth Individuals with Disabilities Act (IDEA) (Burrell and
ages 3–21 years served under the Individuals with Dis- Warboys 2000). Studies of incarcerated youth indicate that
abilities Education Act (IDEA). Some 6.7 million children as many as 70% have an identifiable disability (Leone et al.
and youth with disabilities received special education ser- 1995). The two most common disabilities found in the
vices in the U.S. during the 2006–2007 school year (Planty juvenile justice system are specific learning disability and
et al. 2008). These 6.7 million children represented some emotional disturbance. Large numbers of youth involved
13.5% of all children enrolled in public schools and with the juvenile justice system have education-related
included children between the ages of 3 and 21 years disabilities, and as many as 20% of students with emotional
attending early education centers as well as primary and disabilities are arrested at least once before they leave
secondary schools in all 50 states and within the Bureau of school (American Academy of Child and Adolescent
Indian Affairs Schools (BIA). The majority of disabilities Psychiatry 2005). There is a significant gap in the research
identified in these children (70%) receiving special edu- literature addressing children and youth with disabilities
cation services were behavioral/emotional problems, who are at risk of delinquency or involved in the juvenile
mental retardation, and learning disabilities. Speech and justice system (National Council on Disability 2003).
language impairments comprised an additional one-fifth of While each state provides statistics on the number of
children with disabilities. The number of children served children in their respective juvenile justice systems, sta-
has increased by almost 50% or 2.9 million children since tistics on disabled children are not consistently gathered or
1976–1977, the first year data were compiled by OSERS on reported, compromising the reliability of the records
children served in special education. This increase is maintained. There is a large discrepancy in the number of
attributed to the growth in the number of children classified youth with disabilities in the general population and those
with specific learning disabilities. Children with specific who are incarcerated. In 2000, the Office of Special Edu-
learning disabilities account for more than half of all cation Programs (OSEP) reported a 13% prevalence of
children with disabilities served under the IDEA. A vul- disabilities among 70 million school-age children com-
nerable population of infants and toddlers with disabilities pared with an estimated 32% among an estimated 134,000
are not always identified for services. To address this youth within the juvenile justice system.

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Clin Child Fam Psychol Rev (2009) 12:196–216 199

In July 2004, a Congressional study identified over paradigm employed. Disabilities are more prevalent
15,000 youth, within a 6-month period, housed in juvenile among male children, school-age children, children from
detention centers waiting for mental health services to low-income families, and children from single parent
become available. Even more alarming was the finding that homes (Stein and Silver 1999; Fujiura and Yamaki 2000;
two-thirds of these facilities housed youths as young as Mudrick 2002). The higher prevalence of school-age
7 years of age who had not been charged with a crime and children with disabilities reflects that some disabilities,
were awaiting mental health treatment (U.S. House of primarily learning disabilities and behavior disorders, are
Representatives Committee on Government Reform 2004). first identified in the early school years. Families receiv-
The mental health services required by these children and ing public assistance are twice as likely to have a child
youth are substantial. In 2005, over $185 million in state, with a disability as higher income families (Lee et al.
local, and federal funds were expended on group home or 2002). The relationship between ethnicity and disability
residential placements for children and youth (U.S. status is not clearly understood. Although higher rates of
Department of Health and Human Services 2006). Cur- disabilities among African American and Hispanic chil-
rently, no data are available on the number of children and dren have been reported in the U.S. Census data (McNeil
youth with behavior and emotional disabilities who are 2001), these findings were not replicated in a smaller
exposed to or victimized by violence while incarcerated study when family structure and income were controlled
and awaiting services addressing these disabilities. In (Fujiura and Yamaki 2000). While the links between
addition to Residential Treatment Centers, over 500,000 disability status and gender, poverty, and family structure
children and youth in the U.S. reside in some sort of foster are consistently delineated, the association between dis-
care placement. Many of these children have been victims ability and ethnicity is variable depending on the study.
of some form of serious abuse or neglect and some 30% Data compiled from the Twenty-fifth Annual Report to
have severe emotional, behavioral, or developmental Congress on the Implementation of the Individual with
problems (American Academy of Child and Adolescent Disabilities Act (U.S. Department of Education 2005)
Psychiatry 2005). Violence exposure and victimization indicate the following ethnic percentages among children
data are needed on children in out-of-home care facilities with disabilities: Caucasians, 63.8%; African Americans,
and the prevalence and type of disabilities among these 17.1%; Hispanics, 15.2%; Asian/Pacific Islanders, 2.7%;
children and youth. and American Indian/Alaskan Native, 1.2%. There is
variability in the type of disability across ethnic groups.
Children Receiving Supplemental Social Security Benefits Specific Learning Disorder is the most prevalent disability
among all 5 ethnicities. Caucasians and Asian/Pacific
For children and youth under 18 years of age, the Social Islander children have the largest percentage of Speech
Security Administration defines a disability as ‘‘…a Language Impairments. Mental Retardation and Behavior
medically determinable impairment or combination of Disorders are most prevalent among African American
impairments that causes marked or severe functional children. American Indian/Native Alaskan children have
limitation(s), and can be expected to result in death, or more Developmental Delays than other ethnic groups.
has lasted or can be expected to last for a continuous Finally, Autism and Hearing Impairments are most pre-
period of not less than 12 months.’’ There were 1,078,977 valent among Asian children. The other specific disabili-
children and youth 18 years of age or younger receiving ties (multiple disabilities, orthopedic impairments, other
Supplemental Social Security (SSI) benefits in 2006 health impairments, visual impairments, deafblindness,
(Social Security Administration 2007). Data are needed and traumatic brain injury) are comparable across all
on the number of these children and youth with an ethnic groups. There are essentially twice the numbers of
identified disability resulting from violence victimization disabilities among males than females irrespective of
and/or exposure. Access to the Social Security database ethnic group.
will be necessary to identify violence linkages with dis- The definitional paradigms and prevalence estimates
ability determinations. Although unlikely, this would presented here attest to the presence of available and suf-
result in a methodologically strong study that is urgently ficient numbers of children with disabilities to warrant their
needed and would guide public health policy and practice study. Although the multiplicity of definitional frameworks
for children and youth with disabilities. impedes research, they are not insurmountable. Valid and
reliable research can be undertaken with children with
Correlates of Disability Status disabilities by choosing a paradigm and adhering to it
throughout a research protocol. Simply stating that children
Several demographic correlates of disability status in with disabilities cannot be studied because of definitional
children have emerged irrespective of the prevalence vagaries is no longer tenable.

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200 Clin Child Fam Psychol Rev (2009) 12:196–216

Child Abuse and Neglect sexual abuse as well as the demographic characteristics of
those children including disability type, age, gender, and
The majority of the violence-related research that includes the determination of the abuse allegations (Kvam 2000).
children with disabilities has been done in the area of child There were 1,293 children ranging in age from infancy to
maltreatment. Since the early 1990s, a substantial number 16 years seen in these hospitals because of suspected
of studies have been completed in medical, social service, sexual assault between 1994 and 1996. Data obtained
law enforcement, and school settings. These will be dis- through medical record reviews identified 54 girls and 29
cussed by study setting. boys with disabilities accounting for 6.4% of the total
sample. Identified disabilities included mental retardation,
Child Abuse and Neglect Studies in Medical Settings cerebral palsy/physical disabilities, and deafness. As mea-
sured by a researcher-constructed method to discern the
Early work on the prevalence of abuse and neglect among ‘‘probability of assault,’’ the children with disabilities were
samples of disabled children referred to medical treatment at increased risk for sexual abuse and this risk increased
centers was criticized for subject selection biases given that with the severity of the disability. Children with behavior
these settings inherently have abused individuals seeking disorders, mental retardation, and physical disabilities were
treatment. Furthermore, they are prone to miss large the most susceptible to sexual abuse and boys seemed to be
cohorts of neglected children who are not typically referred more susceptible than girls. These results support earlier
for treatment in medical centers. In a sample of 482 con- findings that sexual abuse is a major form of maltreatment
secutively referred maltreated children with disabilities in a found among disabled children accessing health care
hospital setting, Sullivan et al. (1991) found that sexual services.
abuse or a combination of sexual and physical abuse per- Giardino et al. (2003) examined medical records of
petrated by family members were the most common forms consecutive referrals to a health care team in a hospital
of maltreatment endured by the referred children. The setting conducting medical evaluations for suspected child
subjects represented a limited set of disabilities, namely, maltreatment in children with special health care needs.
communication disorders including speech and/or hearing Medical records of the evaluations completed on 60 chil-
impairments, learning disabilities, and cleft lip and/or dren ranging in age from 3 to 16 years between January
palate. Males were more likely to be victims of sexual 1996 and August 1998 were reviewed. Identified disabili-
abuse than other types of maltreatment. Placement in a ties included ADHD, autism, blindness, cerebral palsy,
residential school was identified as a major risk factor for developmental delay, hearing impairment, mental retarda-
sexual abuse among deaf and hard-of-hearing children. tion, and speech/language delays. Child Protective Services
Similar results were obtained in a 5-year retrospective and physicians were the primary referral sources. Records
study of 4,340 child patients in a pediatric hospital wherein of the team evaluations indicated that 31% of the children
the majority (68%) were victims of sexual abuse and 32% were likely victims of maltreatment, the majority of it
were victims of physical abuse perpetrated by family sexual. These authors also documented the low reim-
members (Willging et al. 1992). Other work in nonmedical bursement rate (14%) for these specialized evaluation
settings in Great Britain (Westcott 1991), Australia (Turk services of children with disabilities. Given their increased
and Brown 1992), and Canada (Sobsey and Doe 1991) also risk for maltreatment, this low reimbursement rate is
identified sexual abuse as the most prevalent form of unacceptable and is a deterrent to medical centers offering
maltreatment among children with disabilities. This con- these services. These fiscal barriers to receiving reimbursed
trasts with nondisabled children in national incidence specialized evaluations for children with disabilities to
studies of child abuse and neglect (NIS) in the U.S. determine maltreatment have an unintended consequence.
wherein the most prevalent form of maltreatment is neglect They quite likely facilitate its very existence by preventing
(NIS-1 1981; NIS-2 1988; NIS-3 1996). Although it seems the discovery of maltreatment by specialized teams of
likely this type of maltreatment discrepancy between professionals with expertise in interviewing children with
children with and without disabilities reflects a subject disabilities.
selection bias in the medical study samples, a longitudinal Sullivan and Knutson (1998a) evaluated the association
prospective study of 644 families using social service between disabilities and maltreatment using a hospital-
records and self-report found that children with disabilities based population that permitted diagnoses of disabilities
requiring special education were at increased risk for sex- from medical records. Additionally, using Child Protective
ual abuse (Brown et al. 1998). Service (CPS), foster care, and law enforcement records to
In Norway, questionnaires were sent to 26 pediatric obtain evidence of maltreatment, the study determined the
hospitals requesting information on the proportion of dis- presence of both intrafamilial (i.e., immediate and extended
abled children receiving medical attention for suspected family) and extrafamilial (i.e., nonfamily) maltreatment.

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Clin Child Fam Psychol Rev (2009) 12:196–216 201

Based on a merger of 39,252 hospital records of all child form of maltreatment followed by sexual abuse and emo-
patients seen dating from 1982 to 1992, a 15% prevalence tional abuse. Emotional maltreatment alone was rarely
rate of maltreatment was found and some 64% of the chil- recorded in either sample, but was coincidental with other
dren had an identified disability. This merger was replicated forms of abuse. These results suggest that there are dif-
in 2000 and merged 172,332 patients seen between 1982 ferential patterns in both maltreatment and disability status
with updated maltreatment databases from CPS, foster care, as a function of type of placement. The findings need to be
and law enforcement agencies. A 16% rate of maltreatment replicated in other samples of children and youth in resi-
was identified and 66% of the children had a diagnosed dential treatment centers and group homes.
disability in the same hospital population. Thus, both the A school-based epidemiological study conducted by
maltreatment and disability rates among the hospital child Sullivan and Knutson (2000a) utilized archival categorical
and adolescent patients were consistent over time. The data from a total population of 40,211 children enrolled in
hospital files of a sample of 3001 maltreated children and the Omaha Public Schools during the 1995–1996 school
880 nonabused control children were reviewed for disabil- years and merged it with the Nebraska Central Registry,
ity, maltreatment, and perpetrator characteristics. Behavior Nebraska Foster Care Review Board, and the Omaha police
disorders, speech/language disabilities, learning disabilities, databases. This research was a conceptual replication of the
mental retardation, and hearing impairment were the most hospital study to examine differences in the epidemiology
common disabilities. The most prevalent form of mal- of maltreated children with disabilities. Two control groups
treatment was neglect followed by physical and sexual (disabled and nondisabled) were identified without records
abuse. Gender was significantly related to sexual abuse with of maltreatment. An overall 11% prevalence rate of mal-
more girls than boys identified as victims. There were no treatment for this school-based sample was identified.
gender differences for neglect or physical abuse. Although Among the 4,503 maltreated children, 22% had an identi-
this research provided strong support for a link between fied disability for which they were receiving special edu-
disabilities and maltreatment, the use of a hospital-based cation services in school. Among the children without an
sample limited the generalizability of that research to hos- identified disability, 9% were victims of maltreatment. In
pital settings. contrast, 31% of the children with an identified disability
The Sullivan and Knutson (1998a) research also iden- had records of maltreatment in either social service or
tified a cohort of youth in a residential placement among police records. The identified disabilities among the mal-
the hospital patient database. The youth at Father Flana- treated children were as follows: behavior disorders,
gan’s Boys Home (Boys Town) receive medical services 37.4%; mental retardation, 24.1%; learning disabled,
through the Boys Town National Research Hospital. This 16.4%; health related, 11.2%; speech language, 6.5%;
afforded an opportunity to compare the disability and hearing impairment, 1.3%; multiple disabilities, 1.2%;
maltreatment characteristics of children and youth living at orthopedic disabilities, 1.2%; visual impairments, 0.4%;
home to those in residential care. The findings showed that and autism, 0.1%. Among the children with disabilities,
64% of the youth who resided at home had a diagnosed more boys than girls were victims of neglect, physical
disability compared to 95% of the youth residing at Boys abuse, and emotional abuse. For sexual abuse, more dis-
Town. Behavior disorders were the most prevalent dis- abled girls than boys were victims. Children with disabil-
ability for both groups of youth. Only 21.6% of the youth ities were maltreated at earlier ages than their nondisabled
living at home had a diagnosis of some type of behavior peers with the majority maltreated between birth and
disorder compared to 80% of youth residing at Boys Town. 5 years of age. Preschool-age disabled children experi-
Speech and language, mental retardation, hearing impair- enced more neglect, physical abuse, emotional abuse, and
ment, learning disorders, and health impairments were sexual abuse than children in elementary, middle, and high
found to be more prevalent in youth residing at home. school. Child abuse and neglect have a deleterious effect
Other disabilities including autism, cerebral palsy, ortho- on disabled children’s abilities to benefit from special
pedic impairments, and Attention Deficit Disorder were education services. Maltreated children with disabilities
slightly more prevalent in the residential sample. Multiple have significantly lower math and reading achievement
forms of maltreatment were more prevalent than any one than nonmaltreated disabled peers and both abused and
type of maltreatment in both samples with almost half of nonabused peers without disabilities. Maltreated children
youth residing at home and two-thirds of Boys Town youth with and without disabilities miss significantly more school
experiencing more than one type of maltreatment. With the than nonmaltreated peers. The relative risk for maltreat-
youth experiencing only one form of maltreatment, neglect ment among children with disabilities is 3.44 times that of
was the most common with 27.1% of youth who resided at nondisabled children. School professionals need to be
home being neglected compared to 23.1% of the Boys cognizant of the high base rate of maltreatment among the
Town youth. Physical abuse was the second most prevalent children they serve. Prevention efforts need to concentrate

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202 Clin Child Fam Psychol Rev (2009) 12:196–216

on young children with disabilities and their families, the learning disabilities, in the juvenile justice system (Mears
period of maximum risk. The gender findings reflect the and Aron 2003). Three theories have been posited to
greater prevalence of disabilities among males. Other account for the observed presence of large cohorts of youth
research (Sobsey 1994) has identified large numbers of with learning disabilities in juvenile justice programs. The
male victims among disabled maltreated children. Given School Failure Hypothesis posits that the presence of a
the high expense associated with special education ser- learning disability leads to school failure which in turn
vices, the maltreatment of disabled children needs to be leads to a negative self-image, dropping out of school, and
addressed in order to optimize its beneficial effects for one- engaging in delinquent behavior because of associating
third of the disabled school-age population. Attendance with delinquent-prone peers (Briere 1989; Larson 1988;
data including tardiness is a marker to be monitored by Levin et al. 1985). The Differential Treatment Hypothesis
maltreatment sentinels for both disabled and nondisabled contends that youth with learning disabilities are more
children. Prevention efforts need to address risk factors likely to come to the attention of authorities and then
determined by both disability and maltreatment type. receive differential processing within the juvenile justice
system (Briere 1989; Larson 1988; Mears and Aron 2003).
Child Abuse and Neglect Incidence Studies in Law The Susceptibility Theory posits that youth with disabili-
Enforcement Settings ties are more likely than nondisabled peers to engage in
delinquent behavior because of specific characteristics
Both the hospital and school-based population research putatively associated with various disabilities (Briere 1989;
completed by Sullivan and Knutson (1998a, 2000a) con- Larson 1988; Mears and Aron 2003). There is limited
tained unexpected cohorts of runaways. Therefore, the empirical support for any of these theories and the research
prevalence of disabilities among runaways in both popu- that has been undertaken has relied upon inconsistent
lations was examined (Sullivan and Knutson 2000b). A definitions of disabilities, employed data only from incar-
total of 255 runaways were identified in the 39,353 hospital cerated populations, and presupposed a causal relationship
records and 562 runaways in the total school population of between learning disabilities and juvenile violence (Mears
40,211 children and youth. The prevalence rate of dis- and Aron 2003; Malmgren et al. 1999). There is a critical
abilities among the maltreated runaways was 83.1% com- need for theory-driven research with access to juvenile
pared to 47% among the nonmaltreated runaways in the justice, special education, and mental health records to
hospital sample. In the school sample, 34% were mal- identify associations and pathways between disabilities and
treated runaways and 17% had no records of maltreatment. juvenile justice outcomes.
Behavior disorders, mental retardation, and some type of
communication disorder were found to be the most pre- Child Abuse and Neglect Incidence Studies in Social
valent disabilities in runaway children in both samples. Service Settings
Maltreated children, with and without disabilities, exposed
to sexual and physical abuse in the home were at high risk Shortly after the completion of the Second National Inci-
to run away. Also, a higher prevalence of families with dence Study (NIS-2 1988; Office of Human Development
records of domestic violence had runaways with behavior Services 1988), the National Center on Child Abuse and
disorders than families without a record. An association Neglect (NCCAN) contracted with a private corporation,
between lower academic achievement, poor school atten- Westat, Inc., to conduct a study of the incidence of child
dance, family stress factors, and maltreatment and dis- abuse among children with disabilities. The resulting We-
ability was found in runaway youth. These findings have stat study mirrored the methodology implemented in NIS-
implications for researchers and service providers. Chil- 2. Accordingly, data were collected from 35 CPS agencies
dren and youth with disabilities are unidentified and that were statistically selected to be nationally representa-
unrecognized among runaways in law enforcement records tive of U.S. counties. This limited the study to maltreat-
of maltreatment. Researchers studying runaways might ment cases identified in CPS agencies alone and neglected
explore their samples for youth with disabilities and to include information from law enforcement agencies that
include disability status in research protocols. Prevention typically are repositories of extrafamilial abuse records.
materials targeted toward runaway youth should address Results indicated that 14.1% of children in a nationally
the cognitive and language deficits many of these youth representative sample with substantiated maltreatment by
possess. Child Protective Service (CPS) workers had one or more
Children and youth with disabilities have received disabilities. A weakness of this study is the identification of
recent attention in the juvenile justice literature. Available disabilities on the basis of social worker opinion rather than
research does not provide sound prevalence data addressing implementing a validated disability definitional framework.
the overrepresentation of youth with disabilities, primarily It was concluded that children with disabilities were 1.7

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Clin Child Fam Psychol Rev (2009) 12:196–216 203

times more likely to be victims of child maltreatment in with developmental disabilities exposed to maltreatment as
comparison to children without disabilities. Results also well as the level of developmental disability-related training
indicated that some disabilities, such as physical health that CPS staff receives. Earlier work revealed that CPS
problems and serious emotional disturbance, were associ- workers rarely recorded disability status in their case files
ated with increased maltreatment, while mentally retarded (Bonner et al. 1997). Questionnaires were sent to child
children and those with speech/language disabilities did not welfare administrators in all 50 states and the District of
demonstrate a statistically significant increase in incidence Columbia. There was a very high response rate with 50 out
of maltreatment. The study also reported that specific of a possible 51 respondents returning the questionnaire.
learning disabilities were associated with a very large Alarmingly, less than 50% of state child welfare agencies
decrease in risk for maltreatment. An unusual finding was identified children with developmental disabilities. The
that children with disabilities were most likely to be white administrators were asked to rate the accuracy of the dis-
males 5 years of age or older from one-child families. ability data submitted by local CPS agencies to the state’s
These findings are likely artifacts due to the implementa- central office and the median response was ‘‘somewhat
tion of a nondisabled control group of children that did not accurate.’’ The majority of states (68%) provided disability
match the disabled group exactly on age. The control group training to workers with in-service workshops. Others pro-
used in the study was not appropriate because it was con- vided consultants, hand-outs, and written materials for
structed from an Office of Education study of school training workers. Unfortunately, the agency administrators
children between the ages of 6 and 17 years ; the abused reported that they did not typically seek consultation from
children in the Westat sample were ages 0–17 years with developmental disability agencies in their states. The
almost 40% of the children under 6 years of age. Since age authors concluded that state CPS agencies were better pre-
was not controlled in the analyses, comparisons cannot be pared 20 years ago to identify and document children with
made between the two groups. Although the Westat, Inc. disabilities in their caseloads than they are currently. Rec-
(1993) study found that there is an association between ommendations were made for improved data collection
disabilities and maltreatment, methodological limitations procedures, staff and foster family training on disability
precluded strong inferences from the study. issues, and improved collaboration with disability-related
A large-scale longitudinal study followed the involve- providers. This does not bode well for the success of the
ment of 7,940 children reported for maltreatment through Fourth National Incidence Study (NIS-4) in determining the
the child welfare system and into special education in St. incidence of maltreatment among children with disabilities.
Louis (Jonson-Reid et al. 2004). Children identified in The NIS-4 methodology is obtaining disability data from
administrative databases that included Medicaid health CPS agencies in 35 counties throughout the U.S. (Andrea
records, Child Protective Service records, child welfare Sedlacek, personal communication, August 13, 2008). The
services information, and special education records were the Shannon and Agorastou data indicate that the disability
subjects followed. Thus, all the children were from low- determinations by CPS agencies throughout the U.S. are
income families. The dependent variables were both dis- fraught with validity and reliability problems that would
ability related and encompassed eligibility for special edu- preclude their use in research.
cation and type of disability for which the child received Connell et al. (2007) examined the link between child,
services. Child maltreatment predicted later special educa- family, and case characteristics with the risk of re-referral
tion entry. Children with records of sexual abuse had lower to child protective services (CPS) for child maltreatment
rates while child victims of physical abuse had higher rates using the administrative data that included submissions to
of subsequent special education entry. The rate of entry into the National Child Abuse and Neglect Data System
special education was high for children receiving family (NCANDS) in the state of Rhode Island between 2001 and
preservation services or foster care subsequent to maltreat- 2004. The dataset included 22,584 children from infancy to
ment. This study provided evidence that maltreated children late adolescence. The study found that the time of greatest
have a significant risk of later special education placement. risk for re-referral is the initial 6-month period following
The study design precluded the identification of the presence the initial case disposition. Family poverty was the best
of a disability prior to the occurrence of the maltreatment. predictor of re-referral. Children with an identified dis-
However, it presents compelling evidence that special ability were 1.33 times more likely to be re-referred to
education is a potential outcome of child maltreatment Child Protective Services than children without a disability.
among low-income children. This methodology needs to be Identified family risk factors were substance abuse history,
replicated with children from other socioeconomic strata in poverty, and domestic violence history. Families facing
other locales in the U.S. multiple contextual stressors had the highest risk for re-
Shannon and Agorastou (2006) investigated the ability of referral suggesting that a prevention window exists
child protection service (CPS) agencies to identify children immediately after case closings.

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Two population-based studies conducted in Great Brit- disabilities in this cohort. It included children with the
ain and one in Israel addressed the incidence of disabilities following identified disabilities: emotional and behavioral
in child abuse registries. In a retrospective whole-popula- disorders, pervasive developmental disorders, mental
tion cohort study, data were drawn from the West Sussex retardation, brain injury, communication and learning dis-
Social Services’ Child Protection Register in the United orders, physical impairment and health-related problems,
Kingdom (Spencer et al. 2005). Participants were 119,729 sensory impairment, and multiple disabilities. All children
children born in West Sussex between January 1983 and were interviewed using the National Institute of Child
December 2001. The study assessed the risk of registration Health and Human Development (NICHD) interview pro-
for child abuse, including neglect, physical abuse, sexual tocol. A researcher-developed classification system cate-
abuse and emotional abuse, among a variety of disabling gorized the disabilities as minor or severe based on
conditions. These were cerebral palsy, autism, conduct researcher judgment of the children’s’ functioning during
disorder, nonconduct psychological disorders, speech and the interview. Children with minor disabilities and severe
language disorders, learning disabilities, and vision and disabilities were identified in this manner. No rater reli-
hearing disabilities. A significant association between ability data are given regarding this classification system.
specific disabling conditions and a record of child mal- Children with disabilities were more likely to be victims of
treatment was identified. Furthermore, this association child abuse and exhibit more difficulty reporting their
varied with type of disability and the abuse category. abuse experiences when interviewed regarding them. The
Cerebral palsy, conduct disorders, and learning disabilities most prevalent form of maltreatment among the children
were associated to all categories of abuse (physical, sexual, with disabilities was sexual abuse. No age differences were
emotional, and neglect) while autism and sensory disorders found in the relation between disability and abuse. Children
were not related to any type of abuse. This variability in with disabilities failed to disclose abuse more often com-
association data is consistent with the Sullivan and Knut- pared to children with no disabilities. Delay in disclosure
son (2000a) findings in a school- based population wherein was reported for children with disabilities specifically for
relative risks for type of maltreatment varied with disability the victims of sexual abuse compared to children with no
status. disabilities. This research provides ground breaking infor-
Data on 14,256 children born between April 1991 and mation on interviewing protocols for use with children with
December 1992 from the Avon Longitudinal Study of disabilities. However, the researchers’ disability classifi-
Parents and Children (ALSPAC) were examined for asso- cation method needs to be validated. Further research is
ciated factors with child maltreatment (Sidebotham et al. needed to determine whether the results generalize to
2003). Participants were 14,256 children born between children with disabilities in other countries. The subjects
April 1991 and December 1992 who are followed longi- were all Israeli children and no data on the ethnic com-
tudinally. Data were drawn from the social services’ child- position of the cohort was provided. It is unknown if any
protection registers (United Kingdom) and reviewed for Palestinian or other Arab nationalities were represented in
possible child abuse records of neglect, physical, sexual, the social service database from which the cohort was
and emotional maltreatment. A total of 115 maltreated obtained. Given the violence-ridden context of the region,
children were identified. Disabilities were identified by opportunities for the study of community violence, war,
parental reports. Parents reported developmental concerns terrorism, and religious violence among children with
regarding speech, behavior, and general development. disabilities are abundant.
Differences in birth weight, overall health, developmental The studies discussed in this review have demonstrated
milestones, and behavior were identified in the maltreated evidence of an association between disabilities and mal-
children compared to nonabused children. Sidebotham treatment in children. Children with disabilities have been
et al. (2003) concluded that the overall circumstances and found at increased risk for child maltreatment in studies
conditions that occasion child maltreatment are a complex conducted in medical, child protective services, law
compendium of factors in which child characteristics play enforcement, and school settings in the U.S., Canada, Great
only a small part. The significance of this research is the Britain, Norway, Australia, and Israel. But critical gaps
determination that the disability status of the child is only remain in the elucidation of the disability–maltreatment
one component of the disability/abuse equation and that equation. There is much more that we need to know.
other contextual factors also play a role. Kendall-Tackett (2005) made a plea to researchers in the
A study conducted in Israel examined the reports of child maltreatment field to include the disability status of
forensic investigations from 1998 to 2004 of alleged vic- children in their research protocols. Even without a focus
tims of sexual and physical abuse that included 40,430 on children with disabilities, such research would provide
children between the ages of 3 and 14 years (Hershkowitz additional and needed data on the scope of the problem and
et al. 2007). There were 4,461 children with identified expand the breadth and depth of current work. At some

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point, disability status should be considered as a categorical maltreated disabled children without a domestic violence
variable akin to gender, age, and ethnicity and routinely history (Sullivan 2006). These include: voluntary foster
included in research protocols. care placement in nonkinship care families; inadequate
parenting and inadequate housing; family financial prob-
lems; marital problems; pregnancy or birth of newborn;
Domestic Violence parent ill/disabled; mental/emotional problems in parent;
parental alcohol/drug abuse; social isolation; family
Contextual factors occur in tandem with violence exposure involved with the legal system; step-parent/child conflict;
among children with and without disabilities and serve as fetal alcohol syndrome; and AIDS in family member
moderators or mediators of its effects. Nondisabled chil- (Sullivan 2006). These findings suggest the existence of
dren’s exposure to violence rarely occurs in discrete, uni- disability-specific family factors in the domestic violence–
tary forms (Dodge et al. 1997; Margolin 1998; Rossman child maltreatment equation in need of identification to
and Rosenberg 1998) and often co-occurs with other types guide prevention and intervention efforts.
of violence, particularly domestic and community violence Although not all children from violent homes develop
(Herrenkohl and Herrenkohl 2007; Lee et al. 2004; Hartley mental health and behavior problems (Margolin and Gordis
2002; McGuigan and Pratt 2001). High rates of co-occur- 2000), there is evidence that exposure to domestic violence
rence between exposure to domestic violence in the home can occasion disabilities, namely Conduct Disorder (CD)
and child physical abuse have been reported (Renner and and Attention Deficit Hyperactivity Disorder (ADHD).
Slack 2006). Studies have also identified other co-occur- Litrownik et al. (2003) examined the relationship between
ring risk factors associated with child abuse and domestic family violence and behavior problems in a sample of 682
violence exposure including: fathers’ use of drugs, alcohol, children and youth. Family violence was defined as both
and arrest for criminal offenses (Hartley 2002); mental violence directed at and violence witnessed by the child
illness, substance abuse, and criminal activity within a and coded for the presence of physical and/or psycholog-
family member (Dong et al. 2004); lower education, poor ical acts of aggression. Behavior problems were identified
health, and drug use by the father (Tajima 2004); and among children experiencing family violence as a function
poverty (Gewirtz and Edleson 2007; Lee et al. 2004). of type of aggression associated with the violent act. Psy-
Currently, there is limited research on the co-occurrence chological and physical violence in combination were
of different forms of violence among children with dis- related to aggressive behavior in the child, while witness-
abilities. Domestic violence was found to co-occur with ing psychological violence was related to anxiety and
child maltreatment in the homes of children with disabili- depression (Litrownik et al. 2003). Similarly, when
ties in Sullivan and Knutson’s (2000a) school-based study. examining the impact of family violence on the develop-
There were records of domestic violence within the fami- ment of attention and conduct problems in children, Becker
lies of 17.2% of the children and youth with disabilities and and McCloskey (2002) found that boys had more attention
16.3% of nondisabled children and youth in that research problems, conduct problems, and reports of violent offen-
which involved 4,503 maltreated children (Sullivan 2006). ses than girls, and children who developed Conduct Dis-
The difference in rate between disabled and nondisabled orders were more likely to have co-morbid ADHD (Becker
children was not significant. Behavior disorders, mental and McCloskey 2002).
disabilities, and speech/language disorders were the pri- There is a gap in the knowledge base on which children
mary types of disabilities among the disabled maltreated develop aggression, depression, or anxiety and their char-
children with a record of domestic violence in their fami- acteristics (Jouriles et al. 2001). Studies are also needed on
lies. No data regarding the incidence of domestic violence the different effects of violence exposure on the mental
absent child maltreatment were available. The 17% rate of health of boys and girls at different ages. In a sample of
domestic violence in the home among children with dis- 120 children of adult perpetrators and victims of domestic
abilities in this population is almost three times higher than violence, the children witnessing the violence exhibited
the base rate of 6% co-occurrence between domestic vio- differential emotional and behavior problems depending on
lence and child physical abuse in other community samples age and gender (Anderson and Sullivan 2005). Young girls
(Appel and Holden 1998). between 1‘ and 5 years of age who witnessed domestic
Maltreated children with disabilities are also exposed to violence had significantly more depression and sleep
a host of additional stressful life events (Sullivan and problems than both exposed boys of the same age and a
Knutson 2000a). In that research, the following family control group of children not exposed to domestic violence
stress factors were found significantly more often in the in the home. School-age and adolescent girls (i.e., between
maltreatment records of disabled children with a domestic the ages of 6 and 18 years) exposed to domestic violence in
violence history in their family than in the families of the home exhibited significantly more aggressive behavior

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206 Clin Child Fam Psychol Rev (2009) 12:196–216

than boys exposed to domestic violence and nonexposed Canadian province (Sobsey 2001). There appears to be a
controls. In this sample, girls appeared to have more much higher rate of filicide in Canada than in the U.S. The
adverse behavior consequences to witnessing domestic percentage of child murders attributed to filicide in Canada
violence in the home than boys. These include depression is 80% compared to 55% in the U.S. Sobsey opines that
and sleep disturbances in early childhood and aggressive this is due to the positive and sympathetic publicity
behavior in the elementary school years and adolescence. afforded to Tracy Latimer’s father during his trial. In the
An area of research related to behavior and mental U.S., only 3% of child homicides involve children (Rich-
health problems among the siblings of children with dis- ards 2000). Although the murder of a disabled child by a
abilities has emerged. Behavioral outcomes have been parent is a low base rate occurrence, professionals need to
identified in siblings of children with speech and language be cognizant of its potential role and outcome in the vio-
disabilities that can mediate sibling aggression and include lence victimization of children with disabilities.
jealousy, resentment, and loss of parental attention (Barr
et al. 2008). Siblings of maltreated children are also at an
increased risk of abuse in households in which parents have Community Violence
mental health problems, frequent use of alcohol and drugs,
intellectual disabilities, and a history of abuse in childhood Minimal research has been conducted on infants, toddlers,
(Hamilton-Giachritsis and Browne 2005). Subjects for this children, and youth with disabilities as victims of con-
research were 795 siblings from a cohort of 400 children ventional violent crimes, including homicide, assault,
who had been referred to police child protection units in sexual assault, theft, and robbery within their communities
England for some form of abuse and/or neglect. The risk of (Sullivan 2003a, 2006). This is because crime victimization
siblings’ maltreatment was associated with child charac- data are typically not collected on children with disabili-
teristics including age, behavior difficulties, physical or ties. Although in 1997 the FBI began collecting disability
intellectual disabilities, and gender. Family characteristics status on victims of hate crimes in compliance with The
such as size, criminality, financial problems, a violent Violent Crime and Law Enforcement Act of 1994, data are
family environment, and social isolation were also asso- collected only on adults. However, even if data were col-
ciated with sibling abuse. It is noteworthy that this research lected on children they would be problematic since the
also concluded that the special victim model of a step or determination of a disability in a victim and hate for that
child with a disability had limited rather than universal particular disability as a motivation for their victimization
application in their sample. The generalizability of these is determined by the police report completed by the
findings to American families referred to child protective investigating officer. Although it is likely that there are
services needs to be determined. Support groups for the cohorts of children with disabilities among the existing
siblings of disabled children that address the development datasets on nondisabled children, they remain unrecog-
of coping strategies, social interaction with the disabled nized and unidentified within criminal justice databases on
sibling, building self-esteem, and the understanding of crimes against children in the U.S. (Sullivan 2003a, 2006).
disability-related issues have been shown to be effective in A comprehensive literature search was completed by
addressing sibling problems that arise in these families searching each of the conventional violent crimes (i.e.,
(Naylor and Prescott 2004). homicide, assault, sexual assault, theft, and robbery) by
Sobsey (2001, 2007), a Canadian scholar on violence each childhood disability (i.e., behavior/emotional dis-
against persons with disabilities, has done seminal work in ability, visual impairment, deaf or hard of hearing, learning
collecting data and studying the filicide of children with disabilities, mental retardation, communication disorders,
disabilities. The murder of a child by a parent is an extreme speech and/or language disorders, health/orthopedic dis-
manifestation of domestic or family violence. Sobsey’s abilities, physical disabilities, autism, and multiple dis-
major focus has been on the interpretation of such child abilities) as victims of each conventional crime. None were
murders as altruistic on the parent’s part. In Canada, some identified. This does not mean children with disabilities are
50 children are murdered each year and 80% are murdered not victims of violence in the community and on the
by one or both parents (Sobsey 2001). In turn, about half of streets. Rather, they are not coded as disabled in victim
these parents claim altruistic reasons for their actions that crime reports collected by state and federal law enforce-
include the unbearable burden of the child’s disability to ment agencies in the U.S. This method can serve as a
the parents, an act of love on the part of the parents to spare barometer to monitor the tracking of research on commu-
the child the burden of the disability, and even for the good nity violence that includes children with disabilities.
of the child. The Tracy Latimer case in Canada engendered There are four types of community violence that impact
some sympathy for the father who murdered her and children and youth with disabilities and ironically occur
resulted in a copy-cat murder of a disabled child in another within institutions designed to serve them. These include

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school bullying by peers, corporal punishment adminis- 2007). Furthermore, among children with intellectual dis-
tered within the school setting, physical and chemical abilities, such victimization was related to the children’s
restraint used to modify behavior in some special schools emotional and interpersonal problems as well as anxiety,
and mental health treatment centers, and systemic violence depression, and peer rejection (Reiter and Lapidot-Lefler
in residential schools and institutions for children with 2007). Interestingly, bullies and children who were both
specific types of disabilities (Sullivan 2006). victims and bullies exhibited challenging behavior in the
classroom including temper tantrums, unruly behavior,
School Bullying lying, and stealing. Being a bully was related to both
aggressive behavior and hyperactivity (Reiter and Lapidot-
School bullying involving children with disabilities has Lefler 2007).
been extensively studied in the United Kingdom and Identified risk factors for bullying victimization include
Scandinavian countries (Dawkins 1996; Olweus 1991; shyness and seeking help (Mishna 2003), as well as low
Roland and Munthe 1989). Bullying is defined as a rela- self-esteem, poor social skills, and physical and mental
tionship of unbalanced power between youth who are impairments (Flynta and Morton 2004). Children with
involved in repeated abusive or threatening behaviors learning disabilities (LD) are at an increased risk of vic-
toward other youth (Besag 1989; Olweus et al. 1999; Smith timization but there is little research available on the
and Brain 2000). Children with disabilities are the frequent relationship between children with LD and bullying (Mis-
targets of physical and/or psychological teasing, name- hna 2003). It is hypothesized that children with LD tend to
calling, hitting, pushing, social exclusion, threats, extor- have low social status and poor peer relationships (Boivin
tion, and theft in schools (Dawkins and Hill 1995). Chil- et al. 1995) and rejection by peers renders the LD child
dren enrolled in special education programs associated susceptible to bullying victimization (Boulton 1995, Egan
with visible disabilities (i.e., cerebral palsy, blindness, and Perry 1998, Hodges and Perry 1999). Children with
deafness, etc.) are twice as likely to be bullied than chil- Attention Deficit Hyperactivity Disorder (ADHD), a com-
dren with disabilities not associated with visible physical mon neurobehavioral childhood disorder that often is co-
conditions (i.e., learning disabilities and behavior disor- morbid with LD, have a higher risk for both bullying others
ders) and some one-third of these children are regularly and being a victim of bullies (Unnever and Cornell 2003).
bullied at school with boys being bullied more often than Interestingly, children taking medication for their ADHD
girls (Dawkins 1996). These data are consistent with other were more likely to be bullies and this was attributed to the
research that has found children with special education medication-induced lowered self-control (Unnever and
needs twice as likely to be bullied as those in regular class Cornell 2003).
placements (Olweus 1991, 1993; Whitney et al. 1992). Bullying among deaf children has been studied in school
A study conducted in the United States, using data from settings (Weiner and Miller 2006). Deaf and hard-of-
the National Survey of Children’s Health (NSCH), found hearing children can be targets by their deaf and hearing
children with special health care needs 1.5 to 2 times more peers. It is important to study bullying in differing deaf
likely to be victims of bullying than their nondisabled peers school settings attended by deaf and hard-of-hearing stu-
(Van Cleave and Davis 2006). This study also determined dents. Researchers also need to examine the following
that children with special health care needs (CSHCN) were factors unique to deaf children: children who are deaf and
most often victims rather than perpetrators of bullying. developmentally disabled, deaf children of hearing parents,
CSHCN with an emotional, behavioral, or developmental deaf children of deaf parents, deaf children in residential or
disability were more likely to be a bully or a bully/victim. day programs, and deaf children in mainstreamed or self-
An Australian study by Piek et al. (2005) examined the contained classrooms (Weiner and Miller 2006). A pilot
relationship between bullying and children with a visible study of deaf youth in a residential school examined 13
disability (i.e., Development Coordination Disorder). boys and 6 girls between 13 and 17 years of age for bul-
Children with or without motor coordination problems lying, victimization, and any emotional or behavioral
reported the same amounts of victimization. However, manifestations the students attributed to the bullying
verbal victimization profoundly impacted the self-worth of (Sullivan 2006). There was no indication of more bullying
girls with motor coordination problems (Piek et al. 2005). behavior toward other students compared to the hearing
A British study of children with intellectual disabilities normative sample of the Reynolds Bully Victimization
in two special education schools found 83% of the partic- Scales for Schools (Reynolds 2003). However, there were
ipants experienced some type of bullying including verbal more victims of bullying with higher severity levels com-
vulgar epithets, ridicule, threats, physical beatings, being pared to the hearing norms. There was no association
forced to do things against their will, and being sexually between gender and age of the deaf youth and bullying
touched without their consent (Reiter and Lapidot-Lefler perpetration or victimization. Symptoms were reported by

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208 Clin Child Fam Psychol Rev (2009) 12:196–216

the majority of deaf students in their self reports in addition Medicare and Medicaid Services (CMS) standards for all
to being a victim of bullying at school. There was an health care providers that receive federal monies, the
association between being a victim of school bullying and Health and Human Services Office of Inspector General
having feelings of anger, irritability, and aggressive Report on individual state abuse and neglect laws indicated
behaviors among deaf youth. These pilot data apply only to that state systems and laws for protecting children and
children in residential schools and need to be replicated in youth with disabilities from abuse and neglect vary. Fur-
other school settings serving deaf children. School bullying thermore, the report found that up to 90% of persons with
is a contributing factor to feelings of unhappiness, sadness, disabilities reside in facilities such as group homes, resi-
and anger among children with disabilities, and it affects dential schools, and supervised apartments that do not
their ability to benefit from special education services receive Medicaid or Medicare funding and, therefore, are
(Sullivan 2003a, 2006). not covered by CMS standards (Gross 2003). Thus, not all
deaths of children and youth with disabilities residing in
Physical Restraint and Seclusion (R & S) group homes and residential schools due to restraint are
likely reported. Neither the number of children with dis-
Condoned physical interventions and seclusion dispensed abilities who died from restraint nor the number who
under the guise of therapeutic interventions implemented developed a disability resulting from restraint are compiled
with children with disabilities can escalate to abusive or known.
violence and are both controversial and commonplace Restraint and seclusion remain controversial treatment
(Sullivan 2003a, 2006). Restraint is the restriction of modalities for children and youth in out-of-home place-
movement by using force. There are three types of ments. Both media and national legislative attention have
restraint. Physical restraint entails restricting movement by spawned the need for valid and reliable national data on the
a person holding, sitting, or lying on the child. Mechanical use of these practices and their efficacy in treating mental
restraint involves the use of a device to limit a child’s and behavior disorders among children and youth. There
movement such as a harness, gurney, or strapping a youth appears to be a circularity of association between aggressive
in bed. Chemical restraint entails the use of medication to behavior and restraint. That is, children exhibit aggressive
lessen agitation which can result in a youth becoming behavior and are restrained for doing so and, in turn, display
unconscious. All three forms of restraint are used with aggressive behavior after the restraint has ended. This
children with disabilities in residential treatment centers, association was found among mentally retarded children in
psychiatric hospitals, residential schools, and institutions. psychiatric inpatient facilities (Sukholdolsky et al. 2005).
Seclusion is the involuntary confinement to a room, chair, Similarly, in an extensive study of aggression among psy-
or other area from which the youth is prevented from chiatrically hospitalized youth, Boxer (2007) reported that
leaving. This can be a ‘‘quiet room,’’ the youth’s bedroom, youth becoming involved in seclusion and restraint because
or a specially reserved room within the facility. Mental and of aggressive behavior have histories of various types of
behavior disorders are considered a disability under IDEA aggression prior to hospitalization.
and a special health care need in the National Survey of Restraint and seclusion have been mandated as ‘‘last
Children with Special Health Care Needs (NS-CSHCN). resorts’’ in the treatment of children and youth with severe
Accordingly, essentially all children and youth receiving behavior and mental disorders. The Substance Abuse and
inpatient treatment for a mental or behavior disorder could Mental Health Services Administration (SAMHSA) has
be considered as manifesting a disability. placed the elimination of restraint and seclusion on its
National attention has been afforded to the practice of research priority and funding agenda. Efficacy data are
physical restraint against children and adolescents in psy- urgently needed to compare physical restraint with other
chiatric and residential treatment centers (Mohr et al. behavioral interventions in children and youth with dis-
2003). The consequences of restraint can be extensive and abilities in residential mental health settings.
wide ranging. They include restraint asphyxia; blunt
trauma to the arms, chest, and legs; catecholamine rush; Corporal Punishment
rhabdomyolosis; thrombosis; broken limbs; and even death
(Mohr et al. 2003). The psychological and cognitive impact Corporal punishment is allowed in 21 states in the U.S. and
of physical restraint includes nightmares, disturbing is frequently used in 13 of these states. Corporal punish-
thoughts, fearfulness, avoidance behaviors, mistrust of ment includes the physical striking of children and youth
mental health workers, and anxiety (Mohr et al. 2003). with hands and/or objects, physical exercise as punishment,
There is increasing concern over incidents of death and and the completion of humiliating cleaning or other phys-
injury resulting from restraint (Mohr et al. 2003). Although ically repetitive tasks dispensed by teachers, aides, and
deaths due to restraint must be reported under Centers for administrators within the schools. Minorities and students

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Clin Child Fam Psychol Rev (2009) 12:196–216 209

with mental or physical disabilities are more likely to be due to institutional barriers that include self-investigations
paddled than Caucasian students (Human Rights Watch of complaints of abuse and the tendency for social service
and American Civil Liberties Union Joint Report 2008). personnel to default to the institution professionals with
Data released by the National Coalition to Abolish Cor- expertise in a given disability (Paul and Cawson 2002).
poral Punishment in Schools (NCACPS) in March 2008 This can result in the maltreatment being explained and
reported that 223,190 students in the United States received misconstrued as a manifestation of the disability. Com-
some form of corporal punishment in U.S. public schools munication difficulties are significant barriers that impede
during the 2006–2007 school year This NCACPS report investigations of maltreatment in residential facilities. This
identified four groups of children as the most frequent is particularly problematic among children with develop-
recipients of corporal punishment: poor children, minori- mental disabilities, mental retardation, and sensory
ties, children with disabilities, and boys (National Coalition impairments with compromised communication skills and
to Abolish Corporal Punishment in Schools 2008). limited linguistic communities that compound and con-
Given that 21 states permit corporal punishment within found interviews with the suspected victim. Although the
their public schools, the physical striking of children as a use of interpreters is helpful with deaf children in resi-
means of school discipline remains a controversial issue in dential schools, it does not always solve the problem.
the U.S. Indeed, the existence of corporal punishment of These communication difficulties often result in charges
children in some U.S. schools is one of the reasons the U.S. not being filed against likely perpetrators because the child
has not ratified the United Nations Declaration on the is not believed or deemed a good witness because of the
Rights of the Child, which specifically lists a child’s right disability. Barring an eye witness or a confession, the
not to receive corporal punishment. There are emerging alleged maltreatment is not investigated.
data that this sanctioned corporal punishment in schools is Children with sensory impairments are at increased risk
linked to school shooting fatalities (Arcus 2002) and stu- for maltreatment (Brookhouser 1987;Sobsey 2002; Whi-
dent aggressive misbehavior (Hyman and Perone 1998). taker 1987). Numerous states in the U.S. and provinces in
The use of aversive interventions and restraints with Canada have had major child abuse investigations in resi-
children with disabilities is often considered necessary and dential schools and institutions for children who are deaf
even beneficial to their overall treatment and well-being. and hard of hearing, with visual impairments, and with
These can include the use of shock wands as prods to developmental disabilities (Brookhouser 1987; Sobsey
follow directions, spraying ammonia mist in the face, and 1994; Sullivan and Knutson 1998b; Sullivan et al. 2000). A
forced ingestion of noxious substances as punishments. residential placement is a major risk factor for experiencing
Full-body restraint and seclusion have been also routinely sexual and/or physical abuse. Studies have demonstrated
endorsed as ‘‘treatments’’ for children with disabilities. The that the primary location is the dormitory, and the primary
efficacies of these interventions have not been sufficiently perpetrators are houseparents, older students, and peers
validated to justify or warrant their use. (Sullivan and Knutson 1998b). Sexual abuse tended to
occur in bathrooms, bedrooms, and specialized transpor-
Institutional Violence tation, places within dormitory settings that are not always
closely monitored by staff (Sullivan et al. 1987, 2000;
Despite the introduction of the IDEA and the subsequent Sullivan and Knutson 1998b). A residential school place-
inclusion of disabled children in regular education pro- ment coupled with physical and sexual abuse victimization
grams, significant numbers of disabled children continue to within the school increases the risk for alcohol abuse,
be placed away from home and community. The most behavior management problems, and the perpetration of
recent data available indicate that approximately 2% of the sexual and physical abuse against peers among deaf males
10.2 million children and youth with disabilities in the U.S. (Sullivan and Knutson 1998b).
reside in institutions, including nursing homes, schools for This research and highly publicized episodes of abuse at
the blind, deaf, and physically disabled, institutions for the residential facilities for children with disabilities that erupt
mentally retarded, and facilities for the mentally ill (Wal- from time to time in the media suggest that current insti-
drop and Stern 2003). tutional practices, including condoned physical interven-
The problem of violent acts committed against children tions, which can escalate to abusive violence of residents
in institutions is long-standing and has been documented in by their caretakers, should be closely monitored and
the historical records of the residential care of children for evaluated for their treatment efficacy. Disabled children
over two centuries (Paul and Cawson 2002; Safford and and youth placed in institutions intended to protect, nur-
Safford 1996; Sobsey 2002; Sullivan 2003a, 2006). Dis- ture, and educate them experience a breach of trust by
abled children placed in institutions are less likely to abusers employed in the facility (Sobsey 2002). The
receive help from child protection and therapeutic services numbers of children and youth with disabilities housed in

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210 Clin Child Fam Psychol Rev (2009) 12:196–216

institutions warrant more research on the prevalence, nat- that their children have committed suicide in this manner.
ure, and risk factors for violence and abuse in residential Others have received money for their child’s suicide and
settings. the family is honored for its collusion in the child’s
In conclusion, a consideration of community violence recruitment UNAMA 2007.
demonstrates a need for data on the prevalence, nature, and It is estimated that over 2 million children have been
effect of violent acts committed against children and youth killed in warfare and another 6 million have been rendered
with disabilities by peers, schoolmates, and professionals permanently disabled as a result of combat injuries (Sev-
charged with their care and welfare. Currently, with the enth Report to the Security Council on Children and Armed
exception of corporal punishment, it is unknown if children Conflict 2007). During armed conflict, girl soldiers are
and youth with disabilities have a higher victimization rate subjected to rape and other sexual violence including
of these types of violence than nondisabled peers. sexual slavery, forced prostitution, and sexual mutilation
(Child Soldiers Global Report 2008). This gender-based
sexual violence often results in physical and health-related
War and Terrorism disabilities. The accidental detonation of unexploded
ordinance is a leading cause of disability in war-ravaged
In 2005, the Secretary General of the United Nations nations (Francois et al. 1998) and children are frequent
undertook a study of violence against children around the victims (Andersson et al. 1995). An estimated half of the
world and included children with disabilities. The study 15,000 to 20,000 annual victims of landmines and unex-
estimated that 200 million children (10% of the world’s ploded ordnances in 90 countries are children (Office of the
children and youth) are born with a disability or become Special Representative of the Secretary-General for Chil-
disabled before the age of 19 (United Nations Secretary dren and Armed Conflict 2008). Nearly 10% of the popu-
General’s Study on Violence against Children 2006). The lation in Cambodia is disabled, primarily due to land
study found that children with disabilities are exposed to mines, and children account for 20% of the disabled pop-
physical, sexual, and emotional violence, verbal abuse, and ulation (World Report on Violence and Health 2002). In
neglect in a variety of settings including the home, at Iraq and Afghanistan, children are disabled by unexploded
school, in institutions used to provide them shelter, within ordinance at an alarming rate. Although the exact number
the juvenile justice system, community, and places of of children living without limbs in Iraq, as a result of
employment throughout the world. Additional areas of unexploded ordinance and countrywide warfare, is
concern identified were children becoming disabled due to unknown, local NGOs estimate that they must be in the
contact with landmines, intentional maiming by soldiers, thousands (UN Office for the Coordination of Humanitar-
conscription as child soldiers, and as a result of criminal ian Affairs 2008).
and gang activity within cities. Societal attitudes of shame toward families with dis-
The paucity of data on violence perpetrated against abled children are commonplace in some countries and
children with disabilities in the U.S. pales in comparison to cultures, particularly in Asia and Africa (Miles 1995).
even scarcer international data (Sullivan 2006). Record Violence against children with disabilities is often due to
keeping is routinely poor in many parts of the world and is cultural prejudices and other emotional, physical, eco-
further disrupted during warfare and terroristic attacks nomic, and social circumstances within the family. Women
(Zwi et al. 1999). Between April 2004 and October 2007, are blamed for having a disabled child, and as a result, the
children were actively involved in armed conflict in 19 child is hidden, denied critical care, shunned, and neglected
countries or territories (Child Soldiers Global Report by their families (Miles 1995). The cultural mores of
2008). These children served as conscripted soldiers who in neglect and indifference toward children with disabilities in
addition to combatants were porters, cooks, and messen- the developing world is a contributing factor to their vio-
gers for adults in warfare activities (Child Soldiers Global lence victimization. Devalued persons with disabilities are
Report 2008). Perhaps the most heinous violence perpe- at heightened risk to be victims of violence (Sobsey 1994).
trated against children with disabilities in warfare is their Children with disabilities are used as income sources for
use as suicide bombers primarily in Afghanistan by the families in some cultures including their sale for sexual
Taliban. An estimated 80% of Afghan suicide bombers had favors and maiming them to enhance their appeal as beg-
physical or mental disabilities (United Nations Assistance gars (United Nations Secretary General’s Study on Vio-
Mission to Afghanistan (UNAMA) 2007). In contrast to lence against Children 2006).
other Arab nations, Afghan suicide bombers with disabil- The maltreatment of children with disabilities in insti-
ities are not celebrated as martyrs. Persons with disabilities tutional settings is ubiquitous throughout the world. It is
are outcasts in Afghanistan and bring stigma and shame to estimated that eight million boys and girls around the world
their families (UNAMA 2007). Many parents are unaware live in institutional care. Children residing in group homes

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Clin Child Fam Psychol Rev (2009) 12:196–216 211

have a rate of sexual abuse four times higher than children ever be developed. For example, children with special
in family-based care. Children placed in residential insti- health care needs are identified on the basis of their specific
tutions are six times more likely to experience violence medical diagnoses, resulting treatment needs, and need for
than children in foster care (United Nations Secretary financial assistance in obtaining medical services and this
General’s Study on Violence against Children 2006). The is not the case for all children and youth with disabilities.
Secretary General’s study also identified institutional abuse Children and youth in educational settings qualify for
of children with disabilities within orphanages and resi- special education services because of specific educational
dential settings. This abuse included neglect, denial of services defined by federal law and determined by indi-
critical care, and physical and sexual abuse. The study also vidual evaluation by a team of certified educational spe-
reported the long-term impact of institutionalization on cialists. Differential physical and mental characteristics are
children that included severe developmental delays, the required for categorization in a given disability grouping
acquisition of disabilities including cognitive, language, and they differ across settings.
visual, and hearing disorders, and increased rates of suicide Although the multiplicity of definitional frameworks
and recidivism in detention centers. Girls in detention impedes research, they do not prevent it. Indeed, their
facilities are often subjected to sexual abuse and exploi- diversity adds to the richness of the potential omnibus
tation. Sexual harassment and abuse in residential settings study of the epidemiology of violence among children and
is widespread in all countries of West and Central Africa. youth with disabilities that needs to be undertaken. Such a
Often the girls are raped in schools, dormitories, and hos- study would encompass separate disability components and
tels. Studies completed in seven countries in the Middle investigate individually the incidence rates of violence and
East and North Africa found that children with learning children with disabilities within medical, crime victim,
disabilities were at an increased risk of being victims of child abuse and neglect, educational, juvenile justice, and
violence (UNICEF MENARO 2005). mental health settings. Valid and reliable research can be
The inclusion of the disability status of child victims in undertaken with children with disabilities by choosing a
the United Nations Secretary General’s Study on Violence definitional paradigm and adhering to it throughout a
against Children provided needed data and knowledge on research protocol. Overlap in disability type can occur
the scope of violence exposure and victimization against across settings and needs to be investigated as the presence
children with disabilities throughout the world. Such an of a disability can potentially affect a child or youth’s
omnibus study is needed in the United States to identify violence victimization characteristics and/or progress
prevention and intervention targets and guide public policy within a given setting. For example, children with learning
on children with disabilities throughout our nation. disabilities may have differential violence victimization
characteristics in crime victim and child maltreatment
databases and require specific accommodations to inter-
Conclusions and Research Recommendations ventions within juvenile justice, educationa,l and mental
health settings.
Sufficient research evidence is available to conclude that Children and youth with disabilities were included as a
children and youth with some type of disability are at specific subpopulation in Healthy People 2010 for the first
increased risk to be a victim of some type of violence time since the inception of the national health promotion
during their infancy, toddlerhood, school years, or adoles- and disease prevention agenda in 1979 (Sullivan 2003a).
cence. Children with disabilities need to be included and This objective was to reduce the number of children with
counted in crime victim, child abuse and neglect, juvenile disabilities who feel happy, sad, or depressed. They will
justice, health care, and mental health national databases also be included in the objectives of Healthy People 2020
(Sullivan 2003b, 2006). However, including and counting as an added group to all objectives, rather than in a single
them is a daunting task given that, with the exception of chapter limited to 6 objectives. This will include them in
health care and mental health agencies, many of these the violence victimization prevention objectives and,
entities neither acknowledge nor note the existence of a accordingly, adds them to the federal public health and
disability among the children and youth in their care, much research agenda as a targeted population. Thus, the way is
less report their prevalence in databases to government open to add samples of children and youth with disabilities
agencies and/or researchers. Given the heterogeneity in to grant applications for federal funds as a bona fide
definitional paradigms for a disability that are the gate- grouping included in our nation’s omnibus health agenda.
keepers to services within education, health care, and Doing so also enhances the public health relevance of
mental health settings, it is unlikely and perhaps unrealistic research projects. Hopefully, this inclusion will serve as a
that a standard ‘‘one agency fits all’’ definitional paradigm catalyst for the public policy arena. A national public
for individual disability types across these settings will policy blueprint that addresses violence against all people

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212 Clin Child Fam Psychol Rev (2009) 12:196–216

with disabilities is needed to guide not only research but ironically protect privacy but prohibit the identification of
public policy and practice (Marge 2003; Sullivan 2003a). contextual factors that will lead ultimately to the preven-
In a national call to action addressing violence against tion of violence. We will never be able to identify path-
children and adults with disabilities, Marge (2003) rec- ways from disability to abuse and abuse to disability if
ommended a standardized and comprehensive approach in these access barriers are not removed. This access across
the development of a national system of data collection on data repositories is the most efficacious and cost-effective
violence. She recommended that all existing surveillance solution to the determination of the incidence of violence
systems that collect data on violence victimization include exposure among children with disabilities.
questions about the disability status of victims. Further- In addition to the need for epidemiological studies of
more, data collection efforts at the federal level should be violence perpetration against children and youth with dis-
overseen and coordinated by an intergovernmental com- abilities, other research is needed to guide violence pre-
mittee on violence and disability statistics. These recom- vention and intervention efforts. Suggestions for future
mendations, to date, have not been implemented. research include:
Researchers also need to do more than count and cate-
gorize the number of children with disabilities within a • The perpetrator/victim relationship is an important
particular definitional paradigm, be it medical, educational, factor in identifying both risk factors for the victim-
child protection, juvenile justice, or Social Security dat- ization and re-victimization of children and youth with
abases. The associations and pathways between disability disabilities. Their victimization can occur in multiple
status and child maltreatment, domestic and community environments including the home, the school, in
violence exposure, and/or victimization are unknown and residential placements, and in transportation modes
need to be charted through research. The inability to link between them. The identification of the violence
data from disability sources to other datasets hampers perpetrator also has relevance to intervention modes
research efforts. Both public schools and the Social Secu- and goals for the psychological and mental health
rity Administration have disability databases on children effects of the victimization. Studies of the characteris-
and youth that could assist in research in determining tics of the victims and victimizers are rare and sorely
disability prevalence rates of children and youth in health needed in the field of violence and disabilities.
care, social service, and law enforcement by permitting • Disabilities are not commensurable and research is
data mergers between agencies with these databases to needed in identifying the extent the violence victimiza-
identify the number of disabled children. Federal law does tion of children and youth with specific disability types
not permit these mergers (i.e., Family Education Right to impact the response of the criminal justice system to the
Privacy Act-FERPA and the Social Security Act). Methods investigation of the alleged victimization, the interview-
congruent with federal statutes need to be identified to ing methods utilized with the victim, and the disposition
permit this research. Waivers for researchers should be of the investigation. If allegations of violence victimiza-
both available and supported by database stewards. Data tion are consistently not pursued with certain disability
should be collected and maintained on children with dis- types, then collaborative efforts need to be forged and
abilities between the ages of birth and 21 years. evaluated through research of effective remedies to both
Researchers addressing questions pertaining to children accommodate the disability and correct the justice
with disabilities should have access to these databases. disparity for the specific disability group or groups.
Research methodologies for obtaining incidence data • With the exception of corporal punishment, it is unknown
need to be disability appropriate and not rely exclusively if children and youth with disabilities have a higher
on telephonic interviews, parents, and professionals to victimization rate of condoned physical interventions
identify the disability status of infants, toddlers, children, within residential settings that can escalate to abuse.
and youth with disabilities. Persons with hearing impair- These include restraint and seclusion. The rates of
ment and cognitive disabilities do not always respond well restraint and seclusion of children with disabilities need
to telephonic interviews. To study the association between to be compared with those of nondisabled peers in the
disabilities and violence exposure, it is important to adopt same settings and, importantly, their effectiveness in
procedures that will yield accurate professionally based behavior change for both groups. This research will need
diagnoses of disability status as well as evidence of vio- to be undertaken by researchers who are not employed by
lence victimization. To this end, there is a critical need for the residential placement in which it is conducted.
researcher access to depositories of data on children with • Children and youth with disabilities who are both
disabilities, their diagnostic histories, family and contex- physically and/or sexually aggressive toward other
tual factors, and abuse and violence exposure histories. children and youth are in particular need of study. We
Privacy laws are often interpreted to preclude this and need to know if aggression and anti-social behavior

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Clin Child Fam Psychol Rev (2009) 12:196–216 213

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National Institute on Child Health and Human Development, and the Justice, Office of Juvenile Justice and Delinquency Prevention
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