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The Role of Music Therapy and Ritual Drama in

Transformation During Imminent Death


NOAH POTVIN, MMT, MT-BC Drexel University

ABSTRACT: This case study w ill explore the ritual drama that drama w ill then be explicated within a case study that dem­
organically emerged in a music therapy session with an actively dying onstrates its possibilities in the last chapter of life. My own
patient and her loved ones. Death is a natural transition that awaits
cultural, spiritual, and lived overlaps with this case w ill be
every individual and impacts parallel transitions for patients receiving
hospice care and their caregivers. Hospice patients are challenged to explored as well, to demonstrate how the therapist's own con­
transition peacefully into their postlife construct, and caregivers are texts inform the process.
similarly challenged to move toward a new understanding of the Self
in relation to their loved one's passing. Ritual dramas can provide a Mitzi
cultural and spiritual structure for participants to experience these Mitzi was a 47-year-old Caucasian woman who, at the
transitions and embody their subsequent transformations in meaning­ time I began working with her, had been battling her second
ful ways. Ritual dramas are performed in the therapeutic space by
bout of breast cancer in a decade-long struggle with the dis­
all in attendance, including the music therapist, and each performer
infuses the performance with their individual, cultural, spiritual, and ease. Remission had lasted for two years prior to the return of
historical backgrounds. This ensures that each performance is unique the cancer, and its return was marked by an aggressiveness
from all others, and malleable to the needs of the immediate set­ that proved uncontainable by modern medicine. Mitzi had a
ting. Music therapy is uniquely equipped to assist in the facilitation husband of 22 years, Jerry, and two children from the mar­
of ritual dramas, given music's inherent transitional and malleable riage: Danielle (17) and Alex (15). All four lived together in
qualities and the recent repositioning of the music therapy process
a middle-class suburban community in the greater area of a
as syntonic with meaning-based performance. How these elements
of music therapy were integrated into the performance of the ritual
major American metropolis. Jerry reported that they were part
drama w ill be explored. Additionally, the emergent themes from this of the Reform Jewish community, and the presence of their
performance w ill be analyzed alongside the cultural, spiritual, and faith in their daily lives was evident in the cultural artifacts in
historical contexts that informed them. the home, for example a hamsa on the wall and a mezuzah
on the door frame.
Mitzi's referral for music therapy indicated an urgency due
Introduction to her rapid decline over the past several weeks, including
decreased food and fluid intake, increased disorientation, and
The transitional period of imminent death, marked by
an inability to independently ambulate. Upon completion of
rapidly deteriorating global functioning and a significantly
the assessment, Mitzi's treatment goals were documented as
impaired external expression, is a delicate phase that chal­
pain alleviation and improved quality of life, and her family's
lenges the individual to die peacefully and caregivers to reach
goals as optimal emotional wellness and healthy prebereave­
a place of acceptance that supports this good death. What is
ment, including increased acceptance and readiness to let go.
the role of music therapy during this phase, and what is the role
This case study w ill explore the process that emerged during
of the music therapist? What informs the therapeutic process,
my second, and final, session with Mitzi. This session was held
and how is it to be understood both theoretically and clini­
one week after the assessment and took place when she was
cally? The limited available literature about music therapy and
actively dying and surrounded by family and friends at home.
imminent death has explored how music therapy can promote
relationship completion (Dileo & Parker, 2005) and healthy Setting
release (Krout, 2003), but without theoretically grounding the
Upon my arrival, Mitzi was lying in her hospital bed posi­
clinical processes. Without this grounding, clinical practice is
tioned adjacent and parallel to the foot of the bed in the master
at risk of drifting like a boat without an anchor, and does not
bedroom. Mitzi was intermittently responsive every few min­
provide other clinicians the tools necessary to integrate that
utes, presenting multiple classic signs of imminent death: shal­
practice into their work.
low breaths, mouth in an open and fixed position, eyes glazed
Ritual drama provides a theoretical structure and depth of
and unfocused, and minimal movement that, when occurring,
experience capable of informing and explicating meaningful
was largely sporadic in nature. There are no predictable tra­
music therapy practice during this treatment phase. The con­
jectories for this phase,- and while a window of 24-72 hours
tours of ritual drama w ill be explored here while building a
is usually given when caregivers inquire about how long until
case for music therapy as a context-dependent practice. Ritual
death, individuals can persist in this state for a week or longer
in some circumstances.
Special thanks to Dr. Seran Schug and Dr. Joke Bradt for their guidance and
mentorship in the preparation of this manuscript. Gathered around the head and sides of the bed, forming a
© the American Music Therapy Association 2015. All rights reserved. semicircle linked by Mitzi at the foot of the bed, were a collec­
For permissions, please e-mail: journals.permissions@oup.com
tion of members of Mitzi's primary caregiver network, includ­
doi:10.1093/mtp/miu040
Advance Access publication February 10, 2015 ing her husband Gerry), their two teenaged children (Danielle
Music Therapy Perspectives, 33(1), 2015, 53-62 and Alex), her parents (Ed and Margot), and her best friend
53
54 Music Therapy Perspectives (2015), Vol. 33

since childhood (Grace). These caregivers did not appear gath­ necessary framework and shape, but it lacked walls or insu­
ered explicitly for the scheduled music therapy session, but lation. I could wander in and out wherever I liked, but w ith­
rather as the type of spontaneous gathering that occurs when out rooms to indicate what tasks to complete and which tools
a loved one is actively declining. There was a pronounced to use, I was adrift.
presence from those present in the home; all, including Mitzi, I came to find spiritual grounding in the rituals that my imme­
were in the master bedroom, with nobody lingering in the diate and extended family developed around each holiday (as
hallway or in another room. There was a collective effort to opposed to rituals developed in response to each holiday). In
not only be with Mitzi but be with one another, to function as this way, Jewish rituals became American in flavor and prac­
a unit with the apparent motivation to support each other in tice. This meaningful engagement with family was my access
the same way they looked to support Mitzi. point to religion, and my understanding and perspective of
After checking in with each of those assembled, I positioned religion was colored by this engagement. While this created
myself next to Grace in a manner that allowed me visual and further distance between me and the "traditional" traditions, it
empathic access to all. This physical positioning in relation offered me ownership over my faith and my practice as these
to Mitzi and her gathered loved ones connected me to my adopted rituals came from practice that I was now involved
emotional and spiritual positioning to them as well. My back­ with. I stopped being a museum observer and became a prac­
ground as an American Jew and as the son of a breast cancer titioner. As I grew older and my spiritual beliefs became more
survivor, all of which customarily silently inform my clinical eclectic and diverse, I held on to the Jewish traditions that pro­
role and decision-making, rose to the surface and directly vided me an emotional closeness with my roots and practices
colored my experiences in this session. The emergence of to share with those around me. The blend between Judaism
these roles challenged me to use them to assist Mitzi and her and Americanism manifested here, and I developed ways to
family in their growth in the same way these roles had assisted further develop family-centered and Jewish-informed spiritual
in my own. practice.
In addition to these spiritual/cultural roles, I am the son of a
Epoche breast cancer survivor. My mother was diagnosed with Stage
I found myself, to a significant extent, sharing in this family's I breast cancer at the outset of my senior year of high school.
spiritual/cultural expressions and expectations. This overlap There were multiple ways for me to respond to the situation:
elicited strong countertransferential feelings related to (a) my I could have been highly involved in relieving household
own role as caregiver in my personal life and (b) the influence responsibilities for my mom while she underwent radiation
of my cultural psychology in my understanding and approach treatment, or at least demonstrated an empathy that imparted
to caregiving and death. These countertransferences in turn to her the concern and love she would naturally expect from
positioned me to understand the work with Mitzi and her fam­ her oldest son. However, my response was to disconnect out
ily from a contextual stance such as ritual drama. I share the of a fear of directly engaging with this potential loss. Our fam­
following to indicate the extent of my overlap with this family, ily communication skills at that time were lacking, and while
to assist readers in positioning themselves as I was positioned there was much love in our home, it lacked the focus or clarity
during this session, and to provide the background necessary needed in order for any of us to offer each other the necessary
for my understanding of Mitzi's death and her loved ones per­ support. It was not until a year after remission that I recog­
formed roles to be contextualized. nized the extent to which I had placed my needs as a caregiver
I am an American Jew who best fits within the over the needs of my mother as a care recipient.
Reconstructionist Jewish community. I practice the Sabbath Given this, while sharing in a space comprised of loved
by filling my Saturday mornings with all the tasks I could ones supporting one another, my countertransference was the
not accomplish during the week, but not without guilt. I use re-experiencing of a son's guilt who was unable to do the same
words like mensch and chutzpah with an ironic tone but fully for his loved ones. This lived connection with the intimacy
purposeful intention, employing the language as an effec­ of caregiving would help attune me to these themes as they
tive means to communicate but not without awareness of my emerged in this session. Similarly, the shared spiritual/cultural
detachment from the Jewish communities those terms origi­ background with this family keyed me into the embodied roles
nated from. I practice and observe holidays with a religious and implicit cultural practices at play within the session, and
detachment but spiritual commitment. To be Reconstructionist provided me insight that these powerful forces are always
is to engage in this balancing act of identification between in play.
traditions informed by religious teachings and spiritual con­
structs that do not readily connect with traditional concep­ Ritual Drama in Therapy
tions of God. Death at the most fundamental of levels, regardless of belief
I grew up in a religiously mixed household, wherein structures and postlife constructs, is a transition from one state
my mother's Jewish traditions became the traditions of our of being to another. Be it the soul or the matter comprising the
family. Raised with a Jewish education unaffiliated with a body, our lived existence transitions to a postlife existence,
synagogue, I was transplanted into an odd spiritual purga­ transforming those elements that comprise the tangible and
tory: educated on traditions that I never practiced trained in intangible facets of the Self. As relational beings existing in
prayers I never recited in services, morally shaped by biblical interactive systems, this transformation does not occur in a
lessons I never lived, and adopted into a culture I was bet­ vacuum. Death impacts the impossibly convoluted web of
ter acquainted with through media depictions than shared relations that encircle even the most isolated of individuals.
experiences. My spiritual home was constructed with the As such, caregivers are either willing, unwilling, or resistant
The Role of Music Therapy and Ritual Drama in Transformation During Imminent Death 55

participants in this end-of-life transition. W ithin the same In sharp juxtaposition to the ocean of gray that is the dying
process, they are challenged to transition alongside the care and prebereavement-into-bereavement process, the manner
recipient. They know who they are in relation to the lived indi­ in which family and friends respond to their loved one actively
vidual, for example "M itzi is my wife and I am her husband," dying is often starkly black-and-white. For some, the actively
but are forced to acknowledge that this means of relating w ill dying process— marked by a cluster of symptoms that visibly
inalterably change w ithout their loved one's lived presence. indicate a transition is underway— means their loved one has
Ritual, defined as "part of a ceremony or ritual; done in already passed on. The dying individual is a dying body at
accordance with social custom or normal protocol" (Merriam- that point, as the soul has already detached from this plane
Webster n.d.), is primed to play a powerful role in therapeutic of existence and is merely waiting to be released from physi­
processes at the end of life by providing the necessary structure cal constraints. For others, the dying process is a time to slow
to capture, organize, analyze, and express these transitional pro­ down and be present, often for reasons not consciously known
cesses and resulting transformations. This structure is balanced at that time. In lieu of conscious motivation, there manifests
by rituals' inherent "opened" and "closed" characteristics: an instinctual draw to be bedside and to assist in the transition
Open parts provide enough fluidity so that participants from life to postlife.
can invest the experience with their own evolving and idi­ It is the search for ritual(s) that provides caregivers meaning­
osyncratic meaning. Closed parts provide enough struc­ ful roles to be embodied and performed. In a process rife with
ture to give safety to strong emotional components, pass uncertainty and the unknown (for, after all, no two deaths are
on important new cultural information, and give form to the same, and the only ones able to share what it is like to die
the actions. (Van der Hart as cited in Roberts, 2003, p. 6)
are already dead), these rituals provide the form that helps
Essential to this structure is the ritual's co-construction by caregivers determine their function. For families like Mitzi's,
therapist and client; this ensures that it is not viewed "solely used to a large measure of self-determination in their day-to-
from the perspective of what the therapist says about the rit­ day living, this offers the means to continue to actively pro­
ual, but...understood from the participants' experience of it vide care and feel engaged with both the process and their
as w ell" (p. 6). This situates the therapy process to utilize the loved one. This is one of the critical roles that music therapy
cultural, spiritual, and historical contexts of the session as a plays in end-of-life care, the construction and/or embodiment
context not only "for the work but also a context to be worked of meaning-based rituals that empowers caregivers to be not
w ith" (Stige, 2002, p. 113). helpless observers but active participants. The process enables
Central to any ritual is liminality. Liminality, derived from caregivers to function as spiritual and emotional shepherds for
the Latin word limen, or "threshold" (Ruud, 1998, p. 120), is their loved one as he/she transitions.
the point of transition in ritual. "Characterized by confusion,
ambiguity, and the dissolution of conventional meanings and Ritual Drama and Music Therapy
fixed points in life" (Ruud, 1998, p. 121), liminal states nurture Music therapy is a practice well suited for engaging c li­
the transformations that must occur in order for the ritual to ents in ritual dramas. Ruud (1998) and Stige (2002) have out­
successfully be completed. There are multiple layers of lim i­ lined the most thorough arguments for as much to date. Ruud
nality in a ritual drama capturing an end-of-life process. Some focused on the liminal components of improvisation in situat­
of these layers are unique to the situation, but some are shared ing music therapy as a parallel to ritual: "Musical improvisa­
across all situations: the dying process, the death itself, car­ tions may be thought of as part of a wide-ranging transitional
egiver identity in relation to the hospice patient, and caregiver ritual— as an experience of liminality. Both rituals in general
identity in relation to the now passed hospice patient. and more specific rites of passage appear with many contexts
Ritual dramas can be understood as the performance of and on many levels both in the jazz world and in music ther­
ritual's intersubjective practices to accomplish communally apy" (p. 121). Stige, in contrast, painted a broader stroke. He
based needs, tasks, or functions. Turner (1979) noted that "to first defined music as a "situated event and activity" and as
perform is to complete a more or less involved process rather "sound-in-time, organized as culturally informed expressions"
than to do a single deed or act" (p. 82), asserting that the of human musicality (p. 82). W ithout this contexualization,
performative function of ritual is as essential as the customs music becomes unattached to human ontogeny, or develop­
that comprise it. Rituals are grounded in cultural, religious, ment. Stige extended this definition of music to conceptualize
communal, and/or personal histories, and the performance of music therapy as "situated practice-, as health-related rituals
a ritual is steeped in both these historical meanings and the embedded in culture and enclosed social contexts" (p. 208).
specific context in which the ritual is being performed. The Here, music therapy is not integrated into a ritual drama;
context functions as a modifier to the historical demands of music therapy is ritual drama.
the ritual, infusing the ritual with relevance for the present Complementing these explicit explorations is scholarship
proceedings. In end-of-life care settings, the clinical context that can be used to draw further meaningful connections
is frequently structured by the efforts of the hospice patients' between music therapy and ritual drama. One potential theo­
social network to say good-bye in a meaningful and person­ retical ground for this integration can be found in Kenny's Field
able manner (Clements-Cortes, 2010), lending itself well to of Play model of music therapy, which "envisions the aesthetic
performed rituals that can facilitate such a process. field as a defined yet open space, allowing for ritual (stabil­
To be present with another through the lim inality of im m i­ ity, routine) and creative process (change)" (Carroll, 2010,
nent death is, frequently, to be engaged in a ritual perfor­ Envisioning the Field of Play section, para. 4). This model is
mance that facilitates the experience to address end-of-life constructed from music's ability to shift in and out of melo­
themes such as release and acceptance (O'Gorman, 1998). dies, harmonies, rhythms, and timbres to meet the evolving
56 Music Therapy Perspectives (2015), Vol. 33

needs of the situation. Lyrical themes, which were important integration with this new plane of existence with a new bodily
in the realization of this particular ritual drama, are similarly and spiritual form in place.
malleable, as they move with the performance of the musical Within this three-stage process, three overarching themes
elements that they have a symbiotic relationship with (Turry, emerged: (1) Control/Resistance, (2) Contact/Release, and (3)
2009). Permission. Concurrently, three emergent cultural, spiritual,
Burgeoning explorations of performance in music therapy and historical contexts informed these themes: (1) Cancer
(Baker, 2013; Day, Baker, & Darlington, 2009), particularly (in America) and Survival, (2) Judaism and Survival, and (3)
within the community music therapy paradigm (Aigen, 2004; Judaism and Death. These contexts weaved in and out of these
Soshensky, 2011), have uncovered the importance of own­ themes, shaping them and infusing them with meaning. The
ership, expression, and creation in the therapeutic process, performance of these themes and the embodiment of these
features similarly important in ritual dramas. As individuals contexts within the music process will be explored alongside
explore new identities within the ritual drama's liminality, the one another in order to capture and embrace the unique com­
malleability of the music allows for an embodiment of these plexities of this ritual drama. While presented sequentially and
identities by (a) evoking intrapsychic emotional content, (b) in pairs for the purposes of this case study, therapy is a nonlin­
attuning to their expressive needs, and (c) creating a container ear process with frequent transitions moving in multiple direc­
safe for experiencing that content in a meaningful way. tions, forming more of a web than a smooth developmental
curve. The general contour of the experience will be shown,
Ritual Drama at the End-of-Life but readers are advised to be mindful that these themes were
Van Gennep's (1960) three stages of ritual drama—separa­ not exclusive to the stages they are aligned with here.
tion, liminality, and reintegration— w ill be used to structure the
drama that emerged in the music therapy process. In the first Act I: Separation
stage, separation, "the ritual passenger must leave behind the
symbols and practices of his or her previous position" (Ruud, Context: Cancer (in America) and Survival
1998, p. 120). Contextualized to this session with Mitzi, those Cancer has been a pervasive issue for Americans over the
gathered were invited to embody a new state of being by course of many decades. A poll in 2011 showed cancer to
engaging directly with Mitzi's dying process, not as caregivers, be the most feared disease in America (41% of respondents)
but as husband, son, father, mother, and friend. These primary (Harris Interactive, 2011). While a more recent poll showed
roles were essential because it was through them that their Alzheimer's to be the most feared, with cancer coming in sec­
relation to Mitzi's living presence was defined, and it would ond (Home Instead Senior Care, 2012), cancer was similarly
be similarly through them that they could best transition with relegated to second in the 1980s, when AIDS awareness rose
Mitzi, and ultimately separate from her, as she died. Much to prominence. Regardless of its exact ranking, it is clear that
how an accordion only functions with movement toward cancer is well entrenched as one of our most feared diseases,
and away, meaningful prebereavement and grief requires an and demonstrates the extent to which it is engrained in the
attachment to and ultimate separation from the dying. American conscious.
This facilitated movement into the second stage of lim i­ As a result, cancer has been subject to an onslaught of narr-
nality, "a period of transition in which the ritual passenger ativizing dominated by metaphors. The benefits of metaphor
is in a twilight zone between the old and the new worlds, as a means for the individual to capture his or her experience,
a period of ambiguity, perceived danger, and the absence "restorify" it(Leavy, 2010), and derive individualized meaning
of roles" (Ruud, 1998, p. 120). For Mitzi's caregivers, this and value from it is well documented in the literature (Bowker,
was when they began their movement toward their pending 1996; Erwin, 2009; Raup-Kreiger, 2007). A sense of control
roles that would be defined by the absence of Mitzi's current and grounding in one's recovery can be accomplished via
physical state. An important feature to this stage is the pres­ authentically constructed narratives (Knof Newman, 2001).
ence of a guide, or a shaman, to assist with the transition Narratives can, however, function as "two-edged swords"
and exploration of these new identities (Roberts, 2003). The that are "(a) fundamental to individual and collective expres­
music provided a medium through which these transitions sion, but (b) may be negative forces, creating confusion, ste­
could be explored, and the musicking, as w ill be further dis­ reotype and stigma" (Czechmeister, 1994, p. 1227). Narratives
cussed, supported embodiment of their unfolding identities. infused with externally developed and applied metaphors,
As such, my capacity as a music therapist fulfilled this role of as opposed to those internally developed and nurtured, can
facilitator. obscure the Self from an authentic illness experience. These
The third stage of reintegration is when "the ritual pas­ external metaphors can be appreciated and acknowledged by
senger is reintroduced into society, but this time in his or her individuals but not owned. In these instances, narratives cease
new position" (Ruud, 1998, p. 120). This was the caregivers' to be the expression of the individual story, instead trans­
entrance back into the world with these new identities in forming into overarching predetermined narratives meant to
place. While Mitzi did not die in that session thus delaying encompass a group experience.
the birth of these new roles, the framework for these identi­ Ironically, these predetermined narratives, having blocked
ties was in place for when the inevitable death occurred. It is the individual from owning his or her unique experience,
important to acknowledge the parallels of this caregiver pro­ can result in a sense of detachment from oneself and one's
cess with Mitzi's own process of detachment from this plane surroundings. Instead of individuals using narratives to exert
of existence, her transition into her postlife construct, and her control over their unique disease and wellness processes, the
The Role of Music Therapy and Ritual Drama in Transformation During Imminent Death 57

narrative(s) exert control over those who use them. In this light, by emphasizing what they should experience, roles can be
the group dictating the narrative is, in fact, exerting control pre-assigned to those experiencing the disease process differ­
over the individual (Ehrenreich, 2001). These dangers were ently. Similarly pre-assigned actions can be at odds with the
evident as far back as 1978, when Sontag insisted that "the demands of the situations.
most truthful way of regarding illness...is one most purified of,
most resistant to, metaphoric thinking" (p. 3). Theme: Control and Resistance
The metaphors most pervasive in and around the cancer These metaphors of "w inning" and "losing" were very much
community are martial. W ithin these martial metaphors, can­ present in the psychosocial dynamics around M itzi, though
cer becomes a battleground between the Self and the disease, the advanced nature of Mitzi's disease had transformed the
and it is a fight to see which entity survives (Harrington, 2012). narrative into one of guilt, dominated by statements begin­
W illiam s Camus (as cited in Harrington, 2012) provided a full ning with "I should have" and "I could have." This was most
illustration of how this narrative unfolds: evident in prior discussions with Jerry, who would frequently
After the cancer's invasion of the body, the immune sys­ return to the regret that he had not pushed for one more round
tem launches an offensive to beat the disease. The army of aggressive treatment. This represented a clinging to Mitzi's
o f killer T cells and stealth viruses fight the tumour cells. living physical and spiritual presence out of a selfish need to
However, this is not enough to wipe out or eradicate the rectify what has been conceived as an erroneous decision.
invader completely, especially if it has spread throughout Mitzi's death, at this point in the ritual, would represent a fa il­
the body becoming lethal. Thus, a bigger arsenal o f weap­
ure on the part of Jerry to have cured, and saved, her. It took
ons, consisting of magic bullets and blunt instruments, tar­
get the enemy. If the cancer is still resistant to the cancer­ the actions of Mitzi's father, Ed, to initiate movement toward
fighting tools, other weapons are injected to attack the an initial separation from M itzi.
disease or to boost the body's own defences. This attack As he did during the assessment the week prior, Ed
may eventually lead to defeating the disease although it requested "You Are M y Sunshine" at various points through­
also involves serious side-effects as healthy cells are also out the session. The lyrical content of this song— at once
destroyed by the weapons. When an individual "fighting" sweet and melancholy, grounded and w istful— resonated
cancer dies, they have "lost their battle". When the indi­
w ith the childlike melodies, and I found my voice naturally
vidual's cancer goes into remission, they have "won their
battle" and are dubbed a "cancer survivor", (p. 409) assuming a higher tim bre to embody this role as "child." This
was necessary in lieu of his child's voice not being available
These explicit terms are frequently used in our cultural dis­ to sing.
course and are further perpetuated by their use in mainstream
You are my sunshine, my only sunshine
media reports. Left unspoken w ithin these discourses, how­
You make me happy when skies are gray
ever, is the prominent subtext that every battle has a winner You'll never know, dear, how much I love you
and a loser. Nobody would take issue with the im plicit label Please don't take my sunshine away
of cancer as a "loser" in the event of remission, but what does
it mean when the "loser" is the individual who dies because "You Are M y Sunshine" was symbolic of two dialectics: (1)
of cancer? Does that make them weaker or less fit than the Control/Release and (2) Resistance/Acceptance. The first
"winners" who survived? Does that make them more deserv­ dialectic was the family's active pushback against accepting
ing, from a spiritual vantage point, of "losing" than those who the pending reality that their loved one had approximately
have "won"? 24-72 hours left in this life and the challenge to be fu lly
Ehrenreich (2001) derisively labeled this potentially experi­ present and supportive for her through that transition. The
ence-narrowing narrative as "brightsiding." Brightsiding treats childish features of the song had set the stage for this con­
breast cancer as if it were "a rite of passage— not an injustice frontation w ith reality through an intersubjective regression
or a tragedy to rail against, but a normal marker in the life wherein M itzi's father was interacting w ith M itzi not as a
cycle, like menopause or graying hair" (p. 47). It is an aggres­ helpless bystander observing an ill individual but as a pro­
sive movement to normalize a potentially life-threatening dis­ tective parent watching over his daughter in sickness and
ease, a movement so extreme that to experience the complex in health. As DeNora (2012) noted, "It is more fruitful to
emotions that would accompany diagnosis and treatment is conceptualise of wellness and illness as mercurial, not only
marginalized and potentially labeled as "defeatist" or "selfish." fluctuating along a continuum of 'good' and 'bad' times, but
From this perspective, the mindless triumphalism of "sur- also bundled together, coexisting at any moment as a mix of
vivorhood" denigrates the dead and the dying. Did we who wellness/illness" (p. 93). Engaging w ith the individual as the
totality of their person rather than by a singular physical or
live "fight" harder than whose who've died? Can we claim emotional state situates the caregiver away from "fixin g" and
to be "braver," better, people than the dead? Why is there
toward "witnessing."
no room in this cult for some gracious acceptance of death,
when the time comes, which it surely w ill, through cancer One of the most important tasks of caregivers at the end of
or some other misfortune?...I w ill not go into that last good life is to bear witness, the art of being present and patiently
night with a teddy bear tucked under my arm. (p. 53) "being" w ithout "doing":

Life-threatening diseases always retain the potential to be Witnessing is bound to the fact that "the face of the other"
aggressive and unpredictable, and because no two disease awakens a responsibility and a wish to care for him. Being
a witness entails being able to see the other and admit
processes w ill be alike, therein lies the danger of a broad and
what his face means, by facing him in his vulnerabil­
generalized narrative indiscriminately applied to all situa­ ity. The other calls you to responsibility for his welfare.
tions. At the danger of narrowing what one could experience (Arman, 2007, p. 85)
58 Music Therapy Perspectives (2015), Vol. 33

The other night, dear, as I lay sleeping contrast to the previously present external narrative around
I dreamed I held you in my arms fighting and surviving, her family began their separation from
When I awoke, dear, I was mistaken her earthly, tangible presence and began their movement into
And I hung my head and I cried the liminality of transformation.
In order to be in a position to receive "the face of the other,"
Act II: Liminality
Mitzi's loved ones needed to move outside their need to change
the situation and move inside Mitzi's need to be supported dur­ Context: Judaism and Survival
ing this period of transition. Turner (1984) understood such a It is easy to imagine, even in a general sense without much
transition to be a "betwixt-and-between condition...a liminal context, the difficulty of sitting vigil with a loved one while he
phase of seclusion" (p. 21) that presents with significant chal­ or she is actively transitioning at the end of life. To fully under­
lenges but offers opportunities "for the emergence of a soci­ stand the depth of such an experience, however, requires a
ety's deepest values in the form of sacred dramas and objects" contextualization of the emotional, spiritual, and relational
(p. 22). Here, within the known and predictable melodic and factors informing those experiences and, ultimately, infusing
harmonic structure of "You Are My Sunshine," the family was them with meaning. As Jews, the loved ones gathered around
able to lyrically express those "deepest values," namely the Mitzi had embodied implicit and explicit Jewish expectations
desire for Mitzi to survive and persist as Jews always have. My and practices at the end of life, and the performance of these
shared spiritual roots with them, while intellectually known embodied death and dying customs organically manifested in
before, became a lived experience in these moments; I moved the aesthetic experiences of the music therapy process (the
with their struggle to let go and separate. same can be said for American culture, which will be explored
I'll always love you and make you happy further below).
If you will only say the same Death and dying is a difficult subject for contemporary Jews,
But if you leave me to love another, due to the strong survival instincts that have manifested over
You'll regret it all one day time in the Jewish community. The way one dies is reflective
The second dialectic grew out of the emergent survival of how they have lived, and chronic illness or severe disability
instinct (this created a bridge to Act II, as w ill be seen below). "reveals much about how a culture conceives life in time"
Having confronted their "deepest values" of survival, the gath­ (Mattingly, 2000, p. 1). The "life in time" for contemporary
ered caregivers were challenged to release themselves from Jews has been an adopted tradition of centuries of persecu­
the need to control the situation: cure Mitzi's illness and fully tion made contemporary by the Holocaust and the culture of
ease her discomfort, and by extension release Mitzi from hold­ "Never Forget" that manifested in its wake. As a result,
ing on to a life that was slipping away. Present in my mind death is an adversary to be defeated at all costs. In this
at that point was a discussion I had with Jerry two days prior view, to be Jewish is to fight valiantly to the end, regard­
to this session, during which Jerry processed feelings of guilt less of circumstances. Death, when it finally comes, is
about decisions made related to her treatment. He acknowl­ viewed as a kind of defeat, a capitulation to an enemy.
edged second-guessing their jointly made decisions about (Eilberg, 2012, pp. 375-376)
when to be aggressive and when to pull back, and discussed
Much of Jewish history is defined by the withstanding of
feeling as if he should have asserted himself more in encour­
aggressive and violent acts. These experiences have been
aging the aggressive treatment. Here, Jerry had assumed the
immortalized in holidays such as Passover, Channukah, and
role of "general" or "field commander," and was experiencing
Purim, so that one eye may gain perspective on the lessons
acute guilt at not having "done more" in pushing for contin­
of the past while the other eye looks warily into the future
ued treatment and accepting defeat. This guilt was a product
with gained wisdom. So abundant are these celebrations of
of an intersection between this earlier narrative of fighting
escape from genocidal threats that a common contemporary
and the emergent narrative—the one he was sensing but not
joke among secular Jews is that all Jewish holidays share the
actively acknowledging—of letting go.
theme of "They tried to kill us. We survived. Let's eat!"
With a previously unrevealed yet still unspoken narrative of
A society exposed to such recurrent conflicts cannot help
survival having been drawn out with "You Are My Sunshine,"
but be shaped by them, and for the Jewish people, that shap­
I moved into several songs, including "Danny's Song" (Kenny
ing manifested in an aptitude for survival and a related pre­
Loggins) and "You've Got a Friend" (James Taylor), that har­
occupation with the various dimensions of that survival. The
bored themes of being present and supportive by "being"
Jewish preoccupation with survival is such that there is debate
without "doing." This "being" was of the greatest comfort for
about the very nature of this persistent survival in the face
Mitzi at this stage in her disease process, and could be pro­
of centuries of persecution (Mizrahi, 2012). Of greatest rel­
vided by an empathetic interpersonal presence that would
evance to this discussion is Goldstein's (2010) position that
hold her as she was, not as they wished her to be.
survival, instead of being a gift bestowed upon a chosen peo­
When you're down and troubled and you need ple (Kelemen, 1990), was a way of life developed through the
a helping hand fostering of unique skill sets and cultural values that empow­
and nothing, whoa, nothing is going right. ered Jews to persist in the face of ongoing threats.
Close your eyes and think of me and soon I will be there
The Jewish community learned that survival was not predi­
to brighten up even your darkest nights.
cated on challenging their aggressors' with reciprocated vio­
Here, in connecting with the non-idealized Mitzi with an lence and physical threats. Rather, they learned to "emotion­
internal narrative developed around acceptance and love in alize" these threats by fostering a dogged tenacity, dry and
The Role of Music Therapy and Ritual Drama in Transformation During Imminent Death 59

self-deprecating sense of humor, and heightened focus on the individual is engaged in relationship completion with the
meaning of suffering (Boteach, 1999). As a result, the Jewish dying. The functions of the shomrim are an extension of the
people exchanged the development of physical traits that physical, emotional, and spiritual care afforded to the dying
would pose a direct challenge to an enemy's physical domi­ individual. Maintaining these acts of love and compassion can
nance for the development of professional skills that have be challenging for the longtime caregiver, for whom they have
allowed unique niches to be carved out in a diverse array of turned into mechanical tasks, tasks because they are done only
communities. with goal, not process, in mind, and mechanical because they
This cultural psychology manifested in delicately inter­ are completed by rote with minimal humanistic compassion.
woven living symbols, "a reality distilled" (Wouk, 1959, Thus, assisting Mitzi's caregivers to connect in their pri­
p. 26), which provided form and function to embody those mary roles as husband, son, father, mother, and friend (the
values and practices developed for survival. These symbols roles through which such love and compassion manifested)
have functioned as guideposts, directing the diverse Jewish was integral in helping them connect with Mitzi as a sacred
community in collective movement toward the shared goal. being whose time was ending, as opposed to a source of sad­
Perhaps no Jewish ritual captures this symbolic expression ness and suffering that made engagement with too unbear­
of survival more powerfully and succinctly than the Passover able. By receptively and recreatively engaging—that is,
Seder, the annual commemoration of the Jews' improbable through active listening and live musicking of precomposed
freedom from slavery in Egypt. From the timing of the cer­ songs (Bruscia, 1998)—with "Danny's Song" and "You've Got
emony at the blossoming of spring to the intricate semiotics a Friend," Mitzi's loved ones embraced the fullness of their
of the Haggadah and Seder plate, Passover expresses through roles through the blending of laughter and tears while shar­
metaphor and analogy the rebirth and renewal common to all ing stories. When silence would manifest, I would encourage
Jewish holidays. them to sustain both their engagement with Mitzi and their
This rebirth is an important component to the survival stories embodiment as shomrims through encouragements under­
that inspire Jewish celebrations. If survival was simply about scoring Mitzi's receptivity to expressions of love, letting go, or
scratching and clawing to merely exist, then the community physical support.
would die out from chronic stress and existential fatigue. For Of great importance during this phase was the sensorial
survival to be meaningful, it needs to be about thriving as well, anthropologies that influenced the manner of sensory engage­
and this is what Jewish holidays look to celebrate. The perse­ ment each caregiver would assume with Mitzi (Howes, 1991).
cution is commemorated, but it is the thriving, the renewal Of note was Jerry's initial reluctance to be physically present
of a way of life, that provides fulfillment and meaning. This is with his wife. It required several prompts of encouragement
reflected in the traditional Jewish teachings on death that wel­ for him to tentatively approach her bedside, a sharp shift
comed death as a natural occurrence (Eilberg, 2012). from my observations of him the prior week, when he was
At the end of life, these survival instincts become particu­ exceedingly affectionate with Mitzi and was gentle even when
larly pronounced. In this drama, the first manifestation of needing to be firm in his physical redirections. Jerry had fre­
these instincts occurred as the family explored how to simul­ quently remarked on the beauty of Mitzi prior to her cancer,
taneously make contact with Mitzi and say good-bye as she and being with her affected body, so weary and worn from
transitioned. Both of these phases—contact and tra nsition- its travails with the physical and emotional toll of the disease
are essential to survival. They facilitate movement through the and its attempted cure, in this last chapter may have felt odd
experience, and help avoid an existential stagnancy as a result or out of place. My countertransference was activated in these
of remaining stuck in a state of perpetual grief, or denial that moments. My investment in assisting Jerry to connect with
grief is occurring. Mitzi became personal, as I attempted to compensate for my
emerging guilt at not having been similarly present and mind­
Theme: Contact/Transition
ful for my mother. As I came into contact with the emotional
Maintaining an active presence with Mitzi through her distance I experienced at that time, this countertransference
decline was a manifestation of the ritualistic practices of kevod attuned me to Jerry's similar emotional distance.
ha-met, the honoring of the dead, and Judaism's view that "the In response to this insight, I moved on from the supportive
human body is one of the miracles of Creation," a "rever­ verbal prompts that Jerry was well defended from and used
ence" to be continued into death (Diamant, 1998, p. 52). Of the music to facilitate a meaningful interpersonal connectiv­
note, following death, traditionally one or more shomrim, or ity. The music evoked strong emotional responses: expressions
guardians, stay with the body at all points to and from the of love, stories of remembrance, and physical affection that
house or hospital, to the morgue or funeral home, and finally expressed more than any words could. With this emotional
graveside, but given contemporary practices of managing the energy now freed from the psyche, the music's task was to
dead (including refrigeration), there are modifications made create a supportive aesthetic container that would allow those
as needed (Diamant, 1998). Much like Charon, the ferryman gathered to directly engage with this emotional content in
in Greek mythology who transports souls to the afterlife, the efforts to construct meaningful experiences. To accomplish
shomrim's importance is tied not only to the maintenance of this, I adjusted my vocal qualities "to reach, to stretch around
this connection but also to the facilitation of release once the and encompass, to contain and ground the energy of residents
function of this contact is fulfilled. and to create a feeling of safety" (Cadesky, 2005, p. 208).
Becoming a shomrim is not a quick transformation that Jerry did not resist this container, and moved with the music
occurs due to mere circumstances. It is an embodied role that began within him and found a resting space within her.
first assumed during the prebereavement process, when the Holding her hand and softly singing to her as I gently supported
60 Music Therapy Perspectives (2015), Vol. 33

both with guitar and voice that was shaped around this emer­ cultural practices, and pressures to emphasize the uniqueness
gent dyad, he neither left her side nor disrupted physical con­ of Judaism to Americanism (Magid, 2012). Thus, the challenge
tact for the duration of the session. Kenny (1989) understood for Jews is to accept that death is inevitable and beyond mortal
the aesthetic as "a field of beauty which is the human person" control. At the end of life, when an end to struggling against
(p. 75), and here the aesthetic process was the entry point for physical decline becomes clear, those individuals and their
Jerry to acknowledge her full beauty. Jerry had assumed his caregivers are assertively confronted with resolving and/or
role as shomer and, at this point of deepest connection with moving through this emotional and spiritual suffering to avoid
his beloved partner, was also at his most ready to let both her, becoming stuck.
as an earthly presence, and himself, as a husband, go. The This was one of the realities I was most acutely confronted
transformation into shomrim was the liminal stage of moving with at the outset of this session. Mitzi required the permis­
from "husband" to "widower." sion from her loved ones to transition into her afterlife and the
assurance that they would persist. End-of-life trajectories can
Reintegration vary wildly, even during the phase of imminent death when
the body is actively preparing for death. It is not uncommon
Context: American Jewry and Death for those lingering to wait to pass until a moment of privacy in
There are clear overlaps between the Jewish fight for sur­ their room or until a loved one has found acceptance or peace
vival and the individual with cancer's fight for survival. Both with the inevitable outcome. An expression of this permission
frame the discourse in black-and-white terms that establish and a conveyance of this assurance would need to come from
all-or-nothing outcomes. By heightening the stakes in such a her partner in life who had fought so hard for her survival.
manner, they are increased by stakeholders in order to influ­ From Jerry's end, he was experiencing not only guilt for not
ence potential stakeholders. In other words, for an older having "fixed" his wife's cancer, but grief for the lost promise
Jewish generation that fears the loss of traditions and cultures of a life imagined for himself and his family in the years to
that were of importance for them growing up, framing mar­ come. The future now facing them left Jerry at a loss for his
riage as a means of protecting the "purity" of Jewish genetics role: "I've done my job as their father. They know right from
is meant to evoke the survival instinct in the younger gen­ wrong and my son knows how to respect women. They need
eration. And for cancer foundations that seek the membership their mother now."
that improves their community standing and annual revenue, Denail or avoidance may manifest in the absence of accept­
evoking a martial metaphor that "recruits soldiers" in the "war ance, but no intrapsychic defense w ill stop the inevitability of
against cancer" instills a feeling of duty and responsibility in role transformation initiated by death. Literature on meaning­
both cancer survivors and those who have yet to be diagnosed making at the end of life indicates a wide variety of needs that
but fear it nonetheless. includes developing a sense of normalcy (Munn et ah, 2008),
As Jewish identity becomes more inextricable with an reconciling desired end goals with realistic outcomes (Norton,
American identity, these values may not only intermingle but 1999), dying a "good death" (Vig & Pearlman, 2004), foster­
also fuse, strengthening the traits of each (Boteach, 2012). It is ing spiritual well-being (MagiII, 2009; O'Callaghan, Hudson,
this social chemistry experiment that has created a communal McDermott, & Zalcberg, 2011), and engaging in relationship
construct of perpetual struggle, one Boteach characterized as completion (Clements-Cortes, 2011). These represent struc­
the Jewish "obsession" with the Holocaust: "An outsider who tured tasks that cast light on pathways that lead out of suffer­
studies modern Jewry and its education institutions would be ing toward fulfillment.
forgiven if he concluded that before the Holocaust nothing
of significance ever took place in Jewish history" (p. 134). Theme: Permission
Coupled with the Christian tradition of ennobling suffering A number of studies have explored the processes of letting
as a source of wisdom and growth that has percolated into go and saying good-bye at the end of life (Broom & Kirby,
Jewish thought through assimilation, Boteach lashed out, not 2012; Clements-Cortes, 2011; Heyland et ah, 2006; MagiII,
against integration or remembrance, but at the glorification of 2009), and its importance cannot be overstated. For the dying
suffering: individual, it is one of the last meaningful acts they will com­
In Judaism...suffering is not central to redemption. Any plete in this lifetime. For caregivers, giving permission to that
appraisal of suffering leads to the undeniable conclusion individual to let go and transition into their postlife is the
that suffering leads to a tortured spirit and a pessimistic final, and perhaps most important, gift that can be given to
outlook on life...There is no good thing which comes the one they love. In grief, Judaism developed ritualistic acts
through suffering that could not have come about through
of letting go that empowered healthy bereavement. Such ritu­
some more positive means, (p. 135)
als do not exist in the Jewish culture for the dying process,
In contrast to this contemporary cultural psychology, tradi­ a phase quite distinct from the death itself. The setting was
tional Jewish teachings advocate for an embracing of death's challenged therein to explore means of letting go that would
role in the life cycle. Diamant (1998) recalled a parable in the enable a moving through the experience, as these iconical
Talmud that honored a rabbi's maidservant who distracted the signs advocated for.
rabbi's disciples long enough to allow his "soul to depart in In most humanistic/existentalist therapeutic processes,
peace" (p. 38). patience is a virtue as the therapist nondirectively supports the
Such teachings have been obscured by a contemporary client(s) to move toward solutions and ideas that offer them
urgency to survive, driven by the frequent recall of past the greatest value in context to the present issue. However,
transgressions against the Jewish people, calls to protecting in end-of-life work, the therapist is confronted with tempo­
the genetic pool and (by extension) traditional spiritual and ral limitations that force a more directive approach to ensure
The Role of Music Therapy and Ritual Drama in Transformation During Imminent Death 61

a healthier process. The aforementioned example of Jerry important moment of their acknowledging who Mitzi was and
establishing physical contact with Mitzi is one such instance. who she was to become in death.
Here, I recognized the need for all these loved ones to come This music experience found resolution in "Isn't She
together in collectively letting go of Mitzi, and allowing her to Lovely," Stevie Wonder's celebration of the birth of his daugh­
feel that release. ter. Within this song, Mitzi and her loved ones remained sus­
With the survivalist mentality rooted out and exposed to tained in a shared intersubjective space that balanced celebra­
allow room for a more accepting stance of Mitzi's decline, and tion and sadness for a life lived well and full. Engaging in this
with the establishment of meaningful aural and physical con­ song allowed for a similar celebration of birth to occur: Mitzi's
tact within the music experiences, the assembled caregivers birthing into her postlife presence and/or existence, and her
were in a position to say good-bye to Mitzi's body while retain­ caregivers birthing into the external world with their new
ing a sense of her presence and spirit. This meant adopting roles. Here, reintegration took root.
roles that were designed to accept rather than stave off death,
and to further the dying process in the interest of working with Discussion
the flow of nature and assisting Mitzi in her journey. These per­ Ritual drama has the potential to contribute a means of
formed roles carry with them an embodied significance that understanding, capturing, and expressing a deep, intersub­
communicates to both the individual and those around him or jective process of wellness and healing. This is a potentially
her their acceptance and readiness for this transition to occur important framework, given the difficulty of accurately con­
(Biesele & Davis-Floyd, 1996). veying a rich and full music therapy process. Ritual drama can
The role collectively established by this group of caregiv­ also help expand on the understanding of music therapy as
ers was one of a bard, eloquently recalling significant points a context-dependent practice infused with cultural, spiritual,
along Mitzi's timeline that comprised quilt squares to be and lived influences. Future consideration should be given to
stitched together into a comprehensive narrative about her applications of ritual drama in music therapy with different
life. A requested song with a title that contained Mitzi's real populations across clinical settings, and across different cul­
name was the entry point into this narrativizing. It allowed tural and spiritual contexts.
those gathered to connect with the Mitzi whose life and exis­ Ritual drama may hold additional benefits in other end-of-
tential meaning were defined by the totality of her experiences life care situations. Music therapy during imminent death is
rather than just her illness. particularly time sensitive, requiring a compressed process to
As they engaged with the fullness of her life, her father ensure a good death. A good death is one in which the indi­
recalled her birth and her time as a child; her best friend tear­ vidual readily releases from life as a resolved and actualized
fully recalled how they met and how their bond strengthened being. When a client's decline is not so acute and sharp, there
as they paralleled each other's life accomplishments into is more opportunity to allow a drama to unfold over two or
adulthood and middle age; Jerry told Mitzi (in response to an more sessions. Future applications of ritual drama in end-of-
earlier discussion we had together) that he was okay and he life settings should explore how ritual dramas may unfold dif­
would look after the family when she was gone; their children ferently over time, and clinical situations that would dictate a
listened and observed silently, absorbing the younger mani­ more decompressed process.
festations of their mother they had never known and perhaps Finally, music is a culturally informed medium that shapes
contemplating the unrealized future potentialities of their to the cultural, spiritual, and lived traditions that conceive and
mother that would never be known. Stewart (2004) noted that perform it. The meaning ascribed to music becomes more fluid
"different places on a personal-professional journey offer par­ and localized from this perspective, and less static and univer­
ticular ways of 'seeing' and finding meaning in experience. sal, as is often assumed. Ritual drama assists in highlighting
Each stopping point is a new context of time and place within the contextual dimensions of music and meaning-making, but
which the world...can be shaped and transformed" (p. 281). the contextual dimensions are not exclusive to ritual drama.
These stopping points that each loved one resided in within Music therapy practice stands to benefit from an increased
this experience were a witnessing of the fullness of Mitzi's life, sensitivity to this fundamental component of music.
an important aspect of letting go and giving permission at the
end of life (Kruse, 2004). Conclusion
What emerged most powerfully at this point were feelings Mitzi died two days after this session, as comfortable as pos­
of gratitude. "Gratitude is a way to celebrate who we are to sible, with no signs of terminal agitation and surrounded with
one another as well as to recognize the way our lives have the embrace of a family that had learned to hold her without
been fashioned and inspired by others" (Clements-Cortes, restricting her. I have reached out to the family several times
2011, p. 35). After a brief verbal reflection of this observa­ since and have been received with warm words but little wel­
tion and a discussion about a song(s) that could fully capture come, indicating that our ritual drama had come to a close
these feelings, "You Are the Sunshine of My Life" was selected. and that, upon their reintegration into the larger community
Unlike in previous music experiences, when some soft sing­ and their new reality, they did not require further music ther­
ing or humming was audible from at least one person, Mitzi's apy services.
loved ones were actively silent, intensely connecting with My own daily ritual of letting go is one of musical reflection
her through the song. I reflected this intensity in the song by in the welcomed privacy of my car. Following Mitzi's death,
repurposing the song's original peppiness and joy into a more I sang "Each Coming Night" by Iron and Wine in commemo­
solemn and reflective aesthetic through adjustments in voice ration of that which made Mitzi unique and special, and in
quality and guitar accompaniment. I chose to retain the cel­ honor of the familial, spiritual, and cultural contexts that she
ebratory characteristics, however, as I recognized this as an infused with meaning and vice versa. "Each Coming Night"
62 Music Therapy Perspectives (2015), Vol. 33

is a song I often use both personally and professionally, but Howes, D. (1991). Sensorial Anthropology. In D. H ow e (Ed.), The varieties o f sensory
experience: A sourcebook in the anthropology o f the senses (pp. 167-191).
found a special closure in creating, holding, and releasing the
Toronto: University o f Toronto Press.
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Kelemen, L. (1990). Permission to believe: Four rational approaches to God's exist­
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I am able to receive them and their drama anew, and I make Kenny, C. (1989). The field o f play: A guide for the theory and practice o f music
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Krout, R. (2003). M usic therapy w ith im m inently dying hospice patients and their
W ill you say to me when I'm gone
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