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School Reintegration For Children and Adolescents With Cancer
School Reintegration For Children and Adolescents With Cancer
46(7), 2009
C 2009 Wiley Periodicals, Inc.
Published online in Wiley InterScience (www.interscience.wiley.com) DOI: 10.1002/pits.20399
As a result of advancements in medical expertise and technology, children and adolescents diag-
nosed with cancer now have opportunities to participate in many typical activities, including school.
To some extent, school reintegration reflects positive adjustment to their illness. Nevertheless, chil-
dren and adolescents with cancer may experience consequences that result in problems with school
functioning and performance, along with other psychosocial difficulties. Accordingly, school per-
sonnel may not be equipped to appropriately intervene with this unique population of students.
One means of offsetting such consequences, and thus facilitating successful school reintegration,
is consultation between children or adolescents, parents and/or caregivers, school personnel, and
health professionals. The eco-triadic model of educational consultation may be useful as a means
of providing indirect and direct services to children and adolescents with cancer. This article pro-
vides a description of the model, describes the model’s application to school psychologists’ work
with this unique population of children, provides checklists to help guide school psychologists’
intervention throughout the school reintegration process, and highlights implications for school
psychology practice. C 2009 Wiley Periodicals, Inc.
Chronic medical illness, formally defined as illness that has no cure but is not necessarily
terminal, impacts up to 20% of school-age children, with a considerable portion of this population
being significantly affected (Sexson & Madan-Swain, 1993; Vitulano, 2003). Furthermore, it is
estimated that approximately 10% of these children’s medical illnesses may be classified as severe
(Wallander, Thompson, & Alriksson-Schmidt, 2003). One category of chronic medical illness among
children and adolescents is childhood cancer, which affects thousands of children across the United
States each year (ACS Cancer Facts and Figures, 2005). To date, childhood cancer is the fourth
leading cause of death by illness among children and adolescents ages 1 to 19 years, and is only
preceded by unintentional injury, suicide, and homicide (Pollack, Stewart, Thompson, & Li, 2007).
The incidence of childhood cancer peaks during the first year of life and is higher for children
younger than 5 years or older than 14 years. In fact, in 2005 alone, it was estimated that more than
12,000 children would receive some sort of childhood cancer diagnosis (American Cancer Society,
2005). An approximate breakdown of the most common diagnostic classifications of childhood
cancer reveals the following prevalence rates: leukemia (32%), cancers of the nervous system and
brain (18%), soft tissue sarcomas (13%), neuroblastoma (13%), and renal (Wilms’) tumors (9%)
(Ries et al., 1998).
Despite the percentage of children and adolescents affected by cancer, recent medical and
technological advances have afforded families the opportunity to pursue state-of-the-art medical
treatment for their children. Thus, improvements in treatment approaches have resulted in measurable
increases in long-term survival rates for children diagnosed with cancer (Ries et al., 1998). As a
result, children spend less time as inpatient recipients (i.e., within the hospital setting) of medical care
and have increased opportunities to experience a sense of normalcy and social reintegration outside
of the hospital setting. In particular, these children are able to reintegrate into their community school
settings.
Correspondence to: Mekel S. Harris, University of Houston, College of Education, Department of Educational
Psychology, 4800 Calhoun Road, Houston, TX 77004. E-mail: msharris2@uh.edu
579
580 Harris
parents, and school personnel provided support for the ecological validity of the intervention for
children newly diagnosed with cancer. In addition, “their empirical data [lent] support to the validity
of establishing [interdisciplinary] relationships when helping the student with cancer reintegrate into
the school system” (Shields, Heron, Rubenstein, & Katz, 1995, p. 185). One means of establishing
and maintaining such relationships is through ongoing consultation between and among all parties
involved in the child’s care throughout the school reintegration process.
interdisciplinary team, to coordinate the consultative relationships and, thus, help make the child’s
transition from hospital to school as seamless as possible. Clinical consensus (Brown, 1999; Edwards
& Davis, 1997) supports the notion that comprehensive school coordination for children with chronic
medical illnesses necessitates an interdisciplinary approach that includes caregivers; school person-
nel, including school psychologists; and medical staff. Furthermore, in a presidential address to the
Society of Pediatric Psychology, Brown (2002) discussed the importance of ongoing collaboration
among professionals interfacing with children with chronic illnesses and asserted the need for addi-
tional attention to the “reciprocal influences” affecting these children (p. 195). Such approaches to
school reintegration, according to these professionals, encourage decision making through joint col-
laboration and consultation among all members of the interdisciplinary team. School psychologists
are a vital component of this team and are in a unique position to facilitate and monitor the school
reintegration process. The eco-triadic model emphasizes development of consultative relationships
and provision of indirect services to the three ecosystems relevant to children with cancer: home,
hospital, and school.
Consultant–Hospital Relationship. The extent to which medical personnel are aware of func-
tioning within other ecosystems may afford them flexibility in medical service provision. For ex-
ample, medical personnel may be able to negotiate medical treatment or treatment schedules to
accommodate families struggling within the home environment. Similar outcomes may be possible
for children experiencing neurocognitive and/or social delays within the school context as a result of
intensive medical treatment. School psychologists play an essential role in communicating relevant
information to medical personnel in order to assist children and families. Conversely, school psy-
chologists must continually be aware of the hospital ecosystem and communicate children’s medical
concerns with children and their families, along with school personnel. Awareness of the course of
medical treatment and its associated risk factors is essential. For example, in the initial stages of
diagnosis, children with cancer may spend several hours per day in the medical setting, participat-
ing in various diagnostic and/or laboratory examinations, in addition to consultation with medical
personnel. As a result, they are likely to exhibit chronic absenteeism from school, which may affect
their reintegration into the school milieu and engagement with peers (Bessell, 2001). As children
with cancer progress through the intermediate and latter stages of their treatment, time spent in
the medical institution is typically reduced, although children may still have frequent and ongoing
visits with their medical teams. Again, school psychologists play a central role in sharing such
information with school personnel as a means of educating team members and planning appropriate
educational and psychosocial interventions. Katz et al. (1992) evaluated the effect of a school rein-
tegration intervention on parents’ and teachers’ ratings of childhood cancer survivors’ internalizing
and externalizing problems, social competency, and overall self-esteem when compared to a control
group of children. Throughout their intervention, emphasis was on (a) identifying children’s medical
diagnoses and addressing prognostic issues, (b) planning for possible short- and long-term effects of
treatment through collaboration with hospital personnel, (c) educating school personnel and class-
mates regarding the cancer diagnosis, and (d) delineating roles among school personnel. Findings
suggested that children in the intervention group experienced significantly less problem behaviors
and greater self-esteem and social competence following the intervention, thus providing poten-
tial support for the consultant–hospital relationship. School psychologists’ ongoing consultation
with medical personnel is important in the development and implementation of school reintegration
activities for children diagnosed with cancer.
et al., 2007). The disruption of these critical neurocognitive processes likely impedes children’s
learning and ultimately affects their educational performance. For example, Reeves et al. (2007)
discussed the prevalence of slow cognitive tempo (e.g., lethargy, disorganization, problems with
attention and concentration) and its association with lower IQ and achievement scores, particularly
in reading.
In addition to neurocognitive impairments, children with cancer may also have physical im-
pairments (e.g., visual or hearing deficits, problems with ambulation) that may affect their ability
to successfully navigate the school environment and, therefore, affect educational outcomes. For
example, they may experience bouts of limited physical strength and vitality, which certainly impacts
their ability to concentrate and effectively engage in classroom instruction. To this end, school psy-
chologists play an essential role in overseeing the implementation, ongoing review, and evaluation
of individualized education and health plans for this unique population of children.
children’s self-perception, cancer stressors, anxiety, and use of coping strategies among children and
adolescents ages 6 through 13 years. Results suggested that longevity of the cancer treatment and
the presence of a relapse were negatively associated with children’s self-perception and positively
associated with reports of anxiety. The institution of strategies to increase children’s self-perception
and decrease children’s anxiety may prove to be important.
Regular school attendance, which offers children opportunities for positive experiences, has the
potential to improve children’s psychosocial outcomes (Die-Trill & Stuber, 1998; Nessim & Katz,
1995).
Comprehensive
school
reintegration
program,*
education and
emotional
School support, IEP
development,
etc.
Communication
with classmates
Timelines for
and school return, family
personnel Medical regimen,
involvement prognosis, meds, etc.
Educational
Family Hospital
Consultant
Child
Medical regimen
Family concerns,
Family coping treatment regimen
mechanisms,
family
dynamics,
siblings, etc.
Successful school reintegration for children diagnosed with cancer is best facilitated by a
coordinated effort between and within home, school, and hospital ecosystems. Figure 1 highlights the
educational consultant (in this case, the school psychologist) as a central element in the consultation
process and reflects the dynamic nature of the relationships between ecosystems. For example, the
school psychologist’s relationship with the child involves (a) the provision of emotional support to
the child, (b) exchange of information related to the child’s cancer diagnosis, (c) discussion of the
child’s concerns regarding infection control, and (d) review of the educational and social implications
of school reintegration. Similarly, the school psychologist’s interaction with the child or adolescent
also involves an understanding of the child’s relationships with his or her family, medical team, and
community school. For example, the school psychologist should coordinate with school personnel
to help maintain the child’s relationships with his or her classmates, teachers, and other individuals
involved with the child at school.
Although not delineated in the schematic model, the child’s relationships with his or her family
and hospital personnel are significant relationships that cannot be underestimated. For example,
FIGURE 2. Checklist for the consultant–home relationship as part of the eco-triadic model of educational consultation.
children’s relationships with parents and/or siblings may be taxed, as each family member adapts
to the child’s illness and changes in roles within the family structure (Vitulano, 2003). Research
suggests that chronic medical illness frequently acts as a threat to the family’s sense of equilibrium
(Friedrich, 1977) and has direct implications on familial relationship patterns. An appreciation of
this dynamic process is essential to working with children and families dealing with the cancer
diagnosis. Along the same lines, school psychologists must also understand the interaction between
the child and his or her medical team, namely, related to the child’s understanding of his or her
diagnosis, acceptance of and adherence to medical treatment, and recognition of disease outcome
(La Greca & Bearman, 2003).
Although an understanding of the theory and basic framework of the eco-triadic model of
educational consultation is important, so, too, is the development and application of practical tools
for intervening within each ecosystem. This article provides school psychologists with checklists,
outlining points to consider as they interact with children with cancer, their families, hospital
personnel, and community schools. A review of the extant literature reveals a similar endeavor,
although the researchers provided only a general plan for school reintegration (Sexson & Madan-
Swain, 1993) or primarily emphasized the unidirectional relay of information from medical personnel
FIGURE 3. Checklist for the consultant–hospital relationship as part of the eco-triadic model of educational consultation.
to school-based educators (Deasy-Spinetta, 1997). The decision to highlight home, hospital, and
school contexts is based on the eco-triadic model’s discussion regarding the provision of services
within and among each of these three ecosystems (Shields et al., 1995). Furthermore, one means of
conceptualizing areas of consideration is in a threefold fashion, exploring issues prior to, during, and
after the child or adolescent reintegrates into the community school setting, which is consistent with
literature asserting the importance of evaluating interventions throughout the school reintegration
process (e.g., Power, DuPaul, Shapiro, & Kazak, 2003).
Figures 2 through 4 provide school psychologists with practical questions to consider at each
phase of school reintegration when interacting with the child’s family, medical team, and school.
For example, Figure 2 addresses issues related to the family prior to the child’s diagnosis, along
with current family functioning, considerations relevant to the child’s overall adjustment (Katz,
1980; Pless & Pinkerton, 1975). In addition, consideration of parental stress (Barrera et al., 2004),
parental understanding and acceptance of the child’s medical diagnosis (Vannatta & Gerhardt, 2003),
and changes in parenting (Vitulano, 2003) is important in assisting families as they cope with the
child’s reintegration into the school environment. Figure 3 is an adaptation of issues highlighted in a
checklist by Deasy-Spinetta (1997) and addresses variables related to children’s school attendance,
FIGURE 4. Checklist for the consultant–school relationship as part of the eco-triadic model of educational consultation.
peer and social interactions, education, and medical adherence. Finally, considerations discussed
in Figure 4 are based, in part, on material by Nessim and Katz (1995), which highlights the role
of school psychologists as conduits of information for classroom teachers, as well as overseers of
children’s educational and psychosocial progress throughout the school reintegration process. Figure
4 also encourages consideration of issues related to peer support systems (Katz et al., 1988) and
provision of school nursing services. By no means are the checklists exhaustive; rather, they are
designed to help guide school psychologists throughout the school reintegration process as they
interface with each of the three ecosystems proposed by the eco-triadic model.
What is obvious on review of each checklist is the degree of preparation and consideration of
issues prior to the child reintegrating into the school setting. In particular, the first phase of school
reintegration for each ecosystem involves exploration of existing support systems and the extent to
which involved parties are comfortable with the child’s return to school. The issues dealt with in
subsequent phases are recurring, emphasizing the importance of continual review and evaluation
of existing intervention plans for the child with cancer. This is particularly true for the consultant–
hospital relationship, as the child’s medical treatment regimen is modified or the child experiences
unanticipated side effects of treatment.
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