Professional Documents
Culture Documents
Behavioural Supports For Parents of Children With An Intellectual Disability and Problem Behaviours 2002
Behavioural Supports For Parents of Children With An Intellectual Disability and Problem Behaviours 2002
SUSANA GAVIDIA-PAYNE1
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
ALAN HUDSON
RMIT University
For personal use only.
Problem behaviour is one of the most enduring and pervasive challenges experi-
enced by children with an intellectual disability , families, professionals , and the
community at large. Fortunately, our current state of knowledge is such that we are
able to design effective supports, in particular for parents, as they are the children ’s
most immediate and influential environment. While many would argue that
literature on the topic is abundant, it is spread throughout a number of fields of
knowledge and research, including parenting, disability, and assessment and inter-
ventions with challenging behaviour. Thus, it is the purpose of the present paper to
integrate information and research findings underlying the development of be-
havioural supports for parents of children with an intellectual disability and
problem behaviour, as depicted in the various knowledge areas.
1
Address for correspondence : Susana Gavidia-Payne, Victorian Parenting Centre, 24 Drummond Street, Carlton, VIC
3053, Australia. E-mail: vpc@vicparenting.com.a u
the present paper focuses on the various family characteristics that enhance
effective intervention , and the adjunctive strategies that may in turn be required.
Specific behavioural strategies are referred to in the context of parent training
models, which have generally provided the most consistent body of knowledge.
Also included in this section is a discussion of professional and systemic factors
that may have an impact on the success of behavioural parenting interventions. The
final segment provides a review of existing resources and materials that address the
management of challenging behaviours in children with an intellectua l disability .
Studies that examine the comparative effectiveness of different parent training
For personal use only.
among children with an intellectua l disability is available (Einfeld & Tonge, 1996).
It is evident, however, that problem behaviours are more prevalent in children and
adolescents with an intellectua l disability than their counterparts without a disabil-
ity. This was demonstrated in a study by Floyd and Phillippe (1993) who found that
children with an intellectual disability displayed higher base rates of non-compliant
behaviours than a comparison group of children without an intellectual disability .
Quine (1986), who studied behaviour problems in 200 children with a recognised
intellectual disability, found that the prevalence of mild and severe behaviour
problems was 45%.
For personal use only.
reported behaviour problem in the adolescent group, and tantrums in the pre-school
group. Other studies have also found clusters of behaviours such as self-injurious
and aggressive behaviours (Emerson & Bromley, 1995) and hyperactivity and
irritability (Chung, Bickerton, Cumella & Winchester, 1996).
The prevalence of challenging behaviour in children with specific disability types
has also been examined. Several categories of problem behaviour have been
defined according to the causes or aetiology of particular disability types (Meyer
& Evans, 1989). In a study of 43 children with Prader–Willi syndrome compared
with matched children with Down syndrome and with non-specific intellectual
disability , Dykens and Kasari (1997) found that the Prader–Willi group showed
more frequent and severe internalisin g and externalising , and total behaviour
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
problems on the Child Behaviour Checklist (Achenbach & Edelbrock, 1983). Some
problem behaviours were elevated in all groups, and several behaviours (e.g., skin
picking, obsessions , compulsions , talking too much, etc.) were significantl y elev-
ated in the Prader–Willi syndrome group relative to the comparison groups. Dykens
and Kasari concluded that there is a unique Prader–Willi behavioural phenotype. In
a study of parent behaviours and child compliance, Lemanek, Stone and Fishel
(1993) found that a group of autistic children presented the highest frequency of
non-compliance compared with the behaviour of children without an intellectual
disability , children with an intellectual disability, or language impairment.
For personal use only.
more clinical model that had been prevalent at the time, and which eventually led
to the birth of a more encompassing approach that carried through the 1980s and
1990s. During these years, the need to acknowledge the wider family system in the
treatment of children ’s challenging behaviour was demonstrated in various research
studies [see Singer and Irvin (1989)]. Inevitably, this meant that methods used for
gathering information about the behaviour and its context required expansion to
include direct (i.e., direct observation) as well as indirect (i.e., caregiver self-report)
methods. Assessments of the acceptability of behavioural intervention s by people
with an intellectua l disability, and general consumer satisfaction (Miltenberg, Suda,
For personal use only.
efforts for parents. Fox, Benito and Dunlap (in press) reported a decreased level of
tantrums in a young child with autism following an intervention that focused both
on the embedding of behavioural strategies in family routines and on support
provided to families to go through this process successfully. The intervention also
included the teaching of replacement skills that served as a functional equivalent to
the problem behaviour. Similarly, Moes and Frea (2000) demonstrated reductions
in challenging behaviours and increased on-task behaviour within a contextualise d
treatment phase that included an assessment of family context and teaching
methods that fitted with the family’s ongoing routine and interaction goals.
For personal use only.
of situation in which they occur, and the outcomes or reinforcers maintaining them
in that situation; (e) collection of direct observation data that support the summary
statements that have been developed.
O’Neill and his colleagues further suggest that the processes used in conducting
a functional assessment can take many forms and have many levels of precision,
often depending on the complexity of the problem behaviour. It follows, then, that
the methods of gathering information will vary accordingly, from interviews with
the individual and significant others, to more systematic observations of behaviour
in typical daily routines. Questionnaires such as the Motivation Assessment Scale
For personal use only.
(Durand & Crimmins, 1988) and the Aberrant Behaviour Checklist (Sigafoos,
Pittendreigh & Pennell, 1997) have been used in Australia with good results with
parents. Some other authors (e.g., Sigafoos, Kerr, Roberts & Couzens, 1993)
suggest that it may also be necessary to use direct observation to verify findings
generated by questionnaire s and interviews. Overall, recent research (Moes & Frea,
2000) demonstrates that family involvement in the implementation of functional
assessments can be successful in generating and testing hypotheses about the
function of the problem behaviour of their children.
Another much more precise and rigorous strategy to gather functional assessment
information has been termed functional analysis (O’Neill et al., 1997). This
procedure involves the experimental manipulation of specific variables that are or
are not associated with the problem behaviour, and allows for the testing of
hypotheses regarding events maintaining a particular behaviour. In this way, brief
analogue conditions are set up in which a child is provided with reinforcers
contingent on the occurrence of problematic behaviour. The utility of functional
analyses has been amply demonstrated and recommended in parent-implemented
intervention s (Derby et al., 1997; Wacker, Peck, Derby, Berg & Harding, 1996).
Regardless of the chosen method for gathering information, the most important
concept to understand is that problem behaviours occur for a reason; that is, why
do problem behaviours occur? O’Neill et al. (1997) suggest that there are several
distinctiv e reasons why children and adults with disability engage in problem
behaviours, namely: (a) to obtain internal stimulation ; (b) to obtain attention; (c) to
obtain activities or objects; (d) to escape/avoid internal stimulation ; (e) to escape/
avoid attention; and (f) to escape/avoid task activities.
In discussing the various purposes which challenging behaviour serve, it has also
38 Gavidia-Payne & Hudson
been demonstrated that in real-life situations, children may use the same problem
behaviour to achieve many different functions. This is clearly illustrated in a study
cited by Carr et al. (1994), of a 5-year-old girl with brain damage. She engaged in
self-biting, hitting others, and screaming in order to escape a vocabulary develop-
ment task. She used the same problem behaviours to gain her teacher’s attention
whenever the teacher failed to pay sufficient attention to her. The importance of
these dynamics cannot be emphasised enough in terms of their implications for
intervention . Given that problem behaviour can serve many different purposes,
intervention s may also have to include a number of different components to address
the various purposes of the behaviour.
While the notion of functional assessment has been researched and practised for
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
a number of years (Carr, 1977), its relevance in family environments has only been
recently acknowledged. Furthermore, numerous researchers consider functional
assessments in the family context to be essential in the systematic prevention and
management of challenging behaviour (Koegel, Koegel, Kellegrew & Mullen,
1996; Wacker et al., 1996). It has been argued that functional assessment plays a
critical role in the design of individualised , multi-component, intervention s that are
integrated within family contexts. Lucyshyn and his colleagues (1997) demon-
strated the usefulness of functional assessment with the family of a 14-year-old girl
with severe disability and severe problem behaviours. A multiple-baseline design
For personal use only.
across family routines assessed the functional relationship between parent im-
plementation of a component intervention, improvement in child behaviour, and
successful completion of routines. The results indicated durable improvements in
child behaviour and routine completion, generalised improvements in child behav-
iour, and enhanced activity patterns. These findings corroborate other research
findings reported in the literature about the importance of the links between
functional assessments and family ecology variables (Lutzker & Campbell, 1994;
Sanders & Dadds, 1982; Singer, Irvine & Irvin, 1989). The need to conduct
functional assessments in conjunction with evaluations of the family environment
is thus evident for the purpose of developing successful interventions .
Family assessment
As suggested earlier, family assessment is another critical element in the develop-
ment of sound behavioural family interventions, where one of the major goals is to
ensure goodness of contextual fit (Albin et al., 1996; Egel & Powers, 1989). Albin
and his colleagues define contextual fit as “… the congruence or compatibilit y that
exists between specific features and components of a behavioural support plan and
a variety of relevant family variables” (p. 82). In order to obtain “good” contextual
fit, family-focused assessment activities are conducted with the aim of identifying
and understandin g family characteristics and family values and goals, around which
families have constructed their routines. More specifically, the authors emphasise
the need to gain the following information: (a) family members’ ideas and reactions
regarding hypothese s as to the function(s) of problem behaviours; (b) current ways
in which the family has structured its daily living patterns and routines; (c) the
Behavioural supports for parents 39
Albin et al. (1996) indicate that while the family interview is a useful clinical tool,
further research is needed to provide evidence of its use in relation to the
“contextual fit” notion.
tions that are both child and family centred, and which are concerned not only with
problem behaviours, but also with the strengths and lifestyle of the child and
family. The following sections address various levels of intervention as reported in
the behavioural intervention literature. For the purpose of this paper, an explicit
distinctio n has been made between interventions that are seen as preventative
compared with those that require an increasingly complex use of behavioural
procedures.
Dunlap, Johnson and Robbins (1990) contend that prevention of behaviour prob-
lems can be accomplished through the development of functional skills, preferably
at an early age. Put simply, it is suggested that instead of emphasising specific
consequences to apply when problem behaviours occur, interventions focus on
what to do in those situations when the behaviour does not occur. A number of
studies illustrate the effectiveness of this approach in preventing behaviour prob-
lems, particularly, by teaching language and social interaction skills between
parents and their children (Koegel & Koegel, 1996; Wacker et al., 1996). Huynen,
Lutzker, Bigelow, Touchette and Campbell (1998), using a multi-probe design,
demonstrated the effectiveness of incidental teaching with a set of mothers of
children with disability in the context of planned activities training. Following
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
Melin, 1992). During incidental teaching, interactions between an adult and a child
arise naturally and in an unstructured situation such as free play (Warren & Kaiser,
1986). These interactions are used systematically by the adult to transmit new
information or give the child practice in developing a communication skill. In this
context, adults do not try to elicit responses by means of questions, prompts or
gestures, but rather wait for the learner to initiate an interaction. Incidental teaching
episodes are brief, positive, and oriented towards communication rather than
language teaching per se; thus, very much resembling teaching that naturally occurs
in mother–child dyadic interactions.
According to Lutzker et al. (1998), the basic principle of incidental teaching in
the context of preventing problem behaviour is awareness. That is, when a child
initiates a conversation by looking at something, playing with something, or talking
about something, the parent notices. Once the child has shown an interest in
something, parents can further the child’s learning and involvement. The parent can
enhance the interaction by asking further questions or talking about an item the
child has noticed.
One of the most important points about the use of incidental teaching in the
prevention of challenging behaviour is its role in the development of communi-
cation skill repertoires. As these have been recognised as essential in creating
positive alternatives to challenging behaviours (Durand, 1990), incidental teaching,
as a strategy, offers an effective medium for the reinforcement of alternative
behaviours within relatively unstructured environments such as those offered in
family settings. Parents are natural incidental teachers, and can thus be used
successfully in preventing their children ’s problem behaviour.
At a second level, a more structured and directed approach than incidental
Behavioural supports for parents 41
functionally related skills which are not necessarily functionally equivalent to the
behaviour to be decreased (e.g., choice making, schedule building, introducing
contingency specific stimuli, and establishin g stimulus control); (e) teaching coping
and tolerance.
Numerous studies with children with an intellectual disability and challenging
behaviour indicate that general increases in competent performance will be associ-
ated with decreases in occurrence of problem behaviour. This is, in turn, essential
in producing durable intervention effects (Dunlap & Fox, 1996; Koegel & Koegel,
1996; LaVigna et al., 1989). In family contexts, parents have been found to be
For personal use only.
effective teachers of their children across a range of skill domains, and in different
situations . Thus, given the powerful influence of parents on their children ’s
behaviours, positive programming, together with incidental teaching, is a viable
strategy that can be effectively used to support parents in preventing their child’s
problem behaviour.
and social learning theory which aim to investigate variables that influence
behaviour and to demonstrate the functional relationship s between them (Lutzker &
Steed, 1998).
The notion of parent training has evolved over the last few years in an attempt
to optimise interventions and generate positive child and family outcomes. The
need to produce generalisation of behaviours across settings and people has also
constituted a significant prompt to expand the parameters of parent training. As per
our earlier discussion of the eco-behavioural approach, current parent training
approaches emphasise the consideration of the family ecology, within which the
child behaviour is embedded. These intervention s can also be conceptualised within
the broader positive behaviour support paradigm espoused by Carr et al. (1999).
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
The authors strongly advocate the use of “typical” support agents, such as families,
which in turn enhances the maintenance of effects across a range of situations. In
addition, recent parent training approaches have focused on antecedents and
consequences that are carefully considered through a functional assessment of the
behaviour, and prior to intervention . Subsequently , outcomes of this functional
assessment will determine the emphasis on antecedents, consequences, or both
during intervention .
According to Lutzker et al. (1998), there have been three broad approaches to
parent training which have shown considerable promise in obtaining positive
For personal use only.
outcomes for children and their families. First, contingenc y management training,
which focuses on teaching parents to apply consistent consequences and use clear
commands. This approach has been primarily used with non-compliant children,
and for the most part is based on the seminal work of Forehand and McMahon
(1981). During several sessions, parents are taught a series of techniques such as
attending, ignoring, providing rewards, delivery of appropriate commands, and use
of time-out (Breiner, 1989). Second, planned activities training, which emphasises
the structuring of antecedents to increase engagement in activities and prevent
problem behaviour, rather than simply focusing on consequences as with contin-
gency management training. Third, errorless compliance training or behavioural
momentum, where parents are first taught to request behaviour from their children
to which instruction following is almost certain. Then, requests with low probabil-
ity of being followed are gradually given. The efficacy of this intervention has been
demonstrated for serious non-compliance in children with disability (Ducharme,
Pontes, Guger, Crozier, Lucas & Popynick, 1994).
It can be concluded that behavioural parent training, whether the focus is on
antecedents, consequences, or both, is effective in both producing and generalising
changes in child and parent behaviour. It must also be noted that a series of
procedures based on an applied behaviour analysis technology has also been used
with families. These procedures include the use of differential reinforcement of
incompatible behaviour, differential reinforcement of other behaviour, time-out,
and extinction (LaVigna and Donellan, 1986). In their discussion of positive
behaviour support strategies, Carr et al. (1999) characterise this category of
intervention s as non-positive behaviour support intervention s in that they are
reactive rather than proactive. It is beyond the scope of this review to describe these
Behavioural supports for parents 43
with problem behaviour, parents often report significant stress and difficulty in
maintaining healthy interactions in a number of family life areas (Turnbull &
Ruef, 1996). It has been reported that parents of school-age children with a
disability experience a disproportionatel y greater level of stress relating to their
children than do parents of children without a disability (Dyson, 1997). Similarly,
in a study conducted with an Australian sample of families of children with a
disability , Gavidia-Payne, Richdale, Francis and Cotton (1997) found that the
severity of the problem behaviour was associated with the parents’ experience of
greater stress in relation to their child, dealing with others within and outside the
family environment, and their own personal well-being. Other areas of family
functioning also seem to be affected by the characteristics of the child with a
disability . For example, in examining the associations between the marital relation-
ship and adjustment in parents of children with a disability, Bristol, Gallagher and
Schopler (1988) showed that the strongest predictor of adjustment was marital
harmony.
In view of evidence suggesting the impact of family context factors on
parental behaviour and on the implementation of parent training, specific pro-
grammes have been developed, especially for those parents who may experience
stressors that may impinge on their morale and relationship s with others. While it
is acknowledged that not all families experience these problems (Turnbull, Patter-
son, Behr, Murphy, Marquis & Blue-Banning, 1993), there is sufficient evidence to
suggest that family caregiving for people with disability does exact a toll on
families in the absence of adequate formal and informal support (Singer & Irvin,
1991). The following is a review of the main areas reportedly used as complemen-
tary interventions.
44 Gavidia-Payne & Hudson
As noted earlier, several authors have highlighte d the importance of considering the
role of a range of variables, particularly family-related variables, in order to
produce more effective intervention s (Lucyshyn et al., 1997; Lutzker & Steed,
1998). Another recent body of research also indicates that in implementing positive
intervention s in the real world, the characteristics of the staff involved in delivering
these programmes to people with problem behaviour and their families are also
critical (Emerson, Hastings & McGill, 1994). Carr, Reeve and Magito-McLaughlin
(1996) called these staff influences one type of “durational” event or a category of
setting events. In a study by Touchette, MacDonald and Langer (1985; cited by
For personal use only.
Carr et al., 1996) it was found that when a certain staff member was present, the
level of self-injury of one individual diagnosed with autism was high. With a
different staff member, problem behaviour was low. These differences occurred in
spite of the fact that the two staff members were implementing the same educa-
tional programmes. Carr et al. (1996) observe that staff presence may constitute a
continuous , ongoing, and complex event; thus, it is contextual in nature rather than
discrete, where it is not clear why a staff member was associated with high levels
of problem behaviour, and another was not.
In examining more closely the effect of staff-related variables, Emerson et al.
(1994) suggest that staff attitudes have a powerful effect on the quality of services
provided to people with a disability and problem behaviour. More specifically,
according to the authors, the response of a staff member to a particular episode of
problem behaviour can be influenced by the following: (a) the staff’s subjective
evaluation of the likely consequences of possible courses of action; (b) the value
staff place on potential outcomes; (c) the staff’s beliefs about how others may react
to the possible courses of action open to the staff member; and (d) the extent to
which the staff are motivated by the reactions of others.
In a study by Hastings (1996), it was found that staff have a diversity of views
on the reasons for the occurrence of challenging behaviour. These ranged from
medical/biological determinants to the seeking of attention and communication
difficulties. Most respondents reported that challenging behaviours are, to some
extent, intentional . The staff also reported that they tended to stop challenging
behaviours by intervening verbally or physically rather than by encouraging other
behaviours, or ignoring incidents. It has also been suggested that staff with negative
attitudes about interventions with people with a disability and challenging be-
46 Gavidia-Payne & Hudson
their description of in-service training for staff working with young children with
a disability and problem behaviour, Reichle et al. (1996) state that training in
developing positive behaviour support plans requires instruction in three essential
areas: (a) recognising that challenging behaviours may serve a variety of functions;
(b) being familiar with assessment activities that can be used to determine the
function of challenging behaviour; and (c) identifying intervention options avail-
able to address challenging behaviour, ranging from intervention s that establish
functionally equivalent responses to intervention s that promote self-regulation.
Serious threats to the prevention and reduction of challenging behaviour, through
For personal use only.
the attainment of the above staff competencies, are variability and drift in staff
performance. In order to overcome these potential problems, effective supervisory
practices at both individual and group levels are required to be in place. These may
include frequent, on-site monitoring of clearly specified dimensions of staff
performance followed by differential positive and corrective feedback (Favell &
Reid, 1988). Anderson, Russo, Dunlap and Albin (1996) provide an innovative
team training model that addresses these issues through the provision of multi-level
training that encourages team coaching and careful delineation of a training
curriculum.
Unlike, the work conducted in the disability and challenging behaviour areas,
investigatio n into staff-related characteristics in parenting intervention s has been
scarce (Graziano & Diament, 1992; Kazdin, 1997). Nevertheless, Lutzker and
Campbell (1994) point out that in working with parents of children with a disability
and problem behaviour, the skill training of staff requires a combination of
theoretical knowledge, role-playing, feedback, supervision , and independent per-
formance. All of these strategies are employed to teach skills to trainees across a
range of interventions .
In summary, there is a dearth of research related to the impact of staff variables
on the delivery of programmes for parents of children with a disability and
challenging behaviour. Nevertheless, the attitudes, training and supervision of staff
play a critical role in the development of effective interventions . Various staff
competency areas have been identified, including establishment of the functions of
behaviour, assessment of behaviour and environments, and multi-level interven-
tions. Clearly, the need to conduct further research in the area of staff and family
partnerships is urgently needed.
Behavioural supports for parents 47
of these resource materials are based on behavioural models that have proven
effectiveness in reducing problem behaviour.
Generally, practitioners in the past have tended to use a variety of resources,
teaching methods, and settings for parent training. Manuals and curriculum guides,
as well as videos and films, have been used extensively (Altman & Mira, 1983;
Baker, 1989; Bass, Dube, Foster & Munson, 1987). In regard to teaching strategies
used in parent training packages, role-playing, modelling, and behavioural rehearsal
have been shown to be effective in generating positive learning outcomes (Fore-
hand & McMahon, 1981; Hudson, 1982). A range of settings is also represented in
For personal use only.
the use of parenting resources and programmes, from training carried out in the
home (Anderson, Avery, DiPietro, Edwards & Christian, 1987) to clinic-based
interventions . Overall, these resources have been pivotal in assisting parents in
reducing their children ’s problem behaviours.
Of particular note is the programme developed by Baker, Brightman, Blacher,
Heifetz, Hinshaw & Murphy (1989). Studies underpinnin g this programme have
focused on parents learning strategies to teach their children skills such as self-help,
toilet training, play, independent living, including behaviour management skills
(Alvey & Aeschleman, 1990; Baker, 1989; Baker & Brightman, 1984; Baker &
Heifetz, 1976). Subsequent to Baker’s work, scarce attention has been given to the
development and evaluation of resources in the form of manuals, training guides,
or other audio-visual materials. In response to this state of affairs, Baker (1989)
embarked on a comprehensive research agenda that answered a number of ques-
tions regarding the effectiveness of certain parent training approaches over others.
Baker’s basic interest was in demonstrating the feasibility of effective alternatives
to long-term, individualised , clinic intervention s with families. To this end, Baker
and his colleagues conducted several studies that tested a series of questions
through the random assignment of training participants to intervention and control
conditions.
In one particular study (Baker & Heifetz, 1976), the research question posed
was, how effectively could parents of children with an intellectua l disability learn
behavioural teaching strategies and teach their children when their only training
was from self-instructiona l materials? Parents were assigned to one of four
conditions which involved increasing professional contact: (a) manuals only, where
all contacts were by mail, including provision of teaching materials, child assess-
48 Gavidia-Payne & Hudson
ment measures, and teaching log books; (b) telephone consultations , where manual
materials were supplemented by biweekly scheduled telephone calls to parents; (c)
group conditions , during which parents received manuals plus group training
following a parents as teachers curriculum; and (d) group visits, similar to the
group conditions plus six biweekly consultatio n visits. The study revealed that
while all the intervention conditions were associated with greater gains than the
control group, the manuals only condition produced the greatest parental knowl-
edge and child gains, whereas the least gains were made in the telephone condition.
Baker points out that the results are encouraging in terms of the potential usefulness
of instructiona l manuals for parent training. However, as far as the treatment of
problem behaviour is concerned, caution should be exercised before concluding
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
that training parents could best proceed through manuals alone. One reason is
that the group conditions showed some superiority in the management of
problem behaviours. Although all the families were given the manual, the families
in the group conditions were significantly more likely to carry out a programme
than were the manuals only and telephone families. As for the change in child
behaviour, only the group visits condition was superior to the control families, and
this condition was significantly superior to the other three training conditions
combined. The salience of group intervention s found in Baker’s study is consistent
with findings reported by other researchers and practitioners in the area (Baker &
For personal use only.
Heifetz, 1976; Brightman, Baker, Clark & Ambrose, 1982; Heifetz, 1977; Ito et al.,
1992).
In line with the original study, Baker and his colleagues (Baker, 1989) conducted
other studies that tested the effectiveness of individual training versus group parent
training. The findings indicated that group and individua l training produced
indistinguishabl e results, suggesting that perhaps the strong reliance upon written
and visual media in both training formats and the use of a standardised curriculum
served to minimise the difference between formats. In a subsequent study
(Kashima, Baker & Landen, 1988), self-instructiona l materials (i.e., standardised
media) and group training were combined into one condition and compared with a
live-led training group. It was found that in both knowledge and implementation of
the programmes at home, both media-based and live-trained families improved
significantly , and differed significantl y from the control families, who did not
change. On the other hand, the live-trained families improved significantl y more
than the media-trained families in knowledge acquired, while in the implementation
measure the training groups did not differ.
Overall, it was concluded that when different formats were used, the outcomes
did not vary significantly . Furthermore, less cost-effective formats, such as training
by manuals, or groups, or by media, can be employed with similar effectiveness.
The findings as they relate to the usefulness of these various formats in the
management of problem behaviour point to group parent training as one powerful
approach to use. However, the question remains as to who benefits the most
from parent training in light of subsequent research concerned with the prevention
of problem behaviour and generalisation of parental skills (Dunlap et al.,
1990). The answer to this question brings the discussion back into the arena of
Behavioural supports for parents 49
lenge to incorporate into practice evidence yielded in recent studies, still remains.
One notable exception to this is the recent work conducted in Western Australia in
the development of a parent training package for young children with disability and
problem behaviour, called Stepping Stones: Positive Parenting Program (Sanders,
Markie-Dadds, Mazzucchelli & Studman, 1997). This programme is based on
learning theory principles and incorporates adjunctive intervention s for parents
under a clinician ’s guidance. The application of the programme across a range of
families of children with disability is currently being evaluated.
For personal use only.
General conclusions
Our knowledge about the elements of successful supports for people with an
intellectual disability who have difficult behaviour has come a long way. The
implementation of behavioural assessments before intervening in family contexts is
clearly founded on extensive research that attests to the importance of doing it in
a thorough and systematic manner. It is evident that the level of sophisticatio n of
such assessments will vary as a function of the complexities around the child
behaviour, the characteristics of the family context, and the circumstances external
to them. In this sense, families have become instrumenta l agents in the gathering
of valuable information about their children ’s behaviour and the environmental
events associated with it.
In order to determine the reasons behind the occurrence of problematic behav-
iour, current literature also supports the execution of functional assessments as a
critical step prior to intervention . However, practical knowledge about the ways to
conduct functional assessments effectively within family environments, either by
clinicians or families themselves, is limited. Notable exceptions are the works of
Albin et al. (1996), Koegel et al. (1996), and Arndorfer, Miltenberger, Woster,
Rortvedt and Gaffaney (1994). Arndorfer et al. (1994) demonstrated that parents
successfully implemented functional assessments in natural settings; whereas
Koegel et al. (1996) reported that parents typically were able to identify the
function of the behaviour quite rapidly. Nevertheless, further research in the
development and testing of “friendly” practical packages of assessment information
for parents to use within home environments is clearly needed. Investigatio n of the
supports required so that families are able to do so successfully and effectively is
50 Gavidia-Payne & Hudson
families. The “goodness of fit” notion (i.e., how well the intervention fits the family
context) adequately summarises all the above elements.
The challenge remains in terms of making the knowledge we have more
available to families and to those working with them. The development of resource
materials is sound progress in the right direction, but the resources still need to be
tested, and subsequentl y to be “out there” in the field. Thus, the problems of
testing, dissemination , and usability of knowledge seem to be the next challenges
to overcome. In addition, we may also need, as Carr and colleagues suggest (Carr
et al., 1999), to adopt a new applied science where the needs of consumers (i.e.,
For personal use only.
parents and children) are addressed more systematically and frequently, and where
the environments, systems, and contexts where they operate are as thoroughly
addressed as is the behaviour of individuals with intellectual disability.
Acknowledgement
The development of this paper was supported by funding provided by the
Department of Human Services (Victoria), Disability Services Program.
The authors also thank their colleagues Jan Matthews (RMIT University), Christine
Cameron (Victorian Parenting Centre), Robyn Mildon (Victorian Parenting Centre),
and Karen Nankervis (RMIT University) for their support in the development of the
manuscript.
References
Achenbach, T. M., & Edelbrock, C. (1983). Manual for the child behaviour checklist and revised
child behaviour profile. Burlington: Vermont University Associates in Psychiatry.
Albin, R. W., Lucyshyn, J. M., Horner, R. H., & Flannery, K. B. (1996). Contextual fit for behavioral
support plans: A model for “goodness of fit”. In L. K. Koegel, R. L. Koegel & G. Dunlap (Eds.),
Positive behavioral support: including people with difficult behavior in the community (pp. 81–
98). Baltimore, MD: Paul H. Brookes.
Altman, K., & Mira, B. L. (1983). Training parents of developmentally disabled children. In J. L.
Matson & P. Adrasik (Eds.), Treatment issues and innovations in mental retardation (pp. 303–
371). New York: Plenum Press.
Behavioural supports for parents 51
Alvey, G. L., & Aeschleman, S. R. (1990). Evaluation of a parent training programme for teaching
mentally retarded children age appropriate restaurant skills: a preliminary investigation. Journal
of Mental Deficiency Research, 32, 421–428.
Anderson, J. L., Russo, A., Dunlap, G., & Albin, R. W. (1996). A team training model for building
the capacity to provide behavioural supports to inclusive settings. In L. K. Koegel, R. L. Koegel
& G. Dunlap (Eds.), Positive behavioral support: including people with difficult behavior in the
community (pp. 467–490). Baltimore, MD: Paul H. Brookes.
Anderson, S. R., Avery, D. L., DiPietro, E. K., Edwards, G. L., & Christian, W. P. (1987). Intensive
home-based early intervention with autistic children. Education and Treatment of Children, 10,
352–366.
Arndorfer, R. E., Miltenberger, R. G., Woster, S. H., Rortvedt, A. K., & Gaffaney, T. (1994).
Home-based descriptive and experimental analysis of problem behaviours in children. Topics in
Early Childhood Special Education, 14, 64–87.
Baker, B. L. (1989). Parent training and developmental disabilities. Washington, DC: American
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
Bass, R. W., Dube, W. V., Foster, L., & Munson, L. (1987). A behavior management training model
for parents of developmentally disabled children. In J. A. Mulick & R. F. Antonak (Eds.), Issues
in therapeutic intervention: transitions in mental retardation (Vol. 2, pp. 94–112). Norwood, NJ:
Ablex Publishing.
Bernstein, G. S. (1982). Training behavior change agents: a conceptual review. Behavior Therapy, 13,
1–23.
Breiner, J. (1989). Training parents as change agents for their developmentally disabled children. In
C. E. Schaefer & J. M. Briesmeister (Eds.), Handbook of parent training: parents as co-thera-
pists for children’s behavior problems (pp. 269–304). New York: John Wiley & Sons.
Brightman, R. P., Baker, B. L., Clark, D. B., & Ambrose, S. A. (1982). Effectiveness of alternative
parent training formats. Journal of Behavior Therapy and Experimental Psychiatry, 13, 113–117.
Bristol, M. M., Gallagher, J. J., & Schopler, E. (1988). Mothers and fathers of young developmentally
disabled and nondisabled boys: adaptation and spousal support. Developmental Psychology, 24,
441–451.
Carr, E. G. (1977). The motivation of self-injurious behaviour: a review of some hypothesis.
Psychological Bulletin, 64, 600–616.
Carr, E. G., Horner, R. H., Turnbull, A. P., Marquis, J. G., McLaughlin, D. M., McAtee, M. L., Smith,
C. M., Ryan, K. A., Ruef, M. B., & Doolabh, A. (1999). Positive behaviour support for people
with developmental disabilities: a research synthesis. Monograph. Washington: American As-
sociation on Mental Retardation.
Carr, E. G., Levin, L., McConnachie, G., Carlson, J. I., Kemp, D. C., & Smith, C. E. (1994).
Communication-based intervention for problem behaviour: a user’s guide for producing positive
change. Baltimore, MD: Brooks.
Carr, E. G., Reeve, C. E., & Magito-McLaughlin, D. (1996). Contextual influences on problem
behavior in people with developmental disabilities. In L. K. Koegel, R. L. Koegel & G. Dunlap
(Eds.), Positive behavioral support: including people with difficult behavior in the community
(pp. 403–424). Baltimore, MD: Paul H. Brookes.
Chung, M. C., Bickerton, W. L., Cumella, S., & Winchester, C. (1996). A preliminary study on the
prevalence of challenging behaviours. Psychological Reports, 179, 1427–1430.
Clarke, D. J., & Boer, H. (1998). Problem behaviors associated with deletion Prader–Willi, Smith-Ma-
genis, and Cri du Chat syndromes. American Journal on Mental Retardation, 103, 264–271.
Corrigan, P. W., Williams, O. B., McCraken, S. G., Kommana, S., Edwards, M., & Brunner, J. (1998).
52 Gavidia-Payne & Hudson
Staff attitudes that impede the implementation of behavioral treatment programs. Behavior
Modification, 22, 548–562.
Cotton, D. H. (1990). Stress management: an integrated approach to therapy. New York: Brunner/
Mazel.
Czyzewski, M. J., Christian, W. P., & Norris, M. B. (1984). Preparing the family for client transition:
outreach parent training. In W. P. Christian, G. T. Hannah & T. J. Glahn (Eds.), Programming
effective human services: strategies for institutional change and client transition (pp. 177–202).
New York: Plenum Press.
Dadds, M. R., Schwartz, S., & Sanders, M. R. (1987). Marital discord and treatment outcome in the
treatment of childhood conduct disorders. Journal of Consulting and Clinical Psychology, 55,
396–403.
Dangel, R. F., & Polster, R. A. (1984). Winning! A systematic, empirical approach to parent training.
In R. F. Dangel & R. A. Polster (Eds.), Parent training: foundations of research and practice
(pp. 162–201). New York: The Guilford Press.
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
Derby, K. M., Wacker, D. P., Berg, W., DeRaad, A., Ulrich, S., Asmus, J., Harding, J., Prouty, A.,
Laffey, P., & Stonner, E. A. (1997). The long-term effects of functional communication training
in home settings. Journal of Applied Behavior Analysis, 30, 507–531.
Ducharme, J. M., Pontes, E., Guger, S., Crozier, K., Lucas, H., & Popynick, M. (1994). Errorless
compliance to parental requests: II. Increasing clinical practicality through abbreviation of
treatment parameters. Behavior Therapy, 25, 469–487.
Dunlap, G., & Fox, L. (1996). Early intervention and serious problem behaviour: a comprehensive
approach. In L. K. Koegel, R. L. Koegel & G. Dunlap (Eds.), Positive behavioural support:
including people with difficult behaviour in the community (pp. 31–50). Baltimore, MD: Paul
Brookes.
Dunlap, G., Johnson, L. F., & Robbins, F. R. (1990). Preventing serious behavior problems through
skill development and early interventions. In A. C. Repp & N. N. Singh (Eds.), Perspectives on
For personal use only.
the use of nonaversive and aversive interventions for persons with developmental disabilities
(pp. 273–286). Sycamore, IL: Sycamore.
Dunlap, G., Robbins, F. R., & Darrow, M. A. (1994). Parents’ reports of their children’s challenging
behaviors: results of a statewide survey. Mental Retardation, 32, 206–212.
Durand, V. M. (1990). Severe behavior problems: a functional communication training approach.
New York: The Guilford Press.
Durand, V. M., & Crimmins, D. B. (1988). Identifying the variables maintaining self-injurious
behaviour. Journal of Autism and Developmental Disorders, 18, 99–117.
Dykens, E. M., & Kasari, C. (1997). Maladaptive behavior in children with Prader–Willi syndrome,
Down syndrome, and nonspecific mental retardation. American Journal on Mental Retardation,
102, 228–237.
Dyson, L. L. (1997). Fathers and mothers of school-age children with developmental disabilities:
parental stress, family functioning, and social support. American Journal on Mental Retardation,
102, 267–279.
Egel, A. L., & Powers, M. D. (1989). Behavioral parent training: a view of the past and suggestions
for the future. In E. Cipani (Ed.), The treatment of severe behavior disorder: behavior analysis
approaches (pp. 153–173). Washington: AAMR.
Einfeld, S. L., & Tongue, B. J. (1992). Manual for the developmental behaviour checklist. NSW:
School of Psychiatry, University of NSW.
Einfeld, S. L., & Tonge, B. J. (1996). Population prevalence of psychopathology in children and
adolescents with intellectual disability: II. Epidemiological findings. Journal of Intellectual
Disability Research, 40, 99–109.
Emerson, E., & Bromley, J. (1995).The form and function of challenging behaviours. Journal of
Intellectual Disability Research, 39, 388–398.
Emerson, E., Hastings, R., & McGill, P. (1994). Values, attitudes, and service ideology. In E.
Emerson, P. McGill & J. Mansell (Eds.), Severe learning disabilities and challenging behaviours
(pp. 209–228). London: Chapman & Hall.
Emmerson, E., Cummings, R., Barrett, S., Hughes, H., McCool, C., & Toogood, A. (1988).
Challenging behaviour and community services. Who are the people who challenge services?
Mental Handicap, 16, 16–19.
Favell, J. E. (1976). Reduction of stereotypies by reinforcement of toy play. In R. M. Anderson &
Behavioural supports for parents 53
J. G. Greer (Eds.), Educating the severely and profoundly retarded (pp. 221–226). Baltimore,
MD: University Park Press.
Favell, J. E., & Reid, D. H. (1988). Generalizing and maintaining improvement in problem behavior.
In R. H. Horner, G. Dunlap & R. L. Koegel (Eds.), Generalization and maintenance: life-style
changes in applied settings (pp. 171–196). Baltimore, MD: Paul H. Brookes.
Floyd, F. J., & Phillippe, K. A. (1993). Parental interactions with children with and without mental
retardation: behavior management, coerciveness, and positive exchange. American Journal on
Mental Retardation, 97, 673–684.
Forehand, R., & Baumeister, A. A. (1976). Deceleration of aberrant behavior among retarded
individuals. In M. Hersen, R. M. Eisler, & P. M. Miller (Eds.), Progress in behavior modification
(pp. 223–278). New York: Academic Press.
Forehand, R., & McMahon, B. (1981). Helping the noncompliant child: a clinician’s guide to parent
training. New York: Guildford.
Fox, L., Benito, N., & Dunlap, G. (in press). Early intervention with families of young children with
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
autism spectrum disorder and problem behavior. In J. Lucyshyn, G. Dunlap & R. Albin (Eds.),
Families, family life, and positive behavioral support: addressing the challenge of problem
behaviors in family contexts. Baltimore, MD: Paul H. Brookes.
Frea, W. D., & Hepburn, S. L. (1999). Teaching parents of children with autism to perform functional
assessments to plan interventions for extremely disruptive behaviours. Journal of Postitive
Behaviour Interventions, 1(2), 112–116.
Gavidia-Payne, S., Richdale, A., Francis, A., & Cotton, S. (1997). The Parenting Hassles Scale:
measuring stress in parents of children with disabilities. Paper presented at the 121st Annual
Meeting of the American Association on Mental Retardation, New York.
Graziano, A. M., & Diament, D. M. (1992). Parent training: an examination of the paradigm.
Behavioral Modification, 16, 3–38.
Greer, J. G., Rainey, T. H., & Anderson, R. M. (1976). Modified systematic desensitization with a
For personal use only.
severely retarded child. In R. M. Anderson, J. G. Greer & R. M. Smith (Eds.), Educating the
severely to profoundly retarded (pp. 227–232). Baltimore, MD: University Park Press.
Hastings, R. P. (1996). Staff strategies and explanations for intervening with challenging behaviours.
Journal of Intellectual Disability Research, 40, 166–175.
Hawkins, N. E., & Singer, G. H. S. (1989). A skills training approach for assisting parents to cope
with stress. In G. H. S. Singer & L. K. Irvin (Eds.), Support for caregiving families: enabling
positive adaptation to disability. Baltimore, MD: Paul. H. Brookes.
Hawkins, N. E., Singer, G. H. S., & Nixon, C. D. (1993). Short-term behavioral counseling for
families of persons with disabilities. In G. H. S. Singer & L. E. Powers (Eds.), Families,
disability, and empowerment: active coping skills and strategies for family interventions.
Baltimore, MD: Paul H. Brookes.
Heifetz, L. J. (1977). Behavioral training for parents of retarded children: alternative formats based
on instructional manuals. American Journal on Mental Deficiency, 82, 194–203.
Hemmeter, M. L., Ault, M. J., Collins, B. C., & Meyer, S. (1996). The effects of teacher implemented
language instruction within free time activities. Education and Training in Mental Retardation
and Developmental Disabilities, 31, 203–212.
Hudson, A. (1982). Training parents of developmentally handicapped children: a component analysis.
Behavior Therapy, 13, 325–333.
Huynen, K. B., Lutzker, J. R., Bigelow, K. M., Touchette, P. E., & Campbell, R. V. (1996). Planned
activities training for mothers of children with developmental disabilities: Community generali-
zation and follow-up. Behavior Modi cation, 20(4), 406–427.
Ito, N., Okuma, H., Nakano, T., Jinnouchi, S., Ito, K., Menta, M., Fukuda, K., & Yamagami, T.
(1992). Development and efficacy of a group parent training program for parents of mentally
retarded children. Poster presentation. Fourth World Congress on Behaviour Therapy. Centre for
Emotional and Behavioral Disorders, Japan.
Kashima, K. J., Baker, B. L., & Landen, S. J. (1988). Media-assisted versus professional led training
for parents of mentally retarded children. American Journal of Mental Retardation, 93, 209–217.
Kazdin, A. E. (1997). Parent management training: evidence, outcomes, and issues. Journal of the
American Academy of Child and Adolescent Psychiatry, 36, 1349–1356.
Koegel, L. K., & Koegel, R. L. (1996). The child with autism as an active communicative partner:
child-initiated strategies for improving communication and reducing behavior problems. In E. D.
Hibbs & P. S. Jensen (Eds.), Psychosocial treatments for child and adolescent disorders:
54 Gavidia-Payne & Hudson
empirically based strategies for clinical practice (pp. 553–572). Washington, DC: American
Psychological Association.
Koegel, L. K., Koegel, R. L., Kellegrew, D., & Mullen, K. (1996). Parent education for prevention
and reduction of severe problem behaviors. In L. Koegel, R. L. Koegel & G. Dunlap (Eds.),
Positive behavioral support: including people with difficult behavior in the community (pp. 3–
30). Baltimore, MD: Paul H. Brookes.
LaVigna, G. W., & Donnellan, A. M. (1986). Alternatives to punishment: solving behavior problems
with non-aversive strategies. New York: Irvington.
LaVigna, G. W., Willis, T. J., & Donnellan, A. M. (1989). The role of positive programming in
behavioral treatment. In E. Cipani (Ed.), The treatment of severe behavior disorders: behavior
analysis approaches (pp. 59–83). Washington, DC: American Association on Mental Retar-
dation.
Lemaneck, K. L., Stone, W. L., & Fishel, P. T. (1993). Parent–child interactions in handicapped
pre-schoolers: the relation between parent-behaviours and compliance. Journal of Clinical Child
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
Qureshi, H. (1994). The size of the problem. In E. Emerson, P. McGill, & J. Mansell (Eds.), Severe
learning disabilities and challenging behaviours: designing high quality services (pp. 17–36).
London: Chapman & Hall.
Reichle, J., McEvoy, M., Davis, C., Rogers, E., Feeley, K., Johnston, S., & Wolff, K. (1996).
Coordinating preservice and in-service training of early interventionists to serve preschoolers
who engage in challenging behavior. In L. Koegel, R. L. Koegel & G. Dunlap (Eds.), Positive
behavioral support: including people with difficult behavior in the community (pp. 227–264).
Baltimore, MD: Paul H. Brookes.
Repp, A. C., & Horner, R. H. (1999). Functional analysis of problem behaviour: from effective
assessment to effective support. Belmont, CA: Wadsworth Publishing.
Risley, T. (1996). Get a life! Positive behavioral intervention for challenging behavior through life
arrangements and life coaching. In L. Koegel & G. Dunlap (Eds.), Positive behavior support:
including people with difficult behavior in the community (pp. 425–437). Baltimore, MD: Paul
H. Brookes.
J Intellect Dev Dis Downloaded from informahealthcare.com by Stanford University on 11/18/14
Sanders, M. R., & Dadds, M. R. (1982). The effects of planned activities and child management
procedures in parent training: an analysis of setting generality. Behavior Therapy, 13, 452–461.
Sanders, M. R., Markie-Dadds, C., Mazzucchelli, T., & Studman, L. (1997). Stepping Stones: positive
parenting program. Clinician’s manual. Western Australia: Disability Services Commission
(unpublished).
Sigafoos, J., Kerr, M., Roberts, D., & Couzens, D. (1993). Reliability of structured interviews for the
assessment of challenging behaviour. Behaviour Change, 10, 47–50.
Sigafoos, J., Pittendreigh, N., & Pennell, D. (1997). Parent and teacher ratings of challenging
behaviour in young children with developmental disabilities. British Journal of Learning
Disabilities, 25, 13–17.
Singer, G. H. S., & Irvin, L. K. (1989). Support for caregiving families: enabling positive adaptation
to disability. Baltimore, MD: Paul H. Brookes.
For personal use only.
Singer, G. H. S., & Irvin, L. K. (1991). Supporting families of persons with severe disabilities:
emerging findings, practices, and questions. In L. H. Meyer, C. A. Peck & L. Brown (Eds.),
Critical issues in the lives of people with severe disabilities (pp. 271–312). Baltimore, MD: Paul
H. Brookes.
Singer, G. H. S., Irvin, L. K., Irvine, B., Hawkins, N. E., Hegreness, J., & Jackson, R. (1993). Helping
families adapt positively to disability: overcoming demoralization through community supports.
In G. H. S. Singer & L. E. Powers (Eds.), Families, disability, and empowerment: active coping
skills and strategies for family interventions (pp. 67–84). Baltimore, MD: Paul H. Brookes.
Singer, G. H. S., Irvine, A. B., & Irvin, L. K. (1989). Expanding the focus of behavioral parent
training: a contextual approach. In G. H. S. Singer & L. K. Irvin (Eds.), Support for caregiving
families: enabling positive adaptation to disability (pp. 85–102). Baltimore, MD: Paul H.
Brookes.
Turnbull, A. P., Patterson, J. M., Behr, S. K., Murphy, D. L., Marquis, J. G., & Blue-Banning, M.
J. (1993). Cognitive coping, families, and disability. Baltimore, MD: Paul H. Brookes.
Turnbull, A. P., & Ruef, M. (1996). Family perspectives on problem behavior. Mental Retardation,
34, 280–293.
Turnbull, A. P., & Turnbull, H. R. III (1990). Families, professionals, and exceptionality: a special
partnership (2nd edn). New York: Macmillan.
Vyse, S. A., & Mulick, J. A. (1990). Ecobehavioural assessment: future directions in the planning and
evaluation of behavioral interventions. In S. R. Schroeder (Ed.), Ecobehavioral analysis and
developmental disabilities: the twenty-first century (pp. 228–244). New York: Springer.
Wacker, D. P., Peck, S., Derby, K. M., Berg, W., & Harding, J. (1996). Developing long-term
reciprocal interactions between parents and their young children with problematic behavior. In
L. Koegel, R. L. Koegel & G. Dunlap (Eds.), Positive behavioral support: including people with
difficult behavior in the community (pp. 51–80). Baltimore, MD: Paul H. Brookes.
Warren, S. F., & Kaiser, A. P. (1986). Incidental language teaching: a critical review. Journal of
Speech and Hearing Disorders, 51, 291–299.
Watts, M. J., Reed, T. S., & Hastings, R. P. (1997). Staff strategies and explanations for intervening
with challenging behaviours—a replication in a community sample. Journal of Intellectual
Disability Research, 41, 258–263.
Webster-Stratton, C. (1985). Predictors of outcome in parent training for conduct disordered children.
Behaviour Therapy, 16, 223–243.