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ARTICLE IN PRESS

International Journal of Nursing Studies 43 (2006) 891–901


www.elsevier.com/locate/ijnurstu

Critique on the conceptualisation of quality of life: A review


and evaluation of different conceptual approaches
Philip Moonsa,b,, Werner Budtsb, Sabina De Geesta,c
a
Center for Health Services and Nursing Research, Katholieke Universiteit Leuven, Kapucijnenvoer 35/4, B-3000 Leuven, Belgium
b
Division of Congenital Cardiology, University Hospitals of Leuven, Herestraat 49, B-3000 Leuven, Belgium
c
Institute of Nursing Science, University of Basel, Bernoullistrasse 28, CH-4056 Basel, Switzerland
Received 13 October 2005; received in revised form 18 March 2006; accepted 25 March 2006

Abstract

Over the past decades, the concept of quality of life has been of paramount importance for evaluating the quality and
outcome of health care. Despite its importance, there is still no consensus on the definition or proper measurement of
quality of life. Several concept analyses of quality of life have been published. However, they appear to have had a
rather limited impact on how empirical studies are conducted. Therefore, we present an overview and critique of
different conceptualisations of quality of life, with the ultimate goal of making quality of life a less ambiguous concept.
We also describe six conceptual problems. These problems were used as criteria to evaluate the appropriateness of
different conceptualisations. This evaluation suggests that defining quality of life in terms of life satisfaction is most
appropriate, because this definition successfully deals with all the conceptual problems discussed. The result of our
concept evaluation was not surprising for it corroborated the results of several concept analyses and the findings of a
structural equation modelling study. Based on the findings revealed by our review, we propose that the scientific
community should revitalise the conceptual discussion on quality of life. Furthermore, our findings can assist
researchers in developing more rigourous quality-of-life research.
r 2006 Elsevier Ltd. All rights reserved.

Keywords: Concept formation; Life satisfaction; Nurse; Nursing; Quality of life; Review

What is already known about the topic? What this paper adds
 Six conceptual problems are described and discussed
 The concept of quality of life has been increasingly  The different conceptualisations are evaluated in the
used in biomedical and nursing research during the context of the six conceptual problems
past decades  Quality of life is most appropriately defined in terms
 There is no consensus on the definition and of life satisfaction
measurement of quality of life

Corresponding author. Center for Health Services and


Nursing Research, Katholieke Universiteit Leuven, Kapucij-
1. Introduction
nenvoer 35/4, B-3000 Leuven, Belgium. Tel.: +32 16 336984;
fax: +32 16 336970. Since the early 1970s, interest in the concept of quality
E-mail address: Philip.Moons@med.kuleuven.be of life has increased significantly, both in research and
(P. Moons). clinical practice. Quality of life has emerged as an

0020-7489/$ - see front matter r 2006 Elsevier Ltd. All rights reserved.
doi:10.1016/j.ijnurstu.2006.03.015
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892 P. Moons et al. / International Journal of Nursing Studies 43 (2006) 891–901

important parameter for evaluating the quality and nesses, rather than with terminal illnesses. Some argue
outcome of health care. This is especially the case for that, in addition to mortality and morbidity, quality of
patients with chronic disorders for whom quality of life life must also be used to assess health care outcomes
has become a critical outcome measure, since complete (Macduff, 2000). A second explanation is the prolifera-
cure of disease is often unlikely. tion and advancement of medical and surgical technol-
The increasing attention focused on quality of life is ogies. With the increase in available treatments,
reflected in an accumulating number of relevant pub- thorough consideration of the benefit-burden ratio of
lications in the biomedical, psychological, and social equivalent therapies is now needed. Quality of life issues
sciences literature. A Pubmed search of articles pub- are now included when health care professionals assess
lished from 1966 to 2005 identified 76,698 articles the benefits of different treatment options. Hence,
containing ‘‘quality of life’’ as a Medical Subject research on quality of life affects how policymakers
Heading or as a title or abstract term. Since the mid- allocate health care resources or determine reimburse-
1960s, the number of publications on this subject has ment policies (De Geest and Moons, 2000).
grown exponentially (Fig. 1: grey bars). In addition to Despite the increasing interest in quality of life,
the growth in absolute numbers, the proportion of consensus is lacking on the definition of quality of life.
quality-of-life studies versus all publications cited in Also no consensus has emerged about whether quality of
Pubmed has also grown over the past decades. In 1966, life can or should be measured (Wolfensberger, 1994).
0.002% of all publications were on quality of life, Quality of life is often used as a generic label to describe
whereas this proportion has raised to 1.36% in 2005 an assortment of physical and psychosocial variables.
(Fig. 1: black line). Therefore, quality of life often seems to be an umbrella
There are two possible explanations for the increasing term (Feinstein, 1987), covering a variety of concepts,
interest in quality of life in health care. One explanation such as functioning, health status, perceptions, life
is an increased life expectancy resulting from improved conditions, behaviour, happiness, lifestyle, symptoms,
medical therapies. As a result, many more individuals etc. (Simko, 1999). The absence of a uniform definition
are diagnosed with chronic, clinically manageable ill- makes quality of life to be an ambiguous concept.

10000 1.4
QOL articles Percentage of QOL articles vs all publications
9000
1.2

8000

Percentage of QOL articles vs all publications


1
7000
Number of publication

6000
0.8

5000

0.6
4000

3000 0.4

2000
0.2
1000

0 0
19 6
19 7
19 8
69
19 0
19 1
19 2
19 3
19 4
19 5
19 6
19 7
78
19 9
19 0
19 1
19 2
19 3
19 4
19 5
86
19 7
19 8
19 9
19 0
19 1
19 2
19 3
19 4
19 5
19 6
19 7
19 8
99
20 0
20 1
20 2
20 3
20 4
05
6
6
6

7
7
7
7
7
7
7
7

7
8
8
8
8
8
8

8
8
8
9
9
9
9
9
9
9
9
9

0
0
0
0
0
19

19

19

19

20

Fig. 1. Number of publications in the Pubmed database (1966–2005) referring to quality of life and the percentage of quality-of-life
articles versus all Pubmed publications (search performed March 17, 2006).
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In the 1990s, several concept evaluations of quality of functional abilities, mental status, and prolonged life
life were published (Felce, 1997; Ferrans, 1996, 1990; (Clark and Bowling, 1989). In this respect, quality of life
Haas, 1999; Kleinpell, 1991; Meeberg, 1993; Stewart, is considered to be a broad concept that primarily
1992; Zhan, 1992). All of them, except for one (Felce, focuses on whether disease or impairment limits a
1997) were published in nursing journals. The majority person’s ability to fulfil a normal role (Carr et al.,
of the concept evaluations were generic in that the 2001). The conceptualisation of quality of life in terms of
authors did not define quality of life for a specific group a normal life compares the functioning of the respon-
of patients (Ferrans, 1996, 1990; Haas, 1999; Meeberg, dent with that of healthy persons or modal individuals
1993; Zhan, 1992). One author conducted a concept of the same age group (Ferrans, 1987). Perfect health is
evaluation of quality of life for use with intensive care commonly used as the standard for normalcy (Ferrans,
patients (Kleinpell, 1991), while another author ad- 1990). According to this conceptualisation of quality of
vanced the idea that the concept evaluation should be life, the closer an individual’s life mirrors the standard
used for patients with intellectual disabilities (Felce, for normalcy, the better the quality of life (Ferrans,
1997). Although these concept analyses provide critical 1992). Hence, this approach predominantly focuses on
information for quality-of-life researchers, they appar- the functional abilities and health status of the patient.
ently had a rather limited impact on how empirical
studies are conducted. Several concept analyses suggest 2.2. Social utility
that quality of life ought to be defined in terms of life
satisfaction (Ferrans, 1996, 1990; Zhan, 1992). However, Social utility defines quality of life according to one’s
most empirical studies assessed the concept in terms of ability to lead a socially ‘‘useful’’ life (Edlund and
normal life or in terms of a utility measure (Haas, 1999). Tancredi, 1985). This definition considers a patient’s
In an effort to enhance the conceptual understanding ability to make meaningful contributions to society
of quality of life, which will subsequently assist through gainful employment or by fulfilling socially
researchers in developing more rigourous research valued roles, such as that of a teacher, volunteer, parent,
studies, we used an alternative approach to the etc. (Ferrans, 1992). In this respect, employment status
traditional concept analyses. In this review, we first or productivity impairment is often used as indicators of
present an overview of the different conceptualisations quality of life. Quality of life, therefore, when defined in
of quality of life. Next, we discuss problems associated terms of social utility, is strongly related to the physical
with these conceptualisations, and finally we use these limitations or disease symptoms of the patient. It should
problems to evaluate the appropriateness of the be noted that perceptions and prejudices of others can
respective conceptualisations. also have a significant impact on whether a disabled
person can find employment or fulfil a socially valued
role.
2. Conceptualisations of quality of life in biomedical and
nursing literature 2.3. Utility

A wide spectrum of quality of life definitions exists in Another perspective related to this particular con-
the literature. In the early 1990s, Ferrans developed a ceptualisation of quality of life is the notion of utility.
useful taxonomy of quality of life conceptualisations Utility refers to preference-based health state valuations,
(Ferrans, 1996, 1990, 1992), grouping them into six which are frequently used in cost evaluations in health
broad categories: (1) normal life, (2) social utility, (3) care. Utility measures provide a quantitative estimate of
happiness/affect, (4) satisfaction with life, (5) achieve- preferences for particular health states, primarily ob-
ment of personal goals, and (6) natural capacities. In tained from a representative sample of the general
addition to these six conceptual approaches, we also population. For each health state a corresponding index
recognised utility and satisfaction with specific domains value ranging from 0 to 1 is computed. An index of 0
as possible conceptualisations. Although some of the corresponds to death while that of 1 corresponds to
conceptualisations are more recently recognised as not perfect health (Dolan et al., 1996).
representing quality of life, some investigators still use
them in their quality-of-life research. Therefore, it is 2.4. Happiness/affect
useful to discuss each of these conceptualisations.
This conceptualisation of quality of life focuses on the
2.1. Normal life emotional status of the patient or respondent and
reflects his/her feelings at that moment. Happiness/
Normal life is defined as the ability to supply basic affect concerns the balance between positive feelings
needs and to maintain health and well-being (Leidy, (elation) and negative feelings (depression) (Ferrans,
1994), or alternatively, as the absence of limitations in 1992). It is a temporary and sometimes short-term
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894 P. Moons et al. / International Journal of Nursing Studies 43 (2006) 891–901

affective state that is influenced by many external and professionals are asked to end life (Farsides and
internal factors. Therefore, happiness/affect can fluctuate Dunlop, 2001). Quality of life, from this perspective, is
significantly over time and may change from day-to-day. used to provide an answer to the question: Is this a life
With this conceptualisation, depressive symptoms and worth living? Assessment of quality of life in terms of
mood states are often measured as indicators of quality natural capacity is often made by proxies—both health
of life. care professionals and lay caregivers—who must em-
pathise closely with the patient, putting themselves in the
2.5. Satisfaction with life patient’s shoes in order to be able to make sound
decisions about how the patient’s health and health care
Satisfaction with life is the degree to which a person affects the patient’s quality of life (Addington-Hall and
positively evaluates the overall quality of his/her life Kalra, 2001).
(Veenhoven, 1996). Therefore, it refers to the level of
enjoyment and contentment with the life led so far
(Veenhoven, 1996). Satisfaction with life depends largely 3. Critique of the different conceptual approaches to
on a patient’s ability to have a life that fulfils his/her quality of life
personal needs (Karan et al., 1990). Its appraisal is
preceded by a cognitive evaluation of one’s personal life The diversity of approaches to defining quality of life
conditions. Thus, in this respect, satisfaction with life compelled us to make a critical appraisal of the value of
differs from happiness/affect, which is more emotion the various quality of life conceptualisations by analys-
driven. ing the limitations of each approach. Many articles and
book chapters about the concept of quality of life have
2.6. Satisfaction with specific domains been published. However, to date, these publications
have primarily focused on measurement issues and
Another related conceptualisation is satisfaction with psychometric properties, leaving conceptual issues un-
specific domains, which refers to the satisfaction one addressed. Some articles anecdotally report conceptual
experiences in various domains of life, such as love, shortcomings. In her paper ‘‘Quality of life research:
marriage, friendship, leisure, job, etc. (Diener et al., Rigor or rigor mortis’’, Kinney (1995) introduced
1997; Ferrans, 1992) The level of satisfaction with several conceptual problems. Through a review of the
specific domains can range from deprivation to fulfil- biomedical, psychological, and social sciences literature,
ment (Ferrans, 1992). we elaborated on the Kinney critiques and describe six
conceptual problems inherent to the notion of quality of
2.7. Achievement of personal goals life.

With this conceptualisation, quality of life is expressed 3.1. Quality of life vs. health status and functioning
in terms of the discrepancy between an individual’s
actual status and what he/she desires or expects The terms quality of life, health status, and functional
(Sartorius, 1989). This difference between expectations status are often used interchangeably (Bradley, 2001;
and actual experiences is referred to as Calman’s gap Gill and Feinstein, 1994; McDowell and Newell, 1996;
(Calman, 1984). The concept of achievement of personal Muldoon et al., 1998; Nanda and Andresen, 1998),
goals assumes that quality of life is enhanced if an usually by those who assume that a fully healthy life is
individual can accomplish his/her goals. Personal fulfil- identical to a high quality of life (Testa and Simonson,
ment, self-actualization, and satisfaction when compar- 1996). This assumption can be challenged, because
ing oneself with others are critical elements that define patients with significant health and functional problems
this conceptualisation of quality of life. do not necessarily have commensurable quality of life
scores (Carr and Higginson, 2001). Indeed, empirical
2.8. Natural capacity studies (Garratt and Ruta, 1999; Moons et al., 2005) and
a meta-analysis (Smith et al., 1999) substantiate that
Quality of life viewed in terms of natural capacity quality of life and health status are two distinct
encompasses the presence of normally inborn physical concepts, and should therefore not be used interchange-
and mental capabilities, both actual and potential. ably. For instance, an ardent fisherman who is a
Natural capacity deals with very fundamental needs: paraplegic—obviously, a bad health state in terms of
for instance, relief of severe pain or being able to interact mobility—can still have a good quality of life if he is able
with the environment. Definitions of quality of life in to go fishing, even though he is confined to his
terms of natural capacity are primarily developed for wheelchair when doing so. The phenomenon of a high
ethical debates and for cases in which the condition of a quality of life against all odds is referred to as the
patient or an unborn child is such that health care ‘‘disability paradox’’ (Albrecht and Devlieger, 1999).
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The interchangeable use of quality of life, health Consequently, individuals are the only ones who can
status, and functional status is reflected in the measure- reliably estimate their own quality of life (Ferrans,
ment of these concepts. For instance, several health 1996). This is especially apparent when comparing
status instruments have been developed such as the quality of life scores obtained from proxies to those of
Medical Outcome Study—Short Form-36 (SF-36) patients: The scores of proxies usually do not corre-
(Ware and Sherbourne, 1992), the Sickness Impact spond with those of patients. Additionally, quality of life
Profile (SIP) (Bergner et al., 1976), and the Nottingham scores vary depending on the proxy. Nurses and lay
Health Profile (NHP) (Hunt et al., 1981). While these caregivers generally overestimate the psychosocial im-
instruments were primarily developed to measure health, pact of a condition, while doctors consistently underrate
many researchers erroneously use them to measure the severity of symptoms (Addington-Hall and Kalra,
quality of life or—what they call—‘health-related 2001).
quality of life’ (Andresen and Meyers, 2000; Wiklund,
1990). It is reasonable, therefore, to question why these 3.3. Distinction between indicators and determinants
researchers often refer to these instruments as health-
related quality of life instruments when they were really There is a poor distinction between indicators and
measuring perceived health (Moons, 2004). The term determinants of quality of life (Stewart, 1992). Indica-
‘health-related quality of life’ is discussed in detail under tors are events or conditions that typically characterise a
heading 3.6. specific situation; they are ‘‘barometers’’. Determinants,
on the other hand, are defined as elements that
determine the nature of something (Merriam-Webster
3.2. Objective vs. subjective dimensions online: http://www.m-w.com/dictionary/), and can
therefore be considered as external factors that affect a
There is much debate about whether quality of life phenomenon. For instance, an indicator for prostate
constitutes objective dimensions, subjective dimensions, cancer is a significant rise in the production of serum
or both (Felce, 1997; Muldoon et al., 1998; Testa and prostate-specific antigen, whereas determinants of
Simonson, 1996). Objective dimensions refer to obser- prostate cancer are age, race, diet, family history, etc.
vable life conditions or physical functioning that can be From this example, it is obvious that the screening
operationalised by exercise tests. Subjective dimensions and diagnosis of prostate cancer requires the assess-
refer to the respondent’s perceptions. ment of the indicators rather than assessment of the
A conceptualisation of quality of life comprising both determinants.
objective (life conditions) and subjective dimensions The distinction between indicators and determinants
dominates research on quality of life (Felce, 1997; Haas, is also crucial for conceptualising quality of life. In the
1999; Testa and Simonson, 1996). However, there is a conceptualisation, one needs to distinguish between one
growing consensus that quality of life is a purely or more indicators of quality of life (e.g., What is quality
subjective experience (Cella, 1998; Haas, 1999), because of life? What refers to quality of life?) and one or more
it is unlikely that quality of life is strongly determined by determinants of quality of life (e.g., What contributes to
one’s objective life condition, but rather, quality of life is quality of life? What influences quality of life?) (Smith
determined by one’s subjective appraisal of one’s life et al., 1999).
condition. This conclusion is supported by findings from
the literature on the disability paradox (Albrecht and 3.4. Changes over time
Devlieger, 1999), which advances the idea that physi-
cally disabled persons unexpectedly experience a good Quality of life cannot be considered to be a static trait
quality of life, even though most external observers may (Carr et al., 2001; Wolfensberger, 1994). Individuals
assume that these people live an undesirable life may appraise their quality of life differently over time
(Albrecht and Devlieger, 1999). The disability paradox, (Carr et al., 2001) due to ever-changing life events,
therefore, addresses the disparity between objective illness progress, coping abilities, or cultural changes. In
conditions and subjective experiences. Recall the para- this context, the ‘‘Response Shift Model’’ was formu-
plegic fisherman. Objectively, his situation might appear lated in an attempt to explain how quality of life changes
adverse; his appraisal, however, may be more positive as a function of health state alterations (Sprangers and
since he is still able to engage in his hobby. Furthermore, Schwartz, 1999). A patient’s quality of life evolves,
objectively measured indicators of living conditions were because the relative weight of issues that are important
found to account for only about 15% of an individual’s to an individual’s quality of life (O’Boyle et al., 1992) or
quality of life (Day and Jankey, 1996). Therefore, it can expectations with respect to his/her life may change over
be concluded that quality of life has more to do with time (Carr et al., 2001). For an adolescent, for instance,
subjective well-being (de Weerdt et al., 1991) and life factors that importantly dictate his/her quality of life
satisfaction (Meeberg, 1993; Simko, 1999). will change as he/she grows older, because values and
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896 P. Moons et al. / International Journal of Nursing Studies 43 (2006) 891–901

priorities continually change in response to life stages Macduff, 2000). Focusing on health-related quality of
and circumstances (Carr and Higginson, 2001). life, investigators may substantially overestimate the
Moreover, research of diverse patient populations impact of health-related factors and conversely, may
indicate that quality of life is independently determined seriously undervalue the effect of nonmedical phenom-
by the level of an individual’s depressive symptoms ena (Gill and Feinstein, 1994). For instance, research of
(Mancuso et al., 2000; Moons et al., 2003; Ruo et al., patients with obviously severe conditions, such as
2003). Since depressive symptoms reflect a temporary Hodgkin’s disease patients and other patients requiring
affective state, quality of life will change accordingly. peripheral blood stem cell transplants, shows that only
Although we recognise that quality of life can change two-third of these patients indicated health as important
over time, it is unlikely that it is highly dynamic, rather for their quality of life (Frick et al., 2004; Wettergren et
quality of life probably fluctuates little from one day to al., 2003). Moreover, people whose health has changed
another. may report the same level of quality of life over time
(Carr et al., 2001).
3.5. Negative vs. positive components Hence, the concept of health-related quality of life is
subject for debate. Very often, health-related quality of
According to Hyland (1999), quality of life is life is used by researchers and clinicians who are actually
primarily measured in terms of limitations and impedi- referring to the perceived health of the patients (Moons,
ments, without considering positive elements that 2004).
contribute to quality of life. However, there are
numerous things that can contribute positively to a
person’s quality of life, as they add to life’s richness. 4. Evaluation of different conceptualisations
Even illnesses may be positively perceived. For example,
studies of cancer patients demonstrate that they have an To assess the appropriateness of conceptualisations or
increased ability to appreciate each day, due to definitions of quality of life, researchers should evaluate
enhanced personal strength, self assurance, and compas- these definitions on the basis of the conceptual problems
sion; the result is a higher overall quality of life described here. Table 1 illustrates whether the respective
experienced by cancer patients compared to that of the conceptualisations address the identified problems.
healthy population (Danoff et al., 1983; Fromm et al.,
1996; Taylor et al., 1984; Tempelaar et al., 1989). One’s 4.1. Normal life
positive personality or disposition toward life can also
contribute positively to one’s quality of life. Therefore, Defining quality of life in terms of normal life is a very
the conceptualisation of quality of life should explicitly functional approach and refers predominantly to the
include both positive and negative factors. patient’s health status. Frequently, objective parameters
of disease and health are used as indicators of quality of
3.6. Health-related quality of life life. Normal life emphasises functional problems but
fails to address positive elements contributing to quality
Health is consistently included as an important aspect of life. This type of conceptualisation is very often
of quality of life. Consequently, health-related quality of referred to as health-related quality of life. The one
life has been developed to describe aspects of an problem avoided by the normal life conceptual approach
individual’s subjective experience that relate both is that it recognises that the patient’s functional abilities/
directly and indirectly to health, disease, disability, and health status may change over time, but does not
impairment (Carr et al., 2001) and to the effectiveness of fluctuate greatly.
treatment. Health-related quality of life is often oper-
ationalised by assessing physical, mental/cognitive, and 4.2. Social utility
social functioning domains and by relying on the WHO
definition of health: ‘‘a state of complete physical, mental Since productivity and employment are critical
and social well-being and not merely absence of disease or elements in social utility, it is strongly linked with
infirmity’’ (World Health Organisation, 1947). performance and functional abilities. This relies pre-
This is in contrast to the assessment of quality of life dominantly on objectively observable roles. In this
in healthy people, in whom overall quality of life is respect, employment status, for instance, is presumed
measured. Note, however, that even in ill people the to be an indicator of quality of life (Hoang et al., 2004;
distinction between overall quality of life and health- Moons et al., 2004), even though employment status is
related quality of life is artificial, since patients must more likely to be a determinant of quality of life (Moons
distinguish between the part of their life influenced by et al., 2006). Focusing on socially valued roles is a
health and other parts of their life not appreciably positive approach to defining quality of life. As with
influenced by health (Anderson and Burckhardt, 1999; normal life, social utility consider that quality of life can
Table 1
Evaluation of the different conceptualisations according to conceptual problems

Conceptualisations

Normal life Social Utility Happiness Affect Satisfaction Satisfaction Achievement Natural
utility with life with specific of personal capacity
domains goals

Conceptual problems Quality of life differs from health + + + + +


status and functionality status
Subjective appraisal of quality of + + + + + +
life, instead of objective
parameters
Distinction between indicators and +
determinants of quality of life
Changes over time, but not highly + + + + + + +
fluctuating
Quality of life can be positively or + + + + + +
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negatively influenced
Overall quality of life in favour of + + + + +
health-related quality of life

+: Conceptualisation address the problem.


: Conceptualisation does not address the problem
P. Moons et al. / International Journal of Nursing Studies 43 (2006) 891–901
897
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have a dynamic aspect. Social utility mostly refers to the satisfaction with specific domains is more likely to be a
effect of health on the social roles. Therefore, it is often determinant, rather than an indicator of quality of life,
used in health-related quality-of-life studies. because only few aspects of life are addressed.

4.3. Utility 4.7. Achievement of personal goals

Utility measures refer to preference-based valuation Measuring quality of life in terms of achievement of
of health states, and do therefore overlook overall personal goals (i.e., the gap between expectations and
quality of life. This approach permits a subjective experiences) distinguishes quality of life from health.
appraisal. No distinction between indicators and deter- Moreover, this concept of quality of life requires a
minants is made. Since health state measures more aptly subjective judgment by the individual. The gap between
highlight the negative aspects of disease, focusing on expectations and experiences is used as the indicator of
health state valuations is more of a negative approach. quality of life, even though it is more likely to be a
Also the utility conceptualisation considers that quality determinant. Indeed, deviation of experiences from
of life can have a dynamic aspect. expectations is likely to have a negative impact on
quality of life. On the other hand, strong agreement
4.4. Happiness/affect between experiences and expectations positively con-
tributes to quality of life. Both expectations and
The happiness/affect conceptualisation of quality of experiences may change over time. Individuals can
life does not focus on health or functional status, but adjust their expectations as a means of successful coping
focuses on emotions and feelings. Thus, by definition, to changing circumstances (Carr et al., 2001). Since
this conceptualisation is subjective. However, happiness/ expectations and experiences are not restricted to health
affect can fluctuate significantly over time and may issues, the gap between expectations and experiences
change from day to day. Moreover, it is often regarded refers to overall quality of life rather than to health-
as an indicator rather than a determinant of quality of related quality of life.
life. Happiness/affect can include both negative and
positive feelings, depending on how researchers oper- 4.8. Natural capacity
ationalise it. Happiness is primarily used to depict
overall quality of life, while affect is primarily used in Quality of life viewed in terms of natural capacity
health-related quality of life. Therefore, we have split corresponds strongly to the presence or absence of a
happiness and affect as distinct conceptualisations in normal healthy condition. A clear distinction between
Table 1. quality of life and health in this approach is unlikely.
Natural capacity relies mostly on the appraisals of
4.5. Satisfaction with life health care professionals and lay caregivers, since
natural capacity is paramount in patients who are
Conceptualising quality of life as satisfaction with life unable to subjectively appraise their own quality of life
clearly distinguishes quality of life and health. Satisfac- (Addington-Hall and Kalra, 2001). It is doubtful that
tion with life refers to a subjective appraisal of one’s the absence of normal physical and mental capabilities is
personal life. Overall satisfaction with life can be deemed an indicator of quality of life, but rather a
considered to be an indicator of quality of life, because determinant of quality of life. Although physical and
one indicates how satisfied one is with one’s life as a mental capabilities do not tend to fluctuate greatly,
whole. Although satisfaction with life does change over alterations are possible. In this conceptualisation,
time, it clearly has some degree of constancy, even over emphasis is placed on the negative aspects affecting
prolonged periods (Diener et al., 1997). Because quality of life. Although natural capacity is strongly
satisfaction with life is a concept that emerged from associated with health, it is not necessarily limited to
the field of ‘‘positive psychology’’, it focuses on strengths health-related quality of life, since ethical debates on the
and talents as opposed to shortcomings and weaknesses. worthiness of life reflect all aspects of life.
Consequently, satisfaction with life corresponds to
overall quality of life and is not limited to health-related
quality of life. 5. Discussion

4.6. Satisfaction with specific domains Despite the increased interest in quality of life, there is
still no consensus on the definition of this concept.
In the fulfilment of the criteria, satisfaction with Moreover, it seems that the conceptual discussions has
specific domains is to a large extent comparable with tempered. To enhance the conceptual understanding of
satisfaction with life. The only difference is that quality of life, we used an alternative approach. In
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contrast with the methods of concept analysis, we evaluation suggests that defining quality of life in terms
identified problems of the various conceptualisations of satisfaction with life is most appropriate. Based on
of quality of life and evaluated the appropriateness of this finding, researchers and theorists can initiate
these conceptualisations, which have been used pre- conceptual debates with the aim of making quality of
viously in empirical quality-of-life research. To identify life a less ambiguous concept. Furthermore, these
the six problems, we largely relied on the work of debates may trigger empirical studies and further
Kinney, who critically appraised state-of-the-art quality- concept evaluations to confirm or reject the appropri-
of-life research in 1995 (Kinney, 1995). We choose this ateness of satisfaction with life as a quality-of-life
approach, because we observed that the traditional indicator.
concept analyses previously published had a rather
limited effect on quality-of-life research.
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