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continues to have a considerable impact on the long-term out-
come in children. The objective of designing Electronic Inte-
grated Text, Visual and Audio Questionnaire (EITVAQ) was to
develop a child-friendly tool, anticipating it will be a better tool
to measure child health status from a child’s perspective.
Methods This was a prospective crossover pilot study that com-
pared the outcome and completion rate between EITVAQ and a
printed text 2-paged paper questionnaire (TEXT). Children with
hydrocephalus from 8 years old to 16 years old were invited to
participate in this study from November 2015 to June 2016. EIT-
VAQ was created to be visual and audio automated using macros-
enabled function in Microsoft PowerPoint. Time of completion
for each format was recorded. All data were compiled and organ-
ised for statistical analysis using Software Package using Statistical
Analysis (SPSS).
Findings 24 children participated in this study. There was a
100% completion rate for EITVAQ with only 37.5% completing
the TEXT format. The mean time to complete EITVAQ was
7 min and the mean time for TEXT was 15 min. The mean score
for EITVAQ was was 16% higher in comparison to a mean score
of HOQ completed by proxy. The result suggested participants
with more surgical procedures tend to have a higher incomple-
tion rate of TEXT format by 18.9%. However, there was no cor-
relation found between GMFCS score and the incompletion rate.
Such results suggested that the incompletion rate in TEXT format
is likely secondary to a central cause rather than a physical cause.
Conclusions In this study, the results supported that EITVAQ is a
better tool to evaluate the health status of paediatric hydrocepha-
lus patients. Such encouraging results call for future research in
this area to develop EITVAQ as a validated tool and to be used
widespread across hydrocephalus patients to identify health status
issues, to enable them to access appropriate early intervention
and to improve their quality of life.
G498(P) HIP SURVEILLANCE FOR CHILDREN WITH CEREBRAL
PALSY: HOW WELL ARE WE DOING?
1
S Mohite, J Davis, 2C Woolley, 2J Saunders. 1Child Health, Royal Gwent Hospital,
2
Newport, UK; 2Child Health, Ysbyty Ystrad Fawr, Ystrad Mynach, UK
10.1136/archdischild-2017-313087.490
Introduction Children with Cerebral palsy (CP) are at risk of hip
sublaxation. Over time, hip sublaxation can lead to hip disloca-
tion, deformity and pain. Hip surveillance in the form of Hip X-
ray can identify early sublaxation. Evidence shows that early
intervention may prevent the need for major surgical procedure.
Aim To evaluate our practice of Hip Surveillance for Children
with Cerebral palsy.
Method We retrospectively looked at the database of children
with CP in our Health Board. We then searched on the clinical
work station for more details regarding CP type, gross motor
function classification system (GMFCS), frequency of hip X-ray,
migration index measurement on the hip X-ray and any ortho-
paedic intervention. NICE Guidance for hip surveillance was
used as the reference.
Results 60 patients below 18 years of age with diagnosis of CP
were identified. 65% of these children had bilateral CP. NICE
guidance advises hip X-ray for all children with Bilateral CP by 2
years of age. In our cohort of children only 28% of patients with
Bilateral CP had first X-ray by 2 years. NICE also recommend
Arch Dis Child 2017;102(Suppl 1):A1–A218
Abstracts
annual X-ray for all children with GMFCS 5/4/3. Only 20% of
our patients with GMFCS 5/4/3 had an annual X-ray as per
NICE recommendation. 25% of the hip X-ray reports mentioned
about the migration index. We introduced local hip surveillance
guidelines in our trust and since then annual X-ray rate in patient
with GMFCS 5/4/3 has improved from 20% to 50% and now
100% of the hip X-ray reports mention about the migration
index. We also noted that 13% of children on hip X-ray had
Migration Index >30%, of which half had hip dislocation and
were awaiting hip surgery.
Conclusions There is need for increased awareness of hip surveil-
lance in children with CP. We have seen improvement in annual
hip X-ray since introduction of local hip surveillance guidelines.
Timely recognition of patient with symptoms or radiological evi-
dence of hip subluxation is vital to minimise hip dislocation.
Recommendation To improve awareness of hip surveillance in all
Multi disciplinary team members looking after Children with CP.
G499(P) QUALITY OF LIFE OF PARENTS OF CHILDREN WITH
AUTISM SPECTRUM DISORDER AGED 3 TO 18 YEARS
LIVING IN AN URBAN AREA
MVJB Calonge-Torres, AL Reyes, EL Avendaño, CC Conducto, ML Bautista. Section of
Neurodevelopmental Paediatrics, Child Neuroscience Centre, Philippine Children’s Medical
Centre, Quezon City, Philippines
10.1136/archdischild-2017-313087.491
Autism poses numerous challenges on the family, thus, parents of
children with autism have poorer Quality of Life (QOL) com-
pared with other developmental conditions. The well-being of
children relies heavily on parental QOL which is affected by mul-
tiple parental and child factors. Identifying these factors will
guide us in creating programs to improve QOL and alleviate fam-
ily distress. This study aims to determine the QOL of parents of a
child with autism and compare it across parental and child factors
including adaptive behaviour and autism severity. Parents of chil-
dren with autism aged 3 to 18 years, diagnosed by Neurodeve-
lopmental Paediatricians at a tertiary children’s hospital were
included. Criteria for autism and severity were based on the
Diagnostic and Statistical Manual of Mental Disorders – 5th Edi-
tion. The WHOQOL-BREF was used to assess parental QOL
while the Vineland Adaptive Behaviour Scales – II was used to
assess the child’s adaptive behaviour. Demographic data were
also obtained. Results reveal the social relationship domain to be
significantly higher than the psychological, physical, and environ-
mental domains. Child gender, age, intervention, co-morbidity,
level of adaptive/maladaptive behaviour and autism severity did
not significantly affect parental QOL. Parental gender, education,
health status, hired caregiver, autism support group and parent-
training also did not significantly affect QOL. Employment,
income and parents living together were associated with higher
WHOQOL-BREF scores while primary caregiver role and use of
medications (child) were associated with lower scores. Factors
associated with QOL may be used to form strategies to alleviate
the burden of autism. Factors not affecting QOL such as autism
severity or adaptive behaviour highlight the parents’ ability to
cope despite the challenges.
Association of parental Quality of Life of with parent and
child factors.
A197
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G499(P) Quality of life of parents of children

with autism spectrum disorder aged 3 to 18
years living in an urban area
MVJB Calonge-Torres, AL Reyes, EL Avendaño, CC Conducto and ML
Bautista

Arch Dis Child 2017 102: A197

doi: 10.1136/archdischild-2017-313087.491

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