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Social Science & Medicine 73 (2011) 1477e1489

Contents lists available at SciVerse ScienceDirect

Social Science & Medicine


journal homepage: www.elsevier.com/locate/socscimed

Access to health care, reproductive health and disability: A large scale survey
in Sierra Leone
Jean-Francois Trania, b, *, Joyce Browneb, Maria Kettb, Osman Bahc, Teddy Morlaic,
Nicki Baileyb, Nora Groceb
a
Brown School of Social Work, One Brookings Drive, CB 1196, Washington University, St. Louis, MO 63130, USA
b
Leonard Cheshire Disability and Inclusive Development Centre, Department of Epidemiology and Public Health, University College London, 4 Taviton Street,
London WC1H 0BT, United Kingdom
c
Leonard Cheshire Disability, West Africa Regional Office, Sierra Leone

a r t i c l e i n f o a b s t r a c t

Article history: This is the first study to compare health status and access to health care services between disabled and
Available online 29 September 2011 non-disabled men and women in urban and peri-urban areas of Sierra Leone. It pays particular attention
to access to reproductive health care services and maternal health care for disabled women. A cross-
Keywords: sectional study was conducted in 2009 in 5 districts of Sierra Leone, randomly selecting 17 clusters for
Sierra Leone a total sample of 425 households. All adults who were identified as being disabled, as well as a control
Disability
group of randomly selected non-disabled adults, were interviewed about health and reproductive health.
Health care access
As expected, we showed that people with severe disabilities had less access to public health care services
Maternal health care
Reproductive health
than non-disabled people after adjustment for other socioeconomic characteristics (bivariate modelling).
However, there were no significant differences in reporting use of contraception between disabled and
non-disabled people; contrary to expectations, women with disabilities were as likely to report access to
maternal health care services as did non-disabled women. Rather than disability, it is socioeconomic
inequality that governs access to such services. We also found that disabled women were as likely as
non-disabled women to report having children and to desiring another child: they are not only sexually
active, but also need access to reproductive health services. We conclude that disparity in access to
government-supported health care facilities constitutes a major and persisting health inequity between
persons with and without disabilities in Sierra Leone. Ensuring equal access will require further
strengthening of the country’s health care system. Furthermore, because the morbidity and mortality
rates of pregnant women are persistently high in Sierra Leone, assessing the quality of services received
is an important priority for future research.
Ó 2011 Elsevier Ltd. All rights reserved.

Introduction maternal health services. General concern for slow progress in


improving child and maternal health (Victora, Black, & Bryce, 2007)
The principle of equal access to health services stated in Article is compounded when considering the situation of children and
25 of the United Nations Convention on the Rights of Persons with women with disabilities. To date, the health of persons with disa-
Disabilities (CRPD) will not be achieved unless the general health bilities in developing countries has been neglected by literature,
needs of disabled women and men in low income countries are and this is particularly true in post-conflict situations. The focus on
met. Nor will targets for Millennium Development Goals 4 on sexual and reproductive health, access to maternal health services,
gender equality or Millennium Development Goal 5 on maternal and other obstetric outcomes for women with disabilities are rarely
health be achieved unless disabled women attain equal access to studied due to assumptions that disabled women are not sexual
active and do not desire children (Groce & Trasi, 2004; UNDP,
2009).
* Corresponding author. Leonard Cheshire Disability and Inclusive Development Research on poverty and health focuses on the link between
Centre, Department of Epidemiology and Public Health, University College London,
4 Taviton Street, London WC1H 0BT, United Kingdom. Tel.: þ44 0 20 7679 4886;
poverty and vulnerability in general (Bornemisza, Ranson, Poletti, &
fax: þ44 0 20 7388 2291. Sondorp, 2010; Patouillard, Goodman, Hanson, & Mills, 2007). This
E-mail addresses: j.trani@ucl.ac.uk, jftrani@yahoo.fr (J.-F. Trani). literature shows inequalities in both access to general health care

0277-9536/$ e see front matter Ó 2011 Elsevier Ltd. All rights reserved.
doi:10.1016/j.socscimed.2011.08.040
1478 J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489

and specifically to maternal health services where poverty has been consequence of the war, however this still constitutes one in every
identified as a major cause for exclusion from antenatal and ten disabled people nationwide, a significant subgroup within the
maternal health services and is linked to higher maternal mortality larger disabled population (Statistics Sierra Leone, 2004). However,
(Graham, Fitzmaurice, Bell, & Cairns, 2004; Houweling, Ronsmans, the UNICEF Multiple Index Cluster Survey (MICS) found a disability
Campbell, & Kunst, 2007; Victora et al., 2007). This is relevant to prevalence among children of 23% (Statistics Sierra Leone & UNICEF,
persons with disabilities, who as a group, tend to be dispropor- 2007). There is also a strong regional difference in the prevalence of
tionately poor. disability reported e varying from 14% in the Western region to 37%
If poverty is a major cause for exclusion from health services, in the Southern region (Statistics Sierra Leone & UNICEF, 2007).
then being disabled compounds this exclusion. Much of the pub- To address the important gap in the literature about the health
lished evidence suggests that socioeconomic circumstances of of disabled people, our study examined health status and access to
persons with disabilities are often significantly worse than that of health services for persons with disabilities, with a particular focus
the rest of the population and access to services more limited, even on access to maternal health services for women with disabilities,
where poverty is widespread throughout the entire community in comparison to non-disabled members of the same community.
(Elwan, 1999; Yeo & Moore, 2003). Indeed persons with disabilities Our key question was how women and men with disabilities fare in
are more likely to be poor and unemployed, have less education, a society characterised by extreme poverty, limited resources, and
live in rural areas, and have less access to health care facilities than a potentially overwhelming set of competing development
their non-disabled peers (Bremer, Cockburn, & Ruth, 2009; Filmer, demands.
2008; Smith, Murray, Yousafzai, & Saonka, 2004; Stein, Stein, Weiss,
& Lang, 2009). Methodology
Only a tiny number of studies have looked at issues of access to
general and reproductive health care for persons with disabilities, Study design and sampling
and even fewer have paid attention to maternal and child health
care, and differential access to such services by disabled and non- A cross-sectional study was conducted in 5 urban and peri-urban
disabled women (Becker, Stuifbergen, & Tinkle, 1997; Bremer districts of Sierra Leone representing all 4 provinces of the country:
et al., 2009; Collins, Geller, Miller, Toro, & Susser, 2001; Gaskins, an urban area (Freetown) and rural districts in Western province,
1999; Groce, 2003; Trani, Bakhshi, Noor, Lopez, & Mashkoor, Koinadugu, and Bombali districts in Northern province, Bo district in
2010; UNFPA, 2007; WHO & UNFPA, 2009). Southern province, and Kono district in Eastern province. It was
Of the 179 countries assessed, Sierra Leone ranked lowest calculated that a sample of approximately 25 eligible households
overall in the Human Development Index in 2008 (UNDP, 2009); it from each of 17 clusters would be required to identify a represen-
ranks 128th among 135 countries for which a Human Poverty Index tative sample of persons with disabilities, assuming a disability
has been calculated (UNDP, 2009). The proportion of the population prevalence of 5%, with a statistical power of 90%, a significance level
below the poverty line of 1.25 USD per day is estimated at 47.7 per of 95%, and an estimated design effect of 2.5.
cent. The country has recently emerged from a brutal decade-long The first stage in the sampling was at the district-level. The
civil war during which civilians were victims of widespread district population frame was determined by using data from the
violence, including amputation of body parts, rape, and forced 2004 census. For the second stage of sampling, 2 villages or neigh-
labour (Ferme, 2001; Gberie, 2005; Mazurana & Carson, 2004). bourhoods from each of the 5 district-level clusters were randomly
Sexual and gender based violence was widespread during the selected, except in Freetown where 3 clusters were selected to
conflict and has continued to a lesser extent in the post-conflict account for the larger population size. For the third sampling stage,
period (World Bank, 2009). approximately 25 households were randomly selected from each
As a result of the conflict, the health care system, immunisations village or neighbourhood for a total sample of 425 households
and prevention of childhood illnesses programmes, as well as (Fig. 1). We interviewed disabled respondents as well as a control
systems to ensure access to food supplies, clean water, and basic group of 235 randomly selected non-disabled adults in the same
sanitation, were largely disrupted. Health indicators for Sierra households and in households in the same community with no
Leone reflect the impact of this decade of conflict: life expectancy at disabled people living in them. If willing to participate, respondents
birth is 39 years old for men and 42 years for women, while provided written or verbal consent. The rate of refusal was very
maternal mortality rate (MMR) reaches 2000/100,000 live births low (0.2%).
(UNICEF, 2005). It is estimated that 282 per thousand children die
before their 5th birthday e one of the highest rates in the world Variables and instruments
(World Health Organization, 2006). A major cause of infant
mortality is malnutrition, though acute respiratory infections, Socioeconomic (questionnaire module 1) and disability infor-
pneumonia, diarrhoeal diseases, typhoid fever, HIV/AIDS, and mation (module 2) was collected in each household by interview-
tuberculosis are the other major causes of morbidity and mortality ing all 424 heads of household. Based on the International
(World Health Organization, 2007). Access to basic resources e safe Classification of Functioning, Disability and Health (ICF) (WHO,
drinking water, improved sanitation and efficient health care 2001) as well as the Capability Approach (Sen, 1995, 1999),
services e continues to be the most pressing priorities for the disability was defined as the interaction between an individual’s
health sector. restriction or lack of ability to perform everyday activities due to an
In light of these worrying statistics, the health status of persons impairment in functioning within the environment in which that
with disabilities is of particular concern. Yet even identifying the person lives and the community and social resources, beliefs, and
disabled population is difficult: reported rates of disability within practices that enable or prevent a person from participating in all
Sierra Leone show considerable discrepancies, reflecting differences spheres of social life and taking decisions that are relevant to their
in data collection, accuracy, and definition of disability. According to own future. The survey tool was based on a 27-items disability
the national census, 2.4% of the population is disabled, with the most screening tool using the ICF and previously developed and tested in
frequently reported impairment being the limited function of legs Afghanistan, another low-resource and conflict setting (Trani &
(21%), visual impairments (19%), and blindness (7%). Only 9.5% of Bakhshi, 2008). This questionnaire was expanded to 35 items and
persons with disabilities reported they were disabled as a direct refined using a four-level Likert-type scale 1 ¼ no, never; 2 ¼ yes,
J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489 1479

Sierra Leone
Population: 6.440.053 (2004 census)
Administrative organisation: 4 provinces, 13 districts
Nationally representative random selection of
enumeration areas (EA)
Probability proportional to size random selection of
clusters within each EA
17 clusters selected from all 4 provinces:

Western province:
- Western Area Urban (Freetown): 1,173,022 (3 clusters)
- Western Area Rural: 174,249 (2 clusters)

Northern province:
- Koinadugu district: 265,765 (2 clusters)
- Bombali district: 424,100 (3 clusters)

Southern province:
- Bo district: 515,945 (4 clusters)

Eastern province:
- Kono districht 408.390 (3 clusters)

Random selection of 25 households in each


cluster

425 households randomly selected,


2190 individuals
Heads of household interviewed with modules 1 and 2 of
the questionnaire

931 children not eligible for interview


because the study focused on adults with
disabilities for access to maternal health

1259 adults screened for disability (module 2)


833 non-disabled individuals not
selected for the interview.
1 refusal to be interviewed
424 individuals interviewed with modules 3 to 7:
189 respondents with disabilities
235 non-disabled respondents randomly selected in same
households and in household where no one has been
identified as being disabled

189 men in sample were not included for the


maternal health care analysis.

235 women included in maternal health analysis:


- 102 women with disabilities
- 133 non-disabled women

135 women without a disability no disability 100 women with a disability


1

Fig. 1. Flow chart of sample selection approximately here.

sometimes; 3 ¼ yes, often; and 4 ¼ yes, constantly/always, then tested and validated in-country, literature reviews of existing
adapted and tested for internal consistency in Sierra Leone (Cron- health studies, and input from local advisors. The instruments were
bach’s a ¼ 0.85). Six types of disabilities were screened for: motor refined based on focus group discussions, input from key infor-
or physical disabilities, sensory disabilities, learning and develop- mants and pre-tests. Survey data were collected in June and July
mental disabilities, behavioural disabilities mood and affect 2009 by 4 trained local enumerators and 2 supervisors, all of whom
disabilities and neurological disabilities. 189 disabled adults over 18 had completed high school and were fluent in local languages of
who scored positive (response either ‘2’, ‘3’ or ‘4’) on any of the 35 Krio or Mende. The study was granted ethics approval by University
screening questions were all selected for interview. College London Research Ethics Committee.
Besides modules 1 and 2, we used a questionnaire comprising of
the following modules: 3- education; 4- health, reproductive health Data analysis
and access to sanitation; 5- employment; 6- livelihoods and 7-
social participation. Preliminary household and community survey We assessed the health situation of persons with disabilities with
instruments were designed based on existing questionnaires, a particular focus on access to maternal health services in Sierra
1480 J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489

Leone. We controlled for factors shown to be independently asso- active on the either informal or formal labour market) and wealth
ciated with disability, such as maternal health services and obstetric status. To assess the associated effects of gender, education and
history, desirability of pregnancy, location of habitation and ease of employment with disability on various health outcomes, we intro-
access to health services. For example, in Kenya, (Magadi, Madise, & duced three interaction terms for adult models (gender  severity of
Rodrigues, 2000) identified desirability of pregnancy, living in rural disability, level of education  severity of disability and employment
area and living away from the health facility, being unmarried, status  severity of disability), using the last two terms only for the
younger expectant mothers (<20 years) and being from a lower models on women. We attempted to assess the combined effect of
socioeconomic status to be correlated with smaller frequency of being a woman and having a disability, being educated and being
antenatal visits. Gyimah, Takyi, and Addai, (2006) looked at the economically active, on health and access to maternal health care.
influence of religion on maternal health use in Ghana and found that This is consistent with existing literature that shows that disability
Muslim women and those from Traditional religion were less likely associated with other factors of low socioeconomic background
than Christian women to make use of maternal health services. In results in social exclusion and poverty (Groce, kett, Lang, Trani, 2011;
Mali utilisation of maternal health services was found to be influ- World Health Organization & World Bank, 2011; Yeo & Moore, 2003).
enced by lack of transport and distance, the practices of other An asset index was calculated as a proxy of wealth status using
women living in the vicinity, household poverty and existence of principal-components analysis. Three groups of asset levels were
personal problems (Gage, 2007). In Burkina Faso, an important derived from the first factor of the analysis (Filmer & Pritchett,
positive effect in access was found, especially among poor women, 2001). This index is composed of 14 indicators referring to house-
after the integration of maternal health services into primary health hold or individual items (radio, television, video, mobile phone,
care services, highlighting the importance of close proximity pots and pans, refrigerator, bed net, bicycle, motorbike, car, tractor,
(Brazier et al., 2009). generator, lamp, sewing machine). The analysis was carried out
In absence of any established cut-offs and any gold standard, we using STATA 11. All statistical inferences were based on a 0.05
used frequency of occurrence of items to elaborate an overall significance level and we adjusted for cluster effect using the Huber
prevalence score of disability. No sign of disability corresponds to White sandwich estimator.
absence of positive answers to any of the 35 items (82.88% of the
total sample); ‘mild’ level of disability is reflected by one answer Results
“Yes, sometimes” to any of the 35 items (7.40%); ‘moderate’
disability when the respondent gave between 2 and 3 answers “Yes, Table 1 summarises socioeconomic characteristics as well as
sometimes” or 1 answer “Yes, often” (5.25%); ‘severe’ more than 3 primary health and maternal health indicators comparing disabled
answers “Yes sometimes” or between 1 and 3 answers “Yes, often” and non-disabled people by severity of impairment. We found
(2.05%) and very severe at least 1 answer “Yes constantly, always” a disability prevalence of 17.12%, of which 12.65% scored mild to
or more than 3 answers “Yes, often” (7.42%). moderate on the disability screening tool, and 4.47% scored severe/
To check for robustness, we alternatively classified responses to very severe.
items according to the number of positive answers within each of
the six dimensions defined above and obtained a similar prevalence Socioeconomic characteristics
score. Sensitivity analyses using this second categorisation yielded
similar findings. We regrouped the disability score in three cate- There is strong evidence (p < 0.0001) that a higher proportion of
gories: (1) no disability, (2) mild/moderate and (3) severe/very people with severe disabilities was below 30 years of age (49.25%,)
severe disability. For purpose of simplicity, we will refer to (1) no and was single (46.27%,) compared to non-disabled people
disability, (2) mild disability and (3) severe disability in the analysis. (respectively 36.06% and 23.42%). A higher proportion of severely
We intended to identify to what extent the latter group is vulner- disabled people than non-disabled people lived in urban areas
able e i.e. more susceptible than the general population e to risk (p < 0.001). A slightly higher proportion of non-disabled (45.64%)
factors that lead to poor health outcomes (Wagman, 2008). than disabled (44.78%, p ¼ 0.001) respondents never went to
We examined associations with self-reported health, access to school. Finally, a higher proportion of respondents with severe
public and private health care facilities, food intake and access to disability (31.34%) than non-disabled respondents (36.12%,
managed source of water and sanitation, use of contraception, p ¼ 0.019) belong to the lowest asset index group.
access to maternal health services, number of children and desire
for another child using binomial and one multinomial logistic Health and reproductive health characteristics
regression (for number of children). Self-reported health is
considered as a good appraisal of subjective health status, is widely The results show that 73.13% of respondents with severe disabil-
used and is sensitive to socioeconomic factors such as income and ities describe themselves as being in good or rather good health
social class (Chandola, Bartely, Wiggins, Schofield, 2003; Furnée compared to 89.11% of non-disabled respondents (p < 0.0001).
and Pfann, 2010). Public health efforts also reveal an interesting pattern. Generally
Particular attention was paid to exploring associations between the level of immunisation is high, although relatively lower for
disability, and other demographic and socioeconomic variables and people with severe disabilities (74.63% compared to 88.14% for non-
outcomes (use of contraception, access to obstetric health care, disabled people; p ¼ 0.003). Comparable numbers of disabled and
number of children and women’s desire to have another child). non-disabled people reported having access to safe drinking water
Four dimensions of maternal health services are included in the (88%), but access to a managed water supply (pipe or hand pump)
‘access to obstetric health care’ outcome: antenatal care, presence was slightly lower amongst people with severe disabilities (53.73%
of a trained birth attendant at delivery, delivery in a hospital or verses 58.46% for non-disabled or mild disabled; p ¼ 0.003).
other health care facility, and the perceived availability of emer- Level of satisfaction with health care received is quite high:
gency obstetric care. Number of children is widely used in research 80.6% of respondents with severe disabilities declared they were
to assess women’s obstetric history (Bekker & Dukel, 2005). satisfied or rather satisfied with health care services in Sierra Leone,
We adjusted for gender (except for maternal health care and compared with 93.74% of non-disabled respondents (p < 0.0001).
obstetric outcome models), severity of disability, age, marital status, In fact, some health indicators are surprisingly positive. 70.15% of all
residence, education level, employment status (people who were disabled respondents and 85.07% of non-disabled respondents said
J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489 1481

they could access a hospital in case of accident, injury or health Multivariable models
problem (p ¼ 0.001).
Persons with disabilities were more likely to use medication found Health and access to health care services
in street markets (p ¼ 0.011) and to try religious cures/prayers The association between self-reported health and socioeco-
(p < 0.0001) as part of their medical treatment. Average annual nomic characteristics was also investigated (Table 2). In both
individual health expenses represent a relatively high level of adjusted and unadjusted models, we found that people with
household income: 4.2% for persons with severe disabilities and about disabilities were more likely to declare being in poor health than
3% for non-disabled people. If we consider an average of 5 people per non-disabled people (model 1). In the adjusted model, people with
household, health expenses present a significant burden for most mild or severe disability were respectively 3.4 (95% confidence
families, particularly if only one or two members are working. interval, CI: 1.9e6.0) and 4.8 (95% CI: 0.8e27.3) times more likely to
Other indicators raise greater concern. Almost one third of declare being in poor health than non-disabled people were. There
respondents, whether disabled or not, reported eating only one was an extremely interesting exception however: people with
meal a day. Although disabled people had greater access to flush severe disabilities who worked were more likely to report being in
toilets, rates for all members of the community were low. Over half good health (OR 0.15 95% CI: 0.02e1.08). Similarly, more educated,
of all respondents did not know where to go for an HIV test. wealthier, younger and single respondents also reported higher
Finally, in terms of reproductive health, almost all non-disabled levels of perceived good health.
adults (91.63%) reported being sexually active within the past year. We also enquired about access to public health care services in
While these rates were lower for disabled individuals, it is note- times of illness (health centres and hospitals, Model 2) and private
worthy that 58.21% of all persons with severe disabilities and health care facilities (private clinics and doctors, Model 3). The
70.63% of all adults with mild disabilities reported being sexually perceived access to public services varied significantly according to
active. This contradicts common belief among the general public age group, severity of impairment, and level of education. People
and common assumptions within the medical and public health with mild or severe disability reported being less likely to access
circles, that persons with disabilities are not sexually active and public health care services than non-disabled people. It is of note
therefore in little need of sexual or reproductive health services that people with severe disability working used more public health
(WHO & UNFPA, 2009). care facilities but were less likely to use private facilities. Educated
Questions on access to maternal health services were asked of and wealthy respondents, disabled or not, also used more private
all women who had been pregnant in the past five years (n ¼ 119) facilities when health care was needed.
(Table 1. Women who had not been pregnant in the past 5 years
were not asked these questions and account for the missing data). Health and well-being
Access to antenatal care was reported by almost 90% of the total In addition to access to health care, questions regarding access
selected sample and was slightly higher for those with a disability. to food, clean water and basic sanitation were also asked in an
Almost an equally high proportion of women reported having had attempt to identify factors related to health and well-being. Models
a skilled birth attendant present during labour. Delivery in a clinic 4 and 5 in Table 3 show the association between food intake and
or hospital was reported as being accessible to about 79% of the access to a managed water source (pipe or pump) with the same
total population, and there was no significant difference between socioeconomic characteristics of respondents as in the previous
women with and without disability. Almost 75% of respondents, three models. Interestingly, non-disabled women were less likely to
both with and without disability reported having access to emer- eat three meals a day than non-disabled men. However this was the
gency obstetric care in case of emergency. In total, 62% of respon- opposite for women with disabilities compared to non-disabled
dents reported having access to all four services. Access was found men. We found that poorest people were more likely to have an
to be higher in the group of women with disabilities compared to insufficient daily food intake and rely on unmanaged water source.
women without disabilities. 30% of women with disabilities and
40% of those without reported incomplete access, with one or more Use of contraception
of the above services not available to them. Model 6 in Table 4 reports the relationship between use of
Contraception use is low throughout the population, with 67.3% modern contraception and socioeconomic characteristics. Young,
of the non-disabled respondents and 71% of persons with disabil- unmarried wealthier, and educated people were more likely to use
ities reporting that they did not use any form of contraception modern contraception whereas people living further away from the
(p ¼ 0.733). urban areas, married and older people were less likely to use it.
Adults with severe disabilities also reported being considerably
less knowledgeable about sex. When asked ‘who informed you about Access to maternal health care services
sex?’ 38.81% of adults with severe disabilities reported never having Model 7 in Table 4 shows no significant difference between
received any basic information, compared to 28.26% of non-disabled disabled and non-disabled women in accessing these maternal
individuals. Non-disabled respondents and individuals with mild health care services. Yet, interestingly educated women with
disabilities reported similar patterns of gaining information about disabilities reported lower access to maternal health care services
sex through the media. Interestingly, families were more likely to than uneducated non-disabled women. All women informed about
provide sex education to disabled members than non-disabled sexuality and those in the wealthiest group unsurprisingly reported
members, but the numbers were not high in either case. It was re- higher access to all maternal health care services. These findings
ported that severely disabled adults were more likely than other reflect a pattern of inequality in access to care linked to wealth
adults to be informed about sex by a teacher e 10.46% versus 7% e rather than impairment.
with mild/moderate disabled respondents reporting only 5.56%.
Also interestingly, women with mild disabilities were more likely Obstetric outcome: number of children and desire for another child
to have large families with 4 or more children than either non- Because research on family planning amongst persons with
disabled women or women with severe disabilities (p < 0.0001). disabilities has been sparse, particular attention was paid in this
However, 23.89% of women with severe disabilities also had 4 or study to asking disabled women about the number of pregnancies
more children, and 62.69% had at least one child. Finally, 55.63% of they have had, the number of live births, the number of children
all disabled women reported wanting another child. they now have and whether they would like additional children in
1482 J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489

Table 1
Descriptive data surrounding health and level of disability in Sierra Leone based on random sample of N ¼ 2190 Households.

Non-disabled Mild/moderate Severe/very severe Total P value


disability disability

N Percent N Percent N Percent N Percent


Prevalence in total sample (n ¼ 2190) 1815 82.88% 277 12.65% 98 4.47%
Proportion of Households with a person 581 26.53% 1609 73.47%
with disabilities
Socioeconomic characteristics
(in sub-sample, n ¼ 424)
Gender (n ¼ 423)
Male 101 43.16% 53 43.44% 34 50.75% 188 43.31% 0.46
Female 133 56.84% 69 56.56% 33 49.25% 235 56.69%
Age groups (n ¼ 423)
18e29 84 36.06% 27 22.22% 32 49.25% 147 35.60% p < 0.0001
30e39 76 32.39% 19 15.87% 6 8.96% 105 30.42%
40e49 32 13.85% 20 16.67% 7 11.94% 62 13.97%
50> 41 17.7% 55 45.24% 19 29.85% 109 20.01%
Marital status (n ¼ 423)
Single, never married 56 23.42% 25 19.84% 31 46.27% 112 24% p < 0.0001
Married, partner or engage 127 54.06% 58 49.21% 22 32.84% 207 52.97%
Married, polygamous 27 14.15% 16 12.7% 3 4.48% 46 13.70%
Divorced or widowed 24 8.37% 23 18.25% 11 16.42% 58 9.33%
Residence (n ¼ 424)
Urban 130 54.36% 77 64.29% 50 74.63% 257 55.77% 0.001
Rural 105 45.64% 45 35.71% 17 25.37% 167 44.23%
Province of residence (n ¼ 424)
Western province 78 29.98% 43 37.30% 24 35.82% 145 30.69% 0.455
Northern 73 33.96% 41 32.54% 21 31.34% 135 33.76%
Southern 51 22.03% 19 15.08% 13 19.40% 83 21.47%
Eastern 33 14.03% 19 15.08% 9 13.43% 61 14.08%
Education (n ¼ 424)
No school 110 45.64% 55 43.65% 30 44.78% 195 45.47% 0.004
Primary education 34 16.01% 13 10.32% 8 11.94% 55 15.48%
Secondary education 77 34.74% 40 34.92% 26 38.81% 143 34.90%
tertiary education 14 3.61% 14 11.11% 3 4.48% 31 4.15%
Asset index (n ¼ 421)
Poorest (40%) 91 36.12% 37 29.6% 21 31.35% 149 35.50% 0.019
Middle (40%) 99 44.97% 49 39.2% 33 49.25% 181 44.73%
Richest (20%) 43 18.91% 35 31.2% 13 19.4% 91 19.76%
Health Indicators
Self-reported health
Good, rather good health (n ¼ 423) 208 89.11% 90 74.6% 49 73.13% 347 87.54% p < 0.0001
Poor, rather poor health 26 10.89% 32 25.4% 18 26.87% 76 12.46%
Perception of heath care services (n ¼ 424)
Very or rather satisfied with health care 219 93.74% 102 84.12% 54 80.6% 375 92.61% p < 0.0001
Not satisfied 16 6.26% 20 15.88% 13 19.4% 49 7.39%
Access to toilet (n ¼ 424)
Access to flush toilet 30 13.06% 27 24.6% 13 19.4% 70 14.08% 0.001
Use of traditional pit, open backed or field 205 86.94% 95 75.4% 54 80.6% 354 85.92%
Access to safe drinking water (n ¼ 422)
Access 210 88.26% 108 89.6% 58 87.88% 376 88.34% 0.897
No access 25 11.74% 13 10.40% 8 12.12% 46 11.66%
Type of water supply (n ¼ 424)
Managed water supply 141 58.46% 71 59.52% 36 53.73% 248 58.36% 0.716
Unmanaged water supply 94 41.54% 51 40.48% 31 46.27% 176 41.64%
Level of immunisation (n ¼ 421) 210 88.46% 104 7.10% 50 74.63% 364 87.87% 0.003
Not immunised 24 11.54% 16 12.90% 17 25.37% 57 12.13%
Nutrition (n ¼ 424)
One meal a day 28 11.92% 19 15.08% 14 20.9% 61 12.46% 0.061
Two meals a day 138 59.24% 54 42.86% 35 52.24% 227 57.87%
Three meals a day 69 28.84% 49 42.06% 18 26.86% 136 29.67%
Access to health care (n ¼ 424)
Can get medical care 229 97.71% 113 92.86% 56 83.58% 398 96.87% p < 0.0001
Cannot get medical care 6 2.29% 9 7.14% 11 16.42% 26 3.13%
Access by type of facility
(no access not shown)
Public/community health centre (n ¼ 424) 171 72.91% 64 53.17% 35 53.73% 271 70.87% p < 0.0001
Hospital (n ¼ 424) 204 85.07% 94 77.78% 47 70.15% 345 84.03% 0.001
Private doctor 71 27.33% 26 23.81% 10 14.93% 107 26.65% 0.060
Private clinic 70 26.91% 26 23.81% 10 14.93% 106 26.27% 0.074
Pharmacy (n ¼ 423) 185 80.43% 96 79.37% 51 76.12% 332 80.25% 0.683
Street/market (n ¼ 423) 74 31.67% 50 42.86% 28 41.79% 152 32.85% 0.011
NGO (n ¼ 424) 30 9.75% 15 11.9% 8 11.94% 53 9.98% 0.637
Traditional medicine/healer (n ¼ 424) 77 33.05% 44 34.92% 20 29.85% 141 33.06% 0.775
Religious cure, prayer (n ¼ 424) 78 31.91% 52 41.27% 38 56.72% 168 33.44% p < 0.0001
J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489 1483

Table 1 (continued )

Non-disabled Mild/moderate Severe/very severe Total P value


disability disability

N Percent N Percent N Percent N Percent


Access to maternal/child health care 107 83.94% 45 83.33% 29 93.55% 181 84.23% 0.348
Antenatal visit (n ¼ 206)
(no access not shown)
Birth attended by a professional 106 83.47% 46 92.59% 29 93.55 181 84.33% 0.072
birth attendant
Delivery in hospital 99 76.03% 41 83.33% 27 87.10% 167 76.82% 0.181
Access to emergency care 98 75.68% 38 77.78% 24 80.00% 160 75.94% 0.818
Health expenditure
Total average health expenditure (in SLL) 124354.2 111405.4 173335.7 114050.5
% of total average yearly HH income 3.0 2.7 4.2 3.1
Indicator of reproductive health
Sexual activity during last year (n ¼ 424)
Sexually active 215 91.63% 86 70.63% 39 58.21% 340 89.00% p < 0.0001
Not sexually active 19 8.38% 37 29.37% 28 41.79% 84 11.00%
HIV/AIDS test(n ¼ 423)
Tested HIV 46 19.95% 23 18.25% 11 16.42% 80 19.71% p < 0.0001
Tested for other STD 11 3.7% 12 12.7% 6 8.96% 29 4.51%
Never tested 179 76.35% 84 69.05% 50 74.63% 314 75.79%
Where to go for HIV/AIDS test? (n ¼ 423)
Nowhere to go for HIV test 1 0.48% 2 1.59% 4 5.97% 7 0.76% p < 0.0001
I know where to go 106 45.53% 54 44.44% 23 35.82% 183 45.11%
I don’t know where to go 126 53.99% 65 53.97% 39 58.21% 233 54.14%
Whoever informed you about sex? (n ¼ 423)
No one 69 28.26% 36 28.57% 26 38.81% 131 0.003
Radio, TV, else 66 30.01% 38 30.16% 14 20.9% 118 29.69%
Healthcare staff 50 19.08% 24 19.05% 10 14.93% 84 18.93%
Family member 15 6.94% 11 11.9% 6 8.96% 33 7.35%
Friends 19 8.7% 6 4.76% 4 5.97% 29 8.33%
Teacher 14 7% 7 5.56% 7 10.45% 28 7.03%
Contraception (n ¼ 424)
No contraception 156 67.37% 90 71.43% 48 71.64% 294 67.80% 0.733
Condom use 40 14.93% 17 16.67% 8 11.94% 65 14.94%
Oral or injectable method 35 15.83% 14 11.11% 10 14.93% 59 15.48%
Traditional or other method 4 1.87% 1 0.79% 1 1.49% 6 1.78%
Sexual violence (n ¼ 417)
Ever forced to have sex 19 8.18% 11 8.87% 8 12.31% 38 8.37% 0.737
Never forced to have sex 213 91.82% 109 91.13% 57 87.69% 379 91.63%
Reproductive health (n ¼ 421)
No pregnancy 42 19.27% 18 14.29% 25 37.31% 85 19.58% p < 0.0001
1/2 pregnancies 55 22.58% 30 26.98% 11 16.42% 96 22.65%
3/4pregnancies 56 21.49% 18 14.29% 15 22.39% 89 21.04%
>4pregnancies 81 36.66% 55 44.44% 14 23.89% 150 36.73%
Desire for a child (n ¼ 419)
Desire a child in the near future 158 66.16% 62 52.80% 38 58.46% 258 64.99% 0.006
Do not desire a child in the near future 75 33.84% 59 47.20% 27 41.54% 161 35.01%

Note: Chi-square p-value for comparison between disabled, mild/moderate and sever/very severe. Few non responses for some variables (below 2%).

future. In this paper we focus on the latter two indicators. We found 2007). However, gaps in access to health care and health status also
that degree of disability was not consistently associated with exist between disabled and non-disabled people, whatever their
number of children (Model 8, Table 5) and desire to have another economic status. For instance, the survey demonstrated that disabled
child (Model 9, Table 5). people were more likely to report poorer health status than non-
Being educated was related to lower number of children, both disabled people. An extremely interesting exception to this was
for disabled and non-disabled women. Poverty was strongly those people with severe disabilities who have a paid work were
predictive of a higher number of children. Educational attainment more likely to report being in good health. Access to both public/
however does not, in the adjusted model, seem to impact signifi- community health care and hospitals were lower for disabled than
cantly on desire to have another child; all women belonging to the non-disabled individuals. Given the fact that overall persons with
wealthiest asset index group were more likely to express a greater disabilities are impoverished, and more likely to rely on public/
desire to have another child. community health services or public hospitals, the difference in
access between disabled and non-disabled individuals is of particular
Discussion concern .The findings in Sierra Leone, unsurprisingly, also demon-
strate that people in the poorest wealth quintile had the worse access
The findings of this study offer a pioneering contribution to to food, clean water, private health care services, and maternal
understanding the disparity in access to health care in a post-conflict health care.
country. It is a well-established fact that the poor in low income We already knew that disabled people experience the worse
countries are usually more in need of health care than their wealthier health outcomes and are among the poorest (Elwan, 1999; Groce
fellow citizens, and that wealth influences the odds of utilising health et al., 2011). Therefore, there is a need for improvements in
services (Brazier et al., 2009; Graham et al., 2004; Houweling et al., health and access to health care services for persons with
1484
Table 2
Logistic regression models for health status and health care access in Sierra Leone based on a random sample of N ¼ 424.

Model 1 Poor healtha Model 2 Access to public facilityb Model 3 Access to private facilityb

Crude 95% CI Adjusted 95% CI Crude 95% CI Adjusted 95% CI Crude 95% CI adjusted 95% CI
OR OR OR OR OR OR

J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489


Female (ref. male) 0.87 0.40e1.88 1.09 0.35e3.34 2.15 0.77e5.97 1.63 0.49e5.32 1.22 0.72e2.06 1.31 0.67e2.53
Mild/moderate disability 2.79*** 1.50e5.20 3.38*** 1.90e5.99 0.39*** 0.19e0.83 0.36** 0.12e0.99 0.85 0.57e1.25 0.53* 0.24e1.14
(ref. non-disabled)
Severe/very severe disability 3.01*** 1.44e6.27 4.80* 0.84e27.3 0.25*** 0.09e0.73 0.03*** 0.00e0.15 0.46*** 0.25e0.86 2.58 0.41e16.2
Disabled women (interaction) 3.15*** 1.30e7.57 1.25 0.29e5.37 0.44 0.11e1.67 1.65 0.40e6.69 0.30** 0.11e0.80 0.09*** 0.02e0.41
Age group 30e39 (ref. 18e29) 3.25** 1.16e9.09 3.39** 1.03e11.1 2.12 0.50e9.10 2.92 0.57e14.8 2.29** 1.00e5.30 1.71 0.52e5.51
Age group 40e49 6.19*** 2.61e14.69 3.81* 0.87e16.5 0.44 0.12e1.67 0.57 0.13e2.50 1.33 0.52e3.38 1.67 0.49e5.61
Age group >50 5.91*** 2.24e15.62 3.63* 0.90e14.5 0.91 0.22e3.85 1.32 0.19e9.13 1.40 0.60e3.27 1.90 0.48e7.44
Married, partner 2.65*** 1.28e5.49 1.09 0.41e2.88 1.03 0.36e2.94 1.59 0.27e9.40 1.54 0.57e4.10 1.74 0.49e6.12
or engaged (ref. not married)
Married, polygamous 7.53 2.79e20.34 2.50 0.52e11.9 0.87 0.20e3.68 2.22 0.25e19.1 0.53 0.12e2.30 0.85 0.15e4.74
Divorced or widowed 3.73 1.40e9.96 1.35 0.26e6.87 1.04 0.38e2.88 1.02 0.18e5.65 3.34* 0.90e13.40 2.41 0.42e13.6
Rural (ref. urban) 1.78 0.75e4.22 1.38 0.52e3.65 0.83 0.34e2.01 1.03 0.49e2.15 0.43** 0.19e0.99 0.60* 0.32e1.10
Primary education 0.89 0.31e2.52 1.01 0.30e3.33 3.52** 1.17e10.62 4.18*** 1.68e10.3 4.19*** 1.35e12.88 3.92** 1.22e12.5
(ref. no education)
Secondary education 0.25*** 0.12e0.58 0.48* 0.20e1.09 1.24 0.44e3.56 1.16 0.25e5.26 2.70** 1.04e7.02 2.32* 0.91e5.86
Tertiary education 0.19*** 0.06e0.63 0.21** 0.05e0.87 4.76*** 1.42e15.94 10.80** 1.07e108.42 10.12*** 2.18e47.08 6.39*** 1.46e27.8
Educated disabled 1.66 0.61e4.50 2.29 0.45e11.3 0.30** 0.09e0.95 0.81 0.12e5.13 0.70 0.34e1.44 1.44 0.24e8.45
person (interaction)
Working (ref. not working) 1.10* 0.43e2.78 0.78 0.30e2.02 0.32*** 0.16e0.63 0.08*** 0.03e0.21 1.64 0.85e3.18 2.10** 1.07e4.09
Active disabled 0.54* 0.13e2.21 0.15** 0.02e1.08 0.59 0.19e1.79 45.96*** 10.1e208.19 0.26*** 0.09e0.67 0.14** 0.02e0.80
person (interaction)
Poorest group (ref. richest) 3.87** 1.22e12.28 2.10 0.56e7.76 0.92 0.21e4.01 1.71 0.25e11.4 0.26*** 0.12e0.58 0.30*** 0.11e0.76
Middle group 5.34*** 2.10e13.52 4.66*** 1.79e12.0 1.01 0.21e5.20 1.23 0.18e7.96 0.48*** 0.26e0.88 0.42*** 0.21e0.83

Note: CI, confidence interval; OR: odds ratio. Control for cluster effect. Significant at the ***1% level (p  0.01), **5% level (p  0.05), *10% level (p  0.10).
a
the baseline outcome is good health, the other category is bad health.
b
the baseline outcome is no access to public health facility, the other category is access.
J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489 1485

Table 3
Logistic regression models for food intake and access to water managed source in Sierra Leone based on a random sample of N ¼ 424.

Model 4 Access to fooda Model 5 Managed water supplyb

Crude 95% CI Adjusted 95% CI Crude 95% CI Adjusted 95% CI


OR OR OR OR
Female (ref. male) 0.70* 0.34e1.47 0.68* 0.28e1.60 1.46 0.82e2.59 1.58 0.83e2.96
Mild/moderate disability 0.76 0.42e1.37 0.67 0.28e1.56 1.05 0.63e1.75 0.76 0.43e1.30
(ref. non-disabled)
Severe/very severe disability 0.51*** 0.38e0.69 0.42 0.12e1.43 0.83 0.32e2.10 0.59 0.12e2.81
Disabled women (interaction) 1.03 0.39e2.77 4.86* 0.88e26.7 0.85 0.29e2.52 0.63 0.24e1.66
Age group 30e39 (ref. 18e29) 0.25*** 0.13e0.46 0.21*** 0.08e0.53 1.03 0.52e2.03 1.31 0.71e2.39
Age group 40e49 0.56 0.19e1.60 0.56 0.17e1.74 0.69 0.29e1.68 1.37** 0.66e2.83
Age group >50 0.58 0.18e1.84 0.44 0.10e1.80 1.10 0.41e2.91 2.93 1.24e6.89
Married, partner or engaged 0.52* 0.25e0.98 1.15 0.44e2.98 0.95 0.33e2.79 1.04 0.35e3.05
(ref. not married)
Married, polygamous 1.63 0.40e6.63 4.74* 0.89e25.0 0.22* 0.04e1.28 0.23** 0.05e0.95
Divorced or widowed 0.30** 0.10e1.00 0.56 0.13e2.35 0.70 0.29e1.72 0.48 0.15e1.42
Rural (ref. urban) 0.76 0.27e2.14 0.68 0.13e3.42 0.54 0.12e2.37 1.32 0.32e5.37
Primary education (ref. no education) 2.64 0.35e20.17 3.66 0.54e24.4 1.74 0.75e4.05 1.80 0.78e4.08
Secondary education 1.65 0.80e3.44 1.39 0.66e2.88 2.20* 1.00e5.31 1.51 0.81e2.80
Tertiary education 0.92 0.18e4.74 1.01 0.18e5.51 3.76* 1.01e15.25 2.23 0.71e7.01
Uneducated disabled person (interaction) 0.43** 0.22e0.86 0.20* 0.03e1.06 1.18 0.43e3.20 1.35 0.19e9.53
Working (ref. not working) 0.67 0.39e1.04 0.95 0.40e2.23 0.67 0.29e1.60 1.06 0.43e2.56
Active disabled person (interaction) 0.52 0.20e1.32 1.20 0.16e8.69 1.29 0.40e4.18 2.21** 0.98e4.98
Poorest group (ref. richest) 0.23*** 0.08e0.77 0.23** 0.06e1.03 0.18** 0.05e0.76 0.20*** 0.07e0.59
Middle group 0.27** 0.09e0.85 0.27*** 0.10e0.78 0.41* 0.13e1.30 0.42* 0.14e1.16

Note: CI, confidence interval; OR: odds ratio Control for cluster effect Significant at the ***1% level (p  0.01), **5% level (p  0.05), *10% level (p  0.10).
a
the baseline outcome is one meal a day, the other category is two or three meals a day.
b
the baseline outcome is unmanaged water supply, the other category is managed water.

disabilities. This is of even greater concern when, as in Sierra Leone, turn, is likely to have a significant socioeconomic impact at the
disabled people represent a large section of the population. Our household level and on the population as a whole (Becker et al.,
finding of a 17% disability prevalence rate in urban and peri-urban 1997; Gaskins, 1999; Trani & Bakhshi, 2011). Meeting their needs
areas is significantly above the 2004 census estimates, but in line for better health would contribute to achieving the MDGs,
with the findings of the Multiple Indicator Cluster Survey (MICS) promoting equity and improving socioeconomic development
data for Sierra Leone which showed that 23% of children were nationwide (Marmot & Commission Social Determinants, 2007).
identified as disabled countrywide (Ferme, 2001). We found that Yet the study provides no strong evidence of differences in
73% of households in our survey have a disabled member, which in perceptions of health status or satisfaction with health services

Table 4
Logistic regression models for use of contraception and maternal health care access in Sierra Leone based on a random sample of N ¼ 424 and N ¼ 235.

Model 6 Use of modern contraceptiona Model 7 Access to maternal health careb

Crude 95% CI Adjusted 95% CI Crude 95% CI Adjusted 95% CI


OR OR OR OR
Female (ref. male) 1.44 0.72e2.91 1.06 0.44e2.49 NA NA
Mild/moderate disability 0.84 0.46e1.53 0.99 0.55e1.76 0.85 0.34e2.13 0.51 0.13e1.87
(ref. non-disabled)
Severe/very severe disability 0.81 0.48e1.36 2.58 0.52e12.6 1.79 0.45e7.21 11.73 0.09e1574.93
Disabled women (interaction) 0.84 0.43e1.63 0.81 0.27e2.40 NA NA
Age group 30e39 (ref. 18e29) 0.89 0.52e1.53 0.93 0.40e2.16 0.64 0.29e1.43 0.70 0.24e2.07
Age group 40e49 0.35*** 0.15e0.79 0.57 0.18e1.76 0.19** 0.03e1.11 0.11** 0.02e1.01
Age group >50 0.21*** 0.10e0.45 0.30*** 0.10e0.84 1.32 0.10e17.09 0.65 0.04e12.66
Married, partner or engaged 0.45*** 0.25e0.87 0.82 0.32e2.05 0.43 0.13e1.45 0.26*** 0.11e0.63
(ref. not married)
Married, polygamous 0.14*** 0.05e0.45 0.51 0.09e2.64 0.36 0.09e1.64 0.13* 0.01e1.15
Divorced or widowed 0.64 0.24e1.65 1.05 0.27e4.05 1.70 0.13e13.61 0.96 0.16e5.92
Rural (ref. urban) 0.38** 0.17e0.85 0.61 0.23e1.56 1.23 0.40e3.86 2.07 0.38e11.18
Primary education (ref. no education) 1.55 0.90e2.80 1.24 0.69e2.21 0.93 0.23e3.76 0.85 0.11e6.63
Secondary education 3.93*** 2.14e7.19 2.05** 1.02e4.11 1.56 0.52e4.67 0.90 0.21e3.90
Tertiary education 7.52*** 2.27e24.84 4.07*** 1.32e12.5 0.89 0.08e11.83 0.21 0.01e6.01
Educated disabled person (interaction) 1.07 0.43e2.66 0.44 0.08e2.11 0.74 0.21e2.57 0.03** 0.00e1.11
Working (ref. not working) 0.78 0.44e1.39 1.35 0.60e3.00 1.14 0.35e3.70 1.71 0.50e6.02
Active disabled person (interaction) 0.48* 0.15e1.51 0.27** 0.08e0.83 2.63 0.32e21.72 1.81 0.08e442.70
Poorest group (ref. richest) 0.37** 0.14e0.97 0.88 0.27e2.87 0.33* 0.07e1.67 0.30 0.04e2.15
Middle group 0.51 0.19e1.41 0.65 0.19e2.12 0.21*** 0.06e0.83 0.22** 0.05e0.98
Informed about sexuality 2.19 1.00e4.86** 1.61 0.70e3.66 2.68*** 1.14e6.35 4.96*** 1.77e13.91
(ref. not informed)

Note: CI, confidence interval; OR: odds ratio. Controlled for cluster effect Significant at the ***1% level (p  0.01), **5% level (p  0.05), *10% level (p  0.10).
a
the baseline outcome is no use of modern contraception, the other category is use.
b
the baseline outcome is no access or incomplete access to maternal health care services (antenatal service, trained birth attendant, delivery in hospital and emergency
service), the other category is access.
1486
Table 5
Logistic regression models for number of children and desire for another child in Sierra Leone based on a random sample of N ¼ 235.

Model 8: number of childrena Model 9 Desire for another childb

1e3 children 4 or more children

Crude 95% CI Adjusted 95% CI Crude 95% CI Adjusted 95% CI Crude 95% CI Adjusted 95% CI

J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489


OR OR OR OR OR OR
Female (ref. male) NA NA NA NA NA NA
Mild/moderate disability 1.76* 0.80e3.88 2.80* 0.78e10.12 2.79** 1.20e6.54 4.20** 1.12e15.80 0.49** 0.24e0.97 0.61 0.20e1.81
(ref. non-disabled)
Severe/very severe disability 1.04 0.47e2.30 3.50 0.18e69.35 0.82 0.28e2.45 1.72 0.10e32.72 0.58 0.27e1.28 0.61 0.16e2.38
Disabled women (interaction) NA NA NA NA NA NA
Age group 30e39 (ref. 18e29) 11.72*** 3.68e38.34 7.94*** 1.74e36.29 25.25*** 6.24e102.17 24.11*** 4.91e118.62 0.34*** 0.14e0.80 0.20*** 0.09e0.48
Age group 40e49 2.30 0.36e14.73 0.72 0.08e6.37 11.47** 1.46e90.51 3.69 0.29e47.07 0.05*** 0.02e0.16 0.03*** 0.01e0.15
Age group >50 3.37 0.45e25.05 1.31 0.11e15.44 19.04*** 3.33e108.84 13.84*** 2.12e90.18 0.07*** 0.02e0.23 0.02*** 0.00e0.09
Married, partner or engaged 18.54*** 7.78e40.21 10.92*** 2.59e46.08 54.95*** 10.34e291.98 16.27*** 1.92e137.64 0.65 0.33e1.27 7.20*** 2.21e23.38
(ref. not married)
Married, polygamous 6.59** 1.28e33.72 3.34 0.14e80.19 118.36*** 11.97e1169.54 16.25* 0.45e598.34 0.26 0.03e2.36 3.57 0.29e43.94
Divorced or widowed 8.34*** 3.60e19.29 4.05** 0.96e17.35 18.66*** 2.70e129.00 3.23 0.35e30.05 0.25*** 0.10e0.68 2.53 0.39e16.57
Rural (ref. urban) 1.89* 0.91e3.92 0.95 0.40e2.28 7.09*** 2.59e19.46 4.00** 1.01e16.35 0.38*** 0.21e0.68 0.44 0.15e1.31
Primary education (ref. no education) 0.49 0.28e0.82 1.11 0.26e4.72 0.23** 0.06e0.83 0.67 0.17e2.61 1.32 0.47e3.69 0.97 0.20e4.59
Secondary education 0.15*** 0.09e0.22 0.43 0.06e3.47 0.03** 0.01e0.12 0.28 0.03e2.43 3.70*** 1.57e8.70 2.01 0.50e8.22
Tertiary education 0.12* 0.05e0.25 0.20 0.01e7.54 0.07*** 0.01e0.60 0.56 0.01e31.09 1.75 0.34e8.83 0.86 0.06e13.23
Educated disabled person (interaction) 0.42** 0.17e1.01 0.19 0.02e2.41 0.37* 0.11e1.20 1.46 0.23e9.18 1.22 0.49e3.02 1.16 0.26e5.22
Working (ref. not working) 2.76** 1.17e6.57 0.75 0.22e2.54 3.87** 1.13e13.23 0.56 0.11e2.76 0.73 0.33e1.60 1.15 0.51e2.58
Active disabled person (interaction) 2.01 0.41e10.31 1.74 0.07e49.35 0.99 0.05e21.08 1.72 0.01e286.24 0.97 0.21e4.43 0.53 0.02e22.26
Poorest group (ref. richest) 3.31** 1.18e9.26 1.09 0.23e5.29 16.63*** 5.10e54.18 3.16 0.56e18.02 0.17*** 0.08e0.38 0.05*** 0.01e0.21
Middle group 2.05 0.68e6.19 0.95 0.25e3.65 7.09*** 2.61e19.27 4.19*** 1.26e14.00 0.23*** 0.12e0.48 0.06*** 0.02e0.21
Informed about sexuality 0.43* 0.17e1.04 0.65 0.07e5.95 0.25** 0.09e0.76 0.46 0.04e5.28 0.86 0.38e1.96 0.47 0.18e1.25
(ref. not informed)

Note: CI, confidence interval; OR: odds ratio. Controlled for cluster effect. Significant at the ***1% level (p  0.01), **5% level (p  0.05), *10% level (p  0.10).
a
the baseline outcome is no children, the other two categories are 1e3, 4 or more children.
b
the baseline outcome is no other child wanted, the other category is another child wanted.
J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489 1487

between disabled and non-disabled individuals. Disabled people care facilities than non-disabled women, although further research
indicated they were in good health (73%) and were satisfied with is needed to determine this.
public health care services available (80%). These are unexpected Nevertheless, if women are routinely being over-referred to
results: others studies have usually found that disabled people are more advanced clinical services just because they are disabled, such
excluded from both public and private health care services (Groce referrals constitute an additional barrier to accessing care because
et al., 2011; Trani & Loeb, in press) and that public health care of the increased costs, distance and time needed to get pregnant
systems do not reach vulnerable groups (Brazier et al., 2009; women to such facilities. Such findings have already been reported
Castro-Leal, Dayton, Demery, & Mehra, 2000; Chowdhury et al., in Cameroon where pregnant disabled women reported they fear
2006; Zere, Moeti, Kirigia, Mwase, & Kataika, 2007). One possible being sent to health care centres even in urban areas, due to high
explanation for this counterintuitive result is that the overall state out-of-pocket costs and physical barriers (Bremer et al., 2009). As
of health and well-being for all Sierra Leoneans continues to be these studies in Zambia and Cameroon were qualitative in nature
extremely low, and responses from persons with disabilities are they do not quantify the differences in access or perceived barriers.
comparable to much of the rest of the population. Given the In Sierra Leone, in urban and peri-urban areas, comparable barriers
preceding decade of war and social disruption, it is possible that were not reported as major limitations to women with disabilities
few in Sierra Leone e disabled or non-disabled e expect much from in accessing maternal health care services.
their health care services. However, this is not conclusive as in the Education, which provides both a greater knowledge base and
aftermath of conflict, a range of interventions and services were more income potential, is one of the most important determinants
made available by the government, UN agencies and NGOs, which to access to general health care and to maternal health services
may have reached many who went without services in the civil war. (Glei, Goldman, & German, 2003). Although educated people in our
Certainly, levels of immunisation coverage for both disabled and study more frequently reported being in bad health, they had better
non-disabled groups are high. access to managed water sources, to public and private health care
However, some indicators are of concern: access to managed services, and were more likely to use contraception. In contrast, we
water supply and sanitation facilities for persons with disabilities found that educated women were not significantly more likely to
was relatively poor, and health expenses remained high comp- access maternal obstetric health care when compared to unedu-
ared to family income. These findings suggest that improved cated non-disabled women e which may reflect issues around
service coverage is needed to provide universal, free and equi- quality of services.
table access to health care. Given the existing gap between access The effect of education may also be seen in the fact that
to general health care by disabled people in comparison to non- educated disabled women were more likely to have fewer children,
disabled individuals, improvement in public health services may as is true of women more generally. This is an important finding.
lead to a widening the gap between disabled and non-disabled Unfortunately however, disabled women were significantly less
people. likely to receive any sex education than non-disabled women, even
Evidence from our research suggests that poor uneducated in societies where education for all women is low (UNFPA, 2007).
people in general less frequently accessed private doctors and The results underscore the importance of including persons with
clinics but not public health facilities. Findings also show that disabilities e and disabled women in particular e in educational
disabled people had less access to public facilities, and even when initiatives in general and reproductive health initiatives in partic-
working, disabled people, had less access to private facilities than ular, if effective headway is to be made in family planning.
non-disabled working people. Thus, disability may be a source of Finally, this survey found that while men and women with
exclusion per se. It may also be a factor e in association with low disabilities did not report as high a rate of sexual activity, birth
socioeconomic status e to low usage of health care services. In rates, or desire for an additional child as their non-disabled peers,
other words, people with disabilities tend to have less access to the vast majority of all disabled persons were sexually active, had
health care because they have fewer opportunities for education, families of two or more children and wanted more children in
job training and employment and are thus, at the end of the day, future. This is, we argue, a wholly original finding in the literature
poorer. Programmes aiming at improving access to public health to date.
services should account for this, and prioritise disabled people from Our data should be interpreted in light of several limitations.
low socioeconomic groups. The possibility of a chance finding should be considered, especially
Interestingly, our findings did not show any significant differ- given some unexpected results. Notably, only 119 women answered
ences between disabled and non-disabled women in accessing the questions on pregnancy and family planning as this was the
maternal health care services. Between 78% and 88% of women number that had been pregnant in the last five years. In order to
reported having access to any of the four types of maternal health refute the possibility of a chance finding, a comparable study, with
care services and 62% indicated having access to all four, which also a larger sample should repeat the same survey questions. Aside
correspond with earlier observations in the CWIQ (Statistics Sierra from Freetown, the four other regions in Sierra Leone surveyed
Leone, 2007) and DHS (Statistics Sierra Leone, 2008). However, this were provincial towns or villages. Although these villages were
reported relative availability of access to maternal health services relatively distant from urban areas (at least a 30 min drive), they
for both disabled and non-disabled women is still surprising given were still accessible by car and there was regular contact with the
the high rate of maternal mortality in Sierra Leone. This unexpected urban area. Therefore these areas should not be considered remote
result is in contrast with two small qualitative studies conducted in rural areas, but peri-urban settlements. Thus, this study provides
Cameroon and Zambia (Bremer et al., 2009; Smith et al., 2004). In insight into the situation in urban and peri-urban settings only.
the Zambian capital of Lusaka, disabled women reported various Future research will be needed to assess the situation in more
barriers in accessing reproductive health services including nega- remote rural areas of Sierra Leone, which we anticipate may differ
tive attitudinal barriers by health care providers who assumed that significantly from findings in this study. The possible differences
women with disabilities were and should be, sexually inactive. This between urban and rural populations may be of particular concern,
study also found that there was a tendency for midwives and because of our finding that persons with disabilities rely more
nurses to over-refer women with disabilities to tertiary facilities out heavily on public/community health services and hospitals.
of fear of complications. This may also explain why disabled women Currently in rural Sierra Leone such public/community health
in Sierra Leone reported higher rates of access to maternal health centres and hospitals are largely unavailable. Also, although this
1488 J.-F. Trani et al. / Social Science & Medicine 73 (2011) 1477e1489

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