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Participation of Students With Physical Disabilities in the School Environment

Article  in  The American journal of occupational therapy.: official publication of the American Occupational Therapy Association · May 2009
DOI: 10.5014/ajot.63.3.264 · Source: PubMed

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Participation of Students With Physical Disabilities
in the School Environment

Snaefridur Thora Egilson, Rannveig Traustadottir

KEY WORDS OBJECTIVE. We investigated the factors that facilitate or hinder school participation of students with physical
•  disabled children disabilities and explored the interaction of those factors.
•  education METHOD. The study used a mixed-methods design that used qualitative and quantitative data. Qualitative
•  environment design data were gathered on 49 participants: 14 students, 17 parents, and 18 teachers. Data analysis was based
on grounded-theory procedures. Quantitative data were gathered on 32 students using the School Function
•  socialization
Assessment.
•  task performance and analysis
RESULTS. The characteristics of each school setting influenced students’ participation. Some settings
presented more challenges than others, particularly those with open spaces and limited structures such as the
school playground and field trips. Possibilities of student participation decreased with increasing numbers of
risk factors, but the interaction between factors was equally important.
CONCLUSION. To promote school participation of students with disabilities, occupational therapists should
consider a confluence of child, environmental, and task factors rather than focusing on individual aspects.

Egilson, S. T., & Traustadottir, R. (2009). Participation of students with physical disabilities in the school environment.
American Journal of Occupational Therapy, 63, 264–272.

S
Snaefridur Thora Egilson, MSc OT, PhD, is everal studies have revealed that students with physical disabilities often have
Associate Professor, Faculty of Health Sciences,
difficulties with participation in school activities (Eriksson, Welander, &
Occupational Therapy Program, University of Akureyri,
Akureyri, Iceland; sne@unak.is Granlund, 2007; Hemmingsson & Borell, 2000, 2002; Mancini, Coster, Trombly,
& Heeren, 2000; Pivik, McComas, & LaFlamme, 2002; Prellwitz & Tamm, 2000;
Rannveig Traustadottir, PhD, is Professor, Center of Schenker, Coster, & Parush, 2005). It is often difficult, however, to establish the
Disability Studies, Faculty of Social Sciences, University of
Iceland, Reykjavik.
extent to which the challenges that students encounter are related to individual
factors or the inability of the environment to accommodate students’ needs. Several
environmental issues have been found to affect the participation of students with
physical disabilities (Hammal, Jarvis, & Colver, 2004; Hemmingsson & Borell,
2000, 2002; Hemmingsson, Borell, & Gustavsson, 1999, 2003; Law et al., 1999;
Simeonsson, Carlson, Huntington, McMillen, & Brent, 2001). Although inclusion
of students with disabilities has been advocated for years, the construction and archi­
tectural design of most school buildings is still aimed to fit the population of students
without disabilities. Physical barriers most often noted include distances; heavy doors;
steep ramps; and rough surfaces, such as uncut curbs and thresholds (Hemmingsson
& Borell, 2000; Palisano et al., 2003; Tieman, Palisano, Gracely, Rosenbaum, et
al., 2004). Settings characterized by unpredictable movement, speed, and distances
typically create difficulties for students with physical disabilities (Palisano et al.,
2003; Tieman, Palisano, Gracely, & Rosenbaum, 2004). Natural spaces are also a
challenge in areas with uneven terrain and unstable weather conditions.
Despite international agreements on inclusion—such as the Salamanca State­
ment (U.N. Educational, Scientific, and Cultural Organization, 1994), which
264 May/June 2009, Volume 63, Number 3
highlights the importance of providing education for all streamed schools and, in particular, to identify the major
within the regular education system—the main hindrances influences on student participation. The study examined
to school participation are sometimes found in factors these concerns by posing the following research question:
­connected to rights and government administration. How do environment, task, and student characteristics inter­
Organizational issues affecting accessibility, such as failure act to facilitate or hinder school participation?
to plan or seek advice about access when constructing or
renovating school buildings, reveal the influence that insti­
tutional aspects may have on the physical environment Method
(Lightfoot, Wright, & Sloper, 1999; Pivik et al., 2002). A The study was conducted using a mixed-methods design
successful inclusive school climate depends on a supportive incorporating qualitative and quantitative data. The qualita­
school community and efforts by school staff regarding tive and quantitative data were collected simultaneously,
accommodation and instructional needs (Destefano, Shriner, although the qualitative inquiry guided the project. The
& Lloyd, 2001; Flavell, 2001; Pivik et al., 2002). Cultural quantitative data played a supportive role to augment and
and attitudinal barriers may entail a lack of understanding provide additional sources of information. This embedded
by teachers and support staff and result in assigning assis­ design provided the study with information from different
tance to students instead of adapting or equalizing curricu­ types of data and from different levels within the study. The
lum or settings (Giangreco & Broer, 2005). collection of both descriptive data and numeric information
Several attributes of the child also have an impact on was an attempt to produce well-validated findings and shed
educational participation. These may include physical, cog­ light on the complexities of the subject under study (Creswell,
nitive, and communicative skills; emotional, behavioral, and 2003, 2008; Tashakkori & Teddlie, 1998).
social function; activity preferences; sense of control; self- The qualitative inquiry was informed by a grounded
efficacy; and age and gender (King et al., 2003; Law, 2002). theory approach, in which the analyses of action and process
Impairment can restrict activity considerably (Battaglia et are completed through the constant comparative method of
al., 2004; Beckung & Hagberg, 2002; Coster & Haltiwanger, inquiry (Bogdan & Biklen, 2003; Strauss & Corbin, 1998).
2004; Mancini & Coster, 2004; Mancini et al., 2000; Qualitative data were collected through participant observa­
Richardson, 2002; Schenker et al., 2005; Simeonsson et al., tions and semistructured interviews exploring the views and
2001). Although a direct correlation between the type and experiences of students, teachers, and parents. Longitudinal
severity of impairment and the skill a child will demonstrate data were obtained to gain an understanding of variations
cannot be assumed, impairments related to limitations of over time and across environments. Much of the data, how­
movement, sensation, cognition, and pain or fatigue may ever, were cross-sectional and focused on a student while at
bring about challenges that can affect school participation. a certain grade level. The School Function Assessment (SFA;
Thus, characteristics of the school environment and Coster, Deeney, Haltiwanger, & Haley, 1998) was used to
the tasks performed in different educational contexts affect gather quantitative data on students reflecting the character­
the possibilities of students with disabilities to apply their istics of the key participants in the qualitative part of the
skills consistently across school settings. Various attributes study. The instrument provides detailed information that
of the child may also influence the extent to which adapta­ could not be obtained through interviews or during school
tions in the school environment can accommodate his or observations. The data collected from the two methods were
her needs. Within occupational therapy it has been recog­ compared and contrasted for similarities and differences
nized that behavior is influenced by and cannot be sepa­ during the analysis and interpretation phase. The study was
rated from contextual influences. The Person–Environment– carried out by Snaefridur Thora Egilson and approved by
Occupation (PEO) model (Law et al., 1996) reflects the the Icelandic National Bioethics Committee.
perspective that problems in occupational performance are
produced in the relationship among people, the environment Qualitative Data
in which they live, and the daily tasks that they perform. It Study Participants. A total of 49 participants were in the
is, however, difficult to find empirical data to describe this qualitative arm of the study: 14 students with physical dis­
interaction in detail in the literature. A limitation in some of abilities (defined as key participants), 17 parents, and 18
the research on participation of students with disabilities teachers. Participants were recruited from the disability
concerns a lack of examination of the confluence of factors records of the Icelandic State Diagnostic and Counseling
that may affect school participation. Center and selected through a purposeful sample designed
The purpose of this study was to explore the participa­ to reflect major variations in the student group and the
tion of Icelandic students with physical disabilities in main­ school environment. The students were 6 to 12 years old,
The American Journal of Occupational Therapy 265
two in each grade from 1 to 7; all had physical impairments Quantitative Data
caused by medical conditions such as cerebral palsy, myelo­
Study Participants. Participants were selected by a pur­
meningocele, or neuromuscular disorders. Children with
posive national sample according to the same criteria as the
co-occurring intellectual disabilities were excluded, but seven
key participants in the qualitative arm. A list of 40 potential
students had secondary impairments such as attention deficit
participants with movement impairments was compiled.
disorders or mild learning impairments or used alternative
The children’s parents were contacted and informed about
communication. The participating children came from 11
the study. Once a parent had signed a consent form, the
schools located in different parts of Iceland. The demo­
child’s teacher was contacted and asked to provide informa­
graphic characteristics of the study participants are summa­
tion about the student by completing the SFA. Thirty-five
rized in Table 1.
SFA forms were returned. Three were excluded because they
Procedure. The parents were contacted by phone and
did not fulfill the criteria on students’ functional character­
informed about the study. When a signed consent form had
istics, leaving 32 forms for analysis, 14 for boys and 18 for
been obtained, the student’s teacher was contacted and
girls (see Table 1). All students had a primary physical
asked to participate. With one exception, all contacted fami­
impairment, and 47% had an additional impairment such
lies agreed to participate. The time to visit each school was
as attention deficit disorder or expressive-language limita­
set in cooperation with parents and teachers. Before inter­
tions; those characteristics are consistent with those of the
views and observations, guides were developed to list issues
students in the qualitative arm. SFA data were obtained on
to be explored and discussed. Participants were asked about
11 of the 14 students in the qualitative component.
a typical school day, how the child was faring at school,
Instrument. The SFA (Coster et al., 1998) is a criterion-
whether or not she or he actively participated in different
referenced instrument designed to measure a student’s par­
school settings, how the school accommodated the child’s
ticipation in and performance of school-related functional
needs, and the communications and relationships between
home and school.
On average, each student was observed for 4 hr in one Table 1. Characteristics of the Participating Students in the Study
session; the focus was on his or her participation in relation
Qualitative Quantitative
to events occurring in the setting, the interaction within peer Sample Sample
groups, and the interaction between students and adults. A (N = 14) (N = 32)
total of 13 school observations were made. Interviews with Fre- Fre-
quency quency
teachers and students took place at school; interviews with n % n %
parents occurred in their homes. The interviews lasted 40 to Gender
80 min and were conducted in a conversational manner,   Boys 9 64 14 44
encouraging respondents to tell their stories in their own   Girls 5 36 18 56
way. Interviews were conducted with 17 parents, 18 teachers, Grade level
  First, second 4 29 11 34
and 9 students. Two children did not want to be inter­
  Third, fourth 4 29 12 38
viewed, and 3 were either considered to be too young or had
  Fifth, sixth, seventh 6 43 9 28
problems with verbal expression. The parents of these chil­ Diagnosis
dren were asked about their child’s perspective on his or her   Cerebral palsy 8 57 16 50
school participation. The School Setting Interview   Myelomeningocele 2 14 6 19
(Hemmingsson, Egilson, Hoffman, & Kielhofner, 2005),   Neuromuscular disorders 3 21 8 25
which considers students’ opportunities for participating in   Musculoskeletal disorder 1 7 2 6
school activities and environments, was used as an interview   Specific learning needs 7 50 15 47
  Alternative communication 2 14 2 6
guide in the student interviews. Questions were occasionally
Student’s primary means of mobility
added to follow up on issues that emerged from participant
  Walks on own 3 22 10 31
observations or interviews with parents or teachers. All inter­   Crutches, cane, or walker 3 22 7 22
views were tape recorded and later transcribed verbatim for   Manual wheelchair 1 7 4 13
analysis. In addition to the formal interviews, informal dis­   Electric wheelchair 1 7 2 6
cussions with students, teachers, and assistants took place   Other (braces, walks with assistance) 3 22 5 16
during fieldwork and were included in the field notes.   Transferred by others 3 22 4 13
Follow-up telephone interviews were conducted with all School location
  Capital area 8 57 19 59
parents 1 year after the initial data gathering to gain a longi­
  Other 6 43 13 41
tudinal perspective.
266 May/June 2009, Volume 63, Number 3
tasks and activities. It was constructed with the needs and of the scales. Percentages of ratings at scale values in Part I,
situations of elementary school children in mind and focuses Participation, also were examined to further reflect variations
on areas that typically are challenging for students with among Icelandic students.
physical disabilities. The instrument is completed by one or The information from the qualitative and quantitative
more school professionals who know the students’ everyday data was then combined to seek convergence among the
performance on the activities being assessed. The SFA con­ results (Creswell, 2003). After examining the information
sists of three parts. Part I, Participation, is used to examine acquired in terms of competing theories, the adapted PEO
the student’s level of participation in six different school model (Law et al., 1996) was used to provide an analytic
environments: regular or special education classroom, play­ structure for the organization of the findings.
ground or recess, transportation to and from school, bath­
room and toileting activities, transitions to and from class,
and mealtime or snack time. In each setting, a 6-point rating Results
scale is used to indicate whether the student’s participation Some contexts within the school environment facilitated
is similar to that of same-age or -grade peers. Part II, Task involvement, whereas others were more challenging to chil­
Supports, measures the assistance and adaptations provided dren with physical disabilities. Changes in participation
to the student in school-related functional tasks. Part III, occurred as a consequence of the interaction between the
Activity Performance, examines the student’s performance child and the environmental aspects and educational tasks
in common school activities, such as moving around the characterizing each context. The following sections address
classroom, using school materials, and communicating these three dimensions in more detail and then focus on their
needs. The SFA yields a comprehensive description of a stu­ interaction.
dent’s participation, support needs, and functional perfor­
mance in school. It can help identify areas of limitation not Environmental Characteristics
previously recognized, prioritize among areas in need of Various aspects in the natural and constructed school envi­
program planning, and assist in documenting progress and ronments were essential for student performance. Most
the effects of intervention (Coster et al., 1998). school buildings were only partly accessible to students with
Procedure. Consistent with the standard method of scor­ physical disabilities. Distances within school premises com­
ing the instrument, the informants (typically classroom plicated the situation, and cluttered hallways and classrooms
teachers) were asked to follow the written instructions and were often a challenge. Natural conditions reflecting the
use the criteria offered in the SFA Record Form to complete Icelandic climate hampered access to the school playground,
the assessment. Occasionally, Snaefridur Thora Egilson pro­ especially during winter, as Egilson witnessed in one school
vided explanations to ensure that teachers would complete observation:
the forms correctly and within the time frame required. The school grounds are covered in snow, but there is
Mixed-Methods Analysis. Originally, qualitative field notes a path made along the building. The other students all
and interviews were analyzed separately for each student. disappear onto the piles of snow, where they play tag and
Then categories from students, parents, and teachers were have snowball fights. Tor manages to push his wheelchair
compared and analyzed separately for each group. The coding back and forth along the path while he watches the others
and analysis was conducted in alignment with the grounded play from a distance. In the end, he looks for one of the
theory method as outlined by Strauss and Corbin (1998). The adults on duty and starts chatting with her.
analyses consisted of careful line-by-line examination of infor­ Adaptations of educational tools and assignments
mation reported by participants and observations during allowed many students to work successfully on school activi­
school visits. Open coding was used initially to separate data ties. The use of assistive devices enabled some students to
into categories and to see processes connected to the question maintain an adequate posture to promote optimal perfor­
of the study. The open codes were then compared and con­ mance, concentration, and endurance within the classroom
trasted to detect similarities and differences across cases. Next, and to travel within school. However, lack of time and
categories were formed, and larger segments of the data were knowledge about how to use the devices occasionally resulted
connected through axial coding. Comparing the data to these in limited benefit. Although most students had problems
categories helped to refine them and acknowledge their inten­ with written work, use of computers was generally limited
sity and impact. The recurring categories were continuously and contributed to increased need for adult support.
compared with the data to ensure that they were based on the Some of the hindrances in the physical environment were
observations and interviews. In the quantitative arm, the stu­ related to school traditions and routines, which had an influ­
dents’ raw score totals were used for a descriptive inspection ence on the organization of operations. When asked why a

The American Journal of Occupational Therapy 267


student with physical impairment was placed in a classroom These characteristics, together with social skills, problem-
on the second floor, one teacher answered, “But third grade solving skills, and resilience often compensated for physical
has always been in this classroom.” Design of school schedules limitations. Thus, strengths or weaknesses in specific areas
was critical when the child had to transfer between classes and affected the use of the students’ other capacities. Despite
settings. The mother of one sixth grader said, individual variations, many students in the study demon­
There are no breaks in school between classes, so there is strated strengths in cognitive, social, or behavioral skills.
little time to transfer from the second floor to the first. Impairment effects were also striking, and involvement
As a result, he is always the last one out and the last one in many school activities was complicated by excessive effort,
into the classes. One needs immense organizational skills fatigue, and pain, occasionally leading to disengagement or
for a child like this. withdrawal. Although the type and extent of physical involve­
The extent to which the school administration sup­ ment repeatedly led to activity limitations, the data did not
ported and advocated inclusive practices was important, but indicate that these aspects had more overall effect on school
a lack of distinctive rules and regulations often made the situ­ participation than did other child attributes. The likelihood
ation fragile. Some of the solutions used by the school, such and level of functional problems increased as extent and
as assigning many assistants to a student to minimize the severity of motor impairment increased, but capacities such
burden on staff, were inadequate for the children and their as will or motivation sometimes outweighed the challenges
families. Lack of directives and support from the school students faced because of their disabilities, as Egilson reflected
organization often resulted in teachers’ concerns about vast in one school observation:
responsibilities placed on themselves. Several teachers had The teacher asks Helga and two boys to distribute books.
difficulties adjusting activities for the child with disability The boys take a bunch of books, but Helga can only take
while attending to other students. The smooth-running three at a time. She presses the books tightly against her
classroom was both the means and the ends for many chest with her arms twisted and both wrists tightly bent.
teachers. Helga walks around the classroom with extraneous, ran­
The teacher played a key role in whether a child was an dom movements. However, she is quick and concentrates
active participant in class. Accordingly, change in personnel while the boys drag their feet.
often altered the situation considerably, for better or worse. The nature of students’ impairments occasionally
Despite the teachers’ concerns regarding the practical issues affected the extent to which environmental and task accom­
of inclusion, a majority expressed that the presence of the modations were available, and some impairments caused
child with disability contributed to growth and tolerance restrictions that would remain regardless of arrangements
among their peers. made. In general, children who had a combination of limited
Variation was found in the extent to which a school manipulation skills, lack of verbal expression, and restricted
environment respected individual needs and allowed for mobility were least likely to participate in most settings.
flexibility and adjustment. Differences between rural and Those children who were well adjusted and bright and
urban areas were also observed. Smaller communities were who had a cheerful and positive disposition were more often
generally more flexible than bigger ones, but limited formali­ considered to be full participants by their peers and teachers.
ties and lack of professional knowledge complicated matters Interestingly, the difficulties faced by these students in par­
in challenging situations and occasionally hampered transfer ticular settings were sometimes underestimated because of
of decisions. those same characteristics, as if these happy and well-adjusted
In essence, physical accessibility had a major influence children could not have any problem at all. The finding may
on whether students were able to fully participate in the reflect the common practice of perceiving personality char­
school environment. Laws and regulations determined what acteristics out of context. This study revealed that many child
resources and services were made available, which in turn attributes were of importance only when seen in a specific
influenced student involvement in different contexts. Each context. Hence, capacity was not enough. Without an
school’s culture, values, and attitudes influenced methods of opportunity, students’ strengths were of limited value in
problem solving and how resources were used. ensuring participation. One fifth grader, who used a walker
for travel, participated actively in many settings. Conversely,
Child Characteristics on the playground he could not keep up with his peers,
The personal and social competencies of each student were contributing to a monotonous and nonrewarding role. In
of critical importance for his or her participation in different the interview he said,
contexts. Will, motivation, and capacity and knowledge The hardest thing is that I can hardly participate dur­
about how to perform and interact also affected other factors. ing recess. Mostly it is soccer, but the school ground is

268 May/June 2009, Volume 63, Number 3


graveled so I can hardly play. And then recess is over. lenges were observed on the following scales: Up/Down
Sometimes the kids come, and at times there are games Stairs, Recreational Movement, Travel, Maintaining and
that I can partake in. But that hardly occurs. And when it Changing Positions, Eating and Drinking, and Manipulation
is snowing some kids come and play with me; they throw With Movement, all in the physical tasks category. Relative
snow at me and I am supposed to try to escape. strengths for these children were found in Functional
If a child could not physically participate in a particular Communication, Following Social Conventions, Behavior
setting, strengths such as social skills were often of limited Regulation, Memory, and Safety, all in the cognitive–behav­
value. The extent to which each child’s strengths contributed ioral tasks category. A detailed description of the students’
to increased involvement was situational. results on the SFA activity scales is available elsewhere
(Egilson, 2005).
Task Characteristics
The characteristics of distinctive school activities, opportuni­ School Setting
ties for flexibility of implementation, and modification of Building on the PEO model (Law et al., 1996), the findings
the traditional ways of execution and performance also from this study add a new dimension, “school setting,”
affected the students’ participation. As expected, activities which consists of distinct tasks and environmental factors.
that primarily required motor skills were much more difficult Figure 1 illustrates the participation of students with physical
for students than those that primarily depended on cogni­ disabilities within typical settings in school. The adapted
tive, social, and behavioral skills. Although the children’s model allows for participation and nonparticipation, depend­
overall performance varied, relative strengths were found on ing on the type and strength of relationships between and
several tasks with primarily cognitive and behavioral within the dimensions. Changes in setting participation
demands. occur as a consequence of interaction between and within
Numerous positive incidents were observed in which the child and the environmental aspects and educational
teachers enabled students to participate in educational activi­ tasks characterizing each particular setting.
ties by modifying either the curriculum or the instructional Most participation occurred during mealtimes, whereas
methods. However, there appeared to be less flexibility in major challenges were found during recess, field trips, and
adapting the physical aspects of the educational activities transportation. The related subject settings, such as physical
than in accommodating the cognitive and behavioral education and swimming, were also a problem for many
demands, to which several teachers responded with flexibility students. The lowest SFA participation scores occurred in
and ease. Thus it appeared that space and structure of tradi­ playground/recess and transportation, as illustrated in Table
tional tools and materials often influenced working proce­ 2. A substantial number of students had extensive problems
dures by school staff. One teacher provided one of many in these areas, reflected in low mean and median ratings.
similar comments when she said, Relative strengths were found in mealtime/snack time, and
There is this discussion about adaptable teaching meth­ the standard deviation for mealtime/snack time reflected less
ods, but it is a fact that you follow a certain line in difference in participation than in other school settings.
teaching. You cannot have a fleeting schedule in a class Participation scores in the classroom were relatively evenly
of 20 children if it is to be realistic or significant. There is spread out, indicating variations in performance.
always a fixed agenda. For each child, particular features of the school setting
Lack of adaptability and alternative strategies enhanced and individual attributes were essential at a given time,
reliance on physical capacities by the students in this study. whereas others were not imperative. Occasionally, the child’s
The academic endeavors were emphasized by school person­ cognitive, fine motor, and social skills were most important,
nel, and although students were expected to participate in typically in the educational activities in the main classroom.
traditional educational tasks, they were not always expected In other instances, positive attitudes of the school organiza­
to join in physically challenging activities. Most students tion, cooperation between the school and home, and use of
participated actively in the majority of the undertakings in assistive devices were critical in whether students in this
the classroom but did so much less in settings where physical study were able to participate within a setting. Often, par­
space, movement, and speed were in focus, such as during ticipation was contingent on adaptations of important school
breaks. Then students were often alone or passively observ­ tasks. If a setting, such as the gym or the playground, was
ing their classmates engaged in play. not physically accessible, the student had limited use of
Analysis of the SFA activity scale scores revealed more strengths that were a great asset in other circumstances. Such
substantial performance difficulties in some areas for stu­ instances were repeatedly observed, typically in a challenging
dents with physical disabilities than in others. Greatest chal­ physical environment with limited resources, such as lack of
The American Journal of Occupational Therapy 269
tion. Setting structures to promote participation were gener­
ally limited or inconsistently applied. Where applied with
success, it was often on an informal or even subconscious
basis, such as when sensitive and engaged teachers used their
tacit practical knowledge to make decisions they could not
articulate. Their knowledge and basis for action, however,
were difficult to relay to other people or situations, contribut­
ing to the instability and fluctuations found in the schools.
Hence, successful participation often happened by chance
rather than by design. The factors that contributed to success
included shared philosophies and goals within school, exten­
sive communication between the school and the family, and
support from administrators and outside agencies.

Discussion
In this study, the students’ participation varied to a large
Figure 1. Model of student participation in various school settings. extent as a function of the characteristics of the child, his or
Note. From Law, M., Cooper, B., Strong, S., Rigby, P., & Letts, L. (1996). her educational and social tasks, and environmental contexts
“The person–environment–occupation model: A transactive approach to during different time periods. Thus, participation was an
occupational performance,” Canadian Journal of Occupational Therapy, 63,
p. 18. Copyright © 1996 by the CAOT Publications ACE. Adapted
outcome of a complex and changing interaction between the
with permission. child and his or her settings. The importance of the various
features for each child commonly evolved over time and
settings, redefining the influences and relationships among
guidelines, knowledge, experience, or imagination by staff. factors. This is consistent with the findings of Eriksson and
The tasks performed within these settings often required colleagues (2007) that school participation differs depending
physical capacities the student did not possess. Lack of on occasion and type of activity.
accommodation in the form of an alternative activity, Some settings were typically harder than others for stu­
instructional modification, or different criteria for success dents with physical disabilities, and setting structures on
also restricted students. Such situations occurred most nota­ occasion contributed to children’s problems, isolation, and
bly in open spaces with limited structures, such as during failure. In general, rigid adherence to traditional curricula
breaks and in the gym, although similar instances were and methods of instruction and lack of accommodations
observed in all school settings. decreased opportunities for student participation. Contextual
Social expectations on performance, physical features features thus provided an understanding of the differences
(e.g., surfaces, distances), and institutional aspects (e.g., time between students’ capacities and variations in performance.
constraints for practical and educational tasks) influenced Students’ use of distinctive skills, such as their interaction
each student’s possibilities for use of his or her capacities. strategies, appeared to be closely connected to whether or
Similarly, a strict educational structure or lack of expectations not necessary opportunities were provided within the school
negatively affected a student’s possibilities for active participa­ environment.

Table 2. SFA Participation Scores in Six Different School Settings

Standard % of Ratings at Each Scale Value


Settings Mean Median Deviation 1 2 3 4 5 6
Regular classroom 4.1 4 1.5 6 9 16 28 16 25
Playground/recess 3.4 3.5 1.9 22 22 6 12 16 22
Transportation 3.6 4 1.9 25 6 13 25 3 28
Bathroom/toileting 4.2 4.5 1.9 9 19 6 16 6 44
Transitions 4.5 5 1.4 3 3 22 13 31 28
Mealtime/snack time 4.9 5.5 1.3 0 9.5 0 31 9.5 50
Note. Raw scores are reported. Scale values: 1 = Participation extremely limited, 2 = Participation in a few activities, 3 = Participation in all aspects with constant
supervision, 4 = Participation in all aspects with occasional assistance, 5 = Modified full participation, 6 = Full participation.

270 May/June 2009, Volume 63, Number 3


The attitudes and abilities of individual teachers to Haltiwanger, 2004; Eriksson & Granlund, 2004a, 2004b;
modify the curriculum and instruction were most important Eriksson et al., 2007; Hemmingsson & Borell, 2002; Mancini
to whether students were able to participate in settings such & Coster, 2004; Schenker et al., 2005, Schenker, Coster, &
as the general classroom, cafeteria, and gym. Several teachers Parush, 2006). Many studies in the area focus only on a few
reported difficulties in varying from the standard curriculum aspects or use one frame of reference. Although the results
and traditional approaches to instruction. This finding is cannot be generalized, this mixed-methods study adds to the
consistent with research suggesting that the average teacher literature by making visible the interaction of child, environ­
feels unprepared to serve students with disabilities, has little mental, and task factors that affect participation of students
time available to collaborate with others, and makes few with physical disabilities. In future studies, it would be impor­
accommodations for students with special needs (Burstein, tant to further examine the confluence of factors that are most
Sears, Wilcoxen, Cabello, & Spagna, 2004; Pivik et al., important for high degrees of participation and the effect of
2002). Similar to the findings of Hemmingsson, Gustavsson, environmental and task modifications in promoting school
and Townsend (2007), many teachers in this study appeared participation of students with disabilities.  s
to interpret participation in school as taking part in the col­
lective activities in the classroom, whereas students and par­ Acknowledgments
ents stressed the social aspect of participation in various
school settings. This article was based on an unpublished PhD dissertation
In promoting the participation of students with physical study by Snaefridur Thora Egilson (2005). We gratefully
disabilities in schools, occupational therapists need to focus acknowledge the comments of Jon Torfi Jonasson, Ingvar
extensively on the child in his or her setting. The challenge Sigurgeirsson, Wendy Coster, and Michael Giangreco on
with the PEO model, originally presented by Law et al. the dissertation study. The study was supported by a grant
(1996) and adapted by the findings of this study to include from the University of Akureyri Research Fund.
the concept of setting, relates to its use in practice. If every­
thing is potentially relevant to the understanding of students’ References
participation, then where does one begin to focus attention? Battaglia, M., Russo, E., Chiusso, A., Bertelli, S., Pellegri, A., Borri,
For practical purposes, it is generally easier to alter either the G., et al. (2004). International Classification of Functioning,
environment or the task than the child, because the majority Disability and Health in a cohort of children with cognitive,
of this particular group of students had disabling conditions motor, and complex disabilities. Developmental Medicine and
that were not amenable to considerable change. In addition Child Neurology, 46, 98–106.
Beckung, E., & Hagberg, G. (2002). Neuroimpairments, activity
to highlighting opportunities that already exist within the
limitations, and participation restrictions in children with
school setting, occupational therapists should closely study cerebral palsy. Developmental Medicine and Child Neurology,
and emphasize setting characteristics for necessary adjust­ 44, 309–316.
ments. Delineation of a child’s strengths and abilities must Bogdan, R. C., & Biklen, S. K. (2003). Qualitative research for
also be stressed to enable identification of helpful strategies education: An introduction to theory and methods (4th ed.).
for the child to facilitate participation. The findings signify Needham Heights, MA: Allyn & Bacon.
Burstein, N., Sears, S., Wilcoxen, A., Cabello, B., & Spagna,
that occupational therapists must align with important stake­
M. (2004). Moving toward inclusive practices. Remedial and
holders, such as parents and the educational system, to facili­ Special Education, 25, 104–116.
tate increased participation outcomes for children with dis­ Coster, W., Deeney, T., Haltiwanger, J., & Haley, S. (1998).
abilities in school as well as in other areas of their lives. School Function Assessment: User’s manual. San Antonio, TX:
Psychological Corporation.
Coster, W. J., & Haltiwanger, J. (2004). Social–behavioral skills
Study Strengths and Limitations of elementary students with physical disabilities included in
general education classrooms. Remedial and Special Education,
Although the study participants were selected for their rep­ 25, 95–103.
resentativeness in terms of age, grade, school location, and Creswell, J. W. (2003). Research design: Qualitative, quantitative,
impairments, the sample size was small and each child was and mixed-methods approaches (3rd ed.). Thousand Oaks,
unique. The findings pertain to the Icelandic context; nev­ CA: Sage.
ertheless, the rich descriptions provide support of study Creswell, J. W. (2008). Educational research: Planning, conducting,
and evaluating quantitative and qualitative research (3rd ed.).
transfer to other contexts. The literature clearly suggests that
Upper Saddle River, NJ: Pearson.
many of the aspects may be of relevance in other countries Destefano, L., Shriner, J., & Lloyd, C. (2001). Teacher decision
working toward the inclusion of students with disabilities. making in participation of students with disabilities in large
Commonalities were found with recent studies (Coster & scale assessment. Exceptional Children, 68, 7–22.

The American Journal of Occupational Therapy 271


Egilson, S. T. (2005). School participation. Icelandic students Law, M., Haight, M., Milroy, B., Willms, D., Stewart, D., &
with physical impairments. Unpublished PhD dissertation. Rosenbaum, P. (1999). Environmental factors affecting the
University of Iceland, Faculty of Social Sciences. occupations of children with physical disabilities. Journal of
Eriksson, L., & Granlund, M. (2004a). Conceptions of par­ Occupational Science, 6, 102–110.
ticipation in students with disabilities and persons in their Lightfoot, J., Wright, S., & Sloper, P. (1999). Supporting pupils in
close environment. Journal of Developmental and Physical mainstream school with an illness or disability: Young people’s
Disabilities, 16, 229–245. view. Child: Care, Health, and Development, 25, 267–283.
Eriksson, L., & Granlund, M. (2004b). Perceived participation: A Mancini, M. C., & Coster, W. (2004). Functional predictors of
comparison of students with disabilities and students without school participation by children with disabilities. Occupational
disabilities. Scandinavian Journal of Disability Research, 6, Therapy International, 11, 12–25.
206–224. Mancini, M. C., Coster, W. J., Trombly, C. A., & Heeren,
Eriksson, L., Welander, J., & Granlund, M. (2007). Partici­pation T. C. (2000). Predicting elementary school participation in
in everyday school activities for children with and without children with disabilities. Archives of Physical Medicine and
disabilities. Journal of Developmental and Physical Disabilities, Rehabilitation, 81, 339–347.
19, 485–502. Palisano, R., Walter, S., Bartlett, D., Rosenbaum, P., Russell,
Flavell, L. (2001). Preparing to include special children in main- D., & Hanna, S. (2003). Effect of environmental setting
stream schools: A practical guide. London: David Fulton. on the mobility methods of children with cerebral palsy.
Giangreco, M. F., & Broer, S. M. (2005). Questionable utilization Developmental Medicine and Child Neurology, 45, 113–120.
of paraprofessionals in inclusive schools: Are we addressing Pivik, J., McComas, J., & LaFlamme, M. (2002). Barriers and
symptoms or causes? Focus on Autism and Other Developmental facilitators to inclusive education. Exceptional Children, 69,
Disabilities, 20, 10–26. 97–107.
Hammal, D., Jarvis, S. N., & Colver, A. F. (2004). Participation Prellwitz, M., & Tamm, M. (2000). How children with restricted
of children with cerebral palsy is influenced by where they mobility perceive their school environment. Scandinavian
live. Developmental Medicine and Child Neurology, 46, Journal of Occupational Therapy, 7, 165–173.
292–298. Richardson, P. K. (2002). The school as social context: Social
Hemmingsson, H., & Borell, L. (2000). Accommodation needs interaction patterns of children with physical disabilities.
and student–environment fit in upper secondary schools for American Journal of Occupational Therapy, 56, 296–304.
students with severe physical disabilities. Canadian Journal of Schenker, R., Coster, W., & Parush, S. (2005). Participation and
Occupational Therapy, 67, 162–172. activity performance of students with cerebral palsy within
Hemmingsson, H., & Borell, L. (2002). Environmental barriers the school environment. Disability and Rehabilitation, 27,
in mainstream schools. Child: Care, Health, and Development, 539–552.
28, 57–63. Schenker, R., Coster, W., & Parush, S. (2006). Personal assis­
Hemmingsson, H., Borell, L., & Gustavsson, A. (1999). Temporal tance, adaptations, and participation in students with cere­
aspects of teaching and learning: Implications for pupils bral palsy mainstreamed in elementary schools. Disability and
with physical disabilities. Scandinavian Journal of Disability Rehabilitation, 28, 1061–1069.
Research, 1, 26–43. Simeonsson, R. J., Carlson, D., Huntington, G. S., McMillen,
Hemmingsson, H., Borell, L., & Gustavsson, A. (2003). J. S., & Brent, J. L. (2001). Students with disabilities: A
Participation in school: School assistants creating oppor­ national survey of participation in school activities. Disability
tunities and obstacles for pupils with disabilities. OTJR: and Rehabilitation, 23, 49–63.
Occupation, Participation, and Health, 23, 88–98. Strauss, A., & Corbin, J. (1998). Basics of qualitative research (2nd
Hemmingsson, H., Egilson, S. T., Hoffman, O., & Kielhofner, G. ed.). Thousand Oaks, CA: Sage.
(2005). The School Setting Interview (SSI) (3rd ed.). Nacka: Tashakkori, A., & Teddlie, C. (1998). Mixed methodology:
Swedish Association of Occupational Therapists. Combining qualitative and quantitative approaches. Thousand
Hemmingsson, H., Gustavsson, A., & Townsend, E. (2007). Oaks, CA: Sage.
Students with disabilities participating in mainstream schools: Tieman, B., Palisano, R. J., Gracely, E. J., & Rosenbaum, P.
Policies that promote and limit teacher and therapist coopera­ (2004). Gross motor capability and performance of mobility
tion. Disability and Society, 22, 383–398. in children with cerebral palsy: A comparison across home,
King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., school, and outdoors/community settings. Physical Therapy,
& Young, M. L. (2003). A conceptual model affecting the 84, 419–429.
recreation and leisure participation of children with dis­ Tieman, B., Palisano, R. J., Gracely, E. J., Rosenbaum, P.,
abilities. Physical and Occupational Therapy in Pediatrics, Chiarello, L. A., & O’Neil, M. (2004). Changes in mobility
23, 63–90. of children with cerebral palsy over time and across envi­
Law, M. (2002). Participation in the occupations of everyday life. ronmental settings. Physical and Occupational Therapy in
American Journal of Occupational Therapy, 56, 640–649. Pediatrics, 24, 109–128.
Law, M., Cooper, B., Strong, S., Stewart, S., Rigby, P., & Letts, U.N. Educational, Scientific, and Cultural Organization. (1994).
L. (1996). The Person–Environment–Occupation model: A Final report. World Conference on Special Needs Education:
transactive approach to occupational performance. Canadian Access and quality. Salamanca, Spain: UNESCO & Ministry
Journal of Occupational Therapy, 63, 186–192. of Education and Science.

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