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EgilsonTraustadottir2009 Schoolparticipation
EgilsonTraustadottir2009 Schoolparticipation
net/publication/26288066
Article in The American journal of occupational therapy.: official publication of the American Occupational Therapy Association · May 2009
DOI: 10.5014/ajot.63.3.264 · Source: PubMed
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KEY WORDS OBJECTIVE. We investigated the factors that facilitate or hinder school participation of students with physical
• disabled children disabilities and explored the interaction of those factors.
• education METHOD. The study used a mixed-methods design that used qualitative and quantitative data. Qualitative
• environment design data were gathered on 49 participants: 14 students, 17 parents, and 18 teachers. Data analysis was based
on grounded-theory procedures. Quantitative data were gathered on 32 students using the School Function
• socialization
Assessment.
• task performance and analysis
RESULTS. The characteristics of each school setting influenced students’ participation. Some settings
presented more challenges than others, particularly those with open spaces and limited structures such as the
school playground and field trips. Possibilities of student participation decreased with increasing numbers of
risk factors, but the interaction between factors was equally important.
CONCLUSION. To promote school participation of students with disabilities, occupational therapists should
consider a confluence of child, environmental, and task factors rather than focusing on individual aspects.
Egilson, S. T., & Traustadottir, R. (2009). Participation of students with physical disabilities in the school environment.
American Journal of Occupational Therapy, 63, 264–272.
S
Snaefridur Thora Egilson, MSc OT, PhD, is everal studies have revealed that students with physical disabilities often have
Associate Professor, Faculty of Health Sciences,
difficulties with participation in school activities (Eriksson, Welander, &
Occupational Therapy Program, University of Akureyri,
Akureyri, Iceland; sne@unak.is Granlund, 2007; Hemmingsson & Borell, 2000, 2002; Mancini, Coster, Trombly,
& Heeren, 2000; Pivik, McComas, & LaFlamme, 2002; Prellwitz & Tamm, 2000;
Rannveig Traustadottir, PhD, is Professor, Center of Schenker, Coster, & Parush, 2005). It is often difficult, however, to establish the
Disability Studies, Faculty of Social Sciences, University of
Iceland, Reykjavik.
extent to which the challenges that students encounter are related to individual
factors or the inability of the environment to accommodate students’ needs. Several
environmental issues have been found to affect the participation of students with
physical disabilities (Hammal, Jarvis, & Colver, 2004; Hemmingsson & Borell,
2000, 2002; Hemmingsson, Borell, & Gustavsson, 1999, 2003; Law et al., 1999;
Simeonsson, Carlson, Huntington, McMillen, & Brent, 2001). Although inclusion
of students with disabilities has been advocated for years, the construction and archi
tectural design of most school buildings is still aimed to fit the population of students
without disabilities. Physical barriers most often noted include distances; heavy doors;
steep ramps; and rough surfaces, such as uncut curbs and thresholds (Hemmingsson
& Borell, 2000; Palisano et al., 2003; Tieman, Palisano, Gracely, Rosenbaum, et
al., 2004). Settings characterized by unpredictable movement, speed, and distances
typically create difficulties for students with physical disabilities (Palisano et al.,
2003; Tieman, Palisano, Gracely, & Rosenbaum, 2004). Natural spaces are also a
challenge in areas with uneven terrain and unstable weather conditions.
Despite international agreements on inclusion—such as the Salamanca State
ment (U.N. Educational, Scientific, and Cultural Organization, 1994), which
264 May/June 2009, Volume 63, Number 3
highlights the importance of providing education for all streamed schools and, in particular, to identify the major
within the regular education system—the main hindrances influences on student participation. The study examined
to school participation are sometimes found in factors these concerns by posing the following research question:
connected to rights and government administration. How do environment, task, and student characteristics inter
Organizational issues affecting accessibility, such as failure act to facilitate or hinder school participation?
to plan or seek advice about access when constructing or
renovating school buildings, reveal the influence that insti
tutional aspects may have on the physical environment Method
(Lightfoot, Wright, & Sloper, 1999; Pivik et al., 2002). A The study was conducted using a mixed-methods design
successful inclusive school climate depends on a supportive incorporating qualitative and quantitative data. The qualita
school community and efforts by school staff regarding tive and quantitative data were collected simultaneously,
accommodation and instructional needs (Destefano, Shriner, although the qualitative inquiry guided the project. The
& Lloyd, 2001; Flavell, 2001; Pivik et al., 2002). Cultural quantitative data played a supportive role to augment and
and attitudinal barriers may entail a lack of understanding provide additional sources of information. This embedded
by teachers and support staff and result in assigning assis design provided the study with information from different
tance to students instead of adapting or equalizing curricu types of data and from different levels within the study. The
lum or settings (Giangreco & Broer, 2005). collection of both descriptive data and numeric information
Several attributes of the child also have an impact on was an attempt to produce well-validated findings and shed
educational participation. These may include physical, cog light on the complexities of the subject under study (Creswell,
nitive, and communicative skills; emotional, behavioral, and 2003, 2008; Tashakkori & Teddlie, 1998).
social function; activity preferences; sense of control; self- The qualitative inquiry was informed by a grounded
efficacy; and age and gender (King et al., 2003; Law, 2002). theory approach, in which the analyses of action and process
Impairment can restrict activity considerably (Battaglia et are completed through the constant comparative method of
al., 2004; Beckung & Hagberg, 2002; Coster & Haltiwanger, inquiry (Bogdan & Biklen, 2003; Strauss & Corbin, 1998).
2004; Mancini & Coster, 2004; Mancini et al., 2000; Qualitative data were collected through participant observa
Richardson, 2002; Schenker et al., 2005; Simeonsson et al., tions and semistructured interviews exploring the views and
2001). Although a direct correlation between the type and experiences of students, teachers, and parents. Longitudinal
severity of impairment and the skill a child will demonstrate data were obtained to gain an understanding of variations
cannot be assumed, impairments related to limitations of over time and across environments. Much of the data, how
movement, sensation, cognition, and pain or fatigue may ever, were cross-sectional and focused on a student while at
bring about challenges that can affect school participation. a certain grade level. The School Function Assessment (SFA;
Thus, characteristics of the school environment and Coster, Deeney, Haltiwanger, & Haley, 1998) was used to
the tasks performed in different educational contexts affect gather quantitative data on students reflecting the character
the possibilities of students with disabilities to apply their istics of the key participants in the qualitative part of the
skills consistently across school settings. Various attributes study. The instrument provides detailed information that
of the child may also influence the extent to which adapta could not be obtained through interviews or during school
tions in the school environment can accommodate his or observations. The data collected from the two methods were
her needs. Within occupational therapy it has been recog compared and contrasted for similarities and differences
nized that behavior is influenced by and cannot be sepa during the analysis and interpretation phase. The study was
rated from contextual influences. The Person–Environment– carried out by Snaefridur Thora Egilson and approved by
Occupation (PEO) model (Law et al., 1996) reflects the the Icelandic National Bioethics Committee.
perspective that problems in occupational performance are
produced in the relationship among people, the environment Qualitative Data
in which they live, and the daily tasks that they perform. It Study Participants. A total of 49 participants were in the
is, however, difficult to find empirical data to describe this qualitative arm of the study: 14 students with physical dis
interaction in detail in the literature. A limitation in some of abilities (defined as key participants), 17 parents, and 18
the research on participation of students with disabilities teachers. Participants were recruited from the disability
concerns a lack of examination of the confluence of factors records of the Icelandic State Diagnostic and Counseling
that may affect school participation. Center and selected through a purposeful sample designed
The purpose of this study was to explore the participa to reflect major variations in the student group and the
tion of Icelandic students with physical disabilities in main school environment. The students were 6 to 12 years old,
The American Journal of Occupational Therapy 265
two in each grade from 1 to 7; all had physical impairments Quantitative Data
caused by medical conditions such as cerebral palsy, myelo
Study Participants. Participants were selected by a pur
meningocele, or neuromuscular disorders. Children with
posive national sample according to the same criteria as the
co-occurring intellectual disabilities were excluded, but seven
key participants in the qualitative arm. A list of 40 potential
students had secondary impairments such as attention deficit
participants with movement impairments was compiled.
disorders or mild learning impairments or used alternative
The children’s parents were contacted and informed about
communication. The participating children came from 11
the study. Once a parent had signed a consent form, the
schools located in different parts of Iceland. The demo
child’s teacher was contacted and asked to provide informa
graphic characteristics of the study participants are summa
tion about the student by completing the SFA. Thirty-five
rized in Table 1.
SFA forms were returned. Three were excluded because they
Procedure. The parents were contacted by phone and
did not fulfill the criteria on students’ functional character
informed about the study. When a signed consent form had
istics, leaving 32 forms for analysis, 14 for boys and 18 for
been obtained, the student’s teacher was contacted and
girls (see Table 1). All students had a primary physical
asked to participate. With one exception, all contacted fami
impairment, and 47% had an additional impairment such
lies agreed to participate. The time to visit each school was
as attention deficit disorder or expressive-language limita
set in cooperation with parents and teachers. Before inter
tions; those characteristics are consistent with those of the
views and observations, guides were developed to list issues
students in the qualitative arm. SFA data were obtained on
to be explored and discussed. Participants were asked about
11 of the 14 students in the qualitative component.
a typical school day, how the child was faring at school,
Instrument. The SFA (Coster et al., 1998) is a criterion-
whether or not she or he actively participated in different
referenced instrument designed to measure a student’s par
school settings, how the school accommodated the child’s
ticipation in and performance of school-related functional
needs, and the communications and relationships between
home and school.
On average, each student was observed for 4 hr in one Table 1. Characteristics of the Participating Students in the Study
session; the focus was on his or her participation in relation
Qualitative Quantitative
to events occurring in the setting, the interaction within peer Sample Sample
groups, and the interaction between students and adults. A (N = 14) (N = 32)
total of 13 school observations were made. Interviews with Fre- Fre-
quency quency
teachers and students took place at school; interviews with n % n %
parents occurred in their homes. The interviews lasted 40 to Gender
80 min and were conducted in a conversational manner, Boys 9 64 14 44
encouraging respondents to tell their stories in their own Girls 5 36 18 56
way. Interviews were conducted with 17 parents, 18 teachers, Grade level
First, second 4 29 11 34
and 9 students. Two children did not want to be inter
Third, fourth 4 29 12 38
viewed, and 3 were either considered to be too young or had
Fifth, sixth, seventh 6 43 9 28
problems with verbal expression. The parents of these chil Diagnosis
dren were asked about their child’s perspective on his or her Cerebral palsy 8 57 16 50
school participation. The School Setting Interview Myelomeningocele 2 14 6 19
(Hemmingsson, Egilson, Hoffman, & Kielhofner, 2005), Neuromuscular disorders 3 21 8 25
which considers students’ opportunities for participating in Musculoskeletal disorder 1 7 2 6
school activities and environments, was used as an interview Specific learning needs 7 50 15 47
Alternative communication 2 14 2 6
guide in the student interviews. Questions were occasionally
Student’s primary means of mobility
added to follow up on issues that emerged from participant
Walks on own 3 22 10 31
observations or interviews with parents or teachers. All inter Crutches, cane, or walker 3 22 7 22
views were tape recorded and later transcribed verbatim for Manual wheelchair 1 7 4 13
analysis. In addition to the formal interviews, informal dis Electric wheelchair 1 7 2 6
cussions with students, teachers, and assistants took place Other (braces, walks with assistance) 3 22 5 16
during fieldwork and were included in the field notes. Transferred by others 3 22 4 13
Follow-up telephone interviews were conducted with all School location
Capital area 8 57 19 59
parents 1 year after the initial data gathering to gain a longi
Other 6 43 13 41
tudinal perspective.
266 May/June 2009, Volume 63, Number 3
tasks and activities. It was constructed with the needs and of the scales. Percentages of ratings at scale values in Part I,
situations of elementary school children in mind and focuses Participation, also were examined to further reflect variations
on areas that typically are challenging for students with among Icelandic students.
physical disabilities. The instrument is completed by one or The information from the qualitative and quantitative
more school professionals who know the students’ everyday data was then combined to seek convergence among the
performance on the activities being assessed. The SFA con results (Creswell, 2003). After examining the information
sists of three parts. Part I, Participation, is used to examine acquired in terms of competing theories, the adapted PEO
the student’s level of participation in six different school model (Law et al., 1996) was used to provide an analytic
environments: regular or special education classroom, play structure for the organization of the findings.
ground or recess, transportation to and from school, bath
room and toileting activities, transitions to and from class,
and mealtime or snack time. In each setting, a 6-point rating Results
scale is used to indicate whether the student’s participation Some contexts within the school environment facilitated
is similar to that of same-age or -grade peers. Part II, Task involvement, whereas others were more challenging to chil
Supports, measures the assistance and adaptations provided dren with physical disabilities. Changes in participation
to the student in school-related functional tasks. Part III, occurred as a consequence of the interaction between the
Activity Performance, examines the student’s performance child and the environmental aspects and educational tasks
in common school activities, such as moving around the characterizing each context. The following sections address
classroom, using school materials, and communicating these three dimensions in more detail and then focus on their
needs. The SFA yields a comprehensive description of a stu interaction.
dent’s participation, support needs, and functional perfor
mance in school. It can help identify areas of limitation not Environmental Characteristics
previously recognized, prioritize among areas in need of Various aspects in the natural and constructed school envi
program planning, and assist in documenting progress and ronments were essential for student performance. Most
the effects of intervention (Coster et al., 1998). school buildings were only partly accessible to students with
Procedure. Consistent with the standard method of scor physical disabilities. Distances within school premises com
ing the instrument, the informants (typically classroom plicated the situation, and cluttered hallways and classrooms
teachers) were asked to follow the written instructions and were often a challenge. Natural conditions reflecting the
use the criteria offered in the SFA Record Form to complete Icelandic climate hampered access to the school playground,
the assessment. Occasionally, Snaefridur Thora Egilson pro especially during winter, as Egilson witnessed in one school
vided explanations to ensure that teachers would complete observation:
the forms correctly and within the time frame required. The school grounds are covered in snow, but there is
Mixed-Methods Analysis. Originally, qualitative field notes a path made along the building. The other students all
and interviews were analyzed separately for each student. disappear onto the piles of snow, where they play tag and
Then categories from students, parents, and teachers were have snowball fights. Tor manages to push his wheelchair
compared and analyzed separately for each group. The coding back and forth along the path while he watches the others
and analysis was conducted in alignment with the grounded play from a distance. In the end, he looks for one of the
theory method as outlined by Strauss and Corbin (1998). The adults on duty and starts chatting with her.
analyses consisted of careful line-by-line examination of infor Adaptations of educational tools and assignments
mation reported by participants and observations during allowed many students to work successfully on school activi
school visits. Open coding was used initially to separate data ties. The use of assistive devices enabled some students to
into categories and to see processes connected to the question maintain an adequate posture to promote optimal perfor
of the study. The open codes were then compared and con mance, concentration, and endurance within the classroom
trasted to detect similarities and differences across cases. Next, and to travel within school. However, lack of time and
categories were formed, and larger segments of the data were knowledge about how to use the devices occasionally resulted
connected through axial coding. Comparing the data to these in limited benefit. Although most students had problems
categories helped to refine them and acknowledge their inten with written work, use of computers was generally limited
sity and impact. The recurring categories were continuously and contributed to increased need for adult support.
compared with the data to ensure that they were based on the Some of the hindrances in the physical environment were
observations and interviews. In the quantitative arm, the stu related to school traditions and routines, which had an influ
dents’ raw score totals were used for a descriptive inspection ence on the organization of operations. When asked why a
Discussion
In this study, the students’ participation varied to a large
Figure 1. Model of student participation in various school settings. extent as a function of the characteristics of the child, his or
Note. From Law, M., Cooper, B., Strong, S., Rigby, P., & Letts, L. (1996). her educational and social tasks, and environmental contexts
“The person–environment–occupation model: A transactive approach to during different time periods. Thus, participation was an
occupational performance,” Canadian Journal of Occupational Therapy, 63,
p. 18. Copyright © 1996 by the CAOT Publications ACE. Adapted
outcome of a complex and changing interaction between the
with permission. child and his or her settings. The importance of the various
features for each child commonly evolved over time and
settings, redefining the influences and relationships among
guidelines, knowledge, experience, or imagination by staff. factors. This is consistent with the findings of Eriksson and
The tasks performed within these settings often required colleagues (2007) that school participation differs depending
physical capacities the student did not possess. Lack of on occasion and type of activity.
accommodation in the form of an alternative activity, Some settings were typically harder than others for stu
instructional modification, or different criteria for success dents with physical disabilities, and setting structures on
also restricted students. Such situations occurred most nota occasion contributed to children’s problems, isolation, and
bly in open spaces with limited structures, such as during failure. In general, rigid adherence to traditional curricula
breaks and in the gym, although similar instances were and methods of instruction and lack of accommodations
observed in all school settings. decreased opportunities for student participation. Contextual
Social expectations on performance, physical features features thus provided an understanding of the differences
(e.g., surfaces, distances), and institutional aspects (e.g., time between students’ capacities and variations in performance.
constraints for practical and educational tasks) influenced Students’ use of distinctive skills, such as their interaction
each student’s possibilities for use of his or her capacities. strategies, appeared to be closely connected to whether or
Similarly, a strict educational structure or lack of expectations not necessary opportunities were provided within the school
negatively affected a student’s possibilities for active participa environment.