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Clinical Focus

· · · Current Roles and Continuing Needs


of Speech-Language Pathologists
Working in Neonatal Intensive Care Units

Shanna L. Dunn
Rehabilitation Hospital ofAustin, TX
Anne van Kleeck
University of Texas at Austin
Louis M. Rossetti
University of Wisconsin, Oshkosh

This study surveyed 45 speech-language NICU setting, including providing assessments


pathologists working with infants who are and intervention focused on feeding and
medically fragile in neonatal intensive care communication interaction, and education to
units (NICUs) across the United States. It medical professionals, team members, and
explored current roles in the NICU setting, parents. These findings should be valuable to
considering such issues as factors affecting, other speech-language pathologists currently
and support available for, NICU involvement, considering NICU involvement. They should
assessment and intervention goals and also be helpful to university training programs
procedures, educational activities conducted, that are planning to develop coursework and
and training levels and needs. Results demon- practicum experiences to meet the needs of
strated that speech-language pathologists have this newly emerging role.
begun establishing a multifaceted role in the

n the last two decades, medical, theoretical, empirical, this new role for the speech-language pathologist. One
political, and clinical interests in the birth-to-age-3 factor is recent medical advances in NICUs that have
population have combined in complex ways to increased the survival rate of preterm infants-a population
broaden the roles of the speech-language pathologist in known to be at risk for later developmental delays,
working with children in this age range. One of these including communication difficulties (Fitzhardinge, 1976;
newly emerging roles is that of the speech-language Fitzhardinge & Pape, 1981; Knobeloch & Kanoy, 1982;
pathologist in the neonatal intensive care unit (NICU). Parmelee, 1981; Rubin, Rosenblatt, & Salow, 1973; Siegel
Although other emerging roles of the speech-language et al., 1982). Second, federal legislation supports interven-
pathologist with infants and toddlers and their families tion as early as birth (Public Law 101-476, previously
have begun to receive widespread attention in the litera- known as P.L. 99-457). This law recognizes that "the
ture, there has been little documentation of the clinical potential for prevention [of developmental delays] is a
developments pertaining to the role of the speech-language mandate that cannot be denied" (Ensher & Clark, 1986, p.
pathologist in the NICU. The purpose of this study was to 11). Additionally, evolving theoretical viewpoints have
investigate the speech-language pathologist's role in the also fostered both a greater focus on serving the family and
assessment and intervention of infants who are medically a closer look at the positive and negative impact of
fragile, both preterm and term, in the NICU. We used a stimulation within the NICU (see Gunzenhauser, 1987, for
survey method to explore the current role, and attempted to a detailed discussion of the stimulation issue).
predict the direction in which this role is likely to be The likely goals of the speech-language pathologist
extended in the future. working in the NICU would derive directly from increased
Several factors have contributed to the emergence of knowledge regarding early communication and language

52 May 993 AJLP 1058-0360/93/0202-0052$01.00/0 © American Speech-Language-Hearing Association


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I I

development (of infants developing normally and atypi- method, an additional seven speech-language pathologists
cally) and associated oral-motor functioning. Researchers involved in direct services in an NICU were identified.
of atypical infant communication development have These were contacted by telephone and asked to participate
identified why communication treatment might be an in the telephone interview. All agreed, bringing the number
important focus of the speech-language pathologist in the interviewed by telephone to a total of 10. These 10 speech-
NICU, because they have highlighted the tendency for a language pathologists were located in eight different states.
limited and different communicative signaling among these All telephone interviews were tape recorded.
infants. We know that, without intervention, this different From the information obtained during the telephone
signaling disrupts communication between parent-infant interviews, a written questionnaire was developed for use
dyads and may eventually lead to both the parent and the with a larger sample. Again, because of the newness of
infant withdrawing from interactions (Goldberg, 1977). speech-language pathologist services in the NICU, there
Regarding the speech-language pathologist's expertise was no straightforward way to obtain names and addresses
in the oral-motor domain, the feeding therapies tradition- of speech-language pathologists who were involved in
ally implemented by the speech-language pathologist with such services. Therefore we used two different sources to
older children who have handicaps can be adapted for come up with a mailing list. First, during the telephone
babies in the NICU (although in many hospitals this interviews, each respondent was asked to provide the
function might be served by an occupational therapist). names of all the speech-language pathologists they knew to
Indeed, feeding is one of the infant's most critical activities be involved in providing NICU services. The result was a
during his or her stay in the hospital. Highly nutritional and list of 22 speech-language pathologists who were definitely
efficient feedings provide the infant with the building known to be employed in an NICU, and to whom question-
blocks to advance development within deficient and/or naires were mailed. Second, the third author had conducted
immature systems. many workshops nationwide in which the role of the
The current study was designed to explore how and to various professionals in the NICU had been addressed. He
what extent these developments in the field have been had kept names and addresses of some workshop attendees.
translated into actual practices among speech-language Although we knew that this mailing list contained the
pathologists who serve NICU infants and their families. names of other professionals (such as audiologists and
This survey study was designed primarily to explore the physical therapists), as well as speech-language patholo-
current roles speech-language pathologists are serving in gists who were interested in the infant population but did
the NICU, but we also hoped to shed some light on how not currently work in the NICU, we expected that this
these roles might be likely to expand in the future. Specifi- would provide access to more speech-language patholo-
cally, we explored NICU roles, issues relating to them, gists who provided services in the NICU. We realized, of
assessment procedures, treatment protocols and goals, course, that this would make it extremely difficult to
issues of relevant training, and available support systems. interpret a response rate, but it appeared to be the best
strategy for recruiting a sample of the population we
Method wished to study. We did attempt to address this issue by
asking recipients of the mail-out questionnaire who were
not providing speech-language services in an NICU to
The data collection used in the current study was carried respond to the initial three questions that explained why
out in two stages. The first group of subjects (n = 10) were answering the questionnaire would not be appropriate
interviewed over the telephone for approximately one hour. (i.e., did not work in a hospital setting, did not have an
The second group of subjects included those responding to NICU in the hospital, or did not work in the NICU). From
a written questionnaire (n = 35). The written questionnaire this mailing list of workshop attendees an additional 198
was similar to the telephone interview questions, but it also professionals were mailed questionnaires, bringing the total
contained revisions based on the telephone interview phase number of questionnaires mailed to 220. The question-
of data collection. The method used to obtain subjects for naires went to people in 40 states; major metropolitan areas
these two phases of the study is described below. as well as smaller cities were represented.
To initially recruit subjects for the telephone interviews, Though a random sampling procedure would have been
speech-language pathologists involved in NICU services optimal, the cost of obtaining complete lists of hospitals in
were located by searching the literature for articles order to do so was prohibitive. It should be noted that the
pertaining to speech-language pathology services in method we used to obtain our subjects was untraditional
NICUs. We then contacted the authors of these papers and may have resulted in a somewhat biased sample.
directly. Of five authors recruited by this method, three
were directly involved in NICU services and two were
researchers. All three authors who were directly involved Questionnaire Development
in NICUs agreed to, and subsequently completed, the hour- The goal of both the telephone and written question-
long telephone interview. naires was to compile comprehensive information regard-
With the initial five contacts, a "snowball" procedure ing the newly emerging role of speech-language patholo-
was initiated; that is, these contacts provided names of gists in the NICU setting to enlighten not only the speech-
other speech-language pathologists they knew to be language pathology profession, but all professionals
directly involved with intervention in the NICU. By this involved in the habilitation of NICU infants.

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The written questionnaire was developed in two stages. questionnaires. For the telephone interviews, 100% of the
First, a telephone interview questionnaire was developed 10 speech-language pathologists who were contacted
with 43 questions divided into five sections: general agreed to and completed the one-hour interview. Of the
information, role of the speech-language pathologist, 220 questionnaires mailed out, a total of 154 (70%) were
assessment, treatment, and support systems. The questions returned. Thirty-five questionnaires (16%) were answered
were developed by reviewing the limited literature on the completely; those who returned the remaining 119 ques-
role of the speech-language pathologist in the NICU, and tionnaires had completed the initial questions explaining
by visiting several NICUs. These five sections are briefly why they were not appropriate for our study. The 35
described. speech-language pathologists who did complete the entire
The first section, general information, was designed to questionnaire represented different NICUs in 19 states.
gather background information about those who were
providing services, the size and level of the facilities being
General Information
served, and the types of NICU infants being served. This
information helped define the setting where the speech- NICU GeneralInformation. Half (51%) of the hospitals
language pathologist's role was being developed. The in which the respondents worked had less than 500 beds,
second section, the role of the speech-language pathologist, and 69% of the NICUs had less than 30 beds. Thirteen
was developed to provide not only a description of what percent of the NICUs were large, with more than 50 beds.
roles speech-language pathologists were serving in their Two of the respondents provided services to NICUs in
NICUs, but also to determine what personal (endogenous) more than one hospital. Just under half (49%) of the
and external (exogenous) factors affected their involve- NICUs had been in service 15 years or less.
ment. The personal factors explored issues such as training The level of care provided by the NICU was also
and professional interest. The external factors considered, examined: 67% were Level III NICUs (providing the most
for example, the attitudes of other professionals involved comprehensive services); 16% were Level II, and only 2%
in the NICU toward incorporating speech-language were Level I (providing the least comprehensive services).
pathologist services. Fifteen percent of those surveyed did not provide informa-
The third section, assessment, was designed to deter- tion regarding the level of NICU care. Forty-four percent
mine who was being assessed, on what criteria, and in what of the NICUs maintained an occupancy rate of at least
domains. It also examined the frequency of audiological 85%, 31% maintained an occupancy rate of 50-84%, and
screenings. Treatment, the fourth section, was devoted to 9% had an occupancy rate below 50%. Four percent
what goals are typically chosen for the population of reported extremely variable occupancy rates, and 11% did
infants who are medically fragile whom the speech- not answer this question. Eighty-nine percent of NICU
language pathologists were treating. This section also tried programs served sick preterm infants, with 78% serving
to determine the need for further information in any area in sick term infants. Only 53% of the programs served
order to better fill their role. Additionally, speech-language healthy preterm infants.
pathologists were asked if there was a need to further GeneralInformation About Speech-LanguagePatholo-
expand their role and, if so, what barriers were restricting gists. Most of the speech-language pathologists (58%) had
this desired role expansion. The fifth and final section, been in practice less than 10 years; 60% had been working
support systems examined what support mechanisms were in NICU settings for more than 3 years. Only 11% of the
in place in the NICU program; that is, which professionals speech-language pathologists worked exclusively with the
were involved in the infants' habilitation, and if these birth-to-three population; 44% reported that they worked
professionals worked as a team. with all ages; another 44% worked with birth-adolescence
To ensure the comprehensiveness of the telephone (e.g., in a children's hospital). This appeared to indicate
interview questionnaire, it then underwent an independent that few speech-language pathologists were able to com-
review and was subsequently revised before the telephone pletely specialize their work with the NICU population.
interviews were initiated. After the telephone interviews Thirteen percent of the NICUs had had speech-language
were completed, the information obtained was used to pathologist services for less than 1 year, 47% for between 1
further revise the questionnaire into the written version that and 4 years, and 38% for over 5 years (one respondent did
was then mailed out. This resulted in the written question- not answer this question). Of the respondents, 54% had
naire containing one additional section on training. It was other speech-language pathologists working with them in
included to address the concern of what research or their NICU, 56% worked full-time with the hospital, and
training supported the role of the speech-language patholo- 60% spent at least three-fourths of their time in the NICU
gist, and what training or skills were necessary to compe- doing direct intervention as opposed to consultation
tently fill the role speech-language pathologists were (educational interactions). Although most programs
currently serving in the NICU (see Appendix for complete required a physician's order to assess and/or treat, 9% of
written questionnaire). the programs allowed speech-language pathologists to
assess without a physician's order, and 6% allowed them to
treat without a physician's order.
Results and Discussion Most of the speech-language pathologists did not work
The results of the present study were based on a high weekend hours (57%) or evening hours (60%); however,
return rate, both for the telephone interviews and mail-out about one-third noted they would work these hours as

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needed. Sixty-four percent of the speech-language patholo- basis that the training she or he had already received was
gists worked 10 hours or less per week in the NICU; only beneficial and, therefore, indicated that this training was a
9% worked in the NICU for more than 20 hours a week. facilitative factor. Another may have thought this training
was beneficial but not sufficient. As such, a respondent
Defining Speech-Language Pathologist Roles may have indicated that current training was an inhibitory
factor.
in the NICU The respondents provided varying answers when asked,
All 45 speech-language pathologists believed that part "How did you get your foot in the door?" Most often
of their role was to be a diagnostician; most also served as (23%), the speech-language pathologist began working in
a communication therapist (69%), a feeding therapist the NICU because the occupational and/or physical
(84%), an educator (91%), and/or in the role of providing therapist saw the need and made referrals. In some cases
parent support (71%). Figure 1 shows the factors that (17%), communicating with and educating the physician or
influenced speech-language pathologist involvement in the nursing staff provided speech-language pathologists the
NICU and what percentage of the respondents believed opportunity to add their expertise. Fourteen percent
them to be facilitative, inhibitive, or neutral. The factors established the role of the speech-language pathologist by
that most facilitated their involvement in NICU interven- marketing and in-services. Some speech-language pathol-
tion were training with the birth-to-three population (71%), ogy services (11%) were initiated when the speech-
support from occupational and/or physical therapists language pathologist developed a program or protocol for
(74%), their interpersonal communication skills (89%), and assessment and treatment. Other methods of establishing
their professional interest (98%). Factors that most speech-language pathology services (6% each) included:
inhibited their involvement included a lack of training with the speech-language pathologist had previous practicum
the premature population (22%), unavailability of continu- experience in the NICU; the speech-language pathologist
ing education (26%), and a lack of time in their caseload had previous work experience in an NICU setting; other
(33%). speech-language pathologists had previously worked in the
It should be noted, however, that the format used for hospital's NICU; follow-up programs for NICU graduates
these questions regarding whether factors were facilitory, were extended into the NICU; the speech-language
inhibitory, or neutral may have created some confusion. pathologists had previous involvement with infants who
Some respondents may have thought, for example, that the have craniofacial disorders and thereby extended their
training they had received was facilitative, but that their work to infants in the NICU; when a team of professionals
need for even more training was a prohibitive factor. Thus, was established to work in the NICU, the speech-language
a speech-language pathologist may have responded on the pathologist was included; and the speech-language

FIGURE 1. Percentage of answers that identified each factor affecting NICU involvement as facilitative, inhibitive, or neutral.

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1

pathologist used the first referral as a stepping stone, development, specific disorders, anatomy and physiology
thereby establishing the role one client case at a time. of feeding) they were providing when educating others
The role of the parents of infants in the NICU varied (such as parents, nurses, administrators, and physicians).
from one hospital to another, but few facilities reported Speech-language pathologists provided the parents and
that the parents were uninvolved (4%). Over half of the nurses with the most information in all areas. Figure 2
programs reported parent participation: 31% of the demonstrates the percentage of speech-language patholo-
programs reported that they encouraged the parents to gists who provided various types of information to parents
participate, and 22% said that the parents were directly and other professionals. Parents were most often given
involved in the habilitation of the infant. Some of the information regarding the anatomy and physiology of
perceived roles of the parents included being a team feeding (82%). They were least often given information
member, being a client in addition to the infant, providing regarding specific disorders (63%) and the speech-
nurturance to the infant, having a lead role in care and/or language pathologist's role (66%). The nurses were most
feeding, and providing carryover for treatment suggestions. often given information regarding the role of the speech-
Unfortunately, our questionnaire did not probe further into language pathologist (80%); they were least often given
issues of family involvement with speech-language information on specific disorders (54%). Administrators
pathologist services in the NICU. This is clearly an area in were given little information (on an average, only 13% of
which further research is needed. the speech-language pathologists provided information in
When describing the role of the occupational therapist most areas); however, the administration was informed of
and/or physical therapist, the speech-language pathologists the role of the speech-language pathologist by almost half
most frequently reported four areas: positioning, education, of the respondents (46%). The speech-language patholo-
range of motion, and sensory stimulation. When describing gists frequently provided the physicians with information
the occupational therapist's role separately, the respondents regarding the role of the speech-language pathologist
stated that the occupational therapist was responsible for (71%); only 46% of the speech-language pathologists gave
sensory stimulation, feeding, splinting, assessment and them information regarding infant communication.
treatment, working with upper extremities, and positioning.
The speech-language pathologists described the physical
therapist's role as primarily positioning, yet occasionally Assessment
they mentioned that the physical therapist was responsible Great variability was noted in the means of assessment.
for assessment, handling, range of motion, and splinting. It Almost all (91%) of the speech-language pathologists were
was sometimes reported that occupational therapists had using informal (systematic observations) assessment
the primary intervention role in the NICU, and that both methods; 25% were using both formal and informal
physical therapists and speech-language pathologists assessments. These assessments were based on a variety of
handled a smaller caseload. assessment measures, published and unpublished proto-
Our questionnaire probed the nature of the speech- cols, and books.
language pathologist's education of other team members. Seventy-six percent of the speech-language pathologists
Respondents were asked to identify what types of informa- only assessed infants when given a physician's referral.
tion (for example, infant communication, communication However, a few programs had begun reviewing all infants

FIGURE 2. Percentage of respondents who provided each type of information to parents, nurses, administrators (admin.) and
neonatologists (neos.)

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NON
and then making referrals for intervention if appropriate and/or the staff and infant (60%); only 42% of the speech-
(9%). Several programs also automatically assessed infants language pathologists worked on communication interac-
with specific diagnoses (9%), such as bronchopulmonary tions only with the infant. Less than one-third of the
dysplasia and facial anomalies. speech-language pathologists provided communication or
The domains that speech-language pathologists assessed feeding services focused only on the family (communica-
were also examined and, once again, variability was found. tion-23%; feeding-29%), or only on the staff (commu-
In order of most frequently assessed, the domains included: nication-26%; feeding-29%). These percentages
feeding and oral motor, 87%; communication, 73%; indicated that many speech-language pathologists worked
cognition, 64%; respiration and phonation, 63%; emotional on feeding in various contexts: with the family, with the
state regulation, 60%; gross and fine motor, 31%. staff, and/or with the infant alone.
In most programs (71%), the audiologist was doing the Another focus of treatment for 74% of the speech-
audiological screenings. In other programs, the individual language pathologists was treating hypo- and/or hypersen-
performing the screenings varied (e.g., neurodiagnostic sitive infants. Of those treating hypo- and/or hypersensitive
technician, speech-language pathologist, perinatal nurse infants, 23% were using vibratory techniques, and 14%
practitioner, neurologist, or EEG technician). Only 17 of were using icing techniques as part of treatment.
the 45 programs (38%) were doing routine audiological From an open-ended question asking respondents to
screenings on these medically at-risk infants; 53% were indicate the kinds of treatment goals they implemented, it
done on referral. The most frequently used criteria for the appeared that intervention with this population is individu-
audiological screenings were previously established alized. Goals focused primarily on feeding (oral motor
protocols (31%) or the high risk register (49%). skills, non-nutritive suck and nutritive suck, coordination
of the suck/swallow/breath sequence, and dysphagia),
Treatment communication interaction, positioning and handling of the
In most NICU programs (77%), there were no restric- infant, family education, assisting in emotional state
tions on the age of the infants being served by the speech- regulation, and improving hyper- or hyposensitivity. Only
language pathologist. Eleven percent of the respondents one respondent addressed environmental modification
volunteered that there was a restriction that the infant be (decreasing overstimulation of environmental effects of the
medically stable before initiation of speech-language NICU environment).
pathology services. Since we did not directly question this
particular restriction, it may have applied in a greater Training
percentage of the sampled NICUs than is apparent. The percentage of respondents who had no graduate
Figure 3 displays the results of individuals for whom the school training, a unit within a course, or an entire course
speech-language pathologist provided services when on either the birth-to-three population or the NICU
focusing on communication and feeding. Once intervention population more specifically, is portrayed in Figure 4.
had begun, the speech-language pathologists most often Twenty-six percent of the respondents currently working in
worked on feeding with the family and the infant (89%), the NICU had had no training with the birth-to-three
and the staff and infant (82%). Over half (58%) of the population prior to graduation (not even units within a
speech-language pathologists worked on feeding with the course); 40% had had an entire course. The majority (77%)
infant alone. In terms of communication, intervention once had received no training with the NICU population in
again was most often with the family and infant (60%), graduate school.

FIGURE 3. Percentage answered who worked with each group while providing communication and feeding intervention.

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Most speech-language pathologists obtained NICU with medical staff to help them realize you are providing a
training after graduation through various means: self- valuable service." "Be careful, cautious, watchful, open-
taught (82%, via reading journals, books, assessment and minded, and resourceful." "Keep communication open, and
intervention procedures), workshops (80%), and on-the-job explain what you are doing and why." "Be consistent while
training (82%). Very similar percentages were reported for at the same time maintaining a sense of flexibility."
means of obtaining more general training with the birth-to- "Always be a good observer while keeping a healthy fear
three population. while treading into the unknown, and never start to think
Many resources were described as being most helpful in you've learned it all." Finally, on a daily basis, the speech-
the speech-language pathologist's training to serve the language pathologist should be sensitive to the needs of
NICU population. The most frequent response was the and subtle cues from the infants by letting them "run the
education provided by other professionals, which included show"; that is to say, "honor the child's needs by always
that from occupational therapists, physical therapists, having a willingness to learn from the infants and about
child-infant specialists, nurses, neonatologists, clinical their signals of stress."
dietitians, and other speech-language pathologists. Hands- In addition to the professional traits, it was recom-
on experience, research, and conferences were mentioned, mended that the professional's knowledge base should
as well as neurodevelopmental treatment training and include, but not be limited to:
previous practica. 1. neonatal neuroanatomy/-physiology
Seventy-five percent of the speech-language patholo- 2. fetal development
gists believed that changes in training could better facilitate 3. normal and abnormal infant development in these
their knowledge and skills. They suggested that more domains:
workshops be offered (especially focusing on the speech- a. cognitive
language pathologist's role), that courses dealing with this b. communicative
population need to be offered (especially at the graduate c. feeding and oral motor
level), and that hands-on training would be the most d. motor
helpful in gaining the skills necessary to fill their role in e. social-emotional
the NICU. In addition, they acknowledged the benefit of 4. positioning and handling of neonates
videotape training and observations. They also expressed a 5. medical issues, terminology, and diagnoses
need for additional research to guide and validate their 6. medical equipment
NICU interventions. 7. how associated problems impact on
Open-ended questions were asked to tap competencies a. developmental expectations
that would be recommended for speech-language patholo- b. anatomy and physiology of the neonate
gists who are beginning to provide services in the NICU. c. respiration
The speech-language pathologists' responses to these The speech-language pathologists further recom-
questions presented various issues. Here are examples of mended: (a) that other professionals (neonatologists, other
the respondents' recommendations of professional traits for speech-language pathologists, occupational therapists,
speech-language pathologists who are beginning to provide physical therapists, respiratory therapists, and nurses) be
intervention to infants in the NICU. "Be visible to all used as resources; (b) that speech-language pathologists in
NICU staff and don't be afraid to ask questions." "Expect the NICU maintain public relations, especially with
gradual acceptance, yet be persistent in asserting yourself physicians, by attending rounds, care plans, and discharge

FIGURE 4. Percentage of respondents who had had an entire course, units within a course, or no training at the graduate level on
the birth-to-age-3 population and the NICU population.

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M
meetings; (c) that speech-language pathologists in the increased consultations (earlier, more consistent, or
NICU obtain and/or update information through attending automatically referred for all at-risk infants), increased
continuing education workshops (especially neurodevelop- education of medical personnel (especially neonatologists
mental treatment training), and vast independent reading; and nurses), increased speech-language influence on NICU
(d) that speech-language pathologists clarify, especially to feeding protocols, and increased involvement in facilitation
physicians, that their services are fulfilling a unique role of early communication interactions. When asked about
and not merely taking over in areas already well covered barriers to expanding their NICU roles, the perceived
by nursing; and (e) that interventions need to be provided attitudes of other professionals and even parents were
through a multidisciplinary team. mentioned. However, as noted earlier, it was also true that
Of the programs represented by the respondents, 31% other professionals helped speech-language pathologists
offered university practicum experience or other types of "get their foot in the door." The speech-language patholo-
training programs in the NICU. These practicum/training gists seemed aware that they needed to invest time to
programs ranged from students only being allowed to further educate other team members regarding the benefits
observe (because the supervising speech-language patholo- the infant would receive from intervention with a speech-
gists did not feel comfortable with their students providing language pathologist. Time and financial concerns were
direct intervention) to students being trained, and then also indicated as barriers. Scheduling demands with other
working in the NICU under strict supervision. Some populations and lack of administrative support for program
students had the opportunity to write goals and interact development prohibited the speech-language pathologists
with the families. from expanding their current role in the NICU. Financial
Also, 91% of the speech-language pathologists ex- constraints surfaced as a result of (a) concern about a loss
pressed a need for continued information. In an open-ended of revenue if the team was rotated or patients were shared,
question regarding the need for additional data, the speech- (b) limited funding and exorbitant medical expenses, and
language pathologists' responses varied. Some respondents (c) restricted funding for continuing education and certifi-
wanted general, yet concrete, ideas on how to present cation on assessment measures. At times, staffing of
speech-language programming in the NICU to doctors and appropriately trained speech-language pathologists and the
administrators. Others were interested in more information sometimes fluctuating caseload in the NICU were a
about specific disorders; for example, (a) the characteris- problem.
tics of the disorganized feeder as opposed to the dysfunc-
tional feeder, (b) when nipple feeding should begin with
infants who are dependent on ventilators, (c) dysphagia Support Systems
concerns and development of infants with bronchopul- As noted in Figure 5, a number of different profession-
monary dysplasia, and (d) strategies for dealing with hy- als were involved in the habilitation of the infants who are
persensitive gags of infants who refuse to accept a pacifier medically fragile. These professionals included, in order of
or a nipple due to multiple intubations. Additionally, some most often involved to least often involved, speech-
speech-language pathologists were concerned with language pathologist (100%, as this was a criterion for
obtaining more longitudinal studies that could provide responding to our questionnaire), physician (100%), nurses
support for the efficacy of communication intervention. (100%), parents (100%), either occupational therapist
The speech-language pathologists (84%) who recog- (83%) and/or physical therapist (71%), social worker
nized a need for expanding their role expressed a need for (94%), respiratory therapist (86%), dietitian (54%),

FIGURE 5. Percentage of respondents who have a member of the discipline working in their NICU setting.

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psychologist (20%), and parent educator (20%). Nearly every respondent saw a need for expanding his
In almost half of the programs (49%), the group of or her current role within the NICU. Primarily, the respon-
professionals worked as a multidisciplinary team; only dents reported a need for increased consultation in order to
31% were functioning as an interdisciplinary team. become involved with the infants' habilitation earlier and
Regardless of the service delivery approach in place, 73% more regularly. The respondents also acknowledged the
of the speech-language pathologists reported that everyone need to enhance the education of medical professionals
provided information to the parents, as opposed to such regarding the role of the speech-language pathologist in the
information being conveyed only by a physician or case NICU, and how the speech-language pathologist's exper-
manager. tise could improve infants' functioning. The most fre-
In many programs, there were several neonatologists quently stated prohibitive factors expressed were lack of
and their attitudes often differed. As previously noted, a time and funding, insufficient or inadequately trained staff,
physician's order was required in almost all programs for and perceived attitudes of other team members.
the speech-language pathologist to assess and/or treat. The respondents often noted that supportive and
When asked, "What is the physician's attitude toward coordinated services (a team approach) are important when
habilitative intervention within the NICU?", the speech- providing services for infants who are medically fragile.
language pathologists expressed that the physicians were Most programs had at least six or seven team members
supportive (58%) and/or cautious (29%). Only 7% of the (including the parents). This large number of individuals
speech-language pathologists rated the physician's attitude dealing with an infant who is medically fragile requires
as negative. coordinated and supportive teamwork. Unfortunately,
Many of the speech-language pathologists (37%) did rather than having an integrated team approach, almost half
not have colleagues in the city working in NICUs with of the programs were operating with a multidisciplinary
whom to share information. Fifty percent stated that they team approach in which the specialists assess and treat the
did not have an adequate mechanism for exchanging infant separately. Given the relative newness of the speech-
information with their colleagues. language pathologist's role, it was reassuring that in over
half the NICU programs, the respondents had colleagues in
the hospital with whom they could share information.
Summary However, despite the support from neonatologists and
The current study demonstrated that speech-language colleagues in the hospital, half of the speech-language
pathologists have begun establishing a firm diagnostic and pathologists stated that they did not have an adequate
therapeutic role within the NICU setting throughout the mechanism for exchanging information with their col-
United States, a role that is multifaceted. Speech-language leagues.
pathologists are providing assessments, intervention Although conducted with a limited and potentially
focused on feeding skills and communication interaction, biased sample, this survey nevertheless demonstrated that
and education to medical professionals, other professional speech-language pathologists have begun establishing
team members, and parents. service delivery for infants who are medically fragile in the
In the present study, the speech-language pathologists' NICU and their families. However, the work has only just
involvement in the NICU assessment and intervention was begun. There is a need to initiate speech-language pathol-
most facilitated by their training with the birth-to-three ogy services in more NICUs and to expand the range and
population, their professional interest, their interpersonal improve the quality of NICU services already being
communication skills, and support provided by the provided, as well as a need to document the efficacy of
occupational therapist and/or physical therapist. Factors such treatment. These goals can be accomplished only by
that most inhibited their involvement included lack of time concerted efforts on multiple fronts-by educators in
in their caseload, lack of training with the premature training institutions, by researchers, and by speech-
population, and lack of availability of continuing educa- language pathologists already working in NICUs.
tion. Intervention was primarily focused on feeding goals,
and was carried out with the family and the infant, or the
staff and the infant. When working on communication Acknowledgments
goals, the intervention again was most often with the We would like to thank Fredric Jablin for his assistance
family and infant, or the staff and infant. regarding survey methodology and Shirley Sparks for her
The issue of training yielded multiple suggestions for suggestions when we were developing our questionnaire. We are
further expansion in the specialized work with infants who also grateful to two anonymous reviewers and to Jeanne Wilcox,
are medically fragile. The speech-language pathologists all of whom provided extremely helpful comments and guidance.
expressed a need for formal coursework at the graduate
level to address the unique considerations during assess- References
ment and intervention of preterm and neonatal infants who Ensher, G. L., & Clark, D. A. (1986). Newborns at risk:
are medically fragile. Further suggestions included Medical care and psychoeducationalintervention. Rockville,
practicum opportunities, workshops geared specifically for MD: Aspen.
speech-language pathologists working in NICUs (including Fitzhardinge, P. M. (1976). Follow-up studies on the low birth
hands-on training), videotape training, and observations in weight infant. Clinics in Perinatology,3, 503-515.
NICUs with experienced professionals. Fitzhardinge, P. M., & Pape, K. E. (1981). Follow-up studies of

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the high risk newborn. In G. B. Avery (Ed.), Neonatology: Rubin, H. A., Rosenblatt, C., & Salow, B. (1973). Psychologi-
pathophysiology and management of the newborn. Philadel- cal and educational sequelea of prematurity. Pediatrics,52,
phia: J. B. Lippincott. 352-363.
Goldberg, S. (1977). Social competence in infancy: A model of Siegel, L. S., Saigal, S., Rosenbaum, P., Morton, R. A., Young,
parent-infant interaction. Merrill-PalmerQuarterly,23, 163- A., Berenbaum, S., & Stoskopf, B. (1982). Predictors of
177. development in preterm and term infants: A model for detect-
Gunzenhauser, N. (Ed.). (1987). Infant stimulation:Forwhom, ing the at risk. Journalof PediatricPsychology, 7, 135-148.
what kind, when and how much? Skillman, NJ: Johnson &
Johnson. Received February 6, 1992
Knobeloch, C., & Kanoy, R. C. (1982). Hearing and language Accepted January 11, 1993
development in high risk and normal infants. Applied
Research in MentalRetardation,3, 293-301. Contact author: Shanna Dunn, 505 Kathleen, Austin, TX 78641
Parmelee, A. H., Jr. (1981). Auditory function and neurological
maturation in preterm. In S. L. Friedman & M. Sigman (Eds.), Key Words: Neonatal intensive care unit, NICU, speech-
Preterm birth and psychologicaldevelopment. New York:
language pathologist, preverbal communication interven-
Academic Press.
tion, infant feeding intervention

Appendix

Written Questionnaire-The role of the speech-language pathologist within the neonatal intensive care unit

General Information

1. Are you currently employed in a hospital setting? (Circle one) a) yes b) no


IF NO: Please stop and RETURN THE SURVEY.
Thank you for your time.

2. Is there an NICU in your hospital? a) yes b) no


IF NO: Please stop and RETURN THE SURVEY.
Thank you for your time.

3. Do you work in the NICU? (Circle one) a) yes b) no


IF NO: Please stop and RETURN THE SURVEY.
Thank you for your time.

4. What state do you live in?

5. When and where did you receive your degree?

6. How many years have you been in practice?

7. How many years have you been in the NICU?

8. Are there other speech-language pathologists working in your NICU? a) yes b) no If yes: How many?
9. What disorder areas do you currently work with?

10. What age populations do you work with (0-3, adult, adolescent)?

11. How large is your hospital (number of beds)?

12. How large is the NICU (number of beds)?

13. How long has the NICU been in service (number of years)?

14. What is the typical occupancy rate in the NICU (percentage)?

15. What is the level of your NCU? { } Level I { } Level II { ) Level lII

16. What groups of infants do you serve in the NICU? { } sick term { sick preterm { healthy preterm

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I

Role of the Speech-Language Pathologist

1. How many years have speech-language pathologists provided services in the NICU?

2. How many speech-language pathologists provide services in the NICU?


3. What is your employment status in the hospital? (Circle one) a) contract b) full-time c) part-time

4. Do you work evening hours? Weekend hours?

5. Are physician's orders necessary? (Yes or No) a) to assess b) to treat

6. How many hours a week do you spend in the NICU?

7. What percentage of your time in the NICU is direct service (hands-on intervention)? Consultative (educational interactions)?

8. What roles do you serve? (Check as many as apply) { } diagnostician ( } hearing screenings { } educator
{ } parent support ( } communication therapist { } feeding therapist { } communication facilitator only as it relates to feeding
{ } referrals to other support services { } assist in the transition from NICU to home ({ assist in the transition from NICU to
other agencies { } other (Please specify)

9. To which people do you supply the following types of information?


Parents Nurses Administrators Physicians
a) infant comm. { } { } { } {
b) comm. development { } { } { } {
c) specific disorders { } { } { } {
d) role of speech-language pathologist in NICU { } { ) { }
e) anatomy of feeding { } { } { } { }
f) physiology of feeding { } { } { } { }
10. How does each factor affect your INVOLVEMENT in the NICU?
Facilitates Inhibits Neutral
a) time in your caseload { } { } { }
b) current training w/ 0-3 population {I { }
c) current training w/ premature population { } { }
d) support from neonatologists { } {
e) support from nursing staff { } { } {
f) support from physical/occupational therapist { } { }
g) support from administration { } { } { }
h) funding within hospital's budget { } { }
i) types of speech-language pathologist services allowed to bill for { } {
j) your interest in this population { { } { }
k) your interpersonal skills in interacting with other NICU professionals { } } { { }
I) availability of continuing education { } } { }
m) other (Please specify)
[Please feel free to elaborate on any factor above to provide further understanding of individual circumstances.]
11. How did you get your "foot in the door"?

12. What is the physical therapist/occupational therapist's role in the NICU?

13. What is the parents' role in the NICU?

Assessment
1. Who is assessed? (Circle one) a) all infants in the NICU b) referrals from physicians only
c) infants with specific diagnosis; if so which diagnosis d) other (Please specify)

2. What type of assessment do you do? (Circle one) a) informal: systematic observations
b) formal: developed scale or measure If formal measures are being used, which ones?

3. Which domains are being assessed? { communication { } cognitive { } gross/finemotor


{ feeding/oral motor ( } respiration/phonation ( } emotional state regulation { other (Please list)
4. When are audiological screenings being done? (Circle one) a) routinely b) on referral
c) not done because:

5. Who is doing the audiological testing?

6. What are the criteria for audiological screenings? (Circle one) a) protocol b) high-risk register c) birthweight

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Treatment
1. Who do you work with when doing communication and feeding intervention? (Check as many as apply)
Communication Feeding/oral motor
a) family alone { } {
b) family and infant { } {
c) staff alone {
d) staff and infant {
e) infant alone { } { i
2. What are typical kinds of goals written for your NICU infants? (Please list. Use another sheet if necessary.)
3. Are there any restrictions on the age of infants for whom the speech-language pathologist is allowed to provide services? (Circle one)
a) no b) yes If yes: Please specify
4. Do you treat hypo- and/or hypersensitive (tactile defensive) infants? (Circle one) a) no b) yes
If yes: Does treatment include { } icing { } vibratory stimulation

Training
1. What type of specialized training did you have before graduation?
0 to 3 years NICU infants
a) entire course { } { }
b) units within other courses { } { }
c) none { } { }
2. What type of specialized training did you have after graduation:
0 to 3 years NICU infants
a) self-taught methods (i.e., reading journals,
books, assessment &intervention procedures) { } { }
b) workshops, seminars, conferences { } { }
c) on the job training { } {
d) none {

3. Are there any references you would recommend? (Circle one) a) no b) yes
If yes: Please list.

4. Who or what has been most helpful in training you to serve the NICU population?

5. How can the training procedures be adapted to better facilitate your knowledge and skill of intervention with the NICU population?

6. Do you have recommendations for those starting to provide intervention to infants in the NICU? a) no b) yes
If yes: Please describe.

7. What skills are required for a speech-language pathologist to be a competent service provider in the NICU?

8. Does your speech and language department offer university practicum experience or other types of training programs in the NICU?
a) no b) yes if yes: Please describe briefly.

9. Do you see a need for continued information in any areas? (Circle one) a) no b)yes
If yes: Please describe what further data you would like.

10. Where could this information be obtained? { } further research


{ }increased CEU/inservice training { } other professional domains (Please specify)
11. Do you see a need for expanding your role (further intervention) within the NICU? (Circle one) a) yes b) no
If yes: Please explain.
If yes: What barriers are in place that might prevent achieving this expanded role?

Support Systems
1. Who is involved in the treatment of the NICU infant's habilitation? { } speech-language pathologist { } psychologist
{ } occupational therapist { } chaplain { } physical therapist { } socialworker
{ } parent educator { } dietician { } respiratorytherapist { } nurse
{ } physician { } parent
2. Which service delivery approach is used? (Circle one) a) interdisciplinary b) transdisciplinary
c) multidisciplinary d) consultation e) other (Please specify)

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3. Who is responsible for providing information to the parents? (Circle one) a) everyone b) case manager
c) nursing staff d) neonatologist e) other (Please specify)
4. What is the physician's attitude toward habilitative intervention within the NICU?
{ supportive { } neutral { } cautious { } negative
{ } other (Please specify)

5. Do you have colleagues who are working in the NICU with whom you share information?
Yes No
a) inyour hospital { }
b) in your city { } { }
c) in your state { } { }

6. Do you have an adequate mechanism for exchanging information with colleagues? (Circle one)
a) no b) yes

7. Would you be interested in sharing your name, address, and/or phone number for a national neonatal network for speech-language
pathologists?
a) no b) yes
If yes: Please print the information or maintain confidentiality by sending the information separately.

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