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Funciones Actuales y Necesidades Continuas de Los Patólogos Del Habla y El Lenguaje Que Trabajan en Unidades de Cuidados Intensivos Neonatales
Funciones Actuales y Necesidades Continuas de Los Patólogos Del Habla y El Lenguaje Que Trabajan en Unidades de Cuidados Intensivos Neonatales
Shanna L. Dunn
Rehabilitation Hospital ofAustin, TX
Anne van Kleeck
University of Texas at Austin
Louis M. Rossetti
University of Wisconsin, Oshkosh
n the last two decades, medical, theoretical, empirical, this new role for the speech-language pathologist. One
political, and clinical interests in the birth-to-age-3 factor is recent medical advances in NICUs that have
population have combined in complex ways to increased the survival rate of preterm infants-a population
broaden the roles of the speech-language pathologist in known to be at risk for later developmental delays,
working with children in this age range. One of these including communication difficulties (Fitzhardinge, 1976;
newly emerging roles is that of the speech-language Fitzhardinge & Pape, 1981; Knobeloch & Kanoy, 1982;
pathologist in the neonatal intensive care unit (NICU). Parmelee, 1981; Rubin, Rosenblatt, & Salow, 1973; Siegel
Although other emerging roles of the speech-language et al., 1982). Second, federal legislation supports interven-
pathologist with infants and toddlers and their families tion as early as birth (Public Law 101-476, previously
have begun to receive widespread attention in the litera- known as P.L. 99-457). This law recognizes that "the
ture, there has been little documentation of the clinical potential for prevention [of developmental delays] is a
developments pertaining to the role of the speech-language mandate that cannot be denied" (Ensher & Clark, 1986, p.
pathologist in the NICU. The purpose of this study was to 11). Additionally, evolving theoretical viewpoints have
investigate the speech-language pathologist's role in the also fostered both a greater focus on serving the family and
assessment and intervention of infants who are medically a closer look at the positive and negative impact of
fragile, both preterm and term, in the NICU. We used a stimulation within the NICU (see Gunzenhauser, 1987, for
survey method to explore the current role, and attempted to a detailed discussion of the stimulation issue).
predict the direction in which this role is likely to be The likely goals of the speech-language pathologist
extended in the future. working in the NICU would derive directly from increased
Several factors have contributed to the emergence of knowledge regarding early communication and language
development (of infants developing normally and atypi- method, an additional seven speech-language pathologists
cally) and associated oral-motor functioning. Researchers involved in direct services in an NICU were identified.
of atypical infant communication development have These were contacted by telephone and asked to participate
identified why communication treatment might be an in the telephone interview. All agreed, bringing the number
important focus of the speech-language pathologist in the interviewed by telephone to a total of 10. These 10 speech-
NICU, because they have highlighted the tendency for a language pathologists were located in eight different states.
limited and different communicative signaling among these All telephone interviews were tape recorded.
infants. We know that, without intervention, this different From the information obtained during the telephone
signaling disrupts communication between parent-infant interviews, a written questionnaire was developed for use
dyads and may eventually lead to both the parent and the with a larger sample. Again, because of the newness of
infant withdrawing from interactions (Goldberg, 1977). speech-language pathologist services in the NICU, there
Regarding the speech-language pathologist's expertise was no straightforward way to obtain names and addresses
in the oral-motor domain, the feeding therapies tradition- of speech-language pathologists who were involved in
ally implemented by the speech-language pathologist with such services. Therefore we used two different sources to
older children who have handicaps can be adapted for come up with a mailing list. First, during the telephone
babies in the NICU (although in many hospitals this interviews, each respondent was asked to provide the
function might be served by an occupational therapist). names of all the speech-language pathologists they knew to
Indeed, feeding is one of the infant's most critical activities be involved in providing NICU services. The result was a
during his or her stay in the hospital. Highly nutritional and list of 22 speech-language pathologists who were definitely
efficient feedings provide the infant with the building known to be employed in an NICU, and to whom question-
blocks to advance development within deficient and/or naires were mailed. Second, the third author had conducted
immature systems. many workshops nationwide in which the role of the
The current study was designed to explore how and to various professionals in the NICU had been addressed. He
what extent these developments in the field have been had kept names and addresses of some workshop attendees.
translated into actual practices among speech-language Although we knew that this mailing list contained the
pathologists who serve NICU infants and their families. names of other professionals (such as audiologists and
This survey study was designed primarily to explore the physical therapists), as well as speech-language patholo-
current roles speech-language pathologists are serving in gists who were interested in the infant population but did
the NICU, but we also hoped to shed some light on how not currently work in the NICU, we expected that this
these roles might be likely to expand in the future. Specifi- would provide access to more speech-language patholo-
cally, we explored NICU roles, issues relating to them, gists who provided services in the NICU. We realized, of
assessment procedures, treatment protocols and goals, course, that this would make it extremely difficult to
issues of relevant training, and available support systems. interpret a response rate, but it appeared to be the best
strategy for recruiting a sample of the population we
Method wished to study. We did attempt to address this issue by
asking recipients of the mail-out questionnaire who were
not providing speech-language services in an NICU to
The data collection used in the current study was carried respond to the initial three questions that explained why
out in two stages. The first group of subjects (n = 10) were answering the questionnaire would not be appropriate
interviewed over the telephone for approximately one hour. (i.e., did not work in a hospital setting, did not have an
The second group of subjects included those responding to NICU in the hospital, or did not work in the NICU). From
a written questionnaire (n = 35). The written questionnaire this mailing list of workshop attendees an additional 198
was similar to the telephone interview questions, but it also professionals were mailed questionnaires, bringing the total
contained revisions based on the telephone interview phase number of questionnaires mailed to 220. The question-
of data collection. The method used to obtain subjects for naires went to people in 40 states; major metropolitan areas
these two phases of the study is described below. as well as smaller cities were represented.
To initially recruit subjects for the telephone interviews, Though a random sampling procedure would have been
speech-language pathologists involved in NICU services optimal, the cost of obtaining complete lists of hospitals in
were located by searching the literature for articles order to do so was prohibitive. It should be noted that the
pertaining to speech-language pathology services in method we used to obtain our subjects was untraditional
NICUs. We then contacted the authors of these papers and may have resulted in a somewhat biased sample.
directly. Of five authors recruited by this method, three
were directly involved in NICU services and two were
researchers. All three authors who were directly involved Questionnaire Development
in NICUs agreed to, and subsequently completed, the hour- The goal of both the telephone and written question-
long telephone interview. naires was to compile comprehensive information regard-
With the initial five contacts, a "snowball" procedure ing the newly emerging role of speech-language patholo-
was initiated; that is, these contacts provided names of gists in the NICU setting to enlighten not only the speech-
other speech-language pathologists they knew to be language pathology profession, but all professionals
directly involved with intervention in the NICU. By this involved in the habilitation of NICU infants.
FIGURE 1. Percentage of answers that identified each factor affecting NICU involvement as facilitative, inhibitive, or neutral.
pathologist used the first referral as a stepping stone, development, specific disorders, anatomy and physiology
thereby establishing the role one client case at a time. of feeding) they were providing when educating others
The role of the parents of infants in the NICU varied (such as parents, nurses, administrators, and physicians).
from one hospital to another, but few facilities reported Speech-language pathologists provided the parents and
that the parents were uninvolved (4%). Over half of the nurses with the most information in all areas. Figure 2
programs reported parent participation: 31% of the demonstrates the percentage of speech-language patholo-
programs reported that they encouraged the parents to gists who provided various types of information to parents
participate, and 22% said that the parents were directly and other professionals. Parents were most often given
involved in the habilitation of the infant. Some of the information regarding the anatomy and physiology of
perceived roles of the parents included being a team feeding (82%). They were least often given information
member, being a client in addition to the infant, providing regarding specific disorders (63%) and the speech-
nurturance to the infant, having a lead role in care and/or language pathologist's role (66%). The nurses were most
feeding, and providing carryover for treatment suggestions. often given information regarding the role of the speech-
Unfortunately, our questionnaire did not probe further into language pathologist (80%); they were least often given
issues of family involvement with speech-language information on specific disorders (54%). Administrators
pathologist services in the NICU. This is clearly an area in were given little information (on an average, only 13% of
which further research is needed. the speech-language pathologists provided information in
When describing the role of the occupational therapist most areas); however, the administration was informed of
and/or physical therapist, the speech-language pathologists the role of the speech-language pathologist by almost half
most frequently reported four areas: positioning, education, of the respondents (46%). The speech-language patholo-
range of motion, and sensory stimulation. When describing gists frequently provided the physicians with information
the occupational therapist's role separately, the respondents regarding the role of the speech-language pathologist
stated that the occupational therapist was responsible for (71%); only 46% of the speech-language pathologists gave
sensory stimulation, feeding, splinting, assessment and them information regarding infant communication.
treatment, working with upper extremities, and positioning.
The speech-language pathologists described the physical
therapist's role as primarily positioning, yet occasionally Assessment
they mentioned that the physical therapist was responsible Great variability was noted in the means of assessment.
for assessment, handling, range of motion, and splinting. It Almost all (91%) of the speech-language pathologists were
was sometimes reported that occupational therapists had using informal (systematic observations) assessment
the primary intervention role in the NICU, and that both methods; 25% were using both formal and informal
physical therapists and speech-language pathologists assessments. These assessments were based on a variety of
handled a smaller caseload. assessment measures, published and unpublished proto-
Our questionnaire probed the nature of the speech- cols, and books.
language pathologist's education of other team members. Seventy-six percent of the speech-language pathologists
Respondents were asked to identify what types of informa- only assessed infants when given a physician's referral.
tion (for example, infant communication, communication However, a few programs had begun reviewing all infants
FIGURE 2. Percentage of respondents who provided each type of information to parents, nurses, administrators (admin.) and
neonatologists (neos.)
FIGURE 3. Percentage answered who worked with each group while providing communication and feeding intervention.
FIGURE 4. Percentage of respondents who had had an entire course, units within a course, or no training at the graduate level on
the birth-to-age-3 population and the NICU population.
FIGURE 5. Percentage of respondents who have a member of the discipline working in their NICU setting.
Appendix
Written Questionnaire-The role of the speech-language pathologist within the neonatal intensive care unit
General Information
8. Are there other speech-language pathologists working in your NICU? a) yes b) no If yes: How many?
9. What disorder areas do you currently work with?
10. What age populations do you work with (0-3, adult, adolescent)?
13. How long has the NICU been in service (number of years)?
15. What is the level of your NCU? { } Level I { } Level II { ) Level lII
16. What groups of infants do you serve in the NICU? { } sick term { sick preterm { healthy preterm
1. How many years have speech-language pathologists provided services in the NICU?
7. What percentage of your time in the NICU is direct service (hands-on intervention)? Consultative (educational interactions)?
8. What roles do you serve? (Check as many as apply) { } diagnostician ( } hearing screenings { } educator
{ } parent support ( } communication therapist { } feeding therapist { } communication facilitator only as it relates to feeding
{ } referrals to other support services { } assist in the transition from NICU to home ({ assist in the transition from NICU to
other agencies { } other (Please specify)
Assessment
1. Who is assessed? (Circle one) a) all infants in the NICU b) referrals from physicians only
c) infants with specific diagnosis; if so which diagnosis d) other (Please specify)
2. What type of assessment do you do? (Circle one) a) informal: systematic observations
b) formal: developed scale or measure If formal measures are being used, which ones?
6. What are the criteria for audiological screenings? (Circle one) a) protocol b) high-risk register c) birthweight
Training
1. What type of specialized training did you have before graduation?
0 to 3 years NICU infants
a) entire course { } { }
b) units within other courses { } { }
c) none { } { }
2. What type of specialized training did you have after graduation:
0 to 3 years NICU infants
a) self-taught methods (i.e., reading journals,
books, assessment &intervention procedures) { } { }
b) workshops, seminars, conferences { } { }
c) on the job training { } {
d) none {
3. Are there any references you would recommend? (Circle one) a) no b) yes
If yes: Please list.
4. Who or what has been most helpful in training you to serve the NICU population?
5. How can the training procedures be adapted to better facilitate your knowledge and skill of intervention with the NICU population?
6. Do you have recommendations for those starting to provide intervention to infants in the NICU? a) no b) yes
If yes: Please describe.
7. What skills are required for a speech-language pathologist to be a competent service provider in the NICU?
8. Does your speech and language department offer university practicum experience or other types of training programs in the NICU?
a) no b) yes if yes: Please describe briefly.
9. Do you see a need for continued information in any areas? (Circle one) a) no b)yes
If yes: Please describe what further data you would like.
Support Systems
1. Who is involved in the treatment of the NICU infant's habilitation? { } speech-language pathologist { } psychologist
{ } occupational therapist { } chaplain { } physical therapist { } socialworker
{ } parent educator { } dietician { } respiratorytherapist { } nurse
{ } physician { } parent
2. Which service delivery approach is used? (Circle one) a) interdisciplinary b) transdisciplinary
c) multidisciplinary d) consultation e) other (Please specify)
5. Do you have colleagues who are working in the NICU with whom you share information?
Yes No
a) inyour hospital { }
b) in your city { } { }
c) in your state { } { }
6. Do you have an adequate mechanism for exchanging information with colleagues? (Circle one)
a) no b) yes
7. Would you be interested in sharing your name, address, and/or phone number for a national neonatal network for speech-language
pathologists?
a) no b) yes
If yes: Please print the information or maintain confidentiality by sending the information separately.