THE GOAL OF PALLIATIVE CARE IS TO PROMOTE

QUALITY OF LIFE IN EACH DIMENSION OF WELL-BEING:

PHYSICAL, PSYCHOLOGICAL, SOCIAL, SPIRITUAL.
(End of Life Nursing Education Consortium, n.d.)

PHYSICAL PSYCHOLOGICAL
Functional ability Anxiety
Strength/fatigue Depression
Sleep/rest Enjoyment/leisure
Nausea Pain distress
Appetitie Happiness
Constipation Fear
Pain Cognition/attention

SOCIAL SPIRITUAL
Financial burden Hope
Caregiver burden Suffering
Roles and relationships
Affection
Meaning of pain
Religiosity
PEDIATRIC
Appearance Transcendence
PALLIATIVE
HOW IS PEDIATRIC
PALLIATIVE CARE DIFFERENT
FROM ADULT PALLIATIVE
trajectories of illness
effective pain/symptom management
interventions
CARE
CARE? clinical models of care delivery
funding mechanisms
Pediatric palliative teams must be able to research paradigms
IS IT RIGHT FOR YOU
diagnose and treat a wide range of diagnoses. educational initiatives AND YOUR FAMILY?
Significant decision-making changes happen communication strategies
throughout the development of the illness. ethical concerns
Significant differences between what is staffing ratios and management
effective when treating adult patients versus
pediatric patients include:
(Mary J. Layak Institute for Innovation, 2012)
 WHAT IS PALLIATIVE HOW DO WE GET
CARE? PALLIATIVE CARE? WHO
PAYS FOR IT? ADDITIONAL
Palliative care provides comfort for your
child. Services can begin at the time of
Your child's provider can refer you and
RESOURCES
diagnosis and continue through any age
your family to palliative care services.
or stage of the illness.
And many insurance plans cover AMERICAN ACADEMY OF
Palliative care gives you and your family
palliative care. If there are questions, PEDIATRICS
added support. An illness in the family
concerns, or reservations regarding the
affects the whole family, so services can
cost of these services then alert your
ease some of the stress during this hard
health care team and they can connect
time. NATIONAL ASSOCIATION OF
you with a social worker, case manager,
Palliative care experts join your team to
or financial advisor. NEONATAL NURSES
support you and your family. The focus
is on working together to care for and
support your child, your family, and you.

PALLIATIVE CARE NATIONAL HOSPICE AND

PALLIATIVE CARE
HELPS YOUR CHILD LIVE ORGANIZATION
HOW DO I KNOW IF MY
CHILD OR FAMILY NEEDS A MORE COMFORTABLE
PALLIATIVE CARE? LIFE
NOAH'S CHILDREN
Bon Secours St. Mary's Hospital
Children living with serious illnesses 5855 Bremo Rd.
Palliative care helps relieve your child's
often feel physically and emotionally Richmond, VA, 23226
symptoms, such as:
distant from their peers as a result of 804-287-7686
Loss of appetitie
their disease. Parents, siblings, and other
Problmes with sleep
family members share these stressors as
Pain
well. Palliative care may be for you if
Fatigue
any member of your family (including
Depression
you) suffers from pain or other
Anxiety
symptoms due to a serious illness,
Nausea
experiences physical pain or emotional
distress that is not under control, needs
help understanding your child's health
condition, and/or need support
coordinating your child's care.

(National Institute of Nursing Research, 2015)