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Being A Dissertation Submitted in Partial Fulfilment of The Requirements For The Degree of Bachelor of Science in
Being A Dissertation Submitted in Partial Fulfilment of The Requirements For The Degree of Bachelor of Science in
Title
by
Acknowledgements
2-3 paragraphs to acknowledge those who supported you. If you only acknowledge one person,
change the heading to Acknowledgement.
ii
Abstract
The current paper is segmented into three sections wherein the first section focuses on
offering a critical review of academic literature regarding how nurses care for patients with
dementia and how this treatment can be improved. In reviewing numerous literary works,
research evidence was able to recommend best practices for how nursing practice can be
improved concerning individuals who experienced dementia. This first section helps answer
the research question at the start of it, which questions the conditions and knowledge needs
of nurses who care for individuals with dementia. The second portion of the current
dissertation then offers a critical discussion of the obstacles in the way of such
change being implemented can be overcome utilizing change management models. The last
section, Part C, offers a critical self-reflection on what the authors have learnt through the
course of this literature review and discussion as well as how the teachings of the module
Contents
Acknowledgements............................................................................................................................i
Abstract.............................................................................................................................................ii
Contents..........................................................................................................................................iii
A.1 Introduction................................................................................................................................I
A.5 Background.............................................................................................................................VI
A.6 Nursing.....................................................................................................................................VI
A.9 Conclusion................................................................................................................................XIV
A.10 Recommendations..................................................................................................................XV
B.1 Rationale.................................................................................................................................XX
B.5.2 Communication............................................................................................................XXVI
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B.5.3 Knowledge....................................................................................................................XXVI
B.6 Conclusion..........................................................................................................................XXVII
Part C: Critical reflection on peer teaching and evaluation of learning from the module................XXIX
C.1 Introduction............................................................................................................................XXIX
C.3 Conclusion............................................................................................................................XXXIII
Reference list.................................................................................................................................XXXIV
I
A.1 Introduction
to not only the unique needs of each patient but also considerable competence, skill, and
knowledge from the professional in question – in essence leading the professional to abide
by the NMC Code (2019) which encourages prioritizing people, promoting trust and
professionalism, preserving safety, and practicing effectively. The current section, one of
three, offers a critical appraisal of the literature utilizing a systematic approach. The focus of
this work is the nursing care of people with dementia. In this regard, it should be noted that
nursing is integral to the healthcare system at large with the disease in focus, dementia,
affecting about fifty million individuals around the world with ten million new cases arising
every year, according to the WHO (2020). With such a large portion of the world population
being affected per year, it is important to understand how these individuals can be cared for
and supported and the factors that further complicate their illness.
Dementia is a collective name for several diseases where the common symptoms
stand for a clear deterioration of thinking ability and memory. The term dementia is only used
when these symptoms are persistent and have been present for at least six months and that
a dementia investigation has been performed (Thorogood, et al. 2018). Which symptom
develops depends on which parts of the brain are affected, therefore different dementia
diseases may have similar symptoms. Nine out of ten people experienced behavioral and
point during the disease, which means that such symptoms are common in all forms of
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Compassion and understanding are the foundations of care. This is true in all
interactions between people, but dementia caregivers may find it particularly important.
Dementia patients, for instance, are concerned about losing track of their surroundings as
well as the time frame in which they have been living. Consider why you would feel and also
how you would like being handled if you were unexpectedly bewildered in a strange area,
Nursing for dementia sufferers may be physically and mentally exhausting. The
importance of self-care cannot be overstated. It's crucial to share the load, delegate duties,
and take mental and physical breaks. It is critical to renew the soul to continue working and
The above PICO framework acted as the basis for the research question presented below.
research question that follows: How nurses’ practice can help patients who experience
dementia be improved?
The current work was based on an extensive search of the literature in which a
number of academic databases were accessed. These databases included Google Scholar,
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JStor, PsycINFO, NCBI, MEDLINE, and CHINA wherein a combination of the following
keywords was used, with the Boolean operator AND being used to combine them into
various combinations:
Nursing
Healthcare
Dementia
Care
Patient-Centered
Collaboration
Hospital
It should then be taken into account that these keywords, in spite of them being
segmented as such, were all combined with the term nursing – as this profession was the
primary point of focus of the current review. However, truncation was not used. Additional
searches were performed on the WHO’s website from which a single article was used. This
article, as it was not used as a primary portion of the literature review and was mainly used
to assess statistical information regarding the subject matter, was not included within the
below PRISMA chart. As continued searches were performed, a total of nine articles
appeared twice, due to which the overall number of articles gathered went from 79 to 70.
This was followed by the inclusion criteria being applied to the works gathered following
which only 45 remained, not accounting for the single article attained from the WHO’s
website.
Articles that were deemed suitable for the current study were synthesized with their
being overviewed to see if these works could add meaningful information to the current
review at hand.
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n
Records identified through Additional records identified
tio
database searching(93,600) through other sources(18)
ca
tifi
en
Id
Records after duplicates
removed(93,591)
g
in
en
Records screened(70) Records
re
excluded(93,521)
Sc
ed Studies included in
ud the quantitative
cl synthesis (9)
In
Figure A.1 PRISMA Flow Diagram (based on: Moher et al., 2009)
The above PRISMA Flow Diagram illustrates the overall number of studies searched
and excluded as well as those included. In this regard, it needs to be understood that the
Articles published within the last five years (2015 to 2020) in order for the author to attain
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Focus on or be relevant to the subject matter (Must match or appear when a varied
Peer-Reviewed.
These studies were determined by the author to be worthy of inclusion as they met all
except one of the five above-listed criteria. The works appraised had their titles and
abstracts synthesized and should the information be relevant then the author attained full-
print versions of these works to extract information from them and include them in the
current paper.
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A.5 Background
Alzheimer's disease is the most common dementia disease and accounts for 60 to
70 percent of disease states (Thorogood, et al. 2018). Dementia is a chronic disease which
means that it cannot be cured but only alleviated. The life of a person with dementia is
facilitated with good treatment as continence care. Primarily dementia is treated with nursing
measures for the person to achieve as good a quality of life as possible despite their illness
(Thorogood, et al. 2018). Treatment options that are a second choice are pharmacological,
in the form of various symptom-relieving drugs. The symptom-relieving drugs are disease-
related, so it is important to get a diagnosis to get the right help. The biggest risk factor for
dementia in old age as older populations are more likely to be inflicted by this ailment, but
there is also a risk of being affected from a genetic perspective (Livingston, et al. 2017). As
described above, the term dementia is a collective name for several different diseases. A
various mixed forms (Livingston, et al. 2017). Nurses play a central part in providing care for
people with dementia, which includes not only specialist nurses but also all nurses in
A.6 Nursing
Nursing means giving care to someone else, it is the nurse's area of responsibility
and it should be conducted close to the patient (Fukada 2018). Nursing is given and decided
together with the individual to maintain good health and quality of life, regardless of whether
the individual is healthy, sick, or in need of support before death. Nursing should have a
clear holistic perspective on the human being, where the main focus is the individual's well-
being (Fukada 2018). Nursing can take place at different levels, general nursing and specific
nursing. General care is at a basic level and independent of illness, the care can be
performed by all care staff but also by relatives and other people in the community. Specific
nursing is performed in the case of illness where there are state guidelines to relate to
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How nursing should be designed and conducted varies slightly depending on state
regulations; and nursing care for individual patients, such as those with dementia, is
specified in said regulations. Assessing and describing what quality of life / good standard of
living is in dementia can mean difficulties, when estimating someone else's well-being there
is always a certain subjectivity. For people with dementia to experience the highest possible
quality of life, the care should take place with the individual at the center. To be able to
achieve this, cooperation between a nurse, care staff, and relatives is required to be able to
obtain a good overall assessment and reduce the difficulties with subjectivity (Bruun, et al.
2018).
In person-centered care, the individual is in focus and the work is built up with the
help of a team. The team can include several different categories of care staff, the important
thing is that the person the team affects and the person's relatives are part of the team and
actively participate in their care. Person-centered care abides by NMC Code domains with
professionals being tasks to treat patients as individuals whilst upholding their dignity,
listening and responding to their concerns and preferences, making sure that their
psychological, social, and physical needs are met, acting in their best interests, and
respecting their right to confidentiality and privacy (Kim and Park 2017). Person-centered
care requires all care staff to be sensitive and compliant as well as a good ability to be able
to see what is not seen and hear what is not said. This emphasis on the psychological
aspects is what characterizes good person-centered care (Manthorpe and Samsi 2016).
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foundation and benchmark for life and therapeutic impact, gave rise to the phrase "person-
centered treatment." In 1988, Tom Kitwood has been using the phrase to separate a certain
form of dementia treatment from more cognitive and psychiatric methods. he phrases to
describe a collection of concepts and working methods that prioritized communication and
psychology and culture, and the community, with a focus on social context. He thought that
the environment influences the brain just as much as the brain influences a person's talents.
The rejection of the conventional medical approach to dementia, which centered on strictly
treating an illness, was central to Kitwood's thesis. He thought that the underlying premise of
dementia in medical research had much too detrimental and predictable consequences for
Latham (2015) cited much research that found benefits from applying person-centered care
methods, such as better quality of life, less tension, enhanced sleeping habits, and self-
esteem preservation. Chenoweth, et al. 2019; Du Toit, Shen, and McGrath 2019). Keeping
shower rooms warm, for example, can improve residents' bathing experiences, minimize
staff stress, and save time (Chenoweth, et al. 2019; Du Toit, Shen, and McGrath 2019).
Several research methods also show the relationship between effective organizational
nursing. The nurse's professional responsibility also includes working preventively / health
promotion and teaching and imparting knowledge to patients, relatives, employees, and
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students. All these components contribute to good and safe nursing being achieved in
clinical practice (Yamaguchi, et al. 2019). Nursing is the basis of the nurse's professional
responsibility to see nursing as a theoretical concept and not only as a physical act.
Moreover, for nurses to be responsible, they have to abide by a set code of ethics. In this
regard, it should be noted that there is an international code of ethics for nurses set out by
the International Council of Nurses (ICN) (Cations, et al. 2018). The most prominent
amongst this code is that of the principle that nursing should aim to "promote health, prevent
development work based on evidence, a higher academic level is required (Harrison Dening,
et al. 2017; Handley, Bunn and Goodman 2019). Specialist education at the international
level should be based on theoretical knowledge, relevant research, and clinical education
being woven together to achieve high quality, which leads to both an academic degree and a
vocational degree (Harrison Dening, et al. 2017; Handley, Bunn and Goodman 2019). Being
a specialist nurse means working at an advanced level with different nursing situations
(Harrison Dening, et al. 2017). An undergraduate nurse lacks sufficient knowledge in their
education to be able to work independently in different nursing areas with a specialist focus
(Handley, Bunn, and Goodman 2019). Being a specialist requires not only a clinical eye but
also a high level of emotional knowledge - to be able to read and understand complex
For the outcomes, It was discovered that the breadth of the practice of primary care
nurses found it challenging to synthesize the data and draw conclusions. The findings
provide valuable insight into the features of tasks performed by nurses in general practice
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settings, which might be useful to persons living with dementia and their caregivers. Access
to the Practice Nurse for patients, early prevention and diagnosis of cognitive abnormalities,
care management, and teamwork with the General Practitioner were among them. Practicing
Nurses' ability to provide dementia care was limited by a lack of description of the job,
According to Fazio, et al. (2018), these needs to be followed to drive health care forward.
attitudes and working methods for specialist nurses. According to Håkansson, et al. (2019),
nurses believe that it is desirable that care and development work is conducted in a person-
centered way, that they see again in the person-centered way of working. With an increased
understanding of the individual behind the disease, but also a structure for the practical work
in their business (Cations, et al. 2018). For it to be feasible in clinical activities, nurses with
competence for the assignment are required (Håkansson, et al. 2019). It is the responsibility
of specialist nurses with their in-depth competence to drive nursing forward (Fazio, et al.
2018). For specialist nurses to have the opportunity to implement it, clear strategies are
required for person-centered care, so that it maintains good quality (Håkansson, et al. 2019).
Fazio, et al. (2018) state that closely focusing on patients and ensuring high quality of
care as well as the competence of the nurse increase disproportionately with care time,
financial cost, and rate of death. This means that the more focus placed on patients, the
higher the quality of care and the more competent the nurse, the fewer patients, and their
families have to spend on healthcare and the less likely are the chances of the patient dying
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and them being in care for the long-term (Fazio, et al. 2018). For good person-centered care
Safe care includes several different parts and to achieve good patient safety, not only
organizational safety but also competence safety is required. This means that the care
provided corresponds to national guidelines and laws such as the HITECH ACT, the
EMTALA Act, the ACA, the CARE Act, and so on, but also that the level of care provided is
exercised by nurses with current qualifications (Evans, et al. 2018). Evans, et al. (2018) state
that the care provider, as well as the nurse, must have the right competence for the
competence to ensure the care provided within the chosen specialist area is done so in a
A.7.2.3 Informatics
The specialist nurse is involved in communication and information being carried out
and reported. Good communication and information are prerequisites for the care to be
conducted (Brown, Agronin, and Stein 2019). The nursing perspective should permeate the
information and communication performed by nurses and nursing staff, for example, to
create good knowledge-based care with support from the nursing process. Technology is
driving healthcare forward, today patients have a greater role than before regarding their
care, for example in the use of various internet / online services. These services can be
your medical record. The specialist nurse needs to possess knowledge regarding
information and communication from the technology perspective to be able to lead the
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clinics and with the individual at the center (Jacobsen, et al. 2017). There are several
different team combinations, for example, teams within the same professional category,
certain type of event or problem, such as trauma teams, support teams, etc. (Brown, Agronin
and Stein 2019). The team is characterized by knowledge exchange as well as collaboration
on an equal level where the focus is to achieve the best possible results for the patient (Goh,
et al. (2017). Specialist nurses with in-depth knowledge can then in their role and
professional responsibility contribute to the team with their competence in nursing, for
example through patient safety work based on current research and continuity in meeting
with the care recipient. The holistic view that specialist nurses contribute to the team is
based on person-centered care and is based on evidence (Brown, Agronin, and Stein 2019).
follow-up regarding care and nursing of patients. Specialist nurses need to have the right
tools to be able to make decisions based on evidence. These tools are based on knowledge,
practice, and treatment; all components are needed for the nurse to be able to make a
Quality work with a focus on development and improvement is something that must
continuously take place in every activity within the health care system. It is the management
of the business that must ensure that the entire organization follows the quality standards of
reporting and utilizing information. Quality work can only be carried out by a specialist nurse
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with the competence and appropriate experience required for the assignment. Specialist
current data for the selected patient group is measured, which is compiled and followed up
and can then be compared with national data. The statistical results from quality registers
understanding of nurses for evidence-based care in clinical activities. Nurses realize that
academic education is a meaningful part of the specialist nurse's profession and contributed
Caring for people with dementia is a challenge, mainly because many elderly people
often also have multiple diseases and also have a need to be cared for by a specialist nurse
(Goh, et al. 2017). Due to their cognitive impairment caused by age, this group is an
extensive patient category and this, in turn, places high demands on nursing (Jacobsen, et
al. 2017). The nursing of people with dementia thus takes place, to a large extent, at the
advanced level (Jacobsen, et al. 2017). Related to the common multi-morbidity in people
with dementia, it is not enough for nurses to just have basic knowledge in nursing but in-
depth knowledge is also crucial (Douglas, Brush, and Bourgeois 2018). The nurses in
dementia care have an important role in supervising staff and supporting them in person-
Based on recent studies in dementia related to the lack of education, however, there
are no studies based on competence description for specialist nurses in dementia care. This
means that there is a lack of a written basis regarding the expected knowledge of a nurse
professional in dementia care and as a result, there are few nurses who are further trained
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as specialist nurses in dementia care (Douglas, Brush, and Bourgeois 2018). Many elderly
people, who are the most common patient category with dementia, have multiple diseases
and need specialist competence in several of their disease types. Nurses who work in
elderly care and dementia care hence need in-depth knowledge in geriatrics, gerontology,
A.9 Conclusion
Dementia accompanies several uncertainties regarding lack of knowledge about
different types of dementia (Dixon and Thompson 2018; Maio, et al. 2019) that symptoms
may have another underlying cause of the disease (Paulo, Scruth and Jacoby 2017) and
uncertainty about essential issues (Poole, et al. 2019). The results of the literature review
indicate that the nurses' frustration over their workload related to time and the experience of
uncertainty is something that should be noted concerning the possibility of providing good
and safe care, as otherwise there may be a risk for the patient. According to the author of
the literature review, academia shows that nurses have insight into the areas in which they
need to gain more knowledge to improve the quality of life for people with dementia in
hospitals. Conversely, not all nurses have the same insight into how said knowledge and
training can be acquired. It emerged that the nurses who have completed an education in
the present had a different attitude and understanding of the importance of a formal
A.10 Recommendations
Smythe, et al. (2017) discovered that further trained nurses found work rewarding if
time and space were given to further train colleagues and implement systems and working
methods that increase the quality of life for people with dementia. Newly graduated nurses
have a greater focus on challenges associated with nursing in hospitals and solutions for
this, as well as an interest in learning more about dementia care as a basis (Smythe, et al.
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2017; Evripidou, et al. 2019). The practical knowledge, current diagnosis, and nursing of
professionals in the real world differ from the treatment and strategies recommended in the
literature. Previously, nursing education did not include nursing science as a theory to any
great extent.
Poole, et al. (2019) and Bhattarai, et al. (2020) drew attention to the behaviors of
nurses, such as that the care of people with dementia is largely based on the experiences of
the nurses. This, nurses, consider good nursing from their point of view, which is based on
their philosophy rather than evidence. Rahman and Dening (2016) saw that top and
specialist functions are a very good tool for nursing to be based to a greater extent on
evidence. It can also be a risk to invest only in individuals and there is a benefit in increasing
the evidence work in nursing and then also focus on raising the minimum level and not only
top functions, for example by organizing for consulting conversations between specialist
nurses and other staff (Handley, Bunn and Goodman 2017; Paulo, Scruth and Jacoby 2017;
Maio, et al. 2019). There is an advantage in having specialist nurses available, as Handley,
Bunn, and Goodman (2017) and Maio, et al. (2019) show in their models, where the benefit
is that they work close to the business and are part of the team around the person with
dementia and drive nursing forward (Paulo, Scruth and Jacoby 2017; Bhattarai, et al. 2020).
The author of the literature review believes that to raise the basic level of knowledge
nurses the help of specialist trained nurses or educational programs is needed. In the
literature, it was found that specialist nurses do not always feel appreciated (Rahman and
Dening 2016; Dixon and Thompson 2018). This could increase if a consulting role was
explicitly present as part of the tasks assigned to nurses as specialist nurses themselves
point out that they desire to have time and opportunity to share their knowledge (Rahman
Poole, et al. (2019) and Handley, Bunn, and Goodman (2017) address the
importance of collaboration between academic institutions and clinical practice. The author
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of the literature review agrees with this, that evidence-based work in clinical practice is
possible to reduce the gap between these, as Maio, et al. (2019) describes. The gap may
also become smaller over time, as nursing science is today included to a different extent in
nursing education (Bhattarai, et al. 2020). What Bhattarai, et al. (2020) describe proves this,
as they saw that nurses who studied during their practice had a different attitude to
evidence. The author of the literature review does not believe that this can be taken for
granted as in the long-term, solutions as well as closing such a gap will be the focal point of
future nursing and healthcare. Nonetheless, this itself will be an active process that must be
activities. With better basic knowledge regarding dementia and people with dementia, nurses
theoretical knowledge but that the nurse also receives clinical training in the type of meetings
and situations that may arise with people with dementia (Handley, Bunn, and Goodman
2017). The author of the literature review believes that this is something to consider, as
dementia is one of our biggest public diseases globally (WHO 2020) and which unfortunately
continues to increase as our population grows older (WHO 2020). The patient group of
people with dementia will most likely meet with nurses, regardless of which activity they
choose to work in. The author of the literature review believes that there may be again an
increased basic knowledge already in basic nursing education as time passes and improved
Organizational support and nurses' prerequisites include factors such as the level
and standard of care, working relationships, experienced colleagues, a clear work schedule,
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cooperation between the nurses, and working in teams. These components need to work for
a workplace and/or business to achieve good quality (Rahman and Dening 2016; Poole, et
al. 2019). The majority of nurses experience a lack of organizational support or management
support (Handley, Bunn, and Goodman 2017). Research shows that strained work situations
affect nurses and that they experience heavy workloads in their everyday lives. Nurses
experience stress and pressure both in their professional role and in their personal life
(Rahman and Dening 2016; Dixon and Thompson 2018; Bhattarai, et al. 2020). There is also
a feeling that one does not have time or otherwise is not able to perform the nursing that
Primarily, literature does show that nursing professionals desire a senior consultative
nurse and a forum to share knowledge between colleagues the most. Moreover, they seem
to also want to do away with old care cultures regarding nursing for people with dementia
and continue to strengthen and work for person-centered care. Thus, it is recommended that
nurses be offered such a forum for effectively communicating with one another alongside
being able to access a senior individual who can offer them insight and assistance when
need be. By providing nurses with such means, healthcare settings such as hospitals would
be able to effectively care for patients with dementia in a person-centered manner that
further educates nurses as well as patients and their families whilst improving care.
Nurses suggested that units be sufficiently staffed with dementia-trained nurses and
PSWs to improve dementia care: Nurses thought that caring for dementia patients took a
long time; therefore some suggested hiring extra people to assist with their care.
According to nurses, will indeed help to protect the safety of clients with responding
behaviors by assisting the nurses in supervising them. Certain nurses believed that some
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PSWs allocated to them required dementia care education and a compassionate approach
with clients who had responsive behaviors (Bartimaeus, 2018). As a result, several nurses
advocated for one-on-one employees, including such Bartimaeus employees, who are
competent caregivers with experience service users with complicated behavioral issues, to
Nurses themselves point out a knowledge gap between practical and theoretical
care and work in practice based on the concept but do not have the theoretical knowledge
and do not fully understand the care philosophy (Dillane and Doody 2019). There also
seems to be a gap between theoretical and practical knowledge regarding current laws and
assessments based on ethical aspects. Education is needed, for example, regarding human
rights and what regulations they need to abide by when providing care to individuals with
dementia. The nurses who have good knowledge of dementia and what can be appropriate
nursing and measures for various diseases, still lack of knowledge in terms of leadership
and being able to reach out to colleagues for knowledge acquiring purposes (Dillane and
Doody 2019).
Evripidou, et al. (2019) showed in their study that there is a need for education in
several different areas and that service training is something nurses who treat patients with
dementia desperately require. (Evripidou, et al. 2019) also show that it is common for nurses
to confuse delirium with dementia. Nurses who have a good basic knowledge base
into practical clinical work. What nurses mainly need more knowledge in is treatment, as
they often approach and talk to the person from a reality-oriented perspective. They see this
need for skills development to become safer in their profession and care for people with
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The nurses themselves experience that there is good knowledge about dementia, but
that in-depth knowledge is needed when meeting with relatives as well as for support in
mapping and how to use accepted assessment documents (Evripidou, et al. 2019). In
dialogue with relatives, the focal point of the conversation is that of care and how it will be
offered. (Evripidou, et al. 2019) found that theoretical knowledge and also knowledge in the
use of nursing theories as well as assessment documents do not reach the same level as
practical knowledge and experience. Regarding difficult nursing situations with people with
dementia, nurses, on the other hand, are good at exchanging experiences with each other
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Managing change is not only difficult but a tiring task for most organizations, with
healthcare facilities such as hospitals often struggling to implement said change. Therefore,
academia needs to offer a set basis for managing change based on evidence. In this regard,
B.1 Rationale
suffer from dementia and the various problems that nurses encounter as well as how said
problems can be overcome, the current section was structured to offer a discussion the
recommendations made previously. In this regard, the current takes the impact of
organizational structure, change, work improvement, team collaboration, and how a nurse's
professional responsibilities and roles impact their acceptance of change into account.
In terms of organizational structure and support, most nurses feel that there is not
enough (Kormelinck, et al. 2019; Lees Haggerty, et al. 2020). They also often complain that
any support work is not done without some form of dissatisfaction or frustration (Reuben, et
al. 2020; Lees Haggerty, et al. 2020). There is an increased need for resources within
organizational support, and here two type of needs emerge. Partly that the organization itself
entails limited opportunities through a lack of support and time set aside, but also the
presence of a lack of competence among individual nurses. Regardless of the country from
which the nurses emanate, they agree that strained work situations affect their work
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(Douglas, Brush and Bourgeois 2018; Kormelinck, et al. 2019). These situations are
perceived as strained from the nurses' perspective as they want to do more than there is
room for in the environment, with time and resource availability being prominent limiters of
the nurse's capabilities (Lees Haggerty, et al. 2020). According to Kormelinck, et al. (2019),
nurses describe their area of responsibility mainly as directing and instructing other care
staff, working with documentation and supporting relatives. They emphasize the importance
of an approach in which person-centered care is adopted in work with people with dementia
Nurses themselves feel that they are far from the clinical activities and they can
therefore not participate in or drive person-centered care forward to the extent they want
(Reuben, et al. 2020). Additionally, Handley, Bunn and Goodman (2017) state that nurses
feel that their workload is heavy, which affects the quality of treatment of people with
dementia. A possible reason for this may be that nurses themselves do not properly know
how to respond to and deal with difficult nursing situations. Even those who have dementia
knowledge and know how to resolve such situations do not consider the actual time
Nurses, regardless of workplace, all feel frustrated about the introduction of various
system changes that are not implemented correctly (Mkhonto and Hanssen 2018). That is,
nurses want to have proper consultations with organization and department heads regarding
the type of system changes to be implemented. This is because most changes are often
introduced with short notice, no or very little preparation and lack of training (Mkhonto and
Hanssen 2018). These organizational changes create frustration and resistance among
nurses. Nurses, similar to employees in any setting, generally feel that organizational
changes can counteract the service they offer, care, and thus harm not only the organization
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The majority of changes also mean that nurses feel that they come further and
further away from patients and clinical activities (Digby, Williams and Lee 2016). In the care
of the elderly sector, Allen and Close (2010) attempted to try a working model where a
clinically working nurse was used as a consultant in the care of people with Alzheimer's. This
nurse in question had in-depth knowledge and was given further education in a chosen
subject area, in this case Alzheimer's care. During this, a need emerged from an
being available to other staff for improving quality in the short and long term (Allen and Close
2010).
Allen and Close (2010) saw in their study that with the NICHE geriatric resource
model and its structure created an increased quality of life in people with Alzheimer's. The
nurses who cared could then acquire more specific knowledge, when they knew what the
situation required and demanded, which led to the nurses becoming more confident in their
professional skills (Allen and Close 2010). Nurses seemed to appreciate being given help
and support from a nurse with in-depth knowledge in Alzheimer's care as well as in
evaluating, responding to and structuring the care around the person with Alzheimer's. With
only a single well-trained nurse, nurses complained about the shortage of trained specialist
nurses (Allen and Close 2010). Organizationally, it has been found that specialist nurses
tend to become responsible for ever larger units or areas, which reduce their opportunities to
be in the business (Digby, Williams and Lee 2016). Nurses, regardless of whether they
worked with elderly care or dementia care, generally want the opportunity for more
knowledge and preferably formal further education in their specialist area. In this regard, the
financial contributions for further education thereby leading to few nurses choosing to study
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Luckett, et al. (2017) showed in their study that while multi-professional team
meetings were appreciated, they occurred on a too sporadic basis. What made it more
difficult was time access based on schedule, as differing professionals have differing time
availability thereby making it challenging for said professionals to have meetings on time.
Nurses saw a need to find new ways in the work to reach out with care in a better way to the
individual. Something they spoke positively about was finding increased opportunities for the
multi-professional team (Luckett, et al. 2017). Thus, it is important to also see relatives as
part of the team to increase the quality of care for people with dementia (Luckett, et al.
2017).
Brooker and Latham (2015) state that nurses agree that working with people with
dementia is a positive experience and that it gives a lot in return. The starting point in the
care for the nurses who have in-depth knowledge of dementia care is a desire to alleviate
the person's suffering and increase the person's quality of life (Livingston, et al. 2017). When
working as a nurse for people with dementia, communication skills, and clinical skills are of
great importance, as they often convey to other care staff what needs to be done clinically.
Therefore, nurses can feel that they work the most with these two areas and very rarely have
time to participate in the clinical work themselves (Cations, et al. 2020). For nurses to
maintain their interest in work but also remain in their workplace, nurses want greater
recognition for the work they do, for example, to feel valued for their abilities, knowledge,
and experience and that they were committed to their work (Douglas, Brush and Bourgeois
2018).
It is not only a complex situation to work with people with dementia but also a
challenge to make nurses feel satisfied with their capabilities and work and remain within the
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healthcare system and/or industry (Livingston, et al. 2017). Livingston, et al. (2017) shed
light on how it is possible to set up work and increase understanding of nursing for people
with dementia. They state that treatment should be the main focus of any good nursing
strategy to make the care of people with dementia work in practice. It is necessary to build
up a functioning relationship and work structure with external units, for example, get help
from a specialist in dementia care for support and advice as well as increased cooperation
with relatives. The VIPS structure, in this regard, is highly appropriate for nursing and
becomes support in how nursing should be performed instead of how nurses should act
As the VIPS structure begins to be practiced, the understanding of the nurses and
care staff for the underlying reasons for the person with dementia reacting or acting in a
certain way also increases (Cations, et al. 2018). This increased understanding leads to the
choice of other nursing strategies, which are now based not only on somatic symptoms but
also on symptoms at the psychosocial level (Cations, et al. 2018). Despite the stressful
everyday life that occurs, nurses and nursing staff, through VIPS, see a benefit in taking the
extra time to get to know the person behind the disease, as it facilitates nursing and reduces
the incidence of BPSD (Luckett, et al. 2017). This means that the person with dementia is
perceived as calmer and that it becomes easier to care for them (Luckett, et al. 2017).
Most often there are experiences of uncertainty in several different forms in the care
and lacking the knowledge to be able to support, help, and advise patients in their current
situation (Harrison Dening, et al. 2017; Livingston, et al. 2017; Cations, et al. 2018). Those
who work inwards meet people with dementia who were cared for acutely, often with other
existing somatic illnesses being the cause of said dementia. Harrison Dening, et al. (2017)
state that nurses want to achieve good and safe care, but are influenced by their philosophy
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on how nursing should be conducted. Nursing can then sometimes be based on the nurses'
own beliefs rather than based on evidence. Most nurses base their nursing philosophy on
providing the care they would like (Luckett, et al. 2017). Which is also framed by stress, for
example, that patients need to be ready for certain times and not based on the person with
When implementing a new work structure, nurses feel that they need better
implementation using clearer information of the document for guidelines regarding people
with dementia. This needs to take place in real-time to help nurses get acquainted with the
guidelines before they are to be used (Harrison Dening, et al. 2017). Moreover, practical
help and support in how to work with guidelines in practice can help reduce uncertainty and
stressful decisions for nurses thereby allowing them to remain high functioning in stressful
environments (Livingston, et al. 2017). Nevertheless, nurses consider that guidelines could
be good support and also lead to an increased consensus (Cations, et al. 2018). One topic
that nurses often avoid is that of talking about death with people with dementia. They often
interpret when the person expresses a longing for death as depression and nursing
Medication for depression is then given instead of talking about death - this
medication is inevitability going up against a disease condition that cannot be cured. The
nurses experience an accepted silence regarding people living in nursing homes and what
these individuals have for faith and religion. This silence becomes even clearer when it
comes to people with dementia. Most nurses do not feel comfortable in these situations and
also do not feel that they know what is applicable based on management and organization
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B.5.2 Communication
to interpret what the person wants to say and for the nurses to convey information to the
person (Luckett, et al. 2017). Information can apply to what will happen next - for example,
treatment/surgery, but also simpler requests such as being able to take medication (Luckett,
et al. 2017). Based on this, Luckett, et al. (2017) state that nurses feel a low level of
satisfaction in their work when they care for people with dementia, primarily due to
frustration, stress, and compassion. The authors saw in their study that education and
support were areas of need in the workplace. Lastly, nurses seem to also desire increased
access to specialist nurses in dementia care both in terms of support and availability,
consultative for other staff, and set aside time for work with the patients who have dementia
B.5.3 Knowledge
When comparing nurses who have not had any introduction or training on how
people with dementia can be cared for with those who do, tend to be worse off in terms of
caring for patients, offer reduced results, and are generally more dissatisfied (Smythe et al.
2017). Journal systems and the information collected related to how the care is to be
provided to be solely often based on physical needs or problems, with the focus being on
these tasks being performed correctly rather than meeting the person with dementia's
individual needs (Evripidou et al. 2019). This shows that most care settings tend to lack a
person-oriented approach. Nurses who are not offered sufficient knowledge development
lack self-confidence in their knowledge and ability to provide care for dementia, focusing on
a more psychological level (Dillane and Doody 2019). These individuals can also equate
spiritual and religious experiences and lack knowledge of what separates them (Smythe et
al. 2017).
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difficulties, lack knowledge, and are unable to take a stand on more existential issues and
thus avoid speaking of subjects such as death, religion, etc. with patients, thereby
discouraging the patient and possibly harming them mentally (Smythe et al. 2017). It should
be noted that these nurses do not do this out of intent but rather due to them feeling
distressed and fearing the reactions that their patients would have regarding their opinions.
Nonetheless, nurses themselves realize that they require knowledge in these areas and that
this part of the care can be an important and large part of their lives for some people with
B.6 Conclusion
educate them on the various ways in which patients suffering from dementia need to be
dealt with and how they can manage stressors and communicate with one another.
Conversely, implementing a person-centered care program for nurses that offers them a
forum for communication with coworkers and a senior individual who can alleviate their
worries and concerns may be challenging. The primary challenges that any hospital doing so
would face would include limited time and resources from the organization's end, resistance
to change due to lack of familiarity or knowledge of the program and its purpose, and a lack
Nonetheless, by utilizing set methods for change implementation and management such as
Kotter's change management theory and Lewin's Change Management Model, such change
In this regard, Galli (2018) states that utilizing Lewin's Change Management Model is
the easiest and simplest way for organizations to manage change. By identifying three
unique change stages, organizations can plan how they can manage the change, thereby
reducing the possibilities of resistance to the change. This three-step model (Unfreeze,
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Change, and Refreeze) involves developing change motivation, moving the process of
change, and returning a sense of stability to the organization following the implementation of
the change. It should be noted that this final step of the Change Management Model
ensures that employees are prepared for future changes while accepting the impact of the
current one.
Change Management, is much more complicated than the Change Management Model, as
mentioned above, as it involves eight steps rather than three. However, Kotter's model is
built on Lewin's Change Management Model as it segments the three steps as mentioned
above into eight steps, which involve creating urgency, forming a coalition, developing a
change vision, communicating the vision, encouraging employees to act on the change plan,
ensuring that short-term achievements are attained, that the change is built on, and that it is
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C.1 Introduction
In the choice of articles, the author has not considered the type of activity area. The
literature review could have been further deepened by choosing an area of activity (Xiao and
Watson 2019), such as improving nursing leadership only, improving nursing education only,
phenomenon (Kraus, Breier, and Dasí-Rodríguez 2020), and thus, it is recommended that
future works utilize such an approach to this subject matter. Essentially, by conducting a
broad search of academia, the author provided a good picture of care as a whole and
similarities and differences between forms of activity (Xiao and Watson 2019). This literature
activity. The nationality of the selected articles is widespread and was not narrowed down to
a single nation; rather, the literature review's goal was to offer an overall picture. At the
beginning of the work with the literature review, the idea was that the study would stick to the
United States where the structure for the development of the healthcare sector is similar to
other Western nations, and it would then create high credibility and transferability to use the
In the first database search, on JStor, there were too few useful search results, and
the search thus expanded to other academic databases such as Google Scholar and NCBI,
with it being further expanded to others. Thus, the geographical limitation had to be opted
out in favor of a larger basis that enabled an analyzable dementia care picture. Despite the
different nationalities of articles, there were clear similarities in the challenges nurses face in
caring for dementia people. It can be seen as a strength and breadth in most represented
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number of hits, after which the author began by reading the title and summary, it emerged
that most of the hits found via databases were literature studies and not original articles. It
was not feasible to use a manual search in this step for the original articles used in most
literature studies were older than the inclusion criteria, alternatively already included, or did
not meet the literature review's purpose. Based on the fact that the original articles' range
was lower than what the author of the literature review in the first step had perceived, it was
therefore chosen to both changes and expand the keywords (See Part A for inclusion criteria
and keywords). Conditions were kept regarding dementia care, nursing care, and a timeline
of five years. Both care and nursing were included in different keyword combinations with the
Boolean term AND. As additional searches for academic works were conducted through
other medical-related databases, including PsycINFO, MEDLINE, and CHINA, the author
Thus, it was important to selectively procure literary works from these databases as
several irrelevant articles began to show. Most of the abstracts were read to determine
whether the searched article corresponds to the literature review's purpose. The abstract of
a searched article is a crucial starting point for assessing its relevance and deciding if it is to
be included in the literature review (Barn, Barat, and Clark 2017). Although a few articles
that fell outside of the criteria were also included, the author ensured that these exceptions
did not apply to the majority. Searching of databases and collecting data took place by
electronic means entirely, and the collection performed was based on the inclusion criteria
mentioned previously. It should also be considered that only free-to-view works were used
as purchasing individual articles was not within the financial budget of the current author.
Keywords used in database searches are based on the purpose of the literature review:
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XXXI
Boolean search term was used, and the selected search term was AND, which is an
accepted search term for database search (Busalim 2016). A peer-reviewed approach was
used to ensure quality and credibility from a scientific perspective in the database before the
search began (Barn, Barat, and Clark 2017). The data collection ended with a manual
search via the reference lists of the selected articles to find articles that were not in selected
databases or articles that did not come up based on selected keywords (Busalim 2016). The
manual search did not generate more articles. In the literature review, no distinction has
been made between articles with a qualitative or quantitative approach, as the use of
different approaches can provide a broader basis to see the subject from different angles.
consider in the current work, was how the selection of articles went and how decisions about
limitations were made related to relevant research, according to Barn, Barat, and Clark
(2017). The author has used accepted assessment material and believes that the selected
articles create reliable material. Searches in databases generated several duplicates, the
duplicates were excluded, and the articles were selected based on first-hand hits. In total,
Google Scholar, JStor, PsycINFO, NCBI, MEDLINE, and CHINA had been chosen to be
used as academic databases for the current review. The literature review did not have
difficulty achieving saturation based on the planned inclusion criteria; however, certain
exceptions were made to account for works that added historical accuracy and furthered the
The literature review highlights the need for nurses for high conditions and
knowledge in meeting people with dementia. There were also areas and activities where
nurses feel that they had good knowledge regarding dementia. However, areas emerged
that can be strengthened to increase these conditions regarding knowledge among nurses.
For example, competence description (for specialist nurses in dementia care), further
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evidence, strengthening the multi-professional teamwork, and continuing working for good
working conditions. Thus, based on the areas of improvement presented, in-depth formal
competence is recommended to increase the conditions for nurses to provide good nursing
care for dementia. The results also show that person-centered care should be at the center
of care for people with dementia. To be able to meet this, there is also a need for in-depth
Through the literature review, the current author learned several interesting facts
regarding nursing and how individuals suffering from dementia react to and perceive others.
Before conducting this review of academic literature, the current author lacked sufficient
knowledge regarding how dementia patients should be regarded, the difference between
dementia and diseases such as Alzheimer's and delirium, and so on. Moreover, the author
learned how nursing, as a practice, should not be centered only on the treatment of a given
disease, illness, etc. but rather that the treatment of a person should focus first and foremost
on them. A fact that may seem obvious in hindsight, the current author, learned that nursing
should, especially in dealing with individuals going through and experiencing the
tremendously stressful disease that is dementia, focus on care; this is not to say healthcare
or care as in treatments but rather the type of humane care only an individual with a
sufficient understanding of the other as well as empathy can give. Not only does academic
literature verify this fact that care should be person-centered, but rather literature goes on to
emphasize it as being critical to the treatment and quality of life of patients, regardless of
Although nurses have been shown to resign or become cynical to their profession in
their later years (Handley, Bunn and Goodman 2017), after experiencing enough trauma to
leave them emotionless (Handley, Bunn and Goodman 2017), it is the emotions as well as
the forethought that nurses have that can greatly improve a patient's quality of life.
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Therefore, it was critical for such a review focusing on the conditions and knowledge needs
of nurses who care for individuals with dementia to focus on person-oriented care and how
nursing knowledge plays a part in the type and quality of care a nurse can provide. By not
limiting the literature review to only evaluating a certain methodology or assessing a single
subject of focus, the current work was able to offer insight into a subject matter seldom
discussed outside of the nursing profession and dementia patient care. Additionally, through
the course of evaluating several articles and literary works, the current author was able to
perceive dementia patients and how the skill sets of these professionals can influence their
behaviorr.
C.3 Conclusion
Although dementia is a widespread issue that affects millions of people around the
prominent issues such as cancer, HIV, and the like often take the spotlight away from a
subject matter equally as important. In learning about dementia and the various types, the
author was able to evaluate how healthcare for these individuals can be improved based on
recommendations thus made during the literature review emphasize this subjectivity
combined with academic objectivity. Whether or not such approaches will be successful is
not a questionable matter as the current literature on this subject continually enforces the
notion that the best practices for dementia patient treatment are patient-centered.
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