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Professional Practice Note:

Hoarding and how to approach it


- guidance for Environmental Health Officers and others1

That a person’s environment can affect his mental health is well-known but the phenomenon
of hoarding can provide examples of the reverse – of a sufferer’s mental ill-health affecting
their immediate environment. Hoarding, described as the collecting of excessive quantities
of goods and objects, arguably including animals, coupled with an inability to discard them is
surprisingly common in varying degrees. It becomes problematic for the subject when it is
extensive enough to inhibit the use of the home or personal function. Even before that
point, however, depending on its presentation, it may be brought to the attention of the
authorities as causing, or being likely to cause, a hazard to health or a nuisance to others.

In such circumstances, the law may oblige them to take some action but that action can be
uninformed about the phenomenon, inappropriate and, at least on its own, doomed
ultimately to failure. This paper therefore sets out to provide an overview of hoarding and
its aetiology, in particular considering Diogenes syndrome and hoarding as a symptom of
obsessive-compulsive disorder; it notes the growing list of statutory powers available to
address hoarding and by means of a case study and the results of a survey, reviews the
incidence and diversity of cases coming to the attention of environmental health authorities
in the hope that, eventually, that may lead to better ways to resolve them.

1 Introduction

1.1 Hoarding can be described as threatened by the nature or amounts of


collecting and being unable to discard ‘clutter’ accumulating within, and
excessive quantities of goods or objects. sometimes overflowing from, the
As a behaviour, it is quite common and sufferer’s environment.
most people who hoard possessions do
not suffer from any psychiatric disorder, 1.2 This paper aims firstly to provide
however, in some cases the problem some insight into the clinical problem of
may progress to become so severe that hoarding, briefly presenting studies on the
it causes significant distress and prevalence and nature of the condition
impairment. Though usually covert, together with information on treatment
hoarding can also become a concern for and management of the behaviour.
others when health and safety are Secondly, it reviews the various statutory

1 Revised from an unpublished paper delivered to a meeting of the Psychiatry section of the Royal Society of
Medicine in May 2004 jointly by Dr Sarah Holroyd, then Consultant Clinical Psychologist, Surrey Oaklands NHS
Trust and Howard Price, Principal Policy Officer, Chartered Institute of Environmental Health and up-dated most
recently in June 2015. Comments to Howard Price at: h.price@cieh.org
powers available to health agencies and discard possessions that appear to be
especially local authorities to control the of little use or value
consequences. Finally, some practice  living spaces sufficiently cluttered so
guidelines are offered for Environmental as to preclude activities for which
Health Officers (EHOs) who come into those spaces were designed, and
contact with people with hoarding  significant distress or impairment in
problems. functioning caused by the hoarding
(Frost & Steketee, 1999).

SUMMARY POINTS The scope of the problem

Hoarding behaviour is relatively 2.2 Hoarding behaviour is relatively


common though problematic common in the general population (Frost
hoarding is rarer. Every case is & Hartl, 1996) but though listed in DSM-5
different. in May 2013, is not yet regarded in the UK
as a disorder in its own right. It presents
It presents across the population in across a wide continuum of severity but
association with many psychiatric only a small number of people will suffer
disorders, most frequently with from hoarding to an extent which meets
elderly self-neglect and OCD, or none the clinical criteria outlined above.
but apparently often following life
trauma. There may be organic causes 2.3 Hoarding as a clinical symptom can
and non-medical models emphasise occur in many different psychiatric
the role of personal choice. disorders - in dementias, schizophrenia
and depression and with learning
Both clinical and statutory disability, eating and personality disorders
interventions are often resisted and and post-traumatic stress disorder - so it is
success rates are low. Recurrence impossible to collate overall figures on the
rates are high but multi-agency incidence and prevalence of the problem
approaches involving long-term but the two conditions in which hoarding
support are recommended. is most likely to occur are elderly self-
neglect (or ‘Diogenes Syndrome’) and
Cases may raise difficult practical obsessive-compulsive disorder (OCD).
and professional problems and the These two conditions are described in
law is not always helpful. more detail below.

Some guidelines for good practice by


EHOs are offered. 3 Diogenes Syndrome

3.1 The term ‘Diogenes syndrome’ was


established by Clark and others to describe
2 The problem of hoarding a condition of extreme self-neglect,
domestic squalor, social withdrawal and
Definition apathy, with a tendency to hoard (Clark et
al.,1975). The name is taken from that of
2.1 Problematic hoarding is a complex the 4th century BC Greek philosopher who
behavioural phenomenon usually, if advocated a life of self-sufficiency,
imprecisely, described by researchers in freedom from social norms and the
the field as consisting of three rejection of personal comforts but it is
components: questionable whether it is a suitable name
as subjects are often far from self-
 the acquisition of and failure to sufficient or happy in their surroundings

2 Hoarding and how to approach it


and Diogenes did not neglect himself. an episode of psychiatric illness, physical
ill-health or other life event. Alternatively,
3.2 Referring predominantly, although not the person may have had a disorganised
exclusively (Grignon et al., 1999; Snowdon lifestyle for many years which becomes
et al., 2006), to the condition in the exaggerated and problematic through
elderly population, it describes a set of ageing and physical infirmity.
characteristics which often presents
problems for Older Adults Services and Treatment issues with Diogenes syndrome
other agencies rather than a discrete
mental disorder. Patients with Diogenes 3.5 One of the key features of Diogenes
Syndrome compulsively hoard a variety of syndrome is that, while it presents
objects but may be particularly drawn to numerous serious problems for the subject
rubbish. The term syllogomania (Gk. and others, sufferers themselves will often
sylloge, collecting) is sometimes used to reject any form of help offered. One study
describe this form of hoarding. of 233 ‘service refusers’ revealed that 47%
met the criteria for Diogenes syndrome
3.3 The annual incidence of Diogenes (Scallan et al., 2000). A wide variety of
syndrome is estimated at 0.5 per thousand supports including meals-on-wheels,
people aged over 60 living at home. It home-help and house cleaning had been
occurs equally in both men and women, declined. In another study, nearly half of
with an average age of around 77 years. the people referred for self-neglect to an
Most sufferers live alone, suffer poor older adults psychiatry service were
physical health and a high mortality rate. hospitalised or placed in nursing homes
Other typical features include higher than (Wrigley & Cooney, 1992). This illustrates
average intelligence and personality the frequent difficulty experienced by
characteristics of aloofness, suspiciousness professionals in dealing with this problem:
and aggressiveness. Most patients, as early offers of help are rejected, more
believing their behaviour to be within drastic action is likely to be required later
normal bounds or, at least, ‘their on as a result of escalating physical,
business’, will resist any sort of mental or environmental risk.
intervention.
3.6 Unfortunately, the mortality rate for
3.4 Between 50% and 65% are likely to those in an acute condition (for example
suffer a formal psychiatric disorder, most after a fall or collapse) is very high in the
commonly dementia, but patients may period immediately following their
also present with other organic brain hospitalisation. Even if help is accepted
disorder, alcohol dependence, psychosis, initially, the problem usually recurs after
depression, OCD or personality disorders the house has been cleaned and tidied or
(O’Shea & Falvey, 1997). There is no the person returns home.
single ‘cause’ of Diogenes syndrome and
whereas in some cases there is an obvious 3.7 For those subjects with Diogenes
causal link with a psychiatric condition, it syndrome who also have a diagnosed
is unclear why the significant proportion of psychiatric disorder, treatment may be
sufferers who do not have a mental illness offered by the relevant psychiatric
develop a syndrome which can be so services. For example, someone suffering
incapacitating and problematic for them a psychotic illness may respond to a
but some researchers believe Diogenes course of anti-psychotic medication and a
syndrome represents a reaction to stress person with alcohol dependence may
in an elderly person with certain improve if they receive help with their
personality characteristics. Such stress substance misuse.
may result from the loss of a partner or
other bereavement, but may also follow 3.8 If the individual suffers OCD as part

Hoarding and how to approach it 3


of their condition, medication and 4.2 Several studies have been carried out
psychological interventions are potentially on hoarding from an OCD perspective
helpful, nevertheless, what is clear from (Frost and Hartl, 1996; Frost and
the literature is that whenever Diogenes Steketee, 1999). Many, avoiding
syndrome co-presents with other confusion with Diogenes syndrome, have
problems, the prognosis is very poor. One focussed on a distinct population of
study attempted to treat hoarding in three hoarders who are not usually elderly and
people who displayed all the do not suffer problems of self-neglect or
characteristics of Diogenes syndrome and squalor. Compulsive hoarding of the OCD
fulfilled the criteria for OCD. Despite type can, nevertheless, be an equally
expert in-patient treatment, the subjects’ severe and disabling clinical problem and
hoarding did not improve (Drummond et may at times result in risks to the health
al., 1997). and safety of the sufferer, being
associated with greater impairment and
3.9 What is also clear is that even if more co-morbidity than other forms of
treatment might be helpful, it is likely to OCD, as well as those around them. While
be refused by most individuals concerned. the research into compulsive hoarding has
In the face of that, early assessment, easy looked at a very specific type of patient,
access to help, persistent encouragement the knowledge gained into why and how
and contact with the person concerned, hoarding develops is illuminating and
and working alongside friends and relevant to understanding the problem,
families, are the only sensible options whether the hoarder has Diogenes
available to health agencies (Wrigley & syndrome, or pure OCD, or no obvious
Cooney, 1992; Jackson, 1997). disorder at all.

Compulsive hoarding in OCD


4 Obsessive-Compulsive Disorder
4.3 OCD affects 1-3% of the population
4.1 Obsessive-compulsive Disorder (OCD) and hoarding occurs in 20% to 30% of
is a form of anxiety disorder characterised patients with OCD. While some
by either obsessions (recurring thoughts researchers believe there is a biological
or images that cause distress) or component to the disorder, there is more
compulsions (repetitive behaviours or agreement that faulty beliefs and thoughts
mental acts that the patient is driven to also play a part in the causation of this
perform to reduce distress or avoid a problem. This psychological model - the
feared situation) or, commonly, both. cognitive-behavioural theory of OCD - is
Typical obsessions include fears of being based on the idea that distorted beliefs,
contaminated by germs and fears of assumptions and thoughts can give rise to
causing harm to oneself or others. feelings of anxiety and distress. If a
Compulsions can be acts or rituals such as person responds to these unpleasant
repeatedly checking or washing and feelings with unhelpful behaviours such as
putting objects into order. Hoarding, seen avoidance or rituals the problem is
as another ritual, has been considered to maintained and can gradually build up
be a distinct sub-type of OCD and, in fact, over time.
some researchers have suggested that the
hoarding behaviour in Diogenes syndrome 4.4 A great deal of research now supports
may actually be explained by OCD which this model in accounting for the difficulties
has just not been diagnosed as such that patients experience and people who
(Drummond et al., 1997; Rosenthal et al., compulsively hoard have been found to
1999; cf Wu, 2005). experience the following sorts of thinking
errors:

4 Hoarding and how to approach it


 Decision-making problems. People use tomorrow for something that they
who hoard tend to have difficulty have thrown away today.
making decisions, especially about the
pros and cons of saving something. 4.5 People who have a compulsive
They may be particularly perfectionist hoarding problem tend to be older than
and be concerned that the decision other OCD patients but most state that
must be exactly right, which is their hoarding began with discarding
impossible to achieve, and so the problems in childhood or teens, worsening
object is retained indefinitely. They with the addition of acquisition problems
may have trouble organising and later though, as with other OCD
categorising objects and concentrate presentations, they may fluctuate with
too much on the possible, although time (Grisham et al., 2005). It affects
unlikely, negative consequences of both men and women. There is no
throwing something away. They evidence that deprivation in childhood
resort to procrastination and (such as wartime experiences or rationing)
avoidance to put off having to decide is a predisposing factor for hoarding
what to do. although this may feature in some
 Emotional attachment problems. It people’s accounts of their problem.
used to be assumed that hoarded Hoarding behaviour does, however, run in
objects were of no use or value to the families though whether that indicates a
person hoarding them, however this is genetic influence or simply that it is
now considered to be erroneous. learned through copying another family
Most subjects will have strong member (Winsberg et al., 1999) is
sentimental attachments to their unclear.
objects, even if they are objectively of
little functional value, as for example Treatment of compulsive hoarding
with broken objects, out-of-date
vouchers, old newspapers and so on. 4.6 The most widely accepted
Many hoarders describe throwing psychological treatment for OCD is
away their objects as like losing part cognitive-behaviour therapy (CBT). This
of themselves and they experience involves a structured programme of re-
powerful feelings of loss, grief and education so the sufferer learns how to
emptiness. The objects can hold confront what they fear, deal with any
particular memories for the person, or obsessional thoughts and beliefs that are
it may be that having lots of familiar unhelpful, and gradually practices coping
objects around them provides a with anxiety-provoking situations. At the
general feeling of safety and comfort same time, the sufferer must resist any
(Frost & Steketee, 1999; Kyrios et al., urge to perform the compulsive
2002) behaviours that went along with the fears
 Erroneous beliefs about possessions. so, for OCD-related hoarding, a patient
People who hoard can show unhelpful must learn to adapt their distorted beliefs
distorted beliefs such as feeling and ideas about their possessions,
responsible for not wasting things and gradually organise and discard objects in a
for using objects properly. They can step-by-step programme, and learn ways
also believe that it is vital to of coping with the feelings of anxiety, loss
remember everything and not waste and grief as they may arise.
any opportunity to hold on to
information that might be contained 4.7 Medication can also provide relief for
within, for example, a pile of sufferers of OCD, particularly the more
newspapers or books. They can find modern forms of anti-depressants,
it intolerable to think they might find a however, these do not suit everyone and

Hoarding and how to approach it 5


symptoms can often recur once the 6 Alternative explanations
medication is stopped. A combination of
tailored CBT and medication may be Non-medical models
offered for treatment of OCD where the
initial response to either alone is poor 6.1 If most problematic hoarders are,
(NICE, 2005; Saxena et al., 2002). under the foregoing models, not in the
best mental health, some authors consider
4.8 All the research to date has indicated that a Diogenes lifestyle (though not , of
that compulsive hoarding is the most course, an obsessive-compulsive one) may
difficult form of OCD to treat effectively. be a positive choice by the person
Although some small improvement in concerned rather than a clinical
symptoms may be obtained, even with deterioration, perhaps by someone who
intensive CBT and medication, gains are already had a tendency to self-sufficiency
usually minimal (Frost & Steketee, 1999; or isolation from their community
Saxena et al., 2002; Seedat & Stein, (Jackson, 1997) and there is a school of
2002). People who compulsively hoard thought which prefers to regard many of
may acknowledge that they have a them as simply ‘different’ – as choosing to
problem and that their behaviour is conform to different norms – but certainly
abnormal and unlike those with Diogenes not in need of any treatment.
syndrome may seek help at some point
but in spite of this, still find it extremely 6.2 This model may be reinforced in cases
difficult to modify their hoarding beliefs where the subject neglects some aspects
and behaviours sufficiently to overcome of their existence while still displaying
the problem. more conforming behaviour in others such
that, for example, hoarding behaviour is
not inevitably combined with poor
5 Animals personal hygiene. Whether their
behaviour is longstanding, perhaps learnt,
5.1 The hoarding of animate ‘objects’ is or as in some cases of Diogenes syndrome
an under-characterised variant of a reaction to a more recent life event
pathological hoarding. More difficult to (especially one resulting in later-life social
deal with than non-animal hoarding, it isolation) and though many may be in
typically involves cats or dogs (though physically poor condition, this ‘socio-
cases of farm animals and birds have been psychological’ school holds that
reported) and the numbers of animals categorisation of these people by
kept can be considerable. In the majority reference to more widely accepted norms
of cases, animals are found dead or in should be avoided.
poor condition.
6.3 Though, in common with the more
5.2 Exhibited predominantly by female traditional approaches, this school holds
subjects, in most cases also satisfying the that ‘care by consent’ should be the
criteria for adult self-neglect and possibly guiding principle in clinical management, it
pointing to a range of medical, social and challenges the predominating medical
economic problems, many of their construction of self-neglect (typified by
households contain dependents while their Clark) and even that such a syndrome
homes are often extremely cluttered and exists, suggesting it is largely a product of
fouled. (Patronek G., 1999; Arluke A., the professional groups defining it,
2002) reinforced by pre-conceptual language in
its description and gaining strength from
the mere repetition of that (Lauder,1999).
Thus, it is argued, since hygiene and
cleanliness are so important to medical

6 Hoarding and how to approach it


concepts of disease, a lack of hygiene is fact, there are significant numbers of
seen as at least a precursor of disease complaints made to local authorities
which itself requires treatment, in some regarding individuals who live in domestic
cases forcibly, though empirical evidence squalor or who hoard rubbish. If the
for that may be lacking and concentrating person refuses to accede to offers of help
on this symptom may overshadow the there is a growing body of legislation
subject’s true problem. which can be utilised in different
circumstances by health agencies and local
6.4 In this explanation, subjects’ life authorities, nevertheless, in practice, much
preferences are disregarded as subjective, use of compulsory powers raises tricky
misguided, or as evidence of underlying ethical issues, in particular where hoarders
personality disorder in favour of the retain mental capacity and no-one else is
professionals’ assumed objectivity which, being materially harmed.
in the process of seeking common features
in the subjects’ situations, actually creates 7.2 They are also difficult to apply and
a false commonality at the expense of the most would agree should be used only
peculiar features of each case. A more where there are compelling reasons to do
existential approach is recommended to so and then only to the minimum degree
determine when personal choice becomes necessary, respecting the subject’s
self-neglect and to identify those cases autonomy as far as possible. In this
which irrespective of outward appearance respect, however, there is some evidence
actually cause the greatest distress or that different professions may strike the
genuine risk. balance in different places, possibly
leading to disappointment and even
Organic causes conflict when their respective views on
case management diverge.
6.5 There may, it has been suggested,
also be entirely organic causes for Mental health powers
hoarding behaviour. Brain scans of a
small number of sufferers have shown 7.3 Within the province of health and
different patterns of cerebral glucose social services, nevertheless, a person
metabolism when compared to a group of suffering from a mental disorder may be
non-sufferers (Saxena et al, 2004) and detained under the Mental Health Act
other recent work has suggested that 1983(aa) if it is necessary for his own
damage to particular parts of the brain health or safety or for the protection of
may allow tendencies we all have to other people and treatment cannot be
acquire and keep belongings to operate provided otherwise. An assessment under
unchecked (Anderson et al., 2005). section 2 may be appropriate if an
underlying mental disorder is suspected
and section 135 of the Act allows an
7 Statutory powers Approved Mental Health Professional to
obtain a warrant to enter and remove a
7.1 Problematic hoarders, whether people person from their home for this purpose.
with Diogenes syndrome or OCD or simply Of course, the Mental Health Act would
with different norms, present very difficult not apply at all to the 35% to 50% of
dilemmas for their families and people with Diogenes syndrome who have
communities. There are understandable no discernable psychiatric disorder.
concerns for their mental and physical
well-being and often also for their safety if 7.4 The power under s.47 of the National
the self-neglect and hoarding appear to Assistance Act 1948 to remove a person
compromise hygiene or increase fire risk unable to devote proper care and
and though those may not be borne out in attention to themselves from insanitary

Hoarding and how to approach it 7


accommodation was repealed by the Care definition of health, and those concerned
Act 2014 which now requires (s.42) a local more with local amenity.
authority with reasonable cause to suspect
an adult (a) has needs for care and The health powers
support, or (b) is experiencing...neglect
and is unable to protect him/herself 7.7 The oldest available in England and
against that, to decide whether any action Wales among the first group is the duty
should be taken. Under the general under section 83 (aa) of the Public Health
supervision of its Safeguarding Adults Act 1936 to require the cleansing (by
Board, such a decision must be predicated disinfecting and decorating) of any
on a needs assessment, including an premises which are either in such a ‘filthy
assessment of the impact of those needs or unwholesome condition as to be
on the person’s well-being, and must take prejudicial to health or are verminous’. By
account of the person’s wishes where s/he no means all hoarders’ homes fit this bill
has capacity. Any duty to offer to meet but, in a carry-over from Victorian
those needs is, however, subject to further legislation, ‘filth’ is a euphemism for
eligibility criteria. excrement, animal or human, and subjects
who hoard their own excreta present a
Environmental health powers singular challenge, including in respect of
the duties of care owed to those dealing
7.5 Turning to the treatment of hoarding with it. The meaning of ‘unwholesome’ is
rather than of the hoarder - and more now obscure but ‘verminous’ includes
towards environmental neglect than self- infestation by insects. While the use of
neglect - when hoarding grows to a gas to destroy vermin is explicitly
problem level, possibly spilling over mentioned, that technique is now
beyond the hoarder’s own home, the local obsolete.
environmental health service may be
among the first to know. Whether the 7.8 Unusually there is no appeal as such
result is simply a bad smell coming from a against a statutory notice given under this
flat, an unsightly mess in a garden, or section. Though the authority may be
something worse, it will usually be to the required to justify its actions in the course
local council that neighbours or simply of any summary proceedings brought
passers-by will turn first. That may in the subsequently for a failure to comply,
first instance be to the Housing householders have no other obvious
Department or ALMO if the house is an avenue for challenge and EHPs should
estate property but even then, the tread carefully for those reasons if no
Environmental Health Department is likely other. The expenses of carrying out their
to be informed, either to confirm any real requirements in default of owners are
risk to physical health (or otherwise) or recoverable by instalments if necessary,
because of their access to pest control or secured by a charge on the property or
rubbish removal services. ultimately under a power of sale, and from
occupiers as a simple contract debt.
7.6 Environmental Health services are
part of the regulatory arm of local 7.9 There is a complementary duty in
authorities, indeed the principal part of section 84 to cleanse or, if necessary,
that arm, but while there are more ways destroy filthy or verminous articles
than one of fulfilling that role they do have (clothing, furnishings etc) found in any
access to a range of enforcement powers premises at the local authority’s expense
which may come into play in hoarding and a power to cleanse verminous persons
cases. These are divisible, broadly, into requesting that or to do so compulsorily
two groups: those concerned with some pursuant to a Magistrate’s Order (section

8 Hoarding and how to approach it


85). Few, if any, cleansing stations for power to undertake works in default of
this purpose remain and the task usually compliance carry with it a power to
now falls to a reluctant NHS. recover their reasonable costs from the
person responsible and, where that person
7.10 The mere age of these powers has is the owner of any premises, from his
attracted scrutiny of them recently, with successors in title.
the suggestion that they have been
overtaken by amendments made in 2008 7.13 Where the circumstances are right, it
to the Public Health (Control of Disease) is important to note that the use of these
Act 1984 introducing co-called ‘Part 2A powers is mandatory, that is they are
Orders’. Providing powers to require the statutory duties rather than merely powers
disinfection (probably including though their application involves some
disinfestation) of persons, things and discretion in any event.
premises, that was not, however (and
despite the shortcomings of the 1936 Act 7.14 Since many subjects will guard their
powers) their aim and the need to show privacy closely, use may have to be made
risk of spread of infection or contamination of the powers of entry, if need be under
is likely to be hard to satisfy. Warrant, contained in section 287 of the
1936 Act or sch. 3 of the 1990 Act. These
7.11 More modern, and more widely used provide powers to enter premises (in the
(at least in other contexts) is another case of domestic premises after giving
reincarnation of a Victorian concept, that notice, except in an emergency) to
of statutory nuisance. Part 3 of the ascertain whether or not circumstances
Environmental Protection Act 1990 exist requiring any action by the council,
provides powers for local authorities to or a statutory nuisance exists respectively,
require the abatement of a range of and for the purpose of taking any
problems including ‘any premises in such a appropriate action consequently. Powers
state as to be prejudicial to health or a of entry in general are currently under
nuisance’ and ‘any accumulation or review by the government and may be
deposit’ which meets the same test. restricted in future.
‘Premises’ includes open land such as a
garden. 7.15 Thirdly, and with a similar aim to the
Public Health Act power above, the 1949
7.12 Decisions of the courts in recent Prevention of Damage by Pests Act allows
years have confirmed a quite restrictive local authorities to require steps (such as
construction for the term ‘prejudicial to the removal of materials providing food or
health’ here (and which applies equally to harbourage) to be taken by occupiers to
the duty described in 7.7 above) which keep land clear of rats and mice. Whereas
means likely to cause a threat of disease, the Public Health Act power tends to be
nevertheless that is probably wide enough used for internal clearance, the Pests Act
to deal with conditions giving rise to power tends to be used for clearing
infestations or a serious lack of hygiene, gardens; arguably, the presence of
for example. ‘Nuisance’ has its common relevant pests must be shown first.
law meaning of something which
materially interferes with the use of 7.16 The Housing Health and Safety
another’s land (or some right over it) (a Rating System introduced under the
private nuisance) or (less likely to apply) Housing Act 2004 is concerned with the
which affects the comfort or convenience assessment of deficiencies in the design,
of the population at large (a public construction and maintenance of dwellings
nuisance), and in either event, reflecting but expressly excludes consideration of
the origins of these provisions, is of a deficiencies solely attributable to the
public health flavour. Local authorities’ behaviour of occupiers. Accordingly it

Hoarding and how to approach it 9


provides no mechanism for addressing as the cause of the problem. Many would,
hoarding or the hazards which often arise nevertheless, use such legislation only
as a direct consequence of it. The homes reluctantly in the case of a person
of many, though by no means all, suffering from a mental illness or disorder.
hoarders may nevertheless be in disrepair,
sometimes extreme disrepair (and poor Enforcement
electrical wiring may exacerbate fire risk)
prompting action by the local housing 7.19 All of these powers, both of the
authority, usually in the forms of health and amenity varieties, follow a
Improvement or perhaps Prohibition traditional enforcement model: in each
Notices and where there is an imminent case, the process begins, the local
risk of serious harm, their emergency authority having become aware of the
variants. In extremis, a house presenting situation by way of complaint or other
so-called ‘Category 1’ hazards may be information or observation, with the
liable to be demolished. service of a statutory notice – a formal,
legal instruction – to clean the premises or
The amenity powers remove (or at least reduce) the
accumulation within a stated time.
7.17 Threats to public health and loss of Subject to rights of appeal against the
amenity may, but need not necessarily, notices themselves, in each case, to fail to
co-incide, and alone, the latter is, broadly comply is a summary offence. Uniquely,
speaking, likely to be regarded as a less the powers under the Environmental
serious problem. There may, however, Protection Act bring with them the option
arise situations where the loss of amenity of an indefinite prohibition on allowing any
affects neighbours seriously, or where a recurrence, breaking which gives rise to a
problem persists for a long period, or gets further offence of its own. No further
worse over time. In this respect, the complaint need be made first.
Refuse Disposal (Amenity) Act 1978 allows
a local authority, after giving notice, to 7.20 Under the Environmental Protection
remove anything abandoned on land in Act alone, there is a defence to conviction
the open air and to recover their costs but of ‘reasonable excuse’, however, an
the occupier would first have to disclaim excuse of illness or incapacity is unlikely to
ownership. Alternatively, section 215 of be accepted as reasonable.
the Town and Country Planning Act 1990 Notwithstanding, though therefore likely to
provides a power to require the owner or result in conviction, pursuing these cases
occupier of land which is adversely through the courts is generally
affecting the amenity of an area to return inappropriate; from a legal standpoint,
it to an appropriate condition. they will rarely satisfy the Attorney
General’s tests (to paraphrase them) of
7.18 These powers deal with situations being in the public interest and of being
where the material is visible to neighbours likely to result in an outcome which
or to other persons living in the justifies the input. Prosecutions which do
community and which is harmful to the not satisfy these guidelines are at least
amenity or quality of the environment. frowned upon. More practically, the main
Though ‘amenity’ may be as difficult to benefit, indeed the main object of
define as ‘nuisance’ and the point at which following an enforcement route will be to
untidiness affects amenity may be unclear, enable the authority to carry out the steps
the primary purpose of local authorities in required in a statutory notice itself, at
using their powers to deal with amenity least in theory, whether or not it
problems is to protect the interests of subsequently tries to recover its costs.
neighbours and the wider community Punishment is not the object.
rather than the hoarder, the person seen

10 Hoarding and how to approach it


Effectiveness 8.2 The last Labour government’s pursuit
of the ‘Respect Agenda’ led to the
7.21 Though there may be both public enactment of the Anti-social Behaviour Act
and political pressure on Environmental 2003 and to related legislation, notably the
Health Officers to use their powers to Clean Neighbourhoods and Environment
bring about a swift solution, their Act 2005 with the effect potentially to
effectiveness too will often be in doubt illegitimise a wide range of behaviours
and there may well be a particular which cause offence or just simply
disincentive to using them to the full. This annoyance to others, reluctant to consider
is because they will be dealing with people whether the individuals causing the
who do not comprehend the problem may be in need of help or of
inappropriateness of their behaviour, by welfare assistance rather than a good
definition irrational, and who are dose of self-discipline. While the
consequently unlikely to respond to the application of such powers has proved
rationality of the enforcement process, wider than was probably envisaged when
that is to say of an instruction backed by a the legislation was drafted many might
threat of escalating sanctions. The nonetheless think them particularly
particular disincentive is that if the person misused in relation to hoarders and others
is, as many in this extreme state will be, with mental illness whom it may make the
financially disadvantaged, the authority subjects of criminal penalties when
may have difficulty recovering its costs prosecutions are resorted-to.
(though, equally, it should be prepared to
write them off). 8.3 The current government has
nevertheless embraced and developed the
7.22 While some sufferers will disengage theme through the introduction by the
entirely, others may obstruct the process Anti-social Behaviour, Crime and Policing
and, often involving some confrontation, it Act 2014 of more environmentally- than
is not without its ‘hassle’ factor as well. person-oriented criteria for new
For all these reasons, these formal ‘Community Protection Notices’, which
enforcement tools are probably best seen may encourage application of the ASB
as palliatives, useful for resolving a crisis label to hoarders (particularly where the
and perhaps essential for protecting the subjects are young) but at the risk of the
interests of close neighbours but same, generally inappropriate
nonetheless blunt weapons to be used consequences.
sparingly and only when necessary. If
longer-term solutions are to be found at
all, they will probably be in a multi-agency 9 Local authorities as landlords
approach in which EHOs actually play only
a minimal, containment, role. 9.1 Though the powers described above
will in general still apply, local authorities
may also have a private interest, in
8 The ‘Respect Agenda’ addition to a public interest, in resolving
cases of problematic hoarding, that is
8.1 Notwithstanding, there has been a where the local authority is itself the
trend over a last few years towards landlord. Landlords generally reserve a
viewing loss of amenity as posing a more power to enforce ‘no-nuisance’ terms in
serious type of harm where it is associated tenancy agreements; private sector
with behaviours that are socially landlords are often reluctant to do so as
disapproved-of. The more public effects long as the rent is paid but many public
of hoarders can bring them and EHOs sector landlords – councils (including
within this paradigm. ALMOs) and registered social landlords

Hoarding and how to approach it 11


(RSLs) – have more sophisticated breached his neighbour’s right to respect
covenants covering anti-social behaviour in for private and family life and home laid
its various forms. Included will be the acts down by the 1950 European Convention
or behaviour of other members of the on Human Rights. At least, it now appears
tenant’s household, even those who may public landlords are expected to undertake
be beyond their control. an appropriate balancing exercise,
weighing the rights of neighbours against
9.2 Ultimately, their sanction is to seek those of the person responsible for the
possession of the dwelling and according nuisance. The local Ombudsman is also
to statistics collated by the Department of likely to expect no less.
Communities and Local Government, social
landlords took possession proceedings 9.4 Other potentially conflicting
leading to eviction in some 2,000 cases of considerations may nevertheless, apply: in
anti-social behavior during 2010-11. Under an English decision in 2003 (N Devon
the Housing Act 1988, the court may make Homes v Brazier (2003) EWHC 574), the
a possession order against a secure tenant High Court found that a RSL’s attempt to
in breach of a covenant or where he or seek possession against a nuisance tenant
she is responsible for a nuisance. To that whose behaviour arose from her mental
end, section 9A requires the court to take illness amounted to discrimination contrary
into account not only the past but the to the Disability Discrimination Act 1995.
continuing and future effects of the That Act held that it was unlawful to
nuisance on others. The provision of discriminate against a disabled occupier
social housing being a public function, by, inter alia, evicting him and that
providers' actions have always been discrimination occurred if, for a reason
challengeable on grounds of which relates to a person’s disability, he
reasonableness, but since the decision of was treated less favourably than others to
the Supreme Court in Hounslow LBC v whom that reason did not apply and that
Powell [2011] UKSC 8, the grant of a treatment could not be justified by, for
possession order will (at least if raised by example, a need to protect the health or
the tenant) now require in addition a safety of the occupier or some other
wider review by the Court of its person. That decision suggested that
proportionality. That will be so even eviction was no longer an option where
where apparently mandatory, nevertheless only amenity was damaged.
such a defence must be ‘seriously
arguable’ and reviews will be allowed only 9.5 Though that decision was overturned
in ‘highly exceptional circumstances’ - by another of the House of Lords (LB
Riverside Group v Thomas [2012] EWHC Lewisham v Malcolm (2008) UKHL 43) in
169 (QB). June 2008, the effect of that seemingly
limiting the reach of the 1995 Act to direct
9.3 Taking into consideration the discrimination, the 1995 Act has since
consequences of continuing the tenancy been repealed by the Equality Act 2010,
as well as ending it, this approach s.15(1)(a) of which now provides that a
encompasses the possibility that social person discriminates against a disabled
landlords may be under a duty to third person if he treats him unfavourably
parties to take appropriate measures because of something arising in
against a ‘nuisance tenant’ as an older consequence of his disability. Though that
decision from Northern Ireland illustrates. treatment may, nevertheless, be justified
In the case of Donnelly [2003] NICA 55, where it is a ‘proportionate means of
the Northern Ireland Court of Appeal held achieving a legitimate aim’, mirroring the
in 2003 that a refusal by the Housing overriding Human Rights obligation, if that
Executive to evict a tenant guilty of does not take things quite back to N
repeated and serious anti-social behaviour Devon Homes, most workers in the field

12 Hoarding and how to approach it


would welcome it. before, following an inspection, another
notice was served. As with the first, Mr B
did not respond and he was summonsed
A case study back to court where the case was
adjourned. It did, however, catch the
There is probably no such thing as a attention of the press and following the
typical case of hoarding, such are the publication of an article in a Sunday
number of possible variables, but if it is newspaper, a well-known drain-clearing
not a contradiction, the following case company offered to clear the rubbish.
from Northern Ireland, is probably not
untypical. In any event, it illustrates the Within weeks, nevertheless, a complaint
intractable nature of many of these cases was received from Mr B’s neighbour of
or, at least, how statutory approaches mice. Suspecting a connection with Mr B,
often fail to resolve them. EHOs sought entry to his house for the
first time but were refused. After
The saga began when the Environmental threatening to force entry, Mr B eventually
Health Department of a district council on let them in to discover an infestation,
the fringe of Belfast received a complaint encouraged by accumulations of rotting
of a foul smell coming from the rear of a food, piles of old clothing and other
privately-owned semi-detached house in objects. Another statutory notice resulted.
its area. On next day inspection, the
cause was found to be a quantity of Predictably by now, Mr B did not respond
rotting vegetables in bags and trays. In and a further court appearance followed
addition, the rear garden hid an when Mr B was given a conditional
accumulation of more inert objects discharge and ordered to pay £350 in
including several derelict cars and a costs. The council then enforced its notice
number of plastic containers, some of to clear the house, filling 11 skips at a cost
which apparently had been used to carry to Mr B of a further £3,775.
fish.
Subsequently, the problem recurred to the
Deciding that a statutory nuisance existed, extent that at a further court hearing four
the council, as it was obliged to, served an years later, the Magistrates declared that
abatement notice under the Public Health Mr B’s home was unfit for habitation and
(Ireland) Act 1878 on the occupier. The he was ordered no longer to live there.
law being slightly different in N Ireland to Though offered emergency
England and Wales, when the notice was accommodation by the NI Housing
not complied with it had no choice but to Executive, the council believes Mr B never
apply for a summons to enforce it and took that up and does not know where he
seven months after the council’s first lives now. Under continuing pressure
inspection, the Magistrates made a from neighbours, at the last contact the
nuisance order requiring the occupier, Mr council was preparing to clear the house
B, to remove the accumulation within 10 and garden once again and to place a
days. When he failed to do that, he was charge against the title for their expenses.
again reported for summons and, five
months later, a fine was imposed. Mr B Despite the involvement of seven EHOs,
then made some attempt to tidy up. social services, the probation service, 19
court appearances and some £14,000 of
Two-and-a-half years later, the council work, this problem recurred over a nine
received a further similar complaint. As year period without satisfactory resolution.

Hoarding and how to approach it 13


10 Survey treatment, assistance or supervision
however, predominantly from community
10.1 To get a better idea of the number social or health services.
and variety of hoarding cases coming to
their attention, the CIEH undertook a The nature of their problems
postal survey of every local authority
environmental health department in 10.4 Turning to the nature of the
England, Wales and N Ireland. The hoarding, many seemed to collect a wide
questionnaire asked a total of 34 questions variety of materials which were
aimed at characterising the subjects, the nevertheless distinct; where more than
nature of the hoarding problems, the three kinds were described, we classified
responses of the authorities and others them as collecting ‘anything and
and the effectiveness of those. Seventy- everything’ and 50% of subjects fell into
seven (of 402) representing all kinds of this group. The others, though, were
districts responded before the deadline, more discerning; most frequently collected
reporting a total of 209 cases (mode=4) in was ordinary household refuse, much of it
hand at some time during the specified food-related (11% of cases), supported by
timeframe of the preceding calendar year. the finding that in 72% of cases, the items
collected originated from normal
The subjects household activity rather than being
brought in from outside. Whether these
10.2 Male and female subjects were subjects might be regarded as
represented almost equally with a slight ‘reluctant/negligent discarders’ rather than
majority estimated to be over 60 years of ‘active’ (or even true) hoarders and benefit
age. A mere 8% were judged to be below from a different approach might be a topic
40 though hoarding does, of course, occur for future enquiry.
in younger people but may be masked or
differently labelled. Ten percent lived with 10.5 This general rubbish was followed in
dependants other than a partner but third place by newspapers and magazines
overwhelmingly, the subjects lived alone, which, though they predominated in only
some 60% in their own homes (slightly 8% of cases, were listed in 27% in total.
less than the 69% in the population as a Clothing similarly predominated in only 4%
whole) and 28% in homes owned by social of cases yet contributed to 14%.
landlords (slightly more than the 21% in Excessive numbers of animals, in one case
the population as a whole). Only 18 cases 70 cats in a two-bedroom house, likewise
lived in the private rented sector. Probably were the main problem in 4% of cases but
partly reflecting their age structure, 86% featured in 10% where they were
were not working. accompanied by inanimate collections.

10.3 Asked whether the subjects suffered 10.6 Among the more curious cases were
from any condition which might have several of mail-order goods, bought but
contributed to their hoarding behaviour, never even unwrapped, another of toys
respondents highlighted 27% with clear bought for grandchildren but never sent,
problems of substance abuse and physical one of buckets of human faeces and
illnesses, mainly age-related and affecting another of bottles, cartons and old beer
mobility, in 16% of cases. Asked about cans filled with urine. But for the food
knowledge of any events which seemed to containers, food debris and papers, the
have triggered the hoarding behaviour, owner of over 200 antique clocks and
respondents cited some sort of family spare parts might have been looked on
separation in 21% of cases, the majority very differently.
bereavements. Only 37% overall, 77
cases, were known to be receiving any 10.7 While undifferentiated materials

14 Hoarding and how to approach it


were the most common collection by both service in-put in 65% of cases. Landlord
sexes, there did appear to be some involvement was particularly high at 71%
of cases renting their homes, reflecting no
differences in the patterns of collection in doubt the preponderence of social
male and female subjects, mechanical and landlords. Family or friends of the subject
electrical goods appearing in 9% of male were involved in almost one case in five
cases but in only 2% of female cases while (though we do not know how many
animals and clothes were, at c.6% each, subjects had surviving family or friends)
more common among females subjects and the Police in 11%. In 10% of cases,
(c.3% and 2% respectively among males). however, nobody other than the
Whether particular attractions are related Environmental Health Officer was involved.
to former employment might be another
subject for future work. 10.11 Perhaps because of their statutory
duties or, because when they did get
10.8 Perhaps reflecting differences in the involved there was acknowledged to be a
materials collected, male subjects were wider public interest, strikingly, in two-
more likely to let their collections spill thirds of all cases it was the EHO who took
outside the dwelling. Thirty-three percent the leading role. One corollary was that
of cases involved external accumulations, some sort of formal enforcement action
though only 5% were exclusively of this was taken by them in 56% of all cases.
form. Arguably, these latter case would There was little overlap in the use of
not fit the clinical definition of hoarding. formal powers and the most commonly
used was that under the 1936 Act to
The effects require the cleansing of filthy or verminous
premises which was applied in 27% of
10.9 While in 67% of all cases, the cases. In 15% of cases, a statutory
accumulations were confined to the nuisance was deemed to exist and an
dwelling, 55% of all cases were abatement notice was served. Action to
nevertheless judged to affect persons remove rats or mice was taken in a further
outside the subjects’ homes. It is this in 11% of cases, actually surprisingly few in
particular which is likely to bring cases to the light of the number of infestations
the attention of local authorities. Eighty- found.
six percent were judged significantly to
affect the habitability of the home, 70% 10.12 Not all of the cases were concluded
were judged to present a significant fire within the year but among those which
hazard and 59% presented some other were, few seemed to have brought a
serious risk of personal harm. Sixty-five positive response from the subjects and in
percent contributed to infestations, 23% of all cases, works were required by
typically of rodents but of insects too, in or the councils to enforce their notices.
around the dwelling. Typically, these included rubbish removal,
in one case over four tons of it, and pest
The response treatments though these services were
provided informally, and presumably free,
10.10 Not surprisingly, social services in 12%. Prosecutions were brought in
were involved in almost half of all cases. only two cases.
A handful of cases were noted,
nevertheless, in which social services had 10.13 Complementing these steps, some
apparently declined to become involved form of social support was also offered in
though the reasons were not known. 20% of cases and rehousing, including
Community health services – GPs in into residential care, in another 12%.
particular – were involved in just under Possession proceedings were commenced
one-third but there was no known health in nine cases. Animals were removed in

Hoarding and how to approach it 15


nine cases. Further informal assistance as many mentioning informal steps and
came from friends and family in 21% of 10% formal steps by other agencies. Most
cases and from various voluntary and believe, then, that enforcement has some
animal welfare bodies (especially the role in most cases though that is not an
RSPCA) in another 11%. Several on-going one and it rarely provides the
responses noted the continuing nature of whole answer. Overall, however, what
this kind of help. seems most important is the co-operation
of the subject, 37% of respondents citing
The outcome a lack of acceptance as the greatest
obstacle to resolution, followed by 20%
10.14 Underlining the subjects’ resistance who listed poor inter-agency
to intervention, responding councils communication and co-ordination.
reported having to take formal steps,
including obtaining warrants, to gain entry 10.18 If that suggests that ‘where there is
in 13 cases. That done, however, most a will there is a way’, answers to the final
subjects became compliant, only 28% question, unfortunately, gave little cause
remaining resistant. Though many cases for long-term optimism; 44% of the
remained on-going, overall, through a subjects reported had come to the
combination of means, the problem was attention of the EHOs in similar
claimed to have been resolved in 52% of circumstances before and in 60% of cases,
cases handled during the year. In 9%, they expected to be called in again,
however, it had recurred already. suggesting, if their prediction turned out
to be correct, a substantial likelihood of at
10.15 Perhaps not surprisingly, those least short-term recurrence.
short-term interventions judged most
effective were the statutory ones – the Discussion
statutory notices, often followed by works
in default, providing some degree of ‘clean 10.19 Overall, the results of our survey
start’. Among the formal actions of supported the established literature. The
agencies other than Environmental Health numbers reported by a small sample of
Departments, those judged most effective local authorities in just one year tend to
were rehousing and the removal of support the proposition that hoarding
animals – again of a ‘clean start’ nature – behaviour is not at all uncommon and
though these and in particular formal though the cases reported will necessarily
interventions by both mental health and reflect the most problematic, they
social services were ranked very lowly. nevertheless show considerable diversity.
No two cases are quite the same. Though
10.16 The EHOs’ assessments of longer- the survey sought some information on
term interventions produced a markedly co-morbidity, that was for several reasons
different picture, however; while 7% limited but there were suggestions both
thought, pessimistically, there was no that many cases are associated with self-
long-term solution to their cases, 42% neglect in the elderly – Diogenes
thought it lay with mental health and syndrome – and, not least in the multiple
social services while only 9% thought they collectors, with obsessive-compulsive
still held the only key. Twelve percent traits. Separating the two requires more
emphasised the role of informal support than a simple age-correlation, however,
and only 8% thought a combination of in- and was beyond the present analysis.
puts would be most effective. Similarly beyond this inquiry was
attributing the other cases to any cause
10.17 Asked which interventions they though the idea that hoarding tendencies
thought were least effective long-term, might be encouraged by particular
only 9% cited their own powers with twice stressors, especially bereavement, is

16 Hoarding and how to approach it


supported, perhaps with implications for supportively (and successfully) with
its avoidance. someone who hoards.

10.20 Nearly half of all the cases reported  Handling a problem of hoarding
were recurrent yet in only 77 cases were requires a careful assessment of each
other agencies – social services or health case for both practical and legal
services – currently involved. It is not, reasons. Though some cases may be
however, clear whether the earlier distressing, and even shocking, for
occurrence had come to their notice or those dealing with them it is
whether their assistance had since ceased important to remain objective.
or been rejected though there is evidence  Gather as much information as
in a substantial proportion of cases of possible from families, neighbours,
resistance to help. friends et al, that there is time for,
bearing in mind any risks to the
10.21 If outside intervention in hoarding subject and others, any special needs
cases is not easy, there can nevertheless and that there may be a duty to take
be compelling reasons for it (which may (some) action. Confidentiality
override ethical worries) and there is good (including data protection) is an issue
evidence that EHOs’ use of their statutory but should not be a barrier.
powers can provide temporary relief, if  If possible, enlist family and friends
perhaps at the cost of some distress to the not just for information but as a way
subject. Equally, the survey provides to offer support and give advice
evidence that that relief may be short- through a less threatening
lived and that longer-term, less formal intermediary. In some case studies, a
approaches by social and mental health family member or friend has been
services are likely to show better success able to persuade the subject to accept
rates. These nonetheless are more help where no one else has been
dependent on the co-operation of the successful. Be aware too of relevant
subject and the permanent resolution of voluntary organisations, self-help and
hoarding problems may remain elusive in support groups in the area which
a significant minority of cases. might offer assistance.
 It is extremely important not to make
any assumptions or judgements about
11 Guidelines for working with the causes of the hoarding or the
people with hoarding problems motivation of the person concerned.
Unless a full psychiatric assessment
11.1 As the preceding review and the has taken place it is not possible to
results of the survey illustrate, people who deduce that a hoarder is mentally ill
exhibit problematic hoarding have complex and such assumptions are likely to be
problems and needs. The hoarding irrelevant to the use of environmental
problem itself is notoriously difficult to health powers anyway. Keeping an
treat, assuming the person is even willing open mind and a non-judgemental
to accept help but the fact that many attitude is more likely to foster a good
sufferers steadfastly refuse that makes the relationship with the sufferer and
management of these situations allow some dialogue, which may be
particularly difficult. There will be times enough in itself to prompt some
nevertheless when statutory services, improvement, if only temporarily.
including EHOs, are required to investigate  Subjects are likely to consider that
and intervene, in which case there are their hoarding is not problematic or
some general points to bear in mind when irrational at all, so it is usually
attempting to relate to and work counter-productive to argue the case

Hoarding and how to approach it 17


with them on the basis of what is duty, it is seldom too late for
normal, rational or acceptable negotiated solutions.
 If the subject does indicate that they
nevertheless a subject may sometimes are distressed by their problem and
be led to understand the detrimental wants help, they should be reassured
effect of their hoarding on others. If that the problem is common (that is,
statutory action is necessary, a clear ‘normalise’ the problem) and that help
explanation of the basis and is available. Be prepared: before the
consequences of that should always next case arises, contact should be
be offered. made with the local NHS and Older
 Conversely, a subject’s denial may in Adults Services so that there is some
fact be masking a high level of agreement (and, ideally, a formal
distress, anxiety or depression and if protocol identifying people, funding
this is acknowledged, they may feel streams etc) about how these services
supported and understood. This will (which in some areas are integrated)
only become evident, however, will respond to EHOs’ concerns or
through getting to know them over requests for information and help, eg
time. with a case conference.
 Subjects may know at one level that  In situations in which it is appropriate
they have a problem but feel so to involve mental health services, that
ashamed or guilty that they cannot should be done without delay. If it is
accept help. The approach and use of suspected that the hoarder has a
language is particularly important mental health problem which puts
here. Avoid using terms like ‘squalor’, them or others at serious risk of harm,
‘self-neglect’, ‘dirty’ or medico-legal a request can be made for a Mental
terms which may exacerbate feelings Health Act assessment by an
of shame even though these are used Approved Mental Health Professional
in the literature. Try to use neutral and a Consultant Psychiatrist. Again,
descriptions of the problem that all be familiar with emergency numbers
can agree on, even if they are not and who to contact in this situation.
exact or commonly used terms.  If other people are affected by the
Above all, avoid referring to the hoarding there may be additional
subject’s possessions as ‘rubbish’; responsibilities to inform other
most hoarders’ possessions have agencies concerned for their safety
powerful sentimental value and and welfare. If, for example, children
personal meaning to them and their reside in a house severely affected by
behaviour is involuntary. hoarding the local children's services
 Be clear about the goal and that it is must be consulted for advice. Other
justified both at law and ethically; adults can also be affected by
adopt a ‘solution-focused’ approach so hoarding; though the term may be
that, rather than referring to the strictly incorrect (implying satisfaction
problem in every interaction, talk gained by the ‘abuser’), Diogenes
about finding a shared solution that syndrome ‘by proxy’ has been
will meet the subject’s needs as well reported when one person’s hoarding
as the needs of the statutory services. has led to the neglect of another
For example, their perceived need elderly person sharing the house.
might be to be left alone and This is an example of (unintentional)
interventions might be framed as a elder abuse which requires statutory
positive way to get other services to intervention.
back off and leave them in peace but  Less well understood than other forms
only promise what it is certain can be of the phenomenon, people who
delivered. Even faced with a statutory ‘hoard’ animals as part of their

18 Hoarding and how to approach it


problem tend to place great value on Drummond L.M., Turner J. & Reid S. (1997).
their pets and may consider them as Diogenes’ syndrome – a load of old rubbish?
extensions of themselves. They may Irish Journal of Psychiatric Medicine, 14, 99-
have difficulty conceding that the 103.
animals are suffering because of their Frost R.O. & Gross R.C. (1993). The hoarding
own distorted beliefs and may well be of possessions. Behaviour Research & Therapy,
suffering a serious mental health 31, 367-381.
problem. Great sensitivity is needed Frost R.O. & Hartl T.L. (1996). A cognitive-
in approaching this situation but in the behavioural model of compulsive hoarding.
light of probable offences under the Behaviour Research & Therapy, 34, 341-350.
Animal Welfare Act 2006, this will Frost R.O. & Steketee G. (1999). Issues in the
require prompt additional statutory treatment of compulsive hoarding. Cognitive
involvement from animal services. and Behavioral Practice, 6, 397-407.
 The problem is very unlikely to go
Grignon S., Bassiri D., Bartoli J.L. & Calvet P.
away completely even if the subject
(1999). Association of Diogenes syndrome with
has accepted some help. If services a compulsive disorder. Canadian Journal of
are withdrawn after a time, for Psychiatry, 44, 91-92.
example after the person has been re-
housed or the dwelling cleaned, the Grisham J.R., Frost R.O., Steketee G., Kim H.J.
& Hood S. (2006). Age of onset of compulsive
hoarding is more likely than not to
hoarding. J Anxiety Disord, 20:5, 675-686.
recur. Continuity of support can be
important and it needs to be offered Jackson G.A., (1997). Diogenes syndrome –
long-term to reduce the need for how should we manage it? Journal of Mental
statutory input again at a later date. Health, 6, 113-116.
Kyrios M., Steketee G., Frost R.O. & Oh S.
(2002). Cognitions in compulsive hoarding. In
Acknowledgements R.O. Frost & G. Steketee (Eds.) Cognitive
approaches to obsessions and compulsions –
The authors would like to thank Heather Moore theory, assessment and treatment (pp. 270-
for supplying the case study, Kim Willis for the 289). Amsterdam, Netherlands:
management and analysis of the survey Pergamon/Elsevier Science Ltd.
together with the 77 local authorities which
Lauder W. (1999). The medical model and
shared their experiences with us through that,
other constructions of self-neglect. Int’l Journal
the participants in two consultation workshops
and John Pointing, Barrister, for legal advice.
of Nursing Practice, 5, 58-63.
Law Commission (2010) Adult Social Care, a
consultation paper, Consultation paper no 192.
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First published Oct 2008


rev 1 May 2011
rev 2 Sept 2012
rev 3 June 2015

20 Hoarding and how to approach it

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