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Physician Recommendations and Patient Autonomy Finding A Balance Between Physician Power and Patient Choice
Physician Recommendations and Patient Autonomy Finding A Balance Between Physician Power and Patient Choice
Physician Recommendations and Patient Autonomy Finding A Balance Between Physician Power and Patient Choice
Medical care in the United States has rapidly moved away mends that the patient try aggressive therapy. When
from a paternalistic approach to patients and toward an the patient continues to request a palliative ap-
emphasis on patient autonomy. At one extreme end of this
proach. Dr. Charlie struggles openly with the pa-
spectrum is the "independent choice" model of decision
making, in which physicians objectively present patients
tient about her concem that he is making this transi-
with options and odds but withhold their own experience tion prematurely. Through conversation. Dr. Charlie
and recommendations to avoid overly influencing pa- learns the rationale behind the patient's decision
tients. This model confuses the concepts of independence and assures herself that the patient is well informed.
and autonomy and assumes that the physician's exercise of She then initiates a palliative care plan.
power and influence inevitably diminishes the patient's Data from SUPPORT (Study to Understand
ability to choose freely. It sacrifices competence for con- Prognoses and Preferences for Outcomes and Risks
trol, and it discourages active persuasion when differences of Treatment [1]) suggest that the dominant mode
of opinion exist between physician and patient. This paper of decision making in acute care hospitals may still
proposes an "enhanced autonomy" model, which encour-
ages patients and physicians to actively exchange ideas,
be the paternalism evidenced by Dr. Able. However,
explicitly negotiate differences, and share power and in- recognition of the value of patient autonomy has
fluence to serve the patient's best interests. Recommenda- gained strength in the United States, and a new
tions are offered that promote an intense collaboration generation of physicians has been trained in a "pa-
between patient and physician so that patients can auton- tient-centered" approach (2). Some "patient-cen-
omously make choices that are informed by both the tered" physicians have gone beyond encouraging pa-
medical facts and the physician's experience. tients to participate in medical decisions, forcing
them to make decisions almost independently. Dr.
Ann Intern Med. i9%;125:7()3-76'y. Baker allowed the patient in the above scenario to
take full control of a critical decision, but he avoid-
From University of Rochester School of Medicine and Dentistry
and Gencsec Hospital, Rochester, New York; and Michigan ed the intense interaction that would have resulted
State University, East Lansing, Michigan. For current author if he had shared his own reservations. He tried to
addresses, see end of text. respect his patient's autonomy, but he did so at the
cost of withholding his recommendations. On the
P atients faced with serious medical decisions are
subject to being over- or under-influenced by
physicians. Imagine a patient who is admitted to an
other hand. Dr. Charlie allowed her patient to have
a central role in the final decision but only after
fully exploring the implications of that decision and
intensive care unit with a chronic, progressive illness sharing her belief that palliative eare was not the
and has a small but real chance of leaving the hos- patient's best choice. Such intense interactions be-
pital alive if he submits to invasive treatment. The tween patient and physician may allow patients to
patient feels that he has suffered enough, and he re- exercise autonomy more powerfully by making
quests supportive care only. By the luck of the draw, choices that fully integrate the physician's experi-
he has been assigned one of three hypothetical phy- ence with their own.
sicians. Dr. Able minimizes the patient's request for
supportive care, heavily emphasizes the patient's
small chance of recovery and her own strong belief
that the patient should not "give up," and convinces The Shift from Paternalism to Autonomy
the patient to continue receiving aggressive therapy.
Dr. Baker makes sure that the patient understands Twenty-five years ago, most major medical deci-
his options and the statistics associated with them sions were left exclusively in the hands of physi-^
and then accedes to the patient's request for sup- cians. They were usually made with benefieent in-
portive care without sharing his own opinion, which tent but without open discussion, much less the full
is that the patient is making a serious mistake. Dr. participation of the patient (3-6). This paternalistic
Charlie enters into an extended dialogue with the approach had some benefits. Physicians struggled to
patient, explores various alternatives, and reeom- make the best possible decisions on behalf of pa-
tients, and they spared patients and their families
© 1996 American College of Physicians 763
Table. Characteristics of Two Medical Decision Making Models
Knowledge afid expertise are shared between paiienls and physicians Patient's expenence and values dominate
Pdlieiii rjnd physician collabora(e Paiient has independence and control
Relalionship-( entered Palient-centered
Physinan serves as active guide Physician r,erves as passive intormei
Additive expertise (winAvm) Zero-suiTi interriction (wir!/lose)
Competence-ba5ed Control-based
Dialogue-based
Physician is personally invested in outcome Physician is deiached operative
Patient and physician have joint responsibility for patient outcome Physician abdicates responsibility to patient
from agonizing about interventions that had little thcii' power appropriately when they withhold their
chance of working. Practitioners also liad much guidance. This failure reflects a misunderstanding
more control over the way that medical technology, about the moral requirements of respecting patient
with its increasing potential to help as well as to autonomy. We ct)mpare an 'independent choice"'
harm, was used. Tn retrospect, physicians now see model of medical decision making with an ''enhanced
obvious problems with excessive paternalism: Tt can autonomy" approach (Table) and suggest ways to
be ditficuJt to determine what a patient's best inter- achieve a more effective, respectful balance between
ests are (7); inappropriate biases caused by sex, race, physician recommendations and patient choice.
and socioeconomic status can affect decision making
(8, 9); and patients can be deprived of the oppor-
tunity to make decisions that reflect the reality of Independent Choice
their conditions. However, some of the truly benef-
icent potential of medicai paternalism has been lost. According to the independent choice model, the
Tn the United States in the late 2Uth century, the physician's primary role in medical decision making
pendulum has swung away from paternalism and to- is to inform patients ahout their options and the
ward patient autonomy (TO, 11). Too often, "autono- odds of success. Patients should be free to make
mous" patients and families are asked to make cri- choices unencumbered by the contaminating influ-
tical medical decisions on the hasis of neutrally ence of the physician's experience or other social
presented statistics, as free as possible from the con- forces (19). The independent choice model i.s liter-
taminating influences of physicians. The causes of ally "patient-centered" and requires that physicians
this trend are multifactorial. The consumer move- withhold Iheir recommendations because they might
ment has taught patients to he more assertive, to bias the patient (21). The physician should objec-
question physicians' recommendations, and lo de- tively answer qtiestions but should avoid influencing
mand interventions that might otherwise be with- the patient to take one path or another, even if the
held (12, 13). Many physicians feel that giving pa- physician has strong opinions or if the patient asks
tients the full range of choices and withholding their for advice. After the patient makes the decision, the
own recommendations are safeguards against law- physician's duty is to implement the medical aspects
suits (14, 15). The probabilistic nature of medical of that decision. As evidence of the force and per-
decision making in real life is in unnerving contrast vasiveness of the independent choice model, de-
to the grand successes and simplistic solutions sug- bates rage about whether patients have Ihe right to
gested in the mass media (16, 17). The information choose futile treatment (22, 23) and contintie it
explosion within the field of medicine has left phy- indefinitely (24).
sicians and their patients uncertain about whethei"
the limitations they encounter arc inherent in med- A generation of physicians has now hecn trained
icine or arc a reflection of deficits in the physician's under the independent choice model, and this has
expertise (18, 19). Furthermore, when a bad out- created new problems as serious as those posed by
come results from a good clinical decision, the cha- medical paternalism. 1'he physician as a person,
grin that a physician feels is more emotionally pain- with values and experience, has become an imped-
ful—and the risk for heing sued is higher—if that iment to rather than a resource for decision making.
decision was recommended to the patient (16, 20). More objective treatment algorithms could better he
Many physicians have come to believe that the saf- presented by using interactive computer systems.
est course Is to withhold their recommendations and Physicians may gradually regress from refusing U)
give patients the "choice" of any treatment they express their recommendations to not valuing them
might "want." or lo not even formulating them. Too often, the
intense exchanges on medical rounds about what
We intend to show that physicians fail to use should be done have been replaced by a hiand
quested treatments that have been established to be 7, Schneiderman LJ, Kaplan RM, Pearlman RA, Teetzel H. Do prsystmans'
own prijforL'iK.cs for lifo-susidiiung Ireaimcni iridurnic [hi"! iiercciiliuns of
either futile or harmful (46). Furthermore, mental pdtients' prefcrcntL'S? i Cliri Etfiics 1993:'i 2S-33
8s Burstin H. Lipsitz SR, Brennan TA. ^cjciciecononiir vav-t-, and ri<,k fof
competence must be assured before patients can be SLtbslanddrrI ineciicai care JAMA 1992,263 ;.383-7
allowed to make decisions that appear to be against 9. Blendon RJ, Aiken LH, Freeman HE. Corey CR. Acceii TO rriedicas cote ror
black and while Americans A rnatie; of loniinuinii LO'icern J.AM.A 1989.
their own best interests (for example, a suicidal 7X-A 278-81
patient who wants to be discharged probably should 10. Lazare A, Eisenthal S, Wasserman L. Ihe (.liston pr approach lo iiatieni-
hooo AHending Ui patient requests in a wdll-^n di e Aich Ger' ^ychiatr\'
not be). These limitations can make the process of 1975,32 553 3 '
shared decision making more complex; however, 11. Quill TE. Paririer.sliips -v. patiens caie. a '.oniraclU l approach
Med 19S3,98 22S-3':|
A!"in In'tern
they do nut detract from the physician's primary 12. Barsky AJ. Worried Sick Our IroublecJ Q'.K-A 'O' Wellne'^s. Boston. Liffle,
Brown, 1938
duty, whieh is to support and enhance patients' abil- 13. niich L Medi(.<il Nenifib Nr.'w York B>irndni Book', 197G
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iharincj ol unujrtdii^v Inlonnfd tonsrnt and llip lh "ain'ijt:c alliancf N Frujl
By taking the risk of informing patients about J Med 1984J11 49-51
iheir own feelings, values, and recommendations, 15. Green JA. Mi!uusiting malpradice llsk^ tiy role clr ifKation Itie ujntiisiini
itdiisinoii Iruni tO'i 'M conlract Ann Iniefo Med 1933,109-234-4l
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physician is as much guide and fellow traveler as Intern Med 1985,145 1257-9
21. Brody H. Auionomv rpvi<;iTed progress in medica' o t h i i i . discussion
technician and medical expert. The spirited ex- J R S0i_ Ms'd 1985,78 380-7
ehange that eharaeterizes joint cteeision making by 22. Schneiderman LJ, Jecker NS. Jonsen AR. Medic
L'lhical implication',. Ann Intern Med 1990,112 949
iutility its meanmq inxl
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1997,376 1560-4
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