AADP Paper Crane Spring 2011

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Spring 2011

On Friday,
Februray 25,
2011, AADP hosted
the 4th Annual Laugh
for Lives (L4L)
Comedy Show at the
Palace of Fine Arts in San Francisco, CA. AADP was pleased to
Your commitment to being a present a new headliner, Steve Byrne, who was recently
potential marrow donor is featured in his own Comedy Central special. Rounding out the
important. evening were comedians Paul “PK” Kim, Joey Guila, and Kabir
Let us know if you have any “Kabeezy” Singh, who doubled as host. Attendees also had
questions or concerns. the opportunity to hear donor Cao
Pham’s story. Cao (pictured right)
registered at UC Davis in the spring of
2009 and went on to become a PBSC
donor that winter. He encouraged
audience members to register during
Are you interested in intermission and to spread AADP’s
volunteering at drives Kabeezy, Cao Pham, & Steve Bryne
or in our office? Visit message.
www.aadp.org or AADP thanks all major LFL sponsors: Audi, Kantors,
email: info@aadp.org
and Pucci Foods and thank the many co-sponsors for making
the evening possible (see, pg 7 for list of co-sponsors). Shout
outs to our community sponsors including, AsianWeek, the CW,
Visionshock, SFSI, Eventbee, KGO-TV, Kollaboration SF Bay Area,
Way Ying Social Club, Charleen Jue, Kim Mayor, Lim and Yabu,
Let us know what you and Cure Sonia. Additional thanks to student groups for their
assistance with ticket sales. As always, AADP thanks its
think!
Do you have any comments,
volunteers for all
suggestions, or ideas? We’d of their assistance
love to hear from you. before, during, and
info@aadp.org after the event.
Don’t miss next
year’s 5th Annual
In this Issue:
Laugh for Lives,
Message from AADP ……………………………..2 Friday, March 2,
Community Outreach..………………………....3
What’s New with AADP……………………......2 2012 at the Palace
Event coverage…...……………………………....6 of Fine Arts.
Tribute……………….…………………………………..6 By Mellisa Kim
Patients and Patient Updates………………4,5

(Steve Bryne, Kabeezy, Paul “PK”


Kim, & Joey Guila)
Quarterly Report on AADP’s Fiscal Year

For the past 21 years, AADP has AADP recruited almost 10,000 minority donors in the
been committed to its mission first two quarters! (1st quarter- 4596 minority donors,
of helping to save lives of 2nd quarter- 5098 minority donors). We’d like to
patients with life-threatening send special thanks to our awesome volunteers,
blood diseases curable by
college student groups, long term supporters, and
marrow/stem cell transplants.
AADP continues to increase hard-working recruiters. On March 1st, our team
awareness in Northern received the “Fast Start Award” from NMDP at the national
California and Bay Area meeting in Minneapolis. We will continue to raise awareness
communities about the crucial and recruit donors in the communities. Thank you for your
need for more minorities on the
continuous support and we welcome any drive ideas.
national registry.

AADP's award by NMDP


AADP
2169 Harbor Bay Parkway
Alameda, CA 94502
Ruby Law,
www.aadp.org Recruitment Director
info@aadp.org
1.800.59.DONOR

Find us on:

My name is Jhonatan Paredes,


I am Peruvian, and yes that is how my
name is spelled. I am a recent Thank You
graduate of UC Davis, where I
majored in Psychology and Sociology. To all our sponsors who helped
I'm the new Hispanic/Latino Outreach make AADP events possible
Coordinator, taking over for the
extremely organized Mellissa Bixler.

My plan is to build upon Ms. Bixler's Hispanic/


Latino outreach, which is quite a feat in itself. I
hope to extend the name of AADP through this
demographic, and specially to get rid of the myths
surrounding the process of bone marrow
donation. Scion brings you VIP access to best events,
amazing photos, artist interviews, and tips
Feel free to email or call me if you have any ideas on northern California's hottest spots.
on how to meet this goal: paredes@aadp.org www.scionify.us

2 AADP Paper Crane| Be The One to Save a Life >> Spring 2011 www.aadp.org | 800-59-DONOR
Know(ledge) “donation”, Know(ledge) you can save a life.
James de Lara

In the Filipino community, we desperately need to increase awareness of the importance on


becoming a potential bone marrow/stem cell donor. Many Filipino Americans in the Bay Area still carry
misconceptions about becoming a potential bone marrow/stem cell donor. Common misconceptions are
that donating is a very painful procedure or that donating can weaken your immune system; both are
inaccurate. We are currently trying to dispel these misconceptions from the Filipino community by
actively engaging Filipino Americans of all ages and backgrounds to become a potential donor. AADP is
working with a number of Filipino patients who are currently looking for their life-saving transplant. It is
imperative that the Filipino community should register with the Be the Match Registry to give Filipino
patients that have been diagnosed with a life-threatening blood disease a chance at life! Want to help?
Have ideas? Contact James de Lara at James@aadp.org.

College and Campus drives… THANK YOU!


 UC Berkeley  Ohlone Community College, APASA
 Santa Clara State University  UC Merced
 UC Santa Cruz  Cal Northstate, College of Pharmacy
 UC Davis  St. Mary’s College
 San Francisco State University  Berkeley City College
 American Nursing College  San Jose State University
 CSU Sacramento  Stanford University
 CSU Chico  DeVry, Fremont
 Los Medanos College  Evergreen Valley College
 De Anza Community College  Saratoga High School
 Unitek, Fremont  Stratford
 USC, Sacramento extension  Duvenech School
 University of the Pacific, Stockton  International School of the Peninsula,
 University of San Francisco Cohn & Cowper campus
 City College of San Francisco  Pacific Ballet Academy
 SJSU, Sigma Chi  La Canada College, Redwood City

Why hello there, VOLUNTEERS!


AADP is grateful for all of our dedicated volunteers—at drives, events, and in the office.
More than 1250 hours combined have been accumulated by our volunteers for this fiscal
year.
We are always amazed at how hard-working these students are and
how much compassion and interest they show towards AADP. We
appreciate the references they give to their friends—the more the
merrier and the more AADP education and awareness we can
produce. Thank you for helping us get the job done!
Jennie Chen, Michelle Chan and
For more information about internships, volunteering, Amy Quan (left) and Kristine Chin
and becoming involved, visit www.aadp.org (above) are some of our frequent
office volunteers.

www.aadp.org | 800-59-DONOR spring2011 << Be The One to Save a Life | Paper Crane AADP 3
www.aadp.org

Bhakti Connor,
South Asian Korean
Tevita,
HLH X-linked Hyper
Chris Ishida IGM Samoan/Tonga
Japanese/Caucasian Aplastic Anemia
Severe Aplastic Anemia

Hannah,
Korean Teri, Sanjana,
Aplastic Anemia Chinese South Asian
AML Multiple Myeloma
Akshay,
South Asian
Leukemia, MDS type

Christian Todd Jamison,


Chinese Vietnamese Filipino
Aplastic Anemia Multiple Amy,
Aplastic Anemia Chinese
Myeloma
Fanconi Anemia

4 AADP Paper Crane| Be The One to Save a Life >> Spring 2011 www.aadp.org | 800-59-DONOR
TOGETHER, LET'S FIND A MATCH FOR NICO AND OTHERS LIKE HIM!
NICO, a 13-year-old boy living in California, has been fighting leukemia for over 5
years. To stay alive, he urgently needs a stem cell or bone marrow transplant from
a donor who is genetically compatible with him. (Nico's mother is Korean.)
Currently, there is no one on the donor registry who matches Nico.

Thousands of people with blood cancers such as leukemia and lymphoma are in
urgent need of a blood stem cell or marrow transplant in order to survive. Every
year, over 10,000 patients are desperately searching the registry for a match.

In honor of Nico, please consider registering to be a potential marrow or stem cell donor (either
online, right now, or at an upcoming donor drive -- visit AADP’s website). This precious gift could
possibly save Nico's life or that of another patient like him. Donors of Asian and mixed Asian-
Caucasian ethnicity are particularly needed, as someone from these ethnic populations would be
the best match for Nico!
By Debbie Nguyen

Patient Updates
Sonia, Jonathan, Thao-Quyan,
Sheri, Amanda, and Patrick are
in remission or recovering from
their recent transplant. Please
visit www.aadp.org for more
patient updates.

Why it is important to be a committed donor? Ways to stay committed:

Once you have registered to become a potential donor,  Be readily available: Update your
it is important for you to be stay in touch with AADP. Clear contact information; it is important
communication with us reinforces your commitment to our life- we can contact you when you turn
saving mission. By staying connected, you can easily update up as a match for a patient.
your personal information. In addition, you can receive news
 Ask questions: Clear up any
about AADP's upcoming volunteer opportunities, special
lingering questions you have
events, and registration drives.
about being a potential donor.
If a you become a potential match for a patient, it is
very important for us to get in touch with you! It would be
 Encourage others, be involved:
detrimental to our program if we could not contact potential
Let others know that you are
donors who has come up as a match. Patients are immediately
registered as a potential donor
informed when the transplant center locates a suitable match,
and why. Volunteer at AADP
although they are not given any personal information about
drives or attend our events.
the potential donor due to privacy laws. By being a committed
Follow us on our social media
donor, we can avoid providing false hope to patients by
networks.
successfully locating their life-saving match. Be a committed
donor and stay connected!
www. aadp.org | info@aadp.org

www.aadp.org | 800-59-DONOR Spring 2011<< Be The One to Save a Life | Paper Crane AADP 5
In September, AADP held its Fourth Annual Barry Foon Celebrity Golf Tournament at
Ruby Hill Golf Club in Livemore, CA. The day began with a putting contest, won by Ben
Stewart and Roger Fernando, and was followed by a ceremonial toast to signal the shotgun
start. Golfers encountered a variety of additional contests along the course, including a
chance to win a BMW with a hole-in-one at Hole 6. At Hole 13, golfers were greeted by
Kristi Yamaguchi. Team 47 (Fernando Azevado, Greg Ford, Mike Tan, and Alex Yu)
succeeded in beating the celebrity team. Jerry Klein won “Closet to the Pin” at Hole 17;
Sashi Iwashita had the “Longest Drive” at Hole #9; “Most Accurate Drive” went to Bob
Arnold at Hole 7.The afternoon’s tournament was followed by dinner and both silent and live auctions, emceed
by NBC Bay Area’s weekend anchor, Diane Dwyer.

AADP would like to thank Vida Blue, Jim Barr, Fred Breining, Darren Lewis, Bret Hedican, Kristi Yamaguchi, and
Diane Dwyer, for their participation. Further thanks to corporate sponsors NetApp, Toyota, Comcast, Copart,
Palmer Electric, Inc., Montgomery Lands, Inc., Pension Benefit Consultants, Café Sun, and Gene Wong. AADP
thanks the many donors who contributed to the silent and live auctions. Thanks also go to Lisa Foon, Burt
Foon, Chris Lam, Les Kyono, and Ruby Hill Golf Club. And special thanks to the many volunteers from NetApp,
whose assistance helped
to make the tournament
a success.

Be sure to join
AADP for its Fifth Annual
Barry Foon Celebrity Golf
Tournament, to be held on
Monday, September 19,
2011, at Ruby Hill Golf Club
in Livermore, CA.

By Mellisa Kim

Our high school volunteers from Evergreen Valley High School in


San Jose put on a great show on April 8, 2011. Winnie Nguyen worked
with LeeAnn Nerpio and Alan Nguyen to organize this event from the
ground up; she wanted to create a show that would appeal to her peers
and at the same time create a sense of awareness for marrow donation
in her multi-ethnic community. She came up with “SAVIOUR,” a
benefit concert filled with talented
Youtube performers including American Idol star Andrew Garcia,
dance group Pikmin, and singer Jenny Suk. Winnie and her team
worked to set this entire event up from beginning to end, and all of
the proceeds from ticket sales went to AADP. We raised over $1,000
with this event, and we want to thank Winnie, her friends, and the
community at Evergreen Valley High School for making it happen!

By Debbie Nguyen
Debbie with EVHS students Alan,
Winnie, and LeeAnn.

6 AADP Paper Crane| Be The One to Save a Life >> Spring 2011 www.aadp.org | 800-59-DONOR
On April 23, 2011, AADP attended the 4th Annual Miss Teen Asia
Sacramento pageant in honor of Katie Cramer, former Miss Teen Sacramento
Second Princess and AADP searching patient.

Born in China, Katie was adopted by an American family. She was diagnosed with
AML in 2006. Just a few days after Katie was crowned Second Princess last year,
she was informed by her physician that her leukemia had come back. Katie was
very strong and battled her leukemia to the very end. She passed away in
January 2011. In honor of Katie, her family and friends continue to encourage
people to register as potential marrow donors, and they work tirelessly to help
spread awareness of the importance of the registry in saving lives .

The Cramer family presented the first “Spirit of Katie Cramer” award to contestant, Miss Simone
Sarmiento, First Princess Miss Teen Asia Sacramento who best exemplified Katie's strong spirit and
scholastic achievement. According to Katie’s mom, Sherrie, “Simone possessed many of the same
attributes Katie showed us - especially during the last year of her life - those attributes being
courage and strength in the face of trials, hope for brighter days ahead, and a willingness to be a
positive role model for those who look to her for leadership.”

AADP will always remember Katie and patients who fought for their lives until the very end. They are
a constant reminder to AADP’s mission.
By Sandy Zhou

In Loving Memory

LFL 2011 Co-Sponsors:


All AADP event photos courtesy of:  San Francisco Asian  Café Sun
Peace Officers  Mission Bay Dental Care
Association  Karen Yee & JML
 Patrick & Darlet Lin Buiders
 Citizens For Better  Pension Benefit
Community Consultant
 Profood  Pandora Karaoke Bar
 Legends Bar  Imajean Events
 Vision Shock  California Mortgage
 OneTrueSoul Corporation
 East West Bank

www.aadp.org | 800-59-DONOR Spring 2011 << Be The One to Save a Life | Paper Crane AADP 7
Fund a Match
Updated by
Carol Gillespie, Executive Director

Outreach/Recruitment – Pay it Forward


AADP is faced with the challenge of finding and enrolling individuals into the Be the Match
Registry, who are committed to making a difference. It is our goal to give the chance to
register to everybody who is able and willing to do so – especially in the minority commu-
nity.
It is also our goal to eliminate any obstacles for these individuals to join. In past years, the cost to tissue type a donor has
prohibited and discouraged some from joining the registry.

It costs $100 in lab fees to enter one donor into the Be the Match Registry. This cost is now paid for by a combination of do-
nations from the community and a grant from the HRSA. However, these funds are not inexhaustible. We need more help
from the community and individuals like you to continue to make donor registration accessible to everyone. For the next Fis-
cal Year 2011, AADP needs to raise at least $62,500 to help fund the registration cost of donors wishing to join the registry.
Your donation can help us make sure that the cost to register as a donor is never an obstacle for anyone.

Education Materials & Retention Projects


AADP prints and publishes brochures, videos and flyers that help us demonstrate both the importance and the ease of par-
ticipation in the registry. Retention projects are ongoing throughout the year as a reminder that you are a registered potential
donor and as a way to keep donors committed should they be called upon as possible matches. ($1,840/year)

Web-Site Development
AADP refreshes, changes and updates our website to keep you interested, keep more people informed and to keep our ser-
vices easily accessible and efficient. ($2,800/2 years)

Processing and Maintenance Fees


We are currently under funded and turning away potentially life-saving umbilical cord blood donors. However, we still need to
cover the cost of already stored Cord Blood Units ($2,400/year)

Address Service Requested


Www.aadp.org
Alameda, California 94502
2169 Harbor Bay Parkway
AADP

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