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INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD

2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Transition Planning for Students With Intellectual Disability,


Autism, or Other Disabilities: Data from the National
Longitudinal Transition Study-2
Karrie A. Shogren and Anthony J. Plotner

Abstract
To compare the status of transition planning for students with intellectual disability, autism, or
other disabilities, we used data from the National Longitudinal Transition Study-2, a federally
funded, national study of the secondary and postschool experiences of students with disabilities.
Results show that although transition planning had been conducted for the majority of students, few
of them took a leadership role in their transition planning. Students with autism or intellectual
disability were significantly less likely than students with other disabilities to take a leadership role.
The majority of the active participants in transition planning were school-based personnel. We also
found limited participation from other agencies/support persons (e.g., vocational rehabilitation).
Students with autism or intellectual disability had more identified needs for support after school
than did students with other disabilities.

Key Words: autism and transition planning; intellectual disability and transition planning; National
Longitudinal Transition Study-2; transition planning

The transition to adulthood can be a challeng- Gillberg, & Gillberg, 2005; Luftig & Muthert,
ing period for all adolescents as they move from the 2005; National Organization on Disability, 2004).
education system to various postschool environ- The 2004 reauthorization of the Individuals
ments (e.g., college, employment, community). with Disabilities Education Act (IDEA) defines
Adolescents with disabilities face additional chal- transition services as a coordinated set of activities
lenges (Chambers, Rabren, & Dunn, 2009; Weh- for a child with a disability that is designed within a
meyer & Palmer, 2003), including the transition results-oriented process, focused on improving the
from an entitlement-driven system (i.e., special academic and functional achievement of the child
education) to multiple eligibility-driven systems to facilitate movement from school to postschool
(e.g., adult services, postsecondary education dis- activities. IDEA requires that transition planning
ability services, housing supports) (Hanley-Maxwell, commence by age 16 for students with disabilities
Whitney-Thomas, & Pogoloff, 1995). The supports (the 1997 amendments to IDEA required that
and services that youth experience for most of their transition planning commence by age 14) and that
education are no longer guaranteed and can be measurable postsecondary goals be developed and
complex to reestablish in the adult world (McDon- included in the Individualized Education Plan (IEP)
nell & Hardman, 2010; Wehman, 2006). Research- for transition-age students. Transition planning is
ers have suggested that adolescents with autism or not formally defined in IDEA. However, the law
intellectual disability or their families particularly emphasizes the importance of student and family
struggle with the transition to adulthood (Blacher, involvement in the process and taking into account
Kraemer, & Howell, 2010; Neece, Kraemer, & student’s preferences and interests in developing
Blacher, 2009). Students with intellectual disability postschool goals. Further, the law indicates that a
or autism lag behind their peers with other dis- diversity of activities can be involved in transition
abilities in achieving employment, independent planning and emphasizes the coordination of these
living, and community participation (Billstedt, activities in transition services.

16 Transition Planning
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Researchers have suggested that transition students with disabilities, to compare the charac-
planning can have a positive impact on postschool teristics of transition planning for students with
outcomes (Test et al., 2009) and that families who intellectual disability, autism, or other disabilities.
are actively involved in transition planning report
greater satisfaction with transition outcomes for Method
their children (Cooney, 2002; Neece et al., 2009).
Best practices in transition planning emphasize NLTS2
student and family involvement, the development The NLTS2 was funded by the U.S. Depart-
of an individualized transition plan focused on ment of Education to collect longitudinal data on
developing student skills linked with desired life the secondary and postsecondary experiences of a
outcomes, and coordination with adult service national sample of students representing each of the
agencies (Alwell & Cobb, 2006; Test, Aspel, & 12 federal disability classifications in IDEA (SRI
Everson, 2006). However, although mandated by International, 2000; Wagner, Kutash, Dunch-
IDEA, transition planning has often been described nowski, & Epstein, 2005). Data collection began
as inadequate for student with disabilities. Research- during the 2000–2001 school year and was
ers have suggested that many schools fail to meet collected in 2-year waves over a 10-year period.
minimum levels of compliance with the federal Data were collected from multiple respondents and
transition mandates, particularly in the areas of in multiple formats, including parent and student
service coordination and interagency collaboration, telephone interviews, direct assessments of stu-
student and family involvement, basing goals on dents, teacher and school surveys, and student
student’s preferences and interests, and linking transcript analysis (SRI International, 2000).
transition goals to academic experiences (Johnson, The NLTS2 sampling process was designed to
Stodden, Emanuel, Luecking, & Mack, 2002). allow the results to generalize to the full population of
Researchers have also suggested differences in the students receiving special education services in the
characteristics of transition planning based on United States. To achieve this, the developers used a
disability label (Katsiyannis, Zhang, Woodruff, & two-stage sampling process. In the first stage, districts
Dixon, 2005; Wagner & Davis, 2006), although no serving students ages 14–16 years who were in 7th
investigators have compared students with intellec- grade or above were randomly selected from all school
tual disability, autism, and other disabilities using districts in the nation. The sample of districts was
nationally representative data. stratified to represent different geographic regions,
Given the emphasis on transition planning in sizes, and socioeconomic statuses. In the second stage,
disability policy and research and the empirical link students were randomly selected from each of the
between effective transition planning and post- districts (Wave 1, n 5 11,270 students). Approxi-
school outcomes, including postschool education, mately 1,000 students from each IDEA disability
employment, and independent living (Test et al., category (i.e., autism, deafness–blindness, emotional
2009), it is critical to understand the characteristics disturbance, hearing impairment, intellectual disabil-
of transition planning (e.g., student involvement, ity, multiple disabilities, orthopedic impairment,
active participation in transition planning, charac- other health impairment, specific learning disability,
teristics and suitability of transition goals, postschool speech–language impairment, traumatic brain injury,
service needs and contacts) for students with visual impairment) were sampled to ensure adequate
disabilities, particularly for those with intellectual representation of each of the categories. Sample
disability or autism who struggle with achieving weights were then calculated that allowed the study
employment and community participation in adult- sample to be weighted to represent students nation-
hood (Billstedt et al., 2005; Wehmeyer & Palmer, wide who receive special education services. Weights
2003). Limited research has been conducted to were calculated for each data-collection instrument in
explicitly compare characteristics of transition each wave of the study and are available to researchers
planning for representative samples of students with accessing the complete NLTS2 dataset through the
intellectual disability, autism, and other disabilities. National Center for Education Statistics at the
Therefore, our purpose in this study was to use extant Institute of Education Sciences.
data from the National Longitudinal Transition For our purposes here, we used data from Wave
Study-2 (NLTS2), a federally funded, national study 1 of NLTS2, which provided an initial picture of the
of the secondary and postschool experiences of transition planning experiences of students aged 14

K. Shogren and A. Plotner 17


INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

(the age at which transition planning was required The following tables present the questions extract-
to commence under IDEA 1997) and older. We ed from the NLTS2 dataset. Because our primary
analyzed data on transition supports and services interest was in the experiences of students with
collected through the Parent Telephone Interview intellectual disability or autism, we also recoded the
and the School Program Survey (completed by the NLTS2 disability classification variable to create
teacher most knowledgeable about the student’s three groups: intellectual disability, autism, and
educational program). The interview, which lasted other disability (all other disability labels com-
approximately 60 minutes, was completed using bined). This allowed us to make comparisons among
Computer Assisted Telephone Interviewing (CATI) students with intellectual disability, autism, and
software, where skip logic was preprogrammed into other disabilities. Then, using the Complex Samples
the questions seen by the interviewer on the Module in SPSS 18.0, we calculated descriptive
computer screen (e.g., if a parent reported that he statistics (mean ratings or percentages of students)
or she was not present at the child’s last IEP meeting, for each of the three groups (i.e., intellectual
further questions dependent on being present at the disability, autism, other disabilities) on the relevant
meeting were skipped). The Parent Telephone transition services and supports questions. Complex
Interview included a section on family interaction/ sample procedures calculate estimated standard
involvement to assessed parents’ perceptions of errors for weighted data in a stratified sample such
student and family involvement in the IEP and the as the NLTS2. Through use of the sample weights
usefulness of planning for life after high school. The calculated for NLTS2 data, the reported percentag-
response rate for the interview for Wave 1 was 82%. es, means, and standard errors represent population
In terms of the number of respondents per disability estimates for students with intellectual disability,
category on the Parent Telephone Interview, for the autism, and other disabilities nationally. Next, for
first question relevant to transition planning, the raw categorical variables, we used the Crosstabs
sample size was as follows: intellectual disability, n 5 procedure; and for continuous variables, we used
730; autism, n 5 830; and other disabilities, n 5 the General Linear Model procedure within the
6,080. The sample size varied for different questions Complex Samples Module to compare the three
because of the CATI skip logic; however, there was a groups, using a significance level of p , .01
sufficient sample for all questions to enable us to because of the number of comparisons made.
perform the analyses described below. When significant omnibus differences were found,
The School Program Survey included questions we followed up with paired contrasts to identify
about all aspects of the student’s school program, the source of the omnibus differences.
including a section on the transition to adult life.
The survey was a paper and pencil questionnaire, Results
and the response rate for Wave 1 was 59%. In terms School Perspectives
of the number of respondents per disability category Transition planning, instruction, goals,
on the School Program Survey, for the first and progress. The average age when transition
question relevant to transition planning, the raw planning began was similar for all three groups
sample size was as follows: respondents with (14.4 years for students with autism or other
intellectual disability, n 5 420; autism, n 5 420; disabilities and 14.5 for students with intellectual
and other disabilities, n 5 3,150. The sample size disability). Table 1 provides information on the
varied for different questions; however, there was a status of transition planning and transition-focused
sufficient sample for all questions to allow us to instruction, the linkage between course of study
perform the analyses described below. (Further and transition goals, and the primary goal of
information can be obtained on the NLTS2 education programs for students with intellectual
website: http://www.nlts2.org/.) disability, autism, or other disabilities. Students
with intellectual disability were significantly more
Analyses likely than those with other disabilities to have
We extracted questions from the Parent received instruction specific to transition. Table 1
Telephone Interview and the School Program also provides data on the primary postschool goals
Survey relevant to transition services, and supports across disability groups, and there were significant
were extracted from the overall NLTS2 dataset. differences in goals across groups. (Note that in the

18 Transition Planning
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Table 1
Transition Planning, Instruction, and Progress by Group
Intellectual
disability Autism Other disability
NLTS2 question % SE % SE % SE
There has been planning for the transition to adult
life. 87.8 1.6 86.3 1.9 88.9 1.2
Instruction focused on transition planning has been
provided. 75.8 2.8* 70.6 2.6 62.8 2.0
Transition plan/IEP specifically states course of
study/classes needed to meet transition goals. 72.1 2.7 66.0 3.0 74.5 2.0
Following high school, the primary goal of the
student’s education program is
to prepare him or her to:
Attend college 2 or 4 year 9.8 1.6*{ 22.9 2.9* 52.4 2.2
Attend postsecondary vocational training 25.5 2.6* 18.5 2.9* 42.0 1.9
Get competitive employment 44.1 3.2*{ 22.4 2.8* 54.8 2.1
Get sheltered employment 19.9 2.1*{ 38.8 3.0* 2.4 0.4
Get supported employment 34.3 2.9* 38.7 3.3* 4.1 0.6
Live independently 51.4 3.3{ 27.9 3.2* 49.4 2.0
Maximize functional independence 48.3 2.9* 57.9 3.2* 15.6 1.5
Enhance social/interpersonal relationships and
satisfaction 45.6 2.7*{ 57.1 3.2* 22.0 1.6
Other 1.3 0.7 0.7 0.4 0.6 0.1
Note. NLTS2 5 National Longitudinal Transition Study-2; IEP 5 Individual Education Plan.
*Statistically significant difference from other disability group, p , .01.
{Statistically significant difference from autism group, p , .01.

survey, respondents were asked to check all of the autism tended to receive lower ratings of progress
primary goal areas that applied rather than rank- across domains than were students with other
ing goals by importance/emphasis.) Students with disabilities; statistically significant differences were
intellectual disability or autism were significantly found in the domains of graduation, independent
less likely to have primary goals related to living, social/interpersonal skills, and self-advocacy.
integrated postsecondary education or employment When asked to rate the suitability of the school
(i.e., college, vocational training, and competitive program for preparing students to achieve goals,
employment), but they were more likely to have teachers rated the suitability as fairly well to very
primary goals related to maximizing functional well for all students.
independence and social relationships. However, Participation in transition planning. In the
there were also differences between students with School Program Survey, teachers were asked to
autism or intellectual disability; for example, report on the student’s involvement in the
students with autism were significantly less likely transition planning process as well as other active
than students with intellectual disability to have participants in the transition planning process (see
goals related to competitive employment and living Table 3). Students with intellectual disability or
independently. autism had significantly higher levels of no or
Teachers were also asked to rate the progress limited participation compared with students with
students were making toward their transition goals other disabilities, and students with autism were the
(see Table 2). Those with intellectual disability or least likely to attend their meetings. Students with

K. Shogren and A. Plotner 19


INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Table 2
Progress and Suitability of Goals by Group
Intellectual disability Autism Other disability
NLTS2 question M SE M SE M SE
Amount of progress toward
transition goals related to:a
Graduation 2.72 .05* 2.76 .06* 3.07 .04
Vocational 2.78 .05 2.72 .05 2.88 .04
Postsecondary education 2.40 .07* 2.59 .08 2.80 .04
Independent living 2.76 .06* 2.60 .06* 3.13 .05
Behavior management 2.83 .07 2.86 .05 3.01 .04
Social/Interpersonal 2.85 .05* 2.82 .05* 3.07 .03
Self-advocacy 2.55 .06* 2.40 .07* 2.94 .04
Suitability of school program for
preparing student to achieve
transition goalsb 3.14 .05 3.26 .04 3.20 .03
Note. NLTS2 5 National Longitudinal Transition Study-2.
a
Rating scale 5 1 (no progress), 2 (a little progress), 3 (some progress), 4 (a lot of progress).
b
Rating scale 5 1 (not at all well-suited), 2 (somewhat well-suited), 3 (fairly well-suited), 4 (very well-suited).
*Statistically significant difference from other disability group, p , .01.
{Statistically significant difference from autism group, p , .01.

other disabilities were significantly more likely to likely to have an advocate present at their meeting
provide input or lead their transition planning than than were students with other disabilities. All
were students with autism or intellectual disability. students had very low percentages of active
Table 3 also provides information on active involvement by staff of the Social Security
participants in the transition planning process. Administration, potential employers, and represen-
Teachers were asked to indicate (yes/no) the degree tatives of postsecondary education.
to which various stakeholders were active partici- Postschool service needs and contact made.
pants, which was defined in the survey as being Table 4 identifies the key service or program needs
involved in discussions on choosing services and identified for students with intellectual disability,
goals. The special education teacher was the most autism, or other disabilities. Teachers were asked to
likely to be involved for all students, followed by indicate (yes/no) whether students had needs in
parents/guardians and the student. However, stu- each of the areas listed in Table 4. Vocational,
dents with autism were much less likely to be transportation, postsecondary education, and inde-
characterized as active participants than were pendent living supports were identified as needs
students with intellectual disability or other dis- for the largest numbers of students with intellec-
abilities. Students with intellectual disability or tual disability or autism. With the exception of
those with autism were less likely to have general postsecondary education supports, students with
education academic teachers as active participants autism or intellectual disability were significantly
than were students with other disabilities, and more likely to be identified as having needs in these
students with autism were significantly less likely to areas compared with students with other disabilities
have general education vocational teachers as (the reverse was true for postsecondary education).
active participants. Students with autism were Students with autism were also significantly
more likely to have related service personnel, and more likely to be identified as having speech
students with intellectual disability were more or communication, mental health, behavioral
likely to have active participants from vocational intervention, occupational therapy, and mobility
rehabilitation. Students with autism were more training needs than were students with other

20 Transition Planning
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Table 3
Participants in Transition Planning by Group
Intellectual
disability Autism Other disability
NLTS2 question % SE % SE % SE
Student’s role in transition planning
Not attended or participated 10.6 1.6*{ 22.6 3.5* 4.6 0.9
Present but participated very little or not at all 36.4 2.6* 44.7 3.0* 22.7 1.8
Provided some input 49.7 2.8*{ 30.1 2.7* 59.1 2.1
Leadership role 3.3 1.0* 2.6 1.0* 13.6 1.5
Active participants in transition planning
Special education 99.3 0.2 95.9 1.4 97.2 0.7
Parent/Guardian 83.1 2.6 91.4 1.6 85.0 1.5
Student 80.9 2.3*{ 66.3 2.8* 88.5 1.5
School administrator 61.5 3.1 57.0 3.2 54.7 2.2
School counselor or psychologist 54.5 3.1 54.5 3.7 62.5 2.3
General education academic teacher 39.0 3.4* 38.9 3.3* 61.6 2.4
General education vocational teacher 32.4 3.2{ 20.0 2.9* 31.7 2.0
Related services personnel 29.6 3.0*{ 57.7 3.0* 16.5 2.0
Vocational rehabilitation agency counselor 22.6 2.4* 19.2 2.6 13.1 1.4
Staff of other outside agency 15.1 2.2* 15.6 2.5* 4.1 0.7
Advocate 2.4 0.7 5.1 1.4* 1.0 0.3
Staff of Social Security Administration 2.7 0.9 1.4 0.7 0.4 0.2
Employer 2.1 0.7 0.5 0.3 1.9 0.6
Representative of postsecondary education 1.1 0.5 1.7 0.7 2.1 0.6
Other 10.6 1.7 10.4 2.0 7.1 1.0
Note. NLTS2 5 National Longitudinal Transition Study-2.
*Statistically significant difference from other disability group, p , .01.
{Statistically significant difference from autism group, p , .01.

disabilities. Students with autism were the least contacts made about postschool support needs can be
likely to be identified as having no support needs found in Table 4 as can the percentage of parents
after high school. who had been provided information about services
Teachers also were asked to indicate whether available after high school.
contact had been made with agencies/supports that
could meet student’s postschool needs. Students with Parent Perspectives and Satisfaction
intellectual disability or autism were more likely than Parent/guardian responses to Parent Telephone
students with other disabilities to have had contacts Interview questions relevant to transition planning
made with vocational rehabilitation providers, sup- are presented in Table 5. Parents indicated that
ported employment providers, social service agencies, significantly fewer youth with autism or intellectual
the Social Security Administration, mental health disability attended their IEP meetings compared
agencies, sheltered workshops, supervised residential with students with other disabilities. Significantly
support agencies, and adult day programs. Students more parents/guardians of youth with autism
with intellectual disability were significantly less reported attending the last IEP meeting than did
likely, however, than were students with other parents/guardians of students with intellectual
disabilities to have had contacts made with colleges. disability or other disabilities. However, parents
A complete list of the identified support needs and reported that youth with autism were significantly

K. Shogren and A. Plotner 21


INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Table 4
Service Needs and Contacts Made
Intellectual disability Autism Other disability
NLTS2 question % SE % SE % SE
Service or program needs identified for student
after high school on IEP or transition plan
Vocational training, placement, or support 34.1 2.6{ 54.9 3.2* 33.4 2.1
Transportation 23.1 2.4*{ 34.1 3.4* 2.9 0.4
Accommodations for postsecondary education 23.0 2.5* 28.1 2.5* 51.4 2.0
Supporting living 20.3 2.3*{ 30.8 3.0* 2.9 0.5
Social work 16.3 2.1* 16.4 2.2* 4.8 0.8
Speech or communication 9.5 1.5*{ 23.2 2.6* 3.3 0.9
Mental health services 6.8 1.4 13.5 2.5* 4.1 0.8
Behavioral intervention 6.1 1.3{ 18.4 2.5* 6.4 0.9
Occupational therapy 4.2 1.1 7.2 1.9* 1.5 0.4
Physical therapy 3.2 1.1 3.5 1.5 1.0 0.1
Mobility training 2.9 0.8 5.5 1.3* 1.0 0.1
Nursing or other medical 2.8 1.0 3.0 0.9 0.4 0.1
Vision 1.1 0.4 — 0.9 0.1
Audiology — — 1.4 0.2
Other 6.0 1.3 8.2 1.7 4.8 0.8
None 18.6 2.5 12.4 2.5* 24.6 1.7
Contacted about programs/employment postschool
Vocational rehabilitation 55.7 3.5* 51.5 4.5* 34.8 3.7
Supported employment programs 36.0 3.4* 35.6 4.4* 9.4 1.7
Other vocational training programs 33.5 3.3 24.3 3.8 25.0 3.0
Other social service agencies 32.2 3.4* 37.0 3.9* 15.1 2.4
Job placement programs or agencies 32.9 3.6 25.0 4.0 22.6 2.7
Social Security Administration 29.9 4.1* 35.1 3.9* 8.1 1.7
Potential employers 28.6 3.2* 22.9 4.0 18.4 2.0
Sheltered workshops 23.9 2.7* 29.7 3.7* 3.8 1.2
Mental health agencies 21.3 3.2* 30.6 4.3* 8.7 1.7
Supervised residential support agencies 17.7 2.6* 20.6 2.9* 2.7 0.5
Adult day programs 17.1 2.8* 21.3 3.3* 2.3 0.8
Postsecondary vocational schools 16.5 3.2 21.1 4.0 25.2 3.2
Colleges 10.9 3.0* 22.8 4.2 25.1 2.3
Congregate care facilities of institutions 5.8 2.0 5.2 1.7 1.2 0.4
U.S. military 4.8 1.7* 5.7 2.5* 16.3 2.2
Other agencies 12.5 2.9 14.3 3.3 6.1 1.7
Parents provided with information about
services available after high school
Yes 61.6 2.9 55.8 2.3 66.9 3.1
No 1.0 0.8 3.5 1.4 1.6 0.6
Not yet 37.3 2.9 42.5 2.4 29.6 3.1
Note. NLTS2 5 National Longitudinal Transition Study-2; IEP 5 Individual Education Plan.
*Statistically significant difference from other disability group, p , .01.
{Statistically significant difference from autism group, p , .01.

22 Transition Planning
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Table 5
Family Perspectives on Transition Planning
Intellectual
disability Autism Other disability
NLTS2 question % SE % SE % SE
Youth attended last IEP meeting 67.9 2.0*{ 56.3 2.6* 77.3 2.0
Adult in household attended last IEP
meeting 85.4 1.4{ 93.2 1.4* 88.8 1.8
Youth met with teachers to set
postgraduation goals 50.4 2.2*{ 30.4 .3* 57.8 1.7
Adult in household met with teachers to set
postgraduation goals 51.6 2.3 52.6 2.4 48.6 2.0
Who mostly came up with goals?
Mostly school 52.1 2.1 45.6 2.3 43.7 2.1
Mostly parent/youth 17.7 1.7 14.1 1.7 21.8 1.2
Combination 29.0 1.9 39.5 0.2 33.6 2.0
Do not know about goals 1.2 0.5 0.4 0.2 0.7 0.2
Feelings about family involvement in
IEP decisions
Wanted to be more involved 40.1 1.9 34.9 2.1 32.8 2.1
Involved the right amount 58.5 1.9 63.9 2.2 65.9 2.1
Wanted to be less involved 1.4 0.5 1.1 0.5 1.3 0.3
Note. NLTS2 5 National Longitudinal Study-2; IEP 5 Individual Education Plan.
*Statistically significant difference from other disability group, p , .01.
{Statistically significant. difference from autism group, p , .01.

less likely to have met with teachers to set Discussion


postgraduation goals. As shown in Table 5, there
were no differences across groups in parents’ School Perspectives
perceptions of who primarily developed the IEP At a surface level, the data suggest that schools
goals and in the family’s perceptions of their are in compliance with the transition mandates
involvement in the IEP process. Parents were also of IDEA. The average age at which transition
asked how to rate the usefulness of the planning planning commenced was around 14 for students,
for their child’s life after school on a scale of 1 to 4 which is congruent with the 1997 amendments to
(very useful to not at all useful). Parents of students IDEA, requiring that transition planning begin at
with intellectual disability ranked the planning as age 14, that were in place when the NLTS2 Wave 1
most useful (M 5 1.7, SE 5 .04), followed by data were collected (the 2004 reauthorization of
parents of students with other disabilities (M 5 IDEA increased the required age to 16). As shown
1.9, SE 5 .06), and parents of students with autism in Table 1, the majority of students had received
(M 5 2.1, SE 5 .03). These scores significantly instruction on transition planning and had an IEP
differed from each other, F(2, 410) 5 21.57, p , that detailed a course of study linked to transition
.001, with significant differences in the usefulness goals. When probing these results in greater depth,
rankings made by parents of students with however, issues emerged. For example, only 66% of
intellectual disability or autism, F(1, 410) 5 students with autism had an IEP that specifically
35.19, p , .001, and parents of students with linked the student’s course of study to transition
intellectual disability or other disabilities, F goals. Because these numbers represent population
(1, 410) 5 22.68, p , .001. estimates, this can be interpreted to mean that 34

K. Shogren and A. Plotner 23


INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

out of every 100 secondary students with autism in that 39 out of every 100 students with autism and
our nation do not have an IEP that links their 20 out of every 100 students with intellectual
course of study with transition goals. A student’s disability in our nation had primary goals related to
plan of study creates a process (i.e., coursework and sheltered employment, despite the focus on inte-
other learning opportunities, educational supports grated employment, community participation, and
and services) for moving through secondary educa- equal access for people with disabilities as well as
tion in a purposeful way; however, it appears that data suggesting that people with disabilities earn
for a large number of students in our nation, limited higher wages in competitive employment (Mi-
consideration is being given to individualizing gliore, Grossi, Mank, & Rogan, 2008). However,
a program of study based on a comprehensive Migliore and colleagues found that 46% of adults
understanding of the student’s interests, preferenc- with intellectual disability or 40% of families did
es, and postschool dreams. More research is needed not recall anyone encouraging them to pursue
on the implementation of strategies in schools to employment outside of sheltered workshops. Given
link a student’s program of study to his or her the availability of supported and customized
postschool outcomes and the impact of including employment options that create opportunities for
this statement in the transition plan (Johnson integrated, wage-earning work experiences with
et al., 2002). Between 24 and 36 of every 100 appropriate supports (Griffin, Hammis, Geary, &
secondary students with disabilities have not Sullivan, 2008; Wehman & Revell, 1997), there is
received instruction focused on transition planning. a critical need to explore the individual and
Although students with intellectual disability were ecological factors that predict the employment
more likely than were students with autism or other goals (and the associated instruction and postschool
disabilities to receive such instruction—perhaps contacts) for students with intellectual disability or
because of the emphasis on self-determination and autism.
self-advocacy for this group of students (Wehmeyer Individuals with autism or intellectual disabil-
& Mithaug, 2006; Wehmeyer & Shogren, 2008)— ity were significantly more likely to have goals
it is troubling that given the importance placed on related to maximizing functional independence and
transition planning, a large percentage of students enhancing interpersonal relationships, which is
are not receiving specific instruction on the skills congruent with research establishing these as key
necessary to be successful in this process. A variety domains for students with intellectual disability or
of strategies exist for teaching students how to autism (Browning, Osborne, & Reed, 2009). It is
become active participants in transition planning troubling, however, that students with autism were
(Martin, van Dycke, Christensen, et al., 2006; Test significantly less likely to have goals related to
& Neale, 2004; Wehmeyer & Lawrence, 1995), and living independently than were students with
more research is needed regarding the factors that intellectual disability or other disabilities. Only 28
enhance and impede the inclusion of this instruc- out of every 100 students with autism in our nation
tion in student’s education. had primary goals in this area. Further research is
Not unexpectedly, when looking at the prima- needed to determine the factors that influence the
ry goals of transition planning for students with lack of emphasis on independent living for this
intellectual disability, autism, or other disabilities, population. Students with intellectual disability or
we found that goals related to employment were autism were also significantly less likely to have
common for all students. However, there were goals related to attending college or postsecondary
significant differences across the groups both in the vocational training. In fact, only 10% of students
specific types of goals related to employment and in with intellectual disability and 23% of students
other domains. For example, students with intel- with autism, compared with 52% of students with
lectual disability or autism were much less likely other disabilities, had goals related to attending
to have goals related to competitive employment college. Given the emphasis on postsecondary
and more likely to have goals related to sheltered options for students with intellectual disability or
and supported employment. Further, students with autism (Hart, Grigal, & Weir, 2010), it is troubling
autism were much more likely than those with that the number of students for whom college is a
intellectual disability to have goals related to goal remains so low. Research is needed on barriers
sheltered employment and less likely to have goals to IEP teams identifying college or postsecondary
related to competitive employment. It is troubling vocational training as a realistic option for students

24 Transition Planning
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

with intellectual disability or autism. Finally, as merged with an academic curriculum (Johnson &
shown in Table 2, students with autism or intel- Sharpe, 2000).
lectual disability were perceived as making signif- It is also critical to effective transition
icantly less progress on transition goals (e.g., planning that students and their families have
postsecondary education, independent living) than access to a diverse team to identify future supports
were students with other disabilities. This finding is and services and to develop a postschool vision
worthy of further investigation, particularly because (Noonan, Morningstar, & Erickson, 2008). How-
the teachers did not rate the suitability of the ever, as shown in Table 3, with the exception of
educational program differently across the three the student and his or her family, the only other
groups of students. active participants in transition planning identified
Despite the emphasis on student involvement for over half of students were school-based
in transition planning reflected in IDEA and best- personnel (e.g., special education teacher, school
practice recommendations, the results indicate counselor, school administrator). In addition,
that a very small number of students with any students with intellectual disability or autism were
disability label take a leadership role at their IEP significantly less likely to have the involvement of
meeting, but significantly fewer students with a general education academic teacher. Given the
intellectual disability or autism take a leadership focus on access to the general education curriculum
role than do students with other disability labels. It for all students (Wehmeyer, Lance, & Bashinski,
is particularly concerning that 10 out of every 100 2002), the lack of general education input is
students with intellectual disability and 23 out of troubling. Research has suggested that special
every 100 students with autism did not even attend education teachers do not perceive access to be as
their transition planning/IEP meeting and that important for students with more severe disabilities
36% and 45% attended but participated very little (Agran, Alper, & Wehmeyer, 2002); the contrib-
or not at all. These findings are congruent with utors to these perceptions need to be further
other research (e.g., Martin, Van Dycke, Greene, examined, and strategies for increasing the partic-
et al., 2006), suggesting limited student involve- ipation of general educators in transition planning
ment at IEP meetings, but brings attention to the for students with intellectual disability or autism
fact that despite the critical importance placed on explored. The most common nonschool partici-
student involvement and leadership, significant pants were vocational rehabilitation counselors.
numbers of students are not prepared to effectively Students with intellectual disability were more
participate in the IEP meetings (Agran, Blanchard, likely than students with other disabilities to have a
& Wehmeyer, 2000). Further research is needed to vocational rehabilitation counselor present, and
explore the nature of the instruction on transition students with intellectual disability or autism were
planning that students receive, particularly be- more likely to have staff of some other outside
cause (as shown in Table 1) 76% of students with agency present. However, only 23% of students
intellectual disability and 71% of students with with intellectual disability had an actively involved
autism were reported to have received instruction vocational rehabilitation counselor, and only 15%
focused on transition planning. The nature of this to 16% of students with intellectual disability or
instruction must be further explored, particularly autism in our nation had active participation from
because researchers have found that teachers another outside agency. Successful collaborative
report being ill-prepared to promote student self- partnerships among school professionals and essen-
determination and involvement in the IEP meet- tial adult service providers to create postschool
ing (Mason, Field, & Sawilowsky, 2004). In supports cannot exist unless active participation
addition, with all of the demands on teacher time, becomes a reality (Johnson et al., 2002). Research
barriers and facilitators of providing high quality examining expectations and involvement of tran-
instruction and opportunities for IEP and transi- sition team professionals as well as on facilitators of
tion planning involvement need to be examined. interagency collaboration is needed.
Work is needed to shift from a teacher-directed For almost all students, teachers reported that
IEP/transition planning model to a student-directed the special education teacher was an active
model (Field, Martin, Miller, Ward, & Wehmeyer, participant; given the leadership role special
1998; Martin, Van Dycke, Greene, et al., 2006), as education teachers take in the process, this is not
well as to explore ways that such content can be surprising. Strangely, teachers also reported that

K. Shogren and A. Plotner 25


INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

only 88% to 91% of parents and guardians and 66% demonstrated by students with labels like autism
to 86% of students were active participants, with or intellectual disability; however, there is only
students who have intellectual disability or autism limited research in which these differences have
being significantly less likely to be active partici- been systematically explored. Given the higher
pants. Given that transition planning is about identified need, we found that it is reasonable that
the student’s future and that a recent analysis of when looking at program contacts (see Table 4),
the transition literature suggests a large effect of we found that students with intellectual disability
student-focused transition planning (Cobb & or autism had more contacts in most areas than did
Alwell, 2009), it seems clear that all students and students with other disabilities. It is troubling,
their families should be involved. Further, as Cobb however, that those with intellectual disability
and Alwell suggested, it is not just about student were significantly less likely to have had contacts
and family involvement, it is also about having made with colleges, although this is congruent with
peer advocates, friends, and mentors as active other findings reported previously.
participants; however, the NLTS2 data suggest Despite the significant needs identified for
that is rarely the case. Although students with students with intellectual disability or autism or the
autism were more likely to have advocates present number of contacts made by schools, it is troubling
than were students with intellectual disability or that only 62% and 67% of families of students with
other disabilities, this was still only for 5% of intellectual disability or autism, respectively, had
students. All students had very low participation received information about services available after
from employers; representatives of postsecondary high school. It is important that parents have a
education; and other persons, which could include comprehensive understanding as early as possible of
friends, peers, and other mentors. This low services available for their children if successful
participation occurs despite the fact that the transitions are to occur. In addition, for parents to
literature and the law emphasize the importance work to develop a vision for the possibilities of their
of using a team process to build and implement children’s future, information needs to be shared
a vision for the child’s future. Further research about these possibilities (Blalock et al., 2003).
is needed to implement and evaluate strategies One possible reason for lack of knowledge
for promoting diverse participation in transition
sharing and service coordination could be that
planning.
schools themselves are unaware of disability-
Finally, when teachers were asked to identify
specific resources that may be available in their
postschool service needs for students, congruent
community (Blalock et al., 2003). Teachers report-
with the most commonly identified program goals
ed limited active participation of the persons/
for students with intellectual disability or autism,
agencies that may address the service or program
they noted that the largest numbers of students had
needs identified for students after high school. For
identified needs related to vocational training,
example, although state vocational rehabilitation
placement, or support. Students with autism
offices were contacted for 52% of students with
(55%) were significantly more likely than those
autism, which is congruent with the number of
with intellectual disability (34%) to have needs in
students with autism who had needs identified in
this area, perhaps related to the fact that they were
this area, only 19% of these students had a
more likely to have goals in more restrictive
representative from vocational rehabilitation as an
placements (e.g., sheltered employment). Further
research is needed to identify the features specific active participant on their transition planning
to autism that leads IEP teams to be more likely to team. As mentioned previously, further research is
identify needs related to employment. With the needed to promote interagency collaboration and
exception of accommodations for postsecondary the active involvement of persons outside of the
education, students with intellectual disability or educational system.
autism tended to have higher needs for support in
all domains. Those with autism had significantly Parent Perspectives
higher needs identified related to speech or Thus far, we have discussed the findings from
communication and behavioral intervention than the School Program Survey. The Parent Telephone
did students with intellectual disability. This Interview also provides important information
likely relates to the significant support needs about how parents/guardians perceive transition

26 Transition Planning
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

planning. Unfortunately, the questions (and re- These data confirm that there remains a
sponse options) on the School Program Survey and breakdown in the communication and collabora-
Parent Telephone Interview were not congruent, so tion within transition planning teams. Central
direct comparisons of parent and teacher responses tenets in IDEA (i.e., family involvement and
are not possible. However, by examining similar transition planning being based on students’
questions, we clearly found that that there may be dreams, interests, and strengths) do not appear to
differences in how parents and teachers perceive be occurring for one-third to one-half of students
student and family involvement in transition and their families. It also appears that the majority
planning. For example, parents tended to report of transition planning is occurring during the IEP
that fewer youth had attended their last IEP team meeting, which is not conducive to building a
meeting than had teachers. Teachers reported that collaborative, functional, trusting team (Turnbull
11% of students with intellectual disability had & Turnbull, 2001; Turnbull, Turnbull, Erwin, &
not attended or participated in the last transition Soodak, 2006). Further research is needed on the
planning meeting, whereas parents said that only multiple student, family, and system-level factors
68% had attended the last meeting (meaning 32% that influence family and student involvement and
had not). The discrepancies were similar for strategies to implement family–professional part-
students with autism or other disabilities. Although nerships in transition planning in practice.
it is possible that parents and teachers were It is important to note, however, that between
thinking about different meetings, there seems to 59% and 66% of all parents did feel that they were
be a large discrepancy between parent and teacher involved ‘‘about the right amount’’ in transition
perceptions of student attendance. This could be planning and that all parents tended to rate the
because some students may attend only part of the usefulness of the process of planning for life after high
meeting (Martin, Van Dycke, Greene, et al., 2006). school between somewhat useful and very useful. Further
Further research is needed to understand the origins research is needed to examine the factors that
of this discrepancy and to promote greater student contribute to parents feeling like they are experiencing
attendance and meaningful participation, particu-
the right level of involvement in the transition process.
larly from a parent’s perspective. Researchers need
This information could be used to guide the develop-
to examine how parents define meaningful youth
ment and implementation of evidence-based practices
participation to understand ways to actively, and
that actively involve the diverse individuals that will
appropriately, involve students.
support students postschool.
In terms of parent attendance, parents of
students with autism and those with other disabil-
Limitations
ities were more likely than parents of students with
intellectual disability to indicate that they had The NLTS2 provides useful information re-
attended the meetings. However, when asked garding the status of transition planning for
whether an adult in the household or the youth students with disabilities across the nation. How-
had met with the teacher prior to the meeting to set ever, there are limitations that must be considered
postgraduation goals, a much lower number of in interpreting the data. First, as mentioned above,
parents reported having done so. In fact, only 30% it is problematic that direct comparisons cannot
of parents of students with autism reported having be made between teacher and parent perceptions.
done this, the lowest of all students. This finding Given that questions about the same topics were
likely corresponds to the perception of 44% to 52% included in both data sets, it would have been
of parents that the school was primarily responsible useful to examine whether there were significant
for IEP goals. If parents and teachers are not differences on ratings of student participation and
meeting prior to the IEP meeting to discuss goals, it involvement. Further, NLTS2 is a broad study,
seems likely that the school is taking the primary addressing all aspects of students educational
role in developing the goals. Between 33% and programs. Thus, the included questions are broad,
40% of parents in our nation indicated that they rather than going in-depth into one area. There-
wanted to be more involved in IEP decisions, fore, we only get a picture of the overall status of
suggesting that a large number of the parents who the implementation of best practices. However,
were not involved in identifying goals wanted to the results do provide indicators for future, more
play a more active role. detailed analyses.

K. Shogren and A. Plotner 27


INTELLECTUAL AND DEVELOPMENTAL DISABILITIES ’AAIDD
2012, Vol. 50, No. 1, 16–30 DOI: 10.1352/1934-9556-50.1.16

Conclusion Alwell, M., & Cobb, B. (2006). A map of the


The transition requirements set forth by IDEA intervention literature in secondary special
charge transition planning teams with ensuring that education transition. Career Development for
Exceptional Individuals, 29, 3–27.
transition planning is a results-oriented process that
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2005).
focuses on improving academic and functional
Austism after adolescence: Population-based
achievement to facilitate movement from school
13- to 22-year follow-up study of 120 individ-
to postschool activities. Student and family in-
uals with autism diagnosed in childhood.
volvement as well as active involvement from
Journal of Autism and Developmental Disorders,
school and adult services and supports must
35, 351–360.
continue to be at the forefront of the transition
Blacher, J., Kraemer, B. R., & Howell, E. J. (2010).
planning process. Lack of active participation/
Family expectations and transition experiences
involvement from these core stakeholders will not
for young adults with severe disabilities: Does
lead to the intended outcomes of the transition
syndrome matter? Advances in Mental Health
mandates: improved postschool outcomes for all
and Learning Disabilities, 4, 3–16.
students with disabilities. In addition, the IEP/ Blalock, G., Kochhar-Bryant, C. A., Test, D. W.,
transition planning process must be understood by Kohler, P. D., White, W., Lehmann, J., et al.
all team members. The absence of linkages between (2003). The need for comprehensive personnel
transition goals and students’ course of study preparation in transition and career develop-
suggests that schools are offering dated models ment: A position statement of the Division on
(one-size fits all) that do not promote individual- Career Development and Transition. Career
ized instruction for students that allow them to Development for Exceptional Individuals, 26,
make progress toward their dreams for their future 207–226.
(Cooney, 2002; Trainor, Lindstrom, Simon-Bur- Browning, J., Osborne, L., & Reed, P. (2009). A
roughs, Martin, & Sorrells, 2008). Finally, the qualitative comparison of perceived stress and
higher level of support needs identified postschool coping in adolescents with and without autistic
for students with autism or intellectual disability, spectrum disorders as they approach leaving
in many cases, leads to increased contacts with school. British Journal of Special Education, 36,
providers who can address these needs. However, 36–43.
there are ongoing challenges with stereotypes and Chambers, D., Rabren, K., & Dunn, C. (2009). A
low expectations related to the degree to which comparison of transition from high school
students with autism or intellectual disability can to adult life of students with and without
access integrated environments postschool and the disabilities. Career Development for Exceptional
appropriateness of goals that will facilitate access to Individuals, 32, 42–52.
postsecondary education, competitive employment, Cobb, R. B., & Alwell, M. (2009). Transition
and community integration. planning/coordinating interventions for youth
with disabilites: A systematic review. Career
Development for Exceptional Individuals, 32, 70–81.
Cooney, B. F. (2002). Exploring perspectives on
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30 Transition Planning
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