Professional Documents
Culture Documents
What Is Autism?
What Is Autism?
What Is Autism?
Autism is a complex developmental disorder that typically appears within the first 3
years of life. It is part of a group of disorders known as Autism Spectrum Disorder
(ASD). Usually it is present from birth (though not always obvious) and lasts
throughout the life.
Children and adults with autism typically display major impairments in three areas
which are referred to as the ‘Triad of Impairments’.
The three areas of difficulty which all people with autism share are:
Many people with autism also have sensory difficulties e.g. over or under sensitivity
to sight, touch, taste, smell, sound, temperature, or pain. Because of their
impairments, people with autism often experience overwhelming anxiety, frustration,
and confusion when faced with the demands of everyday life.
People from any country, culture, religion and social background can have autism.
Around 1 in 100 people are likely to have autism and it is four times more likely to
affect boys than girls.
The exact causes of autism are still being investigated. However, there does appear
to be a mixture of both environmental and genetic factors at play. Research suggests
that combination of factors may account for changes in brain development.
At present, there is no cure for autism. However, development and changes occur
and progress is possible. For many years, researchers are trying to find out cures for
autism, but no cure has been found yet which may totally reverse all the effects of
autism. Though it is a lifelong disorder with no cure, there are a wide range of
treatments and intervention approaches that help reduce some of the difficulties and
help to manage behaviour problems.
It is hard for parents to accept that their child has autism. But avoiding diagnosis for
the fear of label can cause plenty of problems for the child. If autism is identified at
an early age, the treatment can also be started immediately. Research indicates that
starting intervention/treatment at an early age can result in great progress and
improvement in the child.
All people with autism can benefit from a timely diagnosis and access to appropriate
support and services.
The characteristics of autism vary from individual to individual. However, there are
three major groups of characteristics which people with autism typically display.
Children and adults with autism show a range of difficulties in social communication
that include both verbal and non-verbal communication. Some people on the
spectrum may not develop speech (or may not speak), while some other may have
fairly limited speech, or may not have functional speech. The development of the
language is often delayed and may follow a different pattern from that of typically
developing children.
People with autism experience some degree of difficulty in social interaction. Some
of them may not seek out contact with others and seems to be happy with their own
company. While some other may want to interact with other people and make
friends, but may find it hard to do so.
{An inability to understand social rules of a particular situation make it hard for
people with autism to fit in socially.}
People with autism sometimes appear to be insensitive, which can be due to the
difficulty in recognising how someone else is feeling. Their limited social
understanding can lead to a behaviour that appears inappropriate to others.
Joint attention: introduce such games to the child in which he/she has to
interact with some other person. For example, (bubble activity....)
Playing by child’s side: if the child with autism doesn’t allow anyone to join
in his play, sit near the child where he can see you, and copy his play. {This
may help him tolerate other people around him, sharing his play, .... }
Joining in child’s play: Whatever the child likes to play (such as with cars or
with some other toy, or with water etc), join him in it. If he does not like to play
with his brothers or sisters, then parents should join him initially. Later on
when the child gets use to of parents’ presence, brothers and sisters can also
be introduced/included into the play.
Turn taking:
Accept child’s privacy: The child with autism may find it hard to interact with
people, and may need some time to be on his own. This may help him calm
down. So after hectic activity of being socialize, give them some time to be
with them only.
Express your feelings in words: Try to express your feelings and emotions
in words in addition to gestures. Child may have difficulty in reading your
emotions himself, so explain it. It will help the child to understand that others
have feelings too. And also, will help in explaining the way of expressing
emotions. (e.g. if you are happy on an action of the child, with a smile tell him
that you are happy on this action of the child)
Help the child in expressing his feelings: For example, if you give child’s
favourite toy or food to him, tell him that ‘are you happy on having this toy’.
Explain social rules: Explain the rules of a social situation (for example, how
to behave in front of guest, or in a super store, or in mosque, etc). They child
may find it hard to learn by observation.
Help the child get use to of social gatherings: Don’t keep the child at home
due to the reason that he cries a lot in a gathering. Try to take him out with
you to the market, to the weddings, birthday parties etc. if the child can’t
tolerate at all, first start from 5 minutes. Then increase the time gradually.
After sitting in a gathering for 5 minutes, one parent can leave the gathering
with the child. Gradually the child may develop the stamina/resistance for a
social gathering. ........
Children and adults with autism show a range of difficulties with imagination as well.
Some may not be able to make sense of abstract ideas, predict the behaviour of
other people and guess what other people are thinking; while others may focus in on
the details of an object rather than the bigger picture (e.g. looking at the wheels of a
car, rather than playing with the whole car).
Despite the difficulties in the area of imagination in relation to social situation, some
people with autism may be extremely creative and imaginative. For example, an
individual with autism with special interest in music, art or writing, may become great
artists, musicians or writers.
Additional/associated features/characteristics:
Sensory difficulties
Children and adults with autism may experience some degree of sensory
difficulty/some form of sensory sensitivity. There may be difficulty in one or more
senses (e.g. sound, vision, touch, taste, smell, balance and body awareness) which
may either be intensified (hyper-sensitive/over react to sensory stimuli) or under-
sensitive (hypo-sensitive/under-react to sensory stimuli).
All the ideas given above, should not be tried on each child. As each child’s difficulty
is different, therefore, the ideas related to your child’s particular difficulty are likely to
help.
Another important thing to be noted is that the child should be helped in managing
the sensory difficulties. Though the child should be provided with comfortable
environment considering his sensory difficulties to reduce the risk of possible
anxiety, but complete avoidance can make the child even more sensitive to the .....
gradual exposure is very essential to reduce the sensitivity of the child.
Love of routines
Children and adults with autism may find it difficult to make sense of the world. The
world may appear to them a very confusing and unpredictable place.
To overcome the possible anxiety and fear of rapidly changing environment around,
they may:
Prefer order and routines.
Want to travel the same way to school, park or a takeaway etc.
Dislike the change (e.g. changing house, school, any object, furniture, toy or
any other thing).
Prefer to eat exactly the same food or wear the same cloths etc.
Special interests
Many children and adults with autism may have special interests of intense nature.
They are likely to become very upset if they are asked to stop doing their favourite
activity in order to do something else.
They may:
Some children with autism may also have behaviour problems. Some commonly
asked questions about problematic/socially inappropriate behaviour are:
Q.1. Is it appropriate to stop the child with autism from an inappropriate behaviour?
Yes, it is very essential. Stopping children from bad behaviour/habit does not mean
that you are suppressing the child. Even if the child has ASD, he/she should not be
allowed to beat other children, run in the house naked, jump on the guests, spit all
over the house, throw things and food items all over the house, etc. Letting the child
do whatever he wants, can result in habit formation of socially unacceptable
behaviours.
Q.2. Is it appropriate to beat the child with autism for an inappropriate behaviour?
Beating a child does not solve the underlying problem/root cause of that undesirable
behaviour. The child may repeat the same bad behaviour at some other time, or may
start showing some other inappropriate and more challenging behaviour. Therefore,
beating should be avoided as much possible.
Research indicates that there is always some reason behind an action. If a child with
ASD is showing an undesirable behaviour, he may have difficulty communicating his
needs, little understanding of what is expected from him, anxiety of sitting with
guests, anxiety due to going in a gathering etc. the child with autism have problem
understanding the world around him. Therefore, his behaviour can be a result of
misunderstanding.
Effective way of reducing the inappropriate behaviour is to find out the root cause of
that behaviour and to address that cause.
Q.4. What are the possible strategies to control the inappropriate behaviour?
(/////////Some important consideration/////////ideas to help)))
Be patient: it may take time to change an inappropriate or bad behaviour of
the child. Don’t lose hope if the child doesn’t show improvements initially.
Be consistent: whatever strategy you use to control child’s bad behaviour,
continue using it for some time. Don’t change strategies every day. (strategies
don’t work like magic stick. It takes time to change a habit.)
Change your communication: Good communicating with children can solve
many problems. (Please see the suggestions discussed above under heading
of communication difficulties).
Analyse behaviour: if the child show any bad behaviour (such as hitting
others, throwing things, crying, etc), try to observe him. Notice him that when
does he get upset and why? What is the reason behind that bad behaviour?
Find the reason, and try to remove that problem which becomes reason of
bad behaviour (/try to address the cause).
Prepare for change: Tell the child in advance that you are going to change
the furniture, home, school, class etc. (social stories, structures or time tables
can be useful for it).
Ensure autism friendly environment: Bright lights, loud noises, strong
smells and many other things can cause anxiety in children with autism. To
avoid bad behaviours of children with autism, the environment around them
should be free from such triggers and should be comfortable for them
Use structures: Structures help children with autism understand what is
expected from them and also inform them about what is going to happen.
Divide a longer task into small steps: For example, teaching the child to
wear a pant independently can be divided into three small steps, such as: put
legs into the pant, button the pant, zip it. Let the child learn each small task
one by one.
Motivation: Children may find it hard to learn anything or change their habit.
Encourage them if they do something good. Appreciate their efforts. Make
them feel that they can do it.
Rewards: The child should be given a reward on good behaviour or desirable
activity. In the beginning, the child may not understand social praise and may
not consider it a reward, such as ‘good work’ etc. Initially, child’s favourite toy
or activity can be used as reward. But while giving the reward, add social
praise as well to make the child familiar with it, for example, ‘good boy’, ‘good
work’, well done, etc.
A child with ASD needs more time and care as compared to typically developing
children. Parent’s extra care may cause anxiety or anger in brothers and sisters of a
child with ASD and they may feel ignored at times.
Siblings can help the child with ASD in many ways including socialization, self help
skills, interaction etc. Brothers and sisters can work as a role model for the child and
he may learn plenty of skills from them such as turn taking, playing games, tolerating
people around them, making friends, social interaction, self help skills etc.
There are plenty of treatments and intervention approaches that help in reducing
number of problems associated with ASD. Each individual with ASD show unique
pattern of behaviour, therefore it is hard to suggest only one therapy or treatment
that may benefit all individuals with ASD. Certain people may find one therapy or
treatment useful, while other may not. (or certain people with ASD may benefit from
one approach, while other may not/// one approach may work for one parson with
ASD, but may not work for another). It is important to select the approach that meets
the needs of the individual with ASD. For the purpose of information, brief
introduction of some of the treatments and therapies is added in this section.
Dietary intervention
Some children with autism may have allergy/ intolerance to certain type of foods.
Certain foods may have effects on their behaviour, mood, learning and digestive
system. Gluten and Casein are thought to have these effects. Gluten is a protein that
is found in wheat and other grains such as oats, barley etc. casein is a protein that is
found in milk and the products of milk such as yogurt, butter, cheese etc. For some
people with autism gluten-free, casein-free diet may prove useful, but for others it
may not benefit at all.
Biomedical intervention
There is no medicine that cures autism. However, some drugs may be used to treat
some related conditions such as hyperactivity, anxiety etc. Some vitamins, minerals
or food supplements are also used as a part of intervention.
In TEACCH, the schedules are used to tell the child what is going to happen and in
which order. The area where the child has to study or learn may also be segmented
into parts to minimise the outer distractions and also to specify/ clarify which area is
for which purpose. Work system is also a part of structure teaching that indicates
what the child has to do and how much. On the whole, this approach focuses on
making the environment more predictable and organised for children with autism.
ABA is based on the theory that behaviours can be learnt if aided with/ followed by
appropriate reinforcement. The consequences of an action can either make
behaviour weak or strong. If the result of an action would be rewarding, then that will
increase the frequency of that behaviour/ action, and the repetition of behaviour may
lead to habit formation. Likewise, if the consequences of an action are negative, that
would reduce the repetition of the particular action which may result in breaking a
habit. Therefore the approach focuses on reinforcing the desired behaviours and
ignoring, re-directing or discouraging inappropriate behaviours.
Children with autism may find it hard to interact with other, to communicate for their
needs or to use language for this purpose. AAC are the methods that enhance the
communication or replace the conventional ways of communication. Picture
communication, choice boards, visual structures are examples of it.
In PECS, the child gives the picture of the food item or toy or anything he wants to
an adult. The adult in response to child’s request gives the requested food item or
toy to the child. This is likely to help them understand that instead of grabbing things,
there are other ways which are acceptable by their adults. This way they may learn
the way of communicating for their needs, and also the importance of
communication.
Social Stories
Children with autism may find it hard to learn from experience or to understand social
rules automatically. To help them fit in social settings, social stories are used. These
contain information about a social situation in a very easy format that children with
autism can understand. Social stories can be developed on any social setting, for
example ‘going to supermarket’, ‘attending Eid Prayer’, ‘attending school assembly’,
etc.
Almost all children with autism have problem related to speech. Some are non-verbal
or have fairly limited speech; while, some others who speak well may have literal
understanding of the language. Speech and language therapy addresses the issues
related to language.
Occupational Therapy
Occupational therapists help the children with autism with their daily living skills,
social skills, play skill etc. They focus on the individual needs or deficits of the child
and work with them to develop the essential skills.