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Qualitative Studies On Working Students 2
Qualitative Studies On Working Students 2
Qualitative Studies On Working Students 2
A Thesis
Presented to
the Faculty of Senior High Department
Subsidized Technical Education Program (STEP) Inc.
Crossing, Calamba City
In Partial Fulfillment
of the Course Requirements for the Program
Technical Vocational Strand
Mechatronics Servicing
October 2017
2
APPROVAL SHEET
and Mirasol D. Tosino, in partial fulfillment of the requirements for the Degree of
PANEL OF EXAMINERS
Approved by the Committee on Oral Examination with a grade of
ACKNOWLEDGEMENT
After restless weeks of hard work, this study has finally come to an end.
The researchers would like to extend their sincerest gratitude to the following who
contributed much in the development and success of the study:
To the panelists Dr. Loida F. Tungao, Mr. Ar-Jay D. Perez, and Ms.
Molina G. Rizo, for sharing their knowledge, suggestions, time and insights for
the improvement of the study;
To Ms. Jean O. Bolanos, the grammarian, for exerting her time and effort
to check and improve this research;
And most of all, to ALMIGHTY GOD, for giving the researchers the
strength, courage, wisdom, guidance and blessings He gave throughout the process
of this study.
4
- The Researchers
DEDICATION
This research study was dedicated to all people who helped the researchers
to produce useful, comprehensive, and informative research study;
To our family members, thank you for your unending support, morally and
financially;
To all the families who have a family member diagnosed with cancer and
any terminal diseases. Remember that you are not alone;
To Mr. Montano L. Tosino, for being the inspiration of this study. May you
rest in peace, you will never be forgotten.
- Shane
- Danica
- Mirasol
5
CHAPTER I
THE PROBLEM
Introduction
over people. It becomes synonymous with pain and death. Cancer is insidious,
generally pain-free in the initial stages, and frequently deadly by the time it is
detectable. It has been described as savage cells which somehow evade the laws of
the body; corrupt the forces which normally protect the body; invade the well-
ordered society of cells that surround it; colonize distant areas; and as a finale to
this cannibalistic orgy of flesh consuming flesh, commit suicide by destroying the
host.
experiences that profoundly affect the person who has the cancer and those who
share the experiences. It does not only affect the individual’s mental and physical
integrity but as well as the functionality of the family system. The way the patients
cope with their disease, the way they adapt to their treatment, and whether or not
they develop psychopathology interact with the coping methods of the family,
Cancer causes changes in the family’s identity, roles, and daily functioning.
The family plays a major role because they are the ones that provide the context of
adjustment in which the person with cancer responds to his or her disease. They
In the Philippines, family members are the most important physical and
emotional care providers. They are the ones who help the patient perform activities
In addition, they need to perform other various activities such as helping the
patient cope with symptoms and coordination of medical care. Like physical care,
they also take on emotional care such as enabling social support, helping the
As stated by The Freeman (2015), cancers can occur at any age. Seventy-
five percent of cancer patients in the Philippines are 50 years old and above while
worldwide would increase from 7.6 million to 17 million deaths in 2030. In the
Philippines, cancer ranked third in the list of leading causes of death in the
country in 2010, with the following as the ten top causes of cancer deaths in the
country for that same year: breast cancer, lung, liver, cervical, colon, thyroid,
7
have been typically studied on an individual level, rather than within the context of
the family. Coping is a stabilizing factor that can help individuals achieve and
distress.
their disease and their treatment methods. Families are directly affected by the
change, the physical capability, body functions, appearance, job status, sexual
functions, and roles within the family and society of the patients. The family also
experiences stress when patients cannot cope with the symptoms they are
experiencing. The stress experienced by the family gives rise to the psychological
However, at this time, very little is known about the impact of cancer on the
family members of patients with respect to how they cope and perceive their
family environment and family coping styles. Medical and mental health
professionals have begun to realize that cancer impacts not only on patients but
8
their family members. The impact of cancer on the family members remains a
relatively understudied phenomenon of the little research that has been conducted
examining the families of cancer patients; the majority has focused on the patient
themselves.
strategies that the family members use. By exploring these strategies, researchers
may gain greater insight about the ways families are changed through having a
member diagnosed with cancer, difficulties they encounter, stress they experience,
and the coping strategies they employ in dealing with the situation. This
determine the problems, stress, and adjustment they encounter throughout the
crisis. This study will be one of the instruments for the people to become aware,
understand, and help those families who have family members diagnosed with
cancer.
9
“What are the lived experiences of the family in coping with the situation of
The purpose of this study was to determine the coping strategies used by
the family members by knowing their lived experiences while the member was
struggling from cancer. The study used a qualitative research design in which the
(5) immediate family members from purposively selected families who are taking
The scope of this study covered the families who have members that were
diagnosed with cancer and are currently undergoing medical treatments. This
study was delimited to the family having a cancer survivor member and died
because of cancer. This study is limited for those families having a member that is
The results and findings of this paper are considered significant and will
To Batangas State University, the result of the study will help produce
students that will be knowledgeable about the coping strategies that the family of a
cancer survivor used and the life experiences they encountered. This can be done
conducting extension programs that will help others especially the families who
have cancer patients that do not have enough understanding about coping with the
situation. This study will open the mind of the community on the difficulties they
To health professionals and practitioners, this study will help them be more
aware of what the person with cancer and the family are going through. It will give
more knowledge about the experiences of the family members that can help them
become more effective in dealing with cancer patients and their family.
To the professors and instructors, this kind of study can help them inform
students about the challenges and experiences of the family members regarding
stress they experience that gives psychological symptoms, the crisis they
11
encounter in many aspects of their life and how they cope with this situation. They
of the real situation of a family with cancer patients and how to cope with the
situation.
happening in the family that has this kind of complex human phenomenon. Having
known the difficulty and negative experiences of family with cancer patients, this
study will enlighten their minds on how to deal with, cope with and face the
To cancer patients, this kind of situation is hard to deal with but, by means
of this research it will help them enlighten their mind about the importance of
surviving not only for themselves but also for their family.
the situation of the family while experiencing the struggle and challenges of
having this kind of phenomenon. This study will help them to be more aware and
fully understand the condition of the family that can be an instrument to help them
cope and develop again the family dynamics. This study will help them in their
To future researchers and students, this study will help them be more aware
about the coping strategies that the family uses in order to live well and be the
12
strength of the cancer patients. This will help them be prepared in helping others
when they experience the said phenomenon by giving some advice and by
CHAPTER II
terms. These studies gave the researchers more insights, knowledge, and learning
The researchers have read and reviewed previous studies and literatures to
have an in-depth knowledge of the coping strategies used by the families with
Conceptual Literature
spread of abnormal cells. If the spread is not controlled, it can result to death.
conditions, and mutations that occur from metabolism). These causal factors may
of most cancers requires multiple steps that occur over many years. Certain types
that initiate or accelerate this process. Other potential malignances can be detected
before cells become cancerous or at an early stage, when the disease is most
the body, such as the brain, lungs, breast, intestines, bones, liver, stomach, and
skin. Cancer cells grow very fast and take nutrients from surrounding tissue.
Doctors can remove the tumor causing cancer if it has not spread too far. They can
also use drugs, or chemotherapy, and radiation to destroy it. It is difficult to cure
cancer if the cells have spread to the blood or to the lymph nodes that contain
that contain instructions on how to make the proteins that the body needs to
function. They govern hereditary traits, such as hair color, eye color, and height, as
There are around 200 different types of cancer. Two in five people, at some
point in their lives, are susceptible to it. Cancer is the term given to a large group
of disease that varies in type and location. It is the result of a continuous, abnormal
alteration of some cells that get transmitted to the cell family. It is a disease caused
by the loss of control over a cell’s reproduction capacity. Rather than dividing in a
controlled and programmed manner, the cell continues to divide and multiply
2012).
The first medical document to describe cancer was the Ebers Papyrus,
written around 1500 B.C. The document did not give detailed descriptions of
gave the disorder the name cancer, and the Greek physician, Galen, first used the
word tumor. These ancient physicians did not know much about cancer because
they did not have microscopes or use dissections, two procedures that greatly
disease.
associated with life threat, death, and even avoidance of the disease’s name.
and chemotherapy. Even when the treatment is successful, patients live with the
16
and providing care for patients with cancer can distress the daily life of patients
Mandal (2000) stressed that there are several methods of diagnosing cancer.
number of diagnostic tools that can help detect cancers. If a patient is suspected
to classify, even for an expert. Most cancers need a second opinion regarding
to cope with a cancer diagnosis depends on the patient’s appraisal of the situation
and of the resources available to him or her once dealing with the situation (Martz,
2007).
Cancer is a major life stressor that can disrupt the lifestyles and routines of
all involved. Preexisting factors within the family unit related to life cycle changes
influence the struggle that families face in adjusting to a cancer diagnosis. Most
family members have some on-going life stressors that relate to their role in the
issues, and diminished social interactions are factors that contribute to stress.
Families often need to deal with many disease-related stressors in addition to non-
17
illness stressors that are part of the developmental life cycle. These age-related
stressors exist concurrently and affect the family’s ability to adjust to illness
(Eggert, 2010).
rise of number of diagnostic tools that can help detect cancers. Once the patient is
lymphomas, can be hard to classify, even for an expert. Most cancers need a
second opinion regarding diagnosis before being sure of the diagnosis or stage and
type.
tolerate the threats that lead to stress. Humans habitually use certain coping
responses to deal with stress. Most of the time, they are not aware of these
responses - just as they may be unaware of the minor stressors of life until they
both behavioral and psychological, that people employ to master, tolerate, reduce,
minimizing, or tolerating stress or conflict. People need ways to calm the minds
and bodies after a stressor has taken its toll. The two main categories of coping
to deal with the stressor itself to avoid the stress response it is causing. Problem-
focused coping involves finding practical ways to deal with stressful situations.
poorer health outcomes, such strategies are ineffective as they ignore the root
cause of the stress. The type of stressor, whether the impact was on physical or
psychological health, explained the strategies between coping strategies and health
outcomes. Emotion-focused coping does not provide a long-term solution and may
have negative side effects as it delays the person dealing with the problem.
However, they can be a good choice if the source of stress is outside the person’s
deals with the root cause of the problem, providing a long-term solution. Problem-
It has been established that dealing with highly stressful and traumatic
events, such as cancer, rape and bereavement, can lead to positive life changes,
including enhanced personal relationships, personal changer within the self, and
patients express in different ways. Some face difficult reality from the outset of
diagnosis and treatment. Many use denial as a coping mechanism and simply
refuse to accept the truth. As evidence of the tumor becomes inescapable, the
patient may develop clinical depression. Family members may express denial in
delay effective care. Some patients cope by intellectualizing about their disease,
enabling them to obscure the reality of the cancer and regard it as unrelated to
ill patients, spiritual well-being may affect how much anxiety they feel about
death. For others, it may affect what they decide about end-of-life treatments.
Some patients and their family caregivers may want doctors to talk about spiritual
concerns, but may feel unsure about how to bring up the subject.
As stated by Reding et al. (2014), cancer treatment has its own stressors,
and other positive psychosocial outcomes during and after treatment. Studies have
2012). It is the basic social institution at the very core of the society. The values
warrant strong measures against any behavior that violated them. Not only has the
family been defined as fundamental to the existence of society; it has also been
viewed as a source of morality and decent content. Moreover, it has been defined
impossible for him or her to stay alone for a long period of time. One constantly
needs people who can be with him or her; support him or her during tough times;
21
and encourage him or her when he or she strides forward in life. Everyone needs
people who can share their happy as well as sorrowful moments, people whom one
can trust and find solace with. These are the people he or she can go to at any point
in time, love them, fight with them, and yet have faith that they never be left alone
until the very end. These are the people he or she shares his or her bloodline with -
his or her parents, children and siblings. They are his or her family.
that is disrupted when a member of that family develops a chronic illness. Indeed,
With a cancer diagnosis, Edwards (2004) stated that the whole family is
affected. As family members are likely to be providing care for the patient, family
functioning in providing care for a family member with an illness affects the well-
being not just of the patient, but also of the broader family, including the career.
Nordefeldt (2001) and Schneider (2004) both agree that when one member
of the family is diagnosed with a chronic condition, the family members protect
the sick family member at the expense of their own health. The burden and lack of
freedom in the family member’s everyday lives diminish their chances of realizing
their important goals, which can lead to emotional strain and has the potential to
make them ill. When a family member has to be taken care of, this predisposes the
22
family to stress caused by the impact of the illness. Family takes on the
responsibility of caring for the sick member as a task. The family members are not
only the providers, but are also the recipients of care as the patient is in the course
of life.
how they will be able to do all this and how to take care of themselves too. The
caregiver sometimes has to give up social activities and miss work. This can all be
very hard and very tiring in a physical and emotional way for both the caregiver
and the patient. These demands can be especially hard on older caregivers.
People who became caregivers for a sick parent, child or other relative
found that this was likely to take its toll on the relationship with their own partner.
Focusing time and attention on the sick person meant that carers were less
available for the needs of others and less patient than they might have been
terminal illness there are likely to be financial implications to cope with. Carers
may give up work to care for their friend or relative, or they may need to pay for
care at home or in a care home. Additional costs of heating bills, food and laundry,
and personal care can all mount up. These extra expenses can create financial
worries and add to the stress that carers and their friend or relative are already
going through.
23
Research Literature
In the study conducted by Radina (2001), it was found out that families
who are more flexible in modifying daily tasks and who have preexisting
resources for coping with stressors have more positive outcomes than those
families who are rigid and cope with stressors poorly. The Family Adjustment and
that assisted or hindered mothers’ abilities to cope. The subthemes of this theme
consist of: (1) support; (2) faith, positive thinking, and hope; (3) taking care of
self; (4) being fearful and protective – keeping family close; and (5) living life –
during and after the diagnosis. This research enabled caregivers of children with
cancer to express their experiences about provision of care and factors that
oncology nurses and social workers, perfectly aligned to help families reduce or
manage the turmoil in families that must cope with diagnosis of pediatric cancer.
In the study of Feyh (2012) found out that pediatric palliative care has
recently become a priority in the health care field. Findings from the data
what they cannot control while holding on to what they can control. Social change
implications of this study may include improving health care programming for
patterns and parental coping seemed to be highly related to the child’s coping
repertoire. Even though most children seemed to manage rather well, all children
Bjork (2005) found out that families’ lived experience was described as a
“striving to survive.” The families’ secure everyday life disappeared and was
replaced by fear, chaos, and loneliness. When striving to make the child and the
family survive, family members strove to feel hope and have a positive focus, to
According to the study of Chan (2016), three main themes emerged from
the data analysis by using convenience and purposive sampling method, which are
Death and Anxiety, Freedom and Responsibility, Meaning and Purpose. Under the
theme Death and Anxiety, Fear of Cancer Recurrence found to be one of the
struggles survivors face. In order to cope with such struggles, the survivors of the
25
Life, and Spirituality are the sub themes that emerged from the main theme,
The study conducted by Rufino (2004), identified the themes from the data.
First, the respondents seem to be somewhat confused or rather unsure of what their
illness really is. Second, most of the respondents are religious. Third, all had a
support network of family and friends. Fourth, all had a practical approach to their
illness. Fifth, all found time for recreation. Sixth, all of them see breasts as mere
appendage only. Seventh, because of the side effects, they could not do the things
that they used to do. Eighth, most of the respondents feel that there was a change
in the way they communicated. Ninth, most respondents are worriers. Lastly, all of
On the other hand, Chan (2011) found out that there were various
social support, and religious coping. The whole experience of cancer brought
developed to assess the different ways in which people respond to stress. There are
activities, restraint coping, seeking of instrumental social support. There are also
five scales that measure aspects of what might be viewed as emotional focused
turning to religion. Additionally, there are three scales that measure coping
Synthesis
that there is a need to recognize the necessary strategies that the families used in
In the study of Radina et al. (2001), it was found out that families who are
more flexible in modifying daily tasks and who have preexisting resources for
coping with stressors have more positive outcomes than those families who are
rigid and cope with stressors poorly. The studies were similar in terms of
which were families; and coping with the stressors like chronic illness. However,
this study focused on a specific type of cancer which is breast cancer while the
The study conducted by Fletcher et al. (2010) was similar to the present
from the respondents. This study identified the factors that assisted or hindered
mothers’ abilities to cope which consist of five sub themes while the present study
journaling to collect data. This study found out that pediatric palliative care has
The study of Thastum (2008) identified five coping strategies used by the
in the head, and wishful thinking while the present study identified fivecoping
strategies that are emotional disguise and regulation, stress eating resulting to
resiliency. However, this study focused on the children of families with parent
having cancer while the present study focused on any family member with cancer
patient.
The present study and the study of Bjork et al. (2005) were quite similar in
respondent. Both studies gathered data on the families having a cancer patient but
this study particularly focused only to the child diagnosed with cancer while the
present study focused on any member having cancer. This study found out that
broken life world” and an immediate “striving to survive.” The families’ secure
everyday life disappeared and was replaced by fear, chaos, and loneliness.
and religious coping. The present study was similar on the instrument used in
29
gathering data, which was In-depth interviews using open-ended questions. This
study found out that the whole experience of cancer brought positive and negative
outcomes.
The present study and the study of Rufino et al., (2004) were also similar
gathered data by looking for themes, which the present study also used. This study
identified ten themes that brought them the result of the study while the present
study looked for themes in six cases. However, studies differed in terms of
Chan (2016) also conducted a study which was similar to the present study
in terms of respondents. Both used cancer survivors. The study focused on the
struggles, coping, and perception of young cancer survivors that brought three
main themes which are Death and Anxiety, Freedom and Responsibility, Meaning
and Purpose.
cancer patient, which was similar to the present study. However, both studies
differed in the methodology and gathering of data. The present study used a
mechanisms, which are problem – focused and emotional – focused coping while
the present study identified six coping strategies. This study developed a
questionnaire checklist while the present study used a qualitative research design
Theoretical Framework
Lazarus (2002) classified coping theory into two parameters: (a) trait-
oriented versus state oriented and (b) micro analytic versus macro analytic
inadequate for the demands of a specific stressful encounter. Research that is state
oriented, which centers around actual coping, has a more general objective. This
performance). This research strategy intends to lay the foundation for a general
fundamental constructs.
the two basic functions of emotion-focused and problem- focused coping proposed
by Lazarus and Folkman (1984) represents another macro analytic state approach.
analyzing the experiences of family members with cancer patients in coping with
the situation.
32
Conceptual Paradigm
This part presents the researchers’ concepts and their ideas about the entire
The lived
000 In-depth interview Recommendations
experiences of
and Interpretative of the study to the
family in coping to
Phenomenological families having a
the situation of the
Analysis used to member diagnosed
member diagnosed
gather information. with cancer
with cancer.
Figure 1
Research Paradigm of the Study
33
Definition of Terms
The following terms are significantly used in the present study and this
are more than 100 types of cancer including breast cancer, skin cancer, lung cancer,
colon cancer, prostate cancer, and lymphoma. Symptoms vary depending on the type
(WebMD, 2017). Cancer is the kind of illness the study had focused, specifically, on
Cancer Patients. In this study, they are the ones who are currently undergoing
medical treatments to fight their disease. According to Cancer Institute (2005), cancer
patients are the persons who are diagnosed with any kind and stage of cancer.
that lead to stress known as coping. People habitually use certain coping responses
to deal with stress. Most of the time, people are not aware of these responses-just
as they may be unaware of the minor stressors of life until they build up to
aversive levels (Folkman, 2000). The coping techniques in this study are
and moral support given by the family member to the ill member. According to
Ranchor (2008), it has been established that dealing with highly stressful and
traumatic events, such as cancer, rape and bereavement, can lead to positive life
Columbia (2009) pointed out that caregivers worry about how they will be able to
take care of the patient and how to take care of themselves at the same time. The
caregiver sometimes has to give up social activities and miss work. This can all be
very hard and very tiring in a physical and emotional way for both the caregiver
and the patient. In this study, it is the different struggles that the family members
with each other in their respective social roles of husband and wife, mother and
father, son and daughter, brother and sister creating a common culture (Shah,
2016). In this study, the family of the cancer patient was the focus as the
there is a rise in number of diagnostic tools that can help detect cancers. Once
before being sure of the diagnosis or stage and type. In this study, it refers to the
different laboratory tests and treatments that are given to the cancer patient.
empathy and sympathy for others and feel that it is appropriate and right to follow
the norm of social responsibility. These people help more people in a wider variety
volunteering, and also have been found to help more quickly than those people
who score lower on these measures (Penner, 2002). Reciprocal altruism in this
study refers to the learned value of extending help of the family members.
Support to patient. Most patients have families that are providing some
levels of care and support. In the case of older adults and people with chronic
disabilities of all ages, this “informal care” can be substantial in scope, intensity,
and duration (Given, n.d.). The support to patient in this study refers to the ones
that the family members did and experienced while taking care of the ill family
member.
36
CHAPTER III
phenomenological analysis.
Research Design
This study utilized a qualitative research design to gain insight and explore
(IPA) is “committed to the examination of how people make sense of their own
life experiences.” This approach accepts researchers’ views and interactions with
participants that influenced the data and the subsequent interpretation of the
account. The systematic process towards analysis was well covered and utilized a
form of annotating issues and then labeling themes. The analysis then becomes
thoughts, feelings, and behaviors that shape their experience in coping. In a sense,
showing how family members make sense of their experience with the coping and
how they deal with the everyday practical concerns having this psychological
maladjustment.
(van Manen, 1990). In this study, it was used to describe in details experiences of
the family members of patients diagnosed with cancer and the battle they
(p.53). This means that IPA follows a two-step interpretative activity. On one
38
hand, the researcher’s task is concerned with trying to understand the point of
illness. On the other hand, the researcher was also critical of what the participant
was saying or not saying (may be less aware of), i.e. to make sense of the
The participants of the stud y were five (5) selected family members with
in Batangas area. This kind of sampling method used the purposive sampling to
identify families with cancer patient. Alternatively, this sampling method may
prove to be effective as only limited number of people can serve as primary data
when you need to reach a targeted sample quickly, and where sampling for
Participant’s age, sex, and religion were not limited in this study. Any
family member of the cancer patient was considered. Informed consents were
39
being sought from the participants and their family/caregiver. Full disclosure of
researchers had taken reasonable steps whenever they foresee any kind of harm to
experiences. They were assured that all information gathered will be kept
structured manner, described as “the area is chosen and the questions are
modify them as deemed appropriate. Questions are open ended and responses are
builds a relationship with the respondent in which both are comfortable talking
In this study, interviews were taped and fully transcribed as the purpose of
taping and transcription was to have the discussions available to the researcher for
(Lake, 2006).
situation. These were essential in interpreting their responses. All the responses,
answers, and information gathered were held and treated with utmost
presented them to the thesis adviser for suggestions and corrections. The questions
focused on the lived experiences of the family in coping with the situation of the
consent to the family members, explained to them the purpose of the study and
asked for the permission for the researchers to conduct an in-depth interview. The
researchers assured that the information gathered were confidential and they
would not be forced to answer the questions they are uncomfortable with.
41
The researchers asked if they could schedule the interview. The interview
process was conducted on the participant’s house. The family member alone was
present with the researchers. The researchers allotted enough time to interact and
get to know the participants in order to establish rapport with each other. The
conversations were recorded as per the permission of the participant. After the
interview, the researchers retrieved the data gathered and transcribed them in
details. The researchers then interpreted and analyzed the data gathered.
Data Analysis
The first step of the analysis is looking for themes in the first case. This
involves a detailed reading and rereading of the transcripts and a free textual
analysis to allow salient themes to emerge. The second stage involves connecting
the themes. This layer of analysis aims to produce initial lists of themes, a
superordinate themes and sub-themes. The analysis at this stage is checked with
the data. The third stage is analysis of other cases. Convergences and divergences
across cases are then identified towards developing the final set of superordinate
themes. The fourth and the last stage is the writing up of the narrative account
where themes are explained and illustrated. Throughout the analysis, the
42
researcher engaged in an interactive process of going back and forth from analysis
to text to ensure the validity of the analysis (Canoy & Olfreneo, n.d.).
43
CHAPTER IV
yielded research findings and results. It also includes the participants’ personal
background.
Personal Background
Participant 1 is 23-year old female, single, and residing at Sta. Maria, Sto.
Tanauan City Hall. Her mother, 62 years old, was diagnosed with stage 1 breast
cancer last June 2017. She is the only child of her parents and the one taking care
7, Talisay, Batangas. He is married with four children and works as a welder. His
wife, 45 years old, was diagnosed with stage 2B breast cancer last November 2016
Malvar, Batangas. Her family is a Roman Catholic. Her mother was diagnosed
with lymphoma last April 2017 and still undergoing treatment and chemotherapy.
She is the youngest child of her mother so she decided to resign from her previous
Tanauan City, Batangas. He is a Roman Catholic. His mother, 50 years old, was
diagnosed with stage 2B breast cancer last June 2017 and still undergoing
treatment and chemotherapy. His mother is a teacher. He is the eldest among six
Batangas. Her family members are Latter-Day Saints (Mormons) believers. She is
married and has 4 children. She graduated last June 2017 with a degree of BS
series of tests and several opinions from different hospitals her second daughter, 8
years old, was diagnosed with Wilms tumor (cancer of the kidney) last September
Personal information are limited because the ethics review board advised
the researchers not to dig too much of their personal lives for their privacy.
To answer the research question, “What are the lived experiences of the
family in coping with the situation of the member diagnosed with cancer?”
participants interviewed, the account of Liz (not her real name) is presented as the
idiographic case illustration. Data analysis established six higher-order themes that
(see Table 2). These themes are then illustrated using Liz’s ideographic account.
and requests
- Imposed discipline in the
lifestyle of the patient
The synthesis table explains the lived experiences of family members with
cancer patients. The experiences of family members are clustered on six major
Family Members (3) Support to patient (4) Closer Family Relationship (5) Coping
Strategies (6) Altruism. The first major theme stated how the family members
confirmed the cancer diagnosis and how they supported the patient through
chemotherapy treatment and removal of tumor. The second major theme is about
socialization with other people; neglected other members of the family; unattended
duties and responsibilities because they were focused on taking care of the patient;
found alternative source of income to support the financial needs of the patient
47
during their medication; sought help from the government for the chemotherapy,
surgical operations and medicines of the patient; and asked help from their
relatives. The third major theme is about supporting the patient. The family
members gave up their work to have more flexible time in taking care of the
patient. They experienced compassion fatigue; provided the patient’s needs and
requests; and imposed discipline on the lifestyle of the patients. The fourth major
theme covers the situation that brought the family to become closer. The fifth
major theme is about how the family members coped with the situation. Lastly, the
sixth major theme discussed how they learned the value of sharing despite of their
situation.
diagnosis, Liz’s family required her daughter to undergo several tests such as CT-
Scan and biopsy to ensure accurate diagnosis. The result showed that her daughter
was diagnosed with Stage 3 cancer and after the second opinion and retesting of
procedures at the Philippine General Hospital the result showed that the cancer has
spread on the lungs, pelvis, and the backbone and finally was diagnosed with
dinala pag dinala nyo doon ire-review ulit nila, hindi sila umaayon
sa test na nagawa ng ibang doctor, kailangang makasigurado sila
inuulit nila lahat, inulit ang CT-scan yung biopsy pinakuha samin
ung sample dun sa ospital yung nakuha sa kanya na specimen ni-
review ulit nila and then dun sila nagbigay ng diagnosis and
pagdating namin dun ang diagnosis na sa kanya ay stage three na
and then mabilis syang nai-akyat sa stage four kasi nung lumabas
na yung resulta nung pinaulit nila na test nakita nila na meron na sa
baga, meron sa pelvis sa backbone, yun na nga kalat na kaya stage
four.”
What Liz’s family underwent can be seen from what Mandal (2000)
mentioned about diagnosing cancer. There are different diagnostic tools that can
though that are hard to classify like lymphomas. Classification becomes difficult
even if they are made by experts. Most cancers need a second opinion regarding
Despite the danger and effects of chemotherapy and surgical operations, Liz’s
whether her child would be cancer – free or not, they still let her daughter undergo
chemotherapy to reduce the tumor size and to prevent from cancer cells from
49
spreading to other parts of the body. Eventually, her daughter will be subjected for
What the family did to support the cancer patient is supported by what
Kazemi et al. (2013) revealed that different methods of treatment such as surgery,
radiation and chemotherapy should be considered. It can also be seen from the
interview that daily life as well as the quality of life of the family and the patient
are affected. Different methods of treatment and providing care for patients with
cancer can distress the daily life of patients and affect their quality of life. Even
when the treatment is successful, patients live with the fear of relapse and
was diagnosed with Stage-4 cancer, their life really changed a lot. They are not
50
able to do the things that they used to do such as family bonding activities. Their
It shows that even if family members wanted to continue the usual way of
which mentioned that caregivers worry about how they will be able to take care of
the cancer patient and to take care of themselves. The caregiver sometimes has to
give up social activities and miss work. This can all be very hard and very tiring in
a physical and emotional way for both the caregiver and the patient. These
Neglect of other family members. Because Liz’s ill daughter needs most of
her time and attention, her eldest daughter somehow feels neglected. She is unable
to do the things that she used to do to their family especially to her other children.
yun papasok na pero kagaya nyan active din ‘yun sa school kagaya
nitong may sakit kong anak, so may sayaw sila, hindi ako nakaka
attend yung kapatid ko yung na-attend sila ang nag-aayos ng
gagamitin so ano nagtatampo yun tapos nagtatampo na yung
panganay ko kasi hindi namin sya napapanuod pero, napapaintindi
naman namin sa kanya so yun pag maguusap kaming mag-asawa
parang nakakamiss yung dati naming buhay na papasok ang mga
anak ko aawas magagalit kasi kalat ang pinaghuraban, sana pala
ganun nalang sana hindi na ganito.”
became caregivers for a sick parent, child or other relative found that caregiving
was likely to take its toll on the relationship with their own partner or other loved
ones. Focusing time and attention on the sick person meant that carers were less
available for the needs of others and less patient than they might have been
otherwise.
last June 2017 but was unable to take the board examination for teachers as
planned. She was not able also to attend her online shop and her responsibility as
PTA officer and over-all DepEd secretary either. Her focus is on her ill daughter
talaga nung nag-aaral ako tapos yung business ko tapos PTA din
ako dito sa school ng anak ko tsaka overall ng buong DepEd,
secretary ako, kaya parang yun parang hindi ko sila masyadong
natutukan, gusto ko kaya lang andaming umaagaw sa time ko.”
Found alternative source of income. Since the family needs more financial
resources due to increasing expenses for medicines and treatment, Liz and her
family need to find other sources of income. The family use all the resources that
are available to provide their financial needs. They are thinking of tricycle driving
as alternative to her husband’s previous job and online shop for Liz. These jobs
would give them earnings and at the same time they can look after their sick child.
“So yun ang plano namin since may tricycle kami nagkataon
yung binili naming tricycle may linya, and then ako plano kong
bumalik muna sa online shop ko since three weeks pa naman bago
sya uli maconfine sa second cycle ng chemo.”
program (DOH, DSWD, and PCSO). Government health programs are a big help
for them to support the medication and treatment of their ill child, thus, their
financial difficulties are aided. Through the mandate of President Rodrigo Roa
Duterte to the Department of Health, all indigent families with children who are
diagnosed with cancer are treated for free at Philippine General Hospital and other
public hospitals.
daw talaga yan umaabot ng 500K ang bill pag nagke-chemo ka pero
fortunately nang naging presidente si Digong, sa mga bata cancer
ng mga bata, sinagot nya ang pagpapagamot, so naglagay ng DOH
sa PGH, may DOH dun Department of Health, i-interviewhin ka
pag ikaw ay magulang ng cancer patient or kamag anak i-
interviewhin ka then i-issuehan ka ng white card katunayan na
indigent ka na hindi mo kaya, sabagay kahit naman may trabaho ka
di mo talaga kakayanin kasi mapapatigil ka sa trabaho, sunod ang
mahal ng chemo hindi mo rin kakayanin kaya nung nabalitaan
namin yun, edi dinala namin dun ininterview kami nakapasa naman
kami nabigyan kami ng white card and then kasi iyan maraming
yang series of confinement habang nagcchemo ibig sabihin series of
bayarin din kung hindi naging presidente si Digong pero dahil may
bigay sya pag may white card ka maddischarge ka sa unang cycle
kunyare naconfine ka punta ka lang sa DOH dadalhin mo dun
bibigyan ka nila ng biling makikita mo sa amin ay umabot sya ng
35K imagine nyo yun kung walang Digong kung walang white card
edi DOH tas yun wala ka talagang babayaran as in zero ang
babayaran mo lang dun pagkain pero kami babago palang yung
pagpapagamot hindi mo na masyadong problema yung gastos
nalang sa araw araw.”
Montales (2011) reported that the Department of Health recently launched
the Breast Cancer Medicine Access Program that offers financially challenged
The free treatment is for anyone in the country who meets the screening
Metro Manila hospitals: East Avenue Medical Center, José Reyes Memorial
Medical Center, Philippine General Hospital and Rizal Medical Center. This is a
basis.
through the issuance of guarantee letters to hospitals where the patients are
charity patient under the PCSO medical assistance program where the agency
2016 announced that indigents from five regions will be given free medical
Memorandum Circular No. 16, DSWD field offices in Regions III, VI, VII, XI,
and the National Capital Region have been directed to provide medicine assistance
(Roxas, 2017).
55
Asked help from relatives and friends. They sought help from their
relatives, friends, and church mates. These kind-hearted people responded to them
Support to patient
Gave up work to attend to the patient. When someone in the family is
diagnosed with cancer, the other family members need a lot of time to take care of
the ill family member. Liz`s husband had to give up his regular job to have
flexible time with his family, especially her daughter. He must be available
“So yun ang plano namin since may tricycle kami nagkataon
yung binili naming tricycle may linya, mamamasada muna ang
mister ko kasi nagresign sya sa trabaho para hawak nya ang oras,
so yun mamamasada muna sya, and then ako plano kong bumalik
muna sa online shop ko since three weeks pa naman bago sya uli
maconfine sa second cycle ng chemo.”
cope with. Carers may give up work to care for their friend or relative, or they may
need to pay for care at home or in a care home. Additional costs of heating bills,
56
food and laundry, and personal care can all mount up. These extra expenses can
create financial worries and add to the stress that carers and their friends or
Compassion Fatigue. Liz experienced stress while taking care of her ill
daughter but still she has to attend to and provide for the needs of her other
children. Eventhough she is satisfied that she can still perform her role as a mother
to all her children and taking care of her ill daughter, she is still a human that can
area where much formal effort or programs has been directed to support family
caregivers include anxiety, worry, burden, depression, and anger. Most of the
cancer were interdependent and affected each other's emotional well-being. Early
psychological distress.
Provided the entire needs and requests of the patient. Although Liz
sometimes feels like losing her temper for the attitude of her child, she seems to
understand her by reminding herself of her condition. Despite the situation, stress
and problems it brings, she always provides anything that her daughter requests.
both the cancer cells as well as the good cells that could lead immune system of
the patient to become vulnerable. That is reason the patient’s environment should
always be disinfected and free from germs because the patient’s body does not
have enough strength to fight those. The patient is fed by nutritious food like
intact for they are the only source of strength of their child’s recovery from cancer.
59
They can also rely to her mother and siblings to attend her other children and
Despite the situation, the family sees something positive built because of
the illness. Something good comes out of a supposedly bad situation. Ranchor
(2008) pointed out that dealing with highly stressful and traumatic events, such as
cancer, rape and bereavement, can lead to positive life changes, including
enhanced personal relationships, personal changer within the self and changes in
life philosophy.
Coping Techniques
Emotional disguise and regulation. After the result of the first test that
confirmed her daughter being diagnosed having cancer of the kidney, they were
still praying and hoping for a negative result, but the other test showed a clear sign
60
of cancer diagnosis. Liz found it hard to accept and cried a lot but she has to hide
“Sa akin syempre kahit kanino bilang ina lalo ang bata pa ng
anak mo, talagang dun palang sa mga unang tests nya na
nagiindicate na, nagbibigay ng sign na ganun, talagang dasal kami
ng dasal sana po hindi, sana hindi, iyak ako ng iyak sa asawa ko,
hindi kasi pwedeng ipakita sa anak ko kasi matalino yun magiisip
yun, tapos hindi ako pwedeng umiyak, tapos sumunod na mga test
parang yan na lumilinaw na ganun, parang hindi ko matanggap
tapos nung naconfine sya yung unang confinement nya sa Batangas
maya’t maya ako iyak ng iyak sa asawa ko nung pagtitingin ako,
syempre ang iniisip ko agad yung OA agad magisip, yung nandun
ka na agad sa end na agad, tas yun, yung asawa ko malakas, lagi
nya sinasabi sakin pag pinoroblema natin ang problema walang
mangyayare, kaya ang gawin lang natin ngayon nasa atin pa naman
ang anak natin solusyon, gawin natin ang lahat ng solusyon kesa
isipin natin ang ending solusyon muna ngayon solusyon”.
stress, Liz gained weight because she finds comfort whenever she eats.
strongest food cravings hit when a person is in their weakest point emotionally.
They may turn to food for comfort consciously or unconsciously when facing a
battle, giving up did not ever cross their mind because they see that their child is
fighting; they should be stronger. In the first place, she is their child that needs
members feel better and contribute to a more nurturing family environment. Most
cancer patients as well as their family members know all too well the stark
realities of cancer. It is difficult to carry on when patients receive bad news. But a
positive attitude helped them want to do things that they knew would be beneficial
62
to an outcome and helped them endure the fatigue, neuropathy, thinning hair and
member is diagnosed with cancer was to be overwhelmed and sad. Liz questioned
God but eventually her unending faith to the Almighty God helped her cope with
the difficult situation. They believe that God will not let the situation to happen if
they could not surpass the challenge and that everything is God’s will.
wala naman akong magagawa sa kanya na, may dahilan sya, ang
inaano ko nalang, magkikita kita pa naman kami mabilis lang ang
buhay sa mundo, pero syempre hanggat nandyan buhay aasa ka
talaga ng milagro, magdadasal ka ng milagro tsaka sabi ko lalaban
ako, lalaban ko parin, lalaban kami hanggang sa huli, tingnan natin
kung dinggin kami, kasi totoo naman ang milagro, kung didinggin
kami o hindi ang kagustuhan Nya ang masusunod”
This is called spiritual coping. Both patients and caregivers rely on spiritual
coping. Each person may have different spiritual needs, depending on cultural and
religious traditions. For some seriously ill patients, spiritual well-being may affect
how much anxiety they feel about death. For others, it may affect what they decide
about end-of-life treatments. Some patients and their family caregivers may want
doctors to talk about spiritual concerns, but may feel unsure about how to bring up
the subject.
Resiliency. Even though they are going through hard times, Liz and her
husband strive hard to become strong again after their daughter was diagnosed
with Stage-4 cancer. They will not let cancer stop their life.
It is evident when Reding et al. (2014) stated that cancer treatment has its own
adaptation and other positive psychosocial outcomes during and after treatment.
Studies have suggested that baseline characteristics and resilience mechanisms can
Reciprocal Altruism
It is clearly seen that people learn a lot from their experiences and what
others make them feel and see are vital in what they realize after being stuck in a
difficult situation. Penner et al. (2002) emphasized that the altruistic personality
involves both the cognitive and the emotional responses that people experience
around others. People with altruistic personalities tend to show empathy and
sympathy for others and feel that it is appropriate and right to follow the norm of
66
social responsibility. These people help more people in a wider variety of areas,
also have been found to help more quickly than do people who score lower on
these measures. In this sense, the value of extending help is always reciprocated.
CHAPTER V
Summary
This study aimed to determine the coping strategies used by the family
members with cancer patients and their lived experiences in coping with the
situation, which is important in determining the effect of the disease to the family.
This study utilized a qualitative research design to gain insight and explore
the depth and complexities inherent in the phenomenon.. The participants of the
study were five (5) family members that were selected by a purposive sampling
method. The data were gathered by using an in-depth interview and was analysed
This study aimed to find out the lived experiences of family members with
cancer patients in coping with the situation. It also includes medical condition
Findings
Based on the data gathered, analyzed and interpreted, the lived experiences
family member underwent several tests such as CT-Scan and biopsy and
other duties because they need to find alternative source of income and
3. Support to the Patient. The family members tend to give up their work
to attend to the patient’s needs and to provide the entire patient’s needs
and requests. They also ensure healthy lifestyle of the cancer patient.
each other became closer and they support each other morally.
Conclusion
In the light of the findings of the present study, the researchers have drawn
activities were lessened, other members of the family are being neglected
and their duties and responsibilities were being unattended because their
attention is mainly focused on the ill member. The family members used
the resources available to provide the needs of the patient, especially the
69
financial aspects. The health programs of the government are a major help
3. To give full support to the patient, the family members came to the point of
care of their ill family member. They provide the entire patient’s needs and
overcome the stresses that they encounter while taking care of their ill
6. The family members developed and learned the value of sharing and
realized the nature of helping others despite being the ones in need. This
participants.
Recommendations
given:
70
to the cancer patients because it is not easy to sustain the treatment of the
patients knowing it costs a lot. It would be a big help for them to be given
create campaigns not only for the cancer patients’ awareness but also on
3. Family members must ensure emotional regulation and more intact family
support the family members and the cancer patient, emotionally and
morally.
strategies that were not included in this study for better understanding.
71
7. The researchers recommend to further study about the other side of the
context such as inability to cope with the difficulty brought about by the
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