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Health Care Resource Organizations

Resource Organizations in the United States
AIDS BLINDNESS
CDC National AIDS Clearinghouse SEE: Visual Impairment
Publication Ordering Department
P.O. Box 6003
Rockville, MD 20840-6003
BURNS
(800) 458-5231
(800) 243-7012 (Deaf access) American Burn Association
www.cdcnpin.org National Headquarters Office
625 North Michigan Avenue, Suite 1530
CDC National AIDS Hot Line
Chicago, IL 60611
P.O. Box 13827
(312) 642-9260
Research Triangle Park, NC 27709
Member Toll-free (800) 548-2876
(800) 342-AIDS
FAX (312) 642-9130
(800) 344-7432 (Spanish)
www.ameriburn.org
(800) 243-7889 (Deaf access)
National Burn Victim Foundation
National Association of People with
246A Madisonville Road
AIDS
P.O. Box 409
1413 K Street NW
Basking Ridge, NJ 07920
Washington, DC 20005
(908) 953-9091
(202) 898-0414
Fax (908) 953-9099
Fax (202) 898-0435
www.nbvf.com
www.napwa.org

CANCER
ALCOHOLISM
American Cancer Society
SEE: Substance Abuse 1599 Clifton Road NE
Atlanta, GA 30329-4251
(800) ACS-2345
ALZHEIMER’S DISEASE (404) 320-3333
www.cancer.org
Alzheimer’s Association
225 North Michigan Avenue, Suite 1700 The Leukemia & Lymphoma Society
Chicago, IL 60601-7633 of America
(312) 335-8700 1311 Mamaroneck Avenue
(800) 272-3900 White Plains, NY 10605
Fax (312) 335-1110 (914) 949-5213
www.alz.org (800) 955-4572
www.leukemia-lymphoma.org
National Cancer Institute
ARTHRITIS 9000 Rockville Pike
31 Center Drive, MSC 2580
Arthritis Foundation Bethesda, MD 20892-2580
P.O. Box 7669 (301) 435-3848
Atlanta, GA 30357– 0669 (800) 4-CANCER
(800) 283-7800 www.nci.nih.gov
www.arthritis.org
R. A. Bloch Cancer Foundation
4435 Main Street
Kansas City, MO 64111
ASTHMA AND ALLERGY (816) 932-8453
SEE: Respiratory Disorders (800) 433-0464
Fax (816) 931-7486
www.blochcancer.org
Susan G. Komen Breast Cancer
AUTISM
Foundation
Autism Society of America 5005 LBJ Freeway
7910 Woodmont Avenue, Suite 300 Suite 370
Bethesda, MD 20814– 3067 Dallas, TX 75244
(301) 657-0881 (972) 855-1600
(800) 3AUTISM (800) 462-9273 short
Fax (301) 657-0869 www.komen.org standard
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CAREGIVERS DIABETES
Family Caregiver Alliance American Diabetes Association
690 Market Street, Suite 600 ATTN: Customer Service
San Francisco, CA 94104 1701 North Beauregard Street
(415) 434-3388 Alexandria, VA 22311
CA residents: (800) 445-8106 (800) DIABETES
www.caregiver.org www.diabetes.org
Make A Wish Juvenile Diabetes Research
3550 North Central Avenue, Suite 300 Foundation International
Phoenix, AZ 85012– 2127 120 Wall Street
(602) 279-WISH (9474) New York, NY 10005
(800) 722-WISH (9474) (800) JDF-CURE
FAX (602) 279-0855 (212) 785-9500
www.wish.org Fax (212) 785-9595
www.jdf.org
National Family Caregivers
Association
10605 Concord Street
Suite 501 DISABILITY
Kensington, MD 20895 Job Accommodation Network
(301) 942-6430 West Virginia University
(800) 896-3650 P.O. Box 6080
www.nfcacares.org Morgantown, WV 26506-6080
(800) 526-7234 (V/TTY)
http://janweb.icdi.wvu.edu
COMPLEMENTARY AND
ALTERNATIVE MEDICINE National Council on Disability
1331 F Street, NW
Alternative Medicine Foundation, Suite 1050
Inc. Washington, DC 20004
www.herbmed.org (202) 272-2004
American Chiropractic Association TTY: (202) 272-2074
1701 Clarendon Boulevard www.ncd.gov
Arlington, VA 22209 National Rehabilitation Information
(800) 986-4636 Center
Fax (703) 243-2593 8455 Colesville Road, Suite 935
www.amerchiro.org Silver Spring, MD 20919-3319
National Center for Complementary (301) 588-9284
and Alternative Medicine (800) 346-2742
NCCAM Clearinghouse www.naric.com
PO Box 7923
Gaithersburg, MD 20898
(888) 644-6226 DIVING ACCIDENTS
International: (301) 519-3153
Hearing Impaired: (866) 464-3615 Divers Alert Network
Fax (866) 464-3616 The Peter B. Bennett Center
www.nccam.nih.gov 6 West Colony Place
Durham, NC 27705
National Council Against Health (800) 446-2671
Fraud Fax (919) 490-6630
119 Foster Street www.diversalertnetwork.org
Peabody, MA 01960
(978) 532-9383
www.ncahf.org
DRUG ABUSE
SEE: Substance Abuse
CYSTIC FIBROSIS
SEE: Respiratory Disorders
DYSLEXIA
International Dyslexia Association
DEAFNESS Chester Bldg., Suite 382
SEE: Hearing Impairment 860 LaSalle Road
Baltimore, MD 21286-2044
(410) 296-0232
Fax (410) 321-5069
DEPRESSION
(800) ABC-D123 short
SEE: Mental Health www.interdys.org standard
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EATING DISORDERS National Down Syndrome Society

666 Broadway
National Association of Anorexia New York, NY 10012
Nervosa and Associated Disorders (800) 221-4602
Box 7 Fax (212) 979-2873
Highland Park, IL 60035 www.ndss.org
(708) 831-3438
Fax (847) 433-4632 Sickle Cell Disease Association of
www.anad.org America, Inc.
200 Corporate Pointe, Suite 495
Culver City, CA 90230– 8727
EMERGENCY RESPONSE SYSTEM (800) 421-8453
Lifeline Systems, Inc. (310) 216-6363
111 Lawrence Street Fax (310) 215-3722
Framingham, MA 01702-8156 www.sicklecelldisease.org
(508) 988-1000
www.lifelinesys.com
GERIATRICS
END-OF-LIFE CARE American Association of Retired
Compassion in Dying Federation Persons
6312 SW Capitol Hwy, #415 601 E Street NW
Portland, OR 97239 Washington, DC 20049
(503) 221-9556 (800) 424-3410
Fax (503) 228-9160 www.aarp.org
www.compassionindying.org
American Geriatrics Society
Hospice Foundation of America The Empire State Building
2001 S Street NW, #300 350 Fifth Avenue, Suite 801
Washington, DC 20009 New York, NY 10118
(800) 854-3402 (212) 308-1414
Fax (202) 638-5312 Fax (212) 832-8646
www.hospicefoundation.org www.americangeriatrics.org
National Hospice and Palliative Gerontological Society of America
Care Organization 1030 15th Street NW, Suite 250
1700 Diagonal Road, Suite 300 Washington, DC 20005
Alexandria, VA 22314 (202) 842-1275
(703) 837-1500 Fax (202) 842-1150
(800) 338-8619 www.geron.org
www.nhpco.org

GASTROINTESTINAL GRIEF COUNSELING

Crohn’s and Colitis Foundation of
American Association of Retired
America
Persons
386 Park Avenue S.
New York, NY 10016-8804 601 E Street NW
(800) 932-2423 Washington, DC 20049
Fax (212) 779-4098 (800) 424-3410
www.ccfa.org www.aarp.org/griefandloss
The Compassionate Friends
Box 3696
GENERAL Oak Brook, IL 60522-3696
American Health Care Association (630) 990-0010
1201 L Street, NW (877) 969-0010
Washington, DC 20005 Fax (630) 990-0246
(202) 842-4444 www.compassionatefriends.org
Fax (202) 842-3860
www.ahca.org National Catholic Ministry to the
Bereaved
28700 Euclid Avenue
GENETIC DISORDERS Cleveland, OH 44092
(440) 943-3480
Center for Jewish Genetic Diseases www.griefwork.org
Mount Sinai School of Medicine
Box 1497 PetFriends
One Gustave L. Levy Place P.O. Box 131
New York, NY 10029 Moorestown, NJ 08057-0131 short
(212) 659-6774 (800) 404-PETS standard
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HEARING IMPAIRMENT National Kidney Foundation

30 E. 33rd Street, Suite 1100
Alexander Graham Bell Association New York, NY 10016
for the Deaf (800) 622-9010
3417 Volta Place NW Fax (212) 689-9261
Washington, DC 20007 www.kidney.org
(202) 337-5220
Fax (202) 337-8314
www.agbell.org
LIVER DISEASE
Better Hearing Institute
515 King Street, Suite 420 American Liver Foundation
Alexandria, VA 22314 75 Maiden Lane, Suite 603
(800) EAR-WELL New York, NY 10038
Fax (703) 684-3394 (888) 4HE-PUSA (43-7872)
www.betterhearing.org Fax (212) 483-8179
www.liverfoundation.org
International Hearing Society
16880 Middlebelt Road, Suite 4 Hepatitis Foundation International
Livonia, MI 48154 504 Blick Drive
(734) 522-7200 Silver Spring, MD 20904– 2901
Fax (734) 522-0200 (800) 891-0707
www.ihsinfo.org (301) 622-4200
Fax (301) 622-4702
National Association of the Deaf www.hepfi.org
814 Thayer Avenue
Silver Spring, MD 20910
(301) 587-1788 LUNG DISEASES
Fax (301) 587-1791
www.nad.org SEE: Respiratory Disorders

HEART DISEASE LUPUS ERYTHEMATOSUS

American Heart Association Lupus Foundation of America
7272 Greenville Avenue 1300 Piccard Drive, Suite 200
Dallas, TX 75231-4596 Rockville, MD 20850-4303
(800) 242-8721 (301) 670-9292
www.americanheart.org (800) 558-0121
Mended Hearts www.lupus.org
7272 Greenville Avenue
Dallas, TX 75231-4596
(800) AHAUSA1 MENTAL HEALTH
(214) 706-1442
Fax (214) 706-5245 American Association of Mental
www.mendedhearts.org Retardation
444 North Capitol Street, NW, Suite 846
National Heart Savers Association Washington, DC 20001
9140 W. Dodge Road (800) 424-3688
Omaha, NE 68114 (202) 387-1968
(402) 398-1993
www.heartsavers.org Anxiety Disorders Association of
America
8730 Georgia Avenue, Suite 600
HEMOPHILIA Silver Spring, MD 20910
(240) 485-1001
National Hemophilia Foundation Fax (240) 485-1035
116 West 32nd Street, 11th Floor www.adaa.org
New York, NY 10001
(212) 328-3700 Depression and Bipolar Support
(800) 42-HANDI Alliance
Fax (212) 328-3777 730 North Franklin Street, Suite 501
www.hemophilia.org Chicago, IL 60610– 7224
(800) 826-3632
Fax (312) 642-7243
KIDNEY DISEASE www.dbsalliance.org
American Kidney Fund Depression and Related Affective
6110 Executive Blvd., Suite 1010 Disorders
Rockville, MD 20852 600 North Wolfe Street
(800) 638-8299 Baltimore, MD 21287-7381
Fax (301) 881-0898 (410) 955-4647 short
www.akfinc.org www.drada.org standard
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National Mental Health Association National Stroke Association

2001 North Beauregard Street, 12th 96 Inverness Drive East
Floor Suite 1
Alexandria, VA 22311 Englewood, CO 80112-5112
(703) 684-7722 (800) STROKES (787-6537)
Fax (703) 684-5968 (303) 649-9299
(800) 969-NMHA http://209.107.44.93/NationalStroke/
www.nmha.org default.htm
Post-traumatic Stress Disorder Norris MDA/ALS Center
Alliance Robert G. Miller, M.D.
www.ptsdalliance.org California Pacific Medical Center
2324 Sacramento Street, Suite 150
San Francisco, CA 94115
NEUROLOGICAL DISORDERS
(415) 923-3604
American Stroke Association Fax (415) 923-6567
7272 Greenville Avenue www.mdausa.org/clinics/alsserv.html
Dallas, TX 75231
Parkinson’s Disease Foundation,
(888) 4 STROKE (478-7653)
Inc.
www.strokeassociation.org
William Black Medical Building
Amyotrophic Lateral Sclerosis Columbia-Presbyterian Medical Center
Association 710 West 168th Street
27001 Agoura Road, Suite 150 New York NY 10032-9982
Calabasas Hills, CA 91301-5104 (212) 923-4700
(800) 782-4747 (800) 457-6676
www.alsa.org www.parkinsons-foundation.org
Epilepsy Foundation United Cerebral Palsy Associations
4351 Garden City Drive 1660 L Street NW, Suite 700
Landover, MD 20785 Washington, DC 20036
(800) EFA-1000 (800) USA-5UCP
Fax (301) 577-4941 (202) 776-0406
www.epilepsyfoundation.org Fax (202) 776-0414
www.ucpa.org
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Fort Lauderdale, FL 33309-2130 ORGAN DONATION
(800) 225-6495 Living Bank
www.msfacts.org 4545 Post Oak Place, Suite 315
Muscular Dystrophy Association Houston, TX 77027
3300 East Sunrise Drive (800) 528-2971
Tucson, AZ 85718 www.livingbank.org
(800) 572-1717 United Network for Organ Sharing
(602) 529-2000 P.O. Box 2484
www.mdausa.org Richmond, VA 23218
National Multiple Sclerosis Society (888) 894-6361
733 3rd Avenue, 6th Floor www.unos.org
New York, NY 10017
(212) 986-3240 PAIN
(800) FIGHT-MS
American Chronic Pain Association
www.nmss.org
P.O. Box 850
National Parkinson Foundation Rocklin, CA 95677
1501 N.W. 9th Avenue (800) 533-3231
Bob Hope Road Fax (916) 632-3208
Miami, FL 33136-1494 www.theacpa.org
(800) 327-4545
International Association for the
(305) 547-6666
Study of Pain
Fax (305) 243-4403
909 NE 43rd Street, Suite 306
www.parkinson.org
Seattle, WA 98105-6020
National Spinal Cord Injury (206) 547-6409
Association Fax (206) 547-1703
6701 Democracy Boulevard www.iasp-pain.org
Suite 300-9
Bethesda, MD 20817
(800) 962-9629
(301) 214-4006
Fax (301) 881-9817 short
www.spinalcord.org standard
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PESTICIDES SLEEP DISORDERS

National Pesticide American Academy of Sleep
Telecommunication Network Medicine
Oregon State University One Westbrook Corporate Center, Suite
333 Weniger 920
Corvallis, OR 97331-6502 Westchester, IL 60154
(800) 858-7378 (708) 492-0930
Fax (541) 737-0761 Fax (708) 492-0943
www.ace.orst.edu/info/nptn www.aasmnet.org

RARE DISORDERS SPINA BIFIDA

National Organization for Rare Spina Bifida Association of America
Disorders 4590 MacArthur Blvd. NW, Suite 250
55 Kenosia Avenue Washington, DC 20007
P.O. Box 1968 (202) 944-3285
Danbury, CT 06813-1968 (800) 621-3141
(800) 999-6673 Fax (202) 944-3295
(203) 744-0100 www.sbaa.org
Fax (203) 798-2291
www.rarediseases.org SUBSTANCE ABUSE
Alcoholics Anonymous
RELIEF ORGANIZATIONS P.O. Box 459, Grand Central Station
American Red Cross New York, NY 10163
431 18th Street, NW (212) 870-3400
Washington, DC 20006 www.aa.org
(202) 303-4498 Cottage Program International
www.redcross.org 57 West South Temple, Suite 420
Save the Children Salt Lake City, UT 84101-1511
54 Wilton Road (800) 752-6100
Westport, CT 06880 Narcotics Anonymous
(203) 221-4030 P.O. Box 9999
(800) 728-3843 Van Nuys, CA 91409
www.savethechildren.org (818) 773-9999
Fax (818) 700-0700
RESPIRATORY DISORDERS www.na.org

American Lung Association National Families in Action

61 Broadway, 6th floor Century Plaza II
New York, NY 10006 2957 Clairmont Road, Suite 150
(212) 315-8700 Atlanta, GA 30329
(800) LUNGUSA (404) 248-9676
www.lungusa.org Fax (404) 248-1312
www.nationalfamilies.org
Asthma and Allergy Foundation of
America SUICIDE
1233 20th Street, NW, Suite 402
Washington, DC 20036 American Association of Suicidology
(800) 7-ASTHMA (727-8462) 4201 Connecticut Avenue NW, Suite 408
Fax (202) 466-8940 Washington, DC 20008
www.aafa.org (202) 237-2280
www.suicidology.org
Cystic Fibrosis Foundation
6931 Arlington Road, No. 200 American Foundation for Suicide
Bethesda, MD 20814 Prevention
(800) FIGHT CF (344-4823) 120 Wall Street, 22nd floor
(301) 951-4422 New York, NY 10005
Fax (301) 951-6378 (212) 363-3500
www.cff.org (800) 333-AFSP
Fax (212) 363-6237
www.afsp.org
REYE’S SYNDROME
National Reye’s Syndrome
Foundation
426 North Lewis Street
Bryan, OH 43506
(800) 233-7393 short
www.reyessyndrome.org standard
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VISUAL IMPAIRMENT (212) 821-9200

(800) 829-0500
American Foundation for the Blind TTY (212) 821-9713
11 Penn Plaza, Suite 300 www.lighthouse.org
New York, NY 10001
(212) 502-7600 National Association for Visually
(800) 232-5463 Handicapped
Fax (212) 502-7777 22 West 21st Street
www.afb.org New York, NY 10010
(212) 889-3141
Foundation Fighting Blindness Fax (212) 727-2931
11435 Cronhill Drive www.navh.org
Owings Mills, MD 21117– 2220
(888) 394-3937 Recording for the Blind and
Local: (410) 568-0150 Dyslexic
www.blindness.org 20 Roszel Road
Princeton, NJ 08540
Lighthouse International (800) 803-7201
111 East 59th Street (800) 221-4792
New York, NY 10022 www.rfbd.org

Resource Organizations in Canada

AIDS CANCER
AIDS Committee of Ottawa Canadian Cancer Society
207 Queens Street, 4th Floor National Office
Ottawa, Ontario K1P 6E5 10 Alcorn Avenue, Suite 200
(613) 238-5014 Toronto, Ontario M4V 3B1
www.aco-cso.ca (416) 961-7223
Fax (416) 961-4189
Canadian Public Health Association
www.cancer.ca
1565 Carling Avenue, Suite 400
Ottawa, Ontario K1Z 8R1
(877) 999-7740
(613) 725-3434 DIABETES
Fax (613) 725-1205
www.cpha.ca Canadian Diabetes Association
15 Toronto Street, Suite 800
Toronto, Ontario M5C 2E3
ALZHEIMER’S DISEASE (416) 363-3373
(800) BANTING
Alzheimer Society of Canada www.diabetes.ca
20 Eglinton Avenue West, Suite 1200
Toronto, Ontario M4R 1K8
(416) 488-8772
Fax (416) 488-3778 EATING DISORDERS
www.alzheimer.ca
National Eating Disorders
Information Centre
ARTHRITIS College Wing, 1-211
200 Elizabeth Street
The Arthritis Society Toronto, Ontario M5G-2C4
393 University Avenue, Suite 1700 (416) 340-4156
Toronto, Ontario M5G 1E6 Fax (416) 340-4736
(416) 979-7228 www.nedic.ca
Fax (416) 979-8366
www.arthritis.ca

HEARING IMPAIRMENT
BIRTH DEFECTS Canadian Association of the Deaf
AboutFace 251 Bank Street, Suite 203
99 Crowns Lane, 4th Floor Ottawa, Ontario K2P 1X3
Toronto, Ontario M5R 3P4 (613) 565-2882
(800) 665-FACE (3223) Fax (613) 565-1207
www.aboutfaceusa.org www.cad.ca short
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HEART DISEASE Canadian Association of Friedreich’s

Canadian Adult Congenital Heart Ataxia
Network 5620, rue C.A. Jobin
The Toronto Hospital Montreal, Quebec H1P 1H8
200 Elizabeth Street, EN 12-213 (514) 321-8684
Toronto, Ontario M5G 2C4
(416) 977-5096
Fax (416) 340-5014 ORGAN DONATION
www.cachnet.org M.O.R.E. of Ontario
Canadian Cardiovascular Society 984 Bay Street, Ste. 503
360 Victoria Avenue, Room 401 Toronto, Ontario M5S 2A5
Westmont, Quebec H3Z 2N4 (416) 921-1130
(514) 482-3407 (800) 263-2833
(514) 482-6574
www.ccs.ca REPRODUCTIVE DISORDERS
HEMOPHILIA Canadian Pelvic Inflammatory
Disease Society
World Federation of Hemophilia 802-1170 Pendrell
1425 René Lévesque Boulevard West, Vancouver, British Columbia V6J 4L6
Suite 1010 (604) 684-5704
Montreal, Quebec H3G 1T7
(514) 875-7944 Infertility Awareness Association of
Fax (514) 875-8916 Canada
www.wfh.org 406 - One Nicholas Street
Ottawa, Ontario K1N 7B7
(613) 244-7222
KIDNEY
Fax (613) 244-8908
Kidney Foundation of Canada www.iaac.ca
2300 René Lévesque Blvd.
Montreal, Quebec H3H 2R5
(514) 938-4515 RESPIRATORY DISORDERS
(800) 565-4515 Lung Association
Fax (514) 938-4757 Three Raymond Street
www.kidney.ca Ottawa, Ontario K1R 1A3
(613) 230-4200
LIVER Fax (613) 230-5210
Canadian Liver Foundation www.on.lung.ca
National Office
365 Bloor Street East, Ste. 200 VISUAL IMPAIRMENT
Toronto, Ontario M4W 3L4
(416) 964-1953 Canadian Council of the Blind
(800) 563-5483 405-396 Cooper Street
Fax (416) 964-0024 Ottawa, Ontario K2P 2H7
www.liver.ca (613) 567-0311

MENTAL HEALTH WEB-BASED RESOURCES

Canadian Mental Health Association
Inclusion of a website on this list does
2160 Yonge Street
not imply endorsement of the information
Toronto, Ontario M4S 2Z3
contained on that site.
(416) 484-7750
Fax (416) 484-4617
www.cmha.ca HealthAnswers.com
www.healthanswers.com
NEUROLOGICAL DISORDERS Healtheon/WebMD
ALS Society of Canada www.webmd.com
265 Yorkland Boulevard, Suite 300 InteliHealth
Toronto, Ontario M2J 1S5 www.intelihealth.com
(416) 497-2267
Fax (416) 497-1256 Mayo Clinic Health Oasis
www.als.ca www.mayoclinic.com

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